Re: Hi, my name is Margaret

[Guest guest]

Hello Margaret , glade to see you fould the group , And yes it's a chore to keep up with toodlers with this diease older children to . johnMargaret <margaretfaith@...> wrote: I am a new member, I was diagnosed with RA 6 months ago. I am 35, I have 2 toddlers, one is 3 1/2 and my son is 2. I lost my insurance so I am still seeing a regular doctor. Eight months ago i started having alot of pain in both knees, both ankles, both wrist, hips and fingers,I lost 70 pounds after my son was born. They tested me for everything but RA, then I went to another doctor, he is wonderful. He did scans, x-rays, blood test,and RF. I have osteoarthritis in my back, plus RA. I am on Methotrexate 20mgs a week, doxepine, and mobic. I am in a lot of pain right now, I was better for 2 months, now I feel as bad as I did before. I know I will get better, I have to for

my babies. It's hard chasing them all day when you can barely walk. I am excited about this group, no one really seems to understand how painful it is sometimes. I hope this wasn't to long.

Stay in the know. Pulse on the new .com. Check it out.

[Guest guest]

Financial assistance

https://www.pparx.org/Intro.php

https://www.helpingpatients.org/Intro.php

http://www.needymeds.com

http://www.themedicineprogram.com

Http://www.rxassist.org

http://www.medicationfoundation.com/

http://www.nami.org/Content/ContentGroups/Helpline1/Prescription_

Drug_Patient_Assistance_Programs.htm

http://www.qdrug.com/sf/

http://www.freemedicineprogram.com

http://www.rheumatology.org/public/acrast.asp?aud=pat

http://www.joniandfriends.org/helps/financia.shtml

I have copied the above links over a

period of time because they may be helpful to others. I don’t

qualify of assistance so I haven’t checked them out and I don’t

even know if they still exist. I hope you can get some help from one or

more of them.

You really should be seeing a

rheumatologist at least occasionally if possible and maybe use your regular

doctor in between times. Few doctors besides rheumatologists really know

how to diagnose or treat RA.

Prednisone might give you some temporary

relief of symptoms but it doesn’t do much to slow the permanent joint

damage of RA. It does help with diagnosis because if you get relief it

shows that some type of inflammation is probably involved and that could be RA

of many other things. If it doesn’t help then the doctor probably

needs to look elsewhere to identify your problems. Prednisone has some

bad side effects so you don’t want to take it any longer than you need to

so you can function. God bless.

From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of Margaret

Sent: Saturday, August 12, 2006

9:42 PM

Rheumatoid Arthritis

Subject:

Hi, my name is Margaret

I am a new member, I was diagnosed with RA 6 months

ago. I am 35, I

have 2 toddlers, one is 3 1/2 and my son is 2. I lost my insurance so

I am still seeing a regular doctor. Eight months ago i started having

alot of pain in both knees, both ankles, both wrist, hips and

fingers,I lost 70 pounds after my son was born. They tested me for

everything but RA, then I went to another doctor, he is wonderful. He

did scans, x-rays, blood test,and RF. I have osteoarthritis in my

back, plus RA. I am on Methotrexate 20mgs a week, doxepine, and mobic.

I am in a lot of pain right now, I was better for 2 months, now I feel

as bad as I did before. I know I will get better, I have to for my

babies. It's hard chasing them all day when you can barely walk. I am

excited about this group, no one really seems to understand how

painful it is sometimes. I hope this wasn't to long.

[Guest guest]

Margaret wrote: I am a new member, I was diagnosed with RA 6 months ago. I

am 35, I have 2 toddlers, one is 3 1/2 and my son is 2. I know I will get

better, I have to for my babies. It's hard chasing them all day when you can

barely walk.

Ardeith writes: You have my total sympathy. My youngest child was born in

November of 1971, and I was diagnosed the following January. The next

oldest was three, and the older two were in school. I'd get the older two

off to school, get the younger ones changed and fed, then take them into my

bedroom. I'd shove a dresser over a couple of inches so it blocked the door

handle, then turn the three year old loose on the floor with a box of toys,

and tuck me and the baby back into bed!!! The baby would sleep, I'd read

and doze a bit, and the toddler would play until she got tired then climb

into bed and nap with us. I'd schedule any errands I had to do to coincide

with the older two children getting out of school so I could pick them up on

my way home. And my son and oldest daughter helped me with household

chores, getting supper for their dad, and watching over the younger

children.

There's a French phrase that sounds like " lazy fair " ......and I adopted

lazy fair as my way of life. It's not that I was too lazy to fold

diapers.....but it was easier to pile them in a basket under the crib and

fold one as I needed it. Like that....lazy fair....

it was fair to the baby who got a clean diaper and didn't care when it got

folded, and it was fair to the joints in my arms and wrists.

Nowadays, perhaps, the word " priorities " might apply....the priority is to

have a clean diaper for a baby.....no one (except my mother in law) cared

when that diaper got folded.

See how many ways you can apply " lazy fair " to your life and your

babies.....

Ardy

[Guest guest]

-Margaret,

I can totally understand what you are going through. I am 31, and

getting married next April. I have RA. My biggest fear is should I

have a baby? I fear my baby will be crying, and I will not be able

to get to them, because my RA is acting up. I know when I have

morning stiffness, I sometimes can not even get out of bed! People

tell me that " Motherly instinct " will kick in. Is this true? Best

of luck!

