Guest guest Posted November 25, 2005 Report Share Posted November 25, 2005 wrote: > I dont understand what folders everyone is talking about to refer back to. ==>You need to go directly to the group's website. On the left menu there's Home, Messages, Files, Links, etc. Click on Files and you will get all of the folders and files for our group. Bee P.S. Please trim your messages - see our Files for the Group Info Folder to find out how to do it correctly. Thanks a bunch. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 Lower back here L2,L3,L4,L5 is gone. Hoolihanma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 Oh my gosh, Leslee. It really makes me wonder, if a nurse with medical background like yours, couldn't get the appropriate tests for YEARS, how many people are just never getting the right tests, never having the option for surgery (yes dangerous, but often the only thing that works) and just living their lives out in pain. There are a lot of people on this list who have had that kind of surgery. I had mine in my cervical spine, so the fact that it was the best decision I ever made (to have that surgery) isn't necessarily helpful for someone with a problem in the lumbar area. So...any lumbar folks out there? Shulamit --- leslee_white <leslee_white@...> wrote: > group. I asked repeatedly for an MRI because I just wasnt getting > better(in my opinion). She insisted that I was getting better and > would not order an MRI. It took me three years to finally get > someone to order an MRI, and things have started moving now. <snip> > spinal care. The pain clinic doc says he thinks I will need a 1 or 2 level discectomy with fusion. My PCP agrees. I don't see the new ortho doc until Jan31. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 At 11:03 AM 1/17/2006, you wrote: >Good morning everyone. I am new here, just joined yesterday. Here >is a little about me. I am a 35yo married mother of 2 (6year old >and a 9 year old). I am a registered nurse. My husband is in the >Army. I worked as a surgical/pediatric nurse for 11 years. I have >battled lumbar back pain for the past 13 years as a result of >repeated insults and injuries sustained mostly from work. Leslee, in all the research I've done online because of my own back problems, I've read so much from nurses who have injured or aggravated their backs on the job. It's a tough job and gives new meaning to the time-worn expression " no heavy lifting " when people describe how hard something is or isn't to do. Nursing is definitely " heavy lifting. " I think you have an advantage over the rest of us, though, in that you know how some of this medical " stuff " works. You know that you have to approach your doctor at your upcoming visit with the caveat that he has to walk you through all of this the same way he'd have to with one of us, even though he knows you, you know him and he might want to assume too much as to what you know about your condition. I remember when I was still working at the courthouse before I retired, and a woman came in to see me for an interview about a custody matter. She was a surgical nurse, and she was obviously very nervous and explained by offering this parallel: If I had to go into a hospital ... the place where SHE worked ... I'd be nervous, too. But it's her everyday surroundings, she's used to the sights and sounds, and she would know what to expect. Same thing at the courthouse. They were my surroundings, her unknown. I remember thinking about her the day I went in for my back surgery. Many of us get very nervous at the thought of just not knowing. Anyway, I'm blabbing ... Best of luck with your appointment on the 31st. http://thebacklog.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 Hi , welcome to the group! You'll find tons of information here. Die-off affects everyone differently. It incapacitates some people and others feel almost nothing. If you've been reading posts the last few days you've already read examples of just that. The best thing you can do for yourself is to take things slowly...follow Bee's recommended diet and get that down pat before you start introducing antifungals and probiotices. Bee's diet is unlike other anti-candida diets out there...please read through the information you were sent when you subscribed to the group and you'll understand better...as well, you would be doing yourself a big favor to read through the articles contained int the group Files entitled " Die-off Symptoms " and the one called " Healing Reaction,The " . As you get into the diet and die-off starts to happen (and it will, there's no avoiding it), there are many things you can do to help ease the symptoms...and there is information in the files on that too, depending on what your personal symptoms are that is. Plus, we're all here to help! But do read those files in order to get off to the best start. jackie The one thing I had trouble overcoming was a die-off reaction that seemed to cause me to have some mental problems. I ended up giving up the changes because of issues I had with that. I also wonder if I had introduced something into my diet that could have had this effect. I did research some about this phenomenon, but wondered if there was any feedback from some experienced dieters. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 --- jahlstrom78 <jahlstrom@...