Guest guest Posted April 13, 2004 Report Share Posted April 13, 2004 Kim i am glad that Jaxson's spine is okay. Sorry about the cyst. Thanks for letting us know. We will be saying our prayers that it will not grow. Please keep us posted. Angie and Jenna results of MRI > Hello to all, > We had an appt with the nuero this morning in re: to Jaxson's MRI. > All was good with his spine, which was great. There is however, a > cyst on his brain. The doc was a bit shocked by it because it's not > in a typical spot for a cyst (is there such a thing as typical?) - > it's right in the middle. So, Jax will have another MRI in 6 months > and if it grew, they need to remove it. > > Just thought I would let you know.. > > Kim > mom to Kaela (9) and Jaxson 9 mo tort/CranioCap grad 04/09/04 > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2004 Report Share Posted April 13, 2004 Kim, I was relieved to hear that everything was okay with Jaxson's spine at the MRI appt. I don't know anything about cysts in the brain area - it it possible that it could get smaller or be absorbed? If they are going to wait 6 more months before reevaluating the cyst, then it must not be an urgent concern. I am fervently hoping that the cyst will not get larger AT ALL! Thinking of you all, Christie (Mom to Repo'd Remy) --- In Plagiocephaly , " kasaint_2 " <kasaint_2@y...> wrote: > Hello to all, > We had an appt with the nuero this morning in re: to Jaxson's MRI. > All was good with his spine, which was great. There is however, a > cyst on his brain. The doc was a bit shocked by it because it's not > in a typical spot for a cyst (is there such a thing as typical?) - > it's right in the middle. So, Jax will have another MRI in 6 months > and if it grew, they need to remove it. > > Just thought I would let you know.. > > Kim > mom to Kaela (9) and Jaxson 9 mo tort/CranioCap grad 04/09/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 Kim, Sorry you didn't get 100% good news from the MRI. I know absolutely nothing about cysts on the brain, but I do work in a doctors office that orders MRIs/CTscans all the time and people learn they have various cysts in different locations that they would never have known about otherwise. For instance they go in for rt sided abd pain and find out they have cysts in places like kidneys, ovaries, etc, on the left side, but nothing on the right. Usually all they suggest is the same to repeat in 6mos to look for changes. I hope it doesn't get bigger and that all is well of course! We have another member whose son had a cyst removed from his head, I want to say temple area, but I'm not sure. I'm sure she wouldn't mind you emailing her if you had any questions-- lil_pooter @ hotmail.com (minus spaces). thanks for updating us. , mom to Hannah, DOC #3 3/30 Cape Cod, Ma --- In Plagiocephaly , " kasaint_2 " <kasaint_2@y...> wrote: > Hello to all, > We had an appt with the nuero this morning in re: to Jaxson's MRI. > All was good with his spine, which was great. There is however, a > cyst on his brain. The doc was a bit shocked by it because it's not > in a typical spot for a cyst (is there such a thing as typical?) - > it's right in the middle. So, Jax will have another MRI in 6 months > and if it grew, they need to remove it. > > Just thought I would let you know.. > > Kim > mom to Kaela (9) and Jaxson 9 mo tort/CranioCap grad 04/09/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2004 Report Share Posted April 14, 2004 Kim, Jax will be in my prayers, please keep us posted on him. --- In Plagiocephaly , " kasaint_2 " <kasaint_2@y...> wrote: > Hello to all, > We had an appt with the nuero this morning in re: to Jaxson's MRI. > All was good with his spine, which was great. There is however, a > cyst on his brain. The doc was a bit shocked by it because it's not > in a typical spot for a cyst (is there such a thing as typical?) - > it's right in the middle. So, Jax will have another MRI in 6 months > and if it grew, they need to remove it. > > Just thought I would let you know.. > > Kim > mom to Kaela (9) and Jaxson 9 mo tort/CranioCap grad 04/09/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 Well, I got the results of the MRI done on my right foot. I have a partial tear in one of the tendons. It also showed a lot of fluid in the joint and a lot of inflamation. Now I have to see an Ortho next Tuesday to find out how to fix my ankle. I am bumming because if the put a cast ont like my dr thinks I won't be able to work for a while and we really need my income. I don't have short-term disability so we will be scraping. I get so depressed over this. I wish some of the drugs would work and slow down the disease. I am onlu 40 years old but I feekl like I'm about 80. Vicki --- USFamily.Net - $8.25/mo! -- Highspeed - $19.99/mo! --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2006 Report Share Posted July 19, 2006 Dear Vicky- Its times like this that you dont expect to stop working that short and long term disability are so important. I would seriously think about applying for short term disability benefits for the time being.....SSI seeing as you cant work. This is an important first step in preparation for receiving long term disability through Social Security. Once you are on record so to speak with this condition and its effects, an award for disability in the short or long term can be forthcoming and is retroactive from the time you were diagnosed. I was 33 when I was hit with this and didnt even see it coming. I got emergency assistance from the state for the short term and it did help quite a bit. The process is long and there is alot of paperwork, but if you are in a cast on bedrest then perhaps you would consider it. I would call your local social security office to see what programs or benefits you will be able to apply for. Explain your situation and ask for paperwork to be sent to you. Even if you dont use it now, putting in an application will give you future peace of mind if you need benefits at any time. Good Luck and Hang in there..............Deborah On 7/18/06, Vicki <hoyt91@...> wrote: Well, I got the results of the MRI done on my right foot. I have a partial tear in one of the tendons. It also showed a lot of fluid in the joint and a lot of inflamation. Now I have to see an Ortho next Tuesday to find out how to fix my ankle. I am bumming because if the put a cast ont like my dr thinks I won't be able to work for a while and we really need my income. I don't have short-term disability so we will be scraping. I get so depressed over this. I wish some of the drugs would work and slow down the disease. I am onlu 40 years old but I feekl like I'm about 80. Vicki --- USFamily.Net - $8.25/mo! -- Highspeed - $19.99/mo! --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2006 Report Share Posted July 20, 2006 Vicki - I had a partial tear in my achilles tendon and physical therapy helped a lot. They did not put a cast on it at all. It took time but doing the exercises and stretches and the work they did during physical therapy helped enormously. So see if you can get a referral from the Ortho and if the Ortho won't give you one see if your regular doc will do it. I understand the depression. But sometimes I get more upset with the drugs then the disease. I started Fioriset this week for the pain and have awakened with an awful headache everyday. Is it the new drug? The heat? Allergies? The drug has caffeine and barbituates and it says you need to worry about fatigue but I'm afraid to take it at night because I can tell it's giving me more energy durng the day and I'm exhaused when it wears off. So figuring that out is so annoying Quote Link to comment Share on other sites More sharing options...
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