Need a Pep-talk or some advice about my treatment!

[Guest guest]

I am losing my confidence in my Lyme treatment and need some positive

re-enforcement from others that the treatment has worked for, if it

has. I am on 400 doxycyline and have had Lyme for probably alot of

years before recently being diagnosed. All my symptoms are

neuropsychiatric, anxiety, depression, brainfog, fatigue etc and I

need to be reassured that oral doxycline will work for that and how

long on average I should expect it to take for some improvement.

Thanks so much

[Guest guest]

>

> I am losing my confidence in my Lyme treatment and need some positive

> re-enforcement from others that the treatment has worked for, if it

> has. I am on 400 doxycyline and have had Lyme for probably alot of

> years before recently being diagnosed. All my symptoms are

> neuropsychiatric, anxiety, depression, brainfog, fatigue etc and I

> need to be reassured that oral doxycline will work for that and how

> long on average I should expect it to take for some improvement.

> Thanks so much

>

SEAN,

I FELT BETTER AFTER 5 MONTHS OF TREATMENT WITH DOXY, I WENT OFF IT AND

GOT VERY SICK AGAIN SOON AFTER. I ALSO NEEDED TO FIND A LYME LITERATE

DR BECAUSE I KEPT HEARING AND READING ABOUT LYME CO-INFECTIONS AND

THAT SOME OF THE CO-INFECTIONS, MAINLY BABESIA, HAS TO BE TREATED

BEFORE THE Bb BACTERIA. IT TOOK 3-1/2 YEARS BEFORE I FOUND A TRUE

LLMD. SHE TESTED ME FOR SEVERAL CO-INFECTIONS. I WAS GIVEN A BLOOD

TEST FOR BABESIA, BUT IT WAS NEGATIVE. AFTER REVIEWING MY SYMPTOMS SHE

GAVE A CLINICAL DIAGNOSIS AND STARTED TREATMENT RIGHT AWAY. I TESTED

POSITIVE FOR EHRLICHIA AND BARTENELLA.

DO YOU HAVE A LYME LITERATE DR? HAVE YOU BEEN TESTED FOR

CO-INFECTIONS? REALLY IMPORTANT!! YOU DON'T WANT TO BE IN DENIAL ABOUT

CO-INFECTIONS, THEY ARE COMMON. A LYME LITERATE DR WILL KNOW ALL ABOUT

THE CO-INFECTIONS AND WILL TEST YOU OR ASK APPROPERIATE QUESTIONS

ABOUT YOUR SYMPTOMS. A GOOD LLMD WILL SEE BABESIA SYMPTOMS WITHOUT

NEEDING TO DO BLOOD WORK. THERE ARE OVER 30 DIFFERENT STRAINS OF

BABESIA AND BLOOD TESTS FOR ONLY TWO. A CLINICAL DIAGNOSIS WILL BE

MADE BY A GOOD LLMD.

PLEASE CHECK OUT THE BURRASCANO REPORT AT ILADS.ORG IT IS A

COMPREHESIVE REPORT ON CURRENT LYME FINDINGS AND TREATMENTS. COVERS

CO-INFECTIONS AND MEDICATIONS, NUTRITION AND MUCH CURRENT RESEARCH

FINDINGS. HE IS AN AMAZING LYME LITERATE DR, CONFERENCE SPEAKER AND

ADVICATE FOR EDUCATIONG DRS AND LYME PATIENTS. GO TO ILADS.ORG CLICK

ON ARTICALS AND PRESENTATIONS, YOU WILL SEE DR JOSEPH BURRASCANOS

NAME. CLICK ON THAT AND THE REPORT WILL COME UP.

HANG IN THERE AND KEEP RESEARCHING AND ASKING QUESTIONS.

[Guest guest]

sean

I too had severe neuro lyme....the dose that you are on may be to small,also I

would try to switch to minocycline as it crosses the bbb readily....mino is far

the best I have used...you will herx very badily on this med....

it takes years to see results with all the meds.. first we kill the bacteria

and then the body rebuilds...then we kill the bacteria again as it cannot be

killed quickly...I was like you and after two years my functions are starting to

come back....I also just came back from a great vacation and my life has now

been changed for the normal....

it does get better...

eric

highlandave98 <seanmiller1@...> wrote:

I am losing my confidence in my Lyme treatment and need some positive

re-enforcement from others that the treatment has worked for, if it

has. I am on 400 doxycyline and have had Lyme for probably alot of

years before recently being diagnosed. All my symptoms are

neuropsychiatric, anxiety, depression, brainfog, fatigue etc and I

need to be reassured that oral doxycline will work for that and how

long on average I should expect it to take for some improvement.