-- In Rheumatoid Arthritis , " Ardeith "

<ardeith@...> wrote:

>

> Margaret wrote: I am a new member, I was diagnosed with RA 6

months ago. I

> am 35, I have 2 toddlers, one is 3 1/2 and my son is 2. I know I

will get

> better, I have to for my babies. It's hard chasing them all day

when you can

> barely walk.

>

> Ardeith writes: You have my total sympathy. My youngest child

was born in

> November of 1971, and I was diagnosed the following January. The

next

> oldest was three, and the older two were in school. I'd get the

older two

> off to school, get the younger ones changed and fed, then take

them into my

> bedroom. I'd shove a dresser over a couple of inches so it

blocked the door

> handle, then turn the three year old loose on the floor with a box

of toys,

> and tuck me and the baby back into bed!!! The baby would sleep,

I'd read

> and doze a bit, and the toddler would play until she got tired

then climb

> into bed and nap with us. I'd schedule any errands I had to do

to coincide

> with the older two children getting out of school so I could pick

them up on

> my way home. And my son and oldest daughter helped me with

household

> chores, getting supper for their dad, and watching over the younger

> children.

>

> There's a French phrase that sounds like " lazy fair " ......and I

adopted

> lazy fair as my way of life. It's not that I was too lazy to fold

> diapers.....but it was easier to pile them in a basket under the

crib and

> fold one as I needed it. Like that....lazy fair....

> it was fair to the baby who got a clean diaper and didn't care

when it got

> folded, and it was fair to the joints in my arms and wrists.

>

> Nowadays, perhaps, the word " priorities " might apply....the

priority is to

> have a clean diaper for a baby.....no one (except my mother in

law) cared

> when that diaper got folded.

>

> See how many ways you can apply " lazy fair " to your life and your

> babies.....

> Ardy

>

[Guest guest]

Thanks for writing, it does kick in, but it is hard sometimes. I used

to be one of those mothers that played all day and never got tired. I

have to tell my kids my knees hurt so I can't run as much. We read and

do puzzles alot now. I love my babies so I try to just handle the pain

most of the time. I think you can do it, there are nothing like kids

to get you motivated.

I am a new member, I was diagnosed with RA 6

> months ago. I

> > am 35, I have 2 toddlers, one is 3 1/2 and my son is 2. I know I

> will get

> > better, I have to for my babies. It's hard chasing them all day

> when you can

> > barely walk.

> >

> > Ardeith writes: You have my total sympathy. My youngest child

> was born in

> > November of 1971, and I was diagnosed the following January. The

> next

> > oldest was three, and the older two were in school. I'd get the

> older two

> > off to school, get the younger ones changed and fed, then take

> them into my

> > bedroom. I'd shove a dresser over a couple of inches so it

> blocked the door

> > handle, then turn the three year old loose on the floor with a box

> of toys,

> > and tuck me and the baby back into bed!!! The baby would sleep,

> I'd read

> > and doze a bit, and the toddler would play until she got tired

> then climb

> > into bed and nap with us. I'd schedule any errands I had to do

> to coincide

> > with the older two children getting out of school so I could pick

> them up on

> > my way home. And my son and oldest daughter helped me with

> household

> > chores, getting supper for their dad, and watching over the younger

> > children.

> >

> > There's a French phrase that sounds like " lazy fair " ......and I

> adopted

> > lazy fair as my way of life. It's not that I was too lazy to fold

> > diapers.....but it was easier to pile them in a basket under the

> crib and

> > fold one as I needed it. Like that....lazy fair....

> > it was fair to the baby who got a clean diaper and didn't care

> when it got

> > folded, and it was fair to the joints in my arms and wrists.

> >

> > Nowadays, perhaps, the word " priorities " might apply....the

> priority is to

> > have a clean diaper for a baby.....no one (except my mother in

> law) cared

> > when that diaper got folded.

> >

> > See how many ways you can apply " lazy fair " to your life and your

> > babies.....

> > Ardy

> >

>

[Guest guest]

> >

> > I am a new member, I was diagnosed with RA 6 months ago. I am 35, I

> > have 2 toddlers, one is 3 1/2 and my son is 2. I lost my insurance so

> > I am still seeing a regular doctor. Eight months ago i started having

> > alot of pain in both knees, both ankles, both wrist, hips and

> > fingers,I lost 70 pounds after my son was born. They tested me for

> > everything but RA, then I went to another doctor, he is wonderful. He

> > did scans, x-rays, blood test,and RF. I have osteoarthritis in my

> > back, plus RA. I am on Methotrexate 20mgs a week, doxepine, and mobic.

> > I am in a lot of pain right now, I was better for 2 months, now I feel

> > as bad as I did before. I know I will get better, I have to for my

> > babies. It's hard chasing them all day when you can barely walk. I am

> > excited about this group, no one really seems to understand how

> > painful it is sometimes. I hope this wasn't to long.

> >

> >

> >

>

I was on my husbands insurance, but he quit his job and I couldn't get

Cobra because he wasn't there long enough. I have tried to get other

insurance but no one will cover me with RA. I am going to try

disability. I am the youngest of 6 girls, my mom died of MS when I was

eight. All of my sisters have an auto immune disorder, I quess it runs

in my family. I just pray my kids will be ok.