Re: staying up all night-Help please

[Guest guest]

In a message dated 11/16/2005 2:15:18 P.M. Eastern Standard Time,

fancy1413@... writes:

Hi all

This is something my son has been doing for a good year now-way

prior to us finding out about the Lyme. He's 19.

He has his days and nights totally out of whack and it's driving me

nuts. His eating habits are awful- pretty much carbs (noodles,

canned spagetti). He just recently (2-3 weeks) got back onto the

vits, vit C, B, probiotics, milk thistle and the amino acids-

tyrosine, tryptophan and MSM. Got him onto the Doxy about a week ago

and am just beginning slowly to get him onto the Nystatin.

He stays up til 2-4am (usually 4), then will sleep til noon or 1-

2pm. He then works part time from 4-8pm, comes home and plays the

video games (altho lately he's more talkative and social and has

actually gone to his room and straightens up some). I've talked til

I'm blue in the face and etc.

I do have some Melatonin-have never used it for anyone and have read

that it's not all that great for a person long term, altho I've also

read it helps. It's not the actual sleeping that's the problem- but

the days and nights mix up.

I end up giving him his meds/ supplements as he says he does but I

don't really know for sure. I'm gone each afternoon working, so have

no back up then. I end up waking up several times thru the night to

give him things, but I can't sleep when he's up cos I worry and when

I do it's fitful sleep.

For example I gave him the Doxy last night at supper along with the

digestive enzymes and milk thistle- he did eat the potatoes ( no

meat no vegs). Then around 10pm I gave him the vit C, b, and

probiotics with the No phenol and got him to drink a glass of water-

this also is something he doesn't drink enough water. Then around 1

am I gave him the neurotransmitter stuff (tyrosine, tyrptophan and

MSM) with another B complex vit (has tested low in 2 of these) a

couple of vit C. Now I have to try and get him to eat something so I

can get the Doxy in him- it's 10am. He works today and I won't see

him til night again. He grudginly has been taking things- but he's

awful to try to wake up. Don't get me wrong- he's a wonderful person.

I just the other day found out thru a link on autism lyme group that

he has the Bartonella as one of the coinfections as the pictures of

the stretch marks with this is exactly what he has (thought it was

due to the weight gain). so the irritation could be that.

Help- I've totally run out of ideas- except for me to be on a day

and night schedule too- it's worse than haveing to get up and feed a

baby as I wasn't worrying and not sleeping between feedings.

Sorry to sound whinny- I'm tired.

Thanks for any and all suggestions

Rose Marie

Rose ..don't ever think of things you post a whiney ! Its OK to be tired and

its OK to be whiney ...you are just having a bad day because you are tired

and worried about your son. It sounds to me as though he could be suffering

from some depression. Do you see the same LLMD ? Maybe you could get him to

mention it or ask if he minds if you do. There is a new antidepressant on the

market with no side effects that works great for depression and also is

supposed to be used for pain. I take it and I feel really good ..emotionally.

Its

just a suggestion. I know it must be hard to see your son suffer with this, but

he needs to know that he has to take some responsibility for HIS recovery

also. You can't get up and down all night to give him his meds. Not if you are

sick also. I would get one of those medication boxes which have the little

sections for the days pills. Explain it to him what he NEEDS to do and then let

it go. He is getting to be a grown up now and has to figure out how to treat

his lyme by himself. I don't mean to sound mean ....or superior or any of

that. Please don't get angry with me. I just think maybe its time for a sit

down

with him about how YOU feel. Tell him that you worry about him , love him

and want him to get well. Then ....go to bed ...and stop worrying , the stress

is something that makes us sicker ;( Good luck with this . I am a mother

too .....I can understand. Kat

[Guest guest]

RoseMarie,

I know exactly what you are saying about the sleep cycle being off as I have

dealt with it for years w/ my two teenage daughters who have lyme. You can

e-mail me privately if you'd like as we could go on and on about this I'm

sure, but I wanted to mention that an Eye doctor that I took my oldest (and

sickest)daughter to, (he also had lyme but was in remission) had me research

light boxes. He was all for them and said he has seen them work. I had read

alot about them and it sounds like they would certainly put their clock back in

the right rhythm, but my oldest daughter has excruciating migranes and

putting a light in her room would be like torture. You didn't mention whether

your

son was in pain or not, so possibly if he is not suffering from lymegranes,

than these might help. I'll send you a link, but you can also just do a

search on light box therapy and there will be lots of articles to choose from.

Best of luck and feel free to e-mail me anytime.

~Janet

[Guest guest]

In a message dated 11/16/2005 7:50:19 P.M. Eastern Standard Time,

fancy1413@... writes:

happened to talk with our LLMD's nurse and she suggested trying to

give tryptophan at night and this may help. Also mentioned melatonin

and then as a last resort a sleeping pill. She's thinking that maybe

he's not getting his REM sleep (deep sleep).

Good idea ...I just wanted to mention something . I have been told by my doc

that if you have fibromyalgia ...and/or lyme (maybe..not so sure about the

lyme) that you NEVER reach that part of sleep ...that is the part where the

body heals and the muscles relax and all of that good stuff that sleeping is

all about. SO .....'we' usually wake up feeling just as crappy as we did before

we went to bed ..hence ....why worry about going to bed ?? Maybe that's what

he is thinking ...if he feels crummy when he wakes up why bother ...NOW

.....I'm not saying he should be up all night ....no way ...but I know I am a

night owl , BUT I get up early also. Basically once I learned I wasn't getting

'good' sleep I didn't worry so much about it ! Silly me ....I am so tired !!!

lol ! I ALWAYS worked night shifts at the hospital ....never did get my right

schedule back !!

[Guest guest]

In a message dated 11/16/2005 7:40:58 P.M. Eastern Standard Time,

TUESDAYMT@... writes:

RoseMarie,

I know exactly what you are saying about the sleep cycle being off as I

have

dealt with it for years w/ my two teenage daughters who have lyme. You can

e-mail me privately if you'd like as we could go on and on about this I'm

sure, but I wanted to mention that an Eye doctor that I took my oldest (and

sickest)daughter to, (he also had lyme but was in remission) had me research

light boxes. He was all for them and said he has seen them work. I had

read

alot about them and it sounds like they would certainly put their clock

back in

the right rhythm, but my oldest daughter has excruciating migranes and

putting a light in her room would be like torture. You didn't mention

whether your

son was in pain or not, so possibly if he is not suffering from lymegranes,

than these might help. I'll send you a link, but you can also just do a

search on light box therapy and there will be lots of articles to choose

from.

Best of luck and feel free to e-mail me anytime.

~Janet

I am SO GRATEFUL that so far I don't suffer from these headaches ..my heart

goes out to all of you who do ! I've had ONE in my entire life ...good grief

....I can't imagine life with the worry that one of those was going to come

back at any given moment ! I really feel so bad for people who suffer from

headaches ! OUCH ! K

[Guest guest]

In a message dated 11/16/2005 8:02:36 P.M. Eastern Standard Time,

fancy1413@... writes:

have heard that the lights help with depression also isn't it

called Seasonal something or another??

S.A.D. Seasonal Affective Disorder ....the light is pretty expensive and I

did not notice much of a change ...but lots of people do !

[Guest guest]

Kat

Thanks

I happened to talk with our LLMD's nurse and she suggested trying to

give tryptophan at night and this may help. Also mentioned melatonin

and then as a last resort a sleeping pill. She's thinking that maybe

he's not getting his REM sleep (deep sleep).

Today he awakened easier, am seeing little pieces of positive, I

just get discouraged.

Am hoping he will believe in this better as he begins to see and

feel different. He's been on many, many meds thru his life for

allergies, infections, ADD and sees all pills as the same. I know

we're on the right track now and I think he's beginning to see this

also- otherwise he'd refuse to take them. And then I'd truly be a

basket case!!

Thanks for letting me bend your ears, sorry

Rose Marie

>

> Rose ..don't ever think of things you post a whiney ! Its OK to

be tired and

> its OK to be whiney ...you are just having a bad day because you

are tired

> and worried about your son. It sounds to me as though he could be

suffering

> from some depression. Do you see the same LLMD ? Maybe you could

get him to

> mention it or ask if he minds if you do. There is a new

antidepressant on the

> market with no side effects that works great for depression and

also is

> supposed to be used for pain. I take it and I feel really

good ..emotionally. Its

> just a suggestion. I know it must be hard to see your son suffer

with this, but

> he needs to know that he has to take some responsibility for HIS

recovery

> also. You can't get up and down all night to give him his meds.

Not if you are

> sick also. I would get one of those medication boxes which have

the little

> sections for the days pills. Explain it to him what he NEEDS to do

and then let

> it go. He is getting to be a grown up now and has to figure out

how to treat

> his lyme by himself. I don't mean to sound mean ....or superior

or any of

> that. Please don't get angry with me. I just think maybe its time

for a sit down

> with him about how YOU feel. Tell him that you worry about him ,

love him

> and want him to get well. Then ....go to bed ...and stop

worrying , the stress

> is something that makes us sicker ;( Good luck with this . I am

a mother

> too .....I can understand. Kat

>

>

>

[Guest guest]

Janet

Thanks and if there's a specific link to what you used that would be

great- he did have headaches up til last Nov (that was when we

stopped the allergy shots and the med for ADD and started weaning

him off of the med for depression) think the last one he had was mid

summer or so.

He sleeps on the couch in the living room at present, even tho he

has a room and bed (it's downstairs so I wonder sometimes about

molds and etc and maybe that's what's going on) We're getting into

winter now and it's gloomier.

I have heard that the lights help with depression also isn't it

called Seasonal something or another??

Thanks much Rose Marie

>

> RoseMarie,

>

> I know exactly what you are saying about the sleep cycle being off

as I have

> dealt with it for years w/ my two teenage daughters who have

lyme. You can

> e-mail me privately if you'd like as we could go on and on about

this I'm

> sure, but I wanted to mention that an Eye doctor that I took my

oldest (and

> sickest)daughter to, (he also had lyme but was in remission) had

me research

> light boxes. He was all for them and said he has seen them work.

I had read

> alot about them and it sounds like they would certainly put their

clock back in

> the right rhythm, but my oldest daughter has excruciating migranes

and

> putting a light in her room would be like torture. You didn't

mention whether your

> son was in pain or not, so possibly if he is not suffering from

lymegranes,

> than these might help. I'll send you a link, but you can also

just do a

> search on light box therapy and there will be lots of articles to

choose from.

> Best of luck and feel free to e-mail me anytime.

> ~Janet

>

>

>

>

[Guest guest]

In a message dated 11/17/2005 10:56:43 A.M. Eastern Standard Time,

millie_miller@... writes:

Martha was on Ellen the other day and she said she only sleeps 3 and

a half hours a night. It's a good thing?

WELL ..as far as I am concerned ...'MARTHA' looks to me as if she could USE

a few more hours of sleep ! She probably sits up counting the money !!!!! ;-)

smack me I am very fresh today !!! heehee ~ sorry !

[Guest guest]

Kat

I gave him 3 of the tryptophan (he's a big guy) around 11pm- it's

best to take the amino acids about an hr after a meal-esp one with

protein. He went to sleep sometime around 430 or so. This am at 8 am

I woke him up- he was more pleasant, but he still also hasn't gotten

up to eat yet.... time will tell, imagine it takes awhile for it to

take ahold

He'd been evaluated for sleep apnea due to the fatigue this summer,

they said he didn't have it, but also he stayed awake into the am

hrs, so they couldn't get all the tests in.

will see what happens

take care Rose Maire

>

>

> In a message dated 11/16/2005 7:50:19 P.M. Eastern Standard Time,

> fancy1413@y... writes:

>

> happened to talk with our LLMD's nurse and she suggested trying

to

> give tryptophan at night and this may help. Also mentioned

melatonin

> and then as a last resort a sleeping pill. She's thinking that

maybe

> he's not getting his REM sleep (deep sleep).

>

>

>

> Good idea ...I just wanted to mention something . I have been

told by my doc

> that if you have fibromyalgia ...and/or lyme (maybe..not so sure

about the

> lyme) that you NEVER reach that part of sleep ...that is the part

where the

> body heals and the muscles relax and all of that good stuff that

sleeping is

> all about. SO .....'we' usually wake up feeling just as crappy as

we did before

> we went to bed ..hence ....why worry about going to bed ?? Maybe

that's what

> he is thinking ...if he feels crummy when he wakes up why

bother ...NOW

> ....I'm not saying he should be up all night ....no way ...but I

know I am a

> night owl , BUT I get up early also. Basically once I learned I

wasn't getting

> 'good' sleep I didn't worry so much about it ! Silly me ....I am

so tired !!!

> lol ! I ALWAYS worked night shifts at the hospital ....never did

get my right

> schedule back !!

>

>

>

[Guest guest]

Martha was on Ellen the other day and she said she only sleeps 3 and a

half hours a night. It's a good thing?

KATL1957@... wrote:

In a message dated 11/16/2005 7:50:19 P.M. Eastern Standard Time,

fancy1413@... writes:

happened to talk with our LLMD's nurse and she suggested trying to

give tryptophan at night and this may help. Also mentioned melatonin

and then as a last resort a sleeping pill. She's thinking that maybe

he's not getting his REM sleep (deep sleep).