New to this

[Guest guest]

Hi Haley

Many peds refer out without a second opinion, and CT will give you

an honest evaluation. They are the most experienced people in

banding babies.

You should not feel guilty, b/c it's not something you did wrong.

Many kids spend the entire infanthood on their backs, and never

develope plagio, and some spend limited time on their backs, and

still develope this condition. Let us know how the eval goes.

Check with your insurance about the band, and then find out if you

should wait for a preauth, or it might not make a difference.

Sandy Willow's Mom

Cranio Germany Grad

Tort resolved

http://www.geocities.com/samipa74/Willow_Lanette.html

--- In Plagiocephaly , " haley379 " <haley379@y...>

wrote:

>

> Hi Everyone,

> My daughter is a little over 6 mo. old and at her last well visit,

her ped. referred

> me to Cranial Technologies in Chicago. (We're from Illinois). I

knew her head

> was flatter in the back but I guess I didn't realize how much. I

feel sooo guilty.

> I feel like it's my fault for letting her be on her back too

much. I have a few

> questions for anyone that could help...Has anyone else had only

their

> pediatrician refer them to get a DOC Band? Should I get a second

opinion

> before I go through with it? like from a pediatric neurosurgeon?

Also, does

> anyone know of any long term effects or has anyone had any

negative

> experiences with this? Most of the stuff I've read has been

positive but I want

> to make sure before I go through with it. Thanks!

> Haley

[Guest guest]

Hi Haley, I am just catching up on my replies. I see that you have

gotten a lot of good advice so far. Everything I would have said

has already been said. SO I will simply say welcome to the group.

Becky, mom to , repo grad in Pgh, PA

> > Hi! I too have a six month old daughter and her ped. refered us

to CT in

> Charlotte.. Had casting done last friday, so i'm new at this too

and nervous....

> >

> > Christy

[Guest guest]

Hello and welcome. Where do you live? there are many options out

there. The company that first made cranial bands is called Cranial

Technologies and they have many offices around the country. In

addition to this company, there are other companies, STARBand (they

have offices everywhere as the helmet is art of OrthoAmerica (a big

company) and there are orthotists all over that can do the

adjustments for them. There are also Hanger Helmets, Danmar

helmets, and other proprietary helmets. You CAN get help. We were

referred to Cranial tech by my pediatrician. We just had our

casting this week and are waiting for our DOC band. You will want

to look into this really soon if your son is already 6 months. The

earlier you intervene, the better.

--- In Plagiocephaly , " chrliscal1 " <chrliscal1@y...>

wrote:

> hi everyone,

> my name is lisa and my son callum is almost 6 months old. i have

been

> concerned about the shape of his head since he was born. it was a

very

> long labour 53 hours and they told me he was stuck and that i

would

> have to have a c section, there were concerns anyway befor the

labour

> as i had fracted my pelvis when i was 13, id been for a scan while

i

> was pregnant and had seen a specialist who told me that the

outlets

> of my pelvis were small but to try for a natural birth and see

what

> would happen my husband (chris) and i were informed that no harm

would

> come to the baby! when he was born he was battered and bruised and

his

> head was in the shape of a cone. now his head is flattened at one

side

> (the left), hes had an x ray and there is no cranial concerns, ive

now

> been refered to a pedatrician but what do i do next i'm a little

> cofused and quite upset i just felt i needed to talk to people

whomay

> know what i am going through.

>

> thanks and hope to hear from someone soon lisa x

[Guest guest]

,

Hello and welcome! I see that Christie has already provided you with

great info. so I won't waste your time repeating it. We all here know

what it is like to be in your position and it can be so confusing.

