Re: looking for help on lyme- here's my story

[Guest guest]

Addie, so sorry you are new to our Lyme Ranks, we arent a club anyone wants

to join, but we are friends that understand! I know that there is a Dr , if

not 2 , in Houston that treat Lyme, someone will give you the names. I live

in TX about 140 miles north of Houston, and travel to Bedford, just above

Fort Worth for my LLMD.

Lyme is here in TX, it is possible that you were infected more than

once, but the one bite you remember sent the bacterial load higher than your

body could handle. That would be when you started showing symptoms. That

is what happened to me. Keep your chin up, you'll find the answers. btw,

did your Dr test you with a Western Blot? Even if the test is 'neg' it may

have shown Lyme specific bands. Also, being on antibiotics can really skew

results. Take care, Pepi

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[Guest guest]

Oh Addie...

You sound just like me...I have had those problems for a long time and I too

had 33 of the 38 symptoms...I too am working on trying to get a

diagnosis...and here in Idaho it seems hopeless to do so. I hope you will

have better luck..I too have been tested for LYme coming back

negative....hey but I had just been on antibiotics and that is a big no no

for the test. But doctor doesn't seem to know much about that he says it

shouldn't have mattered. My daughter to has been tested...I have three

daughters whom I beleive have it too. It is sad that they don't listen to

us. Even if we know we have been bitten by a tick. Let me know how things

go.

Love always,

Cyntha Landon Idaho

[ ] looking for help on lyme- here's my story

> My name is Addie and I live in Houston, Tx. I have not been

> diagnosed with Lyme yet but I have most of the symptoms of it. I

> just had the blood work done and it came back negative. I would like

> to find a doctor in Houston that deals with Lyme. My current doctor

> didn't even want to do the blood work at first.

> This is why I think I have Lyme. I have been sick since July 2000.

> I went to North Carolina to visit (lyme is common there) and 3 days

> after I returned I was sick. My throat was sore, and I had flu like

> symptoms so I went to the doctor. I had strep throat and the flu.

> This became routine for 3 months. I constantly had bacteria growing

> in my throat, the doctor said that I had chronic tonsillitis so my

> tonsils came out. This was supposed to cure me. Two weeks later I

> was in the doctor again with a cold and a sore throat. I've had

> numerous URI's, colds, sinus infections and I've had every virus that

> has gone around since returning from NC. I have been light headed and

> dizzy. I always have a headache, a low-grade fever and I stay

> tired. This led to being tested for mono. Negative. I was also

> sent for allergy testing for having so many sinus infections. I was

> only allergic to mold in mild amounts. I also began to get sharp

> pains in my chest and in my ribs. I had what is called

> castrochrodijitis (inflammation of tissue and cartilage that attaches

> the ribcage to the chest. I felt like a ton of bricks was on my

> chest- I couldn't breath. Still no luck. Now what? Insurance

> changes new doctor. I go to the new doctor same symptoms. Only this

> time while being checked out they notice that my liver is inflamed.

> I was tested for hepatitis c. That also came back negative.

> Meanwhile, I have had a cold, a couple of bacteria virus', constant

> drainage in my ears, and bronchitis since January 2001. I got tired

> of going to the doctor being put on antibiotics and other medicine

> and still being sick. My aunt said it sounded like I had Lyme. I

> started to research it and found a checklist that had 38 symptoms of

> lyme- I have 33 of them. I went to my doctor with this and he was

> hesitant to do the blood work because it doesn't always come back

> positive. He would check on some things to determine if the test was

> even worth while. He felt my liver, and glands and decided to

> proceed with the blood work because they were both so inflamed. I

> just got the results back this week, which turned out negative.

> I would like to find a doctor in Houston that knows a something about

> Lyme so if any body out there knows of one, please let me know.

> Any comments are appreciated. Thanks for your help. Sorry this is

> so long but I am looking for answers and help.

>

> Thanks again

> Addie

> Amp5878@...

>

>

>

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[Guest guest]

---

Hey Addie,

I am new to the lyme world also. I was bitten in November and got

sick but am showing later lyme symptoms..As i go through my past i

think i have had it all a long but it may have been in remission or

was dormant and this tick bite brought it out...

Your story is so similar to mine. I also had infections in my

throat , white pus always sick and would get strep all the time. But

i was testing negative for it when i went to an infectious disease

physician...they tested me and tested me..i was tested for lyme three

times back then..finally said i had cfs and sent me home. Finally

someone tested me for a different type of strep,..was positive and

they yanked my tonsils. They told me they were the most infected

tonsils they had ever seen. I had tons of problems with sinus

infections after that..before that i had begun to develop all these

allergies..and since then still have them..that is our only

difference..my tests <allergy> were positive.

Just wanted to let you know that i can relate to your symptoms! The

people here are wonderful for support.. and information..i have asked

them numerous questions myself! My theory is that i was infected

awhile ago<i recall two tick bites> and that is why i have such a

sick past. I was treated with a lot of antibiotics..so maybe it was

able to kick it into remission ...cuz i have felt pretty ok since my

tonsils were out..except i did catch everything that was out there

cold and fluwise..plus the allergies...but that is nothing as to what

i feel now.