Thanks so much

[Guest guest]

what are the babesia symptoms?

[Guest guest]

does doxy cross the bbb?

In a message dated 2/26/2006 2:23:05 P.M. Eastern Standard Time,

eric_s11050@... writes:

sean

I too had severe neuro lyme....the dose that you are on may be to small,also

I would try to switch to minocycline as it crosses the bbb readily....mino

is far the best I have used...you will herx very badily on this med....

it takes years to see results with all the meds.. first we kill the bacteria

and then the body rebuilds...then we kill the bacteria again as it cannot be

killed quickly...I was like you and after two years my functions are

starting to come back....I also just came back from a great vacation and my

life has

now been changed for the normal....

it does get better...

eric

[Guest guest]

Thanks that was really helpful advice. I am negative for Babesia and

being checked for Bartonella. Were your symtpoms neuropsychiatric in

nature when you got better from Doxy. I know doxy works but wonder

if anyone gets better using it for Neuropsychiatirc lyme? Did it

help you with anxiety depression, brainfog, memory etc...? Based on

my symptoms it is unlikely I have Babesia but possibly Bartonella.

Thanks

> >

> > I am losing my confidence in my Lyme treatment and need some

positive

> > re-enforcement from others that the treatment has worked for, if

it

> > has. I am on 400 doxycyline and have had Lyme for probably alot

of

> > years before recently being diagnosed. All my symptoms are

> > neuropsychiatric, anxiety, depression, brainfog, fatigue etc

and I

> > need to be reassured that oral doxycline will work for that and

how

> > long on average I should expect it to take for some improvement.

> > Thanks so much

> >

> SEAN,

> I FELT BETTER AFTER 5 MONTHS OF TREATMENT WITH DOXY, I WENT OFF IT

AND

> GOT VERY SICK AGAIN SOON AFTER. I ALSO NEEDED TO FIND A LYME

LITERATE

> DR BECAUSE I KEPT HEARING AND READING ABOUT LYME CO-INFECTIONS AND

> THAT SOME OF THE CO-INFECTIONS, MAINLY BABESIA, HAS TO BE TREATED

> BEFORE THE Bb BACTERIA. IT TOOK 3-1/2 YEARS BEFORE I FOUND A TRUE

> LLMD. SHE TESTED ME FOR SEVERAL CO-INFECTIONS. I WAS GIVEN A BLOOD

> TEST FOR BABESIA, BUT IT WAS NEGATIVE. AFTER REVIEWING MY SYMPTOMS

SHE

> GAVE A CLINICAL DIAGNOSIS AND STARTED TREATMENT RIGHT AWAY. I

TESTED

> POSITIVE FOR EHRLICHIA AND BARTENELLA.

> DO YOU HAVE A LYME LITERATE DR? HAVE YOU BEEN TESTED FOR

> CO-INFECTIONS? REALLY IMPORTANT!! YOU DON'T WANT TO BE IN DENIAL

ABOUT

> CO-INFECTIONS, THEY ARE COMMON. A LYME LITERATE DR WILL KNOW ALL

ABOUT

> THE CO-INFECTIONS AND WILL TEST YOU OR ASK APPROPERIATE QUESTIONS

> ABOUT YOUR SYMPTOMS. A GOOD LLMD WILL SEE BABESIA SYMPTOMS WITHOUT

> NEEDING TO DO BLOOD WORK. THERE ARE OVER 30 DIFFERENT STRAINS OF

> BABESIA AND BLOOD TESTS FOR ONLY TWO. A CLINICAL DIAGNOSIS WILL BE

> MADE BY A GOOD LLMD.

> PLEASE CHECK OUT THE BURRASCANO REPORT AT ILADS.ORG IT IS A

> COMPREHESIVE REPORT ON CURRENT LYME FINDINGS AND TREATMENTS. COVERS

> CO-INFECTIONS AND MEDICATIONS, NUTRITION AND MUCH CURRENT RESEARCH

> FINDINGS. HE IS AN AMAZING LYME LITERATE DR, CONFERENCE SPEAKER AND

> ADVICATE FOR EDUCATIONG DRS AND LYME PATIENTS. GO TO ILADS.ORG

CLICK

> ON ARTICALS AND PRESENTATIONS, YOU WILL SEE DR JOSEPH BURRASCANOS

> NAME. CLICK ON THAT AND THE REPORT WILL COME UP.