> wrote: > Die-off affects everyone differently. It > incapacitates some people and > others feel almost nothing. If you've been reading > posts the last few > days you've already read examples of just that. Like me, I have almost no symptoms. I'm very obese and used to eat sugar (literally) by the large spoonful because I didn't know any better. In fact my brother who used to like to cruelly trick me told me long ago that sugar didn't have any calories, and I believed him for many years (until my early twenties) because I didn't know any better, I just never questioned it. I used to drink many daily glasses of milk that had about 1/2 cup of sugar mixed in it. This was due to some abuse I had from my stepmother, and milk and sugar were the only things that I seemed to be able to get away with eating without incurring her wrath since my Dad bought those in the house (long story). Also I had a lot of recurring bladder infections when I was a kid where I had to take so many antibiotics my teeth are permanently stained yellow. I eat anti-candida to lose weight and to improve my health. Just because I have almost no symptoms doesn't mean I don't have candida. I'm convinced I do, and I'm convinced this is the healthiest way to eat, candida or not. Luv, Debby San , CA Website for my son Hunter Hudson, born 10/11/04: http://debbypadilla.0catch.com/hunter/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 yes Debby, you can start eating healthly now, it is never to late to want to improve your health and when you do it the pounds surely start to fall off, i wish you all the luck and stay tune to this web site for encouragement, good luck Debby Padilla-Hudson <debbypadilla@...> wrote: --- jahlstrom78 <jahlstrom@...> wrote: > Die-off affects everyone differently. It > incapacitates some people and > others feel almost nothing. If you've been reading > posts the last few > days you've already read examples of just that. Like me, I have almost no symptoms. I'm very obese and used to eat sugar (literally) by the large spoonful because I didn't know any better. In fact my brother who used to like to cruelly trick me told me long ago that sugar didn't have any calories, and I believed him for many years (until my early twenties) because I didn't know any better, I just never questioned it. I used to drink many daily glasses of milk that had about 1/2 cup of sugar mixed in it. This was due to some abuse I had from my stepmother, and milk and sugar were the only things that I seemed to be able to get away with eating without incurring her wrath since my Dad bought those in the house (long story). Also I had a lot of recurring bladder infections when I was a kid where I had to take so many antibiotics my teeth are permanently stained yellow. I eat anti-candida to lose weight and to improve my health. Just because I have almost no symptoms doesn't mean I don't have candida. I'm convinced I do, and I'm convinced this is the healthiest way to eat, candida or not. Luv, Debby Sa dn , CA Website for my son Hunter Hudson, born 10/11/04: http://debbypadilla.0catch.com/hunter/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Hi, Tom! Yes, Lyme can go away completely. Even if you still have some lying dormant (those cystic ones, or whatever they call them), as long as you keep yourself healthy, your immune system will have a good chance of keeping it in check. Has your doc done a CD-57? This is a good indicator of how active the infection is. From what I've read, if you stop treatment while the CD-57 is still low, you are likely to relapse. Once it's well within a normal range, as long as symptoms are also gone, you are much safer in discontinuing treatment. The recommended lab for the CD-57 is a specific LabCorp in California. I have the phone number - can email it if you'd like. Your doc may need to call the lab for instructions, address, etc. Good luck with it. --------------------------------- Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Hi Tom, Welcome to the group. This is a very knowledgeable group of folks. It could take you well over a year to completely beat Lyme. I've been at it for 3 years and I'm still working on it. I was infected for at least a year, if not longer, before diagnosis. The longer one goes untreated the longer it can take to get well. It sounds like your doctor has a good treatment plan, so I suggest you hang in there and be patient! Jessie > > Hi, my name is Tom. I live in Kansas City and was diagnosed with Lyme > last year. The first 8 months of my illness, I thought I had CFIDS or > something like it as I had a sudden onset with flu-like symptoms that > only worsened. I was tested for lyme 3 times, but tests were always > negative, until I visited Dr. Carol Ann Ryser. She used a serial > dilution test and a buffy coat smear test from a research lab in > Florida and it was then I discovered that I had both babesiosis and > traditional lyme. I have been taking zithromax with mepron for about > 6 months to treat the babesiosis, then I switched to zith with > tindazole for treatment of the lymes. Next month she wants me to > switch again to clindamycin and quinine. This will be over a year on > different types of treatment. Is this typical? Will this every go > away completely? I feel much better now, but still get easily > fatigued and am afraid to return to work as it is physical and might > cause a relapse. Any info will be greatly appreciated. Tom in KC > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Jim: I graduated today! No more neck brace or soft collar!!! Thought about this day all this time since my surgery, and guess what? I feel undressed without it! It was sort of scary driving home without the brace. I found out that I have a forever lasting spinal cord injury as there was more damage done than I thought, and that info was given to me but I think the pain meds kept me from really hearing and understanding it all when the doc told me all this. He changed the dose of neurontin, and is getting me a TENS unit for the pain as I am having a hard time taking medicine when I am working, so wish me well for the pain relief on that. Has anyone used the TENS for the pain? Does it work well? By the way the surgeon is the best in Phoenix, Az. He has successfuly performed three internal decapations! His name is Dr. A. Gianni Vishteh, and is the very best. He spent the whole night after my surgery in my room, and never left me once that whole night. The info I have gotten from this Group has been so helpful, and now that I am feeling better and not so drugged I think I will learn even more. Thanks for the helpful things I have gotten.. I hope the new drug you are taking is helping. Please let me know. I will be anxious to know how it works. Shirley Jim <jm_mcgrgr@...