You have come to the right place !

hang in there,

jenn

In @y..., amp5878@a... wrote:

> My name is Addie and I live in Houston, Tx. I have not been

> diagnosed with Lyme yet but I have most of the symptoms of it. I

> just had the blood work done and it came back negative. I would

like

> to find a doctor in Houston that deals with Lyme. My current

doctor

> didn't even want to do the blood work at first.

> This is why I think I have Lyme. I have been sick since July

2000.

> I went to North Carolina to visit (lyme is common there) and 3 days

> after I returned I was sick. My throat was sore, and I had flu

like

> symptoms so I went to the doctor. I had strep throat and the flu.

> This became routine for 3 months. I constantly had bacteria

growing

> in my throat, the doctor said that I had chronic tonsillitis so my

> tonsils came out. This was supposed to cure me. Two weeks later I

> was in the doctor again with a cold and a sore throat. I've had

> numerous URI's, colds, sinus infections and I've had every virus

that

> has gone around since returning from NC. I have been light headed

and

> dizzy. I always have a headache, a low-grade fever and I stay

> tired. This led to being tested for mono. Negative. I was also

> sent for allergy testing for having so many sinus infections. I

was

> only allergic to mold in mild amounts. I also began to get sharp

> pains in my chest and in my ribs. I had what is called

> castrochrodijitis (inflammation of tissue and cartilage that

attaches

> the ribcage to the chest. I felt like a ton of bricks was on my

> chest- I couldn't breath. Still no luck. Now what? Insurance

> changes new doctor. I go to the new doctor same symptoms. Only

this

> time while being checked out they notice that my liver is

inflamed.

> I was tested for hepatitis c. That also came back negative.

> Meanwhile, I have had a cold, a couple of bacteria virus', constant

> drainage in my ears, and bronchitis since January 2001. I got

tired

> of going to the doctor being put on antibiotics and other medicine

> and still being sick. My aunt said it sounded like I had Lyme. I

> started to research it and found a checklist that had 38 symptoms

of

> lyme- I have 33 of them. I went to my doctor with this and he was

> hesitant to do the blood work because it doesn't always come back

> positive. He would check on some things to determine if the test

was

> even worth while. He felt my liver, and glands and decided to

> proceed with the blood work because they were both so inflamed. I

> just got the results back this week, which turned out negative.

> I would like to find a doctor in Houston that knows a something

about

> Lyme so if any body out there knows of one, please let me know.

> Any comments are appreciated. Thanks for your help. Sorry this is

> so long but I am looking for answers and help.

>

> Thanks again

> Addie

> Amp5878@a...

[Guest guest]

,

Where is Idaho are you? I have a friend who lives in Couer d'lene and has lyme symptoms.

The human spirit is stronger than anything that canhappen to it.

C.

[Guest guest]

, Idaho which is inbetween Idaho falls and Pocatello. We are kind of really opposite..I am in the southeastern part of Idaho. Three hours from Salt Lake City, Utah.

Cyntha Landon

Re: [ ] looking for help on lyme- here's my story

,

Where is Idaho are you? I have a friend who lives in Couer d'lene and has lyme symptoms.

The human spirit is stronger than anything that canhappen to it.

C. Welcome to Easy Reference:Send a blank email message to: -Unsubscribe - Unsubscribe from the list -Digest - Switch your subscription to a digest format -Normal - Switch your subscription to normalPlease send messages not related to Lyme disease (this includes humor and information about other diseases) to -Offtopic The archives can be accessed at The chat room is always open! /chat

[Guest guest]

And you cannot find an LLMD there? Not that that is strange or anything.....can't find one here either (at least one who would treat it appropriately). I wish you luck in finding someone.

The human spirit is stronger than anything that canhappen to it.

C.

[Guest guest]

Addie, with the fevers and some of your symptoms, you may want to get checked for Babesia and Ehrlichiosis also. These are other tickborne diseases which are known co-infections that interfere with Lyme treatment and often go hand in hand with Lyme Disease. (Can be transmitted by one tick bite). This testing should all be done by Igenex Labs in CA. They do have a website WWW.IGENEX.Com I believe it is. They can send you (or your doctor) the kit to draw the blood and they pay for shipping frozen blood specimen by Fedex, back to them. You might also have a western blot done by them (can all be done through one vial of blood serum) and also ask for a LUAT kit which would test the antigens in your urine. They send you three specimen vials to send back to be analyzed. All of these tests do require a doctors name on the requisition form. If your doctor is not open to this testing, please find another. It sounds like you might not only have Lyme Disease, but other tickborne diseases as well. Please pursue this!

Blessings,

Lorraine

[Guest guest]

I agree. Erlichiosis can definitely cause these symptoms. It is

VERY important to get tested for this also (as well as babesia).

Doxycycline is the antibiotic used to treat erlichiosis (it's dirt

cheap!).