Please feel free to ask all the questions you need to, vent out your

frustrations and just share some great new baby stories, we have a

chat here twice weekly on Mondays and Fridays at 1:00pm and 10:00pm

est, and someone is usually on this board at all hours to help. I

wish you the best experiences as you embark on your journey through

the world of plagiocephaly,

CAROLG

--- In Plagiocephaly , " chrliscal1 " <chrliscal1@y...>

wrote:

> hi everyone,

> my name is lisa and my son callum is almost 6 months old. i have

been

> concerned about the shape of his head since he was born. it was a

very

> long labour 53 hours and they told me he was stuck and that i would

> have to have a c section, there were concerns anyway befor the

labour

> as i had fracted my pelvis when i was 13, id been for a scan while

i

> was pregnant and had seen a specialist who told me that the

outlets

> of my pelvis were small but to try for a natural birth and see what

> would happen my husband (chris) and i were informed that no harm

would

> come to the baby! when he was born he was battered and bruised and

his

> head was in the shape of a cone. now his head is flattened at one

side

> (the left), hes had an x ray and there is no cranial concerns, ive

now

> been refered to a pedatrician but what do i do next i'm a little

> cofused and quite upset i just felt i needed to talk to people

whomay

> know what i am going through.

>

> thanks and hope to hear from someone soon lisa x

[Guest guest]

,

Hello and welcome! I see that Christie has already provided you with

great info. so I won't waste your time repeating it. We all here know

what it is like to be in your position and it can be so confusing.

Please feel free to ask all the questions you need to, vent out your

frustrations and just share some great new baby stories, we have a

chat here twice weekly on Mondays and Fridays at 1:00pm and 10:00pm

est, and someone is usually on this board at all hours to help. I

wish you the best experiences as you embark on your journey through

the world of plagiocephaly,

CAROLG

--- In Plagiocephaly , " chrliscal1 " <chrliscal1@y...>

wrote:

> hi everyone,

> my name is lisa and my son callum is almost 6 months old. i have

been

> concerned about the shape of his head since he was born. it was a

very

> long labour 53 hours and they told me he was stuck and that i would

> have to have a c section, there were concerns anyway befor the

labour

> as i had fracted my pelvis when i was 13, id been for a scan while

i

> was pregnant and had seen a specialist who told me that the

outlets

> of my pelvis were small but to try for a natural birth and see what

> would happen my husband (chris) and i were informed that no harm

would

> come to the baby! when he was born he was battered and bruised and

his

> head was in the shape of a cone. now his head is flattened at one

side

> (the left), hes had an x ray and there is no cranial concerns, ive

now

> been refered to a pedatrician but what do i do next i'm a little

> cofused and quite upset i just felt i needed to talk to people

whomay

> know what i am going through.

>

> thanks and hope to hear from someone soon lisa x

[Guest guest]

Hello and Welcome,

I too am new to this but know that you are in the right place. I am sorry to hear about all you have been going through but you are doing the right think. Just make sure you stick with it and let the Dr's know that you don't want to continue to Wait. My daughter is 8 months old and I have been worried about the shape of her head since she was 2 months old I kept getting blown off. but finally after me seeing another Dr I did get to see the plastic surgery team who said she would not improve any with continue repo. so we are being casted next week for our helmet. I wish I would have gotten more opinions at the start. So if the new Dr tells you to wait ask for another opinion. It won't hurt. But you are here now and there are ALOT of people here to help with any questions.. Your not alone and you are doing the right thing for you little one. Well keep us posted.

Cheryl

Mother of McKenzie 8 monthschrliscal1 <chrliscal1@...> wrote:

hi everyone,my name is lisa and my son callum is almost 6 months old. i have been concerned about the shape of his head since he was born. it was a very long labour 53 hours and they told me he was stuck and that i would have to have a c section, there were concerns anyway befor the labour as i had fracted my pelvis when i was 13, id been for a scan while i was pregnant and had seen a specialist who told me that the outlets of my pelvis were small but to try for a natural birth and see what would happen my husband (chris) and i were informed that no harm would come to the baby! when he was born he was battered and bruised and his head was in the shape of a cone. now his head is flattened at one side (the left), hes had an x ray and there is no cranial concerns, ive now been refered to a pedatrician but what do i do next

i'm a little cofused and quite upset i just felt i needed to talk to people whomay know what i am going through.thanks and hope to hear from someone soon lisa x For more plagio info

[Guest guest]

Hello and Welcome,

I too am new to this but know that you are in the right place. I am sorry to hear about all you have been going through but you are doing the right think. Just make sure you stick with it and let the Dr's know that you don't want to continue to Wait. My daughter is 8 months old and I have been worried about the shape of her head since she was 2 months old I kept getting blown off. but finally after me seeing another Dr I did get to see the plastic surgery team who said she would not improve any with continue repo. so we are being casted next week for our helmet. I wish I would have gotten more opinions at the start. So if the new Dr tells you to wait ask for another opinion. It won't hurt. But you are here now and there are ALOT of people here to help with any questions.. Your not alone and you are doing the right thing for you little one. Well keep us posted.

