Kathy

[Guest guest]

i don't see my rheumi until oct 24th. don't think my foot or eye dr's can

help me there. but i just asked my son to remind me of my mood swings

[Guest guest]

In a message dated 9/22/01 10:50:37 AM Central Daylight Time,

boop@... writes:

<< ..Of course the surgeon says it is from RA but he did a major

fusion on the same foot in May.....supposedly the joint is shot and won't

hold the toe ICK >>

so what can the do about that???

[Guest guest]

Kathy

Yes, it is very gross to step on the bone from your toe because it is

dislocating...Of course the surgeon says it is from RA but he did a major

fusion on the same foot in May.....supposedly the joint is shot and won't

hold the toe ICK

Thanks

Joanne

[Guest guest]

Maybe they fuse the toe also. I don't know what they do if the joint is

shot.

Joanne

[Guest guest]

I'm thinking of upping my daughter's dosage. Just wondering how many other

people out there give two a day and if it made a difference. Chloe is 26

pounds and three years old.

Nicky

> >I also had " upped " the dosage of the ProEFA last year after I saw the great

> >progress.

> >When the case reports on the ProEFA were due in to Dr. Katz I was worried

> >that they would not make it in time going through the mail -so I called his

> >office to see if it was ok to fax them. I spoke to the secretary(?) and he

> >put me on hold and a man got back on the phone to answer my fax question.

> >It

> >was Dr. Katz and I did not know it and when I finally figured it out(DAH) I

> >felt like I was talking to a celebrity---I guess I was---and I sounded like

> >an idiot as I was completely taken off guard. da da da .You cannot even

> >get

> >a regular pediatrician to get on the phone these days...anyway Dr. Katz

> >told

> >me to back it down to one...

[Guest guest]

well i talked to someone at work again today. she used to get some sort of

food thru her church that she used to give me. work has not done anything for

me. not even sent a card. i told my supervisor i felt like i have been

forgotten there. we do have asst programs here but generally they are only a

once a season thing. don't want to use it yet. actually i made some phone

calls today and found i was not as bad as i thought. i must've paid the total

amounts last month with past due fee's. i always freak out at the beginning

of the month. hitting me really hard as pms is hitting the same time too!!! i

spent all morning on the phone. cleaned my kitchen including sweeping the

floor from my chair!! i am going to the food pantry tomorrow so hopefully

some of the staples will be taken care of. i just needed to vent today. i

will check into the township general assistance program while i am at the

food pantry. i have just put a devils food cake in the oven. it is

halloween!! i will have to go to the store to get some frosting as my mil won

the mix at her bingo games!! thanks for listening and sharing ideas. kathy in

il

[Guest guest]

oh yes most of my meds have been samples from the dr's. they have been good

to me on that so far. kathy in il

[Guest guest]

oh sorry!! upper respitory infections. enbrel and remicade work with tnf

factors. (tumor nucrosis factor, one works on the a side, the other works on

the b side) i have tried them both. they made me feel better, but suffered

from infections on both. enbrel was a little easier as you gave yourself

injection 2x's a week. kathy in il

[Guest guest]

URI= Upper Resportory Infections

Remicade and Enbrel both promote URI's takes the Enbrel but has been

able to take since Dec. He had surgery on his foot and wrist and when he woke

up he what was like an asthma attack. He recovers slowing from being put to

sleep. The fact that he takes the Enbrel promoted the whole thing. They never

told me to stop giving it to him before surgery. The injection before the

surgery I didn't give to him for fear of this. He had to go to the OR two

more times. Jan 11th was the last time. He was showing signs of getting this

flu/cold thats going around so we didn't start the Enbrel again. He still is

having trouble and it's been impossible to get him into the Plumanary DR. He

sees his Primary DR tomorrow and she can call and get him in even if its a

fit appt. The Enbrel does wonders for . He became a whole new child. He

is now flaring due to the flu/cold and the change in weather we keep having.

One day its warm and sunny and when the sun goes down it drops up to 40

degrees. Its been hard on the whole family. Of course I get it worse because

I take care of the sick ones. Thats 5 boys, 6 if you include my boyfriend.

