Re: Eye problems rare in LD?

[Guest guest]

I am very sensitive to light and I have the spots and wiggly lines in my

eyes expecially notice it in the sunlight.

Cyntha Landon Idaho

[ ] Eye problems rare in LD?

> It is frequently said by the establishment that eye problems are rare

> in LD. But that doesn't really seem to be true. A lot of Lyme

> patients complain about them. The usual ones are blurred vision,

> floaters, pain, pressure, light sensitivity, and sometimes unequal

> pupil size.

>

> I have had all these but last summer started having light flashes too

> (during a worsening of symptoms caused by being taken off antibiotics

> for several months to do a PCR). The opthamologist told me lyme did

> not cause eye problems, that the light flashes might be caused by

> blood vessels in the brain (like in migraines). Then when I went

> back with major black squiggles in my left eye, he said it was

> vitreous separation, with possibility of retinal detachment. Caused

> by " aging " not Lyme disease. I sent him some of Art's refs on eyes

> and LD.

>

> Then I went to a doctor at the s Hopkins eye institute,

> supposedly at the top of eye related institutions in rankings. This

> doc says yes LD does affect the eyes, but doesn't cause vitreous

> separation. I say this is baloney (but not to her face). A person

> who could be facing 1 to 4 hours of laser surgery for a retinal

> detachment does not take much bull. I left some of Art's eye refs

> for her. But didn't get the impression she was open to any new

> information. Since then I've found another ref that does seem to say

> vitreous problems can be caused by LD. Here's the abstract for

> anyone else who might be having this problem:

>

> -----------------------------------------------

>

> 1: Retina 1994;14(1):39-42

>

> Cytologically proven seronegative Lyme choroiditis and vitritis.

>

> Schubert HD, Greenebaum E, Neu HC

>

> S. Harkness Eye Institute, New York, New York.

>

> PURPOSE: To report on a vitreous specimen in a 53-year-old patient

> with

> unilateral choroiditis and vitritis of unknown cause. METHODS:

> Cytologic

> examination of a vitreous aspirate stained by the Papanicolaou

> method. RESULTS:

> Intravitreal spirochetes consistent with Borrelia burgdorferi were

> found in this

> seronegative patient. CONCLUSION: Vitreous specimens of patients with

> choroiditis and vitritis of unknown cause should be examined

> cytologically,

> particularly when serologic results do not corroborate the clinical

> findings of

> Lyme disease.

>

> PMID: 8016460

>

>

>

>

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[Guest guest]

Boloney,

My LLMD sent me to an ophthalmologist, that is seeing many patients with eye

problems due to lyme disease..........in fact my original dx came from a

visit to my eye dr......who sent me to a specialist who indicated that white

blood cells were deposited on the back of my eye.........indicating an

autoimmune disease of some sort going on in my body...then I had to receive

an injection in my eyeball, the inflammation was so bad.......I am

continually returning to the eye dr. for chronic inflammation in my right

eye..........never had any of these problems before lyme.........Connie nwnj

Leave no stone unturned.......

[Guest guest]

Hi, I have had eye problems also. Problems with my optic nerve, blurred vision, floaters, and also those squigly black lines when in the sun light. I never had these problems before and the problems with my optic nerve are recent. Take care, Kim S.

ConnieK <conniek@...> wrote:

Boloney,My LLMD sent me to an ophthalmologist, that is seeing many patients with eyeproblems due to lyme disease..........in fact my original dx came from avisit to my eye dr......who sent me to a specialist who indicated that whiteblood cells were deposited on the back of my eye.........indicating anautoimmune disease of some sort going on in my body...then I had to receivean injection in my eyeball, the inflammation was so bad.......I amcontinually returning to the eye dr. for chronic inflammation in my righteye..........never had any of these problems before lyme.........Connie nwnjLeave no stone unturned.......Welcome to Easy Reference:Send a blank email message to: -Unsubscribe - Unsubscribe from the list -Digest - Switch your subscription to a digest format -Normal - Switch your subscription to normalPlease send messages not related to Lyme disease (this includes humor and information about other diseases) to -Offtopic The archives can be accessed at The chat room is always open! /chat

[Guest guest]

I have vision problems too. I see floaters, inverted lighting, weird

things I can I only describe as something one might see if one was on

acid. I had the problems for a while, but concluded that they were

just 'me'. Well, now I am diagnosed /w Lyme (positive LUAT) and am

really wondering what has caused my vision problems...

