Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 Maybe it's just me, but they seem to be so hard headed about things all the time. I had to do a report on every major thing that happened in my life for them. It's so frustrating. unfortunately I was a victim of sexual abuse and that too gave me problems so I was given the task of finding them info so they could understand about that too. To add insult to injury, I have anemia too, and that does not help at all when you need to do house work!! Anyhow- I guess thats why I decided to join, I have been through search engine after search engine, and I haven't found anything substantial or if I have, I probably missed it - I had to switch docs too coz the one I used to have wasn't even the one to diagnose me with Hashi's- it was through a special clinic center for teens!! So now I m trasfering to a specialist, who I hope will take me now. They have a stipulation on the age thing, and since I m not 18 yet, I still don't know they'll take me. I've had sooo many problems this year with this darn disease, and my grandmother who also had it, had cancer this year and had hers totally removed. Sorry this is such a long post- but I tell ya, I have sooooo many things going on at once I just can't think straight. Repetitive lists of things to so has helped, but only if I can remember where the heck I put them. Sheesh, I wish they really understood. I hope they will one day... a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 a wrote: I had to do a report on every major thing that happened in my life for them. It's so frustrating. unfortunately I was a victim of sexual abuse and that too gave me problems so I was given the task of finding them info so they could understand about that too. Hmmm...I don't really know what to say about that! I'm glad you were able to educate them about what's going on with you - that's better than them not knowing anything, IMO... To add insult to injury, I have anemia too, and that does not help at all when you need to do house work!! Anemia is related to low thyroid. Anyhow- I guess thats why I decided to join, I have been through search engine after search engine, and I haven't found anything substantial or if I have, I probably missed it Try http://www.ithyroid.com It gives tips on food, vitamins, and minerals that can help you. I've had sooo many problems this year with this darn disease, and my grandmother who also had it, had cancer this year and had hers totally removed. They removed your grandmother's thyroid? Good grief. I don't trust medical doctors further than I can throw them. My SIL had her tonsils removed a few months ago. WHY?? When will stupid doctors learn? Sorry for the rant, but this just really irks me! This morning on TV they were talking about how a lady gave birth in an airport, and how great it was that there was an OB and a nurse there because her baby had the cord wrapped around its neck twice. Well, let me tell you something...at least 25% of all babies have cords wrapped around their necks, and it's no big deal! The solution is to unwrap it after they're born, case closed. My 2nd baby had his cord wrapped around his neck twice when he was born, and we simply unwrapped it. He was fine. (There was no doctor or midwife - we had a planned unassisted homebirth.) Here's a funny web site - http://www.deaddoctors.com It's about a man who heals humans using vitamins and minerals, and he's actually trained as a vetenarian! He says that vetenarians learn how to heal animals using natural sources, so they are to go to for ailments than medical doctors, hehe.... Anyway, welcome to the list! -- Mindy ----------------------- "...that they may be one..." - Jesus, 17:22 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 a, I hope you feel better soon. If you have a hard time breathing, maybe your Synthroid is to HIGH of a dose. Dr. needs to re-check your bloodwork. Go to www.about.com and type in hypothroid or Hashimotos and look until you find a " symptom " list. See if you can print that out, then show your parents. Maybe it will help them understand you. Keep us up on how you feel. By the way, there is no age preference on this list!! ) Happy Holidays!!! Love, Reneé and Jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2001 Report Share Posted November 10, 2001 In a message dated 11/9/01 8:36:45 PM Pacific Standard Time, TREE-P@... writes: i hope mine goes as well as yours did, ive heard some fright stories also theresa For most people it does go well. Certainly, there are exceptions, but most people don't have problems. If you feel really fearful, perhaps you want to ask for some sort of sedative. My doctor said that being relaxed makes the biopsy go easier, physically, as your muscles aren't tensed. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2001 Report Share Posted November 10, 2001 WHOA...these people were not sedated and they were totally still! I am impressed! debby Re: [ ] new member Here is some info I got on liver biopsy. I had onedone 2 months ago and it wasn't bad at all. I camehome and was playing with my children on the floor. Ithink what you read about it is actually alot worsethan what really happens if you get a good doctordoing it. Good luck!!Here is a URL to a website that has a video of someonehaving a liver biopsy. If you're interested in seeing it, go tohttp://www.filmedical.org/index.htm<AHREF='>http://www.filmedical.org/index.htm<AHREF="http://www.filmedical.org/index.htm">Filmedical- videos des maladies du foie :fibroscopie,ponction,biopsie,endosco</A> The English translation link didn't seem to work, butif you click on the link that says "Ponction biopsie du foie", you will see thevideo (assuming you have Quicktime or RealPlayer installed on your computer).The other link is for an endoscopy procedure. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2001 Report Share Posted November 10, 2001 thanks i hope mine goes as well as yours did, ive heard some fright stories also theresa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2001 Report Share Posted November 10, 2001 THIS WEEK IT HAS BEEN 148/80, THE HEADACHES ARE GETTING WORSE AND I AM EVEN GETTING NOSE BLEEDS SOMETIMES WITH THEM, IF MY BLOOD PRESSURE STAYS LIKE THIS SHE WANTS TO PUT ME ON BP MED. > THERESA Theresa, Welcome to the group. I am also very new here and have found the most useful information here and people that really care. From my own experience on BP, I also get nose bleeds and headaches when mine is high. Most people don't. I was told by one dr that I was lucky to get them because most people get NO WARNING. I have had hyperthension since my first pregnancy at 18 (58 now). For the last 10 years it has been completely under control. I was taking an ACE Inhibitor which can cause severe bone marrow depression with Azathioprine (Imural); the drug they are going to start me on (for AIH) as soon as I get over the bronchitis. Today the dr switched me to a Beta Blocker instead. If they find that you have autoimmune disease, make sure that they check interactions between BP meds and meds for the autoimmune disease. Joanna (AIH/cirrhosis 5/01) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2001 Report Share Posted November 10, 2001 JOANNA thanks for your letter, the more e-mails i read from the group the more nervous i get i feel like i am reading my life for the last few years or so. these are all the things i have been experiencing, 2 days ago pain started in my right upper side and occassionally by stomach feels so nausea i vomit, the pain has been getting worse. i hope my ins co will approve the liver biopsy soon, so i will know for sure. sometimes i wondr if i should go to the er when the pain is very bad and they could give me something and possibly do the biopsy on an emergency basis, what do you think, this is going on 3 months of blood tests and still no treatment, some days i feel like i am going crazy, i cant reemember things fro one minute to the next and i have always had a great memory, the severe headaches, nosebeeds, memory loss, itching, and pain in my side, is this what its always goig to be like if aih is my exact diagnosis or does treatment help?. theresa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2001 Report Share Posted November 11, 2001 In a message dated 11/10/01 9:42:07 PM Pacific Standard Time, tygrelily17@... writes: Theresa, IMHO, it is time for you take charge of what is happening to you. You need to see a specialist immediately. Do you have a primary care physician? Have that dr refer you to a gastroenterologist immediately. Check your insurance policy to see if you can refer yourself. Are you jaundiced? When was the last time you have a blood test? I know you are really sick, but someone has to take charge. I am really worried about you, you sound like I was just a few months ago. Please keep us posted about how you are doing. Joanna Theresa, I strongly agree. Is there anyone who can help you with pushing the insurance company, going with you to appointments, etc.? The biopsy is too important to be delayed for the insurance company's financial benefit. Harper (AIH dx 5/00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2001 Report Share Posted November 11, 2001 Theresa, IMHO, it is time for you take charge of what is happening to you. You need to see a specialist immediately. Do you have a primary care physician? Have that dr refer you to a gastroenterologist immediately. Check your insurance policy to see if you can refer yourself. Are you jaundiced? When was the last time you have a blood test? I know you are really sick, but someone has to take charge. I am really worried about you, you