RE: i am new to group

[Guest guest]

In a message dated 1/27/2007 2:05:43 AM Eastern Standard Time, sharonmilr@... writes:

Getting ready for surgery in April and need

What surgery are you having??

[Guest guest]

The first part of getting the right answers is asking the right questions,

and providing the right information... Are you going for a knee or hip

replacement?

In general, strengthen your legs and upper body as much as possible...

You'll need arm and shoulder strength to cope with the walker, crutches

and/or cane, getting in and out of bed, the bath and the toilet.

Which side of the bed depends on which side you're being operated on... If

you don't normally sleep on your back, be sure you're comfortable lying on

your unoperated side with a pillow or bolster between your legs to prevent

the operated leg from crossing your body's mid-line. It's unlikely you'll

be able to sleep on your operated side before the staples/stitches come out,

10 days to 2 weeks after surgery. I switched sides for the different

surgeries, left and right.

A day or two before surgery, get all the throw rugs, mats and anything else

you might trip over out of the way... Get a toilet booster and put at least

one grab bar by the toilet and another by the bath/shower. If necessary,

move the furniture around so you'll have clear paths for your needs... A

walker or crutches require a wider path than unassisted walking.

Build a positive attitude-- hip and knee replacements are not " experimental

surgery " ... Well over 90% are successful, and you have to decide that you're

not going to be one of the failures!

Best of luck and a quick recovery,

Greywolf - RTHR-2003; LTHR-2004

mdavison@...

I am new to group

Getting ready for surgery in April and need some answers. What kind of

exercise can I do to get ready for the operation? What side of the bed is

best?

--------------------------------------------

My mailbox is spam-free with ChoiceMail, the leader in personal and corporate

anti-spam solutions. Download your free copy of ChoiceMail from

www.digiportal.com

[Guest guest]

I feel it is best to use the side of the bed

opposite the side of your replacement. Take a few trial runs to make up

your own mind though. I just felt better if I could back up to the bed

and sit down, then when I swiveled so my head

was toward the pillow my operated leg was almost on the bed on it’s

own. Also when getting out of bed I could put

my “good” leg on the floor first to help me move around.

Any exercises you can do will help. Several members

have had really good luck with water exercise classes usually

at the Ymca/Ywca. Even the low cost, at home, laying

on the floor leg lifts are a help. No matter what exercises you do

mixing in stretches is important. Flexibility will be a big help when it

comes to healing.

[Guest guest]

>

>

> In a message dated 1/27/2007 2:05:43 AM Eastern Standard Time,

> sharonmilr@... writes:

>

> Getting ready for surgery in April and need

>

>

> What surgery are you having??

>

>

Sorry new to this. It will be the right hip replacement.

[Guest guest]

Hi Sharon- You may be interested in resurfacing. It can be checked

out by googleing BHR-resurfacing, or by going to the group

surfacehippy. It uses a ball that doesn't cut away as much bone from

the femur as does a THR, and uses a large diameter ball with a metal

on metal bearing surface. If you are young it gives the advantage of

being able to be revised to a total hip replacement (THR) at a later

date. I had a bilateral in October, the 17th & the 31st, & am very

happy so far.

Worth looking into. I am 45 years old & want to resume normal

activity, & from my research the resurfacing has fewer long term

restrictions than a traditional THR. So far I have got back to work

for about 2 weeks now, not full time, but pretty close, & am feel OK.

Quite happy with mine.

Peace

Hozak BHR 10/17-31/06

[Guest guest]

I just looked up Tysabri as I am trying to point a potential MS

sufferer (not yet diagnosed) in the right direction and on

http://www.medicalnewstoday.com/articles/149354.php it says Tysabri is

only approved for relapsing forms of MS. I don't have MS myself and am

therefore not as familiar as maybe I should be with MS abbreviations,

but always thought SPMS was secondary progressive??? If it is, what

the heck is the doc doing prescribing Tysabri for you? Lining his own

pocket????

