Guest guest Posted November 12, 2002 Report Share Posted November 12, 2002 When I had the attack I had two broken ribs and one was where I hve the pain,the last rib, sometimes, but that happened more then three months ago. > I cracked a rib last May, and was still feeling it 3 months later. Mostly when laying down, or when I woke up in the morning even well after 3 months. Not pain really but a sensation. I talked to a neighbor who said he cracked one years ago and still has twinges. I am just noticing now that I am thinking about it that I haven't felt anything for a while, but it has been 6 months. Three months for it to be a rib is not unusual. That doesn't mean it couldn't be something else , but the rib explanation is very probable. Mine was cracked more mundanely, a collision on the soccer (futbol) field where a coward thru up an elbow to avoid a legal hit on a 50/50 ball. I did control it and made the pass tho :-) But my wife has extracted a promise from me that at my age (53) I have to stop playing aggressively and avoid contact even if it means losing balls I could have won. This is not sitting well with me, but it is chicken soccer or none at all so what can I do? Having to sleep sitting up in a chair for 2 weeks because laying down was terriblely painful was also a fairly strong reinforcement that I need to cut it back a little :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2002 Report Share Posted November 12, 2002 When I had the attack I had two broken ribs and one was where I hve the pain,the last rib, sometimes, but that happened more then three months ago. > I cracked a rib last May, and was still feeling it 3 months later. Mostly when laying down, or when I woke up in the morning even well after 3 months. Not pain really but a sensation. I talked to a neighbor who said he cracked one years ago and still has twinges. I am just noticing now that I am thinking about it that I haven't felt anything for a while, but it has been 6 months. Three months for it to be a rib is not unusual. That doesn't mean it couldn't be something else , but the rib explanation is very probable. Mine was cracked more mundanely, a collision on the soccer (futbol) field where a coward thru up an elbow to avoid a legal hit on a 50/50 ball. I did control it and made the pass tho :-) But my wife has extracted a promise from me that at my age (53) I have to stop playing aggressively and avoid contact even if it means losing balls I could have won. This is not sitting well with me, but it is chicken soccer or none at all so what can I do? Having to sleep sitting up in a chair for 2 weeks because laying down was terriblely painful was also a fairly strong reinforcement that I need to cut it back a little :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2002 Report Share Posted November 13, 2002 HI.Thanks Mark,sounds the same what I experience,also the laying down thing,when I.am upright I don.t feel this sensation which is the right expression for it.I did.nt know it could take that long.We also play soccer here and Amsterdam has a great team,the Admirals,there home-field-clubhouse is near the hospital and they are regular customers there.Play chess.. Re: question When I had the attack I had two broken ribs and one was where I hve the pain,the last rib, sometimes, but that happened more then three months ago. > I cracked a rib last May, and was still feeling it 3 months later. Mostly when laying down, or when I woke up in the morning even well after 3 months. Not pain really but a sensation. I talked to a neighbor who said he cracked one years ago and still has twinges. I am just noticing now that I am thinking about it that I haven't felt anything for a while, but it has been 6 months. Three months for it to be a rib is not unusual. That doesn't mean it couldn't be something else , but the rib explanation is very probable. Mine was cracked more mundanely, a collision on the soccer (futbol) field where a coward thru up an elbow to avoid a legal hit on a 50/50 ball. I did control it and made the pass tho :-) But my wife has extracted a promise from me that at my age (53) I have to stop playing aggressively and avoid contact even if it means losing balls I could have won. This is not sitting well with me, but it is chicken soccer or none at all so what can I do? Having to sleep sitting up in a chair for 2 weeks because laying down was terriblely painful was also a fairly strong reinforcement that I need to cut it back a little :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2002 Report Share Posted November 13, 2002 HI.Thanks Mark,sounds the same what I experience,also the laying down thing,when I.am upright I don.t feel this sensation which is the right expression for it.I did.nt know it could take that long.We also play soccer here and Amsterdam has a great team,the Admirals,there home-field-clubhouse is near the hospital and they are regular customers there.Play chess.. Re: question When I had the attack I had two broken ribs and one was where I hve the pain,the last rib, sometimes, but that happened more then three months ago. > I cracked a rib last May, and was still feeling it 3 months later. Mostly when laying down, or when I woke up in the morning even well after 3 months. Not pain really but a sensation. I talked to a neighbor who said he cracked one years ago and still has twinges. I am just noticing now that I am thinking about it that I haven't felt anything for a while, but it has been 6 months. Three months for it to be a rib is not unusual. That doesn't mean it couldn't be something else , but the rib explanation is very probable. Mine was cracked more mundanely, a collision on the soccer (futbol) field where a coward thru up an elbow to avoid a legal hit on a 50/50 ball. I did control it and made the pass tho :-) But my wife has extracted a promise from me that at my age (53) I have to stop playing aggressively and avoid contact even if it means losing balls I could have won. This is not sitting well with me, but it is chicken soccer or none at all so what can I do? Having to sleep sitting up in a chair for 2 weeks because laying down was terriblely painful was also a fairly strong reinforcement that I need to cut it back a little :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 >>We also play soccer here and Amsterdam has a great team,the Admirals,there home-field-clubhouse is near the hospital and they are regular customers there. Play chess. << LOL 'regular customers " lol. I do play bridge regularly on the internet, so it is one outlet for my competitivenss, just never got into chess. I do need an outlet for the physical tho, I am a lot less irritable after a hard played match of soccer than the bridge :-) Plus since I have lost so much energy with the HCV, I believe it helps me psycologically to be positive to keep fighting, being able to play. I have said playing soccer gives me a reson to live but I have had to stop saying that because my wife gets really offended and says " What about your FAMILY? " :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 >>We also play soccer here and Amsterdam has a great team,the Admirals,there home-field-clubhouse is near the hospital and they are regular customers there. Play chess. << LOL 'regular customers " lol. I do play bridge regularly on the internet, so it is one outlet for my competitivenss, just never got into chess. I do need an outlet for the physical tho, I am a lot less irritable after a hard played match of soccer than the bridge :-) Plus since I have lost so much energy with the HCV, I believe it helps me psycologically to be positive to keep fighting, being able to play. I have said playing soccer gives me a reson to live but I have had to stop saying that because my wife gets really offended and says " What about your FAMILY? " :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2002 Report Share Posted December 29, 2002 Kim make sure the doctor does testing on your child even if the rash and fever are gone just to be on the safe side its better to be safe than sorry later yall mention the fevers years ago my son use to get fevers that came out of no where and go away later and also headaches the doctor would say its stress later would get the same thing fevers out of no where in both kids they did blood tests but never did a sed rate just the CBC to check for infections nothing showed up now has JRA and i never would have thought about this being related Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 I wish I could help you Marie but I have no clue. I'm going to email Glenn and see if he knows because he is a whiz guy!! One way or another we will find out for ya before Tuesday! LeighAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 Marie, LieighAnn is giving me too much credit, but I called a friend who works in a pharamacy. She said a cc is the same as a ml. " .5 cc = .5 ml " . Good luck with the treatment, I wish I had known about this group when I was on treatment. LeighAnn dedicates hundreds of hours to research and patient issuses, she really is an angel. Glenn > I have two syringes, one says 1cc and the other says 1 ml. They both look > the same, but I'd like to be sure. The Schering nurse said I could use a 29 > gauge needle, and the syringe I have doesn't have the same measurements on > them. I'm supposed to inject .5 ml, so is that the same as half a cc? > > First shot is day after tomorrow. > > Thanks for the help. > Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 The alcohol content of several drops a few times a day in negligible. The other items are classic homeopathic remedies. There is nothing to be concerned with here. I am familiar with many of these substances. [ ] question Also to relieve mild cases of jaudice and hepatitis. Directions for daily use take 3 to 6 drops on the tongue at bedtime. In case of intoxication, use 