Guest guest Posted April 26, 1999 Report Share Posted April 26, 1999 In a message dated 4/26/99 1:18:18 AM Eastern Daylight Time, theocean@... writes: << I am still upset that I tested negative, only because HEMEX claims such a high percentage of CFIDS patients test positive. JL >> Some that have tested negative are those who are on saline infusions. It affects the outcome of the test. Maqybe other therapies do, too. There's one patient who was diagnosed by an expert that they missed, so it may be a high percentage, but not everyone. They did find a gene that may be a marker in the one that tested negative! Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 1999 Report Share Posted April 28, 1999 Thanks for the info. I was just curious if any of you have had any of these tests that Hemex offers, or the Great Smokies Lab?? Im thinking of asking my doc about them, but would like some " first hand " information as well as what the web sites say. Thanks - Michele U. ------------------------------------- --- GAILRONDA@... wrote: > From: GAILRONDA@... > > In a message dated 4/27/99 6:47:16 PM Eastern > Daylight Time, > theocean@... writes: > > << I havent had any test done by Hemex, but I am > thinking > > aboout getting some labwork done. I was > wondering > > what test you were referring to?? >> > Michlle, if you want the test for DIC (disseminated > intra-vascular > coagulation), go to the website (hemex.com) and it > has it there. They look > for a low (and lately, moderate) level of the > problem that doesn't allow > correct circulation, etc. > > ------------------------------------------------------------------------ > Did you know that we add over 1,000 new e-mail > communities every day? > http://www.ONElist.com > Explore a new hobby, discover a new friend, laugh at > a new joke! > ------------------------------------------------------------------------ > This list is intended for patients to share personal > experiences with each other, not to give medical > advice. If you are interested in any treatment > discussed here, please consult your doctor. > _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 1999 Report Share Posted May 29, 1999 In a message dated 5/29/99 5:24:17 PM Eastern Daylight Time, penn@... writes: << I forgot to ask you. Have you heard any significant details of how the patients in the Boston area who are on the heparin-coumadin protocol are faring? >> It's just a week to a week and one-half for most, so it's too early to tell. There were no adverse side effects so far, though. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2000 Report Share Posted September 23, 2000 Mike, Do you remember anything about how quickly we're supposed to bleed. I am considering getting an ISAC, but I bleed quite easily, while shaving for example. Also, nurses have no problem getting blood draws. Do these factors lessen the likelihood I have ISAC? Maybe Ken could provide some input if he reads this message. Steve Bullock Hemex > > Before getting a ISAC panel form Hemex, why not do a simple > coagulation test. That would be to stick yourself and then to see > how quickly (or slowly) you stop bleeding. I had this done once > and I know there are standards with which to make a determination. > I think I had mine before nasal surgery because I had taken some > aspirin or something. Just a thought. > > Mike > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2000 Report Share Posted September 23, 2000 Excellent suggestion - but remember this is a ONE WAY test... if you are very slow to bleed than you have coagulation IF you are quick to bleed, you can still have a DIFFERENT form of hypercoagulation... The other way is looking at your SED- if it is 0-4 than you likely have hypercoagulation (again a high SED does not exclude hypercoagulation) M Lassesen, M.S. ex " Dr.Gui (MSDN) " , " Dr. VB " cv: http://www.folkarts.com/kenl/ KenL@... Phone: 360 297.4717 Cell: 360 509.8970 Fax 520 832.6836 ----- Original Message ----- From: Mike Before getting a ISAC panel form Hemex, why not do a simple coagulation test. That would be to stick yourself and then to see how quickly (or slowly) you stop bleeding. I had this done once and I know there are standards with which to make a determination. I think I had mine before nasal surgery because I had taken some aspirin or something. Just a thought. Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2000 Report Share Posted September 23, 2000 In a message dated 9/23/00 11:32:09 AM Pacific Daylight Time, mcamp10139@... writes: << Before getting a ISAC panel form Hemex, why not do a simple coagulation test. That would be to stick yourself and then to see how quickly (or slowly) you stop bleeding. I had this done once and I know there are standards with which to make a determination. I think I had mine before nasal surgery because I had taken some aspirin or something. Just a thought. >> This might not be such a good idea because I did exactly this. I bled pretty good so I thought I must not be coagulated.......I was very wrong! I just got back my HEMEX panel and I am very coagulated. So please if you aren't sure get the test. karen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2000 Report Share Posted September 23, 2000 Mike, I too am a little skeptical of Hemex. They do have a financial incentive in getting as many people as possible to get their test done. Nevertheless, I think I'm going to give it a try. Steve B. Re: Hemex > > This is my point. I am skeptical of Hemex. THey seem to find > hypercoag in almost everyone. We have had this discussion before > so no need in rehashing 'facts'. For ME, I would just rather > take bromelain since it is a digestive aid. > > Mike > > > > In a message dated 9/23/00 11:32:09 AM Pacific Daylight Time, > > mcamp10139@a... writes: > > > > << > > Before getting a ISAC panel form Hemex, why not do a simple > > coagulation test. That would be to stick yourself and then to see > > how quickly (or slowly) you stop bleeding. I had this done once > > and I know there are standards with which to make a determination. > > I think I had mine before nasal surgery because I had taken some > > aspirin or something. Just a thought. > > >> > > > > > > This might not be such a good idea because I did exactly this. I > bled pretty > > good so I thought I must not be coagulated.......I was very wrong! > I just > > got back my HEMEX panel and I am very coagulated. So please if you > aren't > > sure get the test. karen > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2000 Report Share Posted September 23, 2000 In a message dated 9/23/00 7:34:58 PM Pacific Daylight Time, mcamp10139@... writes: << This is my point. I am skeptical of Hemex. THey seem to find hypercoag in almost everyone. We have had this discussion before so no need in rehashing 'facts'. For ME, I would just rather take bromelain since it is a digestive aid. Mike >> Hi Mike, I was wondering about that as well. Did you take the test? I also wonder about that LUAT test from Igenex for Lyme disease. By the way, I just tested positive for ISAC by Hemex. Has anyone tested negative on this list? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2000 Report Share Posted September 23, 2000 This is my point. I am skeptical of Hemex. THey seem to find hypercoag in almost everyone. We have had this discussion before so no need in rehashing 'facts'. For ME, I would just rather take bromelain since it is a digestive aid. Mike > In a message dated 9/23/00 11:32:09 AM Pacific Daylight Time, > mcamp10139@a... writes: > > << > Before getting a ISAC panel form Hemex, why not do a simple > coagulation test. That would be to stick yourself and then to see > how quickly (or slowly) you stop bleeding. I had this done once > and I know there are standards with which to make a determination. > I think I had mine before nasal surgery because I had taken some > aspirin or something. Just a thought. > >> > > > This might not be such a good idea because I did exactly this. I bled pretty > good so I thought I must not be coagulated.......I was very wrong! I just > got back my HEMEX panel and I am very coagulated. So please if you aren't > sure get the test. karen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2000 Report Share Posted September 23, 2000 No, sorry, Steve, I don't remember. But I think it is a pretty standard test where you are pricked by one of those little silver things to get a drop of blood from your finger, and if you stop bleeding within one minute or so then you are OK for surgery. But as someone just posted, Hemex will probably find something wrong even if you bled for ten minutes! > Mike, > > Do you remember anything about how quickly we're supposed to bleed. I am > considering getting an ISAC, but I bleed quite easily, while shaving for > example. Also, nurses have no problem getting blood draws. Do these > factors lessen the likelihood I have ISAC? Maybe Ken could provide some > input if he reads this message. Steve Bullock > Hemex > > > > > > Before getting a ISAC panel form Hemex, why not do a simple > > coagulation test. That would be to stick yourself and then to see > > how quickly (or slowly) you stop bleeding. I had this done once > > and I know there are standards with which to make a determination. > > I think I had mine before nasal surgery because I had taken some > > aspirin or something. Just a thought. > > > > Mike > > > > > > This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2000 Report Share Posted September 24, 2000 I'm missing something here. What