Re: antibiotics and recovery

October 11, 2005

trumpy99 wrote:

>

> has anyone in this group actually recovered fully from this disease

> and has stopped taking antibiotics? in reading the posts i only see

> examples of periods when people feel well and then relapse. any sucess

> stories?

Hi All,

I have never been acutely sick with Lyme; so it

is impossible for me to " recover " or go into

remission; but RIBb tests show that I still have

the disease; so I still take antibiotics (since

June, 2000).

Jack

October 11, 2005

I was wondering the same thing. I finally have a dr. that will treat

me 1-2 month course of antibiotics due to " central nervous system "

infection (due to Lyme). I have fibromyaliga and myofascial pain

syndrome and symptoms started after my diagnosis and treatment of

Lyme's.

In , " J. " <tjs11@c...> wrote:

>

> trumpy99 wrote:

> >

> > has anyone in this group actually recovered fully from this

disease

> > and has stopped taking antibiotics? in reading the posts i only

see

> > examples of periods when people feel well and then relapse. any

sucess

> > stories?

>

> Hi All,

>

> I have never been acutely sick with Lyme; so it

> is impossible for me to " recover " or go into

> remission; but RIBb tests show that I still have

> the disease; so I still take antibiotics (since

> June, 2000).

>

> Jack

>

October 11, 2005

Never did antibiotics specific for lyme only for the chronic infections,

caused by lyme and massive candida, have not taken any for over 2 years and

am symptom free for 1 year and 2 months.

-- [ ] antibiotics and recovery

has anyone in this group actually recovered fully from this disease

and has stopped taking antibiotics? in reading the posts i only see

examples of periods when people feel well and then relapse. any sucess

stories?

October 12, 2005

Maybe as people get well and can function, they tend to need support

groups less and drop off time spent here. Then we won't get the " good

news, I'm never coming back " story.

Pam, in a brain fog, hard to see/feel the keys -- going to bed!

>

> has anyone in this group actually recovered fully from this disease

> and has stopped taking antibiotics? in reading the posts i only see

> examples of periods when people feel well and then relapse. any sucess

> stories?

>

October 12, 2005

I have heard lots of reports from people that are well, but most have used

alternatives, such as salt/C Protocol, or a program like mine. We always get

so much flack from those that are still trying and not having much success,

sometimes I don't know why I bother to post. Then I will get an email from

someone who says thanks for telling your story, I needed a little hope today

and so I continue.

Alternatives are welcomed in the Salt/C forum and I have posted there many

times but people are only counting on the salt/C and nothing else, just

like this forum wants to believe in Antibiotics as the only way.When it

comes to things that are not drugs, there are lots of choices, but things

like colloidal silver, Hyperbaric chambers, rife machines, etc, etc., are

great as an addition to a program that addresses the physical needs of the

body, but by themselves fall short. It would be like getting a new paint

job, new tires, and new seat covers for a car that had no engine, what's the

point. Our cells run our body just like the engine of the car, and in order

for it to do well it has to be fed daily, many things, its not coming in

the food so how is it suppose to get in us???? Your body is just like your

checking account, if you want to keep a balance so that you are not

overdrawn, you have to make some deposits. With lyme disease the withdrawls

are many, and antibiotics are not considered a deposit to the health of the

body so you can see why many are so sick. These are not my opinions, but

established facts that have been documented over the years.

-- [ ] Re: antibiotics and recovery

Maybe as people get well and can function, they tend to need support

groups less and drop off time spent here. Then we won't get the " good

news, I'm never coming back " story.

Pam, in a brain fog, hard to see/feel the keys -- going to bed!

October 13, 2005

I really don't think this is true--and I'm one who can't take

antibiotics, but--I listened to the LIterati With Lyme Video or

rather, watched it online last night. Amy Tan is fine now--after 2

years of abx--she went to China, came back with one day of jetlag

etc. Jordan is also much better and was on book tour at the

time, and Meg Cabot seemed to have had a relatively light case anyway

and recovered easily on antibiotics.

As I said, I can't tolerate them because of equally bad fungal

issues, but I think many many many folks get better on them. You hear

from a self-selected group. WHo do you hear on salt/c who is truly

better I'm curious? I am monitoring by lurking and trying to figure

out what's happening. It seems to be adjunctively good, but most of

those folks have already done heavy duty abx so who knows what is

left in their system, either. I'm waiting to see at least a handful

of reports of folks cured--like Marc, but then again, he did a TON Of

stuff beforehand, including abx, ICHT, ozone, rife, you name it.

