New to group

[Guest guest]

Hi Melinda: I had revision surgery in 2004 (I was 54 at that time) with Dr. LaGrone. I have absolutely no regrets. I'll be 3 years post op in April. As far as insurance goes, I had an HMO and needed to get pre approvals, etc. to go out of network, and out of state. It was a hassle, but it all worked out in the end. As a matter of fact, I am presently battling with my insurance company to get the pre approval to go for my 3 year appt. in April! I have always kept very good records of who I spoke to, and did have to appeal a few things, but it did all work out OK. Well worth the hassle to be able to have the surgeon that I wanted to do this revision surgery. I was in the hospital for 5 nights, then transferred to rehab floor for about 10 days. Hope this helps. etteMelinda Malone <melmalone@...> wrote: Hi! I'm new to this group. Thanks to Ken for letting me know about it. I'm 39 years old and live in the Dallas area. I had Harrington Rod surgery in 1981. In the past 2 years I have noticed increasing difficulty with extended walking, standing and the inability to completely stand straight. I went to a Doctor here in Dallas this week and he said I might need a revision due to flatback

syndrome. I had a CT scan done yesterday with the results pending. Dr. Curtis (here in Dallas) wants me to go see Dr. M. LaGrone in Amarillo for a consult. I am originally from Amarillo and that is where my original surgery was done, although not by LaGrone. I'm going to make an appointment as soon as I get my CT results back. I just had a few questions I was hoping someone could answer: 1. After revision (I know everyone is different) when can people go back to work full time? I work in a hospital as a Speech Pathologist and am on my feet quite a bit. 2. Does insurance typically pay for the procedure? Any insurance issues I should be aware of? 3. How long are people typically in rehab after surgery? 4. How long can I expect to be in Amarillo if I decide to have the surgery?

5. For those of you who have had revisions, any pain now? Were you able to resume "normal" or better activity? Any regrets? I really appreciate any imput as well as input about Dr. LaGrone if anyone has had a revision by him. I have heard nice things about him. Thanks, Melinda Want to start your own business? Learn how on Small Business.

TV dinner still cooling?Check out "Tonight's Picks" on TV.

[Guest guest]

>

==>Hi there. Is your name Marcy? Welcome to our group.

> I have just spent most of today reading as much information about

candida as possible. I have hit an all time low and figure it is

time to get rid of the disease. I have read all of the " healing

naturally by bee " website. Currently I am on a three day water fast

because of loose bowels along with bleeding from the bowels. I am

taking acidopholous with the water. Do you suggest eating the diet

you recommend? Or waiting to let the digestive tract clear out some.

==>It would be important to see the doctor so you know for sure what

is going on with your bowels. If nothing specific is found as the

cause you can start by doing the 9-day program:

http://www.healingnaturallybybee.com/articles/dig6.php

I am coming off of a UTI that I got last week as well as many

ulcerations under my tongue, and itchy patches on my skin. I went to

my chiropractor on Friday and started the acidopholous. I have

essentialy been on your diet since Friday, no sugar, lots of vegies,

salmon, free range chicken, good oils. My worry is should I be eating

or not? Out of all the info on the web, I found yours most helpful

and realistic for me with the possiblity of personal help. Please

advise if you have delt with bleeding from the GI tract in connection

with candida.

==>Yes bleeding in the digestive tract can be connected with candida,

but it depends upon how much bleeding there is, and where it is

coming from.

Bee

[Guest guest]

Sheila,

Wow, you have been through the gamut haven't you!! I am well down the spine

road with lumbar laminectomy, now failed back syndrome because it did not work.

Cervical fusion, which did work, but now have discs bad there, because fusion

has weakened them. Just now found out I have bone spurs in thoracic spine which

terrifies me because of the issues of the lungs and heart and scar tissue.

I don't know what a TLIF is. Good luck with your fusion.

Annie

sheila_gross <sheila_gross@...> wrote:

Aloha,

Well, time to finally join the spine group in addition to my hip groups!

Fusion scheduled for end of April after many, many years of lumbar

issues. I've done it all from PT to discogram, spinal blocks to muscle

relaxers & pain killers.

