(No subject)

[Guest guest]

Susie:

I have that red red face when it is warm or when I get tired. When I went to

my sister's wedding in San Diego in May, everyone thought on the day of the

wedding that I was laying out in the sun. Ya, right.

Sue AIH

Wisconsin

[Guest guest]

Hi ,

1) My ANA has been positive and now negative.

2) Sed rate is an indication of inflammation in the body. It is only a very

rough indicator, though and does not necessarily correlate with disease

activity.

3) My tolerance fluctuates a lot.

4) the liver bx is a piece of cake. The last one I had took about 10 minutes

from the time I was wheeled in until I was wheeled out. A couple of hours

sitting in a recliner and I was released. No pain whatsoever.

It's normal to be scared. When our own immune system turns on us, it can

affect any and every part of our body. No two people are alike. I have

problems from my eyes to my toes. After a while you begin to accept it and

adjust your days to minimize the problems.

<<<<<hugs>>>>>

Don

[Guest guest]

Don,

You know you are right, after a while you do begin to accept it and adjust

yours days.

When I first started with this group, I was petrified. Wondered just how I

would get through each day. Now I seem to be adjusting as you said. A good

feeling.

SueB.

----------

> From: Don Hanson <donhanson@...>

> onelist

> Subject: Re: [ ] (no subject)

> Date: Sunday, 11 July 1999 3:01

>

> From: " Don Hanson " <donhanson@...>

>

> Hi ,

>

> 1) My ANA has been positive and now negative.

> 2) Sed rate is an indication of inflammation in the body. It is only a

very

> rough indicator, though and does not necessarily correlate with disease

> activity.

> 3) My tolerance fluctuates a lot.

> 4) the liver bx is a piece of cake. The last one I had took about 10

minutes

> from the time I was wheeled in until I was wheeled out. A couple of hours

> sitting in a recliner and I was released. No pain whatsoever.

>

> It's normal to be scared. When our own immune system turns on us, it can

> affect any and every part of our body. No two people are alike. I have

> problems from my eyes to my toes. After a while you begin to accept it

and

> adjust your days to minimize the problems.

>

> <<<<<hugs>>>>>

> Don

>

>

> ---------------------------

[Guest guest]

Susie,

Thanks so much for your response.. My blood pressure

has been slightly elevated the last few times Ive

been to the doctor. Is this also part of the AIH? My

pressure has never been high before.

Thanks to everyone out there who gave me encouragment

and honesty with regards to my questions.

HUGS

jody

===

ISO B-family

DOB 5-23-61

b-name: Compton

*VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR

FAMILIES**

---SUSIE22658@... wrote:

>

> From: SUSIE22658@...

>

> Jody

> I can't answer all the questions but from my

experience the liver biopsy

> isn't that bad. They usually give you through an

IV Versed and maybe some

> pain medicine plus they also numb the skin. The 2

or 3 jabs into the liver

> are not pleasant-but not unbearable either. I had

to stay for 4 hours

> afterwards as an outpatient and went home-somebody

of course will have to

> drive you. The next day I was a little sore but

felt OK just tired.

>

> I'm sorry you are having a bad day. I know how

those can be-it has actually

> been a bad week for me. I don't post very often

but I do read most of them

> and it is supportive to know I'm not alone with

this disease.

>

> I hope tomorrow is better for you and you have a

nice weekend. The heat is

> gone here in Indiana-just in the 80's tomorrow and

70's on Sunday-my kinda

> weather-I can't tolerate heat anymore-my

face/cheeks turn red red red-people

> go do you have high blood pressure? No-that's just

me and what ever else is

> going on!

> Susie

>

> ---------------------------

[Guest guest]

Susie,

Thanks so much for your response.. My blood pressure

has been slightly elevated the last few times Ive

been to the doctor. Is this also part of the AIH? My

pressure has never been high before.

Thanks to everyone out there who gave me encouragment

and honesty with regards to my questions.

HUGS

jody

===

ISO B-family

DOB 5-23-61

b-name: Compton

*VOTE TO RE-ESTABLISH ADOPTEES RIGHTS TO KNOW THEIR

FAMILIES**

---SUSIE22658@... wrote:

>

> From: SUSIE22658@...

