Re: Action Alert with Transportation and Hotel Info

[Guest guest]

Please if anyone close to me is going I want to go...I live in Lititz PA. But

my husband can't go..but my children and I would love to support this. I am

having to pay out of pocket for the medical bills too....I think this is unfair

and unjust. I ache to be there and be another head count. I am pretty good at

drawing and stuff and have pretty good penmenship so I would be willing to make

signs....Although my spelling stinks...And I use to write in our school

newspaper..I am the one who would write the poetry and cover club events and

stuff...I even got to cover a 911 recording...if you remember the show...My mom

was the star I guess you could say...lol...so I had an advantage. She is an

EMT...I was at one point to ...was planing on getting my Paramedic degree..but

no I had to get sick...lol...also became a Mother which has always been my

biggest dream...so at least I have that to be very proud of.

Anyway let me know how I can help....I am a willing hand. I don't dare drive

since I am a scardy cat in big traffic...also I would get so lost. Remember I

was an Idahoan...lol....I was even a russet....lol...that was our school mascot.

It seems very funny now expecially since in High school I was so proud that we

were different than anyone else....everyone else was cougars, tigers and so

forth...I think the only mascot that would be worse was the Trujans...I think

there is a condom..lol...that is called that.

We go in today to the doctor to discuss 's treatments. I will let you guys

know how it goes later...

Okay thanks....hope I can help.

Cyntha Landon Lititz PA....... positive PCR...Myesha and Celeste too have

Lyme

[ ] Action Alert with Transportation and Hotel Info

TIME TO PROTEST SENATOR HANNON

Although we know all you wonderful people have sent hundreds or thousand

of letters to Senator Hannon, WE HAVE STILL NOT HEARD BACK FROM HIM!!

He has refused to act on any of our requests for help in the past couple

of years. He is now refusing to meet with us in-person to discuss

Bill A11330,

the GOTTFRIED/LENTOL/MILLER/MAYERSOHN REFORM BILL. The bill would

give due process rights to physicians in dealing with the OPMC.

Insurance companies would no longer have the luxury of using an

unrestrained OPMC to revoke the license of doctors they feel are costing

them too much moey

Because HANNON is the Chair of the Senate Health Committee, without his

support this bill will not pass.

If this legislative session ends (mid-June) without passing this bill,

the OPMC can use the 6 months before the legislature reconvenes to start

another witch hunt against ALL OUR LLMDs.

The OPMC has already shown its arrogance and determination to harass our

LLMD's by appealing the favorable hearing panel decision on Dr. B last

November, right on the eve of the Albany Assembly hearing! None of

us want to have to fight that fight again, so we must get legislative

reform that puts restraints on an OPMC that has been clearly out of

control.

WE MUST PROTEST IN FRONT OF SENATOR HANNON'S L.I. OFFICE ON MAY 29th. We

know everyone is exhausted and sick, but we cannot permit Senator Hannon

to continue his contemptuous dismissal of the Lyme community. We must

get his support for this bill.

For this protest there is the likelihood of major media coverage, so a

big turnout will put much pressure on Senator Hannon who is running for

re-election in November.

PROTEST INFO:

WHO: ALL Lyme disease patients from ALL STATES, their friends and

family

should attend.

Attendance of New Yorkers is particularly important.

WHERE: Outside of 1600 Avenue, Westbury. LI. NY.

WHEN: Wednesday, May 29th at 12:30 pm.

BRING: Yourself. If you can, also bring friends, family and protest

signs about Lyme disease, or supporting OPMC Reform, or protesting

Hannon's indifference to us. If you are a medical professional, it

would also be great if you could come in uniform or otherwise indicate

your profession.