3 to 4 times a day until symptoms abate.Contains: Berberis vulg, Bryonia, Chrlidonium, Nux vomica 10% Carduus benedictus, Cynara scolymus, Juniperus, Solidago, Taraxacum 3x Alcohol 15%My Question to is this, how can this be good for us? It contains Alcohol 15%??? Can you help me out here before I start putting this into my body..... I wouldnt be worried about 15% of 3 to 6 drops. per day. I would be worried more about what all the other stuff in does.......Grace says. I'm in week 34 now of standard tx (Peg Intron - 120 pg per 0.5 ml weely/Ribavirin - 800mg daily) and will go the full 48 (God willing). I cleared the virus and normalized my liver enzymes within the first few weeks treatment and hope to stay that way. PETE SAYS WAY TO GO GURL> I NOSE DAT U WILL CLEAR ;^)))))))))"Chance favors the prepared mind"Louis Pasteur** If you can't be a good example then you have to be a horrible warning** Da YOOPER Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 First, I do think you should call the doctor. Always best to have things checked out. That said, when I first started prednisone I had some similar symptoms. Especially the quivering..I was visibly shaky, kind of like tremors. Had lots of muscle twitching too. It mostly went away when I went down on my prednisone dosage. So, it could just be that...but just check up with the doc to make certain. I do still have some twitching and my doctors don't know the cause...very annoying and I would really like to know what is causing it. I think I have carpal tunnel too...my thumb and forefinger sometimes pinch together on their own. Spooky. Docs aren't much help with that either. They just don't know much about these things, especially since all tests they run come back normal. Oh well! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 , Thanks. I will go ahead and call my pcp just to let him know what's going on. W [ ] Re: question First, I do think you should call the doctor. Always best to have things checked out.That said, when I first started prednisone I had some similar symptoms. Especially the quivering..I was visibly shaky, kind of like tremors. Had lots of muscle twitching too. It mostly went away when I went down on my prednisone dosage. So, it could just be that...but just check up with the doc to make certain. I do still have some twitching and my doctors don't know the cause...very annoying and I would really like to know what is causing it. I think I have carpal tunnel too...my thumb and forefinger sometimes pinch together on their own. Spooky. Docs aren't much help with that either. They just don't know much about these things, especially since all tests they run come back normal. Oh well! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 HI your symptoms sound like mine, i was dx migraine. go back to your doctor and get it checked, good luck lots of love anita > > From: " <rthornton@...> " <rthornton@...> > Date: Thu 27/Feb/2003 15:30 GMT > > Subject: [ ] Re: question > > First, I do think you should call the doctor. Always best to have > things checked out. > > That said, when I first started prednisone I had some similar > symptoms. Especially the quivering..I was visibly shaky, kind of > like tremors. Had lots of muscle twitching too. It mostly went away > when I went down on my prednisone dosage. So, it could just be > that...but just check up with the doc to make certain. > > I do still have some twitching and my doctors don't know the > cause...very annoying and I would really like to know what is causing > it. I think I have carpal tunnel too...my thumb and forefinger > sometimes pinch together on their own. Spooky. Docs aren't much > help with that either. They just don't know much about these things, > especially since all tests they run come back normal. Oh well! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 , First off, if you can get a doctor or someone to explain alot of what you are going through I think we would all be greatful. The head ache, dizziness, exhaustion, nausea are all things we complain about, yet doctors never seem to pinpoint it. They usually just call it part of the disease. I can tell you it comes and goes for me. Last time I dealt with it, cuasing me to vomit, I looked like I had been beaten up. I had all of these veins or rather cappilaries that ruptured in my face from the pressure of vomitting. Most of them have gone now. The shakeness you are getting can be attributed to the steroids. I had it bad when I was on them. Of course I was also on 80 mgs, so it would be worse I guess. My poor grandma was deeply worried about it, as her husband, my grandpa, had parkinsons and alzheimers. I had to give up a lot of my hobbies because of it. I haven't painted in years. Still can't hold them steady enough to decorate cakes for the family any more. But, I look at things any more as a 'trade off'. I can give up painting and cake decorating and detailed quilting and sewing, if