>

> Jody

> I can't answer all the questions but from my

experience the liver biopsy

> isn't that bad. They usually give you through an

IV Versed and maybe some

> pain medicine plus they also numb the skin. The 2

or 3 jabs into the liver

> are not pleasant-but not unbearable either. I had

to stay for 4 hours

> afterwards as an outpatient and went home-somebody

of course will have to

> drive you. The next day I was a little sore but

felt OK just tired.

>

> I'm sorry you are having a bad day. I know how

those can be-it has actually

> been a bad week for me. I don't post very often

but I do read most of them

> and it is supportive to know I'm not alone with

this disease.

>

> I hope tomorrow is better for you and you have a

nice weekend. The heat is

> gone here in Indiana-just in the 80's tomorrow and

70's on Sunday-my kinda

> weather-I can't tolerate heat anymore-my

face/cheeks turn red red red-people

> go do you have high blood pressure? No-that's just

me and what ever else is

> going on!

> Susie

>

> ---------------------------

[Guest guest]

Hi Charlene,

It's nice to hear that your manager is so accommodating. You must be a

wonderful employee...and don't be too hard on yourself! A transplant behind

you, and still working! I think you're incredible! Take care, and enjoy

your new work schedule!

>From: DSTAR87@...

>Reply- onelist

> onelist

>Subject: [ ] (no subject)

>Date: Mon, 12 Jul 1999 21:52:14 EDT

>

>From: DSTAR87@...

>

>Hello everyone, Well today I finally realized that I cannot work full time

>and have a good home life. I just had a three day weekend with gorgeous

>weather and I was too tired to do anything. So today I went to talk to my

>manager and she said she would figure out a part-time schedule for me. She

>wants me to think over how much I can work and tell her so she can work it

>out into a schedule. The people at Filene's have been pretty accomodating,

>plus I get to keep most of my benefits as long as I work 20 hours a week.

>I'm gonna try for 24. When I told my manager that I felt I wasn't keeping

>up

>with the younger employees she said I was being too hard on myself and that

>I

>was ddoing a fine job. Then I went to my doctor's appointment with my

>local

>doctor. He's a very good doctor(started seeing him after the transplant).

>His specialty is oncology. When I told him I couldn't work full time after

>trying and told him I couldn't understand why I was so tired when my blood

>levels are good he just said " I understand why. " I was so relieved to hear

>that. He said many former cancer patients are also always tired and they

>are

>doing some big studies on it. Maybe these studies will help people who

>need

>to go on Social Security Disability but get denied because their blood work

>doesn't come out bad enough in their eyes. Well anyways, I felt better

>about

>myself after leaving the doc's office. He's also going to have me get a

>bone

>scan because of the prednisone. This doctor hasn't had any openings for

>patients in a very long time because once you are his patient you stick

>with

>him. I know many people who go to him and they all like him very much. He

>is very caring. Well I hope everyone else had a nice day. It was another

>beautiful day here in Massachusetts. Bye. Charlene

>

>---------------------------

[Guest guest]

I totally agree, to me this is amazing and wonderful at the same time. Hold on

there, I think sometimes we tend to expect too much of ourselves. Lynn in Wa

emily simpson wrote:

> From: " emily simpson " <esimpson7@...>

>

> Hi Charlene,

>

> It's nice to hear that your manager is so accommodating. You must be a

> wonderful employee...and don't be too hard on yourself! A transplant behind

> you, and still working! I think you're incredible! Take care, and enjoy

> your new work schedule!

>

>

>

> >From: DSTAR87@...

> >Reply- onelist

> > onelist

> >Subject: [ ] (no subject)

> >Date: Mon, 12 Jul 1999 21:52:14 EDT

> >

> >From: DSTAR87@...

> >

> >Hello everyone, Well today I finally realized that I cannot work full time

> >and have a good home life. I just had a three day weekend with gorgeous

> >weather and I was too tired to do anything. So today I went to talk to my

> >manager and she said she would figure out a part-time schedule for me. She

> >wants me to think over how much I can work and tell her so she can work it

> >out into a schedule. The people at Filene's have been pretty accomodating,

> >plus I get to keep most of my benefits as long as I work 20 hours a week.

