Re: LLMD in Cleveland, Ohio?

[Guest guest]

Kim,

Please contact , KRL528@... . She will be able to recommend the

appropriate doctor. She lives in Ohio. I do know she drives 5 hours to see

her doctor. Lyme is a clinical diagnosis because the tests are unreliable.

This is why you need to see someone who is knowledgeable, not just

" familiar " with the disease. Your rashes can be attributed to other tick

borne diseases and must be tested for as well. Rocky Mountain Spotted fever

can cause rashes on the palms and feet. Babesia can cause anemia.

Good Luck,

a

----- Original Message -----

From: " Kimberley "

> Hello all,

>

>

> Last night I had blood drawn at my request for Lyme disease. I do

> not know the results but they did say that I was anemic and my

> potassium level was low. Three weeks ago my blood work was normal. I

> am into my fourth week of painful itchy blisters on my feet and palms

> of my hands. Very frustrating! Other symptoms too.

>

> My question to all of you....how do I find a LLMD in the Cleveland

> area? The Cleveland Clinic has stated that they have doctors

> familiar with Lyme Disease in their Department of Rheumatic and

> Immunologic Disease. Could someone please point me in the corrct

> direction? If my tests prove to be positive for Lyme I want to take

> on the most aggressive form of medicine/therapy available out there.

> IF they do not come up positive, than what do I have if the doctors

> are stumped??? How do I fight something that they are unable to

> diagnose?

>

> Thanks so much,

>

> Kim

[Guest guest]

Kim--

DO NOT GO TO CLEVELAND CLINIC FOR LYME!!! I repeat--do not go to

cleveland clinic for lyme!!! One of the Doctors in the Rheumatology

Department (Dr. Wilke) is a personal friend of Dr. Steere and goes by

his recommendations (he has influenced the entire department!!!). I

know this for a fact because I was caught up in the mess for awhile. If

you need a llmd within driving distance of Cleveland (I live in Avon,

Ohio), email me directly and I will give you the name and address to

contact my llmd. He is very good and has brought me back to being a

functioning human being again. I repeat, DO NOT GO TO CLEVELAND CLINIC

FOR LYME!!!! You will only cause yourself alot of pain, heartache, and

precious time in treating this awful disease!!

Don't misunderstand me, the Cleveland Clinic is a world known hospital

and they have made great strides in many areas, just not lyme. I would

go there, and have, for many other problems. Just not Lyme!!

email me--rhonna@...

Rhonna in Ohio

Kimberley wrote:

> Hello all,

>

> I am new to this group and have been reading through previous

> postings. It is sad to realize that there are so many people

> suffering out there taht have Lyme. A lot of doctors are not aware

> of Lyme Disease. It seems to be a complicated illness which takes on

> many forms and symptoms.

>

> Last night I had blood drawn at my request for Lyme disease. I do

> not know the results but they did say that I was anemic and my

> potassium level was low. Three weeks ago my blood work was normal. I

> am into my fourth week of painful itchy blisters on my feet and palms

> of my hands. Very frustrating! Other symptoms too.

>

> My question to all of you....how do I find a LLMD in the Cleveland

> area? The Cleveland Clinic has stated that they have doctors

> familiar with Lyme Disease in their Department of Rheumatic and

> Immunologic Disease. Could someone please point me in the corrct

> direction? If my tests prove to be positive for Lyme I want to take

> on the most aggressive form of medicine/therapy available out there.

> IF they do not come up positive, than what do I have if the doctors

> are stumped??? How do I fight something that they are unable to

> diagnose?

>

> Thanks so much,

>

> Kim

>

>

>

>

[Guest guest]

They were a waste of time for me also. They never tested for lyme, when I had a

swollen foot, with a red streak. That is common with tick bites.

Re: [ ] LLMD in Cleveland, Ohio?

