Guest guest Posted March 3, 1999 Report Share Posted March 3, 1999 Hi Stacey, Have you read any info. on the HSOs? It's incredible. See the following ubject: Homeostatic Soil Organisms. . . " The revolutionary rediscovery of a missing link in our immune system. " Note the Difference Between SBOs Vs. HSOs (from book entitled: 'Beyond Probiotics') SBOs--Resident Bacteria Like Acidophilus 1..Many cannot make it through stomach and other acids to even reach the colon. 2. Cannot implant in alkaline colons (which most of us have) 3. Cannot effectively fight off the massive amounts of harmful bacteria in the GI tract. 4. Possible problem with cultured animal source probiotics implanting in great numbers in humans. 5. Extremely delicate and most must be refrigerated. 6. Potency of some products can diminish up to 85% in a few months. 7. Many contain just one strain. HSOs (Transient) 1. Since we used to eat the HSOs with our food, they go through digestive process easily. 2. Can implant in any colonic environment regardless of pH; actually balance colonic pH. 3. Displace harmful bacteria throughout the GI tract and take their places, reducing them to their proper ratio. 4. HSOs have been eaten daily with our food for thousands of years... our body naturally uses them. 5. Has a five-year plus shelf life and needs no refrigeration. 6. Potency of product is stable. 7. Multiple strains of aggressive micro-flora. What HSOs do . . . 1. HSOs work from the inside of the intestine out, dislodging accumulated decay on the wall and flushing the waste out normally. 2. HSOs break down hydrocarbons through their unique ability to split food into its most basic elements, allowing almost total absorption through the digestive system. This dramatically increases overall nutrition, and rapidly enhances cellular growth and development. 3. HSOs produce specific proteins that act as antigens. These antigens stimulate the immune system, which helps prevent disease and illness. 4. HSOs are very aggressive against pathological molds, yeast, fungi, bacteria, parasites and viruses. 5. HSOs work in symbiosis with somatic (tissue or organ) cells to metabolize proteins and hence eliminate toxic wastes. 6. HSOs create SOD, a powerful antioxidant to destroy free radicals. 7. HSOs create DNA/RNA, the cellular repair instructions; makes extra DNA available for cells to us. Learn more about HSOs and how beneficial. . .yes vital. . .they are to our health. Available for your education is the booklet: " Beyond Probiotics " $5.00 includes s/h & tx. Best of Health to You Bob & Jackie Hall Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 1999 Report Share Posted April 9, 1999 , candidiasisonelist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 1999 Report Share Posted April 9, 1999 try candidiasisonelist. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 1999 Report Share Posted April 27, 1999 Done. Sorry but I have not been up to par for a couple of days so I got a little behind on the list. Sue AIH WI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 1999 Report Share Posted May 8, 1999 Ah, but isn't it great just to have another day. Dianne ___________________________________________________________________ You don't need to buy Internet access to use free Internet e-mail. Get completely free e-mail from Juno at http://www.juno.com/getjuno.html or call Juno at (800) 654-JUNO [654-5866] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 1999 Report Share Posted May 8, 1999 , My Hepatologists have warned me away from any herbal remedies of any kind. However, I've noticed that many take alternative medicines and feel they've been very successful. About the corticosteroids, I was told more than once that it's a potent drug with many possible side effects, but " consider the alternatives. " For those who can take it, Imuran seems to be a very importanat AIH immunosuppressive drug and Prednisone is often only used temporarily until the counts start dropping and conditions stabilize. But, everyone's different and what works for one sometimes isn't best for another. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 1999 Report Share Posted May 8, 1999 dear geri, thank you so much for writing back! the reason why i'm afraid of the drugs is because of all the potential side effects. my body has always reacted very strongly to anything (the first time i tried smoking, i broke out in hives!). i know how important it is to take them. i'm just scared. i feel the herbals have helped my energy level. i've also become a vegetarian. i tried to start exercising again (i was very active before my last school year), but my hip joints seized up and i was forced to stop. is that from AIH? my doctor said it's ok that i take them, that they will likely bring my enzyme levels down, but he isn't confident they'll do anything for my liver. from any reading i'm doing, don't they judge the effectiveness of the meds by your lowered enzyme levels? i'm finding it very difficult to find information on this disease. the doctors don't seem to have the time to have indepth, informative discussions. the libraries don't have information. i've also gone to chapters, and the books on AIH range from $100 to $300!! i'm sorry i sound bitter. i've actually been very positive since my diagnosis. i'm just eager to gain more knowledge than what the internet can offer. i don't know what to expect in the future. that's why this resource is so great. i've been reading through the messages, and you are all so helpful and supportive to one another. lots of happy vibes to everyone... emily >From: Geri Spang <spangs@...