Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 Get on abx asap. It will change your life. Kill down the load and then you can start feeling better and work towards a more natural approach. Been through it. Abx changed my life. Now functional, heathy and happy. Getting my life back!! Email me directly if you would like to montylife@.... I am in nyc. Best Monty Sent via BlackBerry by AT & T [ ] Homeopathy- can it work on neuro lyme? Hi- I know this is off topic- I'm running out of options- I had fibro 1998 (started as bad headaches up back of head, then stiff neck etc) optic neurits 2006 with vision loss- illness shifted and has progressed rapidly to now MS type symptoms. MRI's are normals-Neuro says it is not MS. When I've tried to treat I have acclerated the disease. I just don't have herx's I have violent neurolgoical explosions. Did Zhang for 6 months 3 years ago and added buhner on top of it. Had neurological explosion to non functional for 4 months-went from having eye pain and brain fog to too many MS type symptoms to list plus excessive jerking/twitching- stopped herbs took 4 months to recover but not back to baselien was left with neuro symptoms I didn't have before. after 8mos- i slowly added cat's claw, devils claw, sarsparilla- was on for 1.5 years but still had decline. Then in November tried my first drugs for antifungal treatment 8 days' of flagyl, 3 week difllucan- and some herb lyme tea-this sent me into hell. I went from not well (bad brain fog, eye pain ,weaker left side, jerking and some twitching) into Hell. Now been housebound in agony for 5 months now and not getting better. I know have unbelieveable nerve pain/irritation in my neck /brain ( on a prescription-for gaba pentin now!), left side numb, right arm numb, jerking and twitching like never before, total insomnia not relieved by meds, weak shaky neck, head jerking, eye presure, weird sensation on left side of head, weak legs and arms, dizzy sick, burning all over- pretty much in agony 7X24 and not getting better. I see a big name east coast lyme doc on May 5- BUT I " m terrified- I cannot physically take getting any sicker. How can I put more drugs in my body. I know I need to do something. I feel really toxic and hypersenstive to everything now. I used to be able to take all kinds of herbs. Can't take anything now. I consulted with a local naturopath and she suggested homeopathy in my case given how reactive to everything. And connected me with along time mentor /well known respected homeopath in the US. Do you think homeopathy can cure/reverse a neurologoical disease like late stage neuro lyme/ MS type illness? I don't know what to do anymore. I feel like I've done everything since onset of fibro 12 years ago and this illness has progessed so much. I eat allorganic gluten free, sugar free, whole foods diet, exercised (i did not now)every day for most of 12 years, massage weekly, acupncutre, rolfing, silver fillings out etc etc etc etc Also looking at a compnay in the US that offers stem cell treatments. Pretty scared about how ill I've become. Help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 No I personally do not think that homeopathy has any hope of working effectively on any disease. Its one of the few alternative medicines I have 0 faith in. But there are many protocols folks are using that is getting their Chronic Lyme into remission. I have a free computer cd of the collective wisdom of the lyme community. See my webpage below. www.lyme-resource.com You can lead a person to a fact, but you can't make them think! - [ ] Homeopathy- can it work on neuro lyme? Hi- I know this is off topic- I'm running out of options- I had fibro 1998 (started as bad headaches up back of head, then stiff neck etc) optic neurits 2006 with vision loss- illness shifted and has progressed rapidly to now MS type symptoms. MRI's are normals-Neuro says it is not MS. When I've tried to treat I have acclerated the disease. I just don't have herx's I have violent neurolgoical explosions. Did Zhang for 6 months 3 years ago and added buhner on top of it. Had neurological explosion to non functional for 4 months-went from having eye pain and brain fog to too many MS type symptoms to list plus excessive jerking/twitching- stopped herbs took 4 months to recover but not back to baselien was left with neuro symptoms I didn't have before. after 8mos- i slowly added cat's claw, devils claw, sarsparilla- was on for 1.5 years but still had decline. Then in November tried my first drugs for antifungal treatment 8 days' of flagyl, 3 week difllucan- and some herb lyme tea-this sent me into hell. I went from not well (bad brain fog, eye pain ,weaker left side, jerking and some twitching) into Hell. Now been housebound in agony for 5 months now and not getting better. I know have unbelieveable nerve pain/irritation in my neck /brain ( on a prescription-for gaba pentin now!), left side numb, right arm numb, jerking and twitching like never before, total insomnia not relieved by meds, weak shaky neck, head jerking, eye presure, weird sensation on left side of head, weak legs and arms, dizzy sick, burning all over- pretty much in agony 7X24 and not getting better. I see a big name east coast lyme doc on May 5- BUT I " m terrified- I cannot physically take getting any sicker. How can I put more drugs in my body. I know I need to do something. I feel really toxic and hypersenstive to everything now. I used to be able to take all kinds of herbs. Can't take anything now. I consulted with a local naturopath and she suggested homeopathy in my case given how reactive to everything. And connected me with along time mentor /well known respected homeopath in the US. Do you think homeopathy can cure/reverse a neurologoical disease like late stage neuro lyme/ MS type illness? I don't know what to do anymore. I feel like I've done everything since onset of fibro 12 years ago and this illness has progessed so much. I eat allorganic gluten free, sugar free, whole foods diet, exercised (i did not now)every day for most of 12 years, massage weekly, acupncutre, rolfing, silver fillings out etc etc etc etc Also looking at a compnay in the US that offers stem cell treatments. Pretty scared about how ill I've become. Help! ------------------------------------ Buy Healing Lyme: Natural Healing And Prevention of Lyme Borreliosis And Its Coinfections by Buhner at one of these locations: http://tinyurl.com/3bgm5d Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 You could try a rife machine. I use my GB4000 machine every day, and it seems to work. I'm off abx; symptoms getting less. I've been off abx for 2 1/2 months. I still take some herbals. You could also try photon therapy-plus-homeopathic-nosodes. Selma credits her PE-1 photon device with her complete cure. I see you mentioned rolfing. Is that a typo for rifing? ----Purpleffoxglove From: y093666 <y093666@...> Subject: [ ] Homeopathy- can it work on neuro lyme? Date: Saturday, April 17, 2010, 3:44 PM  Hi- I know this is off topic- I'm running out of options- I had fibro 1998 (started as bad headaches up back of head, then stiff neck etc) optic neurits 2006 with vision loss- illness shifted and has progressed rapidly to now MS type symptoms. MRI's are normals-Neuro says it is not MS. When I've tried to treat I have acclerated the disease. I just don't have herx's I have violent neurolgoical explosions. Did Zhang for 6 months 3 years ago and added buhner on top of it. Had neurological explosion to non functional for 4 months-went from having eye pain and brain fog to too many MS type symptoms to list plus excessive jerking/twitching- stopped herbs took 4 months to recover but not back to baselien was left with neuro symptoms I didn't have before. after 8mos- i slowly added cat's claw, devils claw, sarsparilla- was on for 1.5 years but still had decline. Then in November tried my first drugs for antifungal treatment 8 days' of flagyl, 3 week difllucan- and some herb lyme tea-this sent me into hell. I went from not well (bad brain fog, eye pain ,weaker left side, jerking and some twitching) into Hell. Now been housebound in agony for 5 months now and not getting better. I know have unbelieveable nerve pain/irritation in my neck /brain ( on a prescription- for gaba pentin now!), left side numb, right arm numb, jerking and twitching like never before, total insomnia not relieved by meds, weak shaky