Kim--

DO NOT GO TO CLEVELAND CLINIC FOR LYME!!! I repeat--do not go to

cleveland clinic for lyme!!! One of the Doctors in the Rheumatology

Department (Dr. Wilke) is a personal friend of Dr. Steere and goes by

his recommendations (he has influenced the entire department!!!). I

know this for a fact because I was caught up in the mess for awhile. If

you need a llmd within driving distance of Cleveland (I live in Avon,

Ohio), email me directly and I will give you the name and address to

contact my llmd. He is very good and has brought me back to being a

functioning human being again. I repeat, DO NOT GO TO CLEVELAND CLINIC

FOR LYME!!!! You will only cause yourself alot of pain, heartache, and

precious time in treating this awful disease!!

Don't misunderstand me, the Cleveland Clinic is a world known hospital

and they have made great strides in many areas, just not lyme. I would

go there, and have, for many other problems. Just not Lyme!!

email me--rhonna@...

Rhonna in Ohio

Kimberley wrote:

> Hello all,

>

> I am new to this group and have been reading through previous

> postings. It is sad to realize that there are so many people

> suffering out there taht have Lyme. A lot of doctors are not aware

> of Lyme Disease. It seems to be a complicated illness which takes on

> many forms and symptoms.

>

> Last night I had blood drawn at my request for Lyme disease. I do

> not know the results but they did say that I was anemic and my

> potassium level was low. Three weeks ago my blood work was normal. I

> am into my fourth week of painful itchy blisters on my feet and palms

> of my hands. Very frustrating! Other symptoms too.

>

> My question to all of you....how do I find a LLMD in the Cleveland

> area? The Cleveland Clinic has stated that they have doctors

> familiar with Lyme Disease in their Department of Rheumatic and

> Immunologic Disease. Could someone please point me in the corrct

> direction? If my tests prove to be positive for Lyme I want to take

> on the most aggressive form of medicine/therapy available out there.

> IF they do not come up positive, than what do I have if the doctors

> are stumped??? How do I fight something that they are unable to

> diagnose?

>

> Thanks so much,

>

> Kim

>

>

>

>

[Guest guest]

Over the years, several lymepatients have complained, sometimes bitterly, about

Cleveland Clinic. Rita

Re: [ ] LLMD in Cleveland, Ohio?

Kim--

DO NOT GO TO CLEVELAND CLINIC FOR LYME!!! I repeat--do not go to

cleveland clinic for lyme!!! One of the Doctors in the Rheumatology

Department (Dr. Wilke) is a personal friend of Dr. Steere and goes by

his recommendations (he has influenced the entire department!!!). I

know this for a fact because I was caught up in the mess for awhile. If

you need a llmd within driving distance of Cleveland (I live in Avon,

Ohio), email me directly and I will give you the name and address to

contact my llmd. He is very good and has brought me back to being a

functioning human being again. I repeat, DO NOT GO TO CLEVELAND CLINIC

FOR LYME!!!! You will only cause yourself alot of pain, heartache, and

precious time in treating this awful disease!!

Don't misunderstand me, the Cleveland Clinic is a world known hospital

and they have made great strides in many areas, just not lyme. I would

go there, and have, for many other problems. Just not Lyme!!

email me--rhonna@...

Rhonna in Ohio

Kimberley wrote:

> Hello all,

>

> I am new to this group and have been reading through previous

> postings. It is sad to realize that there are so many people

> suffering out there taht have Lyme. A lot of doctors are not aware

> of Lyme Disease. It seems to be a complicated illness which takes on

> many forms and symptoms.

>

> Last night I had blood drawn at my request for Lyme disease. I do

> not know the results but they did say that I was anemic and my

> potassium level was low. Three weeks ago my blood work was normal. I

> am into my fourth week of painful itchy blisters on my feet and palms

> of my hands. Very frustrating! Other symptoms too.

>

> My question to all of you....how do I find a LLMD in the Cleveland

> area? The Cleveland Clinic has stated that they have doctors

> familiar with Lyme Disease in their Department of Rheumatic and

> Immunologic Disease. Could someone please point me in the corrct

> direction? If my tests prove to be positive for Lyme I want to take

> on the most aggressive form of medicine/therapy available out there.

> IF they do not come up positive, than what do I have if the doctors

> are stumped??? How do I fight something that they are unable to

> diagnose?

>

> Thanks so much,

>

> Kim

>

>

>

>

[Guest ctowngal79]

So where is the. Closest llmd to Cleveland, Ohio??