Guest guest Posted January 13, 2000 Report Share Posted January 13, 2000 In Tuesday's Hartford Courant newspaper there was a short mention of new ALS research findings: Virus Found In ALS Victims Scientists have identified a virus in the spinal-cord tissue of people who died of amyotrophic lateral sclerosis, known as ALS and Lou Gehrig's disease, providing evidence that the baffling and lethal motor-neuron disease could be caused by an infection. A viral theory of ALS has been around for decades but never proved. If confirmed, the finding could have major implications for treatment. There are 30,000 Americans living with the disease, which destroys neurons that control movement. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2000 Report Share Posted January 15, 2000 SUSYDOG, Thanks for the references. I appreciate that you have all these resources! Barb > Did the article in the Hartford Courant identify the virus? <A HREF= " http://www.intelihealth.com/IH/ihtIH/EMIHC000/333/333/262140.html " > I nteliHealth : Health News</A> http://www.intelihealth.com/IH/ihtIH/EMIHC000/333/333/262140.html Virus Found In People With Lou Gehrig's Disease January 11, 2000 Medical Tribune A research team has discovered a virus in the spinal cords of victims of amyotrophic lateral sclerosis (ALS), a fatal nervous system disorder also known as Lou Gehrig's Disease. Researchers at University of California, Irvine College of Medicine (www.uci.edu) and at the Rockefeller University in Lyon, France, found that 15 of 17 victims of ALS showed evidence of a virus in the motor nerve cells of their spinal cords. The virus was found in only one of 29 people who died of other causes. The virus found is similar to Echovirus-7, an infectious agent known to cause meningitis and rare cases of encephalitis. The findings, which appear in the January issue of Neurology (www.neurology.org) <A HREF= " http://www.neurology.org/ " >The American Academy of Neurology</A> , provide the best evidence to date of a possible viral cause of the disease and could result in new treatments for the disorder. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2000 Report Share Posted August 3, 2000 I guess I will have to telephone and send for a copy, many thanks. Did you have any luck on other paramedic online courses, that we both looked into earlier, prior to my PC crashing. The Aussie one was a dead end. JC [] Re: ALS > > Re: [] More Welcomes ! > > >> No wonder I could not get them. > > >I tried the web site today and got the same result ( other folks got the >same) >I have seen the new (?) training syllabus. Not a great deal new in it but >worth a look all the same. > >Cheers >Rod Eglin > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2000 Report Share Posted August 3, 2000 ----- Original Message ----- From: JOHN CARPENTER <JOHN.CARPENTER.SNR@...> > I guess I will have to telephone and send for a copy, many thanks. > Did you have any luck on other paramedic online courses, that we both looked > into earlier, prior to my PC crashing. The Aussie one was a dead end. > JC > -----Original Message----- > From: Rod Eglin <rodegg@...> Nope. Not much info I'm afraid. That Aussie one cost a lot and was no good unless you lived in Aussie land. It's a bit like the UK isn't it! A load of dingo's kidneys. Take care Rod Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2001 Report Share Posted December 13, 2001 ALS > To All, > This may seem like a silly question but has anyone vaccinated from 1998 > been diagnosed with this illness? One more question. I have a problem with > the fluid in my left eye that is causing it to thicken. This causes dark > spots in the fluid that resemble dirt on a lens and is quite annoying. has > anyone else been experiencing this problem? > > V/R > Bob > > Bob, The study below was just released recently saying GWV's are twice as likely to ge ALS as those that did not go to the Gulf. Jim Rarey DAV Praises VA Action for Persian Gulf Veterans with ALS WASHINGTON-The Disabled American Veterans (DAV) is applauding the action taken today by the Department of Veterans Affairs (VA) to grant immediate service connection for Persian Gulf War veterans who suffer from amyotrophic lateral sclerosis (ALS). Secretary of Veterans Affairs J. Principi announced the unusual action citing the results of a new VA and Department of Defense (DoD) study which found preliminary evidence that veterans who served in Operation Desert Shield-Desert Storm are nearly twice as likely as their non-deployed counterparts to develop ALS. Commonly called Lou Gehrig's Disease, ALS is a fatal neurological disease that destroys the nerve cells that control muscle movement. Neither a cause nor an effective treatment for ALS is known. " The DAV is pleased that Secretary Principi acted swiftly to aid Gulf War veterans suffering from ALS, their families, and their survivors, " said DAV National Commander