neck, head jerking, eye presure, weird sensation on left side of head, weak legs and arms, dizzy sick, burning all over- pretty much in agony 7X24 and not getting better. I see a big name east coast lyme doc on May 5- BUT I " m terrified- I cannot physically take getting any sicker. How can I put more drugs in my body. I know I need to do something. I feel really toxic and hypersenstive to everything now. I used to be able to take all kinds of herbs. Can't take anything now. I consulted with a local naturopath and she suggested homeopathy in my case given how reactive to everything. And connected me with along time mentor /well known respected homeopath in the US. Do you think homeopathy can cure/reverse a neurologoical disease like late stage neuro lyme/ MS type illness? I don't know what to do anymore. I feel like I've done everything since onset of fibro 12 years ago and this illness has progessed so much. I eat allorganic gluten free, sugar free, whole foods diet, exercised (i did not now)every day for most of 12 years, massage weekly, acupncutre, rolfing, silver fillings out etc etc etc etc Also looking at a compnay in the US that offers stem cell treatments. Pretty scared about how ill I've become. Help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 Actually, , one homeopathic remedy worked fantastically for me - pulsatilla 12X ended organic depression and got me completely high, and I forgot I had put a pellet under my tongue the nite before and couldn't think why i was so high. - Robin [ ] Homeopathy- can it work on neuro lyme? Hi- I know this is off topic- I'm running out of options- I had fibro 1998 (started as bad headaches up back of head, then stiff neck etc) optic neurits 2006 with vision loss- illness shifted and has progressed rapidly to now MS type symptoms. MRI's are normals-Neuro says it is not MS. When I've tried to treat I have acclerated the disease. I just don't have herx's I have violent neurolgoical explosions. Did Zhang for 6 months 3 years ago and added buhner on top of it. Had neurological explosion to non functional for 4 months-went from having eye pain and brain fog to too many MS type symptoms to list plus excessive jerking/twitching- stopped herbs took 4 months to recover but not back to baselien was left with neuro symptoms I didn't have before. after 8mos- i slowly added cat's claw, devils claw, sarsparilla- was on for 1.5 years but still had decline. Then in November tried my first drugs for antifungal treatment 8 days' of flagyl, 3 week difllucan- and some herb lyme tea-this sent me into hell. I went from not well (bad brain fog, eye pain ,weaker left side, jerking and some twitching) into Hell. Now been housebound in agony for 5 months now and not getting better. I know have unbelieveable nerve pain/irritation in my neck /brain ( on a prescription-for gaba pentin now!), left side numb, right arm numb, jerking and twitching like never before, total insomnia not relieved by meds, weak shaky neck, head jerking, eye presure, weird sensation on left side of head, weak legs and arms, dizzy sick, burning all over- pretty much in agony 7X24 and not getting better. I see a big name east coast lyme doc on May 5- BUT I " m terrified- I cannot physically take getting any sicker. How can I put more drugs in my body. I know I need to do something. I feel really toxic and hypersenstive to everything now. I used to be able to take all kinds of herbs. Can't take anything now. I consulted with a local naturopath and she suggested homeopathy in my case given how reactive to everything. And connected me with along time mentor /well known respected homeopath in the US. Do you think homeopathy can cure/reverse a neurologoical disease like late stage neuro lyme/ MS type illness? I don't know what to do anymore. I feel like I've done everything since onset of fibro 12 years ago and this illness has progessed so much. I eat allorganic gluten free, sugar free, whole foods diet, exercised (i did not now)every day for most of 12 years, massage weekly, acupncutre, rolfing, silver fillings out etc etc etc etc Also looking at a compnay in the US that offers stem cell treatments. Pretty scared about how ill I've become. Help! ------------------------------------ Buy Healing Lyme: Natural Healing And Prevention of Lyme Borreliosis And Its Coinfections by Buhner at one of these locations: http://tinyurl.com/3bgm5d Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 I believe in natural ways of healing including homeopathic. I have been using it for about 25 years....have been battling lymes for 7 years. The battle always got better when using natural means....then when I decided to see a MD, the neuro flaired up and it has taken me 1 1/2 years to return to where I was. Each person must pick the path they believe in. Natural is my path because MD's seem to mess my life up all the time by not believing me when I say I react strangly to things. ________________________________ From: " sfrobink@... " <sfrobink@...> Sent: Sat, April 17, 2010 7:29:48 PM Subject: Re: [ ] Homeopathy- can it work on neuro lyme? Actually, , one homeopathic remedy worked fantastically for me - pulsatilla 12X ended organic depression and got me completely high, and I forgot I had put a pellet under my tongue the nite before and couldn't think why i was so high. - Robin [ ] Homeopathy- can it work on neuro lyme? Hi- I know this is off topic- I'm running out of options- I had fibro 1998 (started as bad headaches up back of head, then stiff neck etc) optic neurits 2006 with vision loss- illness shifted and has progressed rapidly to now MS type symptoms. MRI's are normals-Neuro says it is not MS. When I've tried to treat I have acclerated the disease. I just don't have herx's I have violent neurolgoical explosions. Did Zhang for 6 months 3 years ago and added buhner on top of it. Had neurological explosion to non functional for 4 months-went from having eye pain and brain fog to too many MS type symptoms to list plus excessive jerking/twitching- stopped herbs took 4 months to recover but not back to baselien was left with neuro symptoms I didn't have before. after 8mos- i slowly added cat's claw, devils claw, sarsparilla- was on for 1.5 years but still had decline. Then in November tried my first drugs for antifungal treatment 8 days' of flagyl, 3 week difllucan- and some herb lyme tea-this sent me into hell. I went from not well (bad brain fog, eye pain ,weaker left side, jerking and some twitching) into Hell. Now been housebound in agony for 5 months now and not getting better. I know have unbelieveable nerve pain/irritation in my neck /brain ( on a prescription- for gaba pentin now!), left side numb, right arm numb, jerking and twitching like never before, total insomnia not relieved by meds, weak shaky neck, head jerking, eye presure, weird sensation on left side of head, weak legs and arms, dizzy sick, burning all over- pretty much in agony 7X24 and not getting better. I see a big name east coast lyme doc on May 5- BUT I " m terrified- I cannot physically take getting any sicker. How can I put more drugs in my body. I know I need to do something. I feel really toxic and hypersenstive to everything now. I used to be able to take all kinds of herbs. Can't take anything now. I consulted with a local naturopath and she suggested homeopathy in my case given how reactive to everything. And connected me with along time mentor /well known respected homeopath in the US. Do you think homeopathy can cure/reverse a neurologoical disease like late stage neuro lyme/ MS type illness? I don't know what to do anymore. I feel like I've done everything since onset of fibro 12 years ago and this illness has progessed so much. I eat allorganic gluten free, sugar free, whole foods diet, exercised (i did not now)every day for most of 12 years, massage weekly, acupncutre, rolfing, silver fillings out etc etc etc etc Also looking at a compnay in the US that offers stem cell treatments. Pretty scared about how ill I've become. Help! ------------ --------- --------- ------ Buy Healing Lyme: Natural Healing And Prevention of Lyme Borreliosis And Its Coinfections by Buhner at one of these locations: http://tinyurl. com/3bgm5d Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2010 Report Share Posted April 18, 2010 Dear Friend, I do hope the appointment with the East coast Lyme doctor on May 5 will begin to give you some