rheumatoid arthritis

[Guest guest]

Has anyone heard of this being used for RA? My dil heard of it from a girl who

has had good results. I am paranoid about stuff like this.

Hugs

June

Morinda is not able to make any medical claims for legal reasons. I wish we

could be more help. There is an independent organization that is committed to

getting information out about the benefits of Noni. They are the International

Noni Certification Council. You can get information from them on their website

at www.incc.org. I hope this helps.

Thanks,

Gerrit

Product Marketing

Morinda, Inc.

rheumatoid arthritis

Is there any medical evidence to show this product does something to help

patients with RA and if so what does it do?

June Dixon

[Guest guest]

You came to the right place. Everyone here is wonderful and supportive. Go

ahead and vent, the moderators here encourage whining if you need it too.

Noreen

[ ] Rheumatoid Arthritis

I am having a hard time in dealing with this RA. I don't know anyone

with the disease. I would like to be able to express my feelings

about this. Is anyone willing to listen? Thank you

[Guest guest]

You bet there is someone to listen. One big RA family here. You present

what you want to know and you will get responses. You want to vent we will

be here to listen. You want advice we will provide that. This group is

just great.

Terri

[ ] Rheumatoid Arthritis

> I am having a hard time in dealing with this RA. I don't know anyone

> with the disease. I would like to be able to express my feelings

> about this. Is anyone willing to listen? Thank you

>

>

>

>

>

[Guest guest]

Second the motion! The best!

JAN in CA =^..^=

Jim Hauff <JimH@...> wrote:

You bet there is someone to listen. One big RA family here. You present

what you want to know and you will get responses. You want to vent we will

be here to listen. You want advice we will provide that. This group is

just great.

Terri

[ ] Rheumatoid Arthritis

> I am having a hard time in dealing with this RA. I don't know anyone

> with the disease. I would like to be able to express my feelings

> about this. Is anyone willing to listen? Thank you

>

>

>

>

>

[Guest guest]

I am listening and will pray for you tooGod loves us all June P.

Jim Hauff <JimH@...> wrote:You bet there is someone to listen. One

big RA family here. You present

what you want to know and you will get responses. You want to vent we will

be here to listen. You want advice we will provide that. This group is

just great.

Terri

[ ] Rheumatoid Arthritis

> I am having a hard time in dealing with this RA. I don't know anyone

> with the disease. I would like to be able to express my feelings

> about this. Is anyone willing to listen? Thank you

>

>

>

>

>

[Guest guest]

Yes, do tell us your story!

[ ] Rheumatoid Arthritis

> I am having a hard time in dealing with this RA. I don't know anyone

> with the disease. I would like to be able to express my feelings

> about this. Is anyone willing to listen? Thank you

[Guest guest]

Noreen: Now you know a whole lot of people with this disease. It is a great

feeling to have a connection to others who walk in your shoes also. This is a

great bunch of people, they are always here for you, glad you made it

here...Sheri D

Noreen Saukko <nsaukko@...> wrote:You came to the right place.

Everyone here is wonderful and supportive. Go ahead and vent, the moderators

here encourage whining if you need it too.

Noreen

[ ] Rheumatoid Arthritis

I am having a hard time in dealing with this RA. I don't know anyone

with the disease. I would like to be able to express my feelings

about this. Is anyone willing to listen? Thank you

[Guest guest]

Dear MIssanywho:

Hi, my name is . I have RA for 7 years and many other illnesses. I

deal with things the best I can. I would love to communicate with you if you

would like. Write to me and tell me and the RA Support group about yourself.

Sincerely, C.

Anjillah@...

[Guest guest]

I have severe RA and have been on Enbrel shots for three years, I also take

folic acid, prednisone 9 mgs. daily and vioxx and I have my RA under control,

just a thought for your wife, Enbrel has made a new person out of me. Please

feel free to write to me.

Shirley, Edmis3@...

[Guest guest]

Hi :

Has your wife tried Duragesic patches. I am on them and they made a big

difference with me. Except they sure are expensive. However, ask the Dr. about

them.

Sincerely, Colletti

Anjillah@...