means I get to be here. I find other things to do. But I can tell you as your pred. is reduced, so is your shakiness and weakness. I had a lot of these intermittent weakness probs on the higher doses. Where I could hold something easily on day, I could barely hold a fork to my mouth the next. I used to joke about having to chase my hand around for the food! Maybe thats how I lost the weight! Any way, hang in there. As I told some one else earlier, my docs told me when I was Dx, that things would feel a lot worse before I feel better. Do like Jerry suggests - Accpet the things you can not change....although I think someone else said that before him..... Love, Carole K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 Carole, Thanks. I am hanging in there. From living with lupus, I know that there will be good days and there will be bad days. It just seems I am in a bad days phase right now. I feel sure it will get better in time. I guess one of the things that concerns me is that the shakiness seems to only on one side. Also, I'm not on as high a dose of prednisone as a lot of people and I'm not on imuran at all. I started with 20 mg prednisone daily on Jan 8th. It was reduced to 17.5 mg a day on Feb 22nd. The headaches didn't start til Monday evening (Feb 24th) and the shakiness just started yesterday. I love my pcp, but he will be the first to admit that he really doesn't know a lot about AIH, lupus, or long term prednisone use. I'm going to just try to ignore it all the best I can today. If it gets worse or if it is not better by tomorrow, I think I'll call my rheumy. The bad thing is that my rheumy is 100 miles away. Probably all of this is just an annoyance I'm going to have to just deal with for the time being and I'm overreacting because the prednisone is messing with my brain and emotions! However, just talking about it with you guys and knowing that some of you have had similar symptoms eases my mind a bit. Don't know what I'd do without all you guys! W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 , I hope I didn't sound too complaicent about your symptoms. It is hard to always come across exactly as you mean when typing, you know? I just meant I can sympathize. It being essentially the 'beginning' for you, you are in a really lousy spot right now. Because everyone is different, we can tell you what might happen, but you really don't know until it does. And that stinks. There has been times for me where it seemed it was one thing after another. In the beginning, all of those stupid symptoms of the disease, then the stupid side effects of the prednisone - three times over. Then this last summer was 'the season of long term damage' for me. Glaucoma, cataracts, osteoperosis, sjogrens, the patechiae and spider veins and what ever else you can throw in there. Each week, a new finding. You do get to a point mentally where you think you just can't take one more bit of news, how ever small it may be. Then like a godsend, I found this support group. And have I learned a lot here! The comfort and support here could not be replaced by anyone else in my life right now. So, you are right, we are here for you to let it out. Some times when I do, then I realize things aren't quite as bad as I thought after I see it in print. Not to mention when I have people who can relate to what I am going through, I just feel better knowing I am not alone. Hang in there, I bet you will feel better tomorrow. If not, bug that doc of yours again. Love, CArole K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 Carole, You didn't come across as complacent at all. You are so right, that sometimes it just seems it is one thing after another. It seems I go the gammut of emotions and such with every new thing. Is it the prednisone, is it just AIH, is it the diabetes, lupus, or am just totally nuts and imagining things! For some reason, today has decided to be an emotional day all of a sudden. My stepdaughter just called me from college. She is sick and had gone to the infirmary at the college. They gave her a shot and medication but were giving her a hard time because she didn't have her insurance cards with her. She told me she had lost them both (she's covered by two health insurances). How she manages to lose them so often is beyond me, but she manages to lose them at least twice a year. I told her I would make a copy of the front and back of both cards the next time I go to work but I haven't been able to make it to work this week. Anyway, said they told her that I have to fax a copy of the cards to them today. I told that I feel like total crap and I am not up to driving anywhere to fax them the insurance cards. I told her I'd be happy to give them the info over the phone and fax the cards another day. Also, they should have already had copy of the insurance cards on file since has been to the infirmary at least 2 other times already. I finally managed to get to put the person in