relief. Who is he/she, by the way? In the meantime, I want to recommend a book on the program of Stress Reduction at the U MAss Medical Center for people with all kinds of physical problems: “Full Catastrophe Living-- Using the Wisdom of Your Body and Mind to Face Stress, Pain and Illness” by Jon Kabat-Zinn. It is helping me cope with the stress of this illness and in the process I think is triggering some inner healing mechanisms. I am able to face the fear, uncertainty and confusion of this disease as well as other prevalent stressors-- economic, social, etc. You can get it used on line. Wishing you healing soon, On Apr 17, 2010, at 3:44 PM, y093666 wrote: > Hi- I know this is off topic- > > I'm running out of options- > > I had fibro 1998 (started as bad headaches up back of head, then > stiff neck etc) optic neurits 2006 with vision loss- illness > shifted and has progressed rapidly to now MS type symptoms. MRI's > are normals-Neuro says it is not MS. When I've tried to treat I > have acclerated the disease. I just don't have herx's I have > violent neurolgoical explosions. Did Zhang for 6 months 3 years ago > and added buhner on top of it. Had neurological explosion to non > functional for 4 months-went from having eye pain and brain fog to > too many MS type symptoms to list plus excessive jerking/twitching- > stopped herbs took 4 months to recover but not back to baselien was > left with neuro symptoms I didn't have before. > > after 8mos- i slowly added cat's claw, devils claw, sarsparilla- > was on for 1.5 years but still had decline. > Then in November tried my first drugs for antifungal treatment 8 > days' of flagyl, 3 week difllucan- and some herb lyme tea-this sent > me into hell. I went from not well (bad brain fog, eye pain ,weaker > left side, jerking and some twitching) into Hell. Now been > housebound in agony for 5 months now and not getting better. I know > have unbelieveable nerve pain/irritation in my neck /brain ( on a > prescription-for gaba pentin now!), left side numb, right arm numb, > jerking and twitching like never before, total insomnia not > relieved by meds, weak shaky neck, head jerking, eye presure, weird > sensation on left side of head, weak legs and arms, dizzy sick, > burning all over- pretty much in agony 7X24 and not getting better. > > I see a big name east coast lyme doc on May 5- BUT I " m terrified- I > cannot physically take getting any sicker. How can I put more drugs > in my body. I know I need to do something. I feel really toxic and > hypersenstive to everything now. I used to be able to take all > kinds of herbs. Can't take anything now. > > I consulted with a local naturopath and she suggested homeopathy in > my case given how reactive to everything. And connected me with > along time mentor /well known respected homeopath in the US. > > Do you think homeopathy can cure/reverse a neurologoical disease > like late stage neuro lyme/ MS type illness? > > I don't know what to do anymore. I feel like I've done everything > since onset of fibro 12 years ago and this illness has progessed so > much. I eat allorganic gluten free, sugar free, whole foods diet, > exercised (i did not now)every day for most of 12 years, massage > weekly, acupncutre, rolfing, silver fillings out etc etc etc etc > > Also looking at a compnay in the US that offers stem cell > treatments. Pretty scared about how ill I've become. Help! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2010 Report Share Posted April 18, 2010 Tolerating antibiotics can be tough, but with an experienced LLMD who starts you out gradually so you can handle the herx, it's your best bet for recovery, in my opinion. The key is finding a good LLMD who will work with your allergies and sensitivities and start slowly one drug at a time to see how effective it is and how well you tolerate it. You may need to work with an allergy specialist as well to pre-test your reaction to each antibiotic or other meds. I did not tolerate Doxycycline well (first treatment after 6 years undiagnosed)--had the herx from hell for 6 weeks . This was prescribed by MD who is not Lyme Literate for chronic form. When I found an experienced LLMD he immediately switched me to Amoxicillin which I tolerated quite well. After 9 months of abxs (starting second month on IV Rocephin) I have never been on more than 2 different drugs at the same time. The reason given was difficulty in monitoring effectiveness of current treatment and side-effects of too many different drugs at one time. I have yet to take Flagyl, I know it is hard to tolerate. Probably will take it after current protocol is completed. Seems starting with Flagyl is an odd choice. Was it because of your history of severe allergic reactions? From my research homeopathy is of no value in treating Neuro Lyme (thought some NDs use nosodes along with other modalities). In Europe where it used to be very popular, it is no longer covered by insurance. There's no solid evidence that it cures any disease. I understand your fears and bewilderment. This is a long journey, but there is hope. Wishing you better days ahead. Kim [ ] Homeopathy- can it work on neuro lyme? Hi- I know this is off topic- I'm running out of options- I had fibro 1998 (started as bad headaches up back of head, then stiff neck etc) optic neurits 2006 with vision loss- illness shifted and has progressed rapidly to now MS type symptoms. MRI's are normals-Neuro says it is not MS. When I've tried to treat I have acclerated the disease. I just don't have herx's I have violent neurolgoical explosions. Did Zhang for 6 months 3 years ago and added buhner on top of it. Had neurological explosion to non functional for 4 months-went from having eye pain and brain fog to too many MS type symptoms to list plus excessive jerking/twitching- stopped herbs took 4 months to recover but not back to baselien was left with neuro symptoms I didn't have before. after 8mos- i slowly added cat's claw, devils claw, sarsparilla- was on for 1.5 years but still had decline. Then in November tried my first drugs for antifungal treatment 8 days' of flagyl, 3 week difllucan- and some herb lyme tea-this sent me into hell. I went from not well (bad brain fog, eye pain ,weaker left side, jerking and some twitching) into Hell. Now been housebound in agony for 5 months now and not getting better. I know have unbelieveable nerve pain/irritation in my neck /brain ( on a prescription-for gaba pentin now!), left side numb, right arm numb, jerking and twitching like never before, total insomnia not relieved by meds, weak shaky neck, head jerking, eye presure, weird sensation on left side of head, weak legs and arms, dizzy sick, burning all over- pretty much in agony 7X24 and not getting better. I see a big name east coast lyme doc on May 5- BUT I " m terrified- I cannot physically take getting any sicker. How can I put more drugs in my body. I know I need to do something. I feel really toxic and hypersenstive to everything now. I used to be able to take all kinds of herbs. Can't take anything now. I consulted with a local naturopath and she suggested homeopathy in my case given how reactive to everything. And connected me with along time mentor /well known respected homeopath in the US. Do you think homeopathy can cure/reverse a neurologoical disease like late stage neuro lyme/ MS type illness? I don't know what to do anymore. I feel like I've done everything since onset of fibro 12 years ago and this illness has progessed so much. I eat allorganic gluten free, sugar free, whole foods diet, exercised (i did not now)every day for most of 12 years, massage weekly, acupncutre, rolfing, silver fillings out etc etc etc etc Also looking at a compnay in the US that offers stem cell treatments. Pretty scared about how ill I've become. Help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2010 Report Share Posted April 18, 2010 Hey Kim, I have heard Tinidazole (Tindamax) is just as effective if not better than Flagyl. But better than way it is a lot more tolerable. I am allergic to flagyl so I most likely won't be able to take Tinidazole either unless I see an allergy specialist. Sent from my BlackBerry® smartphone with SprintSpeed [ ] Homeopathy- can it work on neuro lyme? Hi- I know this is off topic- I'm running out of options- I had fibro 1998 (started as bad headaches up back of head, then stiff neck etc) optic neurits 2006 with