> wrote: Shirley, I had Fusion -- C-3-4-5-6-7--T1 done about 5 yrs ago. This also left me with arm & hand nerve damage primarily on the left side. The Neurologist who did my operations put me on Neurontin back then & altho it has helped its not going to relieve all your pain. I read something like 30-60% better depending on the person. Neurontin was a drug designed for seizures & they found it would in some folks work for nerve damage pain as well. Now Pfizer has come out with a new drug designed more for nerve pain called " lyrica " . New so no long term reports yet & my G.P. just switched me over less then a week ago so to early to tell how it will work for me. Can only say he told me has now switched about 12 of his patients over to lyrica & so far they all prefer it ! At the very least its worth asking your DR. about it.... JIM.... > > I am taking Neurontin for the Neuropathy in my hands and arms. Not for the back, and I guess you are right about one hurting because of the other. I am starting to have spasms in the shoulder area, however was sort of expecting that one. I guess I am just beginning to see the seriousness of what was done. Had and excellent doctor, and just wondering the long term affects if anyone else had similar surgery as mine. Thanks > Shirley > > Carlene Farmer <birddog@...> wrote: > wondering why you are taking neurontin--not related to your back, right? i still have nerve damage in one big toe from a laminectomy 10 years ago--they seem to be getting better about that but still they have to do so much cutting that it seems impossible to hit some nerves and also with fusion. > > if you had part of your upper spine fused, i would wonder if that is bothering your low back. if we restrict movement in one area, the others feel it. > > Carlene > > New to group > > > I just had Cervical Laminectomy with Mass Screws. and Fusion C3 thru > C6 Jan. 5th, any advise on Recovery past the two month mark, so far > lots of nerver damage in my hands and arms, feels like steam burns on > my hands and arms, and when I put my right hand in water it makes my > elbow hurt! Any ideas if Neurontin causes chest pain? I have it when > I take it, if I stop taking the chest pain goes away. Any and all > suggestions are appreciated. My lower back aches when I sit for any > length of time. Could that be related. > Shirley > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 MY sister used one for awhile, and she was satisfied with how it helped her. Shirley Moma <shirleymoma@...> wrote: Jim: I graduated today! No more neck brace or soft collar!!! Thought about this day all this time since my surgery, and guess what? I feel undressed without it! It was sort of scary driving home without the brace. I found out that I have a forever lasting spinal cord injury as there was more damage done than I thought, and that info was given to me but I think the pain meds kept me from really hearing and understanding it all when the doc told me all this. He changed the dose of neurontin, and is getting me a TENS unit for the pain as I am having a hard time taking medicine when I am working, so wish me well for the pain relief on that. Has anyone used the TENS for the pain? Does it work well? By the way the surgeon is the best in Phoenix, Az. He has successfuly performed three internal decapations! His name is Dr. A. Gianni Vishteh, and is the very best. He spent the whole night after my surgery in my room, and never left me once that whole night. The info I have gotten from this Group has been so helpful, and now that I am feeling better and not so drugged I think I will learn even more. Thanks for the helpful things I have gotten.. I hope the new drug you are taking is helping. Please let me know. I will be anxious to know how it works. Shirley Jim <jm_mcgrgr@...> wrote: Shirley, I had Fusion -- C-3-4-5-6-7--T1 done about 5 yrs ago. This also left me with arm & hand nerve damage primarily on the left side. The Neurologist who did my operations put me on Neurontin back then & altho it has helped its not going to relieve all your pain. I read something like 30-60% better depending on the person. Neurontin was a drug designed for seizures & they found it would in some folks work for nerve damage pain as well. Now Pfizer has come out with a new drug designed more for nerve pain called " lyrica " . New so no long term reports yet & my G.P. just switched me over less then a week ago so to early to tell how it will work for me. Can only say he told me has now switched about 12 of his patients over to lyrica & so far they all prefer it ! At the very least its worth asking your DR. about it.... JIM.... > > I am taking Neurontin for the Neuropathy in my hands and arms. Not for the back, and I guess you are right about one hurting because of the other. I am starting to have spasms in the shoulder area, however was sort of expecting that one. I guess I am just beginning to see the seriousness of what was done. Had and excellent doctor, and just wondering the long term affects if anyone else had similar surgery as mine. Thanks > Shirley > > Carlene Farmer <birddog@...