support

[Guest guest]

Jewel,

Although you are new to the list as you say know that you are

welcome, as we were all new at one time or another. I am sorry to

hear of your suffering and your doctors were right in not being able

to guarantee the level of relief that may be achieved. But you must

be strong and never give up and take back what is yours, life,

happiness and the right to live pain free. Follow through with all

the physical therapy and rehab, and no cheating. And when they say

you are well enough and don't require anymore therapy if thats not

the case you make sure you tell them. I and many others can identify

with your frustration and losing your independence but you must

believe there will be a time again when you will be free from this

constant madness that consumes all our thoughts, that disrupts every

aspect of our lives. You have come to the right place and I pray the

God will bless you and keep and lay his healing touch and calming

spirit upon you. And know that if you ever need a shoulder to lean on

or cry on or just someone to listen and let you vent we are always

here. We are bound together in our suffering that many cannot

comprehend and will always be there to help one another through many

long days and nights. And I pray for all the rest of us that we all

remain strong never giving into the fear, frustration and shear

desperation our situations cast in our lives.

Goodnight and in my prayers and thoughts,

> I know I am new to the list and I don't really have a right to be

> asking for much right now but I am hoping that it will be okay. As

I

> said in a previous post I am having big-time lumbar surgery on

> January 15th. It will be the fourth surgery (actually fourth and

> fifth since I am having anterior and poster lumbar fusions)I have

had

> in the past year and a half. I am having such a hard time dealing

> with it emotionally. Truthfully, I have had enough dealing with

> surgeries. I am not afraid of the surgery itself, I am more afraid

of

> the post-op pain and rehab I will have to do with no guarantee that

> they will work. The doc is only giving me a 75% chance of any real

> relief from the pain. Everyone in my life tries to be reassuring

and

> kind, but they have NO clue what it is like to be in pain 24/7. It

> has changed my entire life. I have not worked in a year and I

really

> miss my job. I cannot drive anymore. I cannot do pretty much

> everything I used to do. I was such an independant and self-

> sufficient woman before and now I must depend on everyone for

> everything. The thought of my lover having to help me bathe and

help

> me dress makes me feel awful. My poor little girl see's her Mommy

> suffering even though I try to be as cheerful as possible. My Mom

is

> TOTALLY panicked about my upcoming surgeries. I NEED support from

> people who go through what I am going through. It is so hard for me

> to reach out and ask for help, but I don't know where to turn right

> now. Thank you for allowing me to vent.

>

> In light and love,

> Jewel

[Guest guest]

hello jewel, i know what you're going thru. after

surgeries i'm left with constant pain in my leg and

extreme skin sensitivity on my thigh. i'm on vicodin

and neurontin, and neither one seems to do any good. i

was always athletic and now i cant do anything accept

let time pass. my therapy starts in a week. the last

therapy i had made things worse.

i do know where you're coming from when it comes to

the fear and demoralizing things you need others to do

for you. i always asked myself, " why me " ? than i found

this forum and found others in much worse shape than

i. i'm a spiritual person and believe god is with me

and wont give me more than i can handle! i believe god

is with you, and all you have to do is turn your life

and upcoming surgeries to god,and he will provide for

you.

i believe there's a lite at the end of the tunnel for

you,but you have to follow the doctors advice and in

tme you'll find some relief from what you're feeling

now,physicly and emotionaly. you're very fortunat to

have supporting people around you.add god to that

group and you're life will change for the better!

i wish you good luck in your future surgerys.all the

people on this forum support you.feel free to vent or

ask for feed back. a--

wolfieda1st <no_reply > wrote:

