fibromyalgia update

[Guest guest]

Fantastic news for you.

How do you dose your 50mg iodine? MY

teenage daughter(hashis;goiter etc) is on 2 mg LDN and a few drops lugols a day

plus selenium ,but I see the goiter enlarge again. How can she dose iodine in a

more palatable way?

Cheers

Nuala

From:

low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Baker

Sent: 29 January 2010 07:30

To:

low dose naltrexone

Subject: [low dose naltrexone]

fibromyalgia update

This wound up getting long:

Wanted to give an update on how I am doing-- I have hypothyroidism

(Hashimoto's), fibromyalgia, adrenal exhaustion, hypoglycemia,

exercise-and

-stress induced asthma, chronic neck and back pain, skin sensitivities,

chemical sensitivities, chronic sinusitis problems, depression, etc., all

of which has been fairly well managed with Nature-Throid, 5-HTP, NAC,

medical cannabis, and various other supplements. However, I made the choice

to move to a non-medical-cannabis state to be near my ailing mother and

her

family, and have not had safe access. My medical cannabis doctor, Tod

Mikuriya, used to speak about the fact that the illegality and stresses

involved because of it made it less efficacious for a lot of people, simply

because the added stress negates other healing. As a result of my choice

to relocate, and severe financial stresses inducing survival level

stressors, I had a bad crash this past fall, where the brain fog,

depression, and constant pain and fatigue took back over to the point my

ability to make a living was (again) threatened (as it had been before

diagnosis and treatment originally) (I freelance in publishing

editorial). Somehow in the midst of it, I found some notes I'd made about

LDN, just a little scrap of paper that somehow resurfaced in the chaos,

googled and found www.ldn.org, and eventually found this website and

related others. Via this website I discovered the iodine protocol (

group " iodine " ), which again I'd been directed to years previous and

couldn't listen then.

I started 1.5mg LDN (recommended starting point for those with Hashimoto's)

on Dec 31, changed to 3.0mg about 1/13/10, and changed to 4.5mg about

1/25/10. Have not yet experienced any hypERthyroid symptoms, but I was sick

for at least a decade before diagnosis and treatment of Hashi's and my TSH

was 118 by then, so it's likely there is damage to thyroid. The first two

nights at 4.5 I slept for a few hours then woke up and couldn't go back to

sleep, but then my sleep resumed reasonably normal. I noticed a change on

the very first morning awakening after my first 1.5mg dose, in that the

depression that had closed in so heavily was slightly less oppressive. I

was aware I could have been simply having a positive response to the hope

LDN represented, but that first morning was borne out... steady improvement

has followed on all fronts, including the sinus headaches that had become

ubiquitous again.

Changing to 3.0mg I felt another full level of improvement, moving up a

level. And now changing to 4.5mg, it's like being born anew. My mind is

clear, I recover from stressors, I wake up almost pain free and alert (I'm

still having some neck and lower back pain, but that's from old injuries

and is distinct from the fibro bodyaches that make you wake up feeling like

you've been hit by a truck), I wake up and do some yoga stretches in bed!

I don't even know how to describe the difference.

I also started the iodine protocol about 1/5/10 or so, and that's had a

marvelous effect-- most notably when I stepped up the iodine intake to

50mg, which many seem to think is the minimal therapeutic dose-- many

people report not feeling optimal effects until that dose. Because I could

not wait to first do one and then the other, I'm not sure how much each is

contributing to my recovery, but, the LDN seems to be responsible for

alleviating pain and brain fog, the iodine for giving me back my

energy. But they are synergistic, meaning they are contributing to a

larger whole. I am COMPLETELY thrilled now that I've stepped up to the

standard therapeutic doses and would encourage people not to be afraid.

That is the main message I want to share with people. Do not be afraid to

1) try LDN, 2) try the full 4.5mg dose of LDN, 3) try iodine and the

protocol for supplementation and salt loading, and 4) try the full 50mg

dose (and more) of iodine/iodide. Particularly for fibromyalgia, as the

difference in my brain fog is just stunning. For one thing, I'm more able

to recognize when I have brain fog, like when I'm really tired and need to

rest after a long long day (like normal people, and like I'm feeling right

now). I'd say one of the worst aspects of the fibro brain fog was all the

times I didn't realize I was fogged and just tried to push through it,

failing at things small and large. [caveat: there may be

counterindications for the iodine protocol, conditions for which it could

not be advised. I am not a doctor and am not suggesting all persons with

all conditions start the protocol. But investigating what level of iodine

supplementation is possible for one's self and getting it going will be

time well spent.]

