Guest guest Posted January 10, 1999 Report Share Posted January 10, 1999 Hello, This is weird my mother has been allergic to gluten for probably twenty years and never had a thyroid problem. Raven BU007@... wrote: In a message dated 1/7/00 10:39:43 PM !!!First Boot!!!, siuan.mcgahan@... writes: << Dairy especially causes me real trouble. But sugar, refined grains and processed foods totally contribute to what feels like lead in my blood. Siuan>> Hi Everyone, What we can't eat can tell us a great deal about what is wrong with us. A healthy person can eat any food and feel fine because they have the nutritional stores to make up for anything that is missing in the food. However, a person who is not healthy will find that certain foods create a problem. What foods create a problem can give us clues about what deficiencies we have. I don't mean to imply that if you're healthy you should eat anything, because eating nutrient deficient foods will eventually lead to deficiencies. Hypers and hypos can have difficulty with dairy products and as, Suian stated, with "sugar, refined grains and processed foods". We've talked about hypers having trouble with dairy before, but I'd like to revisit this whole issue because I've recently found some new information about it. Hypers in particular can have trouble with dairy. The added iodine in dairy can certainly be a problem for hypers because as long as there is a copper deficiency, any extra iodine will increase thyroid hormone production. Some people use iodine restriction to control hyper symptoms, but I don't think this is a very effective or safe method. First of all, our bodies store iodine and usually have enough for several months, but secondly, and most important, iodine deficiency is associated with thyroid cancer. It's definitely not worth risking thyroid cancer for a short term benefit, which isn't needed. The more important reason to avoid dairy, especially at the beginning, is that dairy is very high in calcium and low in magnesium. Hypers, and possibly hypos, are magnesium deficient, and this is one of the major reasons why hypers get very rapid heartbeat. I found that magnesium was indispensible in the control of heart problems. One time the point was made very strongly for me. I was seeing a chiropractor because of neck pains which I thought might be related to my thyroid problem. Since I was having difficulty absorbing calcium and magnesium, I asked him if he had any good supplements. He had just started carrying a chewable calcium supplement which was supposed to be extremely absorbable and he gave me some to try. I asked him if it also contained magnesium and he assured me that it did. After three days taking it, my heart rate was very high and irregular and I was in really bad shape. I called him up and had him call the manufacturor of the supplement to verify that it had magnesium in it. He called me back a few hours later and told me that this particular batch was made without magnesium--it was all calcium. I really learned how damaging a high calcium/low magnesium intake can be, and dairy products are exactly this type of food. The new information that I recently found was surprising, yet it tied in with my present theories about thyroid disease. The study (I've included the abstract), shows that there is an abnormally high association between celiac disease and autoimmune thyroid disease. In celiac disease, there is a pasty covering of the intestinal tissues and this interferes with nutrient absorption. People with celiac disease, as the article states, often have autoimmune diseases, and in my opinion, this is the result of nutrient deficiencies. The standard treatment for celiac disease is to put the patient on a gluten-free diet. Gluten is the pasty starch which makes up a large part of the seed of grains like wheat. When the grains are processed and the hulls and germs are removed, the gluten content increases significantly. The fiber in whole grains is important because it acts as a broom to sweep out the starchy gluten which sticks to the intestinal walls. Many people with thyroid disease will find that high gluten grains, especially white wheat flour products, will aggravate their diseases. The problem is two-fold, for not only are these foods low in essential nutrients, but the gluten binds to the intestinal walls and interferes with nutrient absorption. Because of the extreme importantance of having good digestion so that you assimilate all the nutrients from your food, I would suggest that everyone make an extra effort to concentrate on intestinal health by eating a high-fiber/low gluten diet. Poor nutrient assimilation in the intestines is probably the most important cause of autoimmune throid disease. Here's the study: Eur J Gastroenterol Hepatol 1998 Nov;10(11):927-31 Autoimmune thyroid diseases and coeliac disease. Sategna-Guidetti C, Bruno M, Mazza E, Carlino A, Predebon S, Tagliabue M, Brossa C Department of Internal Medicine, Cattedra di Gastroenterologia, Universita' di Torino, Italy. BACKGROUND: Coeliac disease may be associated with a wide variety of diseases of known or suspected immunological aetiology. OBJECTIVE: To screen for both (a) the prevalence of coeliac disease in adults with autoimmune thyroid diseases, and ( thyroid impairment among adults with coeliac disease, as compared to sex- and age-matched controls. DESIGN: Prospective cohort study. SETTING: University teaching hospital. PATIENTS: A total of 152 consecutive adults with autoimmune thyroid diseases, 185 consecutive coeliac disease patients (53 newly diagnosed and 132 already on a gluten-free diet) and 170 sex- and age-matched controls. METHODS: Screening for coeliac disease was done by means of IgA anti-endomysium antibodies, detected by indirect immunofluorescence on monkey oesophagus. Patients with positive sera underwent duodenal biopsy for diagnostic confirmation. Thyroid function was assessed by measuring the levels of serum thyroid-stimulating hormone, free T3, free T4, thyroperoxidase and thyroid microsome antibodies. Autoimmune thyroid diseases were classified according to the American Thyroid Association guidelines. RESULTS: Anti-endomysium antibodies were positive in five of 152 autoimmune thyroid disease patients (3.3%) and coeliac disease was histologically confirmed in all: this prevalence is 10-fold higher than expected. Only one patient presented with gastrointestinal complaints, but iron deficiency was found in three and alterations at bone mineralometry in all. The overall prevalence of autoimmune thyroid diseases was significantly higher (38/185, 20.5%) in coeliac patients than in controls (19/170, 11.2%). The