I can only imagine the face of a doctor when I tell him that I have

floaters etc. and I think they are caused by Lyme disease

Ethan - NJ

>

> Boloney,

> My LLMD sent me to an ophthalmologist, that is seeing many patients

with eye

> problems due to lyme disease..........in fact my original dx came

from a

> visit to my eye dr......who sent me to a specialist who indicated

that white

> blood cells were deposited on the back of my eye.........indicating

an

> autoimmune disease of some sort going on in my body...then I had to

receive

> an injection in my eyeball, the inflammation was so bad.......I am

> continually returning to the eye dr. for chronic inflammation in my

right

> eye..........never had any of these problems before

lyme.........Connie nwnj

> Leave no stone unturned.......

>

>

> Welcome to

>

> Easy Reference:

> Send a blank email message to:

>

> -Unsubscribe@Y... - Unsubscribe from the list

> -Digest@Y... - Switch your subscription to a digest format

> -Normal@Y... - Switch your subscription to normal

>

> Please send messages not related to Lyme disease (this includes

humor and information about other diseases) to -Offtopic@Y...

>

> The archives can be accessed at Lyme-

Aid

>

> The chat room is always open!

> /chat

>

>

[Guest guest]

I'm curious...does anyone here have the white flashing dots in front of

their eyes at times...especially in the sunlight. I too see black spots and

squiggly lines. Also it is weird when I try to go to sleep I get wavy light

intervals which start wide and then small...much like after you look at a

light bulb for a while and then look a way....It is funny because it usually

changes colors...more times then none it is purple...is this weird or

what.....is it just from all the light during the day and then going to

dark...Hee....I just might be going crazy...lol....I probably didn't explain

it very well....sorry

Cyntha Landon Idaho

[ ] Re: Eye problems rare in LD?

> I have vision problems too. I see floaters, inverted lighting, weird

> things I can I only describe as something one might see if one was on

> acid. I had the problems for a while, but concluded that they were

> just 'me'. Well, now I am diagnosed /w Lyme (positive LUAT) and am

> really wondering what has caused my vision problems...

>

> I can only imagine the face of a doctor when I tell him that I have

> floaters etc. and I think they are caused by Lyme disease

>

> Ethan - NJ

>

>

> >

> > Boloney,

> > My LLMD sent me to an ophthalmologist, that is seeing many patients

> with eye

> > problems due to lyme disease..........in fact my original dx came

> from a

> > visit to my eye dr......who sent me to a specialist who indicated

> that white

> > blood cells were deposited on the back of my eye.........indicating

> an

> > autoimmune disease of some sort going on in my body...then I had to

> receive

> > an injection in my eyeball, the inflammation was so bad.......I am

> > continually returning to the eye dr. for chronic inflammation in my

> right

> > eye..........never had any of these problems before

> lyme.........Connie nwnj

> > Leave no stone unturned.......

> >

> >

> > Welcome to

> >

> > Easy Reference:

> > Send a blank email message to:

> >

> > -Unsubscribe@Y... - Unsubscribe from the list

> > -Digest@Y... - Switch your subscription to a digest format

> > -Normal@Y... - Switch your subscription to normal

> >

> > Please send messages not related to Lyme disease (this includes

> humor and information about other diseases) to -Offtopic@Y...

> >

> > The archives can be accessed at Lyme-

> Aid

> >

> > The chat room is always open!