Been through 4 hip surgeries in just the last couple years, a shoulder

surgery, and now time to finally fix this back as good as I can get

once and for all. I can no longer deal with knife like pains running

across my back, my upper foot and outer 4 toes going numb, and the

sciatica shooting up my legs (although the actual pain in the back is

worse than the sciatica lately).

I have a TLIF scheduled, and would be very interested in hearing from

anyone who has had this procedure done before, as I am making a list of

questions to ask my OS.

Thanks for listening, and thanks for answering in advance!

Sheila

---------------------------------

Sucker-punch spam with award-winning protection.

Try the free Beta.

[Guest guest]

Welcome to the group. As someone said yes, you have been through a

lot. Are your hips ok now?

I wish you sucess with your fusion. Sorry don't know what TLIF eve is.

Let us know how the fusion goes, good luck.

Barbara

>

> Aloha,

>

> Well, time to finally join the spine group in addition to my hip

groups!

>

> Fusion scheduled for end of April after many, many years of lumbar

> issues. I've done it all from PT to discogram, spinal blocks to

muscle

> relaxers & pain killers.

>

> Been through 4 hip surgeries in just the last couple years, a

shoulder

> surgery, and now time to finally fix this back as good as I can get

> once and for all. I can no longer deal with knife like pains

running

> across my back, my upper foot and outer 4 toes going numb, and the

> sciatica shooting up my legs (although the actual pain in the back

is

> worse than the sciatica lately).

>

> I have a TLIF scheduled, and would be very interested in hearing

from

> anyone who has had this procedure done before, as I am making a

list of

> questions to ask my OS.

>

> Thanks for listening, and thanks for answering in advance!

> Sheila

>

[Guest guest]

Hi Annie~

Sounds like you've been through alot with your back! wow! How far out

from your last surgery are you, and with your cervical fusion was

that an open procedure or minimally invasive? Was your last diagnosis

of bone spurs in the T spine made by xrays, mri, or ?

Also TLIF is a Transforaminal Lumbar Interbody Fusion, as opposed to

a PLIF (Posterior Lumbar Interbody Fusion) or open fusion.

With a TLIF, there is supposed to be less blood loss (as compared

with open), less recovery time, they don't have to " tug " on the

nerves as much (as during a PLIF), or don't have to cut all the

muscles (as with open). My OS has done 20-30 of these, as opposed to

50-60 open fusions. He said he sees those with TLIF get back to being

more active in the long run as opposed to those who have had an open

fusion.

Best Wishes~

Sheila

> Aloha,

>

> Well, time to finally join the spine group in addition to my hip

groups!

>

> Fusion scheduled for end of April after many, many years of lumbar

> issues. I've done it all from PT to discogram, spinal blocks to

muscle

> relaxers & pain killers.

>

> Been through 4 hip surgeries in just the last couple years, a

shoulder

> surgery, and now time to finally fix this back as good as I can get

> once and for all. I can no longer deal with knife like pains

running

> across my back, my upper foot and outer 4 toes going numb, and the

> sciatica shooting up my legs (although the actual pain in the back

is

> worse than the sciatica lately).

>

> I have a TLIF scheduled, and would be very interested in hearing

from

> anyone who has had this procedure done before, as I am making a

list of

> questions to ask my OS.

>

> Thanks for listening, and thanks for answering in advance!

> Sheila

>

>

>

>

>

>

> ---------------------------------

> Sucker-punch spam with award-winning protection.

> Try the free Beta.

>

>

[Guest guest]

Hi Barbara~

Thanks for the welcome. As for my hip, still have some issues with it

but it is way better than it has been in a long while! I am walking

again, without grinding pain in it (like the grinding of gears), so I

am happy!

As for a TLIF, it is a Transforaminal Lumbar Interbody Fusion, as

opposed to a PLIF (Posterior Lumbar Interbody Fusion) or open fusion.

With a TLIF, there is supposed to be less blood loss (as compared

with open), less recovery time, they don't have to " tug " on the

nerves as much (as during a PLIF), or don't have to cut all the

muscles (as with open). My OS has done 20-30 of these, as opposed to

50-60 open fusions. He said he sees those with TLIF get back to being

more active in the long run as opposed to those who have had an open

fusion.

