Guest guest Posted April 16, 2004 Report Share Posted April 16, 2004 , What state is this doctor in? in California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2004 Report Share Posted April 16, 2004 PA Re: [ ] thankful ! > , > > What state is this doctor in? > > in California > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 I would take it a day at a time...........watch what happens to your symptoms .......as the weeks pass, then talk to your Dr. about extending the IV treatment. You don't want to close him off after you just got him to open up to this treatment..........let a little time go by, keep track of your symptoms, and keep him involved........I'm sure as the end of the four weeks nears if you are still having symptoms (I'm sure you will) talk to him about extending the IV for another four weeks. Present some data about the cycling of the spirochete, etc. Take it slow. ConnieKnwnj When our bodies & minds are out of balance....... ........we suffer! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Not everyone responds to rocephin, and it might be hard to tell after 28 days. That might be just the time a herx hits. Will he know what a herx is? If you do want to continue with rocephin, maybe toward the end of the 28 days you could show him a copy of the ILADS treatment guidelines. Can get ordering information thru their website, then send check or credit card no. Do this now, in case it takes a while to get the guidelines. The other thing is that rocephin and penicillins are thought to cause cyst formation more so than macroclides and tetracyclines. It is a response to unfavorable conditions, and once the rocephin is gone from the system, the spirochetes reappear, which is why people relapse (or one of the reasons). Don't know if your doc would take the additional step of prescribing tinidazole (compounded) or metronidazole as a cyst buster. Handling this treatment really needs someone who knows what they are doing, and sooner or later, you may find that you need to move on to a more experienced doc. But take the treatment he will give you now, while thinking about future options. Assuming that you were checked also for co-infections, right? Quote Link to comment Share on other sites More sharing options...
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