Cheryl

Mother of McKenzie 8 monthschrliscal1 <chrliscal1@...> wrote:

hi everyone,my name is lisa and my son callum is almost 6 months old. i have been concerned about the shape of his head since he was born. it was a very long labour 53 hours and they told me he was stuck and that i would have to have a c section, there were concerns anyway befor the labour as i had fracted my pelvis when i was 13, id been for a scan while i was pregnant and had seen a specialist who told me that the outlets of my pelvis were small but to try for a natural birth and see what would happen my husband (chris) and i were informed that no harm would come to the baby! when he was born he was battered and bruised and his head was in the shape of a cone. now his head is flattened at one side (the left), hes had an x ray and there is no cranial concerns, ive now been refered to a pedatrician but what do i do next

i'm a little cofused and quite upset i just felt i needed to talk to people whomay know what i am going through.thanks and hope to hear from someone soon lisa x For more plagio info

[Guest guest]

thx cheryl its nice to know im not the only one going throuth this im just so confused at the moment keep thinking callum will just grow out of it but if he didn't i did nothing i would never forgive myself !Cheryl Ellis <abasket_2002@...> wrote:

Hello and Welcome,

I too am new to this but know that you are in the right place. I am sorry to hear about all you have been going through but you are doing the right think. Just make sure you stick with it and let the Dr's know that you don't want to continue to Wait. My daughter is 8 months old and I have been worried about the shape of her head since she was 2 months old I kept getting blown off. but finally after me seeing another Dr I did get to see the plastic surgery team who said she would not improve any with continue repo. so we are being casted next week for our helmet. I wish I would have gotten more opinions at the start. So if the new Dr tells you to wait ask for another opinion. It won't hurt. But you are here now and there are ALOT of people here to help with any questions.. Your not alone and you are doing the right thing for you little one. Well keep us posted.

Cheryl

Mother of McKenzie 8 monthschrliscal1 <chrliscal1@...> wrote:

hi everyone,my name is lisa and my son callum is almost 6 months old. i have been concerned about the shape of his head since he was born. it was a very long labour 53 hours and they told me he was stuck and that i would have to have a c section, there were concerns anyway befor the labour as i had fracted my pelvis when i was 13, id been for a scan while i was pregnant and had seen a specialist who told me that the outlets of my pelvis were small but to try for a natural birth and see what would happen my husband (chris) and i were informed that no harm would come to the baby! when he was born he was battered and bruised and his head was in the shape of a cone. now his head is flattened at one side (the left), hes had an x ray and there is no cranial concerns, ive now been refered to a pedatrician but what do i do next

i'm a little cofused and quite upset i just felt i needed to talk to people whomay know what i am going through.thanks and hope to hear from someone soon lisa x For more plagio info

[Guest guest]

thx cheryl its nice to know im not the only one going throuth this im just so confused at the moment keep thinking callum will just grow out of it but if he didn't i did nothing i would never forgive myself !Cheryl Ellis <abasket_2002@...> wrote:

Hello and Welcome,

I too am new to this but know that you are in the right place. I am sorry to hear about all you have been going through but you are doing the right think. Just make sure you stick with it and let the Dr's know that you don't want to continue to Wait. My daughter is 8 months old and I have been worried about the shape of her head since she was 2 months old I kept getting blown off. but finally after me seeing another Dr I did get to see the plastic surgery team who said she would not improve any with continue repo. so we are being casted next week for our helmet. I wish I would have gotten more opinions at the start. So if the new Dr tells you to wait ask for another opinion. It won't hurt. But you are here now and there are ALOT of people here to help with any questions.. Your not alone and you are doing the right thing for you little one. Well keep us posted.