[Guest guest]

hi im cindy i do take enbrel but medicaid pays for it its 1300.oo i could

never afford t on my own ty god bless cindy

[Guest guest]

hello shirley. my doc wants me to go on enbel but the cost. even with inssurance

is high. just wondering how you and other people do it. i;m on vioxx,prednisone

5 mgs. methotrexate 8 2.5 mg. tabs. placenil and other pain meds. amd my R.A is

still active. i've been on arava before and it didn't do anything for me . but

make me loss hair and weight. anybody got any advice. willing to listen.

Edmis3@... wrote:I have severe RA and have been on Enbrel shots for three

years, I also take

folic acid, prednisone 9 mgs. daily and vioxx and I have my RA under control,

just a thought for your wife, Enbrel has made a new person out of me. Please

feel free to write to me.

Shirley, Edmis3@...

[Guest guest]

Sorry that your wife is having such trouble, . It's not necessarily

out of the question to consider switching to one of the other anti-TNF

agents - Enbrel (etanercept) or Humira (adalimumab).

********************

ls of the Rheumatic Diseases 2003;62:1195-1198

© 2003 by BMJ Publishing Group Ltd & European League Against Rheumatism

Treatment with infliximab (Remicade) when etanercept (Enbrel) has failed

or vice versa: data from the STURE registry showing that switching

tumour necrosis factor blockers can make sense

R van Vollenhoven, A Harju, S Brannemark and L Klareskog

Department of Rheumatology, Karolinska Hospital, 17176 Stockholm, Sweden

Correspondence to:

Associate Professor R F van Vollenhoven

Department of Rheumatology, Karolinska Hospital, D2-1, 17176 Stockholm,

Sweden; ronald.vanvollenhoven@...

Accepted 29 June 2002

ABSTRACT

Objective: When one TNF blocker (etanercept or infliximab) has failed,

to determine whether it makes sense to treat patients with the other.

Patients and methods: Since 1999 patients treated with etanercept or

infliximab have been systematically followed up at our institution in

the STURE database. We identified 31 patients who had received both

agents.

Results: Eighteen patients received etanercept first; discontinuation

was mostly due to lack of efficacy. DAS28 values had improved only

slightly with etanercept, with a mean (SEM) best DAS28 value of 4.8

(0.6). After switching to infliximab, the mean best DAS28 was 3.6

(0.6)-significantly better than the previous result (p<0.05). Similarly,

the mean best ACR-N during etanercept treatment was 17.2 (6.65) and

during subsequent infliximab treatment 40.4 (10.6) (p = 0.08). Thirteen

patients received infliximab first; discontinuation was mainly due to

adverse events. The best DAS28 value achieved during etanercept was 3.6

(0.4) compared with 4.1 (0.4) for infliximab (p<0.05), but the change in

DAS28 was not different and ACR-N were similar for infliximab and

etanercept in this group.

Conclusion: For patients with insufficient efficacy from etanercept,

treatment with infliximab provided better results, suggesting that a

trial of infliximab is reasonable for such patients. For patients who

discontinued infliximab owing to adverse events, treatment with

etanercept gave at least similar clinical efficacy. Taken together,

these data provide support for a trial of the reciprocal TNF blocker in

patients when one such agent has failed.

********************

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Rheumatoid Arthritis

>

> hi all..well for those of you that know me, I just wanted to give

> everyone update. As you know, my wife has had RA for the past 12

> months. Shes 29 and started taking remicade in March. The Remicade

> was helping a lot with a combination with Methotrexate and Folic

> Acid. She received her last infusion in Oct03 and at that time, she

> went in a week early because she was hurting and they also increased

> the dossage from 3mg/k to 5mg/k. 2 weeks after the infusion, she

> was still hurting and it looks like her body is building antibodies

> against the Remicade. Also, 3-4 months ago, she started getting

> rashes the size of a quarter on her back, behind the ears and now on

> the side of her face and chest. We have found that was being

> caused my the Remicade and theres only like 8 cases of this reported

> and when its reported, they report it in dermatology reports not

> rheumtology reports.