sound like I was just a few months ago. Please keep us posted about how you are doing. Joanna (AIH/cirrhosis 8/01) > JOANNA > thanks for your letter, the more e-mails i read from the group the more > nervous i get i feel like i am reading my life for the last few years or > so. these are all the things i have been experiencing, 2 days ago pain > started in my right upper side and occassionally by stomach feels so > nausea i vomit, the pain has been getting worse. i hope my ins co will > approve the liver biopsy soon, so i will know for sure. sometimes i > wondr if i should go to the er when the pain is very bad and they could > give me something and possibly do the biopsy on an emergency basis, what > do you think, this is going on 3 months of blood tests and still no > treatment, some days i feel like i am going crazy, i cant reemember > things fro one minute to the next and i have always had a great memory, > the severe headaches, nosebeeds, memory loss, itching, and pain in my > side, is this what its always goig to be like if aih is my exact > diagnosis or does treatment help?. > theresa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 Hi MFK and Welcome to this wonderful support group.~~~~~~~Joanna > hi sunshine, > > I can understand. Sometimes you get very depressed and can't seem to get out > of that dark hole. Just know that we all care and this is a great place to > vent. Hope your day improves. It's warm and sunny here in VA. More like a > spring day. That always helps me. I'm new to the group. Just started > reading yesterday but I think this will be a great source of understanding > and a wealth of knowledge which is not easy to find on AIH. I've been > diagnosed since 1999 and have had a lot of ups and downs. Still able to > work. I have a 16 year old son and a 23 year old daughter who just got > married. They are a great source of energy to pull from. > > Hope your day gets better. E-mail me directly if you need someone to talk > to. > > It will get better. > > MFK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2002 Report Share Posted January 11, 2002 In a message dated 1/11/02 7:01:42 PM Pacific Standard Time, kforrestz@... writes: Prednisone is very scary to me, even though I know it's important to take Prednisone's side effects can be unpleasant, but it won't ruin your life. You can deal with the Prednisone. Have you begun taking it? If so, at what dosage? With Imuran? Excuse me if you've given us this information already. Harper (AIH dx 5/00 -- age 57) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 Kathy, forgot about the mucomyst treatments... another repressed memory..what does this have to do with tylenol treatments??? Mucomyst if I recall is infused in the saline rinse of the bile ducts...gets rid of sludge... I'm confused does it have other applications? I think I still have some in my pharmacy LOL.. Patty [ ] new member Hi, my name is Kathy. Was told I have AIH this past Nov. when I was put in the hospital for an acute ? liver attack. Was given muco-myst for 4 days in the hospital b/c i tested positive for tylenol toxicity (I had not taken any)! From all I know I think I've had a form of this since i was 20 (now I'm 56). They said I have cirrosis (sp) and " bridging " and I had a liver biopsy and I had AST at 1098. They don't seem to want to tell me much b/c they think I will freak out which I did slightly at first in the hospital when I was told what was wrong with me and that it is chronic and progressive and etc etc. thanks to all of you for the information you give out. I am slowly learning about this. Right before I went in the hospital I got off Zoloft-ha. I'm still off of it though. I have been a vegetarian for 26 years and have tried to take good care of myself, but I've known all along something was very wrong, just didn't know what-now I know. Prednisone is very scary to me, even though I know it's important to take. It helps a great deal to be able to read all your posts about your experiences with it-thanks so much! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 In a message dated 1/12/02 6:49:25 AM Pacific Standard Time, kforrestz@... writes: i started prednisone at 50mg 1st wk in dec. 3 wks later to 40 and tomorrow they say go to 30. apparently my blood work from yesterday looked good. i'm not taking anything else. i've had the shakes and some mental stuff from this. i got pretty weird when i went from 50 to 40. i've never had this much energy in my entire life. i can't help but dread losing all this energy and motivation, that part has been really nice. kathy Has your doctor discussed Imuran with you, to be taken in conjunction with Prednisone? Imuran is a steroid-sparing drug that allows you to take less Prednisone. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 > In a message dated 1/11/02 7:01:42 PM Pacific Standard Time, > kforrestz@h... writes: > > > > Prednisone is very scary to me, even though I know it's important to > > > > Prednisone's side effects can be unpleasant, but it won't ruin your life. > You can deal with the Prednisone. Have you begun taking it? If so, at what > dosage? With Imuran? Excuse me if you've given us this information already. > Harper (AIH dx 5/00 -- age 57) i started prednisone at 50mg 1st wk in dec. 3 wks later to 40 and tomorrow they say go to 30. apparently my blood work from yesterday looked good. i'm not taking anything else. i've had the shakes and some mental stuff from this. i got pretty weird when i went from 50 to 40. i've never had this much energy in my entire life. i can't help but dread losing all this energy and motivation, that part has been really nice. kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2002 Report Share Posted January 17, 2002 In a message dated 1/17/02 6:12:18 PM Pacific Standard Time, rmeeks3230@... writes: I"m so glad that I found this group. I was diagnosed with cirrosis last august and i'm currently on peg-intron with rebetol treatment since I also have aids and my cell are at 77 Im having problems with my treatment. I stay so sick all the time ans recently I itch terrible all over. I'm really struggling with all this right now and stay depressed most of the time. I know that god can heal me but the idea of dying can seem to leave my mind. That is all that I think of all the time. I wonder if I'll make it and if I do will I be the same person that I use to be. Will I be able to find hapiness, I'm 36 years old so I'm not ready to let go! Thanks for listening. God bless you. TONY Welcome to the group, Tony. Have you tried Atarax (prescription drug) for the itching? People recommend Sarno lotion, but I found it very irritating (and smelly.) I'm sorry you're having such a hard time. Will you be the same person? Will you find happiness? We change, our circumstances change, and we try to learn and grow. Some people I knew before would look at me with pity now, but I like myself better and am happier than before I became ill. I believe it is possible to be happy regardless of one's circumstances, and I try to find that happiness in each day. Best wishes, Tony. Harper (AIH dx 5/00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2002 Report Share Posted January 18, 2002 Welcome Tony. This is a great group. Someone is always ready to listen and often reply with advice or at least a kind word. You are dealing with some serious health issues and have every right to be depressed. Many of us in this group know what depression is like. Continue to have your faith. I will be praying for you. Take care. Carol rmeeks3230 wrote: > I " m so glad that I found this group. I was diagnosed with cirrosis > last august and i'm currently on peg-intron with rebetol treatment > since I also have aids and my cell are at 77 Im having problems with > my treatment. I stay so sick all the time ans recently I itch terrible > all over. I'm really struggling with all this right now and stay > depressed most of the time. I know that god can heal me but the idea > of dying can seem to leave my mind. That is all that I think of all > the time. I wonder if I'll make it and if I do will I be the same > person that I use to be. Will I be able to find hapiness, I'm 36 > years old so I'm not ready to let go! Thanks for listening. God bless > you. TONY > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2002 Report Share Posted January 18, 2002 Welcome to the group Tony. I'm sorry you had to find us this way and I wish you were feeling better. This is a great supportive group and there is always someone here listening. I don't have cirrhosis, but unfortunately many in this group do and some are doing well so there is hope on that end. You will be in my thoughts and prayers. Bethanne rmeeks3230 <rmeeks3230@...> wrote: I"m so glad that I found this group. I was diagnosed with cirrosislast august and i'm currently on peg-intron with rebetol treatmentsince I also have aids and my cell are at 77 Im having problems with my treatment. I stay so sick all the time ans recently I itch terribleall over. I'm really struggling with all this right now and staydepressed most of the time. I know that god can heal me but the ideaof dying can seem to leave my mind. That is all that I think of all the time. I wonder if I'll make it and if I do will I be the same person that I use to be. Will I be able to find hapiness, I'm 36 years old so I'm not ready to let go! Thanks for listening. God bless you. TONY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2002 Report Share Posted January 19, 2002 Dear Elaine, There is definitely hope! I'll post a reply I sent another new member. I wished I had this when I started my research. NOTE: Diet alone will NOT