Guest guest Posted May 22, 2006 Report Posted May 22, 2006 I have received over a dozen messages recently concerning Dr 's hearings. The messages have different information, different directions, and different requirements AND they are from a variety of people. Many messages I have not sent through to Lyme Aid because I believe wrong information at this critical time will hurt and not help Dr . Months ago an email came out saying only Ellen ellenluba@... would be sending official updates about Dr 's situation. (Ellen has not posted to Lyme Aid for quite some time.) Has that changed? Are multiple people now sending out the official statements from Dr 's office? And who is releasing the critical information from Dr ? I would feel better sending messages through if there was only one contact person as originally directed or if Dr would email me directly with his multiple representatives. (It may not need to be said, but anything Dr personally asks me to send I will send without hesitation.) There has been too much confusion over such an important issue to allow multiple contradictory messages to continue to go through Lyme Aid. Is it possible for Dr to work with the leadership of a known Lyme disease support organization to get out needed information? Many leaders and/or presidents of support organizations are members of Lyme Aid, I'm sure any one of them would be willing to take on this responsibility to communicate with Dr and let us know what he needs. Lyme Aid has over 1400 members who would like to help, but we could better serve if we received accurate information in a timely fashion. Please advise. Robynn -owner Quote
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