Several people have been asking recently about LDN for fibromyalgia, and I

just really want to encourage you to try this. You have nothing to lose

but your suffering. But I encourage you also to do the iodine protocol

because while the LDN is a miracle, it's also admitted to be an adjunct to

health building protocols, and iodine is perhaps the central

health-building protocol needed for Western people, if not all humans,

since the thyroid cannot function without adequate levels of iodine and the

thyroid determines the metabolism, mental and physical, and the scientific,

biological fact is that we humans are mostly horribly, dreadfully

iodine-deficient. Also since iodine clears the body of various types of

toxins, the LDN is freed up to work even better.

Just can't say enough good things about what's happened for me. It's said

that fibro sufferers may have a steep recovery response at the beginning of

LDN, but at 6 to 8 weeks possibly have a plateau or slight relapse/flare,

but that improvement generally does begin again. I'm not holding my breath,

and I'm not completely invested that now all my troubles are over, but on

the other hand I will be perfectly happy to find that I'm this much better

a few months from now, and a few years from now. What I've got now is

livable. I'm now recovering from physical and emotional blows that would

have sent me to bed for days, previously. Because unfortunately the

survival stressors haven't really let up, but I've got a lot more capacity

to face them, with energy left for art and music. My judge of quality of

life is: do I have energy and motivation to make art. And right now that's

returned in a genuine (vs. merely hopeful) way-- work is actually being

done. A total blessing.

with all best wishes,

--

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

[Guest guest]

This wound up getting long:

Wanted to give an update on how I am doing-- I have hypothyroidism

(Hashimoto's), fibromyalgia, adrenal exhaustion, hypoglycemia, exercise-and

-stress induced asthma, chronic neck and back pain, skin sensitivities,

chemical sensitivities, chronic sinusitis problems, depression, etc., all

of which has been fairly well managed with Nature-Throid, 5-HTP, NAC,

medical cannabis, and various other supplements. However, I made the choice

to move to a non-medical-cannabis state to be near my ailing mother and her

family, and have not had safe access. My medical cannabis doctor, Tod

Mikuriya, used to speak about the fact that the illegality and stresses

involved because of it made it less efficacious for a lot of people, simply

because the added stress negates other healing. As a result of my choice

to relocate, and severe financial stresses inducing survival level

stressors, I had a bad crash this past fall, where the brain fog,

depression, and constant pain and fatigue took back over to the point my

ability to make a living was (again) threatened (as it had been before

diagnosis and treatment originally) (I freelance in publishing

editorial). Somehow in the midst of it, I found some notes I'd made about

LDN, just a little scrap of paper that somehow resurfaced in the chaos,

googled and found www.ldn.org, and eventually found this website and

related others. Via this website I discovered the iodine protocol (

group " iodine " ), which again I'd been directed to years previous and

couldn't listen then.

I started 1.5mg LDN (recommended starting point for those with Hashimoto's)

on Dec 31, changed to 3.0mg about 1/13/10, and changed to 4.5mg about

1/25/10. Have not yet experienced any hypERthyroid symptoms, but I was sick

for at least a decade before diagnosis and treatment of Hashi's and my TSH

was 118 by then, so it's likely there is damage to thyroid. The first two

nights at 4.5 I slept for a few hours then woke up and couldn't go back to

sleep, but then my sleep resumed reasonably normal. I noticed a change on

the very first morning awakening after my first 1.5mg dose, in that the

depression that had closed in so heavily was slightly less oppressive. I

was aware I could have been simply having a positive response to the hope

LDN represented, but that first morning was borne out... steady improvement

has followed on all fronts, including the sinus headaches that had become

ubiquitous again.

Changing to 3.0mg I felt another full level of improvement, moving up a

level. And now changing to 4.5mg, it's like being born anew. My mind is

clear, I recover from stressors, I wake up almost pain free and alert (I'm

still having some neck and lower back pain, but that's from old injuries

and is distinct from the fibro bodyaches that make you wake up feeling like

you've been hit by a truck), I wake up and do some yoga stretches in bed!

I don't even know how to describe the difference.

I also started the iodine protocol about 1/5/10 or so, and that's had a

marvelous effect-- most notably when I stepped up the iodine intake to

50mg, which many seem to think is the minimal therapeutic dose-- many

people report not feeling optimal effects until that dose. Because I could

not wait to first do one and then the other, I'm not sure how much each is

contributing to my recovery, but, the LDN seems to be responsible for

alleviating pain and brain fog, the iodine for giving me back my

energy. But they are synergistic, meaning they are contributing to a

larger whole. I am COMPLETELY thrilled now that I've stepped up to the

standard therapeutic doses and would encourage people not to be afraid.