prevalence of both hypo- and hyperthyroidism was not different from that of controls, while the prevalence of autoimmune thyroid disease with euthyroidism was 13% in patients and 4.7% in controls. CONCLUSIONS: The association of coeliac disease with autoimmune thyroid disease is not surprising as they share common immunopathogenetic mechanisms. It is advisable to screen autoimmune thyroid disease patients for coeliac disease as there is an increased risk for gluten intolerance. In contrast, thyroid function assessment in coeliac disease patients is probably less justified, although the need for a strict clinical follow-up of those patients with euthyroidism and autoimmune thyroid disease, who could develop overt thyroid impairment, remains an open question. PMID: 9872614, UI: 99087649 eGroups.com Home: hyperthyroidism www. - Simplifying group communications -- MZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2001 Report Share Posted February 25, 2001 Kathy, thank you for posting this! Actually, NONE should be consumed. There have been studies that show that seizures increase after eating gluten! At 09:16 AM 2/22/01 -0800, you wrote: >[Too much gluten is not good.] >http://www.smh.com.au/news/0102/20/features/features3.html > > Research into the diet of ancient hunter-gatherers shows that our diet >of cereals and grain-fed meat is not what we have evolved to eat, writes > Macgregor. > A group of scientists, from dozens of disciplines, has lately started >to put together a model of the diet " designed " by evolution for the human >body. When the dust settles on their investigations, most of today's >arguments about human nutrition might have been laid to rest. > The new field of " evolutionary diet " is (literally) unearthing the >dietary patterns of our paleolithic ancestors. The paleolithic was >humanity's final formative period, stretching for hundreds of thousands of >years, and culminating about 10,000 years ago. > After this time, cereal crops were domesticated, and humankind began >to eat grains. This was a dramatic departure - until that moment we had >evolved for at least 2 million years as hunter-gatherers and scavengers. > A scientist who has researched paleolithic diet for many years, >Professor Loren Cordain of Colorado State University, says that after humans >started domesticating crops, low levels of vitamins, minerals and amino >acids led to " poor general health " - and a drop in human stature of 10 to 15 >centimetres. Cordain is perhaps the world authority on evolutionary diet, or > " paleodiet " . Paleodiet information is derived, he says, from the fossils of >many human individuals, of up to 2.4 million years old. > He says that the change to an agricultural diet led to " an increase in >infant mortality, a reduction in life span, an increased incidence of >infectious diseases, an increase in iron deficiency anemia, an increased >incidence of ... bone mineral disorders and an increase in the number of >dental caries " . > Another paleo-scientist, Professor Arthur de Vany of California State >University, puts it more pointedly: " It is easy to tell from the skeletons >of our ancestors whether they were agriculturists or hunter-gatherers. The >agriculturists have bad teeth, bone lesions, small and underdeveloped >skeletons, and small craniums, compared to hunter-gatherers. " > Naturally these findings have prompted closer study of what we were >eating before the advent of agriculture - when there were lower levels of >disease. It has posed the question: which foods has evolution equipped homo >sapiens to thrive on? > Work is not complete on this, but some broad facts are emerging. First >and foremost is that humans, and pre-humans, have eaten meat continuously >for 2 to 3 million years. Meat has, for the most part, been the largest >single component of the human diet. Our ancestors were likely more >interested in animals' organs - tongue, heart, liver, kidney - than the >flesh, the former having greater micronutrients and " good " fats. > Paleolithic humans' carbohydrate came chiefly from roots, tubers, >leaves and wild fruits. But modern humans can't take this as licence to eat >large amounts of fruit. " Ancestral " fruit was vastly less sugary than >today's selectively bred varieties, and far more fibrous. Replicating it >from your greengrocer would necessitate concentrating on vegetables and " low >glycemic index " (less sugary) fruit. > Cordain believes today's surviving hunter-gatherers provide a fair >guide to the ratio of plant-to-animal food in the paleolithic diet: his >surveys reveal that these people eat up to 65 per cent of their calories in >animal food, and 35 per cent in plant food. > The present animal-plant ratio in the US diet is 38:62 - a >near-reversal of the evolutionary pattern. Cordain cites these macronutrient >ratios, in calories: > paleolithic: fat-22% protein-37% carbohydrate-41% > US today: fat-34% protein-15.5% carbohydrate-49% > So we now eat more than 50 per cent more fat than we evolved on - and >much of it " new " fats, notably those in oils and dairy. But the larger >difference is in our protein consumption - which is less than half what it >was. But today's meat-eater should be careful in emulating paleolithic >protein intakes, too. Ancestral game was free-ranging, and highly active. >Today's slaughter animals are often fed a diet high in cereals - which does >to animals what it does to humans: kicks up insulin, which tells the body to >store fat. Paleo-scientists counsel eating white or lean meat. > The ancestral record does not support the SAD (standard Australian >diet) - but neither does it add credence to diets seen as " natural " by >vegetarians, fruitarians, natural hygienists, macrobiotic followers and >their countless splinter groups. > There have been striking individual health improvements in those >applying paleodiet principles - including remissions from chronic fatigue, >autism, diabetes and MS. But these are one-offs. There have, as yet, been no >clinical trials of the paleolithic diet AND THERE NEVER WILL BE there' s no MONEY in it!