---------------------------------

> I know I am new to the list and I don't really have

a right to be

> asking for much right now but I am hoping that it

will be okay. As

I

> said in a previous post I am having big-time lumbar

surgery on

> January 15th. It will be the fourth surgery

(actually fourth and

> fifth since I am having anterior and poster lumbar

fusions)I have

had

> in the past year and a half. I am having such a hard

time dealing

> with it emotionally. Truthfully, I have had enough

dealing with

> surgeries. I am not afraid of the surgery itself, I

am more afraid

of

> the post-op pain and rehab I will have to do with no

guarantee that

> they will work. The doc is only giving me a 75%

chance of any real

> relief from the pain. Everyone in my life tries to

be reassuring

and

> kind, but they have NO clue what it is like to be in

pain 24/7. It

> has changed my entire life. I have not worked in a

year and I

really

> miss my job. I cannot drive anymore. I cannot do

pretty much

> everything I used to do. I was such an independant

and self-

> sufficient woman before and now I must depend on

everyone for

> everything. The thought of my lover having to help

me bathe and

help

> me dress makes me feel awful. My poor little girl

see's her Mommy

> suffering even though I try to be as cheerful as

possible. My Mom

is

> TOTALLY panicked about my upcoming surgeries. I NEED

support from

> people who go through what I am going through. It is

so hard for me

> to reach out and ask for help, but I don't know

where to turn right

> now. Thank you for allowing me to vent.

>

> In light and love,

> Jewel

[Guest guest]

Jewel,

If I were you, I would look into artificial disc replacement at this

point. Obviously fusion is not the answer.

Dina

________________________________________________________________

The best thing to hit the internet in years - Juno SpeedBand!

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[Guest guest]

> I know I am new to the list and I don't really have a right to be

> asking for much right now but I am hoping that it will be okay. As

I

> said in a previous post I am having big-time lumbar surgery on

> January 15th. It will be the fourth surgery (actually fourth and

> fifth since I am having anterior and poster lumbar fusions)I have

had

> in the past year and a half. I am having such a hard time dealing

> with it emotionally. Truthfully, I have had enough dealing with

> surgeries. I am not afraid of the surgery itself, I am more afraid

of

> the post-op pain and rehab I will have to do with no guarantee

that

> they will work. The doc is only giving me a 75% chance of any real

> relief from the pain. Everyone in my life tries to be reassuring

and

> kind, but they have NO clue what it is like to be in pain 24/7. It

> has changed my entire life. I have not worked in a year and I

really

> miss my job. I cannot drive anymore. I cannot do pretty much

> everything I used to do. I was such an independant and self-

> sufficient woman before and now I must depend on everyone for

> everything. The thought of my lover having to help me bathe and

help

> me dress makes me feel awful. My poor little girl see's her Mommy

> suffering even though I try to be as cheerful as possible. My Mom

is

> TOTALLY panicked about my upcoming surgeries. I NEED support from

> people who go through what I am going through. It is so hard for

me

> to reach out and ask for help, but I don't know where to turn

right

> now. Thank you for allowing me to vent.

>

> In light and love,

> Jewel

[Guest guest]

Hi Cece,

I wanted to chime in on spouse support. I think it is very hard for them to understand, but at the same time is very important for our health. If we feel we cannot say anything about our health, because they may feel we are once again overacting..that is unhealthy for our stress level. But I would ask you to step back and think... has he really been supportive, but maybe just got wigged out thinking about what the donor was like and had to go through to. That part can make it very real, and yet at the same time, it may be easier to just except that you "had surgery" and not that someone that he can put a name and history ended up giving their life during the whole process. If this is really the only thing you see him kind of freaking out over...give him a little bit of rope here, its a big one to swallow. Everyone's inner strength is different. If he is unsupportive over other things constantly...that is another story. Then maybe talking to the Dr.s more will help, or a church counselor. Good luck Cece.