>

> I have heard lots of reports from people that are well, but most

have used

> alternatives, such as salt/C Protocol, or a program like mine. We

always get

> so much flack from those that are still trying and not having much

success,

> sometimes I don't know why I bother to post. Then I will get an

email from

> someone who says thanks for telling your story, I needed a little

hope today

> and so I continue.

>

> Alternatives are welcomed in the Salt/C forum and I have posted

there many

> times but people are only counting on the salt/C and nothing else,

just

> like this forum wants to believe in Antibiotics as the only

way.When it

> comes to things that are not drugs, there are lots of choices, but

things

> like colloidal silver, Hyperbaric chambers, rife machines, etc,

etc., are

> great as an addition to a program that addresses the physical needs

of the

> body, but by themselves fall short. It would be like getting a new

paint

> job, new tires, and new seat covers for a car that had no engine,

what's the

> point. Our cells run our body just like the engine of the car, and

in order

> for it to do well it has to be fed daily, many things, its not

coming in

> the food so how is it suppose to get in us???? Your body is just

like your

> checking account, if you want to keep a balance so that you are not

> overdrawn, you have to make some deposits. With lyme disease the

withdrawls

> are many, and antibiotics are not considered a deposit to the

health of the

> body so you can see why many are so sick. These are not my

opinions, but

> established facts that have been documented over the years.

>

> -- [ ] Re: antibiotics and recovery

>

> Maybe as people get well and can function, they tend to need support

> groups less and drop off time spent here. Then we won't get

the " good

> news, I'm never coming back " story.

>

> Pam, in a brain fog, hard to see/feel the keys -- going to bed!

>

October 13, 2005

Sorry, have to add one more addendum. Hyperbaric chambers don't

always fall short.

It seems very individual. who posts here sometimes--she and

hubby did 3 mos of rocephin, as I recall, and then switched to

hyperbaric and are doing really well.

A few patients treated in Great Barrington when I was--did really

longterm hyperbaric and got much better. One did hyperbaric only (no

abx no supplements) for maybe 4 months as I recall, then twice a week

for 45 minutes for another YEAR. SHe improved greatly, according to

the doc, and has held steady.

I don't like rife at all for myself, but others claim to be well.

It really is all over the map, and inaccurate to say abx don't work

for many, or hyperbaric for some, or rife for some etc.

>

> I have heard lots of reports from people that are well, but most

have used

> alternatives, such as salt/C Protocol, or a program like mine. We

always get

> so much flack from those that are still trying and not having much

success,

> sometimes I don't know why I bother to post. Then I will get an

email from

> someone who says thanks for telling your story, I needed a little

hope today

> and so I continue.

>

> Alternatives are welcomed in the Salt/C forum and I have posted

there many

> times but people are only counting on the salt/C and nothing else,

just

> like this forum wants to believe in Antibiotics as the only

way.When it

> comes to things that are not drugs, there are lots of choices, but

things

> like colloidal silver, Hyperbaric chambers, rife machines, etc,

etc., are

> great as an addition to a program that addresses the physical needs

of the

> body, but by themselves fall short. It would be like getting a new

paint

> job, new tires, and new seat covers for a car that had no engine,

what's the

> point. Our cells run our body just like the engine of the car, and

in order

> for it to do well it has to be fed daily, many things, its not

coming in

> the food so how is it suppose to get in us???? Your body is just

like your

> checking account, if you want to keep a balance so that you are not

> overdrawn, you have to make some deposits. With lyme disease the

withdrawls

> are many, and antibiotics are not considered a deposit to the

health of the

> body so you can see why many are so sick. These are not my

opinions, but

> established facts that have been documented over the years.

>

> -- [ ] Re: antibiotics and recovery

>

> Maybe as people get well and can function, they tend to need support

> groups less and drop off time spent here. Then we won't get

the " good

> news, I'm never coming back " story.

>

> Pam, in a brain fog, hard to see/feel the keys -- going to bed!

>

October 13, 2005

Yes, the Literati With Lyme Video is encouraging. I have often thought (when I

was able to think. ha) how Amy Tan, one of the greatest writers of our time, has

only been able to publish one book since she got Lyme. It was a selection of

short essays. Can you relate to that? It is the way I think. I can't keep

track of larger concepts but I can handle small articles, for the most part.