Deborah C wrote:

hi everyone

i have spms the disease progression is now head to feet with severee burning of muscles/nerves, severe numbness, stiffness, weakness, and vibration throughtout body .over last week upper torso extremities, neck and facemore involved .have lesions on c4,5,6 and t4/MRI indicatres no ne activity, but neuro says old lesions are the culprit, indication inflamationof the degenerating knd. even my ribsm, front torso, and inside mouth experience these sensation, sometimes difficult to swallow, sems to be getting worse daily.

my question is there any of you who have spms and have had positive result from ldn, amd how long did it take for any positive results to be experienced,all info appreciatiated. like many have been on many conventional MS teatmentsto include iv prednisone, CRAB drugs, chemo. IVIG, and IV Vitamons, even one trial with stem cell (which i now believe was from a bogus sopurce, not because it did not work, but because source of tx was suspicious, a man represetning himself working for a stem cell facility ,later found out he was ruuning the business from his home and was working with the dr i saw in mexico who supposedly had his own clinic, upon arriving found he was working independently. probably was working on stem cells independently.was a bad experience and financially cost usa alot of money). was beginning beee venom ttreatmnet and ldn, but got scared with worsening symptoms and ran back to conventional tx one month ago started Tysabri, would now results, and my doc gave me

3 days (at 1000mg) of iv steriods, no resction. i will be returnining back to comventinal tx soon as tysabri washout period . found out from Tysabri nurse that neuro could have put me in jeopardy by giving me steriods with Tysabri, increasing my chances for PML.

All suggestions and input appreciated.neuro says no more conventional options left for me, and worsening symtoms of mobiltiy and dexterity issues advancing

Thanks,

Deborah Copeland

PS and yes i am a smoker struggling to qutiot dow to ten cigarettes daily

[Guest guest]

Deborah,Don't expect miracles from LDN. I was diagnosed with Multiple Sclerosis in 2006. I used Rebif for 2 years with no remission. I switched to Copaxone and then stopped when the progression continued and I was diagnosed with Primary Progressive MS.I've tried a multitude of alternative and complementary treatments and supplements (as well as IV steroids), to no avail. I started LDN 6 months ago (3 mg to 4.5 mg nightly) and am still drastically progressing. I've had no reversal of symptoms. I do not smoke or drink and, aside from the MS, am in good health. I am almost completely incapacitated and require a wheelchair.My hope lies with stem cell or

CCSVI treatment, which is years away from being practical or available.I hope you are one of the lucky few who benefits from taking LDN. I just want you to be prepared in case LDN does not work for you.CarolynFrom: Deborah C <jadeworldexplorer@...>low dose naltrexone Sent: Wed, January 6, 2010 6:09:46 AMSubject: [low dose naltrexone] i am new to group

hi everyone

i have spms the disease progression is now head to feet with severee burning of muscles/nerves, severe numbness, stiffness, weakness, and vibration throughtout body .over last week upper torso extremities, neck and facemore involved .have lesions on c4,5,6 and t4/MRI indicatres no ne activity, but neuro says old lesions are the culprit, indication inflamationof the degenerating knd. even my ribsm, front torso, and inside mouth experience these sensation, sometimes difficult to swallow, sems to be getting worse daily.

my question is there any of you who have spms and have had positive result from ldn, amd how long did it take for any positive results to be experienced, all info appreciatiated. like many have been on many conventional MS teatmentsto include iv prednisone, CRAB drugs, chemo. IVIG, and IV Vitamons, even one trial with stem cell (which i now believe was from a bogus sopurce, not because it did not work, but because source of tx was suspicious, a man represetning himself working for a stem cell facility ,later found out he was ruuning the business from his home and was working with the dr i saw in mexico who supposedly had his own clinic, upon arriving found he was working independently. probably was working on stem cells independently. was a bad experience and financially cost usa alot of money). was beginning beee venom ttreatmnet and ldn, but got scared with worsening symptoms and ran back to conventional tx one month ago started Tysabri, would now

results, and my doc gave me 3 days (at 1000mg) of iv steriods, no resction. i will be returnining back to comventinal tx soon as tysabri washout period . found out from Tysabri nurse that neuro could have put me in jeopardy by giving me steriods with Tysabri, increasing my chances for PML.