Kathy in CA

[Guest guest]

molly what chat program do you use , i would be glad to im you but don't

know what chat room. ya know my family was the same way and to be

truthful about it, i really personally my self didn't think i was that

bad, til i had my M R I . and the drs that read it ( which was 4 dr's )

and they all told me Larry theres nothing anyone can do for you any dr

would have to re-construct you a whole new back and no dr is going to do

that . so i was advised to double up on my meds and no not one dr said

that all of them so when my fam. heard thios they then reallized that i

was in that bad of shape. so yes i know exactly how you feel , and yes

would love to chat with you if i knew which chat room and program you use

unless its in here and i don't know how to get to thius one so if you can

educate me if its here that would be wonderful ok thanks Molly......Larry

On Sun, 22 Aug 2004 09:53:48 -0500 " mollio " <mollio@...>

writes:

> Larry and all --

>

> I know what you mean about not getting support... My family hasn't

> been the

> support I thought they would be at all. Even after all the tests

> I've had,

> they still act like it's nothing.

>

> When I was leaving the EMG, the doc said to avoid lifting heavy

> things. I

> had to laugh a little. Like when the first doc said to rest and take

> it

> easy.

>

> Anyway, please feel free to IM me anytime if you would like to chat.

> molliof

> is my screen name.

>

> Take care,

> Molly

>

>

>

>

[Guest guest]

I have been lucky with support. My family is really understanding when I have

bad days and just lay around. My husband says that I usually don't complain, so

when I do whine, it must really be bad. It took awhile for me to accept my

limitations, and before I would do stuff I wasn't allowed to do, just to prove

to myself that I was fine. Of course I would pay for my actions later. Now I do

what I can and don't worry about the rest.

Viv in GA

[Guest guest]

Hi,

Welcome to our group. All of us have suffered with candida or are

suffering with it now, so there are lots of people to talk to.

If you enjoy cooking you will find a number of recipes in the " files "

on the left side-bar; it is arranged alphabetically, scroll down

to " Recipes for Candida. "

Please read the article upon which this group is based " How to

Successfully Overcome Candida " so we are on the same page - the diet

is very different, and more healthful, than others.

We're here to support and help you. Ask away.

The best in health,

Bee

[Guest guest]

Thanks Bee. I've been aware of my candida for many years and have

tried various eating programs and supplements but obviously

something was missing. Right now, I'm very stressed out because I

need to correct my diet and it's very difficult to do it on my own

at this time. I can see where I will get a lot of support here but

what would also be helpful to me is to be able to actually talk to

people going through this. Do you know of any way I can find out

about support group meetings or people who are willing to perhaps

talk on the phone about this?

>

> Hi,

>

> Welcome to our group. All of us have suffered with candida or are

> suffering with it now, so there are lots of people to talk to.

>

> If you enjoy cooking you will find a number of recipes in

the " files "

> on the left side-bar; it is arranged alphabetically, scroll down

> to " Recipes for Candida. "

>

> Please read the article upon which this group is based " How to

> Successfully Overcome Candida " so we are on the same page - the

diet

> is very different, and more healthful, than others.

>

> We're here to support and help you. Ask away.

>

> The best in health,

> Bee

[Guest guest]

It's not about going cold-turkey, . You're doing good making these small

changes and weaning off. How many smokers make it when they go

cold-turkey?...mostly none of them. It's hard to change a lifetime of bad

habits. Damn if my parents too were letting me eat Hostess snacks, ice-cream,

cookies, etc... I was a sweet-tooth child of the 80's too :-)

-greg

Henry <henrycreations@...> wrote:

Hi,

I grew up with sugar, sugar, sugar in the 80's and had no idea I was suppose to

hold back on eating it. My parents were ignorant or in denial or too busy to pay

attention to my diet. I remember eating too many twinkies/little debbies,

etc...so much of the time. I was not told no to these things and now I seem to

have a sweet tooth that's very out of control. I'm trying to do a small dessert

once every-other-day or whatever barganing with myself down the number of

desserts I eat. I forced myself to drink coffee with splenda only if I did it at

all. I just hate feeling like I'm out of control eating-wise. I'm relatively

thin, but that won't last unless I stop this. I basically gave up most fruit

juices and pop, and bread, but have not made many other adjustments to my

hand-to-mouth intake. Its frustrating to fight with myself.

See my own websites at www.lauralight.faithweb.com or www.henrycreations.com

[Guest guest]

Oh how frustrating, hang in there though, I feel for you.