the infirmary on the phone. She gave me some story about how all the copies of insurance cards they had on file got lost by one of the student workers. Finally, after some talking I managed to convince her that they could file the insurance without a copy of the card as long as they have the info on the card. When I got off the phone, I just wanted to cry. It really shouldn't have been such a big deal and I am typically very good at straightening situations like that out. Obviously, I need to just go and rest and chill for a bit if I am going to be reduced to tears over a simple insurance problem! W [ ] Re: question ,I hope I didn't sound too complaicent about your symptoms. It is hard to always come across exactly as you mean when typing, you know? I just meant I can sympathize. It being essentially the 'beginning' for you, you are in a really lousy spot right now. Because everyone is different, we can tell you what might happen, but you really don't know until it does. And that stinks. There has been times for me where it seemed it was one thing after another. In the beginning, all of those stupid symptoms of the disease, then the stupid side effects of the prednisone - three times over. Then this last summer was 'the season of long term damage' for me. Glaucoma, cataracts, osteoperosis, sjogrens, the patechiae and spider veins and what ever else you can throw in there. Each week, a new finding. You do get to a point mentally where you think you just can't take one more bit of news, how ever small it may be. Then like a godsend, I found this support group. And have I learned a lot here! The comfort and support here could not be replaced by anyone else in my life right now.So, you are right, we are here for you to let it out. Some times when I do, then I realize things aren't quite as bad as I thought after I see it in print. Not to mention when I have people who can relate to what I am going through, I just feel better knowing I am not alone. Hang in there, I bet you will feel better tomorrow. If not, bug that doc of yours again.Love,CArole K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 , I'll tell you what I always tell my girls when they are dealing with similar situations " It's hard to play the game when your oponent keeps changing the rules. " In this case the student at the infirmary didn't even seem to have been given a set of the rules! So don't feel bad, I think I would have lost my patience a little too. Hope you have a better day tomorrow! Love, Carole K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 ... How ironic..the infirmary gave your daughter a hard time because she lost her cards...but then turned around and admitted THEY ALSO had lost them? This is stuff sitcoms are made from. Isn't this school in the 21st century? Don't they have a computer? Everyone else in North America does. This sounds like you were dealing with a department of the government. Sheeesh! May tommorrow be much better. love jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2003 Report Share Posted February 27, 2003 carole...you caught me...I confess . I did not author the serenity prayer...my bad. love jerry however I do try hard to live by it and it can be a struggle. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2003 Report Share Posted March 10, 2003 In a message dated 3/10/03 1:18:50 PM Mountain Standard Time, mdmfoo@... writes: > ? I take care as to what I eat or drink. (only red wine on rare occasions, > and then only one) > > I would not drink any alcohol - it's like giving that bug fuel and he doesn't deserve it! good luck, hugs, Kerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 In a message dated 3/16/03 2:54:16 PM Central Standard Time, farfromhome@... writes: > And, how do make the bloating go away? > > The only way to make the bloating go away is to stop eating the foods that cause you to bloat in the first place. Bloating is usually a sign of food intolerance, and avoiding the foods is the only way. Hanida Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 Let you know after Thursday!! I was told to expect 6-8 weeks of recovery and then 2-3 months of PT. > What should i expect after surgey? how long does it take to recover? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 Let you know after Thursday!! I was told to expect 6-8 weeks of recovery and then 2-3 months of PT. > What should i expect after surgey? how long does it take to recover? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 sorry i didn't clarify, if/when i have surgery it is the L5 area. Thursday i will know more. i have an appointment with the spinal specialist then. Re: question Let you know after Thursday!! I was told to expect 6-8 weeks of recovery and then 2-3 months of PT. > What should i expect after surgey? how long does it take to recover? Quote Link to comment Share on other sites More sharing options...
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