> >Reply- onelist > onelist >Subject: Re: [ ] (no subject) >Date: Fri, 07 May 1999 23:41:23 -0700 > >From: Geri Spang <spangs@...> > >, >My Hepatologists have warned me away from any herbal remedies of any kind. >However, I've noticed that many take alternative medicines and feel they've >been very successful. About the corticosteroids, I was told more than once >that it's a potent drug with many possible side effects, but " consider the >alternatives. " For those who can take it, Imuran seems to be a very >importanat AIH immunosuppressive drug and Prednisone is often only used >temporarily until the counts start dropping and conditions stabilize. But, >everyone's different and what works for one sometimes isn't best for >another. > >Take care, >Geri > >------------------------------------------------------------------------ >Congratulations to TOWERSHIGH, our latest ONElist of the Week. > >Visit our homepage and share with us how ONElist is changing YOUR life! >------------------------------------------------------------------------ >Please support the American Liver Foundation! > >1.) To subscribe send e-mail to -subscribeonelist >2.) To UNsubscribe send to -unsubscribeonelist >3.) Digest e-mail format send to -digestonelist >4.) Normal e-mail format send to -normalonelist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 1999 Report Share Posted May 8, 1999 tami, thank you again! the information on the herbal remedies is very helpful. i'm going to discuss the IsoCort with my naturopath the next time i go, and i'll definitely look into the AARDA!! i really appreciate your response! emily >From: Chollyfam@... >Reply- onelist > onelist >Subject: Re: [ ] (no subject) >Date: Sat, 8 May 1999 19:06:19 EDT > >From: Chollyfam@... > >, > >My sister sent me an article from Natural Health. It was the March-April >1997 issue. The article is called Immunity Gone Haywire and it is about a >young woman with AIH. She uses herbal remedies in conjunction with the >prednisone and Imuran. She took: milk thistle (helps liver regeneration), >calcium and magnesium supplements (to prevent osteoporosis), and IsoCort (a >homeopathic remedy to keep the adrenal glands from atrophying, as >prednisone >supplies adrenaline to the body and thus relieves the adrenal glands from >the >task), vitamin C, and multivitamins. She also mentions a nonprofit >organization that was very helpful to her. The American Autoimmune Related >Diseases Association (AARDA) Michigan National Bank Building 15475 Gratiot >Avenue Detroit, MI 48205 313-371-8600. Hope there is some info here that >you can use! > >Tami > >------------------------------------------------------------------------ >ONElist: where the world talks! > >Join today. >------------------------------------------------------------------------ >Please support the American Liver Foundation! > > > >1.) To subscribe send e-mail to -subscribeonelist > >2.) To UNsubscribe send to -unsubscribeonelist > >3.) Digest e-mail format send to -digestonelist > >4.) Normal e-mail format send to -normalonelist > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 1999 Report Share Posted May 8, 1999 , My sister sent me an article from Natural Health. It was the March-April 1997 issue. The article is called Immunity Gone Haywire and it is about a young woman with AIH. She uses herbal remedies in conjunction with the prednisone and Imuran. She took: milk thistle (helps liver regeneration), calcium and magnesium supplements (to prevent osteoporosis), and IsoCort (a homeopathic remedy to keep the adrenal glands from atrophying, as prednisone supplies adrenaline to the body and thus relieves the adrenal glands from the task), vitamin C, and multivitamins. She also mentions a nonprofit organization that was very helpful to her. The American Autoimmune Related Diseases Association (AARDA) Michigan National Bank Building 15475 Gratiot Avenue Detroit, MI 48205 313-371-8600. Hope there is some info here that you can use! Tami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 1999 Report Share Posted May 8, 1999 Happy Birthday !!!! I think another 50 years for you would be wonderful....positive vibes heading your way! I think your approach of combining the herbals with the meds is ideal. I'll likely do this as well. I wish I understood how the milk thistle lowers the levels, but does not stop the damage. From my understanding, higher enzyme levels reflect damage to the liver, so if they're lower wouldn't that mean the damage is declining?!? It's times like these that I wish I had access to all the knowledge the doctors do...although, I likely wouldn't understand it anyways! I'll be happy when more money is put into researching herbals...I think they've actually begun this process pretty recently here in Canada (YAY!). I like the idea of the herbals, so I'll probably keep it up no matter what (as long