Re: To Carol F, RE: 504/IEP Plans for Lyme Students

[Guest guest]

I am ordering a video on Children with Lyme from Dolly Curtis.

Have you seen this?

It may help those who are working with children to understand too.

Kate

[Guest guest]

Carol...would you mind to send me the 38 page document?

I have a friend with a (Lyme) child who is having difficulty with the

school.

Hugs,

Sandy

stusing@...

[ ] To Carol F, RE: 504/IEP Plans for Lyme Students

> Carol,

>

> My son was being punished for frequent absences and falling asleep in

class for several years. Upon learning that his symptoms were lyme related I

pursued getting a 504 plan with his school. Though they initially rejected

the idea, being that he is the first special ed " lyme student " they've ever

dealt with, it was successfully put in place.

>

> The key to getting the school's cooperation is to be educated on the

disability laws. They have to abide by the federal laws, but they don't have

to tell you all your rights, and this is how many needy students get pushed

along, while presenting problems go unaddressed.

>

> My experience with my son's school really opened my eyes to the struggle

of lyme students. I've been advocating for them ever since. I have 38 pages

of great info that was passed on to me, and I'd be happy to share it with

you too. (If I haven't already!!! LOL I have sent out so many packets of

that material, I can't remember who all I sent it to anymore!!)

>

> You don't have to convince your school. You just need to present the facts

and they need to comply. Should they fail to do so in a timely manner, your

rights by law are clear. Furthermore, their refusal to recognize your

child's disability could cause them to lose their state accreditation, and

they know it.

>

> If your principal is not cooperating, go straight to the superintendent.

If he/she is not cooperating, " due process " which involves the STATE is the

next step. They do NOT want to go due process!! While all of this can be

accomplished without the assistance of others, I strongly suggest you use a

parent advocate in your area, if you can find one. If not, LONG DISTANCE is

the next best thing to being there!

>

> Plan to do a lot of educating. I made books of the 38 pages by 3 hole

punching them and putting them in simple folders and dropped them off at the

school councilors and offices.

>

> Speaking of the school psychologist; you have the right to request a full

battery of tests for your student also. I requested this for my son, IN

WRITING. He is being tested today, as a matter of fact. It is federal law,

that if you request your child to be tested, that they do it with in 60

school days.

>

> After reading those 38 pages of info, I realized my son may have learning

difficulties that none of us are aware of. It's best to find these things

out while they are young, as they are much more difficult to address as an

adult.

>

> The most important thing is that you communicate your child's needs to

them " in writing. " You must keep a clear paper trail with the school, just

like the doctors. We use a 3 hole punch and a binder. Anything I send or

receive from his school goes in that notebook.

>

> I usually fax, attach the confirmation of receipt report to it and file it

in the book. I also document phone calls the same way. The callers name,

date, time and what we said. Then I send a copy of that to the person I

spoke with, and file a copy in my book. In my case, I requested all

communication in writing, as I too have lyme and short term memory

impairment. They don't like having to put everything in writing, but they've

been compliant!

>

> Since getting Lyme at 12 myself, I'm particularly aware of how Lyme messes

with your thinking as you try to mature. These kids need all the help they

can get. Please let me know if there is anything I can do to assist you with

your child's 504/IEP plan.

>

> Best wishes,

>

> Carol Kerr

> carolkerr@...

> (219) 345-5671

>

>

[Guest guest]

No, the one I was recommended was something to do with Greenwich. It was

supposed to be directed toward educators. I keep forgetting to order it though.

Please provide ordering info for the video you were talking about.

Thank you,

Carol aka dizz

[Guest guest]

Dear Sandy,

No problem... but, it's in hard copy form. Do you have a fax machine??

Carol

[ ] To Carol F, RE: 504/IEP Plans for Lyme Students

> Carol,

>

> My son was being punished for frequent absences and falling asleep in

class for several years. Upon learning that his symptoms were lyme related I

pursued getting a 504 plan with his school. Though they initially rejected

the idea, being that he is the first special ed " lyme student " they've ever

dealt with, it was successfully put in place.

>

> The key to getting the school's cooperation is to be educated on the

disability laws. They have to abide by the federal laws, but they don't have

to tell you all your rights, and this is how many needy students get pushed

along, while presenting problems go unaddressed.

>

> My experience with my son's school really opened my eyes to the struggle

of lyme students. I've been advocating for them ever since. I have 38 pages

of great info that was passed on to me, and I'd be happy to share it with

you too. (If I haven't already!!! LOL I have sent out so many packets of

that material, I can't remember who all I sent it to anymore!!)

>

> You don't have to convince your school. You just need to present the facts

and they need to comply. Should they fail to do so in a timely manner, your

rights by law are clear. Furthermore, their refusal to recognize your

child's disability could cause them to lose their state accreditation, and

they know it.

>

> If your principal is not cooperating, go straight to the superintendent.

If he/she is not cooperating, " due process " which involves the STATE is the

next step. They do NOT want to go due process!! While all of this can be

accomplished without the assistance of others, I strongly suggest you use a

parent advocate in your area, if you can find one. If not, LONG DISTANCE is

the next best thing to being there!

>

> Plan to do a lot of educating. I made books of the 38 pages by 3 hole

punching them and putting them in simple folders and dropped them off at the

school councilors and offices.

>

> Speaking of the school psychologist; you have the right to request a full

battery of tests for your student also. I requested this for my son, IN

WRITING. He is being tested today, as a matter of fact. It is federal law,

that if you request your child to be tested, that they do it with in 60

school days.

>

> After reading those 38 pages of info, I realized my son may have learning

difficulties that none of us are aware of. It's best to find these things

out while they are young, as they are much more difficult to address as an

adult.

>

> The most important thing is that you communicate your child's needs to

them " in writing. " You must keep a clear paper trail with the school, just

like the doctors. We use a 3 hole punch and a binder. Anything I send or

receive from his school goes in that notebook.

>

> I usually fax, attach the confirmation of receipt report to it and file it

in the book. I also document phone calls the same way. The callers name,

date, time and what we said. Then I send a copy of that to the person I

spoke with, and file a copy in my book. In my case, I requested all

communication in writing, as I too have lyme and short term memory

impairment. They don't like having to put everything in writing, but they've

been compliant!

>

> Since getting Lyme at 12 myself, I'm particularly aware of how Lyme messes

with your thinking as you try to mature. These kids need all the help they

can get. Please let me know if there is anything I can do to assist you with

your child's 504/IEP plan.

>

> Best wishes,

>

> Carol Kerr

> carolkerr@...

> (219) 345-5671

>

>

To contact the list owner for any reason please write to:

-Owner

------------------------------------------------------------------------------

[Guest guest]

Carol...unfortunately I do not have access to a fax machine. I would be

happy to pay for postage and copying costs.

Sandy

Re: [ ] To Carol F, RE: 504/IEP Plans for Lyme Students

> Dear Sandy,

> No problem... but, it's in hard copy form. Do you have a fax machine??

>

> Carol