H. Steese, Jr. " The decision to immediately grant presumptive service connection also means that Gulf War veterans suffering from ALS can get immediate medical treatment and care from the VA and that their families will be cared for. " The Secretary's action covers members of the armed services who deployed to Southwest Asia from Aug. 2, 1990 through July 31, 1991. Southwest Asia includes the countries of Oman, the United Arab Emirates, Bahrain, and other nations in addition to Iraq and Saudi Arabia. The joint VA-DoD study, which began in March 2000, involved nearly 700,000 service members deployed during the Gulf War and 1.8 million who did not deploy during the designated period. It found 40 cases of ALS among deployed veterans, a statistically significant greater number than would be normal. " We will compensate veterans with ALS and their survivors, and we will do so quickly, " Secretary Principi said. " We are giving compensation now because of the fatal nature of the disease. Veterans need help now and they will get it. " " The DAV is ready to lend assistance to Gulf War veterans and their families who believe they may be eligible for compensation, " Commander Steese said. " They should contact their nearest DAV National Service Office. " The Disabled American Veterans is a non-profit organization founded in 1920 and chartered by the U.S. Congress in 1932. It is dedicated to one, single purpose: building better lives for our nation's 2.3 million disabled veterans and their families. ### Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2001 Report Share Posted December 14, 2001 Jim, I read that. My question is if any non-deployed Vets vaccinated with the questionable lots of Anthrax have become ill with this disease? In my situation, I deployed to the Gulf in 1998 for Operation Southern Watch and was vaccinated with three shots from Lot FAV020. I was not in the Gulf War per se but fall under the Umbrella clause since I deployed to that region. I now have GWS symptoms and have completed the Persian Gulf physical. Others I know personally, did not deploy and are having similar problems. V/R Bob Date: Fri, 14 Dec 2001 01:31:07 -0500 From: " Jim Rarey " <jimrarey@...> Subject: Re: ALS ALS > To All, > This may seem like a silly question but has anyone vaccinated from 1998 > been diagnosed with this illness? One more question. I have a problem with > the fluid in my left eye that is causing it to thicken. This causes dark > spots in the fluid that resemble dirt on a lens and is quite annoying. has > anyone else been experiencing this problem? > > V/R > Bob > > Bob, The study below was just released recently saying GWV's are twice as likely to ge ALS as those that did not go to the Gulf. Jim Rarey DAV Praises VA Action for Persian Gulf Veterans with ALS WASHINGTON-The Disabled American Veterans (DAV) is applauding the action taken today by the Department of Veterans Affairs (VA) to grant immediate service connection for Persian Gulf War veterans who suffer from amyotrophic lateral sclerosis (ALS). Secretary of Veterans Affairs J. Principi announced the unusual action citing the results of a new VA and Department of Defense (DoD) study which found preliminary evidence that veterans who served in Operation Desert Shield-Desert Storm are nearly twice as likely as their non-deployed counterparts to develop ALS. Commonly called Lou Gehrig's Disease, ALS is a fatal neurological disease that destroys the nerve cells that control muscle movement. Neither a cause nor an effective treatment for ALS is known. " The DAV is pleased that Secretary Principi acted swiftly to aid Gulf War veterans suffering from ALS, their families, and their survivors, " said DAV National Commander H. Steese, Jr. " The decision to immediately grant presumptive service connection also means that Gulf War veterans suffering from ALS can get immediate medical treatment and care from the VA and that their families will be cared for. " The Secretary's action covers members of the armed services who deployed to Southwest Asia from Aug. 2, 1990 through July 31, 1991. Southwest Asia includes the countries of Oman, the United Arab Emirates, Bahrain, and other nations in addition to Iraq and Saudi Arabia. The joint VA-DoD study, which began in March 2000, involved nearly 700,000 service members deployed during the Gulf War and 1.8 million who did not deploy during the designated period. It found 40 cases of ALS among deployed veterans, a statistically significant greater number than would be normal. " We will compensate veterans with ALS and their survivors, and we will do so quickly, " Secretary Principi said. " We are giving compensation now because of the fatal nature of the disease. Veterans need help now and they will get it. " " The DAV is ready to lend assistance to Gulf War veterans and their families who believe they may be eligible for compensation, " Commander Steese