Cheryl

Mother of McKenzie 8 monthschrliscal1 <chrliscal1@...> wrote:

hi everyone,my name is lisa and my son callum is almost 6 months old. i have been concerned about the shape of his head since he was born. it was a very long labour 53 hours and they told me he was stuck and that i would have to have a c section, there were concerns anyway befor the labour as i had fracted my pelvis when i was 13, id been for a scan while i was pregnant and had seen a specialist who told me that the outlets of my pelvis were small but to try for a natural birth and see what would happen my husband (chris) and i were informed that no harm would come to the baby! when he was born he was battered and bruised and his head was in the shape of a cone. now his head is flattened at one side (the left), hes had an x ray and there is no cranial concerns, ive now been refered to a pedatrician but what do i do next

i'm a little cofused and quite upset i just felt i needed to talk to people whomay know what i am going through.thanks and hope to hear from someone soon lisa x For more plagio info

[Guest guest]

thx cheryl its nice to know im not the only one going throuth this im just so confused at the moment keep thinking callum will just grow out of it but if he didn't i did nothing i would never forgive myself !Cheryl Ellis <abasket_2002@...> wrote:

Hello and Welcome,

I too am new to this but know that you are in the right place. I am sorry to hear about all you have been going through but you are doing the right think. Just make sure you stick with it and let the Dr's know that you don't want to continue to Wait. My daughter is 8 months old and I have been worried about the shape of her head since she was 2 months old I kept getting blown off. but finally after me seeing another Dr I did get to see the plastic surgery team who said she would not improve any with continue repo. so we are being casted next week for our helmet. I wish I would have gotten more opinions at the start. So if the new Dr tells you to wait ask for another opinion. It won't hurt. But you are here now and there are ALOT of people here to help with any questions.. Your not alone and you are doing the right thing for you little one. Well keep us posted.

Cheryl

Mother of McKenzie 8 monthschrliscal1 <chrliscal1@...> wrote:

hi everyone,my name is lisa and my son callum is almost 6 months old. i have been concerned about the shape of his head since he was born. it was a very long labour 53 hours and they told me he was stuck and that i would have to have a c section, there were concerns anyway befor the labour as i had fracted my pelvis when i was 13, id been for a scan while i was pregnant and had seen a specialist who told me that the outlets of my pelvis were small but to try for a natural birth and see what would happen my husband (chris) and i were informed that no harm would come to the baby! when he was born he was battered and bruised and his head was in the shape of a cone. now his head is flattened at one side (the left), hes had an x ray and there is no cranial concerns, ive now been refered to a pedatrician but what do i do next

i'm a little cofused and quite upset i just felt i needed to talk to people whomay know what i am going through.thanks and hope to hear from someone soon lisa x For more plagio info

[Guest guest]

thx cheryl its nice to know im not the only one going throuth this im just so confused at the moment keep thinking callum will just grow out of it but if he didn't i did nothing i would never forgive myself !Cheryl Ellis <abasket_2002@...> wrote:

Hello and Welcome,

I too am new to this but know that you are in the right place. I am sorry to hear about all you have been going through but you are doing the right think. Just make sure you stick with it and let the Dr's know that you don't want to continue to Wait. My daughter is 8 months old and I have been worried about the shape of her head since she was 2 months old I kept getting blown off. but finally after me seeing another Dr I did get to see the plastic surgery team who said she would not improve any with continue repo. so we are being casted next week for our helmet. I wish I would have gotten more opinions at the start. So if the new Dr tells you to wait ask for another opinion. It won't hurt. But you are here now and there are ALOT of people here to help with any questions.. Your not alone and you are doing the right thing for you little one. Well keep us posted.