Best Wishes~

Sheila

> >

> > Aloha,

> >

> > Well, time to finally join the spine group in addition to my hip

> groups!

> >

> > Fusion scheduled for end of April after many, many years of

lumbar

> > issues. I've done it all from PT to discogram, spinal blocks to

> muscle

> > relaxers & pain killers.

> >

> > Been through 4 hip surgeries in just the last couple years, a

> shoulder

> > surgery, and now time to finally fix this back as good as I can

get

> > once and for all. I can no longer deal with knife like pains

> running

> > across my back, my upper foot and outer 4 toes going numb, and

the

> > sciatica shooting up my legs (although the actual pain in the

back

> is

> > worse than the sciatica lately).

> >

> > I have a TLIF scheduled, and would be very interested in hearing

> from

> > anyone who has had this procedure done before, as I am making a

> list of

> > questions to ask my OS.

> >

> > Thanks for listening, and thanks for answering in advance!

> > Sheila

> >

>

[Guest guest]

Sheila,

My cervical fusion was anterior, minimally invasive under microscope in 2001.

The bone spurs were revealed in a cat scan in 10/2006. Pain doctor failed to

tell me about it until I came back in last week in extreme pain in T Spine.

Please let us know how yours goes. If I can't get this calmed down soon, I am

going to consider surgery. This is the worst pain in 12 yrs.

Annie

sheila_gross <sheila_gross@...> wrote:

Hi Annie~

Sounds like you've been through alot with your back! wow! How far out

from your last surgery are you, and with your cervical fusion was

that an open procedure or minimally invasive? Was your last diagnosis

of bone spurs in the T spine made by xrays, mri, or ?

Also TLIF is a Transforaminal Lumbar Interbody Fusion, as opposed to

a PLIF (Posterior Lumbar Interbody Fusion) or open fusion.

With a TLIF, there is supposed to be less blood loss (as compared

with open), less recovery time, they don't have to " tug " on the

nerves as much (as during a PLIF), or don't have to cut all the

muscles (as with open). My OS has done 20-30 of these, as opposed to

50-60 open fusions. He said he sees those with TLIF get back to being

more active in the long run as opposed to those who have had an open

fusion.

Best Wishes~

Sheila

> Aloha,

>

> Well, time to finally join the spine group in addition to my hip

groups!

>

> Fusion scheduled for end of April after many, many years of lumbar

> issues. I've done it all from PT to discogram, spinal blocks to

muscle

> relaxers & pain killers.

>

> Been through 4 hip surgeries in just the last couple years, a

shoulder

> surgery, and now time to finally fix this back as good as I can get

> once and for all. I can no longer deal with knife like pains

running

> across my back, my upper foot and outer 4 toes going numb, and the

> sciatica shooting up my legs (although the actual pain in the back

is

> worse than the sciatica lately).

>

> I have a TLIF scheduled, and would be very interested in hearing

from

> anyone who has had this procedure done before, as I am making a

list of

> questions to ask my OS.

>

> Thanks for listening, and thanks for answering in advance!

> Sheila

>

>

>

>

>

>

> ---------------------------------

> Sucker-punch spam with award-winning protection.

> Try the free Beta.

>

>

[Guest guest]

Hi Sheila,

I wish you the best with this, it does sound like a better option. Also glad

to hear your hip is better. I have bursitis there, which is probably nothing

like the problems you had, but I know hip pain and the knee pain, etc that goes

with it.

Hope everything works out favorably.

Barbara

sheila_gross <sheila_gross@...> wrote:

Hi Barbara~

Thanks for the welcome. As for my hip, still have some issues with it

but it is way better than it has been in a long while! I am walking

again, without grinding pain in it (like the grinding of gears), so I

am happy!

As for a TLIF, it is a Transforaminal Lumbar Interbody Fusion, as

opposed to a PLIF (Posterior Lumbar Interbody Fusion) or open fusion.

With a TLIF, there is supposed to be less blood loss (as compared

with open), less recovery time, they don't have to " tug " on the

nerves as much (as during a PLIF), or don't have to cut all the

muscles (as with open). My OS has done 20-30 of these, as opposed to

50-60 open fusions. He said he sees those with TLIF get back to being

more active in the long run as opposed to those who have had an open

fusion.