as the doctors ok it!). Anyways, thanks for writing about this! I'm glad to know others pursue this option as well. My family was a little apprehensive with the idea at first...All is well now! >From: Cjgillice@... >Reply- onelist > onelist >Subject: Re: [ ] (no subject) >Date: Sat, 8 May 1999 23:47:27 EDT > >From: Cjgillice@... > >, > I take milk thistle (an herb), and my gi specialist told me it would >probably lower my lab levels but it would not stop the damage from the >autoimmune system. He felt it would be deceiving me. He will not let me >take anything else herbal. (I wanted to take St. s Wort). I am taking >prednisone 10 mgs also, as well as calcium, and a multivitamin. > I figure that the milk thistle is helping my liver to repair itself, >even >if it isn't stopping the damage. Hopefully the prednisone will stop the >damage and the milk thistle help the liver to heal, and I will end up with >a >whole, healthly liver. If I can just keep my liver working for another 50 >years, I'll be happy. (I'm 45 today) ) > Jo from N. CA > >------------------------------------------------------------------------ >ONElist: Where Star Wars fans unite! > >Find your Star Wars list today! >------------------------------------------------------------------------ >Please support the American Liver Foundation! > > > >1.) To subscribe send e-mail to -subscribeonelist > >2.) To UNsubscribe send to -unsubscribeonelist > >3.) Digest e-mail format send to -digestonelist > >4.) Normal e-mail format send to -normalonelist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 1999 Report Share Posted May 8, 1999 Happy Birthday !!!! I think another 50 years for you would be wonderful....positive vibes heading your way! I think your approach of combining the herbals with the meds is ideal. I'll likely do this as well. I wish I understood how the milk thistle lowers the levels, but does not stop the damage. From my understanding, higher enzyme levels reflect damage to the liver, so if they're lower wouldn't that mean the damage is declining?!? It's times like these that I wish I had access to all the knowledge the doctors do...although, I likely wouldn't understand it anyways! I'll be happy when more money is put into researching herbals...I think they've actually begun this process pretty recently here in Canada (YAY!). I like the idea of the herbals, so I'll probably keep it up no matter what (as long as the doctors ok it!). Anyways, thanks for writing about this! I'm glad to know others pursue this option as well. My family was a little apprehensive with the idea at first...All is well now! >From: Cjgillice@... >Reply- onelist > onelist >Subject: Re: [ ] (no subject) >Date: Sat, 8 May 1999 23:47:27 EDT > >From: Cjgillice@... > >, > I take milk thistle (an herb), and my gi specialist told me it would >probably lower my lab levels but it would not stop the damage from the >autoimmune system. He felt it would be deceiving me. He will not let me >take anything else herbal. (I wanted to take St. s Wort). I am taking >prednisone 10 mgs also, as well as calcium, and a multivitamin. > I figure that the milk thistle is helping my liver to repair itself, >even >if it isn't stopping the damage. Hopefully the prednisone will stop the >damage and the milk thistle help the liver to heal, and I will end up with >a >whole, healthly liver. If I can just keep my liver working for another 50 >years, I'll be happy. (I'm 45 today) ) > Jo from N. CA > >------------------------------------------------------------------------ >ONElist: Where Star Wars fans unite! > >Find your Star Wars list today! >------------------------------------------------------------------------ >Please support the American Liver Foundation! > > > >1.) To subscribe send e-mail to -subscribeonelist > >2.) To UNsubscribe send to -unsubscribeonelist > >3.) Digest e-mail format send to -digestonelist > >4.) Normal e-mail format send to -normalonelist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 1999 Report Share Posted May 9, 1999 , I take milk thistle (an herb), and my gi specialist told me it would probably lower my lab levels but it would not stop the damage from the autoimmune system. He felt it would be deceiving me. He will not let me take anything else herbal. (I wanted to take St. s Wort). I am taking prednisone 10 mgs also, as well as calcium, and a multivitamin. I figure that the milk thistle is helping my liver to repair itself, even if it isn't stopping the damage. Hopefully the prednisone will stop the damage and the milk thistle help the liver to heal, and I will end up with a whole, healthly liver. If I can just keep my liver working for another 50 years, I'll be happy. (I'm 45 today) ) Jo from N. CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 1999 Report Share Posted May 9, 1999 : Where did you find books on AIH? I have looked in everybook store and can not find nothing. Sue AIH Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 1999 Report Share Posted May 9, 1999 I wrote to the people in Detroit. They pretty much sent me the things I already had about AIH. Sue AIH Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 1999 Report Share Posted May 9, 1999 Diane: Where in Wisconsin. See how far you are from Rochester