> HANG IN THERE AND KEEP RESEARCHING AND ASKING QUESTIONS.

>

[Guest guest]

Thanks . Did you ever use IV antibiotics, if so for how long. It

scares me that it took you years to feel any better. Did you get any

relief from the depression/anxiety in the first few months. I don't

think I could handle feeling this bad for two years.

> I am losing my confidence in my Lyme treatment and need some

positive

> re-enforcement from others that the treatment has worked for, if

it

> has. I am on 400 doxycyline and have had Lyme for probably alot of

> years before recently being diagnosed. All my symptoms are

> neuropsychiatric, anxiety, depression, brainfog, fatigue etc and

I

> need to be reassured that oral doxycline will work for that and

how

> long on average I should expect it to take for some improvement.

> Thanks so much

>

>

[Guest guest]

doxy does cross at higher doses of 400 to 600 mgs a day....

eric

ps for me doxy worked much better then rochephin...

beaugeored@... wrote:

does doxy cross the bbb?

In a message dated 2/26/2006 2:23:05 P.M. Eastern Standard Time,

eric_s11050@... writes:

sean

I too had severe neuro lyme....the dose that you are on may be to small,also

I would try to switch to minocycline as it crosses the bbb readily....mino

is far the best I have used...you will herx very badily on this med....

it takes years to see results with all the meds.. first we kill the bacteria

and then the body rebuilds...then we kill the bacteria again as it cannot be

killed quickly...I was like you and after two years my functions are

starting to come back....I also just came back from a great vacation and my

life has

now been changed for the normal....

it does get better...

eric

[Guest guest]

sean

You must not worry about how you will fell...you must get to know the herx

feeling and get on with your life....then you will feel better when the time

comes...you cannot rush this....you are on the right path and stop

worrying...the anxiety will clear as will the depression....it takes along time

to clear the inflamation around your body...doxy works very well....trust me!

eric

highlandave98 <seanmiller1@...> wrote:

Thanks . Did you ever use IV antibiotics, if so for how long. It

scares me that it took you years to feel any better. Did you get any

relief from the depression/anxiety in the first few months. I don't

think I could handle feeling this bad for two years.

[Guest guest]

What was your first and second type of IV? Do you think the depression was

from the iv, or the feeling ill and sick from the healing process, or???

In a message dated 2/27/2006 1:46:31 P.M. Eastern Standard Time,

brntcooky_2000@... writes:

Hi Dave,

You will feel a variety of symptoms as your body heals from lyme.

One of my biggest problems is depression and I am now taking prozac

successfully and not in such a panic. Who knows if it will last.

That's something that I think all lyme patients will agree...just

wait, your symptoms will change. I was very ill for the first 5

months of antibiotic treatment. The doc changed my antibiotics and

am functioning better now. Keep talking to your doctor and telling

them what is happening. Keep writing to us and talking so you know

that its completely expected to get depressed, etc. Are you taking

magnesium? Thats once of the minerals that is depleted by lyme.

Be well, and write to us when you get uncomfortable,

cooky

> > I am losing my confidence in my Lyme treatment and need some

> positive

> > re-enforcement from others that the treatment has worked for, if

> it

> > has. I am on 400 doxycyline and have had Lyme for probably alot

of

> > years before recently being diagnosed. All my symptoms are

> > neuropsychiatric, anxiety, depression, brainfog, fatigue etc

and

> I

> > need to be reassured that oral doxycline will work for that and

> how

> > long on average I should expect it to take for some improvement.

> > Thanks so much

> >

> >

>

[Guest guest]

> > >

> > > I am losing my confidence in my Lyme treatment and need some

> positive

> > > re-enforcement from others that the treatment has worked for, if

> it

> > > has. I am on 400 doxycyline and have had Lyme for probably alot

> of

> > > years before recently being diagnosed. All my symptoms are

> > > neuropsychiatric, anxiety, depression, brainfog, fatigue etc

> and I

> > > need to be reassured that oral doxycline will work for that and

> how

> > > long on average I should expect it to take for some improvement.

> > > Thanks so much

> > >

> > SEAN,

> > I FELT BETTER AFTER 5 MONTHS OF TREATMENT WITH DOXY, I WENT OFF IT

> AND

> > GOT VERY SICK AGAIN SOON AFTER. I ALSO NEEDED TO FIND A LYME

> LITERATE

> > DR BECAUSE I KEPT HEARING AND READING ABOUT LYME CO-INFECTIONS AND

> > THAT SOME OF THE CO-INFECTIONS, MAINLY BABESIA, HAS TO BE TREATED

> > BEFORE THE Bb BACTERIA. IT TOOK 3-1/2 YEARS BEFORE I FOUND A TRUE

> > LLMD. SHE TESTED ME FOR SEVERAL CO-INFECTIONS. I WAS GIVEN A BLOOD

> > TEST FOR BABESIA, BUT IT WAS NEGATIVE. AFTER REVIEWING MY SYMPTOMS

> SHE

> > GAVE A CLINICAL DIAGNOSIS AND STARTED TREATMENT RIGHT AWAY. I

> TESTED

> > POSITIVE FOR EHRLICHIA AND BARTENELLA.

> > DO YOU HAVE A LYME LITERATE DR? HAVE YOU BEEN TESTED FOR

> > CO-INFECTIONS? REALLY IMPORTANT!! YOU DON'T WANT TO BE IN DENIAL

> ABOUT

> > CO-INFECTIONS, THEY ARE COMMON. A LYME LITERATE DR WILL KNOW ALL

> ABOUT

> > THE CO-INFECTIONS AND WILL TEST YOU OR ASK APPROPERIATE QUESTIONS

> > ABOUT YOUR SYMPTOMS. A GOOD LLMD WILL SEE BABESIA SYMPTOMS WITHOUT

> > NEEDING TO DO BLOOD WORK. THERE ARE OVER 30 DIFFERENT STRAINS OF

> > BABESIA AND BLOOD TESTS FOR ONLY TWO. A CLINICAL DIAGNOSIS WILL BE

> > MADE BY A GOOD LLMD.

> > PLEASE CHECK OUT THE BURRASCANO REPORT AT ILADS.ORG IT IS A

> > COMPREHESIVE REPORT ON CURRENT LYME FINDINGS AND TREATMENTS. COVERS

> > CO-INFECTIONS AND MEDICATIONS, NUTRITION AND MUCH CURRENT RESEARCH

> > FINDINGS. HE IS AN AMAZING LYME LITERATE DR, CONFERENCE SPEAKER AND

> > ADVICATE FOR EDUCATIONG DRS AND LYME PATIENTS. GO TO ILADS.ORG

> CLICK

> > ON ARTICALS AND PRESENTATIONS, YOU WILL SEE DR JOSEPH BURRASCANOS

> > NAME. CLICK ON THAT AND THE REPORT WILL COME UP.

> > HANG IN THERE AND KEEP RESEARCHING AND ASKING QUESTIONS.

> >

>

[Guest guest]

Hi Dave,

You will feel a variety of symptoms as your body heals from lyme.

One of my biggest problems is depression and I am now taking prozac

successfully and not in such a panic. Who knows if it will last.

That's something that I think all lyme patients will agree...just

wait, your symptoms will change. I was very ill for the first 5

months of antibiotic treatment. The doc changed my antibiotics and

am functioning better now. Keep talking to your doctor and telling

them what is happening. Keep writing to us and talking so you know

that its completely expected to get depressed, etc. Are you taking

magnesium? Thats once of the minerals that is depleted by lyme.

Be well, and write to us when you get uncomfortable,

cooky

> > I am losing my confidence in my Lyme treatment and need some

> positive

> > re-enforcement from others that the treatment has worked for, if

> it

> > has. I am on 400 doxycyline and have had Lyme for probably alot

of

> > years before recently being diagnosed. All my symptoms are

> > neuropsychiatric, anxiety, depression, brainfog, fatigue etc

and

> I

> > need to be reassured that oral doxycline will work for that and

> how

> > long on average I should expect it to take for some improvement.

> > Thanks so much

> >

> >

>

[Guest guest]

highlandave98 wrote:

> Were your symtpoms neuropsychiatric in

> nature when you got better from Doxy. I know doxy works but wonder

> if anyone gets better using it for Neuropsychiatirc lyme?

I found that I got better and better, with diminishing neuro symptoms taking

either doxy and Flagyl or biaxin and Flagyl.

My body didn't tolerate the flagyl well, so I would only take it 2 days a

week. But it helped a lot.

Now my body won't tolerate antibiotics at all. The irritate every cell in

my body, it seems, including my brain.

Now, my doctor has me following at least some of the Buhner protocol,

flucanozole, samento (cat's claw), and resveratrol and I think I'm beginning

to notice a bit of an improvement.

Good luck! Never give up.

Deanna

[Guest guest]

Thanks for your info that is great the Dxoy works and I hope you are

getting better these days on Abx that are working for you. I have

already taken the Burrrascano quiz and it helped alot. I am now

checking for co-infections but that was good advice.

> > > >

> > > > I am losing my confidence in my Lyme treatment and need some

> > positive

> > > > re-enforcement from others that the treatment has worked

for, if

> > it

> > > > has. I am on 400 doxycyline and have had Lyme for probably

alot

> > of

> > > > years before recently being diagnosed. All my symptoms are

> > > > neuropsychiatric, anxiety, depression, brainfog, fatigue

etc

> > and I

> > > > need to be reassured that oral doxycline will work for that

and

> > how

> > > > long on average I should expect it to take for some

improvement.

> > > > Thanks so much

> > > >

> > > SEAN,

> > > I FELT BETTER AFTER 5 MONTHS OF TREATMENT WITH DOXY, I WENT

OFF IT

> > AND

> > > GOT VERY SICK AGAIN SOON AFTER. I ALSO NEEDED TO FIND A LYME

> > LITERATE

> > > DR BECAUSE I KEPT HEARING AND READING ABOUT LYME CO-INFECTIONS

AND

> > > THAT SOME OF THE CO-INFECTIONS, MAINLY BABESIA, HAS TO BE

TREATED

> > > BEFORE THE Bb BACTERIA. IT TOOK 3-1/2 YEARS BEFORE I FOUND A

TRUE

> > > LLMD. SHE TESTED ME FOR SEVERAL CO-INFECTIONS. I WAS GIVEN A

BLOOD

> > > TEST FOR BABESIA, BUT IT WAS NEGATIVE. AFTER REVIEWING MY

SYMPTOMS

> > SHE

> > > GAVE A CLINICAL DIAGNOSIS AND STARTED TREATMENT RIGHT AWAY. I

> > TESTED

> > > POSITIVE FOR EHRLICHIA AND BARTENELLA.

> > > DO YOU HAVE A LYME LITERATE DR? HAVE YOU BEEN TESTED FOR

> > > CO-INFECTIONS? REALLY IMPORTANT!! YOU DON'T WANT TO BE IN

DENIAL

> > ABOUT

> > > CO-INFECTIONS, THEY ARE COMMON. A LYME LITERATE DR WILL KNOW

ALL

> > ABOUT

> > > THE CO-INFECTIONS AND WILL TEST YOU OR ASK APPROPERIATE

QUESTIONS

> > > ABOUT YOUR SYMPTOMS. A GOOD LLMD WILL SEE BABESIA SYMPTOMS

WITHOUT

> > > NEEDING TO DO BLOOD WORK. THERE ARE OVER 30 DIFFERENT STRAINS

OF

> > > BABESIA AND BLOOD TESTS FOR ONLY TWO. A CLINICAL DIAGNOSIS

WILL BE

> > > MADE BY A GOOD LLMD.

> > > PLEASE CHECK OUT THE BURRASCANO REPORT AT ILADS.ORG IT IS A

> > > COMPREHESIVE REPORT ON CURRENT LYME FINDINGS AND TREATMENTS.

COVERS

> > > CO-INFECTIONS AND MEDICATIONS, NUTRITION AND MUCH CURRENT

RESEARCH

> > > FINDINGS. HE IS AN AMAZING LYME LITERATE DR, CONFERENCE

SPEAKER AND

> > > ADVICATE FOR EDUCATIONG DRS AND LYME PATIENTS. GO TO ILADS.ORG

> > CLICK

> > > ON ARTICALS AND PRESENTATIONS, YOU WILL SEE DR JOSEPH

BURRASCANOS

> > > NAME. CLICK ON THAT AND THE REPORT WILL COME UP.

> > > HANG IN THERE AND KEEP RESEARCHING AND ASKING QUESTIONS.

> > >

> >

>

[Guest guest]

Thanks for your support I will keep writing and keeping intouch

> > > I am losing my confidence in my Lyme treatment and need some

> > positive

> > > re-enforcement from others that the treatment has worked for,

if

> > it

> > > has. I am on 400 doxycyline and have had Lyme for probably

alot

> of

> > > years before recently being diagnosed. All my symptoms are

> > > neuropsychiatric, anxiety, depression, brainfog, fatigue etc

> and

> > I

> > > need to be reassured that oral doxycline will work for that

and

> > how

> > > long on average I should expect it to take for some

improvement.

> > > Thanks so much

> > >

> > >

> >

>