SG

>I stayed on the diet of course through the whole round

>of antibiotics, but I ended up with a psoriasis

>flare-up, acne and yeast infection that are slowly

>subsiding..

>

>

>Luv,

>Debby

>San , CA

[Guest guest]

,

You have your head on straight; all of your concerns are completely

valid. If you weren't thinking about such things I would question

whether or not you were really prepared. I don't know anyone who has

had the surgeries just one day apart, but it does seem you have a

knowledgeable doctor. In the end for me, the risks you outlined below

were far less burdensome than the risks of doing nothing. It's still

early in the game and I had to go through three surgeries, but I'm

going back to work full-time on Monday.The rain makes me ache a bit,

but at least we are getting rain! Still have PMS, which makes my back

sore, but that's only a few day/month. Totally fair trade to talk

about these 'problems' compared to the ones I gave up. I made a wise,

informed decision and it has turned out well. I am so satisfied! And I

wish the same for you.

kam

[Guest guest]

,

I was out from December 12th through March 6th, but that is only

because I had to go back January 26th for the second stage anterior

surgery (originally scheduled December 20th) due to a complicated

screw. I ended up having three surgeries. So, my recovery

was 'delayed' about a month, give or take. I worked half days for four

weeks. Next week will be tough, but I think I'll survive!

kamala

[Guest guest]

My goodness they asked me to clean my office out. I wonder

if they know how that feels to me. I can understand it but geezzz

nothing like, feeling like, sianara..

Good luck at the job. What do you do?

At 03:00 PM 3/30/2006, you wrote:

,

I was out from December 12th through March 6th, but that is only

because I had to go back January 26th for the second stage anterior

surgery (originally scheduled December 20th) due to a complicated

screw. I ended up having three surgeries. So, my recovery

was 'delayed' about a month, give or take. I worked half days for four

weeks. Next week will be tough, but I think I'll survive!

kamala

scoliosis veterans * flatback sufferers * revision candidates

[Guest guest]

>

> Hi group,

> I'm now 7 weeks into the diet and today I feel flat, Low energy,

> General can't be bothered with life, feel like my diestion has slowed

> down, gas.

> Would love to hear some positive stories about how things have changed

> for you since starting this diet. Just to keep me going

==>Hi Pip. We've all been through what you are experiencing so we

understand totally how tough it is. There will be Ups and Downs, with

some days worse than others. Just know that over time " this too shall

pass! "

==>To get a good lift Pip, see the many positive Success Stories:

http://www.healingnaturallybybee.com/success/success.php

==>One in particular sticks out in my mind and it is this one, from

, " What a Great Recipe for Life " :

http://www.healingnaturallybybee.com/success/ss1.php

==>Hang in there my friend. Just know you will benefit over the long-

run so there is a lot to look forward to for all of your hard work.

Luv & Hugs, Bee

[Guest guest]

>

> hi all

>

> is it just me, or do you find that even your family thinks you are

on some crazy kick. Most of my family either seems disinterested -

as if they don't want to encourage my hypochondriac behavior - or

they ask me if I have been checked for this or that or this or that

(samonella, e-coli are big ones they are pushing). Its very

discouraging because you can't quite vent or be honest with how you

feel without feeling like you have to convince them that you believe

you are on the right track.

==>I have had similar experiences with my family, so I understand how

they can be. It is probably best to not get into it with them, until

you are improving and they ask why.

>

> Even my friend who dealt with this herself said to me - " there must

be something wrong - this is too long! " I explained that maybe she

did not have it as severe or as long as I did and that would explain

why she got better in 3 months and I am struggling along at 6 and

still not feeling good.

==>Also your friend may not have totally cured herself. It took me 2

1/2 years to cure my candida. It takes 1 month of natural healing

for every year, so it some people need to take years it is not

unreasonable.

>

> I'm lethargic - walking as if I were half dead. I crawl, not

> literally, up the steps with the help of the banister. Is this all

> normal? I tried the clove oil which seemed to help someone who

> recently posted with their energy level, but nothing yet.

