Hair Loss and LDN (DHEA/Cortisol levels?)

[Guest guest]

I know many people have already touched on this topic and have said that LDN

does NOT cause hair loss, but frankly, I am baffled.

I am well into my 6th month on LDN (started Feb. 2010) and I am still losing

mounds of hair. I started losing hair in the 2nd month when I upped the dose

to 4.5 and I have been consistently losing ever since. I decided to let it go

because I really like LDN - it's really helping my Crohn's and I don't want to

go on Humira.

I also figured, based on what others have said here,that perhaps new hair growth

might be creating a kind of " turn over effect, " that is, new hairs might be

pushing others out and therefore there is a lot of loss, (my nails do seem to

grow faster) and so I have been just staying put and taking the 4.5mg nightly.

My hair loss is very much in sync with when I started LDN - and for the record -

I have had my thyroid checked which is fine and the only other medicine I am on

is Wellbutrin. (I stopped my other Crohn's drugs in Oct.2009) I have been on

Wellbutrin for years and know for sure that it doesn't effect my hair. I have

done things to modify diet (sugar etc) and have gone through getting rid or

yeast etc....I take a good multi, extra B vitamins, 5000 biotin a day, fish oil,

Evening Primrose oil, Vit D etc... and that has not helped. I have not tried

MSM but will be starting that soon...

Today, I got my hair cut and my hair dresser (who has been cutting my hair for

years) told me that he never saw my hair looking so thin. Yikes. (And that's

after losing lots of hair from being on 6MP and other drugs.)

Afterward, I went to speak to a very knowledgeable nutritionist who thinks it

could have something to do with LDN impacting cortisol / DHEA levels (which are

put out by the adrenals.) If cortisol levels are high it could create hair

loss -- and this is not a good thing in terms of one's health overall.

So I am just putting this out there. As a woman, this is really hard to be

losing this much hair (although I know it's rough for men too) Just not sure

what I am going to do next. Get my levels of dhea/cortisol tested perhaps...

reduce my dose to 3mg and see what happens... take MSM and see if that helps...

If any of you have had a similar experience with LDN - would love to hear about

it... I really want to continue taking it.

Sorry - I didn't mean to write such a long post. (This is my first one!)

-ww

[Guest guest]

I have gone thru alot of hair loss and bad nails for years. Im on thyroid meds, I was taking bio-identical hormones , I have RA, taking alot of supplements too. Now Im off the hormones and on LDN. I noticed my nails are getting better, so Im hoping my hair will too. I have been under a huge amount of stress also. My hair breaks off, rather than falls out as much. My hair is long so breakage can be from medicines as long as 2 yrs ago! I am happy with the LDN as I have no pain at all now. Im just hoping my hair will get better. Kathy

[Guest guest]

Hi

This is my first post, too, and not entirely sure it's relevant but here goes...

I have FM/CFS (and I think for me the CFS is much worse than the FM, for the

record!).

I am not yet on LDN, but I experienced a significant hair loss over several

months around the beginning of '10.

A standard thyroid test revealed a high-normal level of TSH, but nothing else.

I did not know that cortisol could affect hair growth. Interesting. I am

either producing way too much cortisol, or reacting way too much to what I do

produce. I am just figuring this out. I feel very tense nearly all the time

(and I'm on Welbutrin, 300mg/am).

I am hoping to learn enough to make a case for my rather conservative GP to give

me an Rx for LDN.

Jaye

>

> I know many people have already touched on this topic and have said that LDN

does NOT cause hair loss, but frankly, I am baffled.

>

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[Guest guest]

Well most folks have commented on LDN resulting in increased hair and

nail growth along with healthier and stronger hair and nails. As

someone with exceedingly think hair I have not noticed an increase,

but definetly have also not noticed any loss either. My nails do seem

to grow faster, it seems like I file them down more often and I have

noticed they are stronger. I have always had rather thin and easily

frayed nails. I rarely have one fraying or ripping before I file them

down now.

I think there is a offshoot group for Fibro/CFS/ME ... you might want

to join that. They might have files and other info to help you with

your doc there.

Jaxi

On Thu, Jul 22, 2010 at 9:58 AM, uxordepp <jprocure@...> wrote:

> Hi

>

> This is my first post, too, and not entirely sure it's relevant but here

goes...

>

> I have FM/CFS (and I think for me the CFS is much worse than the FM, for the

record!).

>

> I am not yet on LDN, but I experienced a significant hair loss over several

months around the beginning of '10.

>

> A standard thyroid test revealed a high-normal level of TSH, but nothing else.

>

> I did not know that cortisol could affect hair growth.  Interesting.  I am

either producing way too much cortisol, or reacting way too much to what I do

produce.  I am just figuring this out.  I feel very tense nearly all the time

(and I'm on Welbutrin, 300mg/am).

>

> I am hoping to learn enough to make a case for my rather conservative GP to

give me an Rx for LDN.

>

> Jaye

>

>

>>

>> I know many people have already touched on this topic and have said that LDN

does NOT cause hair loss, but frankly, I am baffled.

>>

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

3 months on LDN. Glad to hear someone nails getting better. My nails are a mess ... soft, peel back, tear and snag easily, therefore short. I have said for many years if my nails ever get better then I know I am getting well. Not noticing any changes there yet, but the hair on my legs and underarms and pubic area is coming back. Having to shave my legs again ;-) or :-( I have always had a thick head of hair, other than there were times when I would loose more than normal. Not a problem now.