> wrote: > wondering why you are taking neurontin--not related to your back, right? i still have nerve damage in one big toe from a laminectomy 10 years ago--they seem to be getting better about that but still they have to do so much cutting that it seems impossible to hit some nerves and also with fusion. > > if you had part of your upper spine fused, i would wonder if that is bothering your low back. if we restrict movement in one area, the others feel it. > > Carlene > > New to group > > > I just had Cervical Laminectomy with Mass Screws. and Fusion C3 thru > C6 Jan. 5th, any advise on Recovery past the two month mark, so far > lots of nerver damage in my hands and arms, feels like steam burns on > my hands and arms, and when I put my right hand in water it makes my > elbow hurt! Any ideas if Neurontin causes chest pain? I have it when > I take it, if I stop taking the chest pain goes away. Any and all > suggestions are appreciated. My lower back aches when I sit for any > length of time. Could that be related. > Shirley > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Good to hear you're doing so well! Let me know how the TENS unit works for you. I have my decompression and fusion next Thursday and the NSG alluded to the TENS unit in about 3-4 weeks. - New to group > > > I just had Cervical Laminectomy with Mass Screws. and Fusion C3 thru > C6 Jan. 5th, any advise on Recovery past the two month mark, so far > lots of nerver damage in my hands and arms, feels like steam burns on > my hands and arms, and when I put my right hand in water it makes my > elbow hurt! Any ideas if Neurontin causes chest pain? I have it when > I take it, if I stop taking the chest pain goes away. Any and all > suggestions are appreciated. My lower back aches when I sit for any > length of time. Could that be related. > Shirley > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 That is great news Shirley. You give me hope that freedom from the cervical collar does actually happen!!!! I had C2-3 and C4-5 fused on Feb 7th. I am now fused either surgically or genetically from C2 all the way to C7. I went for my 6 week post op today and thought I was doing great but the Dr said no driving or work for another 6 weeks! I feel fine and have no real pain so I was disappointed. The only tingling I have is in my left hand which he said tells him that my spinal cord is " receiving some pretty good pressure and could still be swollen. " We knew this could be a problem going in because I have a spinal cord injury at C4-5 but I really do feel fine. I know I am just impatient but I am still frustrated. BTW- is it ok to drive with a neck brace in AZ??? I live in San Diego, California and have been wearing either a soft or hard collar since June 2005 and my Dr said it was against the law to wear the collar while driving so when I drove around, I took it off. I even wore the soft collar to Disneyland. ( I am not complaining about my Doc as I think he is amazingly talented, I am just tired of being under house arrest.) Debra Beverley <wargames06@...> wrote: Good to hear you're doing so well! Let me know how the TENS unit works for you. I have my decompression and fusion next Thursday and the NSG alluded to the TENS unit in about 3-4 weeks. - New to group > > > I just had Cervical Laminectomy with Mass Screws. and Fusion C3 thru > C6 Jan. 5th, any advise on Recovery past the two month mark, so far > lots of nerver damage in my hands and arms, feels like steam burns on > my hands and arms, and when I put my right hand in water it makes my > elbow hurt! Any ideas if Neurontin causes chest pain? I have it when > I take it, if I stop taking the chest pain goes away. Any and all > suggestions are appreciated. My lower back aches when I sit for any > length of time. Could that be related. > Shirley > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 No it isn't ok to drive with the neck brace or collar in Arizona, but, Arizona just made it legal to drive if you are legally blind with some sort of adaptation, so if you can drive blind, I figure I could drive with the soft collar! I admit if I saw a police man, I took it off. Driving with the collar was a real trick in itself. Anyway I went back to work at two months, my coworkers drove me for a week, then I started driving myself. It is like being prisoner. I am feeling fine, just the burning in my hands. And it is hard when you go back to work, just the fact that you can't break when you want to is hard, sitting and standing, is also hard. Shirley Debra Rodebaugh <debrar65@...> wrote: That is great news Shirley. You give me hope that freedom from the cervical collar does actually happen!!!! I had C2-3 and C4-5 fused on Feb 7th. I am now fused either surgically or genetically from C2 all the way to C7. I went for my 6 week post op today and thought I was doing great but the Dr said no driving or work for another 6 weeks! I feel fine and have no real pain so I was disappointed. The only tingling I have is in my left hand which he said tells him that my spinal cord is " receiving some pretty good pressure and could still be swollen. " We knew this could be a problem going in because I have a spinal cord injury at C4-5 but I really do feel fine. I know I am just impatient but I am still frustrated. BTW- is it ok to drive with a neck brace in AZ??? I live in San Diego, California and have been wearing either a soft or hard collar since June 2005 and my Dr said it was against the law to wear the collar while driving so when I drove around, I took it off. I even wore the soft collar to Disneyland. ( I am not complaining about my Doc as I think he is amazingly talented, I am just tired of being under house arrest.) Debra Beverley <wargames06@...