==>Yes, it is all normal. I could only be out of bed for 1-2 hours

at a time, and even then I dragged myself out. To understand why you

are feeling so lethargic, I suggest you read the article " Fatigue and

Candida " : http://www.healingnaturallybybee.com/articles/treat10.php

==>The best energy boosters are " good " fats, like butter and coconut

oil. They provide quick, fast, energy, without needing stomach acid,

digestive enzymes or bile to be absorbed and utilized.

==>Also you can help your body detoxify more by taking regular Epsom

Salt baths, doing coffee enemas, dry skin brushing, etc. Your might

also read about adrenal malfunction and how to improve it:

http://www.healingnaturallybybee.com/articles/treat1.php

I hope that helps. Hang in there. This too shall pass! It did for

me.

Lotsa healing hugs, Bee

[Guest guest]

Hi;

I haven't introduced myself yet but I have been reading here for about a

month. Was diagnosed with chronic lyme 4 months ago but most likely have had it

for 10 years. It has been good for me to hear that others are having some of

the same experiences as myself.

I too have only a hand full of people to call on for help. Also, my doctor is

not up to speed on the disease, a natralpath is out of my price range, and most

docs in my area, (St. , MN), are not very lyme literate.

I'm currently taking lots of supplements to build myself up and small doses of

andrographis. I tried getting up to 6 a day but my stomach freaked out. Felt

like stinging nettles were in my entire digestive system. My doc told me to use

milk thistle to calm my tummy.

In reading all the posts, it seems like there are a lot of options and very

complicated systems for treating this disease. I'm looking for something less

complicated but effective. Any suggestions?

Blessings,

[Guest guest]

Hi ,

I don't think there is a simple treatment because Lyme hits so many systems in

the body and it's so hard to get rid of. But, maybe someone will chime in and

help out.

Good luck!

Connie

[ ] support

Hi;

I haven't introduced myself yet but I have been reading here for about a month.

Was diagnosed with chronic lyme 4 months ago but most likely have had it for 10

years. It has been good for me to hear that others are having some of the same

experiences as myself.

I too have only a hand full of people to call on for help. Also, my doctor is

not up to speed on the disease, a natralpath is out of my price range, and most

docs in my area, (St. , MN), are not very lyme literate.

I'm currently taking lots of supplements to build myself up and small doses of

andrographis. I tried getting up to 6 a day but my stomach freaked out. Felt

like stinging nettles were in my entire digestive system. My doc told me to use

milk thistle to calm my tummy.

In reading all the posts, it seems like there are a lot of options and very

complicated systems for treating this disease. I'm looking for something less

complicated but effective. Any suggestions?

Blessings,

[Guest guest]

Hi

Yes, it is a complicated disease and it has taken me considerable time to

figure out how to use the herbs effectively. Keep asking questions and

we'll do our best to answer them. There are some great herbalists out there

who would be happy to help you settle into a treatment plan. Also, I just

read some good advise and that is to detox, detox, detox!!

Lucy

From:

[mailto: ] On Behalf Of cathyhawksp@...

Sent: Tuesday, August 17, 2010 8:53 PM

Subject: [ ] support

Hi;

I haven't introduced myself yet but I have been reading here for about a

month. Was diagnosed with chronic lyme 4 months ago but most likely have had

it for 10 years. It has been good for me to hear that others are having some

of the same experiences as myself.

I too have only a hand full of people to call on for help. Also, my doctor

is not up to speed on the disease, a natralpath is out of my price range,

and most docs in my area, (St. , MN), are not very lyme literate.

I'm currently taking lots of supplements to build myself up and small doses

of andrographis. I tried getting up to 6 a day but my stomach freaked out.

Felt like stinging nettles were in my entire digestive system. My doc told

me to use milk thistle to calm my tummy.

In reading all the posts, it seems like there are a lot of options and very

complicated systems for treating this disease. I'm looking for something

less complicated but effective. Any suggestions?

Blessings,