Best Wishes~

Sheila

> >

> > Aloha,

> >

> > Well, time to finally join the spine group in addition to my hip

> groups!

> >

> > Fusion scheduled for end of April after many, many years of

lumbar

> > issues. I've done it all from PT to discogram, spinal blocks to

> muscle

> > relaxers & pain killers.

> >

> > Been through 4 hip surgeries in just the last couple years, a

> shoulder

> > surgery, and now time to finally fix this back as good as I can

get

> > once and for all. I can no longer deal with knife like pains

> running

> > across my back, my upper foot and outer 4 toes going numb, and

the

> > sciatica shooting up my legs (although the actual pain in the

back

> is

> > worse than the sciatica lately).

> >

> > I have a TLIF scheduled, and would be very interested in hearing

> from

> > anyone who has had this procedure done before, as I am making a

> list of

> > questions to ask my OS.

> >

> > Thanks for listening, and thanks for answering in advance!

> > Sheila

> >

>

[Guest guest]

Sheila,

Welcome to the group. I'm one of the silent members..lol. I don't tend to

talk all that much. I am 42 and I have had three back surgeries. My first

one was in 1997 that was a double lamenectomy. Then in 1998 I had another

double laminectomy and then in 1999 I had a lower lumbar fusion with

fixation rods and cages done. That one was pure hell to recover from. I

ended up getting an infection afterwards and was on a PICC line for 4 months

.. I still have back,leg and hip pain (they took bone from my hip) but it's

manageable with medications. Although I try so hard to not take a lot of

medications since I'm not a pill liker..haha.

Tonja

-- Re: Re: New to Group

Hi Sheila,

I wish you the best with this, it does sound like a better option. Also glad

to hear your hip is better. I have bursitis there, which is probably nothing

like the problems you had, but I know hip pain and the knee pain, etc that

goes with it.

Hope everything works out favorably.

Barbara

sheila_gross <sheila_gross@...> wrote:

Hi Barbara~

Thanks for the welcome. As for my hip, still have some issues with it

but it is way better than it has been in a long while! I am walking

again, without grinding pain in it (like the grinding of gears), so I

am happy!

As for a TLIF, it is a Transforaminal Lumbar Interbody Fusion, as

opposed to a PLIF (Posterior Lumbar Interbody Fusion) or open fusion.

With a TLIF, there is supposed to be less blood loss (as compared

with open), less recovery time, they don't have to " tug " on the

nerves as much (as during a PLIF), or don't have to cut all the

muscles (as with open). My OS has done 20-30 of these, as opposed to

50-60 open fusions. He said he sees those with TLIF get back to being

more active in the long run as opposed to those who have had an open

fusion.

Best Wishes~

Sheila

> >

> > Aloha,

> >

> > Well, time to finally join the spine group in addition to my hip

> groups!

> >

> > Fusion scheduled for end of April after many, many years of

lumbar

> > issues. I've done it all from PT to discogram, spinal blocks to

> muscle

> > relaxers & pain killers.

> >

> > Been through 4 hip surgeries in just the last couple years, a

> shoulder

> > surgery, and now time to finally fix this back as good as I can

get

> > once and for all. I can no longer deal with knife like pains

> running

> > across my back, my upper foot and outer 4 toes going numb, and

the

> > sciatica shooting up my legs (although the actual pain in the

back

> is

> > worse than the sciatica lately).

> >

> > I have a TLIF scheduled, and would be very interested in hearing

> from

> > anyone who has had this procedure done before, as I am making a

> list of

> > questions to ask my OS.

> >

> > Thanks for listening, and thanks for answering in advance!

> > Sheila

> >

>

[Guest guest]

Hi Ladies~

Barbara, I know bursitis pain as well, and it is not pleasant. I had

cortizone injected for that before the surgeries, so it was one of

the secondary issues to the underlying problems. Have you ever been

injected for it?

Tonja, sounds like you've been through alot with your back. So, to

have 2 double laminectomy surgeries and then fusion, how many levels

are affected for you? I guess I am lucky in that we are only talking

about 1 level for me. Did they go in through your back or belly for

your fusion?