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 Raven, lots of people think that because they show a sensitivity to gluten that they can't take any supplements with gluten as an ingredient. I would have thought so, too, but Reliv is changing my mind. About a lot of things. People with Thyroidism do wonderfully on the products. I got the chance to meet someone that I've been trying to reach on the phone for weeks now, over the weekend. Martha Heist has Graves and uses Reliv supplements. She was down to 89# before she started taking them. Now she looks healthy as a horse! I'd love to have you talk to her! Let me know if you'll have a few minutes to talk on the phone. It's the same with gluten intolerance. Lots of autistic children have gluten and casein (dairy) intolerance. They use the basic nutrition along with the Innergize and they see dramatic changes in behavior, bowel function, allergies, concentration, you name it. It's really wonderful! And there is a small amount of gluten and casein in the basic nutrition. It doesn't seem to matter because of the balance of nutrients in that stuff. They all work together; the company refers to it as "synergism." And your body can then heal itself properly. I don't know that gluten intolerance causes thyroidism, but it's possible, I suppose. The key is to solve the intolerance problem. That's what the products do. They work to balance the body in all areas, allergies being an imbalance. If your sister has digestive problems (which I'm sure she does), she'll see a big change after her initial detoxification period. During that time the body is doing a lot of house cleaning and some people feel a little worse before they feel better. But ya keep taking the supplements and get through that quickly so that the body can begin to heal. Hope I've helped some, Raven. Let me know when I can hook you or your sister up with Martha. If you want to go ahead and jump right into the product, you can do that, too. Let me know. Donna http://trak.to/lifewww.reliv.comTake control of your health! Gluten Donna,What was found out about gluten?? My sister is hypo and has learned thatgluten allergy could cause thyroid problems and other auto immunedisorders.Raven Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 In a message dated 7/26/01 5:26:52 PM Central Daylight Time, roberts5@... writes: Subj:Re: Gluten Date:7/26/01 5:26:52 PM Central Daylight Time From: roberts5@... (DONNA & JERRY ROBERTS) Reply-to: hyperthyroidism hyperthyroidism Good for you, Raven! Low fat diets are the best thing we can do for our bodies, besides Reliv, of course! LOL! You've got to get the proper nutrition along with the low fat diet. Food that you buy in the grocery store just can't do it all anymore. You've hit the nail on the head when you're telling me about the fat/muscle thing. Lots of us try to lose fat and end up losing muscle. Soy burns fat and builds muscle. Martha told me she'd be glad to talk to us. Zap me your phone number and I'll pin her down (she's very active now that she's feeling good). I didn't ask her, but she's about 40ish. Anyway, zap me your phone number and I'll get Martha on the phone. When are you home? Donna Donna, I'm home now. It is 8:30 my time. I will be up until about 10:00. I'll be here tomorrow night from about 5 on..just give me a time.. my number is 615-833-6369. I can call her free on my cell phone after 8. Thanks Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 Donna, I have been doing great with a low fat high protein diet. My thyroid is a 8th of the size it was when I started and I feel better and can take the 90degree+ weather we are having a lot better too. I would like to your friend Martha. I was 175lbs when this started and before i knew what was happening to me I was 129lbs. Then I decided to gain weight and went up to 170 but I had a problem gaining muscle and that was not good. So I when to the gym and started lifting weights and I'm back to 150lbs and feeling better than I have in a long time! No fat lots of muscle a better combo for me. Raven DONNA & JERRY ROBERTS wrote: Raven, lots of people think that because they show a sensitivity to gluten that they can't take any supplements with gluten as an ingredient. I would have thought so, too, but Reliv is changing my mind. About a lot of things. People with Thyroidism do wonderfully on the products. I got the chance to meet someone that I've been trying to reach on the phone for weeks now, over the weekend. Martha Heist has Graves and uses Reliv supplements. She was down to 89# before she started taking them. Now she looks healthy as a horse! I'd love to have you talk to her! Let me know if you'll have a few minutes to talk on the phone. It's the same with gluten intolerance. Lots of autistic children have gluten and casein (dairy) intolerance. They use the basic nutrition along with the Innergize and they see dramatic changes in behavior, bowel function, allergies, concentration, you name it. It's really wonderful! And there is a small amount of gluten and casein in the basic nutrition. It doesn't seem to matter because of the balance of nutrients in that stuff. They all work together; the company refers to it as "synergism." And your body can then heal itself properly. I don't know that gluten intolerance causes thyroidism, but it's possible, I suppose. The key is to solve the intolerance problem. That's what the products do. They work to balance the body in all areas, allergies being an imbalance. If your sister has digestive problems (which I'm sure she does), she'll see a big change after her initial detoxification period. During that time the body is doing a lot of house cleaning and some people feel a little worse before they feel better. But ya keep taking the supplements and get through that quickly so that the body can begin to heal. Hope I've helped some, Raven. Let me know when I can hook you or your sister up with Martha. If you want to go ahead and jump right into the product, you can do that, too. Let me know. Donnahttp://trak.to/life www.reliv.com Take control of your health! Gluten Donna, What was found out about gluten?? My sister is hypo and has learned that gluten allergy could cause thyroid problems and other auto immune disorders. Raven Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 Good for you, Raven! Low fat diets are the best thing we can do for our bodies, besides Reliv, of course! LOL! You've got to get the proper nutrition along with the low fat diet. Food that you buy in the grocery store just can't do it all anymore. You've hit the nail on the head when you're telling me about the fat/muscle thing. Lots of us try to lose fat and end up losing muscle. Soy burns fat and builds muscle. Martha told me she'd be glad to talk to us. Zap me your phone number and I'll pin her down (she's very active now that she's feeling good). I didn't ask her, but she's about 40ish. Anyway, zap me your phone number and I'll get Martha on the phone. When are you home? Donna http://trak.to/lifewww.reliv.comTake control of your health! Gluten Donna, What was found out about gluten?? My sister is hypo and has learned that gluten allergy could cause thyroid problems and other auto immune