Re: need help with understanding changes in moods and feelings

[Guest guest]

I am so sorry to hear of these symptoms in your husband.

I just returned from Connecticut where I was trying to help a woman who

also has late stage neuro-psychological Lyme. We had developed a very

close relationship over the phone, and on to subsequent visits this came to

fruition in real meeting and being together, but when I went up to help

her, there was no relationship at all. This was a very quick change and of

course, as you can imagine, difficult for me to accept. I finally could

not live with her under those conditions, considering our relationship

before this - along with the stress of dealing with psychological problems

that may be in addition to those of Lyme and pre-date her Lyme. I myself

has recovered from neuro-psych. Lyme by at least 95% - but felt that the

stress of that situation was not good for my health.

This is one example of change in relationship that I can offer. I don't

know about the " next stage " in your case - as each individual us very

different in these matters. I will say though, that some of the many

psych. meds. that she was on were also causing some of the symptoms,

especially the suicidal thought and thoughts of hurting others.

Glen Wolfsen

burg, New Jersey

At 04:20 AM 8/6/2004 +0000, you wrote:

>My husband has had lyme's disease for approximately 3 years and has

>been diagnosised with late stage lyme disease. We have went through

>many different symptoms and changes. Currently he is suffering from

>neurological difficulties with tremors. He has also had many

>different mood swings( from suicidial, depressed, angry). These are

>a challenge. He also now is having difficulty understanding how he

>feels about me, our relationship. Is this common and can some one

>help me to understand. Alot of things he use to love to do, to be

>with or just do he has no interest. What is the next phase?

>

>any support or help would be benefiscial.

>

>

>

>

>

>Questions and/or comments can be directed to the list owner

>at -Owner

>

>

[Guest guest]

I have to respond to this question. I have late stage lyme

with the mood swings, depression, tremors, etc. Although I tried

several times to go off my anti-depressants thinking of them as

a " band aid " , Dr. Bransfield, whom I saw, said that anti-depressants

actually helped to boost the immune system. He also explained to me

the difference between being depressed for a reasona nd just being

depressed (which could create reasons.) It all made sense.

Is your husband on any sort of anti-depressant? It may help if he

could see a llmd neuro-psychiatrist to prescribe something.

Lyme can hit the brain - and hit it hard. It works it's way into

the center of glands and nerves and messes everything up - hormones,

mood, nerves.

My hands periodically jerk and shake - nerves. My moods swing

like a pendulum. The anti-depressant as well as hormone tests and

treatment help because lyme toys with the pituitary gland which

regulates a whole host of other glands. I am on antibiotics. At

least on the anti-depressants I can handle the tremors and other

problems. Without the anti-depressants I'd probably kill myself -

it gets that bad.

A curious effect of lyme in the brain is what it can do to the

desire to live. At one point I reported to my doctor that although

sucide did not seem right, the feeling of caring about being alive

was gone. I had been taking the anti-depressant regularly but

something seemed to have chewed its way through them. He promptly

prescribed an antibiotic that he said " crossed the brain barrier "

seeing my feeling as a pointer as to where the lyme had gone now.

Good call. A few days later that feeling was gone.

Ask your husband's llmd if he could reccommend a doctor good in

treating neuro-psychiatric lyme, or at least prescribe an anti-

depressant.

[Guest guest]

Hello,

I can't say how lyme has affected others emotionally, but I can share what it

has done to me.

Lyme causes me to have very significant changes emotionally. So much so that

at times I believe I am a completely different person. I nearly totally avoid

being around people. I avoid them like the plaque. I feel somewhat neurotic.

Its like there is a wall, and my real feelings are on the other side of it. I no

longer feel genuine feelings of love or compassion. And yes, depression,

suicidal thoughts, and at times anger. I pretty much have become recluse.

However for me, there is one bright spot. Because I have learned to a small

degree to control the toxins causing the feelings, it gives me a chance to stop

the hell I am experiencing for just a time to remember who I am. Having this

disease, I sometimes forget who I really am underneath these feelings.

If your husband is feeling as you described, from my personal perspective, I

would say that is perfectly in line with lyme disease. And perhaps it might do

him well to try what I do to remember who I really am, if for only a time, so as

not to follow down the road of being deceived that the way you feel is who you

really are. It is not, it is the disease.

Now I realize that the degree of toxicity is different with each person. And if

he is not actively battling the disease thru either abx, herbal microbials,

rife, or another protocol, and actively detoxing, then his total load may not

yet be lowered enough for this to work.

But I simply fast. I stop eating completely except for drinking water for at

least 24 hours. About the only thing I take other than my regular supplements

would be the chlorella. This way I am getting the nutrients and still some

protein, while at the same time allowing the detox to reduce my toxic load

further. Then perhaps the second day I'll have only a salad, or anything that

has very virtually no starch, sugars, or carbs.