Annie, you had a minimally invasive anterior fusion? My brother had

an anterior surgery done last year and he said they did it through

his belly, moving the vital organs out of the way, then flipped him

and did the rest through his back. It sucks that they did not see

your bone spurs when they did your fusion and fix that while they

were in there. I guess I am also lucky in that my OS knows the spur

is pushing into the nerves bilaterally and plans on fixing that while

he is in there for the fusion.

Thank you to you all for your feedback and warm welcome. I wish you

all the best, and will post as I know more regarding my pre-op

questions and post-op outcomes!

Much Aloha,

Sheila

[Guest guest]

Hi Sheila,

How are you? Hope ok.

I had a cortisone injection last Tuesday. That night I was in terrible pain.

Over a year ago(if I mentioned this before forgive me), I told the doctors I

thought I had trochanteric bursitis and was laughed at.

I had copied exercises off the internet last year for it and thought I could

start therapy on myself. I guess I was wrong, because I'm in more pain now than

before.

I'm pretty upset over it all.

Anyway....I have another nerve block scheduled for Tuesday. So far, nothing

has worked.

I am praying that this does.

Stay well, Sheila.

~Barbara~

sheila_gross <sheila_gross@...> wrote:

Hi Ladies~

Barbara, I know bursitis pain as well, and it is not pleasant. I had

cortizone injected for that before the surgeries, so it was one of

the secondary issues to the underlying problems. Have you ever been

injected for it?

Thank you to you all for your feedback and warm welcome. I wish you

all the best, and will post as I know more regarding my pre-op

questions and post-op outcomes!

Much Aloha,

Sheila

[Guest guest]

Sheila,

My fusion was in my cervical spine. The bone spurs I have now are in my

thoracic spine. Sorry I didn't make that clear. Dang, what your brother had

done sounds awful. I certainly hope I don't have to go through that with my t

spine!!! I will see the pain doc wednesday for trigger point injections to try

and stop the awful spasms. I will discuss the last c scan at that time.

Annie

sheila_gross <sheila_gross@...> wrote:

Hi Ladies~

Barbara, I know bursitis pain as well, and it is not pleasant. I had

cortizone injected for that before the surgeries, so it was one of

the secondary issues to the underlying problems. Have you ever been

injected for it?

Tonja, sounds like you've been through alot with your back. So, to

have 2 double laminectomy surgeries and then fusion, how many levels

are affected for you? I guess I am lucky in that we are only talking

about 1 level for me. Did they go in through your back or belly for

your fusion?

Annie, you had a minimally invasive anterior fusion? My brother had

an anterior surgery done last year and he said they did it through

his belly, moving the vital organs out of the way, then flipped him

and did the rest through his back. It sucks that they did not see

your bone spurs when they did your fusion and fix that while they

were in there. I guess I am also lucky in that my OS knows the spur

is pushing into the nerves bilaterally and plans on fixing that while

he is in there for the fusion.

Thank you to you all for your feedback and warm welcome. I wish you

all the best, and will post as I know more regarding my pre-op

questions and post-op outcomes!

Much Aloha,

Sheila

---------------------------------

Don't get soaked. Take a quick peek at the forecast

with the Search weather shortcut.

[Guest guest]

Barbara~

Wishing you the best with your nerve block...keep us posted. I've

been a victim of the " doubting " syndrome in the medical field

before myself and understand, but I am very thankful and fortunate to

have had DRs who have taken me seriously in the last few years. It

seems sometimes " getting there " is half the battle to correct

diagnosis and proper help...and I pray you will get there soon!

Best Wishes~

Sheila

>

> Hi Sheila,

>

> How are you? Hope ok.

> I had a cortisone injection last Tuesday. That night I was in

terrible pain.

> Over a year ago(if I mentioned this before forgive me), I told

the doctors I thought I had trochanteric bursitis and was laughed at.

> I had copied exercises off the internet last year for it and

thought I could start therapy on myself. I guess I was wrong, because

I'm in more pain now than before.

> I'm pretty upset over it all.

> Anyway....I have another nerve block scheduled for Tuesday. So

far, nothing has worked.

> I am praying that this does.

> Stay well, Sheila.