I read Meg Cabbot's original blog from, I think, December 2003, where she had

just discovered that what had been bothering her was Lyme. The blog was very

short. If you read her blogs now you will notice that she can be rather wordy.

I think she is one of those cases where it was treated early enough to do some

good. Either that or writing " The Princess Diarys " is not as demanding. (I

don't mean that, just an attempt at humor. I really respect her. From her

writings I think she would be one ex-hoosier I would like to have a conversation

with.) If you read some of her journey with recovery in her old blogs you will

find that she didn't just take abx. She was taking a bunch of supliments too.

Did you know that the woman who wrote " The Ya Ya Sisterhood " also has Lyme?

For anyone who is interested you can download the Literati With Lyme video and

find links to Cabbot's and other blogs at LymeBlog.

jill1313 <jenbooks13@...> wrote:

I really don't think this is true--and I'm one who can't take

antibiotics, but--I listened to the LIterati With Lyme Video or

rather, watched it online last night. Amy Tan is fine now--after 2

years of abx--she went to China, came back with one day of jetlag

etc. Jordan is also much better and was on book tour at the

time, and Meg Cabot seemed to have had a relatively light case anyway

and recovered easily on antibiotics.

Lyme Disease - read the latest news and personal stories http://lymeblog.com

October 13, 2005

That is great I am glad to hear many are recovering from lyme with

Antibiotics. But what about the after math of being on them for years. It is

no different then chemo, works sometimes to kill the cancer but the person

is left with no immune system. I have absolutely nothing against using

antibiotics I did use them for years. I have since learned that if you are

going to work against the body then you better be working with it also. I

think because so many are misdiagnosed and given meds for different drugs it

is just to hard to say one thing works, one thing does not. The people that

get well with 2 years of abx may have been diagnosed quickly and did not

develop the many auto immune diseases that can come later after the immune

system has been down so long. If someone already has a wrecked thyroid,

candida, leaky gut, heart problems, sjogren's, etc, etc, and then after 10

years gets a diagnosis of lyme I think the antibiotics is not going to cure

any of the other problems, if they did then they would be the treatment of

choice for these diseases but they are not.I would like to hear from the

people who took the antibiotics for 2 years did nothing else and see how

they are doing in a few year, or even now.

-- [ ] Re: antibiotics and recovery

Sorry, have to add one more addendum. Hyperbaric chambers don't

always fall short.

It seems very individual. who posts here sometimes--she and

hubby did 3 mos of rocephin, as I recall, and then switched to

hyperbaric and are doing really well.

A few patients treated in Great Barrington when I was--did really

longterm hyperbaric and got much better. One did hyperbaric only (no

abx no supplements) for maybe 4 months as I recall, then twice a week

for 45 minutes for another YEAR. SHe improved greatly, according to

the doc, and has held steady.

I don't like rife at all for myself, but others claim to be well.

It really is all over the map, and inaccurate to say abx don't work

for many, or hyperbaric for some, or rife for some etc.

October 13, 2005

I think it's great that you believe your systom works, but that

doesn't mean that we're interested. It's ok to put it out there and

we can decide for ourselves, but it seems like you just keep going

on and on about it. What works for one person may not work for the

next!!!

Kathy

>

> That is great I am glad to hear many are recovering from lyme with

> Antibiotics. But what about the after math of being on them for

years. It is

> no different then chemo, works sometimes to kill the cancer but

the person

> is left with no immune system. I have absolutely nothing against

using

> antibiotics I did use them for years. I have since learned that if

you are

> going to work against the body then you better be working with it

also. I

> think because so many are misdiagnosed and given meds for

different drugs it

> is just to hard to say one thing works, one thing does not. The

people that

> get well with 2 years of abx may have been diagnosed quickly and

did not

> develop the many auto immune diseases that can come later after

the immune

> system has been down so long. If someone already has a wrecked

thyroid,

> candida, leaky gut, heart problems, sjogren's, etc, etc, and then

after 10

> years gets a diagnosis of lyme I think the antibiotics is not

going to cure

> any of the other problems, if they did then they would be the

treatment of

> choice for these diseases but they are not.I would like to hear

from the

> people who took the antibiotics for 2 years did nothing else and

see how

> they are doing in a few year, or even now.

>

> -- [ ] Re: antibiotics and recovery

>

> Sorry, have to add one more addendum. Hyperbaric chambers don't

> always fall short.