vision loss- illness shifted and has progressed rapidly to now MS type symptoms. MRI's are normals-Neuro says it is not MS. When I've tried to treat I have acclerated the disease. I just don't have herx's I have violent neurolgoical explosions. Did Zhang for 6 months 3 years ago and added buhner on top of it. Had neurological explosion to non functional for 4 months-went from having eye pain and brain fog to too many MS type symptoms to list plus excessive jerking/twitching- stopped herbs took 4 months to recover but not back to baselien was left with neuro symptoms I didn't have before. after 8mos- i slowly added cat's claw, devils claw, sarsparilla- was on for 1.5 years but still had decline. Then in November tried my first drugs for antifungal treatment 8 days' of flagyl, 3 week difllucan- and some herb lyme tea-this sent me into hell. I went from not well (bad brain fog, eye pain ,weaker left side, jerking and some twitching) into Hell. Now been housebound in agony for 5 months now and not getting better. I know have unbelieveable nerve pain/irritation in my neck /brain ( on a prescription-for gaba pentin now!), left side numb, right arm numb, jerking and twitching like never before, total insomnia not relieved by meds, weak shaky neck, head jerking, eye presure, weird sensation on left side of head, weak legs and arms, dizzy sick, burning all over- pretty much in agony 7X24 and not getting better. I see a big name east coast lyme doc on May 5- BUT I " m terrified- I cannot physically take getting any sicker. How can I put more drugs in my body. I know I need to do something. I feel really toxic and hypersenstive to everything now. I used to be able to take all kinds of herbs. Can't take anything now. I consulted with a local naturopath and she suggested homeopathy in my case given how reactive to everything. And connected me with along time mentor /well known respected homeopath in the US. Do you think homeopathy can cure/reverse a neurologoical disease like late stage neuro lyme/ MS type illness? I don't know what to do anymore. I feel like I've done everything since onset of fibro 12 years ago and this illness has progessed so much. I eat allorganic gluten free, sugar free, whole foods diet, exercised (i did not now)every day for most of 12 years, massage weekly, acupncutre, rolfing, silver fillings out etc etc etc etc Also looking at a compnay in the US that offers stem cell treatments. Pretty scared about how ill I've become. Help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2010 Report Share Posted April 18, 2010 Hi - you're saying you feel pretty sensitive now - am wondering whether it might be at all useful to do the liver detoxigenomic test to see whether you have a hard time detoxing genetically? It tests for the genes we get from our parents for 8 enzyme pathways in phase I and four out of 10 drains in phase 2 for the liver. Phase I dysfunction is like when the bathtub fills up too much and phase II alteration is like the bathtub doesn't drain. Then an MD or ND knowledgeable in wholistic care can supervise the order of supplement treatments to help the liver do its clearing work. I had the test done through the Genova Diagnostic lab in N Carolina, and my LLMD is following me now on supplement treatments, as I am sensitive to most things I try. Couple other things - I've been treating my fibromyalgia pain successfully with clindamycin abx. It took the fibro pain to zero in a week's time, and still treats it. I started with 150mg 4x/day, then herxed after a month, and went to 150mgmg 2x/day. I know what each of us does does not necessarily work for someone else - I'm just reporting my treatment. Also I drink mangosteen juice and that clears up all Lyme eye symptoms for me. I respect homeopathy - I had both an enjoyable and difficult response to two different remedies. And yes, I've seen people get much improvement from stem cell injections, including someone who presented with MS-like symptoms. I think whatever you do, you have to try it in a gentle way. You need to be the one to evaluate how much you can handle. Take care - Robin Re: [ ] Homeopathy- can it work on neuro lyme? Dear Friend, I do hope the appointment with the East coast Lyme doctor on May 5 will begin to give you some relief. Who is he/she, by the way? In the meantime, I want to recommend a book on the program of Stress Reduction at the U MAss Medical Center for people with all kinds of physical problems: “Full Catastrophe Living-- Using the Wisdom of Your Body and Mind to Face Stress, Pain and Illness†by Jon Kabat-Zinn. It is helping me cope with the stress of this illness and in the process I think is triggering some inner healing mechanisms. I am able to face the fear, uncertainty and confusion of this disease as well as other prevalent stressors-- economic, social, etc. You can get it used on line. Wishing you healing soon, On Apr 17, 2010, at 3:44 PM, y093666 wrote: > Hi- I know this is off topic- > > I'm running out of options- > > I had fibro 1998 (started as bad headaches up back of head, then > stiff neck etc) optic neurits 2006 with vision loss- illness > shifted and has progressed rapidly to now MS type symptoms. MRI's > are normals-Neuro says it is not MS. When I've tried to treat I > have acclerated the disease. I just don't have herx's I have > violent neurolgoical explosions. Did Zhang for 6 months 3 years ago > and added buhner on top of it. Had neurological explosion to non > functional for 4 months-went from having eye pain and brain fog to > too many MS type symptoms to list plus excessive jerking/twitching- > stopped herbs took 4 months to recover but not back to baselien was > left with neuro symptoms I didn't have before. > > after 8mos- i slowly added cat's claw, devils claw, sarsparilla- > was on for 1.5 years but still had decline. > Then in November tried my first drugs for antifungal treatment 8 > days' of flagyl, 3 week difllucan- and some herb lyme tea-this sent > me into hell. I went from not well (bad brain fog, eye pain ,weaker > left side, jerking and some twitching) into Hell. Now been > housebound in agony for 5 months now and not getting better. I know > have unbelieveable nerve pain/irritation in my neck /brain ( on a > prescription-for gaba pentin now!), left side numb, right arm numb, > jerking and twitching like never before, total insomnia not > relieved by meds, weak shaky neck, head jerking, eye presure, weird > sensation on left side of head, weak legs and arms, dizzy sick, > burning all over- pretty much in agony 7X24 and not getting better. > > I see a big name east coast lyme doc on May 5- BUT I " m terrified- I > cannot physically take getting any sicker. How can I put more drugs > in my body. I know I need to do something. I feel really toxic and > hypersenstive to everything now. I used to be able to take all > kinds of herbs. Can't take anything now. > > I consulted with a local naturopath and she suggested homeopathy in > my case given how reactive to everything. And connected me with > along time mentor /well known respected homeopath in the US. > > Do you think homeopathy can cure/reverse a neurologoical disease > like late stage neuro lyme/ MS type illness? > > I don't know what to do anymore. I feel like I've done everything > since onset of fibro 12 years ago and this illness has progessed so > much. I eat allorganic gluten free, sugar free, whole foods diet, > exercised (i did not now)every day for most of 12 years, massage > weekly, acupncutre, rolfing, silver fillings out etc etc etc etc > > Also looking at a compnay in the US that offers stem cell > treatments. Pretty scared about how ill I've become. Help! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2010 Report Share Posted April 18, 2010 How much of the Mangosteen juice did you drink every day? Thank you. > > > Hi- I know this is off topic- > > > > I'm running out of options- > > > > I had fibro 1998 (started as bad headaches up back of head, then > > stiff neck etc) optic neurits 2006 with vision loss- illness > > shifted and has progressed rapidly to now MS type symptoms. MRI's > > are normals-Neuro says it is not MS. When I've tried to treat I > > have acclerated the disease. I just don't have herx's I have > > violent neurolgoical explosions. Did Zhang for 6 months 3 years ago > > and added buhner on top of it. Had neurological explosion to non > > functional for 4 months-went from having eye pain and brain fog to > > too many MS type symptoms to list plus excessive jerking/twitching- > > stopped herbs took 4 months to recover but not back to baselien was > > left with neuro symptoms I didn't have before. > > > > after 8mos- i slowly added cat's claw, devils claw, sarsparilla- > > was on for 1.5 years but still had decline. > > Then in November tried my first drugs for antifungal treatment 8 > > days' of flagyl, 3 week difllucan- and some herb lyme tea-this sent > > me into hell. I went from not well (bad brain fog, eye pain ,weaker > > left side, jerking and some twitching) into Hell. Now been > > housebound in agony for 5 months now and not getting better. I know > > have unbelieveable nerve pain/irritation in my neck /brain ( on a > > prescription-for gaba pentin now!), left side numb, right arm numb, > > jerking and twitching like never before, total insomnia not > > relieved by meds, weak shaky neck, head jerking, eye presure, weird > > sensation on left side of head, weak legs and arms, dizzy sick, > > burning all over- pretty much in agony 7X24 and not getting better. > > > > I see a big name east coast lyme doc on May 5- BUT I " m terrified- I > > cannot physically take getting any sicker. How can I put more drugs > > in my body. I know I need to do something. I feel really toxic and > > hypersenstive to everything now. I used to be able to take all > > kinds of herbs. Can't take anything now. > > > > I consulted with a local naturopath and she suggested homeopathy in > > my case given how reactive to everything. And connected me with > > along time mentor /well known respected homeopath in the US. > > > > Do you think homeopathy can cure/reverse a neurologoical disease > > like late stage neuro lyme/ MS type illness? > > > > I don't know what to do anymore. I feel like I've done everything > > since onset of fibro 12 years ago and this illness has progessed so > > much. I eat allorganic gluten free, sugar free, whole foods diet, > > exercised (i did not now)every day for most of 12 years, massage > > weekly, acupncutre, rolfing, silver fillings out etc etc etc etc > > > > Also looking at a compnay in the US that offers stem cell > > treatments. Pretty scared about how ill I've become. Help! > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2010 Report Share Posted April 19, 2010 Hello, Recently i was in touch with an old high school friend. When i told him i had lyme disease he told me that his partner was very ill with lyme disease and was healed through homeopathy in the Portland Oregon area. This is a classical homeopath. Personally i have not found my remedy, after several attempts with classical homeopathy over the years. Yet when one finds the right practitioner and the right remedy, it can be very effective for difficult-to treat illnesses. I trust you will find clarity from within as to which direction is right for you. Peace, ease, yarrow > > Hi- I know this is off topic- > > I'm running out of options- > > I consulted with a local naturopath and she suggested homeopathy in my case given how reactive to everything. And connected me with along time mentor /well known respected homeopath in the US. > > Do you think homeopathy can cure/reverse a neurologoical disease like late stage neuro lyme/ MS type illness? > > I don't know what to do anymore. I feel like I've done everything since onset of fibro 12 years ago and this illness has progessed so much. I eat allorganic gluten free, sugar free, whole foods diet, exercised (i did not now)every day for most of 12 years, massage weekly, acupncutre, rolfing, silver fillings out etc etc etc etc > > Also looking at a compnay in the US that offers stem cell treatments. Pretty scared about how ill I've become. Help! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2010 Report Share Posted April 19, 2010 > Do you think homeopathy can cure/reverse a neurologoical disease like late stage neuro lyme/ MS type illness? I don't think it can. However, after I ran out of options myself (I did improve on Buhner, but am still far from healthy) I'm now consulting with a homeopathic doc. At least in my country and Germany, these doctors often are better at analysing the 'whole picture' instead of looking just at certain details/symptoms. I don't think homeopathy will cure full-blown lyme disease (P.S.: do you know for sure you have Lyme, clear cut test results etc.??). But it can help your body to recover from (some of) the damage. > I don't know what to do anymore. I feel like I've done everything since onset of fibro 12 years ago and this illness has progessed so much. I eat allorganic gluten free, sugar free, whole foods diet, exercised (i did not now)every day for most of 12 years, massage weekly, acupncutre, rolfing, silver fillings out etc etc etc etc first make sure that your problem is really Borrelia, because there are many other diseases that have overlapping symptoms. If it is Bb you have to treat it with ABX, herbs or something else and problably take it slow. Also pay attention to detox as that may be part of your problem. > Also looking at a compnay in the US that offers stem cell treatments. Pretty scared about how ill I've become. Help! very very experimental; I guess you have read about the Lyme girl who went to India? It sounds promising, but often also too good to be true. There is no cure for Lyme that works for everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2010 Report Share Posted April 19, 2010 > > From my research homeopathy is of no value in treating Neuro Lyme (thought some NDs use nosodes along with other modalities). In Europe where it used to be very popular, it is no longer covered by insurance. There's no solid evidence that it cures any disease. there is no solid evidence for almost anything that is currently practiced in medicine!! Only a small percentage of current pharmaceuticals will pass a double blind placebo test with flying colors; and most of those that pass are pharma products based on traditional herbs (e.g. aspirin / willow bark). That homeopathy is excluded from basic insurance coverage only shows how powerful the big pharma lobby is in Europe. I think homeopathy is still pretty popular is parts of Europe, only people have to pay more out of their own pocket. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2010 Report Share Posted April 19, 2010 > > Personally i have not found my remedy, after several attempts with classical homeopathy over the years. Yet when one finds the right practitioner and the right remedy, it can be very effective for difficult-to treat illnesses. I have heard just a few success stories from homeopathic treatment for Lyme, and usually these were mild cases. This is surprising as homeopathy is relatively popular in my country (Netherlands) and Germany. At the same time, I have heard success stories about all kinds of (sometimes totally ridiculous) treatments. But yes, it depends on the practitioner and probably on the patient as well. The homeopathic doc that I'm consulting now thinks that my remaining 'Lyme problems' (I treated first with 1 year of ABX, and them 1.5 years of Buhner / supplements) are not primarily Lyme, but caused by a 'chemical poisoning' problem. I know for sure (from Western Blot and blood microscopy) that I still had the 'chetes after using ABX and Buhner herbs, but that doesn't mean they are the real problem. Long ago I got sprayed with a huge overdose of 'CS gas' (a chemical warfare agent, in the seventies it was used in Netherlands and some other countries for riot control). My main problem is now severe skin problems, mostly on the skin parts that were exposed to the CS gas. I think there is some Lyme involvement as it has some symptoms in common with ACA. I have many other minor Lyme symptoms, but they are mild and I can accept them. The homeopath thinks the Lyme disease caused the chemical poisoning problem to surface again. I had severe skin problems in the years after the CS exposure, gradually declining as a grew older. CS damages the nerve endings and according to some docs causes auto-immune like problems. I don't know if the homeopath is right, but I'm willing to give it a try. I already believed that Lyme is usually not ONLY Bb infection, but that Bb is more the last drop that causes the bucket to overflow. This is an interesting twist to my Lyme story, and something you