said. " They should contact their nearest DAV National Service Office. " The Disabled American Veterans is a non-profit organization founded in 1920 and chartered by the U.S. Congress in 1932. It is dedicated to one, single purpose: building better lives for our nation's 2.3 million disabled veterans and their families. ### Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 > Anyone know any information on ALS, misdiagnosis, or > cause, or alternative treatment, I have a client coming > in diagnosed with ALS and wonder what else can be done, > cause basically it isn't pretty what is ahead if he goes > medical. > thank you > Antonia um, actually, I suspect there is a connection to mercury poisoning, or maybe other metals. I'd certainly get a hair test done. autism/files/HOW_TO_hair_test best, Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 One source said Branched Chain Amino Acids helped 85% of sufferers with it. That would be 12 grams leucine, 8 grams isoleucine, and 6.4 grams of valine per day. Threeonine is supposed to reduce symptoms too. Also Phosphatidylcholine and vitamin E with B1 is supposed to improve symptoms with 95% success. --- from Hyperhealth v98.1 jp > > > Anyone know any information on ALS, misdiagnosis, or > > cause, or alternative treatment, I have a client coming > > in diagnosed with ALS and wonder what else can be done, > > cause basically it isn't pretty what is ahead if he goes > > medical. > > thank you > > Antonia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2003 Report Share Posted October 11, 2003 There'a an ALS protocol at www.lef.org that I could recommend for any neurodegenerative disorder. Duncan Crow > > Anyone know any information on ALS, misdiagnosis, or > cause, or alternative treatment, I have a client coming > in diagnosed with ALS and wonder what else can be done, > cause basically it isn't pretty what is ahead if he goes > medical. > thank you > Antonia > -- > Antonia > Breakthrough Coaching > http://www.Body-dynamics.com > 920-868-9599 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2003 Report Share Posted October 11, 2003 Antonia Go to Mercola.com and research. Nice web site Dwight Munson ALS Anyone know any information on ALS, misdiagnosis, or cause, or alternative treatment, I have a client coming in diagnosed with ALS and wonder what else can be done, cause basically it isn't pretty what is ahead if he goes medical. thank you Antonia -- Antonia Breakthrough Coaching http://www.Body-dynamics.com 920-868-9599 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 dear naturegirl, i haven´t posted anything into the group for months now, i think. but i have been very busy researching on the intestines. i have come to the conclusion, that people, who suffer from allergies and most important: from auto-immune diseases have a chronic inflammation. where??? in the small intestine. as a consequence you suffer from leaky gut syndrome, which means, that any food can be toxic for you. the partly undigested proteins pass the intestinal wall, and that´s where most immune cells are to be found. our intestines are the largest area of our bodies, that is exposed to the " outside " , which means, there MUST be most of our immune cells. so, as soon as such a protein passes the leaky intestinal wall of the small intestine, it contacts with an immune cell forming an antibody-antigen-complex. this is the so-called food intolerance. not to be mixed up with allergy reaction. we have two different kinds of cells there: the mucous producing cells, which produce more and more mucous in order to protect the blood from toxic products, and the epithelial cells, who absorb nutrients into the blood stream. if you eat toxic food for years, you will begin to suffer from heavy disease. so, many people, especially the chronically ill, suffer from a subclinical morbus crohn. but: where´s the exit? i asked myself. i have come across some doctor´s works about crohn´s disease. an alternative approach to crohn´s disease is the treatment with high dosage l-glutamine. why? l-glutamine is needed in large quantities by fast growing cells. (that´s why it is given in cases of chemotherapy, where fast growing cells, no matter if good or " bad " , are being killed)the epithelial cells of the mucosa in the small intestine live only around three days. what we see as bowel movement in the toilet, is largely made up by dead intestinal cells from the small intestine. only a little part of our poo-poo is actually made up by food remainders. okay, so l-glutamine seems to be the answer. sportspeople are told to take large quantities, in order to grow lean muscle mass, not because they need these large amounts for the muscles, but because the small intestines munges most of it away, before the muscles can get hold of it. we are talking about 30 - 40 grams per day here. in order to repair the intestinal walls, we need between 20 