All suggestions and input appreciated. neuro says no more conventional options left for me, and worsening symtoms of mobiltiy and dexterity issues advancing

Thanks,

Deborah Copeland

PS and yes i am a smoker struggling to qutiot dow to ten cigarettes daily

[Guest guest]

Get a lyme test from Igebex. If you have lyme, LDN will not be very helpful. Also, if you have taken antibiotics, and have yeast problems [hidden] it will not allow LDN to work. Baically LDN balances the immune system,if immune system can not work properly,it might be other causes. It is complicated on the face, but simple funtionally. Mold environment can cause huge health problems,without your knowledge. Many other areas can also cause problems,common sense is helpful. Many times it is an overlooked problem.

From: low dose naltrexone on behalf of Carolyn SellSent: Wed 1/6/2010 3:44 PMlow dose naltrexone Subject: Re: [low dose naltrexone] i am new to group

Deborah,Don't expect miracles from LDN. I was diagnosed with Multiple Sclerosis in 2006. I used Rebif for 2 years with no remission. I switched to Copaxone and then stopped when the progression continued and I was diagnosed with Primary Progressive MS.I've tried a multitude of alternative and complementary treatments and supplements (as well as IV steroids), to no avail. I started LDN 6 months ago (3 mg to 4.5 mg nightly) and am still drastically progressing. I've had no reversal of symptoms. I do not smoke or drink and, aside from the MS, am in good health. I am almost completely incapacitated and require a wheelchair.My hope lies with stem cell or CCSVI treatment, which is years away from being practical or available.I hope you are one of the lucky few who benefits from taking LDN. I just want you to be prepared in case LDN does not work for you.Carolyn

From: Deborah C <jadeworldexplorer >low dose naltrexone Sent: Wed, January 6, 2010 6:09:46 AMSubject: [low dose naltrexone] i am new to group

hi everyonei have spms the disease progression is now head to feet with severee burning of muscles/nerves, severe numbness, stiffness, weakness, and vibration throughtout body .over last week upper torso extremities, neck and facemore involved .have lesions on c4,5,6 and t4/MRI indicatres no ne activity, but neuro says old lesions are the culprit, indication inflamationof the degenerating knd. even my ribsm, front torso, and inside mouth experience these sensation, sometimes difficult to swallow, sems to be getting worse daily.my question is there any of you who have spms and have had positive result from ldn, amd how long did it take for any positive results to be experienced, all info appreciatiated. like many have been on many conventional MS teatmentsto include iv prednisone, CRAB drugs, chemo. IVIG, and IV Vitamons, even one trial with stem cell (which i now believe was from a bogus sopurce, not because it did not work, but because source of tx was suspicious, a man represetning himself working for a stem cell facility ,later found out he was ruuning the business from his home and was working with the dr i saw in mexico who supposedly had his own clinic, upon arriving found he was working independently. probably was working on stem cells independently. was a bad experience and financially cost usa alot of money). was beginning beee venom ttreatmnet and ldn, but got scared with worsening symptoms and ran back to conventional tx one month ago started Tysabri, would now results, and my doc gave me 3 days (at 1000mg) of iv steriods, no resction. i will be returnining back to comventinal tx soon as tysabri washout period . found out from Tysabri nurse that neuro could have put me in jeopardy by giving me steriods with Tysabri, increasing my chances for PML.All suggestions and input appreciated. neuro says no more conventional options left for me, and worsening symtoms of mobiltiy and dexterity issues advancingThanks,Deborah CopelandPS and yes i am a smoker struggling to qutiot dow to ten cigarettes daily

[Guest guest]