Minnesota. Best doctors for the liver. Sue AIH Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 1999 Report Share Posted May 9, 1999 Barbara. Thanks and you keep going. Maybe you could show me how to do a web page. Tami, thanks as well. Is anyone familiar with health care in Wisconsin? I have been fortunate in my area with a good system. Thanks in advance if anyone knows. Dianne ___________________________________________________________________ You don't need to buy Internet access to use free Internet e-mail. Get completely free e-mail from Juno at http://www.juno.com/getjuno.html or call Juno at (800) 654-JUNO [654-5866] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 1999 Report Share Posted May 9, 1999 Kathy Jo: Happy Birthday and many many more! Keep thinking positive!!! Sue AIH Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 1999 Report Share Posted May 9, 1999 Fond du lac and I don't know about the health plan yet, or what it will allow. ___________________________________________________________________ You don't need to buy Internet access to use free Internet e-mail. Get completely free e-mail from Juno at http://www.juno.com/getjuno.html or call Juno at (800) 654-JUNO [654-5866] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 1999 Report Share Posted May 9, 1999 , A friend of mine who has Lupus recommended a herbal tea for my husband. She lives in Switzerland and her daughter is a doctor so I trust her judgement on these things. I forget the tea she told me to get for him, though. My doctor told me NO herbal teas. End of discussion. But I know that many people swear by herbal remedies and I can't find fault with something I've never tried. Before I had AIH I didn't have a problem with any medications. Now I'm afraid to take anything new. Some people who have AIH are supposed to avoid proteins and others are told to they require very high quantities of protein daily. My understanding is that with liver disease their is a potential for becoming undernourished. I was told that I require equal to nearly a pound of protein daily. Talk about perversity! Since then, I've stopped eating meat almost entirely. It doesn't appeal to me anymore. If you have the patience to go through thousands of " hits " try to get information through " Infoseek Express " (search engine) on Internet. I also have had some good luck using alternative search terms instead of just focusing on AIH or liver disease. One of the great things about this group is that it translates things into human terms while literature is more focused on medical studies from the physician and researcher's point of view. Also, it's obvious that all experts haven't reached the same conclusions. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 1999 Report Share Posted May 9, 1999 Sue, I live in Canada, but I believe the " Chapters " bookstores are an American chain. If you go into these stores, and type in AIH on their computers, a list of four books come up. Apparently they order them off the Internet. They're pretty pricey ($100-300.oo). I'll look on the Internet and see if I can locate a site where you can order these books yourself. I'm also going to ask my doctor on Tuesday, so if I learn anymore I'll let you know! >From: Roselle50@... >Reply- onelist > onelist >Subject: Re: [ ] (no subject) >Date: Sun, 9 May 1999 00:46:59 EDT > >From: Roselle50@... > >: > >Where did you find books on AIH? I have looked in everybook store and can >not find nothing. > >Sue AIH >Wisconsin > >------------------------------------------------------------------------ >ONElist: Where Star Wars fans unite! > >Find your Star Wars list today! >------------------------------------------------------------------------ >Please support the American Liver Foundation! > > > >1.) To subscribe send e-mail to -subscribeonelist > >2.) To UNsubscribe send to -unsubscribeonelist > >3.) Digest e-mail format send to -digestonelist > >4.) Normal e-mail format send to -normalonelist > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 1999 Report Share Posted May 9, 1999 : Thanks for the information on the books. I just would like more information all the time to see if I am still heading for a big releapse and what the future holds for me. I have been into the Mayo Clinic on line and there is little even there. Thanks Sue AIH Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 1999 Report Share Posted May 10, 1999 Elena Don't feel bad about asking questions-we have to! I have also learned from others in this group sometimes you have to be assertive and find a doctor who will listen to and answer your questions. I've had similar problems/symptoms and my ANA is 1:320 which is high-but not extremely high. I had my biopsy last July and my biopsy said cirrhosis! My liver enzymes have been elevated slightly for the last 5 years. Your biopsy is very encouraging, but I also would not fall into this feeling safe mode. I would be extremely thankful for those results, but I would continue to follow up with DR's and continue to have blood work done routinely to check-you have to be assertive in your own care-nobody else can do it for you. We are not hypochondriacs! I just switched Dr.s-a first for me! But my doctor was not answering