>

> Now its back to the drawing boards because shes on 17mg methotrexate,

> folic acid, and steriods - prendisone (10mg per day)..she just

> started plaqunil and that takes like 3 months before it's going to

> work. She does massages bi monthly to help and is going to try

> acupuncture next week. She has full blown RA and wanted to see if

> anyone else that has it has found anything that works.

>

> If anyone has any ideas or thoughts, please let me know..i dont want

> her to take the 10mg of prendisone beacuse of the long term

> effects. Not to sure about the plaqunil, but heard some good and

> bad. Also, any ideas on other treatments would help. I've

> heard a lot about the food book, but cant get my wife to belive in

> it because she never hurts after eating any particular food. It's

> sad to say, but they TNF agents are the best thing on the market and

> without her able to take them, i'm scared that life might be really

> hard in the future months/years.

>

> Thanks

>

[Guest guest]

You have received a variety of answers I know, however this link to

Hopkins' website may be of some value.

http://www.hopkins-arthritis.org/rheumatoid/rheum_treat.html

Hopkins is a very respected institution that is well known for

it's rhuematology department.

>

> hi all..well for those of you that know me, I just wanted to give

> everyone update. As you know, my wife has had RA for the past 12

> months. Shes 29 and started taking remicade in March. The Remicade

> was helping a lot with a combination with Methotrexate and Folic

> Acid. She received her last infusion in Oct03 and at that time, she

> went in a week early because she was hurting and they also

increased

> the dossage from 3mg/k to 5mg/k. 2 weeks after the infusion, she

> was still hurting and it looks like her body is building antibodies

> against the Remicade. Also, 3-4 months ago, she started getting

> rashes the size of a quarter on her back, behind the ears and now

on

> the side of her face and chest. We have found that was being

> caused my the Remicade and theres only like 8 cases of this

reported

> and when its reported, they report it in dermatology reports not

> rheumtology reports.

>

> Now its back to the drawing boards because shes on 17mg

methotrexate,

> folic acid, and steriods - prendisone (10mg per day)..she just

> started plaqunil and that takes like 3 months before it's going to

> work. She does massages bi monthly to help and is going to try

> acupuncture next week. She has full blown RA and wanted to see if

> anyone else that has it has found anything that works.

>

> If anyone has any ideas or thoughts, please let me know..i dont

want

> her to take the 10mg of prendisone beacuse of the long term

> effects. Not to sure about the plaqunil, but heard some good and

> bad. Also, any ideas on other treatments would help. I've

> heard a lot about the food book, but cant get my wife to belive in

> it because she never hurts after eating any particular food. It's

> sad to say, but they TNF agents are the best thing on the market

and

> without her able to take them, i'm scared that life might be

really

> hard in the future months/years.

>

> Thanks

>

[Guest guest]

I have had a marked improvement in inflamation and pain after being off wheat

of any kind since August. There are no miracles but anything that can help

is worth it. I also have lost 30 pounds since cutting out the wheat stuff.

Maary

[Guest guest]

I understand that rheumatoid arthritis is like a fungal infection and

can be treated like one.

http://www.mercola.com/article/dental/rootcanal/root_canals.htm

http://www.knowthecause.com

http://www.mold-survivor.com

> Hi All,

>

> I have a friend who has been diagnosed with RA. It may have been

there

> undiagnosed for a while but she does have a firm diagnosis now.

>

> She is oriented towards alternative treatments and diet as a way to

manage

> this but is open and trying to learn about all her options.

>

> Her preliminary research seems to imply that red meat is a bad

thing for RA

> patients and that people who go down the vegetarian path do better.

>

> Like most of you, I am extremely wary of the mainstream diet

recommendations

> that often come with disease since most are based on non organic

feed lot

> foods and AMA myth.

>

> I have suggested that a diet that is more NT/Paleo in nature

consisting of

> range fed meats and dairy and no grains might make more sense.

>

> Another friend of ours has found a study that seems to indicate

this is true

> since it apparently indicates that with respect to arthritis issues

positive

> results are shown (and I quote here) " not only by the increase of

o3s in the

> diet but a proactive and concentrated effort to reduce the o6s so

that the 6s

> and 3s assume a more natural relationship...4 or 5 to 1,

being " ideal " for

> humans.