> > /chat

> >

> >

[Guest guest]

I haven't seen white blotches yet, but i definitely see

floaters<black> . Some floaters, from what i understand is normal..

but i never noticed them before..I thought for awhile until i

asked...that i was seeing my mascara and pieces were going into my

eye I kept looking and never could see anything and my mascara

never looked clumpy ..funny what you think things are...then when i

had a flare up or herx..i get them confused..i saw tons of black

floaters..

When i go to bed and i close my eyes..i see swirls of color..don't

know whether it is normal or not..it isn't too annoying since i am

about to fall asleep..its actually kinda calming

Jenn in nj

[Guest guest]

Eye problems are definatly NOT rare in LD. I am amazed

at reading some of these posts and how similiar my

symptoms are. I have the black floaters, the colored

swirls, mostly purple. I was actually misdiagnosed for

10 years with an eye disease, before they found the

Lyme. And I had the inflammation too, I had to have

injections in my eye every three weeks for two years,

steroid injections, because they thought they were

treating something else. And I still lost that eye.

Now, 10 years later, I am finally on the right track,

but I will never get my vision back. Funny thing is,

my eye doctor kept saying 10 years ago, " I think this

is something else " He even told me he thought it was

Lyme, but my MD wouldn't test me back then, said it

" wasn't an issue in this area " (Maine!)

My suggestion to anyone with eye problems and Lyme,

get to a retina specialist before its too late. I know

a great one in Boston....

Hillary

__________________________________________________

[Guest guest]

I can only

imagine the face of a doctor when I tell him that I have

floaters etc. and I think they are caused by Lyme disease

In my

opinion the eye problems ARE caused from lyme disease. I get the floaters, only when I have a

flare up. I only have one, black

dot. When I close my eyes I feel

like they are wide open, even though they are closed. At times they itch so bad I want to pop them out of my

brain. I have always worn glasses

and while my optomologist who attributes everything going on with my eyes to my

age, I know better. If you have

dry eyes due to age, why do they become undry after treatment for the lyme. why

does my spot go away when the flare up calms down.

I also had

rashes all over my body, they itched to the point of bleeding. I was told by a dermatologist that I had

dry skin. Yeah, I have dry skin,

but all the moisturizing in the world would not make these damn rashes go

away. Well, that was a year ago,

and I still have dry skin, dryer than ever, but it doesn’t itch. It had nothing to do with dry skin, it

had to do with lyme. I used to

fight with these idiots that didn’t have a clue. Now I don’t even tell non LLMD’s I have lyme. It just doesn’t pay. I think they try

to dispel any symptom you may have that is caused by lyme so they don’t have to

deal with the L word. These idiots cost me much expense in moisturizers

and soaps for my rash and drops for my eyes that didn’t do a damn thing. The eye doctor even wanted to perform

surgery to open my tear ducts or something like that. and they are all so sure they are right its hard to believe they

are wrong.

Roe

[Guest guest]

I also only get the floaters during a flareup...and my eyes get very

itchy and dry...yet they always have some type of goo coming out..not

thick..watery but it isn't tears...My allergy eye drops do help

though/.

i found your dry skin comment extremely interesting..being new to

lyme i didn't know that was a symptom. I have awful dry

skin...especially my legs...they have those red bumps and are so dry

i must itch them in my sleep until they bleed... This is recent for

me..I have had dry skin before but never like this. And for me too,

no matter how much i moisturize, it isn't enough. Not looking forward

to shorts weather!!

Interesting!

Jenn NJ

[Guest guest]

Dear Hillary,

I realize this is an old post, but I just read it today.

I wonder if all hope should be lost:

I had lost much of my hearing in both ears due to [then undiagnosed] Lyme, & had worn hearing aids for more than 10 years, plus, altho my distance vision was ok, I had so much eyeball pain & blurry vision that I was basically unable to do any reading for 2 years.

Intravenous Claforan gave me back most of my hearing, I no longer need hearing aids, & it took away the eyeball pain too.

Maybe, HOPEFULLY, some antibiotic will restore your vision too.

I'll be praying for you. I think there really is hope.

Hugs, a Aida in NJ