my questions. There could be other autoimmune things going on also. They also do not always happen symptom wise at the same time-making it harder to diagnose. Even though I have a positive ANA that doesn't always mean Lupus for example-but now I have this lovely RED RASH on my face-today people are asking me why is your face so red? Sorry for rambling but different problems appear through out the different diseases and you need to take care of yourself. Try to be positive but also careful-this disease can progress slowly or rapidly we just don't know. Susie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 1999 Report Share Posted May 11, 1999 Hi all! Well I just went to Dr Pockros at Scripps green for my liver Biopsy results. I had good news, but unfortuanately I am really really frustrated and anxious! This is the good news. My liver biopsy showed mild inflammation,no scarring or anything else. He also said my liver enzymes were too low to mean anything. He said its " probably " a mild case of a mild form of AIH. Which he said is AIH 1. So he said it may not get worse. So what do I do now? Im experiencing symptoms of extreme fatigue and upper right pain. My ANA is getting higher now at 1:320 and also my antibodies to smooth muscle is too its now at 1:160. So I guess what he wants me to do is is play the wait and see game. After all the doctors visits all the time off from work. I still dont have any answers! I just have it at the back of my mind that I may be developing a serious disease! Also, over the weekend ive started to experience joint pain. Its scary, i just cant do anything. I am happy that im doing well now, its just not knowing. Please dont think im selfish as I know alot of you are alot worse off than me. Im just worried about the future. My boyfriend was with me. And both the doctor and my boyfriend made me feel so humiliated every time i asked a question. My boyfriend even shook his head in disgust. I guess they were both thinking i was a hypachondriac. Wouldnt they do the same if they knew they had a disease? Im sorry for rambling on! I just needed to vent My thoughts and wishes go out to all those of you who are at a much worse stage than I. Take Care! Elena === Elena Pheasant _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 1999 Report Share Posted May 11, 1999 Elena: If you are not satisfied with the answers, please get a second opinion. Sure glad that your boyfriend was so helpful. That is one thing a person does not need when they are sick and are unable to get answers. Take Care and let me know how you are doing. Sue AIH Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 1999 Report Share Posted May 11, 1999 Hello Susie, Thanks for your reply. Wow, its so great to have people who completely understand what your going through, who know what to do. I agree with you, I dont want to be trapped in a safe mode and forget about the results. We all have to take control and look after ourselves. You told me about your lab results. Did you have antibodies to smooth muscle, if so how high? How are you now? Have you got your disease under control? I hope so! Best wishes Elena --- SUSIE22658@... wrote: > From: SUSIE22658@... > > Elena > Don't feel bad about asking questions-we have to! I > have also learned from > others in this group sometimes you have to be > assertive and find a doctor who > will listen to and answer your questions. I've had > similar problems/symptoms > and my ANA is 1:320 which is high-but not extremely > high. I had my biopsy > last July and my biopsy said cirrhosis! My liver > enzymes have been elevated > slightly for the last 5 years. Your biopsy is very > encouraging, but I also > would not fall into this feeling safe mode. I would > be extremely thankful > for those results, but I would continue to follow up > with DR's and continue > to have blood work done routinely to check-you have > to be assertive in your > own care-nobody else can do it for you. We are not > hypochondriacs! I just > switched Dr.s-a first for me! But my doctor was not > answering my questions. > There could be other autoimmune things going on > also. They also do not > always happen symptom wise at the same time-making > it harder to diagnose. > Even though I have a positive ANA that doesn't > always mean Lupus for > example-but now I have this lovely RED RASH on my > face-today people are > asking me why is your face so red? Sorry for > rambling but different problems > appear through out the different diseases and you > need to take care of > yourself. Try to be positive but also careful-this > disease can progress > slowly or rapidly we just don't know. > Susie > > ------------------------------------------------------------------------ > Did you know ONElist has over 300 Star Wars lists? > http://www.ONElist.com > Join one today! > ------------------------------------------------------------------------ > Please support the American Liver Foundation! > > > > 1.) To subscribe send e-mail to > -subscribeonelist > > 2.) To UNsubscribe send to > -unsubscribeonelist > > 3.) Digest e-mail format send to > -digestonelist > > 4.) Normal e-mail format send to > -normalonelist > === Elena Pheasant _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.