>

> Simply increasing 3 is not anywhere's as effective in reducing the

> symptoms as is lowering the 6s and also upping the 3s.

>

> So range-fed/raised red meat, would

> apparently be at least one appropriate way to reduce the

inflammatory

> effects of excessive 6s in the diet.

>

> So people who across the board nix red meats are not actually

> addressing the real issue, which is life out of balance.

This " baby

> out with the bathwater " response is no more accurate than saying

> fatty foods cause pancreatitis. "

>

> Do any of you have any experience dealing with RA and diet? And do

any of

> you have any treatment thoughts/suggestions.

>

> Thanks,

> Alison

>

>

>

[Guest guest]

Alot of people have been helped greatly with antibiotics.

http://www.roadback.org

http://rs.option8.net/

Book to read

The New Arthritis Breakthough

This new, updated edition of the Arthritis Breakthrough, an American College

of Physicians-sponsored clinical trial, examines the Minocycline in

Rheumatoid Arthritis trial and all subsequent studies in close, dramatic

detail.

http://www.amazon.com/exec/obidos/tg/detail/-/0871318431/102-9346149-2493718?v=g\

lance

Chris

Re: Rheumatoid Arthritis

> I understand that rheumatoid arthritis is like a fungal infection and

> can be treated like one.

>

> http://www.mercola.com/article/dental/rootcanal/root_canals.htm

> http://www.knowthecause.com

> http://www.mold-survivor.com

>

>

>

>

[Guest guest]

I read a long time ago (a few years at least and too far back to

remember it all correctly) that a few believed that arthritis was a past

infection that settled in the body not having been completely killed

off. I have tried for a while to wrack my brains for where I read this

to look into it further.

I have arthritis that at the best of times is a bit stiff in the morning

to flare ups that are painful. I haven’t paid enough attention to

what’s going on to bring on a flare up other than a virus (a cold sort

of thing) that will cause inflammation and pain.

My oldest son (who is now 23) had meningo-encephalitis when he was 4.

It was about 6 months later that he started complaining of pains here

and there/on and off about year later got a Dx of RA.

* -----Original Message-----

From: [mailto:toyotaokiec@...]

Sent: Thursday, May 13, 2004 4:52 PM

..

[Guest guest]

I heard the herb Nettle is good for that and also Urinary problems. Can't

remember if it is the root or the leaf though. . .You can do a search on the

net.

It works as an anti-inflammatory in both cases.

Sherry

dandelion <dandelion@...> wrote:

I read a long time ago (a few years at least and too far back to

remember it all correctly) that a few believed that arthritis was a past

infection that settled in the body not having been completely killed

off. I have tried for a while to wrack my brains for where I read this

to look into it further.

I have arthritis that at the best of times is a bit stiff in the morning

to flare ups that are painful. I haven’t paid enough attention to

what’s going on to bring on a flare up other than a virus (a cold sort

of thing) that will cause inflammation and pain.

My oldest son (who is now 23) had meningo-encephalitis when he was 4.

It was about 6 months later that he started complaining of pains here

and there/on and off about year later got a Dx of RA.

* -----Original Message-----

From: [mailto:toyotaokiec@...]

Sent: Thursday, May 13, 2004 4:52 PM

..

[Guest guest]

leaf. as with all herbs, make sure to get organic!

At 10:08 AM 5/14/2004, you wrote:

>I heard the herb Nettle is good for that and also Urinary problems. Can't

>remember if it is the root or the leaf though. . .You can do a search on

>the net.

>

>It works as an anti-inflammatory in both cases.

>

>Sherry

[Guest guest]

Katja,

Actually when I was speaking with the herbalist the other day, she said that

with Nettle both the root and leaves are used for different things. Wish she

could be here to speak with you instead of me. I am just the messenger. I am

going there today so if I remember I will ask again.

Best Regards

Sherry

katja <katja@...> wrote:

leaf. as with all herbs, make sure to get organic!