and 30 grams per day. best taken along with omega 3 fatty acids, vitamins a,e,d and the b-complex. for all, who are concerned: give this a try!!! and give me feedback. (rheumatism, ms, als, lupus, crohn, autism, allergies......) i think, i have found a major key for healing here. of course, it makes sense to cleanse the guts first. i have also worked out an intestinal cleanse, but the entire booklet is written in german. :-( i am aware, that all of the above mentioned diseases come along with a wide range of other things like fungi, metals, sugar regulation disorders, etc. but the key really seems to be the chronic inflammation and porosity of the small intestines. mind you: the much talked about bowel flora is mostly only to be found in the large intestine, but the actual metabolism happens in the small intestine. i would be very happy about your oppinion. love and greetings marlene ALS Hi All, When performing a treatment on myself, ALS came up 3rd on the test matrix in red. WHile I have had muscles spasms for the last 10 months it was thought to be viral induced benign fascitis syndrome. I do not have muscle weakness at all, no visual, CNS, speech, balance involvement. In fact I feel the best I have in a long time. MS was ruled out long ago. I did the virtual doctor thing too. I realize the power of the QXCI and how the technician must be a competent interpreter of the results. I am seeking some input from more experienced practitioners than I. Could this be my unconscious fear of a fatal disease? Thx-J ............................................. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2004 Report Share Posted June 27, 2004 Interestingly enough, several of the Rife frequencies for ALS is the same for Lyme's disease and MS. I do believe that fear of ALS can well bring it up on the test screen. I would also do the Emotional Freedom Technique to overcome this fear; it works (search on the Web). Craig has given Dr. Callahan's work to the world free of charge much to the dismay of RC. You can also search ATTRACTOR FIELD THERAPY for free protocols for nearly every illness tho ALS is one of those that you have to call in about but you'll get the points to tap within 24 hours via e mail from Dr. Kurt Ebert. I trust you're doing the Individual Reaction for the entry? Does it keep coming up over and over again? Best not to get too concerned if you see it one time or even twice. Our minds can create mountains out of ant hills. is Rotella M.Ac., Arnold, Md. > Hi All, > When performing a treatment on myself, ALS came up 3rd on the test > matrix in red. WHile I have had muscles spasms for the last 10 > months it was thought to be viral induced benign fascitis syndrome. > I do not have muscle weakness at all, no visual, CNS, speech, > balance involvement. In fact I feel the best I have in a long time. > MS was ruled out long ago. I did the virtual doctor thing too. I > realize the power of the QXCI and how the technician must be a > competent interpreter of the results. I am seeking some input from > more experienced practitioners than I. Could this be my unconscious > fear of a fatal disease? > Thx-J Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 Do the 9-day intensive on the welcome page, with friends if possible. http://www.immunics.org/index.html At 09:42 AM 8/29/2005 -0700, you wrote: >Hello Bayard, > >My sister has ALS, Lou Gerigs Disease, in an advanced stage. How could I >possibly help her? > >Tordin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2006 Report Share Posted May 13, 2006 Would she be receptive to " experimentation " with Godzilla? It sure won't hurt anything and who knows it might just be her " Miracle " . Jack ALS Has anybody had any dealings with ALS (Lou Gherig's disease). The wife of a friend of mine has been diagnosed with it. She is having trouble with her throat - difficulty swallowing and talking. Bernie The group's main page has a menu to the left, with photos of Godzilla devices and info. This is a discussion, free speech forum, not medical advice. All info is free to members. Membership is free, but by joing, you agree to hold harmless the posters, including moderator, from damages from anything you find here whether jointly, severally, or individually. We are interested in your results, but cannot say anything about repeatability, or whether this might have medical benefits. Thanks, for your understanding, good luck researching. --bG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 I tried to start them out with a simple zapper, but I don't think she's even tried that. Scared I guess. I'd really like to get her using a godzilla, or a BE, or even a BT, which might be the most appropriate device, if the problem lies in the brain. Her main problems are a lot of trouble swallowing and talking. WHere would you place the electrodes? I don't actually know her, but I've become friends with her