>

> It seems very individual. who posts here sometimes--she and

> hubby did 3 mos of rocephin, as I recall, and then switched to

> hyperbaric and are doing really well.

>

> A few patients treated in Great Barrington when I was--did really

> longterm hyperbaric and got much better. One did hyperbaric only

(no

> abx no supplements) for maybe 4 months as I recall, then twice a

week

> for 45 minutes for another YEAR. SHe improved greatly, according

to

> the doc, and has held steady.

>

> I don't like rife at all for myself, but others claim to be well.

>

> It really is all over the map, and inaccurate to say abx don't

work

> for many, or hyperbaric for some, or rife for some etc.

>

October 13, 2005

Its not " my system " it is the system of the body, ignore it if you want.

What makes you think you speak for everyone on this forum when you say your

not interested. I have people contact me every day. I go on and on because

people who are sick and have major brain fog don't remember and also don't

get alot of things until they hear it many times. If you are offended by my

posts you can delete them as soon as you see my name. GIna

-- [ ] Re: antibiotics and recovery

I think it's great that you believe your systom works, but that

doesn't mean that we're interested. It's ok to put it out there and

we can decide for ourselves, but it seems like you just keep going

on and on about it. What works for one person may not work for the

next!!!

Kathy

October 13, 2005

I tend to think that Meg did not get a highly pathogenic strain of

lyme, and that those of us who got really sick have, like

Wells (ya ya) coinfections and highly pathogenic multiple strains.

> I really don't think this is true--and I'm one who can't take

> antibiotics, but--I listened to the LIterati With Lyme Video or

> rather, watched it online last night. Amy Tan is fine now--after 2

> years of abx--she went to China, came back with one day of jetlag

> etc. Jordan is also much better and was on book tour at the

> time, and Meg Cabot seemed to have had a relatively light case

anyway

> and recovered easily on antibiotics.

>

> Lyme Disease - read the latest news and personal stories

http://lymeblog.com

>

October 13, 2005

-:

It is

> no different then chemo, works sometimes to kill the cancer but the

person

> is left with no immune system. "

Again, I " m not a fan of drugs, but this is a completely inaccurate

statement. It depends on the type of chemo, the person's immune

system and how aggressive their cancer is, and in fact, chemo does

damage some human cells and antibiotics are not like chemo, some

people handle them quite well and the main problem are other

superinfections such as fungal, and dysbiosis etc.

There is a wide spectrum of responses to drugs, a lot of it depends

on your genes, your other infections, your specific p450 substrates

in your liver, as to how you metabolize idfferent drugs etc.

You write:

> " The people that

> get well with 2 years of abx may have been diagnosed quickly and

did not

> develop the many auto immune diseases that can come later after the

immune

> system has been down so long. "

AMy Tan was sick for 4 years undiagnosed (watch the video) and very

ill...I think Jordan Fisher went undiagnosed for several years and

was almost nonfunctional for a while.

Again, it depends on how pathogenic the strains are, if you have

multiple coinfections, how many times you were bit, your genetics etc.

" I would like to hear from the

> people who took the antibiotics for 2 years did nothing else and

see how

> they are doing in a few year, or even now. "

I think what you're saying is you don't believe they got well.

As I said, I'm not a fan of abx for myself they're not good, but I do

believe many if not most get well on them and handle them pretty well.

There's nothing wrong with something helping you, the problem is

generalizing as to the reasons it helped you, the reasons other

things won't help others, and deriding everything else from

hyperbaric to rife to antibiotics as either damaging or only

adjunctive and that's just not always the case. WHy do you have to be

so global about it. Compare it to religion. There are many paths and

no path is exclusively right.

October 13, 2005

Boy, that is really strident in tone.

Why are you so aggressive?

>

> Its not " my system " it is the system of the body, ignore it if you

want.

> What makes you think you speak for everyone on this forum when you

say your

> not interested. I have people contact me every day. I go on and on

because

> people who are sick and have major brain fog don't remember and

also don't

> get alot of things until they hear it many times. If you are

offended by my

> posts you can delete them as soon as you see my name. GIna

>

> -- [ ] Re: antibiotics and recovery

>

> I think it's great that you believe your systom works, but

that

> doesn't mean that we're interested. It's ok to put it out there

and

> we can decide for ourselves, but it seems like you just keep going

> on and on about it. What works for one person may not work for the

> next!!!