> wrote: Good to hear you're doing so well! Let me know how the TENS unit works for you. I have my decompression and fusion next Thursday and the NSG alluded to the TENS unit in about 3-4 weeks. - New to group > > > I just had Cervical Laminectomy with Mass Screws. and Fusion C3 thru > C6 Jan. 5th, any advise on Recovery past the two month mark, so far > lots of nerver damage in my hands and arms, feels like steam burns on > my hands and arms, and when I put my right hand in water it makes my > elbow hurt! Any ideas if Neurontin causes chest pain? I have it when > I take it, if I stop taking the chest pain goes away. Any and all > suggestions are appreciated. My lower back aches when I sit for any > length of time. Could that be related. > Shirley > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Hi Shirley, glad your feeling better & finally out of the collar. I had to wear a hard one for the better part of a year & then Dr. switched me to a soft one for a few months after that. I was using my soft one at night & removing it most of the day, but sure was happy when he told me I could throw it. Sorry I can't help you with the " tens " unit. Keep hearing about them, but have no idea how they work or what results people get from them? Take care Jim... > Jim: I graduated today! No more neck brace or soft collar!!! Thought about this day all this time since my surgery, and guess what? I feel undressed without it! It was sort of scary driving home without the brace. I found out that I have a forever lasting spinal cord injury as there was more damage done than I thought, and that info was given to me but I think the pain meds kept me from really hearing and understanding it all when the doc told me all this. He changed the dose of neurontin, and is getting me a TENS unit for the pain as I am having a hard time taking medicine when I am working, so wish me well for the pain relief on that. Has anyone used the TENS for the pain? Does it work well? By the way the surgeon is the best in Phoenix, Az. He has successfuly performed three internal decapations! His name is Dr. A. Gianni Vishteh, and is the very best. He spent the whole night after my surgery in my room, and never left me once that whole night. > The info I have gotten from this Group has been so helpful, and now that I am feeling better and not so drugged I think I will learn even more. Thanks for the helpful things I have gotten.. I hope the new drug you are taking is helping. Please let me know. I will be anxious to know how it works. > Shirley > > Jim <jm_mcgrgr@...> wrote: > Shirley, I had Fusion -- C-3-4-5-6-7--T1 done about 5 yrs > ago. This also left me with arm & hand nerve damage primarily on the > left side. The Neurologist who did my operations put me on Neurontin > back then & altho it has helped its not going to relieve all your > pain. I read something like 30-60% better depending on the person. > Neurontin was a drug designed for seizures & they found it would in > some folks work for nerve damage pain as well. Now Pfizer has come > out with > a new drug designed more for nerve pain called " lyrica " . New so no > long term reports yet & my G.P. just switched me over less then a > week ago so to early to tell how it will work for me. Can only say > he told me has now switched about 12 of his patients over to lyrica > & so far they all prefer it ! At the very least its worth asking > your DR. about it.... JIM.... > > > > > I am taking Neurontin for the Neuropathy in my hands and arms. > Not for the back, and I guess you are right about one hurting > because of the other. I am starting to have spasms in the shoulder > area, however was sort of expecting that one. I guess I am just > beginning to see the seriousness of what was done. Had and > excellent doctor, and just wondering the long term affects if anyone > else had similar surgery as mine. Thanks > > Shirley > > > > Carlene Farmer <birddog@> wrote: > > wondering why you are taking neurontin--not related to your > back, right? i still have nerve damage in one big toe from a > laminectomy 10 years ago--they seem to be getting better about that > but still they have to do so much cutting that it seems impossible > to hit some nerves and also with fusion. > > > > if you had part of your upper spine fused, i would wonder if that > is bothering your low back. if we restrict movement in one area, > the others feel it. > > > > Carlene > > > > New to group > > > > > > I just had Cervical Laminectomy with Mass Screws. and Fusion C3 > thru > > C6 Jan. 5th, any advise on Recovery past the two month mark, so > far > > lots of nerver damage in my hands and arms, feels like steam burns > on > > my hands and arms, and when I put my right hand in water it makes > my > > elbow hurt! Any ideas if Neurontin causes chest pain? I have it > when > > I take it, if I stop taking the chest pain goes away. Any and all > > suggestions are appreciated. My lower back aches when I sit for > any > > length of time. Could that be related. > > Shirley > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 Hi Colleen: My story is similar: I probably had candida from an early age. I remember in 6th grade (I won't tell you how long ago it was, only that nobody knew what candida was at that time) I had problem with my butt -itchy, and a feeling like I couldn't keep it clean. It had quite an emotional impact. I begged to go to the doctor, who, of course, had no clue. I also remember in 7th grade, I would sometimes