>

> ~Barbara~

[Guest guest]

Annie~

Sorry I didn't understand that in your post before. Keep us posted on

your diagnosis/plan. I hope your pain is minimized with the

injections and you don't need to have more surgeries. You will be in

my thoughts.

Best Wishes~

Sheila

>

> Sheila,

>

> My fusion was in my cervical spine. The bone spurs I have now

are in my thoracic spine. Sorry I didn't make that clear. Dang,

what your brother had done sounds awful. I certainly hope I don't

have to go through that with my t spine!!! I will see the pain doc

wednesday for trigger point injections to try and stop the awful

spasms. I will discuss the last c scan at that time.

>

> Annie

[Guest guest]

Hi Sheila,

Thanks so much for your post. You hit it on the head, I am a big time doubting

. The getting there is a long, suffering journey. Thanks for your kind

words and prayers.

Barbara~

sheila_gross <sheila_gross@...> wrote:

Barbara~

Wishing you the best with your nerve block...keep us posted. I've

been a victim of the " doubting " syndrome in the medical field

before myself and understand, but I am very thankful and fortunate to

have had DRs who have taken me seriously in the last few years. It

seems sometimes " getting there " is half the battle to correct

diagnosis and proper help...and I pray you will get there soon!

Best Wishes~

Sheila

>

> Hi Sheila,

>

> How are you? Hope ok.

> I had a cortisone injection last Tuesday. That night I was in

terrible pain.

> Over a year ago(if I mentioned this before forgive me), I told

the doctors I thought I had trochanteric bursitis and was laughed at.

> I had copied exercises off the internet last year for it and

thought I could start therapy on myself. I guess I was wrong, because

I'm in more pain now than before.

> I'm pretty upset over it all.

> Anyway....I have another nerve block scheduled for Tuesday. So

far, nothing has worked.

> I am praying that this does.

> Stay well, Sheila.

>

> ~Barbara~

[Guest guest]

Well if your going to start meds tomorrow you may start to lose weight

tomorrow. When i was 1st diagnosed, i lost 20 lbs in just a few

weeks. I was on too much synthroid though. Often times the doc will

put you on a dose too high, but thats okay for a while. I think there

is a term for that and I bet Chuck knows. What dose are you going to

start and what med?

>

> Hello, I am new to this group. I have recently been diagnosed and I am

> having trouble losing weight. I have tried very low calorie/low carb

> diets without any success. I will be starting medicine tomorrow. Is

> anyone on a diet that works for this condition? Any help is greatly

> appreciated. Thanks!

>

[Guest guest]

Hi,

thanks for getting back to me.

I am only on 50 mg of synthoid. That isnt a lot. I read in side effects, you

actually can gain weight! Thats all I need :-( I have been trying to diet but

nothing works. What was your TSH level when you started? if you dont mind me

asking. Mine is 29.

sweetenloe1 <sweetnwright@...> wrote:

Well if your going to start meds tomorrow you may start to lose weight

tomorrow. When i was 1st diagnosed, i lost 20 lbs in just a few

weeks. I was on too much synthroid though. Often times the doc will

put you on a dose too high, but thats okay for a while. I think there

is a term for that and I bet Chuck knows. What dose are you going to

start and what med?

>

> Hello, I am new to this group. I have recently been diagnosed and I am

> having trouble losing weight. I have tried very low calorie/low carb

> diets without any success. I will be starting medicine tomorrow. Is

> anyone on a diet that works for this condition? Any help is greatly

> appreciated. Thanks!

>

---------------------------------

It's here! Your new message!

Get new email alerts with the free Toolbar.

[Guest guest]

i don't remember what my tsh was then. I was started on .125 mcg's.

When i finally got to the " right " level (according to doc) I was

taking .100 mcg's After my last baby I am not sure what my dose will

be yet. right now i take a .75 and half of a.75 of synthroid.

> >

> > Hello, I am new to this group. I have recently been diagnosed and

I am

> > having trouble losing weight. I have tried very low calorie/low carb

> > diets without any success. I will be starting medicine tomorrow. Is

> > anyone on a diet that works for this condition? Any help is greatly

> > appreciated. Thanks!

> >

>

>

>

>

>

>

> ---------------------------------

> It's here! Your new message!