husband. Bernie Heere From: [mailto: ]On Behalf Of JACK MILLIORN Sent: Saturday, May 13, 2006 11:05 AM Subject: Re: ALS Would she be receptive to " experimentation " with Godzilla? It sure won't hurt anything and who knows it might just be her " Miracle " . Jack ALS Has anybody had any dealings with ALS (Lou Gherig's disease). The wife of a friend of mine has been diagnosed with it. She is having trouble with her throat - difficulty swallowing and talking. Bernie The group's main page has a menu to the left, with photos of Godzilla devices and info. This is a discussion, free speech forum, not medical advice. All info is free to members. Membership is free, but by joing, you agree to hold harmless the posters, including moderator, from damages from anything you find here whether jointly, severally, or individually. We are interested in your results, but cannot say anything about repeatability, or whether this might have medical benefits. Thanks, for your understanding, good luck researching. --bG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Hi Jack, Where would you place the electrodes. The notion that ALS is actually Lymes disease makes me think that the salt/c protocol might work as well. Or was that discussion on a different forum? Bernie Re: ALS Would she be receptive to " experimentation " with Godzilla? It sure won't hurt anything and who knows it might just be her " Miracle " . Jack ALS Has anybody had any dealings with ALS (Lou Gherig's disease). The wife of a friend of mine has been diagnosed with it. She is having trouble with her throat - difficulty swallowing and talking. Bernie The group's main page has a menu to the left, with photos of Godzilla devices and info. This is a discussion, free speech forum, not medical advice. All info is free to members. Membership is free, but by joing, you agree to hold harmless the posters, including moderator, from damages from anything you find here whether jointly, severally, or individually. We are interested in your results, but cannot say anything about repeatability, or whether this might have medical benefits. Thanks, for your understanding, good luck researching. --bG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 I would do a blood electrification then follow the protocol that Donna outlines. I would do the blood electrification daily or several times a day. It seems to me this ALS thing needs some intensive treatment. Jack ALS Has anybody had any dealings with ALS (Lou Gherig's disease). The wife of a friend of mine has been diagnosed with it. She is having trouble with her throat - difficulty swallowing and talking. Bernie The group's main page has a menu to the left, with photos of Godzilla devices and info. This is a discussion, free speech forum, not medical advice. All info is free to members. Membership is free, but by joing, you agree to hold harmless the posters, including moderator, from damages from anything you find here whether jointly, severally, or individually. We are interested in your results, but cannot say anything about repeatability, or whether this might have medical benefits. Thanks, for your understanding, good luck researching. --bG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 What it means? What next? Bernie Heere wrote: > > I don't actually know her, but I've become friends with her husband. > Bernie Heere > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 >It seems to me this ALS thing needs some intensive treatment.< My aunt was dead in 3 months after being diagnosed with it, but she had a lifelong history of many problems, including diabetes and being terribly obese. DB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 Hi Gail I am sorry to hear of your diagnosis. A long time ago I had a friend who got the same diagnosis. She was very quiet about it and so had less support than I hope you will have. She didn't tell me much about what was happening, so I can't share as much as I wish I could with you. She went to only one ALS support group meeting too. I think you are doing the most beneficial thing, looking for what is available. There was a homeopath in Germany (?) who had had some success with ALS, I think the name is Timmerman. Alize maybe. He/she was willing to work with local homeopaths at that time. Are you going to keep a journal of what happens for you, how it feels etc, both for yourself and perhaps also for others who may face what you are facing now? Hope you also have some good help and support available where you are. What service does that clinic give? Do you like the practioners there? etc. I need to get to bed now -- there's a conference on M.S. tomorrow morning (have to miss church unfortunately) -- want to see whether I like the new neurologist in my area. Take good care! and keep finding good thoughts, Jean ALS Does anyone in this group have ALS or care for someone with ALS?I'm just diagnosed, beginning at ALS clinic in Phoenix AZ. Would like to hear from anyone dealing with this.Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 Hi Jean Thanks for your kind words and thoughts. I am vocal about what's going on with me. I have aloving family and a deep circle of caring friends. I just started to think about keeping a journal, something I have not done since I was a teenager, but I think it could put some perspective on things. I'm still working. I am a senior research technician for US Dept of Agriculture. I have looked into a disability retirement but the govt. must accomodate me before it will allow my to retire, something I don't really want to do anyway as I love my job. I really liked the neurologist who diagnosed me and I have been referred to two other neurologists in town for the 2nd and third opinions (required to get into the clinic). The clinic is supposed to be full service but I don't go there until next week. Meanwhile I am reading as much as I can online about this. But today, the most important thing will be hugging my two young grandaughters. That's the best medicine in the world. Take care, Jean Gail disease. , " gettingthere35 " <gettingthere35@...> wrote: > > Hi Gail > I am sorry to hear of your diagnosis. > A long time ago I had a friend who got the same diagnosis. She was very quiet about it and so had less support than I hope you will have. > She didn't tell me much about what was happening, so I can't share as much as I wish I could with you. She went to only one ALS support group meeting too. > I think you are doing the most beneficial thing, looking for what is available. > There was a homeopath in Germany (?) who had had some success with ALS, I think the name is Timmerman. Alize maybe. He/she was willing to work with local homeopaths at that time. > > Are you going to keep a journal of what happens for you, how it feels etc, both for yourself and perhaps also for others who may face what you are facing now? > > Hope you also have some good help and support available where you are. What service does that clinic give? Do you like the practioners there? etc. > > I need to get to bed now -- there's a conference on M.S. tomorrow morning (have to miss church unfortunately) -- want to see whether I like the new neurologist in my area. > Take good care! and keep finding good thoughts, > Jean > > ALS > > > Does anyone in this group have ALS or care for someone with ALS? > I'm just diagnosed, beginning at ALS clinic in Phoenix AZ. Would like > to hear from anyone dealing with this. > Gail > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 Hi Gail -- I'm sending MUCH love and energy to you!! Just got back from that M.S. conference, and know that the neurologist who spoke is probably NOT a one for me, though local (good to know!) Besides they had lots of freebies! - a great breakfast, a timer, an overtheshoulder bag and pens and hiliters! plus a chance, of course, to talk with others in their 'journey' and it was great that the speaker and also the MS nurses went to each table for our individual concerns.... I did get some good help too. More and more as life goes on, I see how very lucky I have been, despite being 'disabled' nearly fifty years.... I am EVER so glad to hear that you have a wide circle of support!!! That will mean so very much to you in the coming years. And probably some who want to help now, will give way to others who prefer to help later... WOW that you are still working! and great that you are being careful so as to get best results re benefits. Sounds like you have a job that will be great training for all this, too. You know how to find what you need to know. And at least to some extent you are able to be 'practical' and 'theoretical' and such, which for me at least is a huge help. Early on I decided to have 'me' as a client/patient, which helps a bit re the emotion. And then my mind/body/spirit therapist makes sure that the emotive part gets heard too!! also essential we think. Hurray for the hugs from those grandchildren!! They too can be a source of joy and strength no matter what!! And I am so very glad that you have a good relationship with that first neurologist. So many neurologist are more 'in their scientific head' I think. While it is great that they do research to try to get more of their patients well, I more than once have heard MSers complain that they are not seen as persons with other needs too. (And I left several neurologists before finding one I liked!) but that was years ago before docs learned they needed to be people too -- maybe more are 'nicer' now. Do keep us informed!! much love, Jean ALS> > > Does anyone in this group have ALS or care for someone with ALS?> I'm just diagnosed, beginning at ALS clinic in Phoenix AZ. Would like > to hear from anyone dealing with this.