I do think your friend needs to see a Rheumy. Her regular DR sounds like he

cares about her a great deal, but he is out of his element. There are so many

drugs out there that he may not know about or know what can be used with pain

meds so she doesn't vomit. I remember someone in the group use to have a

patch because her tummy couldn't handle the meds. I know the trip is hard but

it would only be once every 2 to 3 months. I think it would be worth the

trip. Ya'll could always get a motel room and stay the night. You can even

deduct the cost of the room on your taxes under " other medical expenses " ,

same as milage to and from drs appts and to and from drug store. I just found

this out in Jan when we did our taxes. Anyway, try to get to think about

it. I think it would be the wise thing for her to do.

take care,

shelly

[Guest guest]

Hi Kathy,

Thanks for the welcome. Being new to all this, could you please tell me what

" URI's " are? I want to be fully prepared when she sees her dr next time.

Thanks.

i hope the enbrel works for her. i felt better on it, but did

have bad uri's from it. kathy in il

[Guest guest]

Hi Kathy

Can you see the difference already? HAve you lost the weight. And the

MOON face...(I can't stand looking like little Lotta..)

Pls let me know!!

Thanx

Monja

[ ] Re: new person

> hi cheryl, i was on prednisone for 3 months recently. i've been off

> for a month. my energy level is way down as compared to being on

> prednisone, but boy am i glad to be off of it. kathy

>

>

> > hi every one I have a couple of questions.

> > (1) is there any special diet I should follow with this disease.

> > (2)I have type 2 of this disease is there much difference.

> > (3) when I first went on prednisilone I had lots of energy now I am

> > down to 5mg every second day. My blood test are normal but the

> > fatigue is starting to come back is that normal.

> >

> > Cheryl from down under.

>

>

>

>

[Guest guest]

thanks tess. when i get my check this month i will just pay my house, rent,

car and house insurance. dan's public aid (cause they gotta get their $ too!!

how come everyone else get $ from public aid and i've gotta pay??) the

utilities will have to wait. some things are more important than others. and

we may just have to go to the food pantry again or something. i know it'll

work out. it is just so much all at once. plus his car is in the shop leaking

anti freeze. plus that lady from work is still in my head,and they just sent

out school registration forms which means more $ also reminds me my home tax

is due in a couple months too. his car got called in for emissions and it

burns oil pretty bad. like i didn't have enough stress without all of this on

top!!!! ugh!!! kathy in il

[Guest guest]

yes , my mom did fine. she put me to shame!!!

[Guest guest]

Debbie,

Kayla is doing great in her helmet. She has adjusted very well to the helmet. We have air conditioning in the house so normally she does fine. However when we do go places without air she is miserable and we wind up taking the helmet off for a couple of hours. This makes for a happy baby and in turn a happy mommy and daddy! : )

My insurance company officially denied my claim and my appeal. I have been working with the customer service rep assigned to my employer's account. I am hoping this will help get an approval. I will keep you posted to final outcome.

Kathy

Hi Kathy:I just saw your reply to Ken, so thought I'd ask you how Kayla is doing in her helmet? She's gotta be sweating a lot right now in this horrible heat & humidity. HOpe she's doing well.Debbie Abby's mom DOCGradGR MIFor more plagio info

[Guest guest]

Kathy:

Thank goodness for air conditioning huh?! There's just no way you

could keep her in the helmet w/o it on days like these. I'm glad

she's doing so well in it. The weather will hopefully cool off soon

so you don't have to take it off while you go out, but in the mean

time, it's probably a good idea to take it off.

In our Grand Rapids Press last week I think, there was a huge section

about U of M and their health dept & such. I was so hoping there

would be mention of their helmets, but unfortunately there wasn't .

There was a short blub about Mcare ins. in it & I immediately thought

of you. I'm sorry they denied you. Was it Helen, another group

member in yuor area, that had Mcare as well. Did she get hers

approved? Keep fighting. Good luck.

Thanks for the update.

Debbie Abby's mom DOCgrad

MI

> Debbie,

>

> Kayla is doing great in her helmet. She has adjusted very well to

the helmet. We have air conditioning in the house so normally she

does fine. However when we do go places without air she is miserable

and we wind up taking the helmet off for a couple of hours. This

makes for a happy baby and in turn a happy mommy and daddy! : )

>

> My insurance company officially denied my claim and my appeal. I

have been working with the customer service rep assigned to my

employer's account. I am hoping this will help get an approval. I

will keep you posted to final outcome.

>

>

> Kathy

>

>

> Hi Kathy:

> I just saw your reply to Ken, so thought I'd ask you how Kayla is

> doing in her helmet? She's gotta be sweating a lot right now in

this

> horrible heat & humidity. HOpe she's doing well.