Cheryl

Mother of McKenzie 8 monthschrliscal1 <chrliscal1@...> wrote:

hi everyone,my name is lisa and my son callum is almost 6 months old. i have been concerned about the shape of his head since he was born. it was a very long labour 53 hours and they told me he was stuck and that i would have to have a c section, there were concerns anyway befor the labour as i had fracted my pelvis when i was 13, id been for a scan while i was pregnant and had seen a specialist who told me that the outlets of my pelvis were small but to try for a natural birth and see what would happen my husband (chris) and i were informed that no harm would come to the baby! when he was born he was battered and bruised and his head was in the shape of a cone. now his head is flattened at one side (the left), hes had an x ray and there is no cranial concerns, ive now been refered to a pedatrician but what do i do next

i'm a little cofused and quite upset i just felt i needed to talk to people whomay know what i am going through.thanks and hope to hear from someone soon lisa x For more plagio info

[Guest guest]

Hi ,

Welcome to the group. I see from your email addy that you are from the UK. There are 2 great options in the UK. They are both listed in our database. Steve Mottram - Starband and Cranial Tech - DOC Band. You son most likely has some inuterine constraint issues. I'm not sure if the actual 53 hours of labor can cause the inuterine constraint - usually it's the weeks of being low in the pelvis. The regular cone head stuff usually disipates in 2-6 weeks. My 2nd daughter had some coronal suture overlap after delievery - totally freaked me out - but it was OK after 2 weeks. However the long labor and stressful delivery can cause tort or neck muscle tightness issues. Does he have full range of motion? Does he have any noticable tilt? The tort makes it difficult for them to change positions and then as they don't change head positions the flatness develops which makes it even harder - a visious cycle.

I'm sure one of our UK parents will chime in with all the specifics you will need to get started.

mom to na (2 yr) DOC Grad & Kiersten (6 weeks) Preventative Repo

www.thefilyaws.comchrliscal1 <chrliscal1@...> wrote:

hi everyone,my name is lisa and my son callum is almost 6 months old. i have been concerned about the shape of his head since he was born. it was a very long labour 53 hours and they told me he was stuck and that i would have to have a c section, there were concerns anyway befor the labour as i had fracted my pelvis when i was 13, id been for a scan while i was pregnant and had seen a specialist who told me that the outlets of my pelvis were small but to try for a natural birth and see what would happen my husband (chris) and i were informed that no harm would come to the baby! when he was born he was battered and bruised and his head was in the shape of a cone. now his head is flattened at one side (the left), hes had an x ray and there is no cranial concerns, ive now been refered to a pedatrician but what do i do next

i'm a little cofused and quite upset i just felt i needed to talk to people whomay know what i am going through.thanks and hope to hear from someone soon lisa x For more plagio info

[Guest guest]

Hi ,

Welcome to the group. I see from your email addy that you are from the UK. There are 2 great options in the UK. They are both listed in our database. Steve Mottram - Starband and Cranial Tech - DOC Band. You son most likely has some inuterine constraint issues. I'm not sure if the actual 53 hours of labor can cause the inuterine constraint - usually it's the weeks of being low in the pelvis. The regular cone head stuff usually disipates in 2-6 weeks. My 2nd daughter had some coronal suture overlap after delievery - totally freaked me out - but it was OK after 2 weeks. However the long labor and stressful delivery can cause tort or neck muscle tightness issues. Does he have full range of motion? Does he have any noticable tilt? The tort makes it difficult for them to change positions and then as they don't change head positions the flatness develops which makes it even harder - a visious cycle.

I'm sure one of our UK parents will chime in with all the specifics you will need to get started.

mom to na (2 yr) DOC Grad & Kiersten (6 weeks) Preventative Repo

www.thefilyaws.comchrliscal1 <chrliscal1@...> wrote:

hi everyone,my name is lisa and my son callum is almost 6 months old. i have been concerned about the shape of his head since he was born. it was a very long labour 53 hours and they told me he was stuck and that i would have to have a c section, there were concerns anyway befor the labour as i had fracted my pelvis when i was 13, id been for a scan while i was pregnant and had seen a specialist who told me that the outlets of my pelvis were small but to try for a natural birth and see what would happen my husband (chris) and i were informed that no harm would come to the baby! when he was born he was battered and bruised and his head was in the shape of a cone. now his head is flattened at one side (the left), hes had an x ray and there is no cranial concerns, ive now been refered to a pedatrician but what do i do next

i'm a little cofused and quite upset i just felt i needed to talk to people whomay know what i am going through.thanks and hope to hear from someone soon lisa x For more plagio info

[Guest guest]

Welcome to the group! What a rough ride your little one has had. I

have heard really good things about Harry Lawell's (I think)

orthotic group. Is that where you are going?