would never hear from a normal doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2010 Report Share Posted April 19, 2010 Robin, Does the detoxigenomic test from Genova use caffeine in the testing? I had to stop taking a liver detox test that they used to do (many years ago) because it used caffeine and I simply cannot tolerate caffeine. Also, do you know if it is covered by Medicare? I suspect my liver is not detoxing well, but can't take their function test. It would be good to know what is really going on with my liver! Thanks, jo > > > Hi - you're saying you feel pretty sensitive now - am wondering whether it might be at all useful to do the liver detoxigenomic test to see whether you have a hard time detoxing genetically? It tests for the genes we get from our parents for 8 enzyme pathways in phase I and four out of 10 drains in phase 2 for the liver. Phase I dysfunction is like when the bathtub fills up too much and phase II alteration is like the bathtub doesn't drain. Then an MD or ND knowledgeable in wholistic care can supervise the order of supplement treatments to help the liver do its clearing work. I had the test done through the Genova Diagnostic lab in N Carolina, and my LLMD is following me now on supplement treatments, as I am sensitive to most things I try. > > Couple other things - I've been treating my fibromyalgia pain successfully with clindamycin abx. It took the fibro pain to zero in a week's time, and still treats it. I started with 150mg 4x/day, then herxed after a month, and went to 150mgmg 2x/day. I know what each of us does does not necessarily work for someone else - I'm just reporting my treatment. Also I drink mangosteen juice and that clears up all Lyme eye symptoms for me. > > I respect homeopathy - I had both an enjoyable and difficult response to two different remedies. > > And yes, I've seen people get much improvement from stem cell injections, including someone who presented with MS-like symptoms. > > I think whatever you do, you have to try it in a gentle way. You need to be the one to evaluate how much you can handle. Take care - > Robin > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2010 Report Share Posted April 19, 2010 When I started researching homeopathy I interviewed people who had tried it with success and a few who didn't have success. Several of the Lyme patients had remarkable recovery from homeopathic remedies alone, in the hands of a very good and experienced homeopath. I was told to find a homeopath who is a constitutional homeopath. Meaning they tailor the remedies to you and your constitution. One person with Lyme may not necessary need the same remedies as another. I have also heard good things about the Deseret Biologicals remedies which you can find online, although the protocol is a bit different then how some homeopaths work. Many MD's and naturopaths are not very experienced with homeopathic medicine and I think this can be one reason why it doesn't always work. Sometimes it is trial and error to find the right remedies and peel away the layers of illness. A few of the patients I spoke with had tried antibiotics first and had no remission from them. One of these patients I spoke with for over an hour. She did homeopathy despite her MD husband disagreeing that it would help. Well, she got herself into remission with homeopathy (she also divorced that husband ;-) ) Anyways, will homeopathy work? Maybe, maybe not. But it can't hurt. Talking first hand to others who told me it gave them improvement or remission was enough for me to try. And it doesn't cost you a fortune like a LLMD does. I have not achieved full remission or cure myself but have had improvement. However I am also have had hugh stressors in my life this year, including the burden of Lyme; moving several times; unemployment; the death of my father and the terminal cancer diagnosis of my mother. This stress flared my symptoms within a months time. (there is only so much our immune system can handle and our emotions definitively affect our immune system) My psyche has just been too bombarded for anything to probably work well. I would look at the 's book that someone else recommended to you- " The Homeopathic Treatment Of Lyme Disease " . I would research for a very experienced homeopath who has treated had success treating Lyme. Ask others for names of practitioners. I found one of the practitioners in that book. Trust yourself and your inclination towards treatments and practitioners. Likewise it is also very good to also do your research. Be discriminating when researching practitioners and protocols, ask them questions- see if they'll talk with you for a few minutes about their protocol before you throw money their way. Even if something works for one person, it might not work for another and vice versa. It is each our own journey. > > Hi- I know this is off topic- > > I'm running out of options- > > I had fibro 1998 (started as bad headaches up back of head, then stiff neck etc) optic neurits 2006 with vision loss- illness shifted and has progressed rapidly to now MS type symptoms. MRI's are normals-Neuro says it is not MS. When I've tried to treat I have acclerated the disease. I just don't have herx's I have violent neurolgoical explosions. Did Zhang for 6 months 3 years ago and added buhner on top of it. Had neurological explosion to non functional for 4 months-went from having eye pain and brain fog to too many MS type symptoms to list plus excessive jerking/twitching- stopped herbs took 4 months to recover but not back to baselien was left with neuro symptoms I didn't have before. > > after 8mos- i slowly added cat's claw, devils claw, sarsparilla- was on for 1.5 years but still had decline. > Then in November tried my first drugs for antifungal treatment 8 days' of flagyl, 3 week difllucan- and some herb lyme tea-this sent me into hell. I went from not well (bad brain fog, eye pain ,weaker left side, jerking and some twitching) into Hell. Now been housebound in agony for 5 months now and not getting better. I know have unbelieveable nerve pain/irritation in my neck /brain ( on a prescription-for gaba pentin now!), left side numb, right arm numb, jerking and twitching like never before, total insomnia not relieved by meds, weak shaky neck, head jerking, eye presure, weird sensation on left side of head, weak legs and arms, dizzy sick, burning all over- pretty much in agony 7X24 and not getting better. > > I see a big name east coast lyme doc on May 5- BUT I " m terrified- I cannot physically take getting any sicker. How can I put more drugs in my body. I know I need to do something. I feel really toxic and hypersenstive to everything now. I used to be able to take all kinds of herbs. Can't take anything now. > > I consulted with a local naturopath and she suggested homeopathy in my case given how reactive to everything. And connected me with along time mentor /well known respected homeopath in the US. > > Do you think homeopathy can cure/reverse a neurologoical disease like late stage neuro lyme/ MS type illness? > > I don't know what to do anymore. I feel like I've done everything since onset of fibro 12 years ago and this illness has progessed so much. I eat allorganic gluten free, sugar free, whole foods diet, exercised (i did not now)every day for most of 12 years, massage weekly, acupncutre, rolfing, silver fillings out etc etc etc etc > > Also looking at a compnay in the US that offers stem cell treatments. Pretty scared about how ill I've become. Help! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2010 Report Share Posted April 19, 2010 , Wow! Thank you for sharing all your research. Now I'm even more confused about what to do for my daughter(11 yr). She was being treated by a classical homeopathic doctor at the same time as she was started on antibiotics. He gave her varying dosages of a consitutional remedy (gelsinium) not specific to Lyme. She improved. He recommended supplements that she is still taking now. The Homeopathe always maintained that it was his remedies and not the abx that were effective. I was open minded about it. Unfortunately at every appointment he made openly derisive comments regarding her LLMD's abx treatment (and the doctor himself, and the lab he used) and eventually " fired " her as a patient when she developed asthma last fall. He would no longer treat her while she was on abx. Your response is getting me thinking about homeopathy again. She is currently on Buhner herbs(7 weeks) and abx (15 months). I want to stop abx, but am afraid. I think the Homeopathe in question was extremely talented, but I cannot go back to him, he was toxic. He was also dissmissive of herbal therapies. I would also like to continue to hear of anyone's experience regarding homeopathy. I am so sorry to hear about your painful year. My heart goes out to you... Aviva On Apr 19, 2010, at 1:23 PM, wrote: > > > When I started researching homeopathy I interviewed people who had > tried it with success and a few who didn't have success. Several of > the Lyme patients had remarkable recovery from homeopathic remedies > alone, in the hands of a very good and experienced homeopath. I was > told to find a homeopath who is a constitutional homeopath. Meaning > they tailor the remedies to you and your constitution. One person > with Lyme may not necessary need the same remedies as another. I > have also heard good things about the Deseret Biologicals remedies > which you can find online, although the protocol is a bit different > then how some homeopaths work. Many MD's and naturopaths are not > very experienced with homeopathic medicine and I think this can be > one reason why it doesn't always work. Sometimes it is trial and > error to find the right remedies and peel away the layers of > illness. A few of the patients I spoke with had tried antibiotics > first and had no remission from them. One of these patients I spoke > with for over an hour. She did homeopathy despite her MD husband > disagreeing that it would help. Well, she got herself into > remission with homeopathy (she also divorced that husband ;-) ) > > Anyways, will homeopathy work? Maybe, maybe not. But it can't hurt. > Talking first hand to others who told me it gave them improvement > or remission was enough for me to try. And it doesn't cost you a > fortune like a LLMD does. > > I have not achieved full remission or cure myself but have had > improvement. However I am also have had hugh stressors in my life > this year, including the burden of Lyme; moving several times; > unemployment; the death of my father and the terminal cancer > diagnosis of my mother. This stress flared my symptoms within a > months time. (there is only so much our immune system can handle > and our emotions definitively affect our immune system) My psyche > has just been too bombarded for anything to probably work well. > > I would look at the 's book that someone else recommended > to you- " The Homeopathic Treatment Of Lyme Disease " . I would > research for a very experienced homeopath who has treated had > success treating Lyme. Ask others for names of practitioners. I > found one of the practitioners in that book. > > Trust yourself and your inclination towards treatments and > practitioners. Likewise it is also very good to also do your > research. Be discriminating when researching practitioners and > protocols, ask them questions- see if they'll talk with you for a > few minutes about their protocol before you throw money their way. > Even if something works for one person, it might not work for > another and vice versa. It is each our own journey. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2010 Report Share Posted April 19, 2010 Selma has written that she does not think homeopathy by itself can clear lyme. I might even be able to find the quote later. -----purpleffoxglove Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2010 Report Share Posted April 20, 2010 Thank you all for your input! When you become numb, losing motor control and weak, dizzy, brain stuff that is unbearable ,jerking etc-you become very very scared! Oh I long for the days of only fibro pain-- Robyn- I did have the genomics liver panel- (caffeine, acetoph., aspirin clearance)-It showed phase I was too fast and phase II had 4 of 4 pathways impaired including glycuronidation (something like that) that says is tied to difficulty with some medication. I " m seeing Dr. H in Hyde Park NY on May 5 (again terrified about putting anything into my body given how both herbs and now just a few drugs great an AI like reaction from hell). I here abx is the answer- but I've not talked to someone as serious as me who has recovered-some are better on abx- i guess if I could reverse this illness and keep it from progessing I would be willing to stay on abx my whole life if i could- I am chemically sensitive, testing for other things now like EBV(which tested high)- I think there is alot more than lyme at play here-the naturopath I see said I was the worse case of neuro lyme she has ever seen. Great!! So frustrating when you've tried everything-done everything you could do to build health past 12 years since onset of FMS- impeccable organic whole foods low grain diet, exercise, massage reg basis, some meditation, acupuntcture , rolfing , amalgams safely out., , zhang herbs, buhner herbs, supplements etc etc etc This doesn't seem real to be so ill. email me back at f13girl@... if you have any PM suggestions. Thank you. > > Selma has written that she does not think homeopathy by itself can clear lyme. > > I might even be able to find the quote later. > > -----purpleffoxglove > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2010 Report Share Posted April 20, 2010 No rolfing is bodywork- Does Rife help for neuro/MS type lyme? I'm afraid to put anything electrical near my body- so sensitive to everything right now. I think my illness is very complex-combo of family history/genetics,lyme, and probably other factors like inabilit to detox etc. > > From: y093666 <y093666@...> > Subject: [ ] Homeopathy- can it work on neuro lyme? > > Date: Saturday, April 17, 2010, 3:44 PM > > > > > > > > Â > > > > > > > > > > Hi- I know this is off topic- > > > > I'm running out of options- > > > > I had fibro 1998 (started as bad headaches up back of head, then stiff neck etc) optic neurits 2006 with vision loss- illness shifted and has progressed rapidly to now MS type symptoms. MRI's are normals-Neuro says it is not MS. When I've tried to treat I have acclerated the disease. I just don't have herx's I have violent neurolgoical explosions. Did Zhang for 6 months 3 years ago and added buhner on top of it. Had neurological explosion to non functional for 4 months-went from having eye pain and brain fog to too many MS type symptoms to list plus excessive jerking/twitching- stopped herbs took 4 months to recover but not back to baselien was left with neuro symptoms I didn't have before. > > > > after 8mos- i slowly added cat's claw, devils claw, sarsparilla- was on for 1.5 years but still had decline. > > Then in November tried my first drugs for antifungal treatment 8 days' of flagyl, 3 week difllucan- and some herb lyme tea-this sent me into hell. I went from not well (bad brain fog, eye pain ,weaker left side, jerking and some twitching) into Hell. Now been housebound in agony for 5 months now and not getting better. I know have unbelieveable nerve pain/irritation in my neck /brain ( on a prescription- for gaba pentin now!), left side numb, right arm numb, jerking and twitching like never before, total insomnia not relieved by meds, weak shaky neck, head jerking, eye presure, weird sensation on left side of head, weak legs and arms, dizzy sick, burning all over- pretty much in agony 7X24 and not getting better. > > > > I see a big name east coast lyme doc on May 5- BUT I " m terrified- I cannot physically take getting any sicker. How can I put more drugs in my body. I know I need to do something. I feel really toxic and hypersenstive to everything now. I used to be able to take all kinds of herbs. Can't take anything now. > > > > I consulted with a local naturopath and she suggested homeopathy in my case given how reactive to everything. And connected me with along time mentor /well known respected homeopath in the US. > > > > Do you think homeopathy can cure/reverse a neurologoical disease like late stage neuro lyme/ MS type illness? > > > > I don't know what to do anymore. I feel like I've done everything since onset of fibro 12 years ago and this illness has progessed so much. I eat allorganic gluten free, sugar free, whole foods diet, exercised (i did not now)every day for most of 12 years, massage weekly, acupncutre, rolfing, silver fillings out etc etc etc etc > > > > Also looking at a compnay in the US that offers stem cell treatments. Pretty scared about how ill I've become. Help! > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2010 Report Share Posted April 20, 2010 So you haven't tried rifing or photon therapy? Are you considering either or both? ---purpleffoxglove From: y093666 <y093666@...