Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 Your message has been edited. Please read the file entitled " Cleaning " Instructions found at /files/ for more information. Lyme Aid Owner ========== Hi, I am new here, I am just wondering... What's a girl to do if she contracted lymes in another state (while on vacation) and knows of no LLMDs around her area? I live in St. sburg, Florida. I have been going to an infectious disease doctor for about 6 months now. She had me set to die 3 months ago and now has me worried again. I feel as though I am telling her how to treat my lymes than she is. I am so scared but, have to be the strentgh for my family and not show any of those emotions. Nobody around me understands what I am going through. I realize that you all have been and probably still are going through this yourselves. I don't know how to handle the thought of dying from this or (from what the doctor says) having this for the rest of my life. How are you all coping? On top of the lymes, I also have cat scratch fever and still running all kinds of other test. Any advice on how to handle this would be greatly appreciated! Carol Kerr <CarolKerr@...> wrote:Dear Tim: I'm sooo sorry to hear of your symptoms. Unfortunately, I've lived your story!! Them ducks will keep testing you till the cows come home if you let them! Post lyme my hind end! You probably never got rid of it in the first place!! Please research more on 3rd stage lyme before you subject yourself to spinal taps! They don't give as much info as you think. Most LLMD (lyme literate medical doctors) don't require that invasive test! You can also go to http://www.lymenet.org for additional support. There is tons of helpful answers in their archives. They have a board you can post on too! When I came down with lyme, they started in on my about doing brain surgery on me! After just one visit to a LLMD, I stopped worrying. His assurances that this is the way a 3rd stage patient behaves gave me hope! I can't say what is going on with you. But I can say, I wouldn't trust a NON LLMD to blow my nose! Save yourself a lot of stress and pain. See a LLMD asap! I don't know what state you are in, or what kind of insurance you have, but you are entitled to " appropriate " treatment. I am fighting my insurance company to provide me with a doctor/hospital that has knowledge of 3rd stage lyme. That's my two cents! I'm attaching my recent press release for your review. Please feel free to contact me if I can help you in any way. You are not alone!! Hang in there!!! Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 Suggested reading...go to the ILADS site and print the treatment protocol of Dr. B. There are LLMD's in Florida. The one thing you will learn as you learn to cope with this horrible disease is that, although sad but true, you will have to constantly educate...your friends, your family, anyone who will listen to you. Hang in there and take care, Sandy Re: [ ] Scared as well > > > > Hi, I am new here, I am just wondering... What's a girl to do if she contracted lymes in another state (while on vacation) and knows of no LLMDs around her area? I live in St. sburg, Florida. I have been going to an infectious disease doctor for about 6 months now. She had me set to die 3 months ago and now has me worried again. I feel as though I am telling her how to treat my lymes than she is. I am so scared but, have to be the strentgh for my family and not show any of those emotions. Nobody around me understands what I am going through. I realize that you all have been and probably still are going through this yourselves. I don't know how to handle the thought of dying from this or (from what the doctor says) having this for the rest of my life. How are you all coping? On top of the lymes, I also have cat scratch fever and still running all kinds of other test. Any advice on how to handle this would be greatly appreciated! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 I remember that fear. You have to just take it a day at a time. I found a LLMD at http://www.lymenet.com They've got a lot of resources. You can fly free with angel flights if you have to travel and can't afford to do so. The day of my appt with the LLMD my life changed. I wasn't afraid anymore. Mad as heck, but no longer afraid. He told me it will be a fight, but if I believe I can get well, I just might. I choose to believe! We are all here for you. Hang tuff!!! Carol aka dizz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 > Your message has been edited. > >> > > I live in St. sburg, Florida. I have been going to an infectious disease doctor for about 6 months now. Hi, I live in Lakeland. FL (east of St.Pete). I have Post-Lyme and have a very good LLMD in Temple Terrace outside Tampa. If you want to e- mail me off list I will be happy to give you his name and phone number. He is very good and would probably be of great help to you. Also there is a Lyme Support Group starting in the Tampa area this month. Will let you know more about that as it happens. Quote Link to comment Share on other sites More sharing options...
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