Thanks Ron.I actually was told by another member of this group that Lyme could be the culprit. I started Samento but am out of it now and have to order more. I'm going to try another antimicrobial (Cumanda or Quina) in addition to the Samento. Unfortunately, I can't afford the Lyme test right now. I am one of the unlucky uninsured of this country who lost health insurance when my former employer went out of business (no more COBRA). I am receiving Social Security Disability, but there is a mandatory 2 year waiting period for Medicare from receipt of your 1st disability payment. I have another year and a half before Medicare kicks in.I have also just started the Gold

Coast Cure diet which is designed as an anti-inflammatory diet for people with MS and other diseases. It is pro whole grains and good fats, rather than white flour, saturated fats and trans fats. Though the diet still allows whole wheat, low-fat dairy, and good sugars, I am consciously eliminating those things from my diet in case yeast is an issue. (I never overindulged in those thing to begin with.)I live in an upstairs apartment in Austin, TX. Mold isn't an issue for me now, though has been a problem for me in the past.I am still going to take the LDN because it isn't harming me as far as I can tell, and with luck may be of benefit to me in the future.Thanks again,CarolynFrom: Ron Ball <RBALL@...>Carolyn Sell <cvaughansell@...>; low dose naltrexone Sent: Wed, January 6, 2010 5:52:08 PMSubject: RE: [low dose naltrexone] i am new to group

Get a lyme test from Igebex. If you have lyme, LDN will not be very helpful. Also, if you have taken antibiotics, and have yeast problems [hidden] it will not allow LDN to work. Baically LDN balances the immune system,if immune system can not work properly,it might be other causes. It is complicated on the face, but simple funtionally. Mold environment can cause huge health problems,without your knowledge. Many other areas can also cause problems,common sense is helpful. Many times it is an overlooked problem.

[Guest guest]

Moinocycline is best antibiotic for lyme. You can do it 50mg every other day, and do probiotics heavy on off days. This will help kill lyme. No as good AS THE mARSHALL pROTOCOL BUT VERY HELPFUL. mino is cheap, can get off internet [Canada] pretty cheap.

From: low dose naltrexone on behalf of Carolyn SellSent: Wed 1/6/2010 4:17 PMlow dose naltrexone Subject: Re: [low dose naltrexone] i am new to group

Thanks Ron.I actually was told by another member of this group that Lyme could be the culprit. I started Samento but am out of it now and have to order more. I'm going to try another antimicrobial (Cumanda or Quina) in addition to the Samento. Unfortunately, I can't afford the Lyme test right now. I am one of the unlucky uninsured of this country who lost health insurance when my former employer went out of business (no more COBRA). I am receiving Social Security Disability, but there is a mandatory 2 year waiting period for Medicare from receipt of your 1st disability payment. I have another year and a half before Medicare kicks in.I have also just started the Gold Coast Cure diet which is designed as an anti-inflammatory diet for people with MS and other diseases. It is pro whole grains and good fats, rather than white flour, saturated fats and trans fats. Though the diet still allows whole wheat, low-fat dairy, and good sugars, I am consciously eliminating those things from my diet in case yeast is an issue. (I never overindulged in those thing to begin with.)I live in an upstairs apartment in Austin, TX. Mold isn't an issue for me now, though has been a problem for me in the past.I am still going to take the LDN because it isn't harming me as far as I can tell, and with luck may be of benefit to me in the future.Thanks again,Carolyn

From: Ron Ball <RBALLGoodmanBall>Carolyn Sell <cvaughansell >; low dose naltrexone Sent: Wed, January 6, 2010 5:52:08 PMSubject: RE: [low dose naltrexone] i am new to group

Get a lyme test from Igebex. If you have lyme, LDN will not be very helpful. Also, if you have taken antibiotics, and have yeast problems [hidden] it will not allow LDN to work. Baically LDN balances the immune system,if immune system can not work properly,it might be other causes. It is complicated on the face, but simple funtionally. Mold environment can cause huge health problems,without your knowledge. Many other areas can also cause problems,common sense is helpful. Many times it is an overlooked problem.