That is the main message I want to share with people. Do not be afraid to

1) try LDN, 2) try the full 4.5mg dose of LDN, 3) try iodine and the

protocol for supplementation and salt loading, and 4) try the full 50mg

dose (and more) of iodine/iodide. Particularly for fibromyalgia, as the

difference in my brain fog is just stunning. For one thing, I'm more able

to recognize when I have brain fog, like when I'm really tired and need to

rest after a long long day (like normal people, and like I'm feeling right

now). I'd say one of the worst aspects of the fibro brain fog was all the

times I didn't realize I was fogged and just tried to push through it,

failing at things small and large. [caveat: there may be

counterindications for the iodine protocol, conditions for which it could

not be advised. I am not a doctor and am not suggesting all persons with

all conditions start the protocol. But investigating what level of iodine

supplementation is possible for one's self and getting it going will be

time well spent.]

Several people have been asking recently about LDN for fibromyalgia, and I

just really want to encourage you to try this. You have nothing to lose

but your suffering. But I encourage you also to do the iodine protocol

because while the LDN is a miracle, it's also admitted to be an adjunct to

health building protocols, and iodine is perhaps the central

health-building protocol needed for Western people, if not all humans,

since the thyroid cannot function without adequate levels of iodine and the

thyroid determines the metabolism, mental and physical, and the scientific,

biological fact is that we humans are mostly horribly, dreadfully

iodine-deficient. Also since iodine clears the body of various types of

toxins, the LDN is freed up to work even better.

Just can't say enough good things about what's happened for me. It's said

that fibro sufferers may have a steep recovery response at the beginning of

LDN, but at 6 to 8 weeks possibly have a plateau or slight relapse/flare,

but that improvement generally does begin again. I'm not holding my breath,

and I'm not completely invested that now all my troubles are over, but on

the other hand I will be perfectly happy to find that I'm this much better

a few months from now, and a few years from now. What I've got now is

livable. I'm now recovering from physical and emotional blows that would

have sent me to bed for days, previously. Because unfortunately the

survival stressors haven't really let up, but I've got a lot more capacity

to face them, with energy left for art and music. My judge of quality of

life is: do I have energy and motivation to make art. And right now that's

returned in a genuine (vs. merely hopeful) way-- work is actually being

done. A total blessing.

with all best wishes,

--

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

[Guest guest]

idoral

[Guest guest]

I'm not quite sure what you're commenting on, but yes I am taking iodoral,

50mg/day at this point.

zahavi wrote:

>idoral

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

[Guest guest]

I'm using iodoral 12.5 mg tablets. I have changed my protocol so that

first I take my NatureThroid on an empty stomach, usually during my early

morning bathroom break, go back to sleep, wake up and take my iodoral on an

empty stomach and wait a while, then have breakfast and after breakfast

take my morning supplements. It's become very obvious that Vit C turns

potassium iodide into iodine, and the whole point of the formulation of

iodoral is getting both iodine and iodide in your body because different

parts of the body use the two different types. So I'm making sure to take

my Vit C separately.

Your daughter should also be taking magnesium, high Vit C, and unrefined

salt. Are you familiar with the full iodine supplement protocol? An

excellent resource is www.naturalthyroidchoices.com, which is the website

of the owner of the iodine group. fyi, Magnesium glycinate does not

have the laxative effect that can inhibit sufficient oral supplementation.

Ah, Zahavi, I now understand your response was to Nuala.

--

>Fantastic news for you.

>How do you dose your 50mg iodine? MY teenage daughter(hashis;goiter etc)

>is on 2 mg LDN and a few drops lugols a day plus selenium ,but I see the

>goiter enlarge again. How can she dose iodine in a more palatable way?

>Cheers

>Nuala

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

[Guest guest]

>What is the iodine protocol? How much? What kind do you recommend, etc. ?

Hi Theresa-- There are two basic forms of iodine that most people use, a

liquid and a tablet. Each contains both iodine and iodide, as the body uses

each of these forms in different specific places. Basic supplements are

selenium, magnesium, Vit C, and unrefined salt. Others are possible. The

iodine displaces bromides and heavy metals and then docks in its proper

places on the cells. If/when detox symptoms occur, we use something called

salt loading, which washes the released toxins out of the body with the

urine. We titer the iodine dose toward therapeutic levels by making sure

we're not detoxing too quickly-- that is, if we spend more than a week with

detox symptoms, we lower the dose to avoid overburdening the liver, kidneys

and go slower toward detox. Iodine kills bacteria, viruses, molds, fungus,

candida, etc., and displaces toxins as explained, in addition to being a

critical nutrient for many fundamental biological functions. That's my

understanding as a newbie.

Two important, basic iodine websites are:

naturalthyroidchoices.com -- run by the owner, Steph, of the iodine list

breastcancerchoices.org

These explore iodine in a comprehensive, short-form manner and will give

you a practical overview from which you could begin the protocol if you

chose.

Here is the link to the iodine group:

iodine/?yguid=337894416

They have fantastic resources for learning under the Links section of the

homepage linked above. You can join and just keep it set for web reading if

you're interested in exploring the resources. The Links section is worth

just starting at the top and working your way down. It's been very well

organized.

wish best wishes,

--

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste