Re: orals or iv for long term lyme

[Guest guest]

Most Doctors will do oral abx first. They will not got straight to

IV in my experience. Its hard to get insurance to pay for IV but

take one step at a time.

Find out what is going on and what you have to get them to pay for

now. Don't stress yourself out.

Thats lyme wants is to gets us stressed and weak and than attack

harder.

I wish you the best of luck!!

Take Care

Abbie

> Hi-I finally rec'd a dx for lyme. I have been sick for 14 yrs and

had been dx

> with fibromyalgia. My doc is in Dallas and I had previously posted

on the

> issue of a doc being in two camps at once. Thanks to all of you

who

> responded with your thoughts. I was comforted by them while

waiting for the

> dx. But now I have to decide whether to start treatment with her

or see the

> other llmd in the Dallas area. Docs do not dx or treat in Amarillo

as far as I

> know.

>

> Do most docs start a recently dx but long time ill patient with

iv? Which ones

> seem to work for most most of the time?

>

> Also I am recently divorced after 24 years and 3 children. My

husband tired of

> this illness and went elsewhere. I am losing my health insurance

right when I

> need it most. I have signed up for a plan in his federal plan that

is cheaper but

> I am worried they will not cover 4-6 mos if iv. The insurance is

GEHA. I talked

> with a rep and she said if the iv abx are standard treatment then

it should be

> okay. The word standard bothers me in this case since there is a

dispute

> about the time of treatment with the ins companies.

>

> I could maybe stay with the federal ins my family was on-BC/BS but

it cost

> $400 per month whereas the GEHA is around $270.

>

> What does one do if the insurance doesn't cover the long term abx?

>

> Thank You All,

> Anne Todd

[Guest guest]

Anne, Dr M will use what you can get. If you have heart problems he

'may' use orals on you as you need to clear up as much of that as you can

before you do IV ( IV causes WAY to much die-off) When I was dx'ed, not

by Dr M, I did 14 days IV Rocephin then went on Doxy, that Dr told me to

find a LLMD. Dr M increased my Doxy and added Amox. Since then I have done

numerous rounds of orals and no IV, the Lyme really attacked my heart pretty

bad. I know he puts people on IV, he does taylor tx to the person and

insurance. I know that I trust him, and that is saying A LOT as I dont

trust anymore because of this **% & disease *-) Hope this helps,

[Guest guest]

If you're asking me, stay on the more expensive plan until you get this

figured out-they're probably ore likely to pay. Our doc (Houston...not

taking new patients) feels you should be on IV because of length of your

illness, particularly if you've had neuro symptoms. This is his opinion

based on his latest research (and that of some others whose research may get

out by the end of this year). You'll get lots of opinions on this...some

docs feel orals and they have reasons to share. Hard choice for patients

because none of us has the background-and even the docs don't probably know

yet. If you haven't already, read the ilads.org website front to back.

Get a copy of the Treatment Guidelines they talk about because it's a peer

reviewed description of treatment. Good luck.

[ ] orals or iv for long term lyme

Hi-I finally rec'd a dx for lyme. I have been sick for 14 yrs and had been

dx

with fibromyalgia. My doc is in Dallas and I had previously posted on the

issue of a doc being in two camps at once. Thanks to all of you who

responded with your thoughts. I was comforted by them while waiting for the

dx. But now I have to decide whether to start treatment with her or see the

other llmd in the Dallas area. Docs do not dx or treat in Amarillo as far as

I

know.

Do most docs start a recently dx but long time ill patient with iv? Which

ones

seem to work for most most of the time?

Also I am recently divorced after 24 years and 3 children. My husband tired

of

this illness and went elsewhere. I am losing my health insurance right when

I

need it most. I have signed up for a plan in his federal plan that is

cheaper but

I am worried they will not cover 4-6 mos if iv. The insurance is GEHA. I

talked

with a rep and she said if the iv abx are standard treatment then it should

be

okay. The word standard bothers me in this case since there is a dispute

about the time of treatment with the ins companies.

I could maybe stay with the federal ins my family was on-BC/BS but it cost

$400 per month whereas the GEHA is around $270.

What does one do if the insurance doesn't cover the long term abx?

Thank You All,

Anne Todd

Questions and/or comments can be directed to the list owner at

-Owner

[Guest guest]

Anne

I have had lyme for 30yrs and have been oral/IV abx for the last 5yrs. I am

still sick and on disability. Sounds like you are in the chronic lyme stage and

4-6mo. of IV abx will not make or break you (I think) When you look at the big

lyme picture, you will be dealing with this the rest of your life.

cat777spikenard <cat777spikenard@...> wrote:

Hi-I finally rec'd a dx for lyme. I have been sick for 14 yrs and had been dx

with fibromyalgia. My doc is in Dallas and I had previously posted on the

issue of a doc being in two camps at once. Thanks to all of you who

responded with your thoughts. I was comforted by them while waiting for the

dx. But now I have to decide whether to start treatment with her or see the

other llmd in the Dallas area. Docs do not dx or treat in Amarillo as far as I

know.

Do most docs start a recently dx but long time ill patient with iv? Which ones

seem to work for most most of the time?

Also I am recently divorced after 24 years and 3 children. My husband tired of

this illness and went elsewhere. I am losing my health insurance right when I

need it most. I have signed up for a plan in his federal plan that is cheaper

but

I am worried they will not cover 4-6 mos if iv. The insurance is GEHA. I talked

with a rep and she said if the iv abx are standard treatment then it should be

okay. The word standard bothers me in this case since there is a dispute

about the time of treatment with the ins companies.

I could maybe stay with the federal ins my family was on-BC/BS but it cost

$400 per month whereas the GEHA is around $270.

What does one do if the insurance doesn't cover the long term abx?

Thank You All,

Anne Todd

[Guest guest]

<<<<<Sounds like you are in the chronic lyme stage and 4-6mo. of IV abx will not

make or break you (I think) When you look at the big lyme picture, you will be

dealing with this the rest of your life. >>>>>>

Please don't sound so negative.............That isn't the big lyme picture for

all of us...You aren't necessarily dealing with this the rest of your life. I

know several that have regained there health and are functioning normally.

Some have used traditional meds, some have used alternative meds. If you keep

a positive mind set and continue to research, and seek treatment......one day

you will be well.

You don't see many on this group anymore........because when you finally whip

this bug, you don't want to really talk about it anymore.......especially when

dealing with it for many years. You leave this group and spend your time

LIVING. A few of us check in from time to time.to help others and give

hope......but most move on.

I can think of about 10 people who are doing well now.

Stay positive........

Conniek nwnj