see whitish curd-like crud growing in the back of my throat. I was finally diagnosed in 1988 and ahve been working on it ever since. Maybe I'd have been more successful if I had unlimited funds or insurance or access to someone who knows what they're doing, but I am better. I've learned alot about nutrition but am now working on allergies and possible thyroid/adrenal insufficiency and am also chelating for mercury. I just ordered some armour to " rev things up " and may see a good allergist if that doesn't help. I completely understand how isolating this stuff can be. My friends stopped asking me out to dinner a long time ago. I now eat 99.9% of my meals at home cuz there's nothing for me to eat " out there. " We should be given medals for not having gone iNsAnE by now.............. hang in there, -m > > I'm so frustrated with this candida. I've had it for 25 years. I > didn't know what it was till about 14 years ago. I remember when I > was 15 my mom took me to the Dr. becuase I had scratched my butt > raw. He said it was yeast and gave me a topical ointment. Ten years > later and sick as a dog I went through an elimination diet. Quit > eating all those foods and started to feel better. I managed to kick > it for 3 years which required a major life change - a back to the > land venture which didn't last. It's just an incredible amount of > self disciple to not eat the wrong food - especially if you have to > eat out and live in this world. And take the medicines - 3 to 4 > different ones 3-4 times a day - every day or I'll get a flare up. > I've run the gamet on the over the counter stuff. Raw garlic (no > wonder I'm single), GSE, acidophilus, caprical (sp.), homeopathic, > pau'd arco, burdock tea, goldenseal, some new herbal extract mixture > I found with black walnut extract, if there's something I'm missing > I can't remember. I've been subject to really bad mood swings which > now I take meds for - which is probably a yeast symptom. I think I'm > to the point of taking a prescription antifungal but I'm really > scared of that. I wonder if it will interact with the meds I'm > already on. I heard they were really hard on the liver. And I wonder > if they really work. I mean if I take one and for how long will I > be cured? Or will it just be another pill to take till I die? I'm > really down on the how thing and feeling like a freak and just wanna > be normal and not have to say " um, no. i can't eat that. i can't > drink that. i can't smell that. i can't breathe that. " Uggggggggggg. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 Hi Colleen! Welcome to the group! You've tried so many antifungals without success. I was wondering if you have Mercury fillings? Have heard that can keep the Candida from being eliminated. If you do try the prescription antifungals, I would have a test done before and while taking them to monitor your liver. I have heard that they can affect your liver. Beth New to group I'm so frustrated with this candida. I've had it for 25 years. I didn't know what it was till about 14 years ago. I remember when I was 15 my mom took me to the Dr. becuase I had scratched my butt raw. He said it was yeast and gave me a topical ointment. Ten years later and sick as a dog I went through an elimination diet. Quit eating all those foods and started to feel better. I managed to kick it for 3 years which required a major life change - a back to the land venture which didn't last. It's just an incredible amount of self disciple to not eat the wrong food - especially if you have to eat out and live in this world. And take the medicines - 3 to 4 different ones 3-4 times a day - every day or I'll get a flare up. I've run the gamet on the over the counter stuff. Raw garlic (no wonder I'm single), GSE, acidophilus, caprical (sp.), homeopathic, pau'd arco, burdock tea, goldenseal, some new herbal extract mixture I found with black walnut extract, if there's something I'm missing I can't remember. I've been subject to really bad mood swings which now I take meds for - which is probably a yeast symptom. I think I'm to the point of taking a prescription antifungal but I'm really scared of that. I wonder if it will interact with the meds I'm already on. I heard they were really hard on the liver. And I wonder if they really work. I mean if I take one and for how long will I be cured? Or will it just be another pill to take till I die? I'm really down on the how thing and feeling like a freak and just wanna be normal and not have to say " um, no. i can't eat that. i can't drink that. i can't smell that. i can't breathe that. " Uggggggggggg. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 Hi Beth, Thanks for your reply. I actually have no fillings. No cavities. The over the counter antifungals will work if I take them everyday. Nothing has really lasted except when I was eating all fresh organic veggies, very little meat, very little wheat, very little dairy, no processed food, very few restaurants, no fast food, no wine, beer etc. No prescription or over the counter meds. I had decided the only way I was gonna be healthy was to totally give up on all that. I had the opportunity to venture into an organic produce farm. I was very healthy but also very secluded from society. Now I'm back living a " normal " life and under the pressures of living this way. I need to have more self discipline. When I eat for myself, I don't eat wheat, but can eat rice, very little dairy, no fruit, or juice, no commercial meat, no nightshades, no processed foods. I eat alot of green veggies, wild game, sea fish, and rice. I need to cut out vinegar. And my one weakness wine. Eating out on business or dates or with other people is hard. If I splurge too much or too often, I pay. Does the OB/GYN deal with the prescription antifungals? Beth Fish <bethafish@...