>

> Kathy

>

October 13, 2005

-------Original Message-------

From: jill1313

Again, I " m not a fan of drugs, but this is a completely inaccurate

statement. It depends on the type of chemo, the person's immune

system and how aggressive their cancer is, and in fact, chemo does

damage some human cells and antibiotics are not like chemo, some

people handle them quite well and the main problem are other

superinfections such as fungal, and dysbiosis etc.

*****My comparison was merely stating like chemo kills good and bad cells,

antiobitoics kills *****good and bad bacteria, that is my only comparison,

There is a wide spectrum of responses to drugs, a lot of it depends

on your genes, your other infections, your specific p450 substrates

in your liver, as to how you metabolize idfferent drugs etc.

*****None of this affects the fact that chemo kills good cells and abx kills

good bacteria,

I think what you're saying is you don't believe they got well.

***** I am saying I don't beleive they took abx for 2 years and just walked

away perfectly *****healthy, no bowel problems, no candida, leaky gut, etc.

After someone has suffered the *****terrible effects of lyme, living with

these things may seem trivial but for some it is *****misery.

As I said, I'm not a fan of abx for myself they're not good, but I do

believe many if not most get well on them and handle them pretty well.

***** I guess I have not heard the positive, uplifting posts from people

that you have, most

***** the people I know locally and on these forum are sick, really, really

sick and have

***** to swtich to other abx, and some just cannot tolerate at all of course

some people can

*****tolerate them, but if they had a choice I think they would chose not to

take them.

There's nothing wrong with something helping you, the problem is

generalizing as to the reasons it helped you, the reasons other

things won't help others, and deriding everything else from

hyperbaric to rife to antibiotics as either damaging or only

adjunctive and that's just not always the case. WHy do you have to be

so global about it. Compare it to religion. There are many paths and

no path is exclusively right.

*****I never said ABX would not help others, I have been trying to make the

point that the

***** body has many needs, even if you never have lyme , it has needs, when

you are sick and

*****taking drugs the needs increase, these are facts, not generalizations.

I also did not

***** say that rife and hyperbaric would not help, but alone I just don't

believe they will

*****fix the damage that has already been done. I am talking late stage lyme

and have been

***** this whole time, because as time marches on, so do more and more

systems start to fail.

**** We can agree on your last statement, and what ever path people chose

they are hoping to

**** end up healed, but it just does not seem to be the case with too many.

October 13, 2005

You misread me through the email, it is not aggression but passion mixed

with frustration. If you knew me in person you would not question why I am

that way, I have always been passionate about anything I feel is important.

For instance I am a horse trainer, riding instructor. I have been teaching

and training 17 years, riding my whole life. I have some pretty strong

opinions on how horses should be treated and how people should act around

them. People will tell you there are many ways to train horses also, but if

you ask the horse he'll tell you which way he prefers. I get very frustrated

when I have to watch an animal suffer at the hands of someone who thinks

they know how to do things, but really don't. I wonder if we asked our body

what treatment it preferred, would it chose necessary nutrients, or drugs??

-- [ ] Re: antibiotics and recovery

Boy, that is really strident in tone.

Why are you so aggressive?

>

> Its not " my system " it is the system of the body, ignore it if you

want.

> What makes you think you speak for everyone on this forum when you

say your

> not interested. I have people contact me every day. I go on and on

because

> people who are sick and have major brain fog don't remember and

also don't

> get alot of things until they hear it many times. If you are

offended by my

> posts you can delete them as soon as you see my name. GIna

>

> -------Original Message-------

>

October 13, 2005

" I love you my brother

whoever you are

whether you worship in your church,

kneel in your temple,

or pray in your mosque.

You and I are all children of one faith,

for the diverse paths of religion

are fingers of the loving hand of

one Supreme Being,

a hand extended to all,

offering completeness of spirit to all,

eager to receive all. "

Kahlil Gibran

jill1313 <jenbooks13@...> wrote:

Compare it to religion. There are many paths and

no path is exclusively right.

Lyme Disease - read the latest news and personal stories http://lymeblog.com

October 13, 2005

That's beautiful.

I never would have thought I'd be reading and liking Eckhart Tolle's

The Power of Now, but indeed I am. A guy at my holistic doc's said it

changed his life, and this guy is pretty cool, so I got it, and I

think its really quite good.

