Re: not soliciting?

April 7, 2004

In a message dated 4/7/2004 6:27:37 AM US Mountain Standard Time,

writes:

I don't charge, I try to give encouragement and

share knowledge. I have been a member here for 8yrs. I am 99% better after

ending up paralyzed from the neck down due to lyme. Five of my six kids were

on

504 Plan in school and my husband nearly died from severe tachycardia, all

due

to lyme.

Sue, I am honestly not attacking you and I know you help many people and I'm

glad you are well. I think it is great how you have turned your illness into

a positive helping others. But you do charge, don't you?? Don't you make

money through people buying all the products?? There is nothing wrong with this,

but to keep saying you don't charge and its all free isn't really right either.

Did you ever think that maybe it wouldn't come across as solicitation on the

all the lists if you wrote people privately telling them to call you instead

of everyone seeing several posts a week of you telling people you don't

charge, its free, you were paralyzed, etc. etc.?? I see your same story and

emails

to people telling them to call you constantly, so it does look like

solicitation.

April 7, 2004

-

First of all, you copied an e-mail from another list and posted it here... I

thought this was a 'no-no'..... you are on many lists that I am on as well and

I have seen it posted many times not to cross-reference groups. The post that

you copied was posted on a list that I have been a member of for 8yrs. and

there are many, many people on this list that are in extreme financial straights

so I am offering these people help, and yes, for no charge. This particular

group consists mainly of people that are new to lyme, are in dire need of help

and don't know where else to turn. I also donate alot of supplements for free.

You also should have written me off this list as well since this is personal.

I apologize to this group but feel a group response is necessary, I will not

post further. This is not the first time you have been negative towards me

either.

If you would have asked, you would have known, as many here know, I do not

charge people for an initial phone conversation!!! We have a general

conversation and I advise that if a person would like an individual assessment,

THEN I

have a consultation fee. I pay for the phone calls, long distance. Nothing wrong

with that. YES, I do make some profit from supplements, but once again, you

miss the big picture.... I don't tell people they have to buy my products from

me only.

sue massie, CNHP

732 933-4011

April 7, 2004

Touche' Bev! I totally agree with you on this. What about those that

write books to help others,are they making anything? There seems to

be a hypocrisy(sp) amongst us and it is truely sad.

> Sue,

>

> I have to disagree about not posting off and on. You'll have to

excuse me

> but I am herxing real bad today. With mine and many others I'm

sure the lost

> of memory doesn't help us. I appreciate her upbeat posts and have

for the

> last 7 yrs. No, I haven't bought a bunch from her, only one yeast

item. If she

> does make something, that wouldn't bother me at all. How many

other items

> are used by others and are boasted the same. I haven't read any.

>

> Anything we can share and help each other in this horrible disease

is worth

> the post. Believe me, I have had chemotherapy for cancer and

wasn't suppose to

> live 20 yrs ago and with lyme disease, on good days, I usually

start my

> educational talks with my quote: " I'd rather go back to the

cancer/chemo days then

> live with lyme disease "

> AND I DON'T SAY THAT LIGHTLY.

>

> Good days to all and God Bless in this holy week.

>

> Bev

>

April 8, 2004

Sue,

Have you thought about starting your own list?

That has been done numerous times by members of Lyme Aid who didn't feel this

list was giving them what they wanted.

A list owned and operated by you could be run in a fashion of your choosing.

You could give your advise freely or even blatantly solicit without anyone being

angry with you.

I believe you have information to offer others that may benefit them. But Lyme

Aid is not always the best place to offer this kind of help. As you have seen

there is some healthy skepticism, and at times hatred, of Sunrider products. A

new list would ensure people who want to learn more would have access to you.

I would be glad to help you set up a new list if you're interested. I've done

this quite a few times and have no problem setting something up knowing that I

will have no control over the group.