DIRECTIONS TO HANNON'S

1600 Ave

" 1-800 Flowers " Six Story Business Building Corner of Merrick Avenue

FROM NORTHWEST:

(NYC and Westchester)

Long Island Expressway to Exit 38- Northern State Parkway Northern State

Pkwy to Exit 31- Meadowbrook Parkway South Meadowbrook Pkwy to Exit M3-W

( Ave) Follow exit ramp to right (there are 2 right turning

lanes, need to be in the left one " Eisenhower Park " ), proceed 1/10 mile

to traffic light and turn left onto Ave. Building is 3/10 mile

on the right. Visible from Exit.

FROM NORTHEAST:

(North Suffolk)

Long Island Expressway to Exit 42- Northern State Parkway Northern State

Pkwy to Exit 31- Meadowbrook Parkway South (right 2 lanes become

Meadowbrook).

Meadowbrook Pkwy to Exit M3-W ( Ave) Follow exit ramp to right

(there are 2 right turning lanes, need to be in the left one " Eisenhower

Park " ), proceed 1/10 mile to traffic light and turn left onto

Ave. Building is 3/10 mile on the right. Visible from Exit.

FROM SOUTH (WEST AND EAST):

(Staten Island and South Suffolk)

Southern State Parkway to Exit 22- Meadowbrook Parkway North.

Meadowbrook Pkwy to Exit M3-W ( Ave) Follow exit ramp to right,

proceed 1/10 mile to traffic light and turn left onto Ave.

Building is 3/10 mile on the right. Visible from Exit.

PARKING:

It would probably be best to drop passengers off in front of Hannon's

building. Then continue on and less than a quarter of a mile on the

right there is a parking lot for Hoffritz and Farberware factory

outlets. We will have shuttling back and forth from the parking spots to

the protest site.

OTHER TRANSPORTATION:

Long Island Rail Road:

http://www.mta.nyc.ny.us/lirr/

Stop at Westbury

There will probably be taxis waiting at the Westbury station , but if

not:

Taxi:

516-333-1111

If you live in the Dutchess County area please contact: Lia McCabe (914)

474-2679, LMcCabe@...

Lia will be coordinating transportation from that area to help people to

get to the protest.

Kay is looking to coordinate a bus from Peabody, Mass. If interested,

contact her at: b10g7@...

Interested in going fromAbington, PA or the the Wawa between PA and NJ

Turnpikes, contact Tom at 215-886-9493 or tbharbo@...

HOTEL:

Nassau County Hotels are very expensive in general, but the Econo Lodge

in Hicksville offers rooms at $89 a night and is only 3 miles from

Hannon's office. The phone number is 516-433-3900. The web page is

http://www.econolodge-hicksville.com/

For more information, please go to www.lymeinfo.net/hannonprotest.html

[Guest guest]

,

Wonderful news that you and your children would like to come for the

protest. There is a charted bus coming from your area. Go to

www.lymeinfo.net for details. Hope the pick-up site is near enough

to you to work out. If not, let us know, and we will see if we can

help you find an alternate solution.

Also great news that you may be able to make some signs. We would

especially like a series of signs that reproduce the text of the

resolution that was passed. A copy of that is also available at

lymeinfo.net. The idea would be to put one paragraph on each sign.

Then a group of patients could stand together holding them in

sequence. Please let us know if you would be able to take this on.

I am sorry that you have had so much difficulty as a Lyme patient.

This is an excellent way to make life better for ourselves. As you

know, what happens in New York effects all of us.

Looking forward to meeting you and your children in Westbury, Long

Island, New York, May 29th, 12:30 p.m.

cws

cws

> Please if anyone close to me is going I want to go...I live in

Lititz PA. But my husband can't go..but my children and I would love

to support this. I am having to pay out of pocket for the medical

bills too....I think this is unfair and unjust. I ache to be there

and be another head count. I am pretty good at drawing and stuff and

have pretty good penmenship so I would be willing to make

signs....Although my spelling stinks...And I use to write in our

school newspaper..I am the one who would write the poetry and cover

club events and stuff...I even got to cover a 911 recording...if you

remember the show...My mom was the star I guess you could

say...lol...so I had an advantage. She is an EMT...I was at one

point to ...was planing on getting my Paramedic degree..but no I had

to get sick...lol...also became a Mother which has always been my

biggest dream...so at least I have that to be very proud of.