> wrote: Hi Colleen! Welcome to the group! You've tried so many antifungals without success. I was wondering if you have Mercury fillings? Have heard that can keep the Candida from being eliminated. If you do try the prescription antifungals, I would have a test done before and while taking them to monitor your liver. I have heard that they can affect your liver. Beth New to group I'm so frustrated with this candida. I've had it for 25 years. I didn't know what it was till about 14 years ago. I remember when I was 15 my mom took me to the Dr. becuase I had scratched my butt raw. He said it was yeast and gave me a topical ointment. Ten years later and sick as a dog I went through an elimination diet. Quit eating all those foods and started to feel better. I managed to kick it for 3 years which required a major life change - a back to the land venture which didn't last. It's just an incredible amount of self disciple to not eat the wrong food - especially if you have to eat out and live in this world. And take the medicines - 3 to 4 different ones 3-4 times a day - every day or I'll get a flare up. I've run the gamet on the over the counter stuff. Raw garlic (no wonder I'm single), GSE, acidophilus, caprical (sp.), homeopathic, pau'd arco, burdock tea, goldenseal, some new herbal extract mixture I found with black walnut extract, if there's something I'm missing I can't remember. I've been subject to really bad mood swings which now I take meds for - which is probably a yeast symptom. I think I'm to the point of taking a prescription antifungal but I'm really scared of that. I wonder if it will interact with the meds I'm already on. I heard they were really hard on the liver. And I wonder if they really work. I mean if I take one and for how long will I be cured? Or will it just be another pill to take till I die? I'm really down on the how thing and feeling like a freak and just wanna be normal and not have to say " um, no. i can't eat that. i can't drink that. i can't smell that. i can't breathe that. " Uggggggggggg. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 , I'm not sure that I haven't gone insane! LOL colleen <yoonit@...> wrote: Hi Colleen: My story is similar: I probably had candida from an early age. I remember in 6th grade (I won't tell you how long ago it was, only that nobody knew what candida was at that time) I had problem with my butt -itchy, and a feeling like I couldn't keep it clean. It had quite an emotional impact. I begged to go to the doctor, who, of course, had no clue. I also remember in 7th grade, I would sometimes see whitish curd-like crud growing in the back of my throat. I was finally diagnosed in 1988 and ahve been working on it ever since. Maybe I'd have been more successful if I had unlimited funds or insurance or access to someone who knows what they're doing, but I am better. I've learned alot about nutrition but am now working on allergies and possible thyroid/adrenal insufficiency and am also chelating for mercury. I just ordered some armour to " rev things up " and may see a good allergist if that doesn't help. I completely understand how isolating this stuff can be. My friends stopped asking me out to dinner a long time ago. I now eat 99.9% of my meals at home cuz there's nothing for me to eat " out there. " We should be given medals for not having gone iNsAnE by now.............. hang in there, -m > > I'm so frustrated with this candida. I've had it for 25 years. I > didn't know what it was till about 14 years ago. I remember when I > was 15 my mom took me to the Dr. becuase I had scratched my butt > raw. He said it was yeast and gave me a topical ointment. Ten years > later and sick as a dog I went through an elimination diet. Quit > eating all those foods and started to feel better. I managed to kick > it for 3 years which required a major life change - a back to the > land venture which didn't last. It's just an incredible amount of > self disciple to not eat the wrong food - especially if you have to > eat out and live in this world. And take the medicines - 3 to 4 > different ones 3-4 times a day - every day or I'll get a flare up. > I've run the gamet on the over the counter stuff. Raw garlic (no > wonder I'm single), GSE, acidophilus, caprical (sp.), homeopathic, > pau'd arco, burdock tea, goldenseal, some new herbal extract mixture > I found with black walnut extract, if there's something I'm missing > I can't remember. I've been subject to really bad mood swings which > now I take meds for - which is probably a yeast symptom. I think I'm > to the point of taking a prescription antifungal but I'm really > scared of that. I wonder if it will interact with the meds I'm > already on. I heard they were really hard on the liver. And I wonder > if they really work. I mean if I take one and for how long will I > be cured? Or will it just be another pill to take till I die? I'm > really down on the how thing and feeling like a freak and just wanna > be normal and not have to say " um, no. i can't eat that. i can't > drink that. i can't smell that. i can't breathe that. " Uggggggggggg. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 On 5/26/06 6:41 AM, " " <yoonit@...