> Get new email alerts with the free Toolbar.

>

>

[Guest guest]

sweetenloe1 wrote:

>

>

> Well if your going to start meds tomorrow you may start to lose weight

> tomorrow. When i was 1st diagnosed, i lost 20 lbs in just a few

> weeks. I was on too much synthroid though. Often times the doc will

> put you on a dose too high, but thats okay for a while. I think there

> is a term for that and I bet Chuck knows. ...

Are thinking of " suppression dose, " what they sometimes do to reverse

goiter?

Chuck

[Guest guest]

sure chuck! lol!!! I knew you'd have the answer. I just figured

that docs start you with a dose that is high to kinda " make-up " for

lost time. I think it's better to work down on the dose rather than

up. I'm sure most of you agree. Not getting enough is like hitting a

wall!

> >

> >

> > Well if your going to start meds tomorrow you may start to lose weight

> > tomorrow. When i was 1st diagnosed, i lost 20 lbs in just a few

> > weeks. I was on too much synthroid though. Often times the doc will

> > put you on a dose too high, but thats okay for a while. I think there

> > is a term for that and I bet Chuck knows. ...

>

> Are thinking of " suppression dose, " what they sometimes do to reverse

> goiter?

>

> Chuck

>

[Guest guest]

You might want to try seeing a Rheumatologist to see

if you have Fibromyalgia. I was diagnosed 10 years

ago, and it cleared up lots of questions. There are

some really good book ons Fibromyalgia too.

Roni

--- hipmmmy <hipmmmy@...> wrote:

> I cannot believe I just thought to search for a

> group for this..

> I'm a typical thyroid patient ( I think...) I mean

> like you all, a

> true one. You know for years ..Dr's saying " It

> isn't your thyroid...

> when they really don't know how to look or treat

> one. I am a patient

> that may present by bloodwork as being fine but

> symptoms do not go

> away..

>

> Finally diagnosed in 2002... it took over 2 years

> to get it right

> and that was 4 family dr's later and finally an

> endocrinologist that

> tested me finding my T3 ws out of whack and changed

> me to Armour.

>

> Now.. since then ... I have been much better and it

> was normal but I

> have found for the last three months more heart

> palpitations.... head

> and body aches and general tiredness but then my

> gallbladder was

> about to bust so they blamed it all on that and took

> it out.

>

> Just last week went back to the endo...(because I

> relied on the

> family guy to monitor it for 5 years....) and found

> my family guy

> had thrown me into hyper so I'm back on 60mg

> instead of 120 mg

> armour per day.

> in addition.. at night while just sitting I will

> have the heart

> racing thing but it has never gone above 100. it

> is calming down

> now as I went a week without any meds... then

> started taking it two

> weeks ago..(lower dose..) my new counts were .84

> so he wants to

> see it up and I go back in 6 weeks.

>

> I have noticed that I'm more anxious and that I get

> more jittery....

> and that at times my head hurts more ...

>

> I have had so many med tests over the last 6 months

> that now after

> reading that book The Thyroid Solution I think all

> is thyroid

> related..Dr's have ruled out my heart, and all

> organs are testing

> fine.

>

> So I guess I'm long winded.. wanted to introduce my

> self and ask...

> has anyone dealt with the anxiety thing... while

> trying to regulate..

> my FP just wants to throw me on some meds like Xanax

> or something but

> I really do not want to do that ..... but I thought

> maybe some of

> you might have some suggestions...

> I exercise, am not over weight, and I do get regular

> chiropractic

> care to help with regular stress etc... I'm not

> having a problem

> with weight gain.... I went to a counselor several

> times who really

> believes it is thyroid related..... and yes blood

> sugar is normal..

>

> Anyway hoping someone on here has a suggestion..

> my main concern is

> sleeplessness at night, the anxious feelings... and

> muscle and joint

> pain...

>

> I'm so thankful I found this group...this anxiety

> thing just hit me

> out of the blue and I really do not know why....

>

> Blessings,

> Melody

>

>

__________________________________________________

[Guest guest]

That is what my doctor has done. He started me out on 6grains of armour than 8

but now

I am down to 4 and suspect he may go lower. Had some problems when I was on 8

but

now it seems to be going mostly well. I have lost 10# since april 3 yet I have

a better

appetite. Before, I was not hungry and did not eat much but still but on weight

daily. I say

research, research, research to find the doctor that will deal with your

particular problems.

