Fibromyalgia

[Guest guest]

LOL... that was one of the first things I told him was he was gonna have to change his diet, his eating habits. He is under a great deal of stress too so he is dealing with alot.. SuziSV <shavig@...> wrote: I have read and talked with women who have virtually eliminated all symptoms by ridding their diets of all processed foods and all animal products. That means no milk, cheese, yogurt, fish, chicken, etc.... AND they stopped cooking their food. YIKES! That means they are eating the dreaded raw food diet! And they are feeling great and functioning very well. Suzi List Owner health/ http://360./suziesgoats What is a weed? A plant whose virtues have not yet been

discovered. __________________________________________________

[Guest guest]

I hadn't either.. but men tend to ignore things more than women. sorry guys! Suzi"Sharyn E. Cerniglia" <sharyncern@...> wrote: My 27yo son thinks he has this also. We’ve thought for years that his problems were due to an Army injury, but he had the anxiety and depression before the injury…so now he’s thinking that the injury exacerbated the fibro. I too would like to know how people are treating this. And I’d like to forward posts on to him if that’s okay. I have many female friends (mostly writers) who have this, but had never heard of a male with fibromyalgia. Sharyn From: health [mailto:health ] On Behalf Of Suzanne one of the guys in the group said he thought he has fibromyalgia... at least all the symtoms fit.. of course he does have stress in his life also. So I told him I would check my group to see who has this and how they are treating it. I gave him some suggestions meantime but thought it would be good to hear from those who are actually dealing with it. Suzi List Owner health/ http://360./suziesgoats What is a weed? A plant whose virtues have not yet been discovered. __________________________________________________

[Guest guest]

The only thing that helps me when I have a

flare up is taking malic acid supplements and watching my diet.

Stretching and a non-impact exercise routine is good too. Go with whole,

natural foods for the diet – nothing processed or with additives.

Fibro patients have sleep disturbances and sometimes GI problems too.

These need to be addressed. If he wants to know more, I can probably

catch up sometime this week, just keep asking!

Janet (running with my hair on fire once

again to class…)

From: health [mailto:health ] On Behalf Of Sharyn E. Cerniglia

Sent: Sunday, October 21, 2007

4:38 PM

health

Subject: RE:

Fibromyalgia

My 27yo son thinks he has this also. We’ve thought for

years that his problems were due to an Army injury, but he had the anxiety and

depression before the injury…so now he’s thinking that the injury

exacerbated the fibro. I too would like to know how people are treating

this. And I’d like to forward posts on to him if that’s okay.

I have many female friends (mostly writers) who have this, but had

never heard of a male with fibromyalgia.

Sharyn

From: health

[mailto:health ]

On Behalf Of Suzanne

one of the guys in

the group said he thought he has fibromyalgia... at least all the symtoms

fit.. of course he does have stress in his life also. So I told him I

would check my group to see who has this and how they are treating it. I

gave him some suggestions meantime but thought it would be good to hear from

those who are actually dealing with it.

[Guest guest]

Thanks, Janet!

From:

health

[mailto:health ] On Behalf Of Janet

The only thing that helps me when I have a

flare up is taking malic acid supplements and watching my diet.

Stretching and a non-impact exercise routine is good too. Go with whole,

natural foods for the diet – nothing processed or with additives.

Fibro patients have sleep disturbances and sometimes GI problems too.

These need to be addressed. If he wants to know more, I can probably

catch up sometime this week, just keep asking!

[Guest guest]

Well, I should have known that. <blush>

But my DH, who really is my best friend and supports me in most things, had trouble believing I wasn't just creating Alps from anthills...it's truly a difficult place to find yourself.

Ev

PS - hey! don't let me forget to send the sage tomorrow!

He knows I believe him, Evie. I may be the only supporter he has, but I’m there for him!

Sharyn

[Guest guest]

Send sage, please!

Thanks!

Sharyn

From: health

[mailto:health ] On Behalf Of

PS - hey! don't let me forget to send the sage

tomorrow!

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[Guest guest]

I

> <<<<He prescribed 25 milligrams and said that she wouldn't notice any

> changes at all in her case for about two months. He predicted that after that

> time, it would suddenly occur to her that her pain was gone. She says that

this

> is exactly what happened. This was four years ago and the pain has not

> returned. She uses the generic amitriptyline. She has told several others

about this

> treatment and their experiences have been the same as hers. >>>>>

>

, you left out Dr. Gott's response !

Dr Gott's response:

A: Fibromyalgia, a poorly understood pain disorder, is difficult to manage.

Patients with the ailment have noted significant reductions in their quality

of life. I welcome the opportunity to echo your sentiments about Elavil. If, in

fact, the medicine reduces the muscle pain, you should be considered for a

Nobel prize. I ask that readers who try this remedy let me know whether it

works, and I'll print a follow-up.

Because fibromyalgia is a diagnosis of exclusion and a form of arthritis, I

am sending you a copy of my Health Report " Understanding Osteoarthritis. " Other

readers who would like a copy should send a long, self-addressed, stamped

envelope and $2 to Newsletter, PO Box 167, Wickliffe, OH 44092. Be sure to

mention the title.

**************************************

See AOL's top rated recipes

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[Guest guest]

If Dr. Gott actually said these things, I'd save my $2.

He says: " Because fibromyalgia is a diagnosis of exclusion and a form of

arthritis ... " - which is false. Fibromyalgia is not a diagnosis of exclusion

and it is not a form of arthritis.

Another thing to be aware of is that amitriptyline has been used since the 80s

to treat fibromyalgia.

