Lyme relapse questions

[Guest guest]

My doctor a supposed LLMD, told me to expect " Lyme relapses " now that I am

done with meds. I was just on Doxy 21 days 100 mg bid. He said that anytime

I don't get enough sleep, am stressed or if I get physically overexerted

that I'd have a relapse but that does not require meds.

I am getting all confused again as what I read does not talk about

'relapses' that are not in need of meds. What I read says more that if

symptoms continue it is an active infection that needs more meds.

I am having a back and forth thing where I feel 100% normal/well on some

numerous days in a row, then after various things (overexertion, not

sleeping due to problem i.e. bat flying around in my bedroom at 3am which

had to be caught and put outside---that prevents me from sleeping)---then I

relapse into having multiple Lyme symptoms mainly extreme fatigue such as

needing 11-12 hours of sleep at night and also needing naps and yawning all

day long and if I could, feeling the need to be in bed all day sleeping.

That goes on with a few other mild symptoms then suddenly one day it is gone

and back to normal.

This is not acceptable to me to live like this and not know when the next

relapse will come. My schedule so far was like this.

Day 1-3 off meds

Days 4-6 relapse

Days 7-8 fine

Days 9-13 relapse

Days 14-25 (today) feel fine

So 8 of the last 25 days was relapse time, 1/3 of the time, not good IMO..

HELP.

I seriously am thinking I will need to either call back my LLMD and complain

of relapses even though he says to expect them and he already said that he

doesn't medicate with AB for Lyme relapses OR I will have to bite the bullet

and shell out $800 for a consult with another cash-only LLMD with a waiting

list of 3 months.

This doctor also said that Lyme is not a malaria like disease that hides out

and comes back out to be active again. I am still trying to understand what

that meant as it contradicts what other doctors say (in writing).

I would love to hear your opinions, the relapse theory-is it falsehood or

real---is there literature really talking of " relapse " ? You can email me

privately if you wish. THANK YOU.

christinemm@...