> >I'm gonna try for 24. When I told my manager that I felt I wasn't keeping

> >up

> >with the younger employees she said I was being too hard on myself and that

> >I

> >was ddoing a fine job. Then I went to my doctor's appointment with my

> >local

> >doctor. He's a very good doctor(started seeing him after the transplant).

> >His specialty is oncology. When I told him I couldn't work full time after

> >trying and told him I couldn't understand why I was so tired when my blood

> >levels are good he just said " I understand why. " I was so relieved to hear

> >that. He said many former cancer patients are also always tired and they

> >are

> >doing some big studies on it. Maybe these studies will help people who

> >need

> >to go on Social Security Disability but get denied because their blood work

> >doesn't come out bad enough in their eyes. Well anyways, I felt better

> >about

> >myself after leaving the doc's office. He's also going to have me get a

> >bone

> >scan because of the prednisone. This doctor hasn't had any openings for

> >patients in a very long time because once you are his patient you stick

> >with

> >him. I know many people who go to him and they all like him very much. He

> >is very caring. Well I hope everyone else had a nice day. It was another

> >beautiful day here in Massachusetts. Bye. Charlene

> >

> >---------------------------

[Guest guest]

Sue

I get a very red face, especially when I am overheated. A few weeks ago, I

walked into a store and the clerk said, " Oh, my, is it that hot out there? "

I just said, " To me, it is! "

Kaye

Roselle50@... wrote:

> From: Roselle50@...

>

> Susie:

>

> I have that red red face when it is warm or when I get tired. When I went to

> my sister's wedding in San Diego in May, everyone thought on the day of the

> wedding that I was laying out in the sun. Ya, right.

>

> Sue AIH

> Wisconsin

>

> ---------------------------

[Guest guest]

Hi Charlene,

My wife loves to shop at the Burlington Mall. We go to see Dr. Gordon at

the Lahey Burlington to get her varices banded and to plan for a

pretransplant physical. & Vi Schneider Bedford, N.H. Wife with

AIH

[ ] (no subject)

> From: DSTAR87@...

>

> Hello everyone, Well today I finally realized that I cannot work full

time

> and have a good home life. I just had a three day weekend with gorgeous

> weather and I was too tired to do anything. So today I went to talk to my

> manager and she said she would figure out a part-time schedule for me.

She

> wants me to think over how much I can work and tell her so she can work it

> out into a schedule. The people at Filene's have been pretty

accomodating,

> plus I get to keep most of my benefits as long as I work 20 hours a week.

> I'm gonna try for 24. When I told my manager that I felt I wasn't keeping

up

> with the younger employees she said I was being too hard on myself and

that I

> was ddoing a fine job. Then I went to my doctor's appointment with my

local

> doctor. He's a very good doctor(started seeing him after the transplant).

> His specialty is oncology. When I told him I couldn't work full time

after

> trying and told him I couldn't understand why I was so tired when my blood

> levels are good he just said " I understand why. " I was so relieved to

hear

> that. He said many former cancer patients are also always tired and they

are

> doing some big studies on it. Maybe these studies will help people who

need

> to go on Social Security Disability but get denied because their blood

work

> doesn't come out bad enough in their eyes. Well anyways, I felt better

about

> myself after leaving the doc's office. He's also going to have me get a

bone

> scan because of the prednisone. This doctor hasn't had any openings for

> patients in a very long time because once you are his patient you stick

with

> him. I know many people who go to him and they all like him very much.

He

> is very caring. Well I hope everyone else had a nice day. It was another

> beautiful day here in Massachusetts. Bye. Charlene

>

> ---------------------------

[Guest guest]

hi janelle,

I like my GI and he always examines me everytime I go to him. Just all have

different personalities I guess.

J

>From: Janelle Asplund <jasplund@...>

>Reply- onelist

> onelist

>Subject: [ ] (no subject)

>Date: 04 Aug 1999 16:45:37 -0500

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>

>From: Janelle Asplund <jasplund@...>

>

>

>

>

>Hi everybody. I've been absent for a couple of weeks, but now I'm ready to

>start catching up. I think I was going through a little period of denial:

>at my last check-up, my LFTs looked good and I had a few weeks of not

>having any doctor appointments or blood tests, so I gave myself permission

>to not think about being sick, and therefore not read the posts. I'm still

>trying to find the happy medium between thinking about my AIH ALL the time,

>and not thinking about it at all.