disorders. Raven Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2002 Report Share Posted April 27, 2002 Hi Zoe, Thanks for the Links on Celiac Disease. Also Dr. Hulda mentions Gluten many times in her book, "The Cure For All Diseases." Here are just a couple from the book: Concerning Epilepsy: Avoid Ergot in food. Eat no whole grain products; take niacinamide 500 mg three times a day to help the liver detoxify tiny bits (Ergot) in other foods. Important Note: (Over 500 milligrams of Niacin daily may cause liver damage if taken for prolonged periods. From:Prescription For Nutritional Healing) A couple case histories: Kim , almost two years old, had lots of ear infections. It started at eight months so the mother took her off cow's milk and wheat. This stopped her ear infections until mid-winter. She had to be back on antibiotics and a few months ago the doctor began discussing tube implants with her since she was still on antibiotics (six months). Another ear, nose and throat doctor agreed with this opinion, but was willing to wait until Autumn. The baby had been passing a lot of undigested food and was unhappy. They were vegetarians. The baby nursed. Our test showed pancreatic fluke infestation; this would easily lead to bad digestion, especially of milk and gluten in wheat. Fortunately, she was nursed throughout, in spite of going to daycare. Simply killing the parasites (in both mother and baby) solved both problems and she did not need to come back. The ear infections were probably caused by bacteria and viruses brought in by the parasites. Prout, age 36, brought her three children because of their poor health. They all, including herself, had stomach problems, a lot of allergies, asthma, ear infections, and milk intolerance. One boy, age 8, was intolerant of both milk and wheat and hadn't had them for years. He was infested with two kinds of Ascaris and pancreatic flukes. His sister, Nola, had itching legs and headaches besides; she was toxic with bismuth and antimony (from shampoo fragrance and laundry fragrance). She also showed a build up of vanadium, implying a gas leak in the home. The youngest, age 5, had frequent stomach aches and vomiting. It was a simple matter to kill Ascaris electronically at 408 KHz and the pancreatic fluke with all its stages (421 through 434) after which the children did fine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2003 Report Share Posted May 12, 2003 the react, resonance and coherence suggest an acute or long term need for that item (1809? Gluten) re your attachment. If allergic would expect a negative difference number (allergy higher than reactivity). Barry at QWC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 I am, and I have IBS.Lona <lalalona@...> wrote: I am suspecting IBS is part of candida. Wondering how many of you areaffected by gluten?LonaMy Journal: http://tahomagirl.comThe real and lasting victories are those of peace, and not of war--Ralph Waldo Emerson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Wow, that's tough. I would get yourself a great naturopath and/or nutritionist. I get my fiber from flax seed, raw veggies, and fruits. Maybe you can eat cooked veggies? Best, Lona <lalalona@...> wrote: Since I can't digest nuts, seeds, ect, or raw veggies, how do you eat? Whatdo you eat? I have to have fiber from somewhere.Lona> I am, and I have IBS.>> Lona <lalalona@...> wrote:I am suspecting IBS is part ofcandida. Wondering how many of you are> affected by gluten?> Lona>> My Journal: http://tahomagirl.com> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Since I can't digest nuts, seeds, ect, or raw veggies, how do you eat? What do you eat? I have to have fiber from somewhere. Lona > I am, and I have IBS. > > Lona <lalalona@...> wrote:I am suspecting IBS is part of candida. Wondering how many of you are > affected by gluten? > Lona > > My Journal: http://tahomagirl.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Lona A lot of people can digest lightly steamed veggies also.... Kathy -- Re: gluten Wow, that's tough. I would get yourself a great naturopath and/or nutritionist. I get my fiber from flax seed, raw veggies, and fruits. Maybe you can eat cooked veggies? Best, Lona <lalalona@...> wrote: Since I can't digest nuts, seeds, ect, or raw veggies, how do you eat? What do you eat? I have to have fiber from somewhere. Lona > I am, and I have IBS. > > Lona <lalalona@...> wrote:I am suspecting IBS is part of candida. Wondering how many of you are > affected by gluten? > Lona > > My Journal: http://tahomagirl.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 I wish? Since I had chemo and my mastectomy, and believe it or not, when I go to Physical Therapy my tummy rumbles? There must be a meridian between the Axilla/ chest wall and stomach? My digestion was not good before, now having a good day is about once a month. Lona Lona A lot of people can digest lightly steamed veggies also.... Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 I have Celiac Disease, which is an auto-immune reaction to gluten. I would suggest that if you are having a reaction to gluten you should go to your doctor and have him run the tests for Celiac Disease. It is a very serious condition which can have no obvious symptoms, but can be making you very sick. The only true cure is to remove all gluten from the diet. It is best if you find out for sure if you have this. Michele > I am suspecting IBS is part of candida. Wondering how many of you are > affected by gluten? > Lona > > My Journal: http://tahomagirl.com > > The real and lasting victories are those of peace, and not of war > --Ralph Waldo Emerson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2006 Report Share Posted August 5, 2006 > Bee, > > How does a gluten free diet affect your diet? Also, I havent seen a > post from elyse in a while....do you know how she is doing? > sue ==>I do not understand your question about a gluten-free diet. Are you asking about my personal diet, or a general question about how it affects candida sufferers' diet? The way it affects candida sufferers' diet is that they do not eat any grains of any kind, and avoid gluten in supplements. Of course they will avoid gluten in foods by not eating any processed foods as recommended. Here's more info from my article: " Most Candida sufferers are gluten intolerant. Gluten is an elastic gluey protein found in wheat, rye, barley, oats, spelt, kamut, triticale, and it is hidden in an endless variety of processed foods. Triticale is a new hybrid grain with the properties of wheat and rye, while spelt and kamut are gluten-containing wheat variants (despite claims to the contrary) and are likely to cause