get read of candida; you MUST also kill off the excess fungus as well as any parasites. You also need to treat additional non-yeast bacteria which you may have in your gut. These are all related and you can't treat one without the other. And as there are *many* strains of fungus, you have to know which one's you have before starting antifungal treatment, whether you take meds (not recommended) or go the natural route. You can waste much money on supplements and meds otherwise, and even make your fungus immune to the herbs and meds. The web is great and there are lots of sites with info., but it can also confuse and misdirect if you're not getting tested and not working with a knowledgable professional (*good* naturopath, osteopath, etc.) Here are my tips base on months of research and my own experience: MUSTS: 1) Great Smokies Diagnostics Lab " CDSA " test (Comprehensive Digestive Stool Analysis.) This will tell you *what* you have and what works. There are many other tests; take the ones that are most crucial first to narrow things down. It's worth every penny. 2) A BIG MUST: Test for mercury toxicity. You cannot properly treat candida if you have this, as candida thrives on it. Most recommend getting silver (50% mercury) fillings replaced by a biological dentist who follows the Huggins protocol, before starting your candida treatment to save time and money down the road. A huge topic; lots on the web about it. Read books by Huggins or Zif. 3) " Body Ecology Diet " by Donna Gates is by far the safest and most thorough one out there for treating candidaisis when you're starting out. Here's the link, but be sure to go to the links on the left side of the webpage and click " Candidaisis? " and also " Bulletin Board " where you can read great info. 2) Read Dr. Jack Tips' " Conquer Canidida " . It has lots of new research/info. other books don't. This guy knows his stuff and has a great spirit. 3) Check out Dr. Biomonte's site. It's very complete. Print it and study it, even if you don't use him (he's expensive.) He says that certain supplements will actually feed candida. 4) The absolute best candida discussion forum I've found is: http://www.healthyawareness.com (click on the " Candida Forum " link.) It has the most postings and people check it constantly. The number, quality of the posts and level of expertise of the members is impressive. Search the archives for any topic and you'll find many past postings. 5) Find a natural doctor who is expert in candidaisis and related topics. Do your own research and compare notes with him/her. 6) NEVER EVER GIVE UP! This condition is CURABLE! YAY!!! Best of health to you, Sab (saffronsab@...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Hi , first off - welcome to the club.... tho honestly i have no advice more of the thing i feel the same way and have been taking levoxyl for a year..... things have gotten better since being place on meds but i still experince a lot of problems ..... if you find anything to help you keep me posted! im lost in this world .... i dont know what to do to make things be " normal " LOL Hope >From: " cricket_1_2 " <cricket_1_2@...> >Reply-hypothyroidism >hypothyroidism >Subject: New Member >Date: Mon, 25 Feb 2002 17:37:42 -0000 > >Hi everyone, my name is . I was diagnosed with a hypothyroid >in Septmeber of last year and feel better than I did, but still don't >feel great. It took 2 months to finally get a reading on my TSH since >the machine can't read anything over 100. I was put on Eltroxin 0.1 >and my TSH has come down to about 3 in January. My Dr. says that is >within normal range and that was our target, but I still feel lousy. > >I have a few questions for my visit on Thursday regarding my symptoms >and birth control. I am currently taking shots for birth control >which are all progesterone every 3 months but they make me feel >horrible. Has anyone ever been on Depo-Provera before? I am looking >to switch back to the birth control pill, but I have read that >estrogens don't agree with the thyroid medication. Any input on this >would be great. > >As for my other symptoms...I've gained 5 lbs in the last 2 weeks for >no reason at all! I am dizzy everytime I turn around which is a new >symptom for me, along with feeling depressed, tired, cold...the usual >signs. > >Can you suggest some further tests that I can ask the Dr. to try. I >really want to shake this darn thing and get back to normal. I'm just >starting back to work full time from Maternity leave. I have a 2.5 >year old and a 9 month old at home which keep me very active...and >tired and the same time! > >Thanks for your help in advance! > > > _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 In a message dated 02/25/2002 9:41:54 AM Pacific Standard Time, cricket_1_2@... writes: I was put on Eltroxin 0.1 and my TSH has come down to about 3 in January. My Dr. says that is within normal range and that was our target, but I still feel lousy. Just curious, what is Eltroxin and what is it supposed to do for you? I am looking to switch back to the birth control pill, but I have read that estrogens don't agree with the thyroid medication. Any input on this would be great. It is true that estrogen and thyroid hormone are antagonists. Dr. Lee's book about women and hormones and doctors can tell you more about that. Unfortunately, I loaned my copy to a client and it was never returned so I can't give you the title. It's been referred to on this list, so maybe someone else who has it can give you the title. As for my other symptoms...I've gained 5 lbs in the last 2 weeks for no reason at all! I am dizzy everytime I turn around which is a new symptom for me, along with feeling depressed, tired, cold...the usual signs. Can you suggest some further tests that I can ask the Dr. to try. I really want to shake this darn thing and get back to normal. I'm just starting back to work full time from Maternity leave. I have a 2.5 year old and a 9 month old at home which keep me very active...and tired and the same time! From your email, it sounds like your recent childbirth has made things worse on the hypothyroidism front. Dr. Denis made a connection between extreme stress like childbirth and a malfunction in the body's ability to properly convert thyroid hormone in the body tissues and cells. He figured out a way to reset that malfunction and get his hypothyroid patients back in balance. His stuff, including a list of docs, is at www.wilsonsthyroidsyndrome.com. Good luck! in LA "We are each responsible for our own life--no other person is or even *can* be." Oprah Winfrey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2002 Report Share Posted March 12, 2002 Hi and welcome, I'm glad I found this group, too. Even with all the information out there it is especially nice to 'hear (read) people tell your own history. I don't think any of us find anyone's history boring. It is so similar to our own...and comforting to know our symptoms are not unusual...at least not to hypothyroids. I had completely forgotten that I was consistently waking up with numb arms or legs. Not at all good. All gone now, since diagnosis and beginning treatment in September. I was telling my sister how much better my sleep was getting, and this is one I'll have to tell her about. I must add, I also take natural progesterone 14 days a month. Prescription Prometrium. Either thyroid or progesterone didn't work seperately in the past. Together I have fabulous relief of symptoms I didn't even realize were related. The first time I took thyroid was after the doctor agreed to a trial as the lab tests were normal...although she'd been testing me for hypothyroidism based on symptoms for 20 years. Duuh! Can you send a link to the fiber/thyroxine connection as well as flouride and chlorine? > Hello Everyone, > > I am glad I found this place. I have been looking for somewhere that > offers some support for people like us with hypothyroidism. I have just been diagnosed about 2 months ago. It may seem strange but it was a relief to get diagnosed. I am sure you would all understand > what I mean by that. I had so many symptoms but I put them all down > to stress at work and other things, then when I started waking up in the middle of the night with a completely numb leg or arm that is when I started to worry. I went to my doctors and there it was I had > hypothyroidism. > > I am 28yrs old and I live in Yorkshire, England and I would like to > hear from you all and hear about your experiences of living with the condition. Did any of you know that Fibre reverses the effect of > thyroxine or that flouride and chlorine can reduce thyroxine > production? these are all things I have found out from articles I > have found on the net and in magazines. > > Anyway I look forward to reading all your messages in this group and maybe see you in the chat they have here. I will leave you now before I bore you all to death, I am just glad that I have found somewhere I am not alone. > > Spindrift. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2002 Report Share Posted March 12, 2002 Hi Popcornhazel, Thanks for replying to my post and being so kind. As I read that you had also been waking up with numb limbs I was so relieved, that it wasn't in my mind, that I hadn't been lying funny, there was actually something wrong with me. Even now 2 months on I get that 'Oh yeah!' feeling about things I read or when I figure out that what I have been experiencing just means that I have a problem with my thyroid. I know I am going to find this place a valuable resource. I have already learned some valuable information from just a few posts. As for the Chloride/Flouride and Fibre claims of interference with thyroxine.....I found out the fibre claim from a web site about hypothyroidism. I discovered about the chloride and flouride from a magazine article that a parent of a patient showed me. I will however attempt to find out more about this and get back to the group with more accurate information. By the way I have just discovered the wonders of an electric blanket now I know that it isn't my fault that I am always cold. I don't know how I ever managed without it......lol Spindrift --- popcornhazel <popcornhazel@...