>

>I've returned to work part-time, which hasn't been as bad as I thought. The

>first day was the hardest--I was dragging so bad on my way to the bus stop

>(after a whopping four hours in the office, most of which was just spent

>chit-chatting anyway) that some asshole felt he need to lean out of his car

>window and shout at me, " Too much heroin?! HAHA! " Boy I wish I could've

>popped him one for that crack! Other than that, it's been extremely slow,

>everyone has been really accomodating and helpful (they claim I'm not as

>spacey and ineffectual as I feel), and I haven't entirely forgotten how to

>do my job. I did just find out on Friday that I have to work 20 hours a

>week

>to maintain my health insurance, whereas I had originally only planned to

>work about 12. I guess I'll just have to give it a shot and see how it

>goes.

>

>I've started seeing a new rheumatologist, whom I like a lot. He asked me

>tons of questions, really listened to my answers, and responded

>thoughtfully to my questions. Most impressively, he openly admitted that he

>didn't know why I'm having such bad joint pain--he didn't just take a stab

>at a diagnosis, or pretend the problem doesn't exist just because he

>doesn't understand it, but instead outlined what the possibilities are and

>said he's going to some further research. He treated me like an intelligent

>human being with a problem that we both want to solve, not just some dumb

>sick person who can't be trusted with all the facts about the state of her

>own health. He was even teasing me about how I walk like an old lady! My GI

>isn't such a bad guy, but I was so much more satisfied with my rheumy that

>I started to think more carefuly about why. Here's my theory: I wonder if

>part of the difference is that a rheumatologist has to physically interact

>with patients, he has to touch them, be close to them, and manipulate their

>bodies in a way that would require him to develop a higher level of

>gentleness and communication. For GIs it's all internal stuff (moreover

>yucky stuff: poop and waste and whatnot!); they don't have to touch you at

>all, ever, it seems (or at least, mine has touched me once for the sum

>total of 3 minutes). Anyway, that's my hypothesis...any thoughts?

>

>I'm blathering.

>

>Janelle AIH

>Seattle

>

>P.S. Roxanne, could you re-post the phone no. or address of the place you

>mail order your milk thistle from? I can't find where I wrote it

>down...Thanks.

>

>---------------------------

[Guest guest]

Yep, I would be a cranky Dr. too if all I had to do was work with yucky stuff

and poop. I think you have nailed it on the head! Who is this nice Dr.? My

husband needs a good one and we are only 2 hrs. from Seattle. Go ahead and

blather, it makes you sould human! Hope work works out for you. Lynn aih

Janelle Asplund wrote:

> From: Janelle Asplund <jasplund@...>

>

> Hi everybody. I've been absent for a couple of weeks, but now I'm ready to

> start catching up. I think I was going through a little period of denial:

> at my last check-up, my LFTs looked good and I had a few weeks of not

> having any doctor appointments or blood tests, so I gave myself permission

> to not think about being sick, and therefore not read the posts. I'm still

> trying to find the happy medium between thinking about my AIH ALL the time,

> and not thinking about it at all.

>

> I've returned to work part-time, which hasn't been as bad as I thought. The

> first day was the hardest--I was dragging so bad on my way to the bus stop

> (after a whopping four hours in the office, most of which was just spent

> chit-chatting anyway) that some asshole felt he need to lean out of his car

> window and shout at me, " Too much heroin?! HAHA! " Boy I wish I could've

> popped him one for that crack! Other than that, it's been extremely slow,

> everyone has been really accomodating and helpful (they claim I'm not as

> spacey and ineffectual as I feel), and I haven't entirely forgotten how to

> do my job. I did just find out on Friday that I have to work 20 hours a week

> to maintain my health insurance, whereas I had originally only planned to

> work about 12. I guess I'll just have to give it a shot and see how it goes.

>

> I've started seeing a new rheumatologist, whom I like a lot. He asked me

> tons of questions, really listened to my answers, and responded

> thoughtfully to my questions. Most impressively, he openly admitted that he

> didn't know why I'm having such bad joint pain--he didn't just take a stab

> at a diagnosis, or pretend the problem doesn't exist just because he

> doesn't understand it, but instead outlined what the possibilities are and

> said he's going to some further research. He treated me like an intelligent

> human being with a problem that we both want to solve, not just some dumb

> sick person who can't be trusted with all the facts about the state of her

> own health. He was even teasing me about how I walk like an old lady! My GI

> isn't such a bad guy, but I was so much more satisfied with my rheumy that

> I started to think more carefuly about why. Here's my theory: I wonder if

> part of the difference is that a rheumatologist has to physically interact

> with patients, he has to touch them, be close to them, and manipulate their

> bodies in a way that would require him to develop a higher level of

> gentleness and communication. For GIs it's all internal stuff (moreover

> yucky stuff: poop and waste and whatnot!); they don't have to touch you at

> all, ever, it seems (or at least, mine has touched me once for the sum

> total of 3 minutes). Anyway, that's my hypothesis...any thoughts?

>

> I'm blathering.

>

> Janelle AIH

> Seattle

>

> P.S. Roxanne, could you re-post the phone no. or address of the place you

> mail order your milk thistle from? I can't find where I wrote it

> down...Thanks.

>

> ---------------------------

[Guest guest]

I worked for a GI doc once. she didnt like touching her patients. THey

see some discusting infections. we used to say she was a guts and butts

doctor

Jody

--- Janelle Asplund <jasplund@...> wrote:

> From: Janelle Asplund <jasplund@...>

>

>

>

>

> Hi everybody. I've been absent for a couple of

> weeks, but now I'm ready to

> start catching up. I think I was going through a

> little period of denial:

> at my last check-up, my LFTs looked good and I had a

> few weeks of not

> having any doctor appointments or blood tests, so I

> gave myself permission

> to not think about being sick, and therefore not

> read the posts. I'm still

> trying to find the happy medium between thinking

> about my AIH ALL the time,

> and not thinking about it at all.

>

> I've returned to work part-time, which hasn't been

> as bad as I thought. The

> first day was the hardest--I was dragging so bad on

> my way to the bus stop

> (after a whopping four hours in the office, most of

> which was just spent

> chit-chatting anyway) that some asshole felt he need

> to lean out of his car

> window and shout at me, " Too much heroin?! HAHA! "

> Boy I wish I could've

> popped him one for that crack! Other than that, it's

> been extremely slow,

> everyone has been really accomodating and helpful

> (they claim I'm not as

> spacey and ineffectual as I feel), and I haven't

> entirely forgotten how to

> do my job. I did just find out on Friday that I have

> to work 20 hours a week

> to maintain my health insurance, whereas I had

> originally only planned to

> work about 12. I guess I'll just have to give it a

> shot and see how it goes.

>

> I've started seeing a new rheumatologist, whom I

> like a lot. He asked me

> tons of questions, really listened to my answers,

> and responded

> thoughtfully to my questions. Most impressively, he

> openly admitted that he

> didn't know why I'm having such bad joint pain--he

> didn't just take a stab

> at a diagnosis, or pretend the problem doesn't exist

> just because he

> doesn't understand it, but instead outlined what the

> possibilities are and

> said he's going to some further research. He treated

> me like an intelligent

> human being with a problem that we both want to

> solve, not just some dumb

> sick person who can't be trusted with all the facts

> about the state of her

> own health. He was even teasing me about how I walk

> like an old lady! My GI

> isn't such a bad guy, but I was so much more

> satisfied with my rheumy that

> I started to think more carefuly about why. Here's

> my theory: I wonder if

> part of the difference is that a rheumatologist has

> to physically interact

> with patients, he has to touch them, be close to

> them, and manipulate their

> bodies in a way that would require him to develop a

> higher level of

> gentleness and communication. For GIs it's all

> internal stuff (moreover

> yucky stuff: poop and waste and whatnot!); they

> don't have to touch you at

> all, ever, it seems (or at least, mine has touched

> me once for the sum

> total of 3 minutes). Anyway, that's my

> hypothesis...any thoughts?

>

> I'm blathering.

>

> Janelle AIH

> Seattle

>

> P.S. Roxanne, could you re-post the phone no. or

> address of the place you

> mail order your milk thistle from? I can't find

> where I wrote it

> down...Thanks.