problems similar to other wheat varieties. All grains feed Candida because they have a high glycemic index just like sugar, and like sugar they feed the Candida creating insulin resistance within the cells which leads to blood sugar problems like hypoglycemia and diabetes, and to high blood pressure. Gluten is a protein that is very difficult to digest, and causes a great deal of intestinal damage. This damage, combined with the effects of yeast overgrowth, makes the intestines incapable of absorbing nutrients such as proteins, carbohydrates, fats, vitamins, minerals, and even water, in some cases. Our grain food supply also contains mycotoxins (a toxin produced by a fungus), especially found in corn and wheat. This inherent in the grain during growth and it cannot be removed. Mycotoxins suppress immune function. See the section on Yeast, Mold and Fungus for more information. " Bee > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2009 Report Share Posted December 7, 2009 Hi Diane,  Well I'll give it a whirl but I think eliminating it forever is not feasible for me. I guess I just have to get used to the diet change. Gluten free just doesn't taste as good you know.  Sounds like your are struggling right now. Loni I am doing the Mark Hyman's diet with no gluten & dairy I am having a bit more energy. Hard to cut out all together however.  My 2 cents: Loni, often when you respond to going gluten-free and dairy-free, it is necessary to bite the bullet and go completely gf and df. Also, it would be good for you to eventually determine which type of gf and df diet you should follow long term—df can mean lactose-free or casein-free. Gf can be any thing from wheat-free to wheat, rye, and barley-free; or that plus oats and millet-free, as well. And in some cases even corn-free.  For a casein-free diet you would need to totally go dairy-free. For a lactose-free diet, you can actually buy lactose added dairy products, such as “Lactaid Milkâ€, and so complete compliance is not necessary. But if you need to go casein-free, you won’t be doing yourself a favor by cheating, as cheating can cause gut damage. Mark Hyman’s diet (I am not familiar with it, but know a lot about gf and df diets in general) probably is operating on the principal that glutens and dairy can cause gut damage in susceptible people. This gut damage increases the likelihood that metals and parasites (the general term, not specifically “parasitesâ€) will enter the bloodstream and take up residence in the organs. So complete compliance is a necessity and just lowering the amount of these gut “poisons†will not do the job.  Sometimes, however, you can go back to a lactose-free diet in a year, after the gut damage is repaired.  If gluten or casein has caused gut damage, it is not likely you will ever tolerate it enough to add it back, unless you are able to try something different, such as durum wheat (that has not been proven to work, but there is research on this possibility currently going on.)  There are sites dedicated to these diets which help you choose foods you can eat, which might help you, Loni. Like the celiac gf diets, casein-free diets intend to eliminate dairy from even manufactured foods, so it isn’t as easy as just not having milk and cheeses, for instance. So, YES, it is fairly difficult to accomplish. Here is one site which keeps a gf/cf manufacturer’s food list:  http://www.gfcfdiet .com/  Scroll down to the bottom of the page to where it says “Directory of Website†and that will take you to a page with alphabetical links to the particular types of foods you might be looking for.  Hope this helps you with your dieting, Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2010 Report Share Posted August 27, 2010 Way to go! If you carry gene can you still & nbsp;not have celiac?? -- Sent from my Palm Pre On Aug 27, 2010 1:14, & lt;collins.kristin@... & gt; wrote: & nbsp; Hi I'm a nurse that was misdiagnosed with Celiac Disease and through determination diagnosed myself with Lyme and found a doctor to treat and confirm. & nbsp; I followed a gluten free diet religiously for 1 1/2 years and just started eating gluten again with no problems. & nbsp; I started treatment last October and had a PICC line for 6 months and am now on oral antibiotics and many other supplements. & nbsp; When I hit rock bottom in 2008, after questioning the Celiac diagnosis I sent out some of my own tests to Enterolab. & nbsp; They tested a stool speciman for dairy, gluten, soy, yeast and egg. & nbsp; I was intolerant to all of them. & nbsp; I also did the genetic testing through them and did not carry the Celiac genes but did carry two genes for gluten intolerance. & nbsp; My mother was also tested and she only carries one gene therefore the other gene came from my father. & nbsp; It is believed that the gluten intolerance was enacted by the Lyme. & nbsp; 70% of your immune system is in your gut, so when your gut is messed up your messed up. It was very challenging to be so sick and then not be able to eat the thiongs you were familiar with. & nbsp; It was very worth it. & nbsp; I do not go overboard and do avoid sugar. & nbsp; I had extreme bloating and major cognitive changes whenI ate gluten. & nbsp; It's like it built up over time. & nbsp; It is suspected i got Lyme in Sept. 2006 and was finally officially diagnosed in Oct. 2009. & nbsp; Gluten and dairy our inflammatory foods as is Lyme so I do believe you can eat gluten again once you heal your gut. & nbsp; I take alot of probiotics, 3 per day. & nbsp; I also had antigen testing done from a homeopathic doctor and was severely sensitive to yeast. & nbsp; (buckled over pain, etc...) & nbsp; The antigen testing for yeast was recently repeated and I had no reaction so opted to try the gluten again and so far so good. & nbsp; It's only been a few weeks. & nbsp; I hadmy neurtrasmitter levels checked also and the glutamate was the only one that was in good shape and that is involved with your intestinal track. Doctor finally allowed me to go for it. Heal your gut and give it a try. & nbsp; I was petrefied to even try gluten again because of the cognitive issues they caused. & nbsp; I had negative blood tests for Celiac and by scope revealed lymphocytosis but not classic sloughing off of the cilia. & nbsp; I plan to still return to the multiple GI doctors I saw and teach them a few things, I only hope that they will keep and open mind and not have an ego issue. & nbsp; Best of luck and let me know how you're doing. & nbsp; I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2010 Report Share Posted August 27, 2010 I just wanted to chime in on this thread...please, please do not misconstrue what I am about to say...I'd be remiss though if I didn't speak up here...I was on a similar gluten roller coaster for years, celiac/not celiac, sensitive/intolerant, gluten-free, not gluten free etc., tests/biopsies galore -- I had periods after maintaining gluten free for years at a time where I just couldn't bear it anymore (I happen to be half Italian and the pasta thing is murder)...I always opted to reintroduce it when I could handle it with no immediate problems again...and inevitably, over some time, in a like cumulative manner, things would start to creep up and go awry again with my gut -- I am not saying my experience mirrors anyone else's, in 's case she has approached the issue in such a well-informed, methodical and sophisticated way and pursued all available testing...and hopefully the gains she cherishes are permanent, but from my experience, I'd encourage anyone whose seen significant healing from a gluten free lifestyle to well consider maintaining it as one of their options...I just ask myself if the possible risks are worth it...not to say a bowl of marinara doesn't throw me for a loop! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2010 Report Share Posted August 28, 2010 And, boy do I miss vermicelli pasta with butter and parmesan as well macaroni and cheese, but since I am still dealing with lyme issues, I am not even trying to try out food containing gluten. Kathleen (I happen to be half Italian and the pasta thing is murder Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2010 Report Share Posted October 8, 2010 Thanks to all who replied to my post about my wife...the hits keep coming. She just heard from her LDD that she tested positive for gluten intolerance and must now go " Gluten Free " . She scored a 25 on the test and anything over a 10 is bad. I have read a little bit on this and how it relates to LD and it seems to be a problem for others. Are there any herbs or supplements that can help or even reverse this or is this a " life style change " that she will be forced to endure for the rest of her life? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2010 Report Share Posted October 8, 2010 I'm allergic to gluten as well. There is nothing (supplements or herbs) that will get rid of this condition. She'll need to stay away from it for the rest of her life. It's a bit overwhelming at first but the benefits out weigh the effects of gluten! Once she removes it from her diet, she'll never want to consume it again. There are many people discovering they are allergic to it these days and a lot of food companies have caught on to this. So luckily, she has a lot more options available now than before. Some products don't taste so well but keep working at it, you'll find brands that you'll both come to love. Few suggestions: A brand called Udi (http://udisfood.com/), makes amazing products... pizza crusts, bread, muffins. These products are available at most Whole Foods Markets. Also, 's Deli now offers gluten free bread which makes dining out on the run more convenient. Quinoa might become her new best friend. ( http://www.whfoods.com/genpage.php?dbid=142 & tname=foodspice) many pastas are made from this wonderful, healthy food. And don't forget, many sauces such as soy sauce, gravy, some supplements, seasonings may contain gluten or wheat so it's important to always read labels. At first, it's time consuming but I promise it gets easier. On Fri, Oct 8, 2010 at 8:20 AM, team_garp <johnirving@...> wrote: > > > Thanks to all who replied to my post about my wife...the hits keep coming. > She just heard from her LDD that she tested positive for gluten intolerance > and must now go " Gluten Free " . She scored a 25 on the test and anything over > a 10 is bad. I have read a little bit on this and how it relates to LD and > it seems to be a problem for others. Are there any herbs or supplements that > can help or even reverse this or is this a " life style change " that she will > be forced to endure for the rest of her life? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2010 Report Share Posted October 8, 2010 I am gluten intolerant. There is a digestive enzym. Gluten defense that saves me when I may have had some hidden gluten when eating out. Avoid gluten at all cost...even starving has changed my world. It is a very reasonable way to life these days once you learn how to make choices. Let me know if you have any questions. Monty Sent via BlackBerry by AT & T Re: [ ] gluten I'm allergic to gluten as well. There is nothing (supplements or herbs) that will get rid of this condition. She'll need to stay away from it for the rest of her life. It's a bit overwhelming at first but the benefits out weigh the effects of gluten! Once she removes it from her diet, she'll never want to consume it again. There are many people discovering they are allergic to it these days and a lot of food companies have caught on to this. So luckily, she has a lot more options available now than before. Some products don't taste so well but keep working at it, you'll find brands that you'll both come to love. Few suggestions: A brand called Udi (http://udisfood.com/), makes amazing products... pizza crusts, bread, muffins. These products are available at most Whole Foods Markets. Also, 's Deli now offers gluten free bread which makes dining out on the run more convenient. Quinoa might become her new best friend. ( http://www.whfoods.com/genpage.php?dbid=142 & tname=foodspice) many pastas are made from this wonderful, healthy food. And don't forget, many sauces such as soy sauce, gravy, some supplements, seasonings may contain gluten or wheat so it's important to always read labels. At first, it's time consuming but I promise it gets easier. On Fri, Oct 8, 2010 at 8:20 AM, team_garp <johnirving@...> wrote: > > > Thanks to all who replied to my post about my wife...the hits keep coming. > She just heard from her LDD that she tested positive for gluten intolerance > and must now go " Gluten Free " . She scored a 25 on the test and anything over > a 10 is bad. I have read a little bit on this and how it relates to LD and > it seems to be a problem for others. Are there any herbs or supplements that > can help or even reverse this or is this a " life style change " that she will > be forced to endure for the rest of her life? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2010 Report Share Posted October 8, 2010 Thanks for the info. The doctor is sending her info on some medication to take if she accidently eats out and ingests Gluten.probably the same thing? Thanks again, From: [mailto: ] On Behalf Of montylife@... Sent: Friday, October 08, 2010 11:20 AM Lyme Aid Buhner Subject: Re: [ ] gluten I am gluten intolerant. There is a digestive enzym. Gluten defense that saves me when I may have had some hidden gluten when eating out. Avoid gluten at all cost...even starving has changed my world. It is a very reasonable way to life these days once you learn how to make choices. Let me know if you have any questions. Monty Sent via BlackBerry by AT & T Re: [ ] gluten I'm allergic to gluten as well. There is nothing (supplements or herbs) that will get rid of this condition. She'll need to stay away from it for the rest of her life. It's a bit overwhelming at first but the benefits out weigh the effects of gluten! Once she removes it from her diet, she'll never want to consume it again. There are many people discovering they are allergic to it these days and a lot of food companies have caught on to this. So luckily, she has a lot more options available now than before. Some products don't taste so well but keep working at it, you'll find brands that you'll both come to love. Few suggestions: A brand called Udi (http://udisfood.com/), makes amazing products... pizza crusts, bread, muffins. These products are available at most Whole Foods Markets. Also, 's Deli now offers gluten free bread which makes dining out on the run more convenient. Quinoa might become her new best friend. ( http://www.whfoods.com/genpage.php?dbid=142 <http://www.whfoods.com/genpage.php?dbid=142 & tname=foodspice> & tname=foodspice) many pastas are made from this wonderful, healthy food. And don't forget, many sauces such as soy sauce, gravy, some supplements, seasonings may contain gluten or wheat so it's important to always read labels. At first, it's time consuming but I promise it gets easier. On Fri, Oct 8, 2010 at 8:20 AM, team_garp <johnirving@... <mailto:johnirving%40atlanticbb.net> > wrote: > > > Thanks to all who replied to my post about my wife...the hits keep coming. > She just heard from her LDD that she tested positive for gluten intolerance > and must now go " Gluten Free " . She scored a 25 on the test and anything over > a 10 is bad. I have read a little bit on this and how it relates to LD and > it seems to be a problem for others. Are there any herbs or supplements that > can help or even reverse this or is this a " life style change " that she will > be forced to endure for the rest of her life? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2011 Report Share Posted June 5, 2011 Hi Lizzie,  No, I don't think it is coincidence that so many people are reacting to so much stuff. I think what is causing it is all the un-natural living we are trying to accomplish today-- all the chemicals, meds, emfs that never existed before.... You cannot even find " real " clothing today--the fibers, if they even are natural (and that is truly hard to find) are often dipped, wound, wrapped, sprayed, you name it, with un-natural chemicals. Same with our foods, furnishing, our air and soil....  I never did say gluten or celiac disease " caused " it--celiac disease has little to do with it.  Peoples' genes (not celiac genes) but tj permeability genes, probably play a large part in how we react to things, however, NOBODY's genes were prepared for the onslaught of un-natural living we have been exposed to in the last 50 to 150 years. That said, what I *did* say was, *if* one has celiac disease or the tj permeability, they will not get any better unless they also address those. That is true for any body " injury " or illness. You can't expect good recovery from ES with a broken anything. Your body stress and pH will be " off " no matter what your injury is. However, what I often see here are people trying to selectively treat ES, like it is a special compartmentalized illness. It is not.  I do, however, personally feel *tight junction permeability leading to ion-channelopathy* is the cause of ES and many of the other miriad modern-day illnesses. And, by cause, I mean how the un-naturalness of living today, is able to affect some people while not others.  I only mentioned that I found the research on tj permeability due to the fact that I already had celiac disease and was searching for info on it; it was then that I saw there was a connection. The connection is not celiac disease, it is the tight junction permeability problem, which celiac disease and ES seem to, due to research, both have in common. Does this clear up the discrepancy any in your mind? I hope so, because tight junctions were long known (since the 1990s) to be the only readily noticeable effect from emfs in ES research on ES people. Cell phone companies have been able to negate the effects of emfs on people due to their understanding and manipulation of this link.  Blessings, Diane From: thode <lizt777@...> Subject: Gluten esens Date: Wednesday, June 1, 2011, 7:20 PM On the subject of gluten. Gluten products ie: wheat, peanuts, corn.....these are all crops that tend to be " moldy " . Add into the fact that commercial bread making UPS the amt of gluten to make more bread. I think of Celiac disease as AN INTOLERANCE TO MOLD. Google Dr. Dietrich Klinghardt and READ what he says about when you put a micro toxin (be it viral, bacterial, or MOLD) into the field/exposure of EMF's, the micro toxin multiplies by 600%. Celiac is supposed to be " genetic " , according to the mainstream medical industrial complex. Really? ARe we ALL related then? Because I know a ton of people who can't eat wheat products! And none of them have relatives with Celiac. Some might say, well, maybe the relatives just didn't know, weren't diagnosed...I've heard the same argument used to explain Autism. The only reason the numbers are soo high is due to better diagnostics. Some people actually believe the myth that Autism has always been around. Hmmm.......Kind of makes me wonder what " they're smoking " . This is just one example of many. I had a damp moldy basement. When I got rid of wifi, wireless, ect....within days, my basement didn't smell tht nasty smell. I've had 3 electricians from 3 diff't companies tell me my basement was the cleanest smelling basement they'd ever been in. They said for them, it was normal business as usual to have to work in moldy smelling basements. Out here, most are michigan basements. That means only part of it is dug out. There are rooms- spaces with dirt. I had a friend who lives on a farm, has 3 kids. Being stung by a bee is a normal occurrance. EXcept the one time that the little girls arm swelled all the way UP to her shoulder. Scared the pee out of her mom. The child hadn't eaten anything different. Nothing was changed in her diet, no new soap products were used. The ONLY THING