Venizia

-- In hypothyroidism , " sweetenloe1 " <sweetnwright@...> wrote:

>

> sure chuck! lol!!! I knew you'd have the answer. I just figured

> that docs start you with a dose that is high to kinda " make-up " for

> lost time. I think it's better to work down on the dose rather than

> up. I'm sure most of you agree. Not getting enough is like hitting a

> wall!

>

> > >

> > >

> > > Well if your going to start meds tomorrow you may start to lose weight

> > > tomorrow. When i was 1st diagnosed, i lost 20 lbs in just a few

> > > weeks. I was on too much synthroid though. Often times the doc will

> > > put you on a dose too high, but thats okay for a while. I think there

> > > is a term for that and I bet Chuck knows. ...

> >

> > Are thinking of " suppression dose, " what they sometimes do to reverse

> > goiter?

> >

> > Chuck

> >

>

[Guest guest]

Fibro is a thyroid symptom, not a separate illness. Just get proper thyroid

treatment and iodine.

Gracia

You might want to try seeing a Rheumatologist to see

if you have Fibromyalgia. I was diagnosed 10 years

ago, and it cleared up lots of questions. There are

some really good book ons Fibromyalgia too.

Roni

Recent Activity

a.. 11New Members

Visit Your Group

[Guest guest]

you will have to get proper thyroid treatment. Look at Schwarzbein Principle

by Schwarzbein MD

http://www.stopthethyroidmadness.com

Gracia

Hello, I am new to this group. I have recently been diagnosed and I am

having trouble losing weight. I have tried very low calorie/low carb

diets without any success. I will be starting medicine tomorrow. Is

anyone on a diet that works for this condition? Any help is greatly

appreciated. Thanks!

[Guest guest]

you need iodine, cortisol for adrenals and more Armour.

http://www.stopthethyroidmadness.com

Gracia

I cannot believe I just thought to search for a group for this..

I'm a typical thyroid patient ( I think...) I mean like you all, a

true one. You know for years ..Dr's saying " It isn't your thyroid...

when they really don't know how to look or treat one. I am a patient

that may present by bloodwork as being fine but symptoms do not go

away..

Finally diagnosed in 2002... it took over 2 years to get it right

and that was 4 family dr's later and finally an endocrinologist that

tested me finding my T3 ws out of whack and changed me to Armour.

Now.. since then ... I have been much better and it was normal but I

have found for the last three months more heart palpitations.... head

and body aches and general tiredness but then my gallbladder was

about to bust so they blamed it all on that and took it out.

Just last week went back to the endo...(because I relied on the

family guy to monitor it for 5 years....) and found my family guy

had thrown me into hyper so I'm back on 60mg instead of 120 mg

armour per day.

in addition.. at night while just sitting I will have the heart

racing thing but it has never gone above 100. it is calming down

now as I went a week without any meds... then started taking it two

weeks ago..(lower dose..) my new counts were .84 so he wants to

see it up and I go back in 6 weeks.

I have noticed that I'm more anxious and that I get more jittery....

and that at times my head hurts more ...

I have had so many med tests over the last 6 months that now after

reading that book The Thyroid Solution I think all is thyroid

related..Dr's have ruled out my heart, and all organs are testing

fine.

So I guess I'm long winded.. wanted to introduce my self and ask...

has anyone dealt with the anxiety thing... while trying to regulate..

my FP just wants to throw me on some meds like Xanax or something but

I really do not want to do that ..... but I thought maybe some of

you might have some suggestions...

I exercise, am not over weight, and I do get regular chiropractic

care to help with regular stress etc... I'm not having a problem

with weight gain.... I went to a counselor several times who really

believes it is thyroid related..... and yes blood sugar is normal..

Anyway hoping someone on here has a suggestion.. my main concern is

sleeplessness at night, the anxious feelings... and muscle and joint

pain...

I'm so thankful I found this group...this anxiety thing just hit me

out of the blue and I really do not know why....

Blessings,

Melody