Natasha

--- In Plagiocephaly , " " <m.gianopulos@v...>

wrote:

> Hi everyone,

>

> I am new to this group and new to the idea of needing the helmet.

> Our short story.... Georgia is 6 1/2 mos old. She was a breech

> baby and at 9 weeks of age was diagnosed with developmental

> dysplasia of the hip. She wore a Pavlik harnass for nearly 4

months

> and we have just graduated from that at the end of July (we still

go

> to orthopedics on a regular basis for x-rays to monitor the growth

> of her hip socket). In the meantime, my husband and I noted on

the

> day that she was born that her head was assymeetrical. we were

told

> she would grow out of it. By 3 months of age I began to worry

about

> craniosynostosis (I am a pediatric nurse practitioner and know too

> much for my own sanity!!). We asked our ped to refer us to a

> plastic surgeon. Surgeon assured us that wasn't craniosynostosis

> but

> just result of breech positioning. We did positioning for 2

months

> (although difficult due to baby in pavlik harnass--only slept on

> back). Things are slowly improving but not yet normal. Went back

> yesterday for follow up. Luckily, Georgia's

> assymetry is probably very mild as most people are not aware of it

> until we show them. naturally, though, I am concerned about the

> possibility of it getting worse as she grows (told surgeon she

> doesn't need to be beauty queen but I don't want her to

look " funny "

> either.) He said our choices at this time are 1) do nothing, or

2)

> helmet therapy--our choice. We are choosing to pursue helmet

> therapy. Today we begin our journey. We have a casting

appointment

> today and the orthotist will seek pre-cert from insurance once she

> has measurements.

>

> Does anyone live in the Philadelphia, PA area? Anyone else have

> experience with our type of scenario (I see from many of the

recent

> posts that many families deal with torticollis as their

accompanying

> issue.). I don't know what type/brand helmet our orthotist uses.

> Does it matter or is it that some people like chocolate and some

> like vanilla??

>

> Any help as we start our journey is greatly appreciated. We are a

> little upset because we finally got rid of one medical brace only

to

> trade it for another. On the other hand, we know that this is

just

> a small bump in the road and are thankful that our daughter is

> healthy.

>

> Thank you in advance,

> (mom to Georgia, born 1/27/05, breech with hip dysplasia)

[Guest guest]

Our surgeon gave us a list of several groups. Harry Lavall was on

the list but one of the choices is significantly closer to our

home. We are seeing Kimura of Core Care. She uses

Starband. doesn't think we will have any insurance problems

(I am soooo thankful, I can see that many families struggle with the

insurance issue). We should receive our helmet within the next 2

weeks. Should be interesting. Georgia doesn't like hats, even as a

newborn she would cry when we put the knit cap on her head (maybe

she knows her head got squished in her tight uterine home!!!)

(mom to Georgia, casted yesterday for Starband, Phila, PA)

> > Hi everyone,

> >

> > I am new to this group and new to the idea of needing the

helmet.

> > Our short story.... Georgia is 6 1/2 mos old. She was a breech

> > baby and at 9 weeks of age was diagnosed with developmental

> > dysplasia of the hip. She wore a Pavlik harnass for nearly 4

> months

> > and we have just graduated from that at the end of July (we

still

> go

> > to orthopedics on a regular basis for x-rays to monitor the

growth

> > of her hip socket). In the meantime, my husband and I noted on

> the

> > day that she was born that her head was assymeetrical. we were

> told

> > she would grow out of it. By 3 months of age I began to worry

> about

> > craniosynostosis (I am a pediatric nurse practitioner and know

too

> > much for my own sanity!!). We asked our ped to refer us to a

> > plastic surgeon. Surgeon assured us that wasn't

craniosynostosis

> > but

> > just result of breech positioning. We did positioning for 2

> months

> > (although difficult due to baby in pavlik harnass--only slept on

> > back). Things are slowly improving but not yet normal. Went

back

> > yesterday for follow up. Luckily, Georgia's

> > assymetry is probably very mild as most people are not aware of

it

> > until we show them. naturally, though, I am concerned about the

> > possibility of it getting worse as she grows (told surgeon she

> > doesn't need to be beauty queen but I don't want her to

> look " funny "