> Subject: [ ] Re: Homeopathy- can it work on neuro lyme? Date: Tuesday, April 20, 2010, 1:03 PM  Thank you all for your input! When you become numb, losing motor control and weak, dizzy, brain stuff that is unbearable ,jerking etc-you become very very scared! Oh I long for the days of only fibro pain-- Robyn- I did have the genomics liver panel- (caffeine, acetoph., aspirin clearance)-It showed phase I was too fast and phase II had 4 of 4 pathways impaired including glycuronidation (something like that) that says is tied to difficulty with some medication. I " m seeing Dr. H in Hyde Park NY on May 5 (again terrified about putting anything into my body given how both herbs and now just a few drugs great an AI like reaction from hell). I here abx is the answer- but I've not talked to someone as serious as me who has recovered-some are better on abx- i guess if I could reverse this illness and keep it from progessing I would be willing to stay on abx my whole life if i could- I am chemically sensitive, testing for other things now like EBV(which tested high)- I think there is alot more than lyme at play here-the naturopath I see said I was the worse case of neuro lyme she has ever seen. Great!! So frustrating when you've tried everything-done everything you could do to build health past 12 years since onset of FMS- impeccable organic whole foods low grain diet, exercise, massage reg basis, some meditation, acupuntcture , rolfing , amalgams safely out., , zhang herbs, buhner herbs, supplements etc etc etc This doesn't seem real to be so ill. email me back at f13girlcomcast (DOT) net if you have any PM suggestions. Thank you. > > Selma has written that she does not think homeopathy by itself can clear lyme. > > I might even be able to find the quote later. > > -----purpleffoxglov e > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 I have found that rifing has helped with some of my neuro symptoms. I have two difference machines. The first one has helped with Bb and Babesia. I'm hoping the second one will help with Bartonella. deb > > > > From: y093666 <y093666@> > > Subject: [ ] Homeopathy- can it work on neuro lyme? > > > > Date: Saturday, April 17, 2010, 3:44 PM > > > > > > > > > > > > > > > > Â > > > > > > > > > > > > > > > > > > > > Hi- I know this is off topic- > > > > > > > > I'm running out of options- > > > > > > > > I had fibro 1998 (started as bad headaches up back of head, then stiff neck etc) optic neurits 2006 with vision loss- illness shifted and has progressed rapidly to now MS type symptoms. MRI's are normals-Neuro says it is not MS. When I've tried to treat I have acclerated the disease. I just don't have herx's I have violent neurolgoical explosions. Did Zhang for 6 months 3 years ago and added buhner on top of it. Had neurological explosion to non functional for 4 months-went from having eye pain and brain fog to too many MS type symptoms to list plus excessive jerking/twitching- stopped herbs took 4 months to recover but not back to baselien was left with neuro symptoms I didn't have before. > > > > > > > > after 8mos- i slowly added cat's claw, devils claw, sarsparilla- was on for 1.5 years but still had decline. > > > > Then in November tried my first drugs for antifungal treatment 8 days' of flagyl, 3 week difllucan- and some herb lyme tea-this sent me into hell. I went from not well (bad brain fog, eye pain ,weaker left side, jerking and some twitching) into Hell. Now been housebound in agony for 5 months now and not getting better. I know have unbelieveable nerve pain/irritation in my neck /brain ( on a prescription- for gaba pentin now!), left side numb, right arm numb, jerking and twitching like never before, total insomnia not relieved by meds, weak shaky neck, head jerking, eye presure, weird sensation on left side of head, weak legs and arms, dizzy sick, burning all over- pretty much in agony 7X24 and not getting better. > > > > > > > > I see a big name east coast lyme doc on May 5- BUT I " m terrified- I cannot physically take getting any sicker. How can I put more drugs in my body. I know I need to do something. I feel really toxic and hypersenstive to everything now. I used to be able to take all kinds of herbs. Can't take anything now. > > > > > > > > I consulted with a local naturopath and she suggested homeopathy in my case given how reactive to everything. And connected me with along time mentor /well known respected homeopath in the US. > > > > > > > > Do you think homeopathy can cure/reverse a neurologoical disease like late stage neuro lyme/ MS type illness? > > > > > > > > I don't know what to do anymore. I feel like I've done everything since onset of fibro 12 years ago and this illness has progessed so much. I eat allorganic gluten free, sugar free, whole foods diet, exercised (i did not now)every day for most of 12 years, massage weekly, acupncutre, rolfing, silver fillings out etc etc etc etc > > > > > > > > Also looking at a compnay in the US that offers stem cell treatments. Pretty scared about how ill I've become. Help! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 Your symptoms sound like mine. I focused on liver and digestion and mopping up toxins. In other words, take several things, and I mean lots of different things for liver, toxins and digestion. I herxed on everything, and everything was too strong, and had the same fears. I use gentle things: brocolli sprouts to boost glutathione, Acai to protect and nourish cells, Goji to boost immunity, turmeric for anti-inflammatory, Modifilan to mop up toxins, lithium asaratate/orotate to protect nerves, digestive enzymes to enable digestion, milk thistle for liver support, lots of vitamins, no wheat, no dairy, all organic, except for meat due to lack of availability where I live. I avoided all smells, which I am sure you already do. I got a mask at home depot for paint fumes, that I wear whenever I have to be around a smell. Then I slowly moved up to stronger things like Reseveratrol, Cat's Claw and such. So, I would say, get the liver and digestion supported so that you can increase your body's ability to rid daily toxins, and then work up from there. When you see your doctor, tell him/her that you want to support liver, digestion and mop up toxins, and see if he/she can put that in your protocol. My doctors always agree to the things I do. I think Buhner likes Red Root as lymph mover, and I benefit from lymph movers as well. I have taken Red Root and don't remember having any herxing from it. Love and prayers, Heidi N Thank you all for your input! When you become numb, losing motor control and weak, dizzy, brain stuff that is unbearable ,jerking etc-you become very very scared! Oh I long for the days of only fibro pain-- Robyn- I did have the genomics liver panel- (caffeine, acetoph., aspirin clearance)-It showed phase I was too fast and phase II had 4 of 4 pathways impaired including glycuronidation (something like that) that says is tied to difficulty with some medication. I " m seeing Dr. H in Hyde Park NY on May 5 (again terrified about putting anything into my body given how both herbs and now just a few drugs great an AI like reaction from hell). I here abx is the answer- but I've not talked to someone as serious as me who has recovered-some are better on abx- i guess if I could reverse this illness and keep it from progessing I would be willing to stay on abx my whole life if i could- I am chemically sensitive, testing for other things now like EBV(which tested high)- I think there is alot more than lyme at play here-the naturopath I see said I was the worse case of neuro lyme she has ever seen. Great!! So frustrating when you've tried everything-done everything you could do to build health past 12 years since onset of FMS- impeccable organic whole foods low grain diet, exercise, massage reg basis, some meditation, acupuntcture , rolfing , amalgams safely out., , zhang herbs, buhner herbs, supplements etc etc etc This doesn't seem real to be so ill. Quote Link to comment Share on other sites More sharing options...
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