is Hemex and what about platelet aggregation? Are some people deveoping DIC from sepsis or what? When I first got sick, my platelets were high but I was bleeding and bruising easily. The doc was really puzzled about it. Mentioned they were slightly mishapen but didn't have any ideas about what might have caused it. And with all the other problems that came along, I pretty much forgot about it. Any ideas? Be Well, > > > In a message dated 9/23/00 11:32:09 AM Pacific Daylight Time, > > > mcamp10139@a... writes: > > > > > > << > > > Before getting a ISAC panel form Hemex, why not do a simple > > > coagulation test. That would be to stick yourself and then to see > > > how quickly (or slowly) you stop bleeding. I had this done once > > > and I know there are standards with which to make a determination. > > > I think I had mine before nasal surgery because I had taken some > > > aspirin or something. Just a thought. > > > >> > > > > > > > > > This might not be such a good idea because I did exactly this. I > > bled pretty > > > good so I thought I must not be coagulated.......I was very wrong! > > I just > > > got back my HEMEX panel and I am very coagulated. So please if you > > aren't > > > sure get the test. karen > > > > > > This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2000 Report Share Posted September 24, 2000 Uma, Are you taking atenolol or another calcium channel blocker? I was just wondering if that may be lowering your BP. 68 over 57 (if that's your BP and not your pulse rate; I think you have typo in message), you must have trouble just maintaining conciousness. I have had raynauds/dysautonomia 22 years; it preceded my first fatigue symptoms by 12-13 years. Only thing that has helped reduce dysautonomia symptoms for me is the bounce-back chair. Steve B. Re: Hemex > > Hi Mike, > > My Hemex test came out normal recently, but my NMH > (dysautonomia) is really kicking up and starting to cause heart > problems. Not currently in a relapse cycle. Heart beat is 48 BPM. > resting pulse is 68 over 57 or right near that range. Definitely got > the blood problems but no hypercoagulable state now like I did > in the early years with the black blood that wouldn't bleed. Uma > > > > > > In a message dated 9/23/00 11:32:09 AM Pacific Daylight > Time, > > > mcamp10139@a... writes: > > > > > > << > > > Before getting a ISAC panel form Hemex, why not do a > simple > > > coagulation test. That would be to stick yourself and then to > see > > > how quickly (or slowly) you stop bleeding. I had this done > once > > > and I know there are standards with which to make a > determination. > > > I think I had mine before nasal surgery because I had taken > some > > > aspirin or something. Just a thought. > > > >> > > > > > > > > > This might not be such a good idea because I did exactly > this. I > > bled pretty > > > good so I thought I must not be coagulated.......I was very > wrong! > > I just > > > got back my HEMEX panel and I am very coagulated. So > please if you > > aren't > > > sure get the test. karen > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2000 Report Share Posted September 24, 2000 Hi Mike, My Hemex test came out normal recently, but my NMH (dysautonomia) is really kicking up and starting to cause heart problems. Not currently in a relapse cycle. Heart beat is 48 BPM. resting pulse is 68 over 57 or right near that range. Definitely got the blood problems but no hypercoagulable state now like I did in the early years with the black blood that wouldn't bleed. Uma > > In a message dated 9/23/00 11:32:09 AM Pacific Daylight Time, > > mcamp10139@a... writes: > > > > << > > Before getting a ISAC panel form Hemex, why not do a simple > > coagulation test. That would be to stick yourself and then to see > > how quickly (or slowly) you stop bleeding. I had this done once > > and I know there are standards with which to make a determination. > > I think I had mine before nasal surgery because I had taken some > > aspirin or something. Just a thought. > > >> > > > > > > This might not be such a good idea because I did exactly this. I > bled pretty > > good so I thought I must not be coagulated.......I was very wrong! > I just > > got back my HEMEX panel and I am very coagulated. So please if you > aren't > > sure get the test. karen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2000 Report Share Posted September 24, 2000 In a message dated 9/23/2000 1:32:01 PM Central Daylight Time, mcamp10139@... writes: > > Before getting a ISAC panel form Hemex, why not do a simple > coagulation test. That would be to stick yourself and then to see > how quickly (or slowly) you stop bleeding. I had this done once > and I know there are standards with which to make a determination. > I think I had mine