> > either.) He said our choices at this time are 1) do nothing, or

> 2)

> > helmet therapy--our choice. We are choosing to pursue helmet

> > therapy. Today we begin our journey. We have a casting

> appointment

> > today and the orthotist will seek pre-cert from insurance once

she

> > has measurements.

> >

> > Does anyone live in the Philadelphia, PA area? Anyone else have

> > experience with our type of scenario (I see from many of the

> recent

> > posts that many families deal with torticollis as their

> accompanying

> > issue.). I don't know what type/brand helmet our orthotist

uses.

> > Does it matter or is it that some people like chocolate and some

> > like vanilla??

> >

> > Any help as we start our journey is greatly appreciated. We are

a

> > little upset because we finally got rid of one medical brace

only

> to

> > trade it for another. On the other hand, we know that this is

> just

> > a small bump in the road and are thankful that our daughter is

> > healthy.

> >

> > Thank you in advance,

> > (mom to Georgia, born 1/27/05, breech with hip dysplasia)

[Guest guest]

Our surgeon gave us a list of several groups. Harry Lavall was on

the list but one of the choices is significantly closer to our

home. We are seeing Kimura of Core Care. She uses

Starband. doesn't think we will have any insurance problems

(I am soooo thankful, I can see that many families struggle with the

insurance issue). We should receive our helmet within the next 2

weeks. Should be interesting. Georgia doesn't like hats, even as a

newborn she would cry when we put the knit cap on her head (maybe

she knows her head got squished in her tight uterine home!!!)

(mom to Georgia, casted yesterday for Starband, Phila, PA)

> > Hi everyone,

> >

> > I am new to this group and new to the idea of needing the

helmet.

> > Our short story.... Georgia is 6 1/2 mos old. She was a breech

> > baby and at 9 weeks of age was diagnosed with developmental

> > dysplasia of the hip. She wore a Pavlik harnass for nearly 4

> months

> > and we have just graduated from that at the end of July (we

still

> go

> > to orthopedics on a regular basis for x-rays to monitor the

growth

> > of her hip socket). In the meantime, my husband and I noted on

> the

> > day that she was born that her head was assymeetrical. we were

> told

> > she would grow out of it. By 3 months of age I began to worry

> about

> > craniosynostosis (I am a pediatric nurse practitioner and know

too

> > much for my own sanity!!). We asked our ped to refer us to a

> > plastic surgeon. Surgeon assured us that wasn't

craniosynostosis

> > but

> > just result of breech positioning. We did positioning for 2

> months

> > (although difficult due to baby in pavlik harnass--only slept on

> > back). Things are slowly improving but not yet normal. Went

back

> > yesterday for follow up. Luckily, Georgia's

> > assymetry is probably very mild as most people are not aware of

it

> > until we show them. naturally, though, I am concerned about the

> > possibility of it getting worse as she grows (told surgeon she

> > doesn't need to be beauty queen but I don't want her to

> look " funny "

> > either.) He said our choices at this time are 1) do nothing, or

> 2)

> > helmet therapy--our choice. We are choosing to pursue helmet

> > therapy. Today we begin our journey. We have a casting

> appointment

> > today and the orthotist will seek pre-cert from insurance once

she

> > has measurements.

> >

> > Does anyone live in the Philadelphia, PA area? Anyone else have

> > experience with our type of scenario (I see from many of the

> recent

> > posts that many families deal with torticollis as their

> accompanying

> > issue.). I don't know what type/brand helmet our orthotist

uses.

> > Does it matter or is it that some people like chocolate and some

> > like vanilla??

> >

> > Any help as we start our journey is greatly appreciated. We are

a

> > little upset because we finally got rid of one medical brace

only

> to

> > trade it for another. On the other hand, we know that this is

> just

> > a small bump in the road and are thankful that our daughter is

> > healthy.

