Re: Update: Scared

[Guest guest]

Does anyone with Lyme have abnormal MRI's?

If somebody has a " normal " set of MRI's and extra $200 to spend, I would be

fascinated to have you send them to a doctor at UCLA for analysis. He analyzes

MRI's for people with CFS, and finds small focal spots that other radiologists

miss. I would love to see if he finds the same things in Lymies.

Thanks

Doris

[Guest guest]

Ps, I'm also having body jerks, even when I'm awake.

Most of the symptoms I listed earlier aren't coming and going,

unfortunatly. The cognitive symptoms are constant.

I also cannot tell you how many doctors have said that anxiety has a

role in me and wrote me a perscription for xanax or ativan. Grrrr.

Anyone else dealing with cognitive symptoms that aren't going away

along with the tremors?

[Guest guest]

Sounds like lyme, tests like lyme etc. Some people on lymenet wrote

about partial seizures, awake seizures, myocolonus, etc, so its not

uncommon in tick borne diseases.

Perhaps the xanax is a good idea. Valium family drugs are very good

symptomatic treatment for CNS stuff like that...until you get on

antibiotics, and even then.

[Guest guest]

Tim

I have had all the symptoms you mention. They did a brain scan on me and never

said anything was wrong with it, so it must have been normal.

Please get a LLMD who can truly help you.

[ ] Update: Scared

Howdy, it's me, Tim again. Sorry I was away for so long, but I have

a few updates. First of all, the infectious disease doctor was a

complete MORON. She tried to tell me first of all that once you're

infected with lyme, you can't be re-infected.

She did a Rheumatoid factor test which came back positive along with

the IGM western blot for lyme.

So now I have 2 positve IGMs from 2 different hospitals, 1 positve

IGM and a positive IGG from IGenex according to both their standards

and the CDC standards AND a positive Rheumatoid test.

Yet this " infectious disease specialist " refuses to believe I have

lyme. Either way, my GP and my Pediatrician have been supportive and

helpful and my GP is running test for bebesia and erlichia (which

haven't come back yet). So here's my current symptoms;

1.Bad memory

2.Word-finding difficulty

3.can't think

4.constant light ringing in my head/ears

5.global tremors and poor muscle control (anytime I put stress on

any muscle, arms, face, legs, they tremor)

6. A weird generalized pain in my legs that's sometimes in both and

sometimes in one. It's hard to pinpoint whether it's the muscle, the

bone or the hip joint, but it's like a hollow type of ache that

comes and goes.

Not sure if anyone can identify with these, but they sure do suck.

Anyway, I figured I'd update you guys and there's something else I

wanted to ask.

My MRI is clear. Does anyone know if you can have cognitive symptoms

from lyme and still have a clear MRI or has anyone experienced this

or have some material on this particular subject?

I'd love an answer to this one.

Anyway, thanks for your support.

- Reifsnyder

[Guest guest]

> Howdy, it's me, Tim again. Sorry I was away for so long, but I

have

> a few updates.

> > - Reifsnyder

Hi Tim,

I am a new member, so I haven't got to talk to you before. But I sure

can relate to you. I have had every symptom you are referring too

plus a lot more. It does suck. I have also been in the trap of

several local infectous disease doctors insisting that there is no

way I have Lyme. It was so frustrating. I now have a Lyme Literate

doctor that I have been seeing for 1-1/2 years who has diagnosed me

with Late stage Lyme, babesiosis, and bartonella. I have to drive 10

hours to see him, but it has been worth it. In the meantime I refuse

to see the doctor's up here anymore for treatment or diagnosis.

Instead I have just been concentrating my efforts on educating the

one's that will listen. If you haven't already, I urge you to find a

Lyme Literate doctor. And hang in there, with the appropriate

treatment, things should get better.