>

> Anyway let me know how I can help....I am a willing hand. I don't

dare drive since I am a scardy cat in big traffic...also I would get

so lost. Remember I was an Idahoan...lol....I was even a

russet....lol...that was our school mascot. It seems very funny now

expecially since in High school I was so proud that we were different

than anyone else....everyone else was cougars, tigers and so

forth...I think the only mascot that would be worse was the

Trujans...I think there is a condom..lol...that is called that.

>

> We go in today to the doctor to discuss 's treatments. I will

let you guys know how it goes later...

>

> Okay thanks....hope I can help.

>

> Cyntha Landon Lititz PA....... positive PCR...Myesha and

Celeste too have Lyme

> [ ] Action Alert with Transportation and Hotel

Info

>

>

> TIME TO PROTEST SENATOR HANNON

>

> Although we know all you wonderful people have sent hundreds or

thousand

> of letters to Senator Hannon, WE HAVE STILL NOT HEARD BACK FROM

HIM!!

>

> He has refused to act on any of our requests for help in the past

couple

> of years. He is now refusing to meet with us in-person to

discuss

> Bill A11330,

> the GOTTFRIED/LENTOL/MILLER/MAYERSOHN REFORM BILL. The bill would

> give due process rights to physicians in dealing with the OPMC.

> Insurance companies would no longer have the luxury of using an

> unrestrained OPMC to revoke the license of doctors they feel are

costing

> them too much moey

>

> Because HANNON is the Chair of the Senate Health Committee,

without his

> support this bill will not pass.

> If this legislative session ends (mid-June) without passing this

bill,

> the OPMC can use the 6 months before the legislature reconvenes

to start

> another witch hunt against ALL OUR LLMDs.

>

> The OPMC has already shown its arrogance and determination to

harass our

> LLMD's by appealing the favorable hearing panel decision on Dr. B

last

> November, right on the eve of the Albany Assembly hearing! None

of

> us want to have to fight that fight again, so we must get

legislative

> reform that puts restraints on an OPMC that has been clearly out

of

> control.

>

> WE MUST PROTEST IN FRONT OF SENATOR HANNON'S L.I. OFFICE ON MAY

29th. We

> know everyone is exhausted and sick, but we cannot permit Senator

Hannon

> to continue his contemptuous dismissal of the Lyme community. We

must

> get his support for this bill.

>

> For this protest there is the likelihood of major media coverage,

so a

> big turnout will put much pressure on Senator Hannon who is

running for

> re-election in November.

>

> PROTEST INFO:

> WHO: ALL Lyme disease patients from ALL STATES, their friends and

> family

> should attend.

> Attendance of New Yorkers is particularly important.

> WHERE: Outside of 1600 Avenue, Westbury. LI. NY.

> WHEN: Wednesday, May 29th at 12:30 pm.

>

> BRING: Yourself. If you can, also bring friends, family and

protest

> signs about Lyme disease, or supporting OPMC Reform, or protesting

> Hannon's indifference to us. If you are a medical professional,

it

> would also be great if you could come in uniform or otherwise

indicate

> your profession.

>

> DIRECTIONS TO HANNON'S

> 1600 Ave

> " 1-800 Flowers " Six Story Business Building Corner of Merrick

Avenue

>

> FROM NORTHWEST:

> (NYC and Westchester)

> Long Island Expressway to Exit 38- Northern State Parkway

Northern State

> Pkwy to Exit 31- Meadowbrook Parkway South Meadowbrook Pkwy to

Exit M3-W

> ( Ave) Follow exit ramp to right (there are 2 right turning

> lanes, need to be in the left one " Eisenhower Park " ), proceed

1/10 mile

> to traffic light and turn left onto Ave. Building is 3/10

mile

> on the right. Visible from Exit.