>

> ---------------------------

[Guest guest]

Hi ...

That joke is hysterical....I can see it happening..

Have a good day, and remember...Laughter is the music of a happy heart, love

is it's sustenance. Sooooo...laugh a lot, it is healing.

Joan, AIH, PBC, HBP

Florida

[Guest guest]

Janelle,

Hi, I'm sorry I can't help about the meds, but my stupid doctor doesn't even

have me on any yet. I've been feeling just like you today, depressed and

major brain fog. So I guess the meds won't help that huh? You hang in there

girl, it's comforting to me to know that someone out there somewhere

understands...

Love ya,

(AIH)

[Guest guest]

Janelle,

I got very nauseous on Immuran. I am on 150 mg with 5mg of Prednisone and it

is not so bad now, or I'm used to it. When my Prednisone is increased I get

more nauseous.

Pati

[Guest guest]

Does that nausea cause you to lose weight?

J

>From: Patrites@...

>Reply- onelist

> onelist

>Subject: Re: [ ] (no subject)

>Date: Sat, 11 Sep 1999 07:26:38 EDT

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>From: Patrites@...

>

>Janelle,

>I got very nauseous on Immuran. I am on 150 mg with 5mg of Prednisone and

>it

>is not so bad now, or I'm used to it. When my Prednisone is increased I

>get

>more nauseous.

>

>Pati

>

>---------------------------

[Guest guest]

Hi ,

My eyes would get that bloody look too. It happened

after my transplant. I was sent to the eye doctor at

the transplant center. I was told it was from the

prednisone, due to the thinning of the capillary walls

(same cause for easy bruising). It's harmless (just

really ugly and scary looking). Once the dose of

prednisone was reduced, my eyes continued to look a

little bloodshot from time to time but nothing like

before. It wouldn't hurt to have the eye doctor take

a look to be sure there isn't an underlying condition

causing the ruptures. There wasn't any treatment or

anything I could do about it. I did notice, it was

more severe if I bent down and got up suddenly. I

hope this helps.

Regards,

Barbara Ann

AIH Transplant Recipient

--- Dunn <jdunn@...> wrote:

> Hi

>

> My name is and I live in Canberra, Australia. I

> have just rejoined the group after an absence of

> several months.

>

> My wife has been fighting AIH for about eight years

> now and seems to be holding her own at the moment.

> Over the years she has had several major scares with

> liver functions going down without explanation and

> varices rupturing.

>

> Currently she is on a mixture of prednisone and

> imuran as well as taking milk thistle and a mixture

> of vitamins.

>

> Lately she has been having some trouble with veins

> on the surface of her eye rupturing. The result is a

> bleed into the white of the eye and although it dies

> not interfere with vision, it looks quite scary.

>

> Has anyone had similar problems and been able to

> do/take something for it?

>

> JD

>

[Guest guest]

Lucky you to have a sweet and sensitive child,but just wait till she becomes

a teenager! (smile)

J

>From: DSTAR87@...

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>Subject: [ ] (no subject)

>Date: Sun, 26 Sep 1999 09:52:58 EDT

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>From: DSTAR87@...

>

>Barbara Ann,

>

>Thank you for your input. I do work with the public so that is a concern

>and

>I do handle money at work and I know that probably nothing carries more

>germs. Last year my doctor gave me the flu and pnemonia shots. My

>children

>don't get sick often, knock on wood so I don't usually catch anything from

>them, but I am careful about anyone touching my food or coughing on me. My

>youngest daughter seems to understand this the most. She is almost nine

>and

>took it the hardest when I became sick and had the transplant. She is a

>sweet and sensitive child.

>

>Sometime members of my family don't really understand, though, and seem to

>get offended if I ask them to tell me if one of their children are sick

>before I come over. One of my sisters has four young children and one or

>more is always sick. The only reason I with to know ahead of time if one

>ill

>is so that I can do a quick check on their illness to see how dangerous it

>is

>to me before I come over or they see me. Some people seem to get offended

>by

>that, but you can only remind them about you immune suppressed condition

>so

>much. Then you just hope they remember and try to be considerate.