> wrote: > My friends stopped asking > me out to dinner a long time ago. I now eat 99.9% of my meals at home > cuz there's nothing for me to eat " out there. " We should be given > medals for not having gone iNsAnE by now.............. I relate to this statement 100%!! The friends/dinner thing is HARD because people just don't realize how much eating and drinking is connected to socializing (don't even get me started on the drinking...) And yes, I was just chatting this morning with a friend saying I have basically been driven INSANE by this, and would just love one freaking day where I didn't have to worry about what I was going to eat. _jason_ _________ ________ _______ _____ ____ ___ __ _ _ _ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 Have you tried the nystatin protocol on www.askwaltstollmd.com which also includes diet and skilled relaxation and exercise? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 , I know - I get so tired of thinking about food all the time! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 I quit drinking all alcohol 9 months ago (although I had a drink at Easter (white wine) and I just had 2 glasses last Sat. afternoon). Boy did I feel loopy and craving ALL the things I don't eat anymore. I can not believe how tipsy if not drunk I felt after only 2 small servings !!! I did not cave in and eat what I should not eat but I did feel weird like I was on drugs and I never did drugs !! Do the ingredients in the wine stir up the cravings for everything else ? Thanks. Maggie " ..: )::.. " <ombass@...> wrote: On 5/26/06 6:41 AM, " " <yoonit@...> wrote: > My friends stopped asking > me out to dinner a long time ago. I now eat 99.9% of my meals at home > cuz there's nothing for me to eat " out there. " We should be given > medals for not having gone iNsAnE by now.............. I relate to this statement 100%!! The friends/dinner thing is HARD because people just don't realize how much eating and drinking is connected to socializing (don't even get me started on the drinking...) And yes, I was just chatting this morning with a friend saying I have basically been driven INSANE by this, and would just love one freaking day where I didn't have to worry about what I was going to eat. _jason_ _________ ________ _______ _____ ____ ___ __ _ _ _ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 OHHH, wine and vinegar. They might be the culprits. What are you eating the vinegar on? Could you substitute fresh lemon instead? I use to drink wine too. Didn't think I could ever give it up even if I had gotten pregnant. The last one was Christmas 2005. A little bit makes me feel bad. I'd rather have a hot fudge sundae now. How long have you been on this strict diet and antifungals? I know what you mean about eating out. We hardly did before, but it's even less now. I try to look at the menu online before going to the restaurant. Still worry about what they're doing or using in the kitchen. My OB/GYN wanted to put me on Nizoral years ago and I wouldn't do it. That's supposed to be one of the worst antifungals on the liver. Congrats on no fillings! Hate to start taking a bunch of stuff because I have five fillings and my one and only route canal last Fall. I've heard that Nystatin may not work because of the Mercury. Sucks to be us! Beth New to group I'm so frustrated with this candida. I've had it for 25 years. I didn't know what it was till about 14 years ago. I remember when I was 15 my mom took me to the Dr. becuase I had scratched my butt raw. He said it was yeast and gave me a topical ointment. Ten years later and sick as a dog I went through an elimination diet. Quit eating all those foods and started to feel better. I managed to kick it for 3 years which required a major life change - a back to the land venture which didn't last. It's just an incredible amount of self disciple to not eat the wrong food - especially if you have to eat out and live in this world. And take the medicines - 3 to 4 different ones 3-4 times a day - every day or I'll get a flare up. I've run the gamet on the over the counter stuff. Raw garlic (no wonder I'm single), GSE, acidophilus, caprical (sp.), homeopathic, pau'd arco, burdock tea, goldenseal, some new herbal extract mixture I found with black walnut extract, if there's something I'm missing I can't remember. I've been subject to really bad mood swings which now I take meds for - which is probably a yeast symptom. I think I'm to the point of taking a prescription antifungal but I'm really scared of that. I wonder if it will interact with the meds I'm already on. I heard they were really hard on the liver. And I wonder if they really work. I mean if I take one and for how long will I be cured? Or will it just be another pill to take till I die? I'm really down on the how thing and feeling like a freak and just wanna be normal and not have to say " um, no. i can't eat that. i can't drink that. i can't smell that. i can't breathe that. " Uggggggggggg. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 Wish we all lived closer so we could go out for bottled water and salad greens with no dressing! LOL (haven't done this in awhile)!! Beth Re: Re: New to group On 5/26/06 6:41 AM, " " <yoonit@...> wrote: > My friends stopped asking > me out to dinner a long time ago. I now eat 99.9% of my meals at home > cuz there's nothing for me to eat " out there. " We should be given > medals for not having gone iNsAnE by now.............. I relate to this statement 100%!! The friends/dinner thing is HARD because people just don't realize how much eating and drinking is connected to socializing (don't even get me started on the drinking...) And yes, I was just chatting this morning with a friend saying I have basically been driven INSANE by this, and would just love one freaking day where I didn't have to worry about what I was going to eat. _jason_ _________ ________ _______ _____ ____ ___ __ _ _ _ Quote Link to comment Share on other sites More sharing options...
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