When I do this the toxic load is so reduced by ceasing to feed the microbes that

I almost feel normal. I truly feel like a different person and can actually

'feel' again. It's like Dr. Jeckyl and Mr. Hyde. This is a great reminder to me

that I am not my disease, and I will not let it dictate who I am.

Regarding help along these lines, I have been spending a lot of time lately

studying Dr. Koch and his Carbonyl group remedies. I have believed for

some time that the borellia bergdorferi, or any other microbe that causes a like

co-infection is not in and of itself what causes the actual disease state in the

body. It is the toxins produced by them. And now I am beginning to believe it

is perhaps not even the degree of toxins that wreak havoc in the body. As in

many states of disease, e.g., fever, itching, coughing, muscle weakness,

headaches, etc, it is not the microbes per se that directly make you feel bad,

it is the reaction of the body to the toxins and/or microbes. When you hear of

people dying from pneumonia for example, they die often because the lungs fill

with mucous and fluid. That is not caused from the pathogen, it is directly

caused by the overreaction of the body in an attempt to rid the microbe, and in

the process the body commits a form of suicide if you

will because it doesn't know when or how to stop. Any overreaction to a

substance in which the immune and energy systems of the body overreact we call

an allergy. If an allergy to anything could be turned off, the body would no

longer overreact, but would lose its " neurosis " to the substance and return to

it's own inate normal state of being able to intelligently ACT upon the

substance and either control and remove the substance, or in the case of

non-threatening substances (such as foods e.g.) -- non reaction.

Sorry for getting somewhat off track. But my purpose for commenting on this is

that there are only two ways I am aware of to deal with the overreaction of the

body to toxins. One would be to know exactly the offending substance. That

could then be treated using the NAET protocol (naet.com) and elliminate the

body's overreaction (this I did with my Candida infection and its toxin --

acetaldehyde. The acute and chronic Candida infection of some 5 years was gone

in one day!) However, I am not yet aware that anyone has of yet identified the

exact chemical nature of the Bb bacterial toxin, or many of its coinfection

microbial toxins.

So, the only other means of neutralizing toxins I am just learning about is the

Koch Carbonyl Homeopathic Remedies. These are very expensive and I only

recently learned that they are now available in the US. (This may not last long

as these were so extremely effective that the AMA and FDA twice tried to

discredit by suing Dr. Koch to keep this secret from the general public way back

in the 1940's whereupon he ended up leaving the country to work in Canada and

later Brazil, never to return) I will let the lyme group know if they are

effective in treating lyme disease if and when I am able to procure them.

Craig

honey_wont_dew <honey_wont_dew@...> wrote:

My husband has had lyme's disease for approximately 3 years and has

been diagnosised with late stage lyme disease. We have went through

many different symptoms and changes. Currently he is suffering from

neurological difficulties with tremors. He has also had many

different mood swings( from suicidial, depressed, angry). These are

a challenge. He also now is having difficulty understanding how he

feels about me, our relationship. Is this common and can some one

help me to understand. Alot of things he use to love to do, to be

with or just do he has no interest. What is the next phase?

any support or help would be benefiscial.

[Guest guest]

I'm not suggesting that the following may be responsible for your

husbands mood swings but will share some of my observations FWIW.

In my own case, sugar would make me have terrible mood swings. The

highs were great but the lows were very bad. I have since been off

all junk food (have not yet been able to eliminate corn chips) no

soda pop no candy. Any cravings for sweets is addressed with fruit.

My moods are much more stable as a result of improving my diet.

I have found that a couple mineral depletions can also affect the

mood. In my own case, as a result of using FIR sauna regularly I

have to make sure that I do not overdo its use as it can have a

depleting affect upon some of the minerals in the body. I have

found that at times that I would get hypersensitive/emotional

supplementing with a little zinc helped to calm me. A possible

indicator of low zinc is white spots on the fingernails.

Low magnesium levels can contribute to feelings of being suicidal,

per information in the book " The complete book of minerals for

health " .

Lack of sleep can also contribute to emotional upset.

I hope that something here may be of help.

I would imagine that just having to deal with the symptoms of lyme

disease for years would take its toll on a persons mental/emotional

state. Being a guy, he probably doesn't talk much about these

things. Keep hope alive in any way that you can.

All the best,

Jim

> My husband has had lyme's disease for approximately 3 years and

has

> been diagnosised with late stage lyme disease. We have went

through

> many different symptoms and changes. Currently he is suffering

from

> neurological difficulties with tremors. He has also had many

> different mood swings( from suicidial, depressed, angry). These

are

> a challenge. He also now is having difficulty understanding how he

> feels about me, our relationship. Is this common and can some one

> help me to understand. Alot of things he use to love to do, to be

> with or just do he has no interest. What is the next phase?

>

> any support or help would be benefiscial.