Not an MD

> > From: NELLIESTAR@...> Date: Fri, 14 Dec

2007 23:25:54 -0500> Subject: Re: [ ] Fibromyalgia> > > I> > > <<<<He

prescribed 25 milligrams and said that she wouldn't notice any > > changes at

all in her case for about two months. He predicted that after that > > time, it

would suddenly occur to her that her pain was gone. She says that this > > is

exactly what happened. This was four years ago and the pain has not > >

returned. She uses the generic amitriptyline. She has told several others about

this > > treatment and their experiences have been the same as hers. >>>>>> > >

, you left out Dr. Gott's response !> Dr Gott's response:> > A:

Fibromyalgia, a poorly understood pain disorder, is difficult to manage. >

Patients with the ailment have noted significant reductions in their quality >

of life. I welcome the opportunity to echo your sentiments about Elavil. If, in

> fact, the medicine reduces the muscle pain, you should be considered for a >

Nobel prize. I ask that readers who try this remedy let me know whether it >

works, and I'll print a follow-up.> Because fibromyalgia is a diagnosis of

exclusion and a form of arthritis, I > am sending you a copy of my Health Report

" Understanding Osteoarthritis. " Other > readers who would like a copy should

send a long, self-addressed, stamped > envelope and $2 to Newsletter, PO Box

167, Wickliffe, OH 44092. Be sure to > mention the title.

[Guest guest]

I'd save mine too. From all of the specialists I have

seen in trying to just get my FMS diagnosis, my

rheumatologist said that only one patient her entire

career had been discharged from care due to being able

to manage her FMS pain and that there was a good

chance that perhaps that patient had just been

misdiagnosed. I think if there were a miracle cure

by now to not feel any more pain from the FMS we would

all be lining up for a miracle cure

--- <Matsumura_Clan@...> wrote:

> If Dr. Gott actually said these things, I'd save my

> $2.

>

> He says: " Because fibromyalgia is a diagnosis of

> exclusion and a form of arthritis ... " - which is

> false. Fibromyalgia is not a diagnosis of exclusion

> and it is not a form of arthritis.

>

> Another thing to be aware of is that amitriptyline

> has been used since the 80s to treat fibromyalgia.

> Not an MD

>

>

>

> > > From:

> NELLIESTAR@...> Date: Fri, 14 Dec 2007 23:25:54

> -0500> Subject: Re: [ ] Fibromyalgia> > >

> I> > > <<<<He prescribed 25 milligrams and said that

> she wouldn't notice any > > changes at all in her

> case for about two months. He predicted that after

> that > > time, it would suddenly occur to her that

> her pain was gone. She says that this > > is exactly

> what happened. This was four years ago and the pain

> has not > > returned. She uses the generic

> amitriptyline. She has told several others about

> this > > treatment and their experiences have been

> the same as hers. >>>>>> > > , you left out Dr.

> Gott's response !> Dr Gott's response:> > A:

> Fibromyalgia, a poorly understood pain disorder, is

> difficult to manage. > Patients with the ailment

> have noted significant reductions in their quality >

> of life. I welcome the opportunity to echo your

> sentiments about Elavil. If, in > fact, the medicine

> reduces the muscle pain, you should be considered

> for a > Nobel prize. I ask that readers who try this

> remedy let me know whether it > works, and I'll

> print a follow-up.> Because fibromyalgia is a

> diagnosis of exclusion and a form of arthritis, I >

> am sending you a copy of my Health Report

> " Understanding Osteoarthritis. " Other > readers who

> would like a copy should send a long,

> self-addressed, stamped > envelope and $2 to

> Newsletter, PO Box 167, Wickliffe, OH 44092. Be sure

> to > mention the title.

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

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[Guest guest]

----- Original Message -----

From: " McNally " <McNacks@...>

>then she found a doctor who said that he had been an intern for two fibro

>specialists and that the antidepressant Elavil >would be extremely helpful.

Most doctors will prescribe this for their fibro patients. Like any other

drug for fibro people, it works well for some, partially helps others, some

can't tolerate the side effects and others find it doesn't help them at all.

I'm glad it worked for this woman.

Darcy

[Guest guest]

hi all! there is the new fda approved lyrica for fibro.my rheumy told me its

similar to the neurontin...which i cant live without, and very few women r

reporting bad side effects.....it works like the neurontin as it is for the

neuropathic pain that accompanies the fibro, and most insurances r paying for

it.ask....what have u got to lose? take care...laurie

stephanie <stephieann2@...> wrote: I'd save mine too. From all of

the specialists I have

seen in trying to just get my FMS diagnosis, my

rheumatologist said that only one patient her entire

career had been discharged from care due to being able

to manage her FMS pain and that there was a good

chance that perhaps that patient had just been

misdiagnosed. I think if there were a miracle cure

by now to not feel any more pain from the FMS we would

all be lining up for a miracle cure

--- <Matsumura_Clan@...> wrote:

> If Dr. Gott actually said these things, I'd save my

> $2.

>

> He says: " Because fibromyalgia is a diagnosis of

> exclusion and a form of arthritis ... " - which is

> false. Fibromyalgia is not a diagnosis of exclusion

> and it is not a form of arthritis.

>

> Another thing to be aware of is that amitriptyline

> has been used since the 80s to treat fibromyalgia.

> Not an MD

>

>

>

> > > From:

> NELLIESTAR@...> Date: Fri, 14 Dec 2007 23:25:54

> -0500> Subject: Re: [ ] Fibromyalgia> > >

> I> > > <<<<He prescribed 25 milligrams and said that

> she wouldn't notice any > > changes at all in her

> case for about two months. He predicted that after

> that > > time, it would suddenly occur to her that

> her pain was gone. She says that this > > is exactly

> what happened. This was four years ago and the pain

> has not > > returned. She uses the generic

> amitriptyline. She has told several others about

> this > > treatment and their experiences have been

> the same as hers. >>>>>> > > , you left out Dr.

> Gott's response !> Dr Gott's response:> > A:

> Fibromyalgia, a poorly understood pain disorder, is

> difficult to manage. > Patients with the ailment

> have noted significant reductions in their quality >

> of life. I welcome the opportunity to echo your

> sentiments about Elavil. If, in > fact, the medicine

> reduces the muscle pain, you should be considered

> for a > Nobel prize. I ask that readers who try this

> remedy let me know whether it > works, and I'll

> print a follow-up.> Because fibromyalgia is a

> diagnosis of exclusion and a form of arthritis, I >

> am sending you a copy of my Health Report

> " Understanding Osteoarthritis. " Other > readers who

> would like a copy should send a long,

> self-addressed, stamped > envelope and $2 to

> Newsletter, PO Box 167, Wickliffe, OH 44092. Be sure

> to > mention the title.

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________________

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know-it-all with Mobile. Try it now.

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u know i love ya...right? laurie

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[Guest guest]

Hi, I have been on Lyrica now for five months. Started out at 50 MG twice a day

Now I am at 200 MG just at night. I have found that for me nothing worked for

nerves or Fibro until this magic pill. Please give it long enough to get in the

system. It has saved my life.

laurie buran <kidslpn@...> wrote: hi all! there is the new fda

approved lyrica for fibro.my rheumy told me its similar to the neurontin...which

i cant live without, and very few women r reporting bad side effects.....it

works like the neurontin as it is for the neuropathic pain that accompanies the

fibro, and most insurances r paying for it.ask....what have u got to lose? take

care...laurie

stephanie <stephieann2@...> wrote: I'd save mine too. From all of the

specialists I have

seen in trying to just get my FMS diagnosis, my

rheumatologist said that only one patient her entire

career had been discharged from care due to being able

to manage her FMS pain and that there was a good

chance that perhaps that patient had just been

misdiagnosed. I think if there were a miracle cure

by now to not feel any more pain from the FMS we would

all be lining up for a miracle cure

--- <Matsumura_Clan@...> wrote:

> If Dr. Gott actually said these things, I'd save my

> $2.

>

> He says: " Because fibromyalgia is a diagnosis of

> exclusion and a form of arthritis ... " - which is

> false. Fibromyalgia is not a diagnosis of exclusion

> and it is not a form of arthritis.

>

> Another thing to be aware of is that amitriptyline

> has been used since the 80s to treat fibromyalgia.

> Not an MD

>

>

>

> > > From:

> NELLIESTAR@...> Date: Fri, 14 Dec 2007 23:25:54

> -0500> Subject: Re: [ ] Fibromyalgia> > >

> I> > > <<<<He prescribed 25 milligrams and said that

> she wouldn't notice any > > changes at all in her

> case for about two months. He predicted that after

> that > > time, it would suddenly occur to her that

> her pain was gone. She says that this > > is exactly

> what happened. This was four years ago and the pain

> has not > > returned. She uses the generic

> amitriptyline. She has told several others about

> this > > treatment and their experiences have been

> the same as hers. >>>>>> > > , you left out Dr.

> Gott's response !> Dr Gott's response:> > A:

> Fibromyalgia, a poorly understood pain disorder, is

> difficult to manage. > Patients with the ailment

> have noted significant reductions in their quality >

> of life. I welcome the opportunity to echo your

> sentiments about Elavil. If, in > fact, the medicine

> reduces the muscle pain, you should be considered

> for a > Nobel prize. I ask that readers who try this

> remedy let me know whether it > works, and I'll

> print a follow-up.> Because fibromyalgia is a

> diagnosis of exclusion and a form of arthritis, I >

> am sending you a copy of my Health Report

> " Understanding Osteoarthritis. " Other > readers who

> would like a copy should send a long,

> self-addressed, stamped > envelope and $2 to

> Newsletter, PO Box 167, Wickliffe, OH 44092. Be sure

> to > mention the title.

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

u know i love ya...right? laurie

---------------------------------

Looking for last minute shopping deals? Find them fast with Search.

[Guest guest]

Those that can take it are so lucky! I don't gain

weight and my first two weeks on it I gained 9lbs

which was detrimental to my RA and joint knee

effusions so I had to go off of it. It's working

really well for some but there are still many its not

working for yet. A few women that go to my Wellness

Doctor (pain management) had the same issue and had

neck and facial swelling and had to go off it as well.

I have hope though because they expect 3 to 4 more

new drugs for FMS alone to be on the market in the

next couple of years:) I'm really glad its working for

you:)

Gentle Hugs

--- dawn parry <dwnparry@...> wrote:

> Hi, I have been on Lyrica now for five months.

> Started out at 50 MG twice a day Now I am at 200 MG

> just at night. I have found that for me nothing

> worked for nerves or Fibro until this magic pill.

> Please give it long enough to get in the system. It

> has saved my life.

>

> laurie buran <kidslpn@...> wrote: hi

> all! there is the new fda approved lyrica for

> fibro.my rheumy told me its similar to the

> neurontin...which i cant live without, and very few

> women r reporting bad side effects.....it works like

> the neurontin as it is for the neuropathic pain that

> accompanies the fibro, and most insurances r paying

> for it.ask....what have u got to lose? take

> care...laurie

>

> stephanie <stephieann2@...> wrote: I'd save

> mine too. From all of the specialists I have

> seen in trying to just get my FMS diagnosis, my

> rheumatologist said that only one patient her entire

> career had been discharged from care due to being

> able

> to manage her FMS pain and that there was a good

> chance that perhaps that patient had just been

> misdiagnosed. I think if there were a miracle cure

> by now to not feel any more pain from the FMS we

> would

> all be lining up for a miracle cure

> --- <Matsumura_Clan@...> wrote:

>

> > If Dr. Gott actually said these things, I'd save

> my

> > $2.

> >

> > He says: " Because fibromyalgia is a diagnosis of

> > exclusion and a form of arthritis ... " - which is

> > false. Fibromyalgia is not a diagnosis of

> exclusion

> > and it is not a form of arthritis.

> >

> > Another thing to be aware of is that amitriptyline

> > has been used since the 80s to treat fibromyalgia.

> > Not an MD

> >

> >

> >

> > > > From:

> > NELLIESTAR@...> Date: Fri, 14 Dec 2007

> 23:25:54

> > -0500> Subject: Re: [ ] Fibromyalgia> > >

> > I> > > <<<<He prescribed 25 milligrams and said

> that

> > she wouldn't notice any > > changes at all in her

> > case for about two months. He predicted that after

> > that > > time, it would suddenly occur to her that

> > her pain was gone. She says that this > > is

> exactly

> > what happened. This was four years ago and the

> pain

> > has not > > returned. She uses the generic

> > amitriptyline. She has told several others about

> > this > > treatment and their experiences have been

> > the same as hers. >>>>>> > > , you left out

> Dr.

> > Gott's response !> Dr Gott's response:> > A:

> > Fibromyalgia, a poorly understood pain disorder,

> is

> > difficult to manage. > Patients with the ailment

> > have noted significant reductions in their quality

> >

> > of life. I welcome the opportunity to echo your

> > sentiments about Elavil. If, in > fact, the

> medicine

> > reduces the muscle pain, you should be considered

> > for a > Nobel prize. I ask that readers who try

> this

> > remedy let me know whether it > works, and I'll

> > print a follow-up.> Because fibromyalgia is a

> > diagnosis of exclusion and a form of arthritis, I

> >

> > am sending you a copy of my Health Report

> > " Understanding Osteoarthritis. " Other > readers

> who

> > would like a copy should send a long,

> > self-addressed, stamped > envelope and $2 to

> > Newsletter, PO Box 167, Wickliffe, OH 44092. Be

> sure

> > to > mention the title.

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

__________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

>

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>

>

> u know i love ya...right? laurie

>

> ---------------------------------

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> fast with Search.

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

>

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>

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[Guest guest]

Hello everyone. I am new here and just wanted to let you know a little

about myself. The meds I am on would take about a page, so I just

included what I am doing right now for the Fibro. Nothing is working and

I am begining to lose all hope of ever getting rid of this pain.

I have been on neurotin for about 8 months, it is not helping. I tried

amitriptyline, it did not do anything. I am at my wits end. I am taking

40 mgs of oxycontin twice a day, I also use norco every 4 hours as

needed.

I was diagnosed with RA in April of 2006. I take a lot of meds for this,

they help some, but it is not under control.

I am really interested in your experiences with Lyrica for used to help

control Fibro. I am sick and tired of being sick and tired.

Thanks for listening...reading

Rosemary

> >

> > > If Dr. Gott actually said these things, I'd save

> > my

> > > $2.

> > >

> > > He says: " Because fibromyalgia is a diagnosis of

> > > exclusion and a form of arthritis ... " - which is

> > > false. Fibromyalgia is not a diagnosis of

> > exclusion

> > > and it is not a form of arthritis.

> > >

> > > Another thing to be aware of is that amitriptyline

> > > has been used since the 80s to treat fibromyalgia.

> > > Not an MD

> > >

> > >

> > >

> > > > From:

> > > NELLIESTAR@... Date: Fri, 14 Dec 2007

> > 23:25:54

> > > -0500> Subject: Re: [ ] Fibromyalgia> > >

> > > I> > > <<<<He prescribed 25 milligrams and said

> > that

> > > she wouldn't notice any > > changes at all in her

> > > case for about two months. He predicted that after

> > > that > > time, it would suddenly occur to her that

> > > her pain was gone. She says that this > > is

> > exactly

> > > what happened. This was four years ago and the

> > pain

> > > has not > > returned. She uses the generic

> > > amitriptyline. She has told several others about

> > > this > > treatment and their experiences have been

> > > the same as hers. >>>>>> > > , you left out

> > Dr.

> > > Gott's response !> Dr Gott's response:> > A:

> > > Fibromyalgia, a poorly understood pain disorder,

> > is

> > > difficult to manage. > Patients with the ailment

> > > have noted significant reductions in their quality

> > >

> > > of life. I welcome the opportunity to echo your

> > > sentiments about Elavil. If, in > fact, the

> > medicine

> > > reduces the muscle pain, you should be considered

> > > for a > Nobel prize. I ask that readers who try

> > this

> > > remedy let me know whether it > works, and I'll

> > > print a follow-up.> Because fibromyalgia is a

> > > diagnosis of exclusion and a form of arthritis, I

> > >

> > > am sending you a copy of my Health Report

> > > " Understanding Osteoarthritis. " Other > readers

> > who

> > > would like a copy should send a long,

> > > self-addressed, stamped > envelope and $2 to

> > > Newsletter, PO Box 167, Wickliffe, OH 44092. Be

> > sure

> > > to > mention the title.

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> >

> >

> __________________________________________________________

> > Be a better friend, newshound, and

> > know-it-all with Mobile. Try it now.

> >

> http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> >

> >

> > u know i love ya...right? laurie

> >

> > ---------------------------------

> > Looking for last minute shopping deals? Find them

> > fast with Search.

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Never miss a thing. Make your homepage.

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

>

>

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> know-it-all with Mobile. Try it now.

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>

[Guest guest]

hi, i'm ren. i'm just coming back, was here before, but couldn't type

or hit the space bar with my thumbs for the longest time, or use my

thumbs for anything i needed them for. i just wanted to tell you that

i hear what you're talking about and am sure you'll find some good

support here. it was always an informative, courageous, compassionate

bunch of people to come to. i'm just now learning i have more Fibro

than RA but from what i have been reading and learning, learning to

relax and de-stress is really important. as someone who never slowed

down or relaxed before, it is gonna be really hard. but i checked out

a self-hypnosis book from the library and have been working on one

that works pretty well so that i can start to believe that relaxing

can help with this darned pain. pain meds don't help me other than to

make me so stoned i can't function and still feel but don't care

about the pain. what good is that?

ren

> > >

> > > > If Dr. Gott actually said these things, I'd save

> > > my

> > > > $2.

> > > >

> > > > He says: " Because fibromyalgia is a diagnosis of

> > > > exclusion and a form of arthritis ... " - which is

> > > > false. Fibromyalgia is not a diagnosis of

> > > exclusion

> > > > and it is not a form of arthritis.

> > > >

> > > > Another thing to be aware of is that amitriptyline

> > > > has been used since the 80s to treat fibromyalgia.

> > > > Not an MD

> > > >

> > > >

> > > >

> > > > > From:

> > > > NELLIESTAR@ Date: Fri, 14 Dec 2007

> > > 23:25:54

> > > > -0500> Subject: Re: [ ] Fibromyalgia> > >

> > > > I> > > <<<<He prescribed 25 milligrams and said

> > > that

> > > > she wouldn't notice any > > changes at all in her

> > > > case for about two months. He predicted that after

> > > > that > > time, it would suddenly occur to her that

> > > > her pain was gone. She says that this > > is

> > > exactly

> > > > what happened. This was four years ago and the

> > > pain

> > > > has not > > returned. She uses the generic

> > > > amitriptyline. She has told several others about

> > > > this > > treatment and their experiences have been

> > > > the same as hers. >>>>>> > > , you left out

> > > Dr.

> > > > Gott's response !> Dr Gott's response:> > A:

> > > > Fibromyalgia, a poorly understood pain disorder,

> > > is

> > > > difficult to manage. > Patients with the ailment

> > > > have noted significant reductions in their quality

> > > >

> > > > of life. I welcome the opportunity to echo your

> > > > sentiments about Elavil. If, in > fact, the

> > > medicine

> > > > reduces the muscle pain, you should be considered

> > > > for a > Nobel prize. I ask that readers who try

> > > this

> > > > remedy let me know whether it > works, and I'll

> > > > print a follow-up.> Because fibromyalgia is a

> > > > diagnosis of exclusion and a form of arthritis, I

> > > >

> > > > am sending you a copy of my Health Report

> > > > " Understanding Osteoarthritis. " Other > readers

> > > who

> > > > would like a copy should send a long,

> > > > self-addressed, stamped > envelope and $2 to

> > > > Newsletter, PO Box 167, Wickliffe, OH 44092. Be

> > > sure

> > > > to > mention the title.

> > > >

> > > > [Non-text portions of this message have been

> > > > removed]

> > > >

> > > >

> > >

> > >

> > __________________________________________________________

> > > Be a better friend, newshound, and

> > > know-it-all with Mobile. Try it now.

> > >

> > http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> > >

> > >

> > > u know i love ya...right? laurie

> > >

> > > ---------------------------------

> > > Looking for last minute shopping deals? Find them

> > > fast with Search.

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Never miss a thing. Make your homepage.

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> >

> >

> >

> >

>

______________________________________________________________________

__\

> ____________

> > Be a better friend, newshound, and

> > know-it-all with Mobile. Try it now.

> http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> >

>

[Guest guest]

did you experience any of the weight gain side effects from your

Lyrcia. I have some samples at home that I was given but I have been

reluctant to take them because everyone I have talked to says that

you do gain weight and that is the last think I need to have happen.

>

> > If Dr. Gott actually said these things, I'd save my

> > $2.

> >

> > He says: " Because fibromyalgia is a diagnosis of

> > exclusion and a form of arthritis ... " - which is

> > false. Fibromyalgia is not a diagnosis of exclusion

> > and it is not a form of arthritis.

> >

> > Another thing to be aware of is that amitriptyline

> > has been used since the 80s to treat fibromyalgia.

> > Not an MD

> >

> >

> >

> > > > From:

> > NELLIESTAR@...> Date: Fri, 14 Dec 2007 23:25:54

> > -0500> Subject: Re: [ ] Fibromyalgia> > >

> > I> > > <<<<He prescribed 25 milligrams and said that

> > she wouldn't notice any > > changes at all in her

> > case for about two months. He predicted that after

> > that > > time, it would suddenly occur to her that

> > her pain was gone. She says that this > > is exactly

> > what happened. This was four years ago and the pain

> > has not > > returned. She uses the generic

> > amitriptyline. She has told several others about

> > this > > treatment and their experiences have been

> > the same as hers. >>>>>> > > , you left out Dr.

> > Gott's response !> Dr Gott's response:> > A:

> > Fibromyalgia, a poorly understood pain disorder, is

> > difficult to manage. > Patients with the ailment

> > have noted significant reductions in their quality >

> > of life. I welcome the opportunity to echo your

> > sentiments about Elavil. If, in > fact, the medicine

> > reduces the muscle pain, you should be considered

> > for a > Nobel prize. I ask that readers who try this

> > remedy let me know whether it > works, and I'll

> > print a follow-up.> Because fibromyalgia is a

> > diagnosis of exclusion and a form of arthritis, I >

> > am sending you a copy of my Health Report

> > " Understanding Osteoarthritis. " Other > readers who

> > would like a copy should send a long,

> > self-addressed, stamped > envelope and $2 to

> > Newsletter, PO Box 167, Wickliffe, OH 44092. Be sure

> > to > mention the title.

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

> __________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

> u know i love ya...right? laurie

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with

Search.

>

>

[Guest guest]

Hi I have fibro and was diagnoised in 04 and recently RA. I am 37 a wife and a

mother. I just saw a speicalist on fibro. He gave me some new meds to go along

with my Lyrica. He put me on cmybalta and ritalin. So far so good. Pretty

excited. I get depressed too. For the past year I have been in bed alot. Friends

ask us to do stuff, But of course didn't feel well enough to. Thank God I have a

very understanding husband. Vent anytime.

crktrendle54 <crktrendle54@...> wrote: hi everyone, im new 2 the

group. my name is connie, i,m 54 and i,ve

probly have had this 4 a long time. i was diagnoised with fibro 3yrs

ago when i thought i had ra. my joints, hands and feet swell 2 were i

can,t move some days and others not 2 bad. my skin hurts 2 the touch

most of time. depression is a big problem,. the hardest thing 4 me is

admitting that i can,t do some of things that i use 2 do. holding my

grandkids will put me in bed all day the next day. i try 2 do things

in moderation so i don,t end up there. my dr. has me starting conseling

the 24. she seems 2 think that my depression could be effecting my

physical pain, it makes me mad 4 her 2 think that but i also understand

2. i do take meds 4 my depression, fibro,

cronic pain, migraines and my sleepless nights. i,ve read some of the

storys of some of you and it is great 2 know that i,m not alone. it

will be great 2 connect with someone that has fibro 2 compare

with . god bless u all , connie

Jeannie

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

--- In , " crktrendle54 " <crktrendle54@...>

wrote:

>

> hi everyone, im new 2 the group. my name is connie, i,m 54 and

i,ve

> probly have had this 4 a long time. i was diagnoised with fibro

3yrs

> ago when i thought i had ra. my joints, hands and feet swell 2

were i

> can,t move some days and others not 2 bad. my skin hurts 2 the

touch

> most of time. depression is a big problem,. the hardest thing 4 me

is

> admitting that i can,t do some of things that i use 2 do. holding

my

> grandkids will put me in bed all day the next day. i try 2 do

things

> in moderation so i don,t end up there. my dr. has me starting

conseling

> the 24. she seems 2 think that my depression could be effecting my

> physical pain, it makes me mad 4 her 2 think that but i also

understand

> 2. i do take meds 4 my depression,

fibro,

> cronic pain, migraines and my sleepless nights. i,ve read some of

the

> storys of some of you and it is great 2 know that i,m not alone.

it

> will be great 2 connect with someone that has fibro 2 compare

> with . god bless u all , connie

>

[Guest guest]

HI DID U GET MY MESSAGE? PLEASE REPLY TO ME AS MELYNDA. I WROTE SEVERAL THINGS

ABOUT DEPRESSION DRUGS & ITS ISSUES. ALL YOU CAN DO IS TRY YOUR BEST!!!! YES

COUNCELING WOULD BE GREAT SO U CAN TALK TO SOMEONE WITH NO CLUE OF YOUR PROBLEM.

SOMETIMES THEY SAY ITS BETTER TO TALK TO SOMEONE U DONT NOW. GOOD LUCK MELYNDA

crktrendle54 <crktrendle54@...> wrote: hi everyone, im new 2 the

group. my name is connie, i,m 54 and i,ve

probly have had this 4 a long time. i was diagnoised with fibro 3yrs

ago when i thought i had ra. my joints, hands and feet swell 2 were i

can,t move some days and others not 2 bad. my skin hurts 2 the touch

most of time. depression is a big problem,. the hardest thing 4 me is

admitting that i can,t do some of things that i use 2 do. holding my

grandkids will put me in bed all day the next day. i try 2 do things

in moderation so i don,t end up there. my dr. has me starting conseling

the 24. she seems 2 think that my depression could be effecting my

physical pain, it makes me mad 4 her 2 think that but i also understand

2. i do take meds 4 my depression, fibro,

cronic pain, migraines and my sleepless nights. i,ve read some of the

storys of some of you and it is great 2 know that i,m not alone. it

will be great 2 connect with someone that has fibro 2 compare

with . god bless u all , connie

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

YOU GO GIRL! TELL YOUR DR. I HATE WHEN OTHER DRS. TELL U ABOUT SOMETHING THEY

KNOW NOTHING ABOUT. GOD BLESS,MELYNDAGAMEZ 6/24/08 5:55P.M.CENTRAL

[ ] Fibromyalgia

I just accompanied my 55 year old mom to the cardiologist.  He had me come in

the room with her since I have been a cardiac patient for the past ten years

(since I was 26).  I had to go over my history of what is wrong with mine, so he

can see what types of things run in the family.  In my medical history, my

Fibromyalgia was mentioned.  He said " Oh don't even get me started on

Fibromyalgia " .  He said that he doesn't believe its a disease or even exists. 

This is kind of funny, since he is best friends with my family doctor who

diagnosed me years ago before sending me to U of M.  He said most diagnosed are

middle age women who are extremely overweight.  I was thinking hello! I was

diagnosed at 30 (not middle aged) and I was 5'9 and 140 pounds (not extremely

overweight).  He said these people are sedentary.  He never sees runners get

FMS.  Which isn't true.  I've a friend who is very petite, about 5 feet tall and

105 lbs.  She is a massage

therapist and very active.  I was a little frustrated yet then thought, this guy

is a cardiologist.   He keeps up on heart conditions, and he's supposed to have

people try to stay in shape and to get exercise.  He might not be on the up and

up of rheumatological and nervous system disorders that affect the body.  Not to

mention since there are some doctors that haven't even heard of it, or seem to

know what it is.  So I tried not to take too much offense.  Then I thought, you

are a medical professional spouting off about something you aren't even sure of!

I'm going to tell my doctor he is not allowed to go golfing with him anymore

since they just got back from a three day golf outing until he educates his

friend on FMS

     

[Guest guest]

Thank you Melynda! That " you go girl " cracked me right up! I know, I couldn't

believe the nerve of him! I don't think my mom was that impressed with him

either! She was telling him how tired she gets at around noon each day, and very

weak so that she can barely do anything.  This very well could be her low

potassium levels or it could be her heart condition that they are working on. 

So you know what he tells her? He tells her " oh that happens to me everyday

too.  That's why I drink coffee. " I was SHOCKED! I've been told by cardiologists

for the past 10 years to NOT drink caffiene with my heart conditions. I've also

been warned even if its decaf to not overdue it, as decaf has some levels of

caffiene in it, and if you have toooo many cups it can be just as bad! I wanted

to throw something and I usually don't lose my temper:) I can't wait to tell my

doctor who is the family doctor that diagnosed the FMS to set his friend

straight:) He will probably

laugh!!!

From: Melynda Gamez <melyndagamez@...>

Subject: Re: [ ] Fibromyalgia

Date: Tuesday, June 24, 2008, 6:57 PM

YOU GO GIRL! TELL YOUR DR. I HATE WHEN OTHER DRS. TELL U ABOUT SOMETHING THEY

KNOW NOTHING ABOUT. GOD BLESS,MELYNDAGAMEZ 6/24/08 5:55P.M.CENTRAL

[ ] Fibromyalgia

I just accompanied my 55 year old mom to the cardiologist.  He had me come in

the room with her since I have been a cardiac patient for the past ten years

(since I was 26).  I had to go over my history of what is wrong with mine, so he

can see what types of things run in the family.  In my medical history, my

Fibromyalgia was mentioned.  He said " Oh don't even get me started on

Fibromyalgia " .  He said that he doesn't believe its a disease or even exists. 

This is kind of funny, since he is best friends with my family doctor who

diagnosed me years ago before sending me to U of M.  He said most diagnosed are

middle age women who are extremely overweight.  I was thinking hello! I was

diagnosed at 30 (not middle aged) and I was 5'9 and 140 pounds (not extremely

overweight).  He said these people are sedentary.  He never sees runners get

FMS.  Which isn't true.  I've a friend who is very petite, about 5 feet tall and

105 lbs.  She is a massage

therapist and very active.  I was a little frustrated yet then thought, this guy

is a cardiologist.   He keeps up on heart conditions, and he's supposed to have

people try to stay in shape and to get exercise.  He might not be on the up and

up of rheumatological and nervous system disorders that affect the body.  Not to

mention since there are some doctors that haven't even heard of it, or seem to

know what it is.  So I tried not to take too much offense.  Then I thought, you

are a medical professional spouting off about something you aren't even sure of!

I'm going to tell my doctor he is not allowed to go golfing with him anymore

since they just got back from a three day golf outing until he educates his

friend on FMS

     

[Guest guest]

not a problem, i would do the same! god bless,melyndagamez 6/24/08

10:45p.m..central

[ ] Fibromyalgia

I just accompanied my 55 year old mom to the cardiologist.  He had me come in

the room with her since I have been a cardiac patient for the past ten years

(since I was 26).  I had to go over my history of what is wrong with mine, so he

can see what types of things run in the family.  In my medical history, my

Fibromyalgia was mentioned.  He said " Oh don't even get me started on

Fibromyalgia " .  He said that he doesn't believe its a disease or even exists. 

This is kind of funny, since he is best friends with my family doctor who

diagnosed me years ago before sending me to U of M.  He said most diagnosed are

middle age women who are extremely overweight.  I was thinking hello! I was

diagnosed at 30 (not middle aged) and I was 5'9 and 140 pounds (not extremely

overweight).  He said these people are sedentary.  He never sees runners get

FMS.  Which isn't true.  I've a friend who is very petite, about 5 feet tall and

105 lbs.  She is a massage

therapist and very active.  I was a little frustrated yet then thought, this guy

is a cardiologist.   He keeps up on heart conditions, and he's supposed to have

people try to stay in shape and to get exercise.  He might not be on the up and

up of rheumatological and nervous system disorders that affect the body.  Not to

mention since there are some doctors that haven't even heard of it, or seem to

know what it is.  So I tried not to take too much offense.  Then I thought, you

are a medical professional spouting off about something you aren't even sure of!

I'm going to tell my doctor he is not allowed to go golfing with him anymore

since they just got back from a three day golf outing until he educates his

friend on FMS

     

[Guest guest]

WOW - that guy is a piece of work!! Let him get Fibromyalgia just so

we can all gather around him and tell him it doesn't exist!! And the

coffee comment to your mother?!! I think I would be finding a new

cardiologist!

>

> I just accompanied my 55 year old mom to the cardiologist.  He had

me come in the room with her since I have been a cardiac patient for

the past ten years (since I was 26).  I had to go over my history of

what is wrong with mine, so he can see what types of things run in

the family.  In my medical history, my Fibromyalgia was mentioned. 

He said " Oh don't even get me started on Fibromyalgia " .  He said that

he doesn't believe its a disease or even exists.  This is kind of

funny, since he is best friends with my family doctor who diagnosed

me years ago before sending me to U of M.  He said most diagnosed are

middle age women who are extremely overweight.  I was thinking hello!

I was diagnosed at 30 (not middle aged) and I was 5'9 and 140 pounds

(not extremely overweight).  He said these people are sedentary.  He

never sees runners get FMS.  Which isn't true.  I've a friend who is

very petite, about 5 feet tall and 105 lbs.  She is a massage

> therapist and very active.  I was a little frustrated yet then

thought, this guy is a cardiologist.   He keeps up on heart

conditions, and he's supposed to have people try to stay in shape and

to get exercise.  He might not be on the up and up of rheumatological

and nervous system disorders that affect the body.  Not to mention

since there are some doctors that haven't even heard of it, or seem

to know what it is.  So I tried not to take too much offense.  Then I

thought, you are a medical professional spouting off about something

you aren't even sure of! I'm going to tell my doctor he is not

allowed to go golfing with him anymore since they just got back from

a three day golf outing until he educates his friend on FMS

>

>

>

>

>

[Guest guest]

I completely agree Mimi!! The FMS comment angered my mom as well as she is the

one who went through me down the long path of specialists and appointments and

going to the doctors with me and learning of the disease.  I should think he

would have taken her extreme fatigue and weakness a little more seriously since

she's seeing him for heart issues.  I think she is definitely looking for a new

one to go to! It's so ironic because the doctor that referred her to him is

amazing and he treats FMS just as well as my rheumatologists do.  He diagnosed

me when they couldn't..since he saw more of me.  And he is a firm believer and

up to date on treatments.  I'll have to tell him he should drag his cardio

friend to an FMS seminar:)

From: Mimi <mimi212@...>

Subject: [ ] Re: Fibromyalgia

Date: Wednesday, June 25, 2008, 8:25 AM

WOW - that guy is a piece of work!! Let him get Fibromyalgia just so

we can all gather around him and tell him it doesn't exist!! And the

coffee comment to your mother?!! I think I would be finding a new

cardiologist!

>

> I just accompanied my 55 year old mom to the cardiologist.  He had

me come in the room with her since I have been a cardiac patient for

the past ten years (since I was 26).  I had to go over my history of

what is wrong with mine, so he can see what types of things run in

the family.  In my medical history, my Fibromyalgia was mentioned. 

He said " Oh don't even get me started on Fibromyalgia " .  He said that

he doesn't believe its a disease or even exists.  This is kind of

funny, since he is best friends with my family doctor who diagnosed

me years ago before sending me to U of M.  He said most diagnosed are

middle age women who are extremely overweight.  I was thinking hello!

I was diagnosed at 30 (not middle aged) and I was 5'9 and 140 pounds

(not extremely overweight).  He said these people are sedentary.  He

never sees runners get FMS.  Which isn't true.  I've a friend who is

very petite, about 5 feet tall and 105 lbs.  She is a massage

> therapist and very active.  I was a little frustrated yet then

thought, this guy is a cardiologist.   He keeps up on heart

conditions, and he's supposed to have people try to stay in shape and

to get exercise.  He might not be on the up and up of rheumatological

and nervous system disorders that affect the body.  Not to mention

since there are some doctors that haven't even heard of it, or seem

to know what it is.  So I tried not to take too much offense.  Then I

thought, you are a medical professional spouting off about something

you aren't even sure of! I'm going to tell my doctor he is not

allowed to go golfing with him anymore since they just got back from

a three day golf outing until he educates his friend on FMS

>

>

>

>

>

[Guest guest]

Bravo - you tell him!

It's that " God complex " thing. I know people in all walks of life who

are self-proclaimed " experts " on everything. We used to call them

know-it-alls. But it does seem to me that members of the medical

profession are misproportionately more guilty of this than the general

population.

Imho they should take pride in staying on top of their own

specialties, and acknowledge that other specialites exist to have

in-depth knowledge on the stuff they don't know about. Isn't that the

whole point of specializing?

>

> I just accompanied my 55 year old mom to the cardiologist. He had

me come in the room with her since I have been a cardiac patient for

the past ten years (since I was 26). I had to go over my history of

what is wrong with mine, so he can see what types of things run in the

family. In my medical history, my Fibromyalgia was mentioned. He

said " Oh don't even get me started on Fibromyalgia " . He said that he

doesn't believe its a disease or even exists. This is kind of funny,

since he is best friends with my family doctor who diagnosed me years

ago before sending me to U of M. He said most diagnosed are middle

age women who are extremely overweight. I was thinking hello! I was

diagnosed at 30 (not middle aged) and I was 5'9 and 140 pounds (not

extremely overweight). He said these people are sedentary. He never

sees runners get FMS. Which isn't true. I've a friend who is very

petite, about 5 feet tall and 105 lbs. She is a massage

> therapist and very active. I was a little frustrated yet then

thought, this guy is a cardiologist. He keeps up on heart

conditions, and he's supposed to have people try to stay in shape and

to get exercise. He might not be on the up and up of rheumatological

and nervous system disorders that affect the body. Not to mention

since there are some doctors that haven't even heard of it, or seem to

know what it is. So I tried not to take too much offense. Then I

thought, you are a medical professional spouting off about something

you aren't even sure of! I'm going to tell my doctor he is not allowed

to go golfing with him anymore since they just got back from a three

day golf outing until he educates his friend on FMS

>

>

>

>

>