> wrote: <HR> <html><body> <tt> Hi and welcome,<BR> <BR> I'm glad I found this group, too. & nbsp; Even with all the information out <BR> there it is especially nice to 'hear (read) people tell your own <BR> history. & nbsp; I don't think any of us find anyone's history boring. & nbsp; It <BR> is so similar to our own...and comforting to know our symptoms are <BR> not unusual...at least not to hypothyroids.<BR> <BR> I had completely forgotten that I was consistently waking up with <BR> numb arms or legs. Not at all good. All gone now, since diagnosis and <BR> beginning treatment in September. & nbsp; I was telling my sister how much <BR> better my sleep was getting, and this is one I'll have to tell her <BR> about. & nbsp; <BR> <BR> I must add, I also take natural progesterone 14 days a month. <BR> Prescription Prometrium. & nbsp; Either thyroid or progesterone didn't work <BR> seperately in the past. & nbsp; Together I have fabulous relief of symptoms <BR> I didn't even realize were related. & nbsp; The first time I took thyroid <BR> was after the doctor agreed to a trial as the lab tests were <BR> normal...although she'd been testing me for hypothyroidism based on <BR> symptoms for 20 years. & nbsp; Duuh!<BR> <BR> Can you send a link to the fiber/thyroxine connection as well as <BR> flouride and chlorine? & nbsp; & nbsp; <BR> <BR> <BR> & gt; Hello Everyone,<BR> & gt; <BR> & gt; I am glad I found this place. I have been looking for somewhere <BR> that & gt; offers some support for people like us with hypothyroidism. I <BR> have just been diagnosed about 2 months ago. & nbsp; It may seem strange but <BR> it was a relief to get diagnosed. I am sure you would all understand <BR> & gt; what I mean by that. I had so many symptoms but I put them all down <BR> & gt; to stress at work and other things, then when I started waking up <BR> in the middle of the night with a completely numb leg or arm that is <BR> when I started to worry. I went to my doctors and there it was I had <BR> & gt; hypothyroidism.<BR> & gt; <BR> & gt; I am 28yrs old and I live in Yorkshire, England and I would like to <BR> & gt; hear from you all and hear about your experiences of living with <BR> the condition. Did any of you know that Fibre reverses the effect of <BR> & gt; thyroxine or that flouride and chlorine can reduce thyroxine <BR> & gt; production? these are all things I have found out from articles I <BR> & gt; have found on the net and in magazines.<BR> & gt; <BR> & gt; Anyway I look forward to reading all your messages in this group <BR> and maybe see you in the chat they have here. I will leave you now <BR> before I bore you all to death, I am just glad that I have found <BR> somewhere I am not alone.<BR> & gt; <BR> & gt; Spindrift.<BR> <BR> </tt> <br> <!-- |**|begin egp html banner|**| --> <table border=0 cellspacing=0 cellpadding=2> <tr bgcolor=#FFFFCC> <td align=center><font size= " -1 " color=#003399><b> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2002 Report Share Posted March 27, 2002 Hi Therese, I'll be 45 in Aug....was dxed in '00. Am now tapering pred, currently at 4mg, going to 3 next week...whoopie!!! Glad you found us and welcome. Laurie > HI I AM A 45YR,OLD FEMALE WITH DIABETES NOV.98 AND AIH > DEC2000. I POSTED A MESSAGE A COUPLE OF DAYS AGO BUT I THINK IT GOT > LOST. I HAVE ENJOYED READING YOUR MESSAGES AND I THINK I FOUND A NEW > GROUP THAT I WILL FEEL COMFORTABLE IN. I HOPE THIS DOESN'T GET LOST > > > > THANK YOU > THERESE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2002 Report Share Posted March 28, 2002 Dear Therese, has been losing things recently. Anyway, glad you found us. THis is a disease that can ruin our lives IF we choose to do so! However, there is MUCH information here and I know you will find out much information. I am still learning, but just jump in with your questions. I know you will find answers here! debby [ ] NEW MEMBER HI I AM A 45YR,OLD FEMALE WITH DIABETES NOV.98 AND AIH DEC2000. I POSTED A MESSAGE A COUPLE OF DAYS AGO BUT I THINK IT GOT LOST. I HAVE ENJOYED READING YOUR MESSAGES AND I THINK I FOUND A NEW GROUP THAT I WILL FEEL COMFORTABLE IN. I HOPE THIS DOESN'T GET LOST THANK YOU THERESE Quote Link to comment Share on other sites More sharing options...
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