Re: neurological lyme anyone? any success in regaining health?

[Guest guest]

>

> ////samples will be sent to Igeinex....

Hope your husband's test is positive, but don't put all your hopes in

one test. The computer ate my first message so I'll try again. Other

labs which offer good Lyme tests include Stoney Brook Labs in Stoney

Brook, NY and MDL (Medical Diagnostic Labs). A LLMD can diagnose Lyme

based on symptoms (clincial diagnosis) without any positive lab

tests. Forget about Western Blot and ELISA tests - especially with

neuro lyme. Spinal taps aren't all that reliable either - even PCR

tests. I read somewhere that people get the rash only if their immune

system is responding and fighting the bug.

[Guest guest]

i had als like symptoms and slowly improving! im on

600 mg doxy and it is stopping i hope the

progression.so far im better..,

eric

--- J Maylott <jmaylott@...> wrote:

>

> I have nuero lyme - these are all the classic

> symptoms I've been getting

> over the years ... zithromax has helped me the most

> so far ... Wishing the

> best of luck with everything !! Jaqui

>

> Hi again for those who have read my previous

> posts...my 39 yr old

> husband goes for testing tomarrow morning for

> neurological

> lyme ////samples will be sent to Igeinex....lyme dx

> will be better

> than the ALS we received in August...has anyone here

> on this board

> had a form of the neuro lyme? what were your

> symtpoms? Our new dr

> put him on 2 types of anitbiotics for several days

> before the test

> to try and kill any lyme that might be present so it

> would be

> present in the blood stream for the lab test.... the

> first night he

> suffered severe itching and leg restlessness...night

> sweats have

> also been a problem as well as severe

> headaches....after 5 days on

> anitbiotics he feels very stiff and tired and says

> he feels like he

> has a " crawling sensation under his skin that moves

> around " I just

> ask that you all pray for the lyme dx....at least

> with that there is

> hope....als is another matter and i am not willing

> to beleive that

> is whats wrong especially after him pulling out 2

> deer ticks last

> year....cross your fingers we get the right answers

> this time around

> after several months of many different dr visits....

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

My neurological symptoms have been mostly foggy brain (SOOO frustrating),

forgetfulness (also SOOO frustrating!), confusion, and emotional tension. The

confusion is much better since my diagnosis and 10 mo. on abx and the emotional

tension is better too. I have other physical symptoms but I'd say those are my

main neurological ones. I've had the crawling sensation a few times as well.

It's gone away for now. I saw a few articles about a suspected bacteria that

might be causing that, but can't remember anything about it!

Beth

[ ] neurological lyme anyone? any success in regaining health?

Hi again for those who have read my previous posts...my 39 yr old

husband goes for testing tomarrow morning for neurological

lyme ////samples will be sent to Igeinex....lyme dx will be better

than the ALS we received in August...has anyone here on this board

had a form of the neuro lyme? what were your symtpoms? Our new dr

put him on 2 types of anitbiotics for several days before the test

to try and kill any lyme that might be present so it would be

present in the blood stream for the lab test.... the first night he

suffered severe itching and leg restlessness...night sweats have

also been a problem as well as severe headaches....after 5 days on

anitbiotics he feels very stiff and tired and says he feels like he

has a " crawling sensation under his skin that moves around " I just

ask that you all pray for the lyme dx....at least with that there is

hope....als is another matter and i am not willing to beleive that

is whats wrong especially after him pulling out 2 deer ticks last

year....cross your fingers we get the right answers this time around

after several months of many different dr visits....

Questions and/or comments can be directed to the list owner at

-Owner

[Guest guest]

In a message dated 10/19/04 4:07:39 AM, jmaylott@... writes:

>my 39 yr oldhusband goes for testing tomarrow morning for neurological

>lyme ////samples will be sent to Igeinex....lyme dx will be better

>than the ALS we received in August...has anyone here on this board

>had a form of the neuro lyme? what were your symtpoms?

Hi!

I haven't been on this forum for quite some time, but still try to follow

when I can. I had neuro Lyme as did my husband and my children. I have been

through a lot with the Lyme as everyone on this list, and because of a close

family friend introducing me to a new approach to regain our health, I have been

able to help others conquer Lyme and other disabling illnesses. I will give

you some background on our plight regarding symptoms.

My husband had encephalitis type symptoms, was shaking and didn't know

where he was. He also had severe nervousness and anxiety. He was taken by

ambulance to the hospital and they did a workup. This was in March, 1989, so it

was

quite some time ago. He received a false diagnosis of major depression, and

was hospitalized for that for several months. During that time my children

developed neuro symptoms after they had bad cases of Chickenpox and the loss of

their grandfather (my dad passed away the day after my husband was

hospitalized and the day of his funeral my daughter got the Chickenpox which my

son had

had the week before). The pediatrician said their symptoms were stress

related, but I didn't believe him. My son was sleeping endlessly for 18 hours

at a

time, or was literally bouncing off the walls with bazaars and impulsive

behavior. He was also limping. My daughter was falling a great deal and

walking

into walls. She also had short-term memory problems. Her pelvis was so

inflamed that she couldn't sit up in bed. Both of them had stiff necks and

chronic

fatigue. This was back in 1989 when my son was 11 and my daughter was 8. I

took them to my family doc who said he had been seeing a lot of Lyme at that

time. He ran some tests and they both came up high positive on a test that they

don't seem to do anymore, the IFA, but then they also were positive on the

ELISA. He referred me back to another pediatrician who hospitalized them. It

was

a rough time being a single parent with my husband in a hospital an hour away

and my children both hospitalized together. While they were in the hospital,

my husband's doc (our family doc) called me and told me that he found a Lyme

test buried under papers on his desk which said that my husband was positive

for Lyme. I was furious but he saw to it that he was put on antibiotics and

spoke to my husband's treating doctor. That explained his knee swelling and

neck pain. Last but not least, my symptoms started after their i.v. treatments

were over and I developed short-term memory loss, pain in the bottom of my

feet and a severe case of Bells Palsy. I too had a miserable stiff neck and a

feeling that my head was too heavy for my shoulders. I was put on i.v. for 28

days (rosephen was the drug of choice back then) but was pulled off after 22

days because my white count dropped. The following year, my daughter couldn't

walk and had muscle weakness in her legs. She went back into the hospital.

Anyway this saga went on for years and finally we went a different route. We

began a regimen of Sunrider Chinese Herbal Food, which a friend of mine found

out about from her cousin in CA. It didn't happen overnight, but we have all

been well since 1995 and have had our lives back. Sunrider has helped many

people with serious health challenges regain their health because it is just

the best nutrition that you can give your body.

I am not a certified nutritionist or a naturepath and I do not stock my

shelves with product for resale. I am just a person who has fought for myself

and

my family's life and have had a rough road like everyone else on this list. I

am forever grateful to the person who taught me about Sunrider and how it got

my children back in school and allowed them to grow up and have healthy

normal lives not centered on Lyme.

If you would like to contact me, you can do so by e-mail or phone. I have

unlimited long distance, so I can call you back. I have tried many things

discussed on this list and Sunrider is the only thing that has worked for me on

a

permanent basis and have worked this easily into our lives with herbal fruit

smoothies, cooking with it or just eating it right out of the packets. There is

something for everyone's lifestyle. I also have set up a website listed

below.

Rauch

Herbal Food Advisor

Sunrider Int'l

(732) 946-2216

my.sunrider.com/susanrauch

Sue Rauch