Re: Re: New Neuro says I'll end up in wheelchair......but I believe in LDN! What to do.

[Guest guest]

Very low carbing is advocated by Bernstein (google him for his books on low carbing) who manages his own Type 1 in that fashion. My mother manages her Type 2 via a carb restriction of 30 grams per day, which is his nominal suggestion.

I didn't know that mino was considered useful for MS. It is taken with good results for autoimmune conditions, such as scleroderma (which I have) and RA. But I don't know how you separate my formerly undiagnosed chronic Lyme from the autoimmune syndrome. I think it's all just a progression that can be managed. I've lived with it for maybe 25 years or so.

For use of antibiotics in autoimmune disease see www.roadback.org

[low dose naltrexone] Re: New Neuro says I'll end up in wheelchair......but I believe in LDN! What to do.

> Also look into the posts about stopping dairy and gluten as this may cause> the LDN to work less effectively (again, no "proof" on this, just the> experience of a few doctors). Disease progression that goes so quickly that> you notice significant increase in weakness in only a year is pretty> disturbing, especially if it is continuous and not occurring as part of> defined relapses (i.e. could it be possible that you are progressive> relapsing or primary progressive?).Even less proof, but some of the work by Dr. Wolfgang Lutz showed that serious carbohydrate restriction stopped the progression of MS. Some of this may have been _de facto_ reduction in grains, etc., but some of it may have been ketosis, or possibly some other (fairly sophisticated) aspects of biochemistry that I won't go into.His original book- Dismantling a Myth- is now next to impossible to find. Worldcat.org might turn up a copy near where you live. I can't remember his specific recommendations, but in "Life Without Bread," he recommends a limit of 72 grams/day of total carbohydrate- 6 "bread units," each comprised of 12 grams of carbohydrate.I would opine that carbohydrate restriction- to no more than 72 grams per day- combined with grain elimination and fish oil supplementation would be a good starting place. If that didn't halt progress, I'd suggest dropping the carbs even lower. If that didn't work, I'd look at minocycline. See also:http://www.davidwheldon.co.uk/ms-treatment1.html-AJ