Guest guest Posted July 26, 2006 Report Share Posted July 26, 2006 Just a quick note of thanks to everyone. Today I found a LLMD that I feel is a good fit for us. He says he takes my insurance which seems too good to be true, I will double check with my carrier tomorrow. I was prepared to pay everything out of pocket. I have appt's for me and both of my children, I am happy he sees children as well as adults, although we have to wait 2.5 weeks to see him (I should not be complaining but it means a gap in oral AB for all 3 of us, oh well, I had hoped for continuous treatment for the first dose). I had a good day today, thank goodness. I also had a long phone call with someone that I believe came from this list, a friend of a friend of someone here. I also found a local support group which I may or may not choose to access. I have two Lyme books coming to me that I bought on the Internet since they weren't available at the public libraries. I also found two interview recordings at my library with two different LLMDs, one is on children and Lyme and the other is on Lyme in general which I will start watching tonight. So I feel so physically well today and clear minded (the normal me) that I can handle thinking about this stuff today. I have read the Dr. B. recommendations and did more reading to now see the conflict of interest and other controversial topics on Lyme. I will continue to read the messages on this list. Just wanted to say thanks to everyone. I could share some negative stuff that happened with the Dr. who gave me my oral Abs when we spoke yesterday, but I will just keep that to myself. I feel very hopeful for the future at this point and just want all of us to get the right treatment for the stage we are in and get this Lyme killed off so we can get on with our lives. Trying to be optimistic. Yes I do think I had a Herx reaction! I wish the Dr. had told me about that so I could have braced myself! It would have been easier to tolerate if I knew that it was part of the necessary process and that it was a good sign to be experiencing it. Thank you to those who took their time to help me by giving links and other information and support! I really appreciate it!! Quote Link to comment Share on other sites More sharing options...
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