At 10:08 AM 5/14/2004, you wrote:

>I heard the herb Nettle is good for that and also Urinary problems. Can't

>remember if it is the root or the leaf though. . .You can do a search on

>the net.

>

>It works as an anti-inflammatory in both cases.

>

>Sherry

[Guest guest]

yeah, sorry. boy, i should just never reply when i'm in a rush.

indeed, the root *and* the leaves are used. some other things nettle is

known for are:

-high potassium content

-helps many skin conditions including eczema

-helps poor kidney function

-helps fluid retention

-arthritis in particular when there are also kidney symptoms

-slows bleeding from wounds and nosebleeds

-helps anemia

-good for heavy menstrual bleeding

-it's antiallergenic! (hay fever, asthma, itchy rashes, insect bites)

-nettle juice can treat nettle stings

-improves breast milk production

-and they're using the root to treat enlarged prostate

-katja

At 12:55 PM 5/14/2004, you wrote:

>Katja,

>

>Actually when I was speaking with the herbalist the other day, she said

>that with Nettle both the root and leaves are used for different

>things. Wish she could be here to speak with you instead of me. I am

>just the messenger. I am going there today so if I remember I will ask again.

>

>Best Regards

>Sherry

>

>katja <katja@...> wrote:

>leaf. as with all herbs, make sure to get organic!

>

>At 10:08 AM 5/14/2004, you wrote:

> >I heard the herb Nettle is good for that and also Urinary problems. Can't

> >remember if it is the root or the leaf though. . .You can do a search on

> >the net.

> >

> >It works as an anti-inflammatory in both cases.

> >

> >Sherry

>

>

>

>

>

>

[Guest guest]

Katja wrote:

-and they're using the root to treat enlarged prostate

Katja,

That is the difference. . . The root is for prostate while the leaves are for

arthritis.

Thanks!

Sherry

[Guest guest]

Here's another low cost RA treatment option:

" Treatment with Oral L-Lysine Showing Some Unusually Benifcal Results "

http://www.krysalis-sparx.com/rheumatism.htm

(that guy needs a spell checker :-)

Rheumatoid Arthritis

> Hi All,

>

> I have a friend who has been diagnosed with RA. It may have been there

> undiagnosed for a while but she does have a firm diagnosis now.

>

> She is oriented towards alternative treatments and diet as a way to manage

> this but is open and trying to learn about all her options.

>

> Her preliminary research seems to imply that red meat is a bad thing for

RA

> patients and that people who go down the vegetarian path do better.

>

> Like most of you, I am extremely wary of the mainstream diet

recommendations

> that often come with disease since most are based on non organic feed lot

> foods and AMA myth.

>

> I have suggested that a diet that is more NT/Paleo in nature consisting of

> range fed meats and dairy and no grains might make more sense.

>

> Another friend of ours has found a study that seems to indicate this is

true

> since it apparently indicates that with respect to arthritis issues

positive

> results are shown (and I quote here) " not only by the increase of o3s in

the

> diet but a proactive and concentrated effort to reduce the o6s so that

the 6s

> and 3s assume a more natural relationship...4 or 5 to 1, being " ideal " for

> humans.

>

> Simply increasing 3 is not anywhere's as effective in reducing the

> symptoms as is lowering the 6s and also upping the 3s.

>

> So range-fed/raised red meat, would

> apparently be at least one appropriate way to reduce the inflammatory

> effects of excessive 6s in the diet.

>

> So people who across the board nix red meats are not actually

> addressing the real issue, which is life out of balance. This " baby

> out with the bathwater " response is no more accurate than saying

> fatty foods cause pancreatitis. "

>

> Do any of you have any experience dealing with RA and diet? And do any of

> you have any treatment thoughts/suggestions.

>

> Thanks,

> Alison

>

>

>

[Guest guest]

My daughter just turned 17 and has just been recently diagnosed with

RA. She has been on methotrexate shots now for a month. At first, the

swelling and pain went down tremendously, but is back. I decided to

try to find something that would help us to learn more about

treatments, etc. I feel so helpless because I can't help her.