before nasal surgery because I had taken some > aspirin or something. Just a thought. > Mike, This test doesn't count. what hypercoag means is that you clot, bust the clot and then reclot, distributing fibrin in abundance to clog up the tiny capillaries, which lead to..... The most common occurance of a hypercoag state would be bruising, for nothing. Large knotted bruises that you don't remember getting and they stay and stay and take forever to go away. If you are hypercoag and have deep tissue surgery --without knowing you have this condition,--- you can bleed out. Don't mean to be scary, but this is the case. What happens is that initially you will start to heal, but that healing will be imperfect and bleeding will start again and again and again... same reason your bruises don't go away, but this will be on a gigantic scale. To have a slow clotting time, the way you have explained it means that your blood is extremely thin, just the opposite of hyper coag " thick blood " . You will probably have mishappen or fewer platlets than you should... which if aspirin or some other agent is not involved, look for a blood pool disorder. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2000 Report Share Posted November 15, 2000 Anything that mentions a " cure " catches my eye! Steve, have you tried this protocol yet? And have any others on the list tried it with major results? I find this even more interesting because I was tested way back in MAY, and my results seem to be in limbo. My doctor's office never got them and the labs can't seem to find them either. It frustrates me because it takes so much out of me to go for blood work, I don't want to have to venture out again for a retest! But if we're talking " cure, " it might be worth it?! Laurel ------------------- In a message dated 11/15/2000 2:02:46 AM US Mountain Standard Time, egroups writes: << Message: 2 Date: Tue, 14 Nov 2000 16:59:38 -0800 From: " R. Bullock " <bullocks@...> Subject: Re: Ellen, regarding Cheney Ellen, It was well worth the money. However, before you arrange to see Cheney or any other CFS/FMS specialist, I would recommend you get an ISAC test done. If you test positive on the ISAC (www.hemex.com), Berg's protocol may be more direct, effective, and has the potential to cure the illness vs. lessen the symptoms. Steve B. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2001 Report Share Posted May 3, 2001 Madeleine wrote: .... it has to do with hypercoagulation of the blood and the heparin clears out the gunk allowing better access to the bugs by the abx and a quicker treatment period ... Hi All, Please let me refer you to IMMUNE SYSTEM ACTIVATION of COAGULATION (ISAC) Blood Coagulation and Fibrinolysis 1999: 10 435-438. You can read the article at http://www.centurytel.net/tjs11/bug/l8.htm Because I have atrial fibrillation, I take 10 mg coumadin every day (along with my 5 aspirins). My last Bowen result (a month ago) showed no Erlichiosis and also a greater reduction in spirochete concentration (in the blood) than any other family member. Jack Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2001 Report Share Posted May 3, 2001 Madeleine, I'm familiar witth the reasoning, I have tried to talk about hypercoadulation pbs with Lyme on several Lyme forums but nobody seemed very interested. I had coag tests done (not Hemex, I'm in France) but all was OK except fibrinogen which was slightly elevated. I am taking bromelain but I have to be careful as I get more spontaneous bruising when I'm on it so I don't take it all the time. Nelly (on cfs lists as well) > > Anyway I was wondering if anyone has had the Hemex Labs (Dave Berg.) > ISAC panel and if any of you are taking heparin. I don't know if I > can explain it accurately for anyone not familiar with this but it > has to do with hypercoagulation of the blood and the heparin clears > out the gunk allowing better access to the bugs by the abx and a > quicker treatment period. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 Hope, Thank you SO MUCH for your post re: HEMEX. My husband has a genetic clotting defect and I was able to convince the doc to order the Lovenox instead of the coumadin. He had to anticoagulate for 6 months. My concern about this therapy is that Coumadin is a nasty drug, and interacts with just about everything under the sun - most other drugs, foods, herbs, etc. Did you have any trouble getting insurance to cover the Lovenox? It is soooooo expensive! Thanks again for sharing this - I am very interested in this. Here's a question for the whole group - Any6one have an opinion or personal experience with Chelation Therapy? Take care, NurseDeb Quote Link to comment Share on other sites More sharing options...
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