> >

> > Thank you in advance,

> > (mom to Georgia, born 1/27/05, breech with hip dysplasia)

[Guest guest]

Good luck with , I hope that she works out well with you

guys. My son hated hats but loved his DOC, you never know!! And my

non-plagio baby girl sleeps in a baseball cap everynight. Kids,

always a mystery!

Natasha

> > > Hi everyone,

> > >

> > > I am new to this group and new to the idea of needing the

> helmet.

> > > Our short story.... Georgia is 6 1/2 mos old. She was a

breech

> > > baby and at 9 weeks of age was diagnosed with developmental

> > > dysplasia of the hip. She wore a Pavlik harnass for nearly 4

> > months

> > > and we have just graduated from that at the end of July (we

> still

> > go

> > > to orthopedics on a regular basis for x-rays to monitor the

> growth

> > > of her hip socket). In the meantime, my husband and I noted

on

> > the

> > > day that she was born that her head was assymeetrical. we

were

> > told

> > > she would grow out of it. By 3 months of age I began to worry

> > about

> > > craniosynostosis (I am a pediatric nurse practitioner and know

> too

> > > much for my own sanity!!). We asked our ped to refer us to a

> > > plastic surgeon. Surgeon assured us that wasn't

> craniosynostosis

> > > but

> > > just result of breech positioning. We did positioning for 2

> > months

> > > (although difficult due to baby in pavlik harnass--only slept

on

> > > back). Things are slowly improving but not yet normal. Went

> back

> > > yesterday for follow up. Luckily, Georgia's

> > > assymetry is probably very mild as most people are not aware

of

> it

> > > until we show them. naturally, though, I am concerned about

the

> > > possibility of it getting worse as she grows (told surgeon she

> > > doesn't need to be beauty queen but I don't want her to

> > look " funny "

> > > either.) He said our choices at this time are 1) do nothing,

or

> > 2)

> > > helmet therapy--our choice. We are choosing to pursue helmet

> > > therapy. Today we begin our journey. We have a casting

> > appointment

> > > today and the orthotist will seek pre-cert from insurance once

> she

> > > has measurements.

> > >

> > > Does anyone live in the Philadelphia, PA area? Anyone else

have

> > > experience with our type of scenario (I see from many of the

> > recent

> > > posts that many families deal with torticollis as their

> > accompanying

> > > issue.). I don't know what type/brand helmet our orthotist

> uses.

> > > Does it matter or is it that some people like chocolate and

some

> > > like vanilla??

> > >

> > > Any help as we start our journey is greatly appreciated. We

are

> a

> > > little upset because we finally got rid of one medical brace

> only

> > to

> > > trade it for another. On the other hand, we know that this is

> > just

> > > a small bump in the road and are thankful that our daughter is

> > > healthy.

> > >

> > > Thank you in advance,

> > > (mom to Georgia, born 1/27/05, breech with hip

dysplasia)

[Guest guest]

Good luck with , I hope that she works out well with you

guys. My son hated hats but loved his DOC, you never know!! And my

non-plagio baby girl sleeps in a baseball cap everynight. Kids,

always a mystery!

Natasha

> > > Hi everyone,

> > >

> > > I am new to this group and new to the idea of needing the

> helmet.

> > > Our short story.... Georgia is 6 1/2 mos old. She was a

breech

> > > baby and at 9 weeks of age was diagnosed with developmental

> > > dysplasia of the hip. She wore a Pavlik harnass for nearly 4

> > months

> > > and we have just graduated from that at the end of July (we

> still

> > go

> > > to orthopedics on a regular basis for x-rays to monitor the

> growth

> > > of her hip socket). In the meantime, my husband and I noted

on

> > the

> > > day that she was born that her head was assymeetrical. we

were

> > told

> > > she would grow out of it. By 3 months of age I began to worry

> > about

> > > craniosynostosis (I am a pediatric nurse practitioner and know

> too

> > > much for my own sanity!!). We asked our ped to refer us to a

> > > plastic surgeon. Surgeon assured us that wasn't