> Compare it to religion. There are many paths and

> no path is exclusively right.

>

> Lyme Disease - read the latest news and personal stories

http://lymeblog.com

>

October 13, 2005

> I think it's great that you believe your systom works, but that

doesn't mean that we're interested. It's ok to put it out there

and we can decide for ourselves, but it seems like you just keep going

on and on about it. >

Kathy,

I'm new here and although I've been lurking for a couple of months, my

time online was curtailed recently, so I hadn't ever read about 's

system. When she alluded to it in a recent post, I posted to her and

ASKED her specifically to post it again, acknowledging that she had

probably posted about it before. She e-mailed me privately with the

information, which I plan to read in the a.m. when my mind is clear.

So she knew that I was interested...just so you know, she was asked.

peace,

October 13, 2005

I am a personal friend of Jordon . Please do not post information

about his health, especially when it is not accurate! If you are truly

interested in how he is doing now I will ask him to send a note to this list

to explain his continued problems.

Please be careful when posting about individuals. It's best to let them

speak for themselves.

Robynn

[ ] Re: antibiotics and recovery

I really don't think this is true--and I'm one who can't take

antibiotics, but--I listened to the LIterati With Lyme Video or

rather, watched it online last night. Amy Tan is fine now--after 2

years of abx--she went to China, came back with one day of jetlag

etc. Jordan is also much better and was on book tour at the

time, and Meg Cabot seemed to have had a relatively light case anyway

and recovered easily on antibiotics.

October 15, 2005

Trumpy,

I can tell you that my wife, son and I have all done GREAT on

antibiotics using supplements to balance the treatment. My wife and I

use Ceftin and my son (16 months) is on Amoxicillan.

My wife has been cleared of Lyme from the doctors tests and she has

had no symptoms in over 2 months. She was taken off of the abx last

week. She is feeling very good now.

I have been feeling well for the past 2 months and I just heard from

my doctor that I will probably be off of the abx in another 4 weeks,

if all goes well. I have been feeling great and my doctor says my

tests are showing a dramatic improvement.

My son has been on abx since June and he is doing great. No major

symptoms and he is bright eyed and full of energy.

Be sure to take your abx as prescribed and with food if directed.

Always drink a lot of water. That's just good health advice. Water

cleanses so much in our body's.

My son and wife had minor symptoms, I had major symptoms. But now it

seems that we are at the end of our treatments and can finally see the

light of been well again!

We are under the care of a GREAT LLMD and use a Naturopathic doctor to

advise us on the correct supplements to balance the abx treatments. I

would recommend getting to the best LLMD you can find and seeing a

Naturopathic doctor to round out your treatment.

As we all know, everyone of us is different and there are no " cookie

cutter " answers for this disease. You must get to the best doctors

that you can and let them treat you as an individual. Hold them

accountable. You should see some progress every 3 months. If not

question them and have them change your treatment until you start to

feel better. One treatment does not cure everyone, it takes time and

perhaps many different types of treatments. But I feel that we can

all recover from this disease. I know because I had it bad and I

believe I had it for over 5 years without being diagnosed. Now I feel

better then ever.

One other thing to remember is to treat this disease holistically.

Heal your mind, body and soul. Be sure to find a strong support group

(friends and family) and take it slow. When you start to feel better

be sure that you don't over do it or you will have a set back. Know

that in time you can recover.

Be well,

>

> has anyone in this group actually recovered fully from this disease

> and has stopped taking antibiotics? in reading the posts i only see

> examples of periods when people feel well and then relapse. any

sucess

> stories?

>

October 15, 2005

Great advice ! Glad that you and your family are recovering.

Kathy

> >

> > has anyone in this group actually recovered fully from this

disease

> > and has stopped taking antibiotics? in reading the posts i only

see

> > examples of periods when people feel well and then relapse. any

> sucess

> > stories?

> >

>

October 15, 2005

This is what we all need to hear. Thanks, .

Would you mind taking the time to post this in the forums on http://lymeblog.com

? Just cut and paste it. We have a very large readership there and it is a

more passive venue where people can gather information, like yours, and make

more informed decisions as to treatment.

I am currently without treatment my self and, when I am able to go back, I know

now what kind of LLMD I am looking for and better how to really whip this thing.

I have been fighting it for 14 years, most of the time in the incorrect manner

due to incorrect choices and misinformation by me doctors.

McGillycuddy <@...> wrote: