RE: Now I'm Worried

[Guest guest]

Tom,

Someone may have already said this, but with lyme fog I can't remember! But

you may want to download Dr. Burrascano's guidelines and take them with you

to the doctor visit. I THINK it's at ilads.org, maybe someone can correct

me if I'm wrong!

Let us know how the visit goes...

Beth

[ ] Now I'm Worried

Greetings...Thanks to everyone for the support you've given since I joined

a few days ago. I'm still trying to find my way around in this Lyme World,

and probably will for a long time to come. As I posted yesterday, I've been

feeling pretty bad since completing 20 days of Doxycycline. I woke up with

a pounding headache this AM, just as I have for the past 5 or 6 days, plus

extra weak / stiff / and sore. After some coffee and tylenol, I decided to

ask my family doctor for a 10 day supply of Doxycycline - if it wouldn't

hurt anything, I thought it might help this " herxing " thing that I'm going

through. Just to be safe, I also ran it by my new specialist's assistant

(my first appointment is on 10/7). I just got off of the phone with the

assistant - she is going to double check with the doctor. She told me that

the normal treatment for Lyme is 30 days, not 20. I let her know that (if I

have Lyme), I've had it for at least 3 years, and I didn't think 30 days of

meds was going to cure me. I also told her that I'd read where many Lyme

patients have to take anti-biotics for 6 months to 4+ years. When I

mentioned my findings to her, she told me that you shouldn't take antibiotic

pills for very long since they can damage your liver and immune system. I

asked her what she thought the Lyme was doing to my body. This sent up red

flags to me - she's the assistant, and not the doctor, who I've been assured

is Lyme literate. I'm hoping he's prepared to give me a complete

treatment - I've already had 3 years of my life on hold due to illness.

I'll keep my appointment with him on 10/7, but I'm arming myself with lots

of knowledge before the meeting. If my new doctor is like his assistant,

then I'm worried. I'm also collecting the names of Lyme specialists in PA

in case I need to see one outside of my health plan...Tom

[Guest guest]

When I mentioned my findings to her, she told me that you shouldn't take

antibiotic pills for very long since they can damage your liver and immune

system.

Its a catch 22. Let the Lyme go and it will infect and damage organs.

I would rather deal with antibiotic problems then arrythmias, mental etc

If my new doctor is like his assistant, then I'm worried. I'm also

collecting the names of Lyme specialists in PA in case I need to see one

outside of my health plan...Tom

Good idea! best of luck,

[Guest guest]

Hi Jackie,

When you say NOTHING taste good. That sounds more like a mental thing to me--that was my first thought when I read your post. We actually morn the loss of food and how we used to eat and what we ate and how we ate. This is all part of the "head" thing and sometime we have "head hunger" and you have the opposite of that--lack of anything tasting good. I would suggest that you make sure you get the 70 grams of protein a day and anything else you can force yourself to try to eat--it really is important. It may have to be mind over matter. Sip on the water all day long, you don't have to like the taste of it, but you NEED to have some food and water. You have done nothing wrong, this is just a fact of life--our minds play tricks on us. We always are so excited about dropping the weight, that NEVER once do we every consider that we may have some mental things going on in our life over the loss of the food that we use to eat and the way we use to eat and good we thought things tasted when we were overeating or eating all the wrong things.

If this does not improve I highly suggest that you go see your doctor and have them draw some blood and check your levels on everything to rule out any medical issues. It is better to be safe than sorry. This is just a trick that you mind may be playing on you. Some of us have been done this road, so do what you need to do to be healthy.

Hugs,

Suzanne

If anyone has other suggestions please jump in and say what you think. This board is all about group support.

In a message dated 4/6/2010 1:04:11 P.M. Pacific Daylight Time, jackieandgirls24@... writes:

I am 11 days post op and everyone at work keeps telling me my coloring isnt good. I feel ok a little tierd and I know I'm not "eating" (drinking) enough but I have no desire. I am trying with the water but it doesnt taist good no matter what I do. Ive tried juice gateraide water crystal light-nothing taists good. No fever and no pain but just dont feel like eating or drinking. Should I be worried?

[Guest guest]

This is normal, I am a month out and I have to make appointments to eat or else I won't eat, I still have no real hunger, that is the beauty of the sleeve. You are fine, enjoy this time, I know I am, my life no longer revolves around eating.DougSent on the TELUS Mobility network with BlackBerryFrom: "Jackie" <jackieandgirls24@...>Date: Tue, 06 Apr 2010 19:06:16 -0000< >Subject: Now I'm Worried I am 11 days post op and everyone at work keeps telling me my coloring isnt good. I feel ok a little tierd and I know I'm not " eating " (drinking) enough but I have no desire. I am trying with the water but it doesnt taist good no matter what I do. Ive tried juice gateraide water crystal light-nothing taists good. No fever and no pain but just dont feel like eating or drinking. Should I be worried?

[Guest guest]

Your advice is always so insightful Suzanne :-)

>

> Hi Jackie,

>

> When you say NOTHING taste good. That sounds more like a mental thing to

> me--that was my first thought when I read your post. We actually morn the

> loss of food and how we used to eat and what we ate and how we ate. This

> is all part of the " head " thing and sometime we have " head hunger " and you

> have the opposite of that--lack of anything tasting good. I would suggest

> that you make sure you get the 70 grams of protein a day and anything else

> you can force yourself to try to eat--it really is important. It may have to

> be mind over matter. Sip on the water all day long, you don't have to

> like the taste of it, but you NEED to have some food and water. You have

done

> nothing wrong, this is just a fact of life--our minds play tricks on us.

> We always are so excited about dropping the weight, that NEVER once do we

> every consider that we may have some mental things going on in our life over

> the loss of the food that we use to eat and the way we use to eat and good

> we thought things tasted when we were overeating or eating all the wrong

> things.

>

> If this does not improve I highly suggest that you go see your doctor and

> have them draw some blood and check your levels on everything to rule out

> any medical issues. It is better to be safe than sorry. This is just a

> trick that you mind may be playing on you. Some of us have been done this

> road, so do what you need to do to be healthy.

>

> Hugs,

> Suzanne

>

> If anyone has other suggestions please jump in and say what you think.

> This board is all about group support.

>

>

>

>

> In a message dated 4/6/2010 1:04:11 P.M. Pacific Daylight Time,

> jackieandgirls24@... writes:

>

>

>

>

> I am 11 days post op and everyone at work keeps telling me my coloring isnt

> good. I feel ok a little tierd and I know I'm not " eating " (drinking)

> enough but I have no desire. I am trying with the water but it doesnt taist

> good no matter what I do. Ive tried juice gateraide water crystal

> light-nothing taists good. No fever and no pain but just dont feel like

eating or

> drinking. Should I be worried?

>