>

> FROM NORTHEAST:

> (North Suffolk)

> Long Island Expressway to Exit 42- Northern State Parkway

Northern State

> Pkwy to Exit 31- Meadowbrook Parkway South (right 2 lanes become

> Meadowbrook).

> Meadowbrook Pkwy to Exit M3-W ( Ave) Follow exit ramp to

right

> (there are 2 right turning lanes, need to be in the left

one " Eisenhower

> Park " ), proceed 1/10 mile to traffic light and turn left onto

> Ave. Building is 3/10 mile on the right. Visible from Exit.

>

> FROM SOUTH (WEST AND EAST):

> (Staten Island and South Suffolk)

> Southern State Parkway to Exit 22- Meadowbrook Parkway North.

> Meadowbrook Pkwy to Exit M3-W ( Ave) Follow exit ramp to

right,

> proceed 1/10 mile to traffic light and turn left onto Ave.

> Building is 3/10 mile on the right. Visible from Exit.

>

> PARKING:

> It would probably be best to drop passengers off in front of

Hannon's

> building. Then continue on and less than a quarter of a mile on

the

> right there is a parking lot for Hoffritz and Farberware factory

> outlets. We will have shuttling back and forth from the parking

spots to

> the protest site.

>

> OTHER TRANSPORTATION:

> Long Island Rail Road:

> http://www.mta.nyc.ny.us/lirr/

> Stop at Westbury

> There will probably be taxis waiting at the Westbury station ,

but if

> not:

> Taxi:

> 516-333-1111

>

> If you live in the Dutchess County area please contact: Lia

McCabe (914)

> 474-2679, LMcCabe@l...

> Lia will be coordinating transportation from that area to help

people to

> get to the protest.

>

> Kay is looking to coordinate a bus from Peabody, Mass. If

interested,

> contact her at: b10g7@a...

>

> Interested in going fromAbington, PA or the the Wawa between PA

and NJ

> Turnpikes, contact Tom at 215-886-9493 or tbharbo@a...

>

> HOTEL:

> Nassau County Hotels are very expensive in general, but the Econo

Lodge

> in Hicksville offers rooms at $89 a night and is only 3 miles from

> Hannon's office. The phone number is 516-433-3900. The web

page is

> http://www.econolodge-hicksville.com/

>

> For more information, please go to

www.lymeinfo.net/hannonprotest.html

>

>

>

>

[Guest guest]

I will get those signs done. Hopefully I can get them there...no

problem...makes me feel like I am taking part.

Cyntha Landon Lititz,PA

[ ] Action Alert with Transportation and Hotel

Info

>

>

> TIME TO PROTEST SENATOR HANNON

>

> Although we know all you wonderful people have sent hundreds or

thousand

> of letters to Senator Hannon, WE HAVE STILL NOT HEARD BACK FROM

HIM!!

>

> He has refused to act on any of our requests for help in the past

couple

> of years. He is now refusing to meet with us in-person to

discuss

> Bill A11330,

> the GOTTFRIED/LENTOL/MILLER/MAYERSOHN REFORM BILL. The bill would

> give due process rights to physicians in dealing with the OPMC.

> Insurance companies would no longer have the luxury of using an

> unrestrained OPMC to revoke the license of doctors they feel are

costing

> them too much moey

>

> Because HANNON is the Chair of the Senate Health Committee,

without his

> support this bill will not pass.

> If this legislative session ends (mid-June) without passing this

bill,

> the OPMC can use the 6 months before the legislature reconvenes

to start

> another witch hunt against ALL OUR LLMDs.

>

> The OPMC has already shown its arrogance and determination to

harass our

> LLMD's by appealing the favorable hearing panel decision on Dr. B

last

> November, right on the eve of the Albany Assembly hearing! None

of

> us want to have to fight that fight again, so we must get

legislative

> reform that puts restraints on an OPMC that has been clearly out

of

> control.