> Gail> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 ...I don't think we've tried it out yet on ALS. you could be the first. bG > > Has there been any research on using these devices on ALS patients? I > have a girlfriend who is expecting a diagnosis of ALS from her biopsy. > Too many traumatic procedures on her body these last 7 years. > > If any one can lead me to anything, would be appreciated. She deals > with alot of pain in the morning, preventing her getting out of bed > without the use of crutches now. I believe there might be a use on > either this group, or other groups doing similar research. > > Thanks! > Graffer > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 AMIOTROFIESE LATERALE SKLEROSE ( ALS ) ALS is ‘n motorneuronsiekte wat gekenmerk word deur atrofie van die boonste ledemate en spierverswakking en verlamming van die onderste ledemate. Hierdie chroniese rugmurgsiekte eindig gewoonlik met verlamming van die breinstam. OORSAKE ALS word veroorsaak deur die degenerasie van die rugmurg, veral die voorste horingselle en die piramidale bane. ‘n Virus veroorsaak dat die mielenskede van senuweevesels vernietig word deur leukosiete. BEHANDELING Die behandeling is byna soortgelyk aan die van MS. ALS moet aggressief en oor 'n lang tydperk behandel word. Hoe langer 'n pasient die siekte het, hoe swakker is die prognose. Behandeling bestaan uit: Dieet Aanvullings Elektroterapie. DIEET Die dieet moet heeltemal vry wees van glutien, suiwel, koring en versadigde vette, m.a.w. volg 'n vegetariese dieet. Vermy alle vleis, suiwelprodukte, sojaprodukte, eiers, gebraaide kosse, vette,gis, koffie, alkohol, sout, suiker, sigarette, grondbone, grondboonbotter, brouersgis, verhitte kookolies, margarien, gebraaide kosse, glutien, byvoegings, insekdoders, gort, sjokolade, speserye, hawermout, verfynde kosse, rog, geprosesseerde,- geblikte,- bevrore kosse, kleursels, asyn, verhitte koolhidrate, bv. brood, beskuit, aartappelskyfies, pasta, pizza, koek, tert, pasteie, koeldranke, roomys, heuning, neutmuskaat, olywe, tamatie, eend, tiemie, haringvis, avokado, rooi peper, sitrus, tee, kool, sampioene, dadels, groen peper, aarbeie, pere, mint, prei, tabak, pietersielie, druiwe, spanspek, piesang, garnale, mostert, mielies, kunsmatige versoeters, klapper, patat, aartappel en eiervrug. Vermy verder stres en angs, blootstelling aan hitte, soos warm baddens, stortbaddens, sonbad, oorverhitting wanneer oefen, uitputting en virale infeksies. Eet: ROU en lig gekookte groente,rou vrugte, vis,gespruite sade soos alfalfa, sonneblom, rooi klawer, gespruite bone, neute, sade soos pampoen, perske, appelkoos, bruinrys, millet en olyfolie. Eet net organiese groente en vrugte sonder enige byvoegings . Eet baie rou spruite , alfalfa , sauerkraut , donkergroen groente en drink vars uitgedrukte , organiese groente- en vrugtesappe , asook groen drankies wat baie chlorophyll bevat. Drink 300 ml gesuiwerde water per elke 10 kg liggaamsgewig. Periodes van rou groentesapvas vir 3 dae per maand moet gedoen word onder die toesig van 'n naturopatiese- of mediese dokter wat kennis het van naturopatie. AANVULLINGS Galium-Heel-10 druppels soggens Hormeel- 10 druppels smiddae Hepeel- 1 tablet saans 20 minute voor ete. Schwef-Heel-10 druppels voor slaaptyd. Vitamien B12-400mcg pd Inositol-1000mg pd Vitamien D-1500 ie pd Procydin-1 kapsule 3x pd Oktakosanol-40mg pd Kolamien fosfaat-400mg van 'n 10 cc spuit-binne-aars- NIE intramuskuler nie. Pankreatiese ensieme-6 g pd EPA\DHA\Flaksolie-3 eetlepels pd DHEA-50 mg pd. Elektroterapie: QXCI\SCIO- 3xpw Kruiemiddels: Sutherlandia, hypoxis, alfalfa, echinacea en valeriaan. ALS Hello,I have a client with progressive ALS. He cannot talk, walk and it is so difficult to swallow. His cell vitality is 1, V- 66, A- 45, R- 50, H- 49, O- 49, P-71, E-65, Imp- 1400The highest stress number is Environmental and it shows allopathic toxins.The doctor told him to eat more fats and more sugar to keep his heart working. I am concern that the white sugar he puts in his black tea is not a good idea. I think that the black tea and the sugar are not the best for him.I will appreciate any ideas with similar cases.ThanksKatia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 He needs hormone support - urgently and to cut out wheat, starch, grains, sugar. The more caffeine the lower the adrenals. Bye Sue ALS Hello,I have a client with progressive ALS. He cannot talk, walk and it is so difficult to swallow. His cell vitality is 1, V- 66, A- 45, R- 50, H- 49, O- 49, P-71, E-65, Imp- 1400The highest stress number is Environmental and it shows allopathic toxins.The doctor told him to eat more fats and more sugar to keep his heart working. I am concern that the white sugar he puts in his black tea is not a good idea. I think that the black tea and the sugar are not the best for him.I will appreciate any ideas with similar cases.ThanksKatia Quote Link to comment Share on other sites More sharing options...
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