>

>Oh well, enough wining from me I guess. It is beautiful out today and fall

>is my favorite month, though it does'nt last too long and I hate winter.

>Again, thanks for responding to my post. Charlene - Transplant and AIH

>

>>Please support the American Liver Foundation!

>

>1.) To subscribe send e-mail to -subscribeonelist

>2.) To UNsubscribe send to -unsubscribeonelist

>3.) Digest e-mail format send to -digestonelist

>4.) Normal e-mail format send to -normalonelist

[Guest guest]

Sorry to hear about your wife.

I had just what you described. A bleeding into the white of my eye earlier

this month. I did nothing about it, it didn't hurt at all, and I was not

even aware of it until a co-worker pointed it out to me, and it went away. I

think next time I will at least mention it to my doctor(s).

With all the big stuff happening, I guess I just passed by this one.

Keep well.

Warmly,

[Guest guest]

----------

>,

I too have problems with my eyes with vessels bursting. The first time it

happened I went straight to the eye doctor. He did all the tests and looked

through all sorts of machinery. He assures me that it is not danger to me.

Because of the pred and the fact that I have diabetes from taking the meds,

a terrible combination for eyes. All the thinning that goes with it, I have

had it happen on 3 occasions and he has told me to get it checked, even

though there is nothing he can do, but to look is to be safe. Nothing can

be done. He assures me it will not affect my eyesight though.

Nice to have someone else from Australia here.

SueB.

[Guest guest]

Charlene, thanks for the post. I am glad it is ok to take. And YES IT IS

YUCKY!

J

>From: DSTAR87@...

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>Date: Wed, 29 Sep 1999 21:22:36 EDT

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>From: DSTAR87@...

>

>Sue,

>

>If I'm not mistaken Nstatin is used to treat fungal infections, isn't it?

>I

>think that is what I was given to take after my transplant as a precaution

>against thrush since your immune system is so compromised right after

>transplant. I had to take it orally as a liquid. Yuck!! It must have

>worked because I never got thrush. I'm sure it must be OK for your liver

>or

>else they wouldn't give it to transplant patients.

>

>Charlene - Transplant and AIH

>

>>Please support the American Liver Foundation!

>

>1.) To subscribe send e-mail to -subscribeonelist

>2.) To UNsubscribe send to -unsubscribeonelist

>3.) Digest e-mail format send to -digestonelist

>4.) Normal e-mail format send to -normalonelist

[Guest guest]

Charlene,

The best thing you can do for your sister is to love her and support her.

And try never to make her feel she is inferior... I too suffer from bad

depression, and the worst pain I've been through has come from siblings who

feel I'm " just too emotional " or " it's all in your head " . We already feel

like we are failures in some way, because we can't just " snap out of it " no

matter how hard we try... Educating yourself about depression helps you and

it helps her because it shows that you believe her, and that you want to

help. I think you are a wonderful sister to show such concern for her...

(AIH)

[Guest guest]

Hi Charlene,

I appreciate all of your responses, your input is helping me to focas on

where I need to go. My first order of work is to regain control of my mind.

My next problem and this is where I need sugestions is how to remember to

take my evening medications. I hate what these medicines do to you anyway.

Sometimes I don " t want to deal with any part of this illness especially when

the medications make me feel so sick. And I hope I never have to take okt3

again. How do you work through the frustrations?

Gayle

[Guest guest]

dear gayle,

a friend of mine who had a heart transplant keeps up with taking his meds by

using a wrist watch that beeps an alarm when it is time to take a dose he

politely excuses himself and takes his medicine this way he is assured to

take the meds at the same time each day he had his transplant 8 years ago

so this must be working pretty well just a thought for you

cheryl & randy

west virginia

[Guest guest]

Dear Gayle:

The best way to remember about taking your medications is to set up a

routine. I was having trouble with it the first year or so, but then I got

one of the daily pill sorters and set up a schedule. I always take them with

breakfast and when I was taking night pills I would arrange the schedule

around dinner or my evening snack. It's the same routine every time. If you

can't take them with food, then set yourself an alarm clock to go off in the

evening when you're supposed to take them. Set it in your kitchen, or

wherever you keep your meds. Hope this helps.

Kathy (AIH)

Seattle area