>

> WE MUST PROTEST IN FRONT OF SENATOR HANNON'S L.I. OFFICE ON MAY

29th. We

> know everyone is exhausted and sick, but we cannot permit Senator

Hannon

> to continue his contemptuous dismissal of the Lyme community. We

must

> get his support for this bill.

>

> For this protest there is the likelihood of major media coverage,

so a

> big turnout will put much pressure on Senator Hannon who is

running for

> re-election in November.

>

> PROTEST INFO:

> WHO: ALL Lyme disease patients from ALL STATES, their friends and

> family

> should attend.

> Attendance of New Yorkers is particularly important.

> WHERE: Outside of 1600 Avenue, Westbury. LI. NY.

> WHEN: Wednesday, May 29th at 12:30 pm.

>

> BRING: Yourself. If you can, also bring friends, family and

protest

> signs about Lyme disease, or supporting OPMC Reform, or protesting

> Hannon's indifference to us. If you are a medical professional,

it

> would also be great if you could come in uniform or otherwise

indicate

> your profession.

>

> DIRECTIONS TO HANNON'S

> 1600 Ave

> " 1-800 Flowers " Six Story Business Building Corner of Merrick

Avenue

>

> FROM NORTHWEST:

> (NYC and Westchester)

> Long Island Expressway to Exit 38- Northern State Parkway

Northern State

> Pkwy to Exit 31- Meadowbrook Parkway South Meadowbrook Pkwy to

Exit M3-W

> ( Ave) Follow exit ramp to right (there are 2 right turning

> lanes, need to be in the left one " Eisenhower Park " ), proceed

1/10 mile

> to traffic light and turn left onto Ave. Building is 3/10

mile

> on the right. Visible from Exit.

>

> FROM NORTHEAST:

> (North Suffolk)

> Long Island Expressway to Exit 42- Northern State Parkway

Northern State

> Pkwy to Exit 31- Meadowbrook Parkway South (right 2 lanes become

> Meadowbrook).

> Meadowbrook Pkwy to Exit M3-W ( Ave) Follow exit ramp to

right

> (there are 2 right turning lanes, need to be in the left

one " Eisenhower

> Park " ), proceed 1/10 mile to traffic light and turn left onto

> Ave. Building is 3/10 mile on the right. Visible from Exit.

>

> FROM SOUTH (WEST AND EAST):

> (Staten Island and South Suffolk)

> Southern State Parkway to Exit 22- Meadowbrook Parkway North.

> Meadowbrook Pkwy to Exit M3-W ( Ave) Follow exit ramp to

right,

> proceed 1/10 mile to traffic light and turn left onto Ave.

> Building is 3/10 mile on the right. Visible from Exit.

>

> PARKING:

> It would probably be best to drop passengers off in front of

Hannon's

> building. Then continue on and less than a quarter of a mile on

the

> right there is a parking lot for Hoffritz and Farberware factory

> outlets. We will have shuttling back and forth from the parking

spots to

> the protest site.

>

> OTHER TRANSPORTATION:

> Long Island Rail Road:

> http://www.mta.nyc.ny.us/lirr/

> Stop at Westbury

> There will probably be taxis waiting at the Westbury station ,

but if

> not:

> Taxi:

> 516-333-1111

>

> If you live in the Dutchess County area please contact: Lia

McCabe (914)

> 474-2679, LMcCabe@l...

> Lia will be coordinating transportation from that area to help

people to

> get to the protest.

>

> Kay is looking to coordinate a bus from Peabody, Mass. If

interested,

> contact her at: b10g7@a...

>

> Interested in going fromAbington, PA or the the Wawa between PA

and NJ

> Turnpikes, contact Tom at 215-886-9493 or tbharbo@a...

>

> HOTEL:

> Nassau County Hotels are very expensive in general, but the Econo

Lodge

> in Hicksville offers rooms at $89 a night and is only 3 miles from

> Hannon's office. The phone number is 516-433-3900. The web

page is

> http://www.econolodge-hicksville.com/

>

> For more information, please go to

www.lymeinfo.net/hannonprotest.html

>

>

>

>