THAT WAS DIFFERENT was that they had company over, who were using their WIRELESS LAP THAT WEEKEND!! Normally, there was no wireless in their environment. *They were under the belief that the little stick on product their guests had put on their laptop to protect from radiation actually worked. As far as MOLD goes? I don't think the human body was designed to tolerate MOLD that has multiplied by 600%. Something to think about. Lizzie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2011 Report Share Posted June 5, 2011 Well said. You are right about the tight junction perm stuff. But somehow, I think that when all is said and done, the research is going to establish that everyone's membranes have been compromised. My understanding is that on a molecular level, when exposed to emf's, the cells shut down. That means nutrients can't get in to the cell, and toxins can't get out. And then there's the mechanism behind wireless radiation. Put any micro toxin, be it mold, bacteria, etc in to the field of this radiation, and it will be amplified 600 times. So now there is the situation of toxins being multiplied hugely and exponentially. So possibly, anything the body views as an enemy, including what sets off celiac, is now multiplied many times over. Do you see this? I do. This explains the proliferation of candida, probably lyme disease, and just about every other toxin. Add that together with how wireless causes the body to go acidic (or in most cases, even more acidic) and its a recipe for disaster. I love the brainstorming. Though i am sorry we had to meet this way- I do find it refreshing to talk to people that have brain cells still alive and kicking! This goes for everyone on this site. With my greatest respects to all of you. It may not seem like it, on some days, but we are all slaying the dragons! LIzzie From: evie15422@... Date: Sun, 5 Jun 2011 11:11:16 -0700 Subject: RE: Gluten Hi Lizzie, No, I don't think it is coincidence that so many people are reacting to so much stuff. I think what is causing it is all the un-natural living we are trying to accomplish today-- all the chemicals, meds, emfs that never existed before.... You cannot even find " real " clothing today--the fibers, if they even are natural (and that is truly hard to find) are often dipped, wound, wrapped, sprayed, you name it, with un-natural chemicals. Same with our foods, furnishing, our air and soil.... I never did say gluten or celiac disease " caused " it--celiac disease has little to do with it. Peoples' genes (not celiac genes) but tj permeability genes, probably play a large part in how we react to things, however, NOBODY's genes were prepared for the onslaught of un-natural living we have been exposed to in the last 50 to 150 years. That said, what I *did* say was, *if* one has celiac disease or the tj permeability, they will not get any better unless they also address those. That is true for any body " injury " or illness. You can't expect good recovery from ES with a broken anything. Your body stress and pH will be " off " no matter what your injury is. However, what I often see here are people trying to selectively treat ES, like it is a special compartmentalized illness. It is not. I do, however, personally feel *tight junction permeability leading to ion-channelopathy* is the cause of ES and many of the other miriad modern-day illnesses. And, by cause, I mean how the un-naturalness of living today, is able to affect some people while not others. I only mentioned that I found the research on tj permeability due to the fact that I already had celiac disease and was searching for info on it; it was then that I saw there was a connection. The connection is not celiac disease, it is the tight junction permeability problem, which celiac disease and ES seem to, due to research, both have in common. Does this clear up the discrepancy any in your mind? I hope so, because tight junctions were long known (since the 1990s) to be the only readily noticeable effect from emfs in ES research on ES people. Cell phone companies have been able to negate the effects of emfs on people due to their understanding and manipulation of this link. Blessings, Diane From: thode <lizt777@...> Subject: Gluten esens Date: Wednesday, June 1, 2011, 7:20 PM On the subject of gluten. Gluten products ie: wheat, peanuts, corn.....these are all crops that tend to be " moldy " . Add into the fact that commercial bread making UPS the amt of gluten to make more bread. I think of Celiac disease as AN INTOLERANCE TO MOLD. Google Dr. Dietrich Klinghardt and READ what he says about when you put a micro toxin (be it viral, bacterial, or MOLD) into the field/exposure of EMF's, the micro toxin multiplies by 600%. Celiac is supposed to be " genetic " , according to the mainstream medical industrial complex. Really? ARe we ALL related then? Because I know a ton of people who can't eat wheat products! And none of them have relatives with Celiac. Some might say, well, maybe the relatives just didn't know, weren't diagnosed...I've heard the same argument used to explain Autism. The only reason the numbers are soo high is due to better diagnostics. Some people actually believe the myth that Autism has always been around. Hmmm.......Kind of makes me wonder what " they're smoking " . This is just one example of many. I had a damp moldy basement. When I got rid of wifi, wireless, ect....within days, my basement didn't smell tht nasty smell. I've had 3 electricians from 3 diff't companies tell me my basement was the cleanest smelling basement they'd ever been in. They said for them, it was normal business as usual to have to work in moldy smelling basements. Out here, most are michigan basements. That means only part of it is dug out. There are rooms- spaces with dirt. I had a friend who lives on a farm, has 3 kids. Being stung by a bee is a normal occurrance. EXcept the one time that the little girls arm swelled all the way UP to her shoulder. Scared the pee out of her mom. The child hadn't eaten anything different. Nothing was changed in her diet, no new soap products were used. The ONLY THING THAT WAS DIFFERENT was that they had company over, who were using their WIRELESS LAP THAT WEEKEND!! Normally, there was no wireless in their environment. *They were under the belief that the little stick on product their guests had put on their laptop to protect from radiation actually worked. As far as MOLD goes? I don't think the human body was designed to tolerate MOLD that has multiplied by 600%. Something to think about. Lizzie Quote Link to comment Share on other sites More sharing options...
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