> Debbie Abby's mom DOCGrad

> GR MI

>

>

>

[Guest guest]

well i got social security disability. i am still fighting with my former

employer. they eliminated my job while i was out. they have sent people out

to folloiw me and video tape. i am going tomorrow for a functional capacity

test. it will take about 3hours. they told me to bring a snack. and any meds

or glasses i may need. kathy in il

[Guest guest]

Kathy,

I'm glad you won your fight for disability benefits. Before I got sick I never

had a care, work for an insurance company with lots of benes. I never

understood that people could be realy sick every day and still life goes on,

bills have to be paid. I thought if you got sick you took meds to make you

better and if not, well then you go on disability. Now I am pained when I see

the publicity my company puts out about disABILITY and how we can all lead

productive lives. I'm glad you one the fight, I'm sure there was many a day you

should not have had to go into work.

Deb

kringlemom@... wrote: hey deb, i'm kathy 42, widow almost 10 years and my

son will be 19 in

october. i've had trouble about 7 years now. mine started with carpal tunnel

on both sides, had surgeries for that. went to my back and neck, i had

tarsal tunnel surgeries last year, still having problems with tendonitis is

different areas. won my ssd last year and fighting with my company over my

disability benefits from them. you hve found a great group. i don't know what

i'd do without this group!!! welcome kathy in il

[Guest guest]

<PRE>thanks heidi, that side of my tongue is still a little sore, and i think

this

has put me into a flare. i just don't feel right. i go see my rheumi on

thursday. i am bringing my ra diary in. she has got to help me change this

pattern. kathy in il

[Guest guest]

<PRE>i will survive. i overdid it again today as i cleaned the furnace, among

other things.. my back is so sore, but at least i feel accomplishment. dr

tomorrow am. kathy in il

[Guest guest]

<PRE>dr appt today had another urine test, waiting for that, also had him exam

everywhere.bloop pressure is back to normal. he thinks everything else is

from prednisone so since i am down to 5 mgs this week and 2.5 next week. then

i will be off. he also says neurontin has a good reputation for helping those

with pain where other meds have failed. i think i will still wait and get off

steroids before starting another new drug. he is going to try and send me to

a nutritionist. but we will have to see if my insurance will pay. (right!!) i

am sore and running my normal fever. kathy in il

[Guest guest]

<PRE>one of the many things i need to do these days!!!! boy is the snow coming

down here!!!! kathy in il

[Guest guest]

<PRE>thanks paula, i'm glad he wasn't hurt either. buti am pretty sure the car

is

totaled. kathy in il

[Guest guest]

<PRE>y'know i just got home from the dr and he didn't even check my scalp. oh

well

kathy in il

[Guest guest]

Hi Kathy,

My guess is when he saw the subject said " A message from Carol " he

deleted it without opening it. I could be wrong. Other than my

disappointment with the genealogy, I'm not that upset. I know that I

was willing to make amends, and that's what counts.

You could be right and I could hear from him still, but I'm not exactly

holding my breath. I said a prayer when I sent the email that he not

reply if it isn't the best thing for me and for my family. Maybe it's

just a response to that prayer.

Love and hugs,

Carol

Re: [ ] Carol

<PRE>carol, i just got a message through classmates. i am not a paying

member. i

almost deleted it.the subject said a message from mark. i usually don't

open

things from people i don't know, but i did. it was an old neighbor from

5th

grade. give it more time. maybe he doesn't have a computer and access

came

from a library and he hasn't made it back yet. i really doubt he is

online as

much as we are!!! i hope you get a response from him soon as we all

know the

waiting is the hardest part. kathy in il

[Guest guest]

Hi Kathy,

My guess is when he saw the subject said " A message from Carol " he

deleted it without opening it. I could be wrong. Other than my

disappointment with the genealogy, I'm not that upset. I know that I

was willing to make amends, and that's what counts.

You could be right and I could hear from him still, but I'm not exactly

holding my breath. I said a prayer when I sent the email that he not

reply if it isn't the best thing for me and for my family. Maybe it's

just a response to that prayer.

Love and hugs,

Carol

Re: [ ] Carol

<PRE>carol, i just got a message through classmates. i am not a paying

member. i

almost deleted it.the subject said a message from mark. i usually don't

open

things from people i don't know, but i did. it was an old neighbor from

5th

grade. give it more time. maybe he doesn't have a computer and access

came

from a library and he hasn't made it back yet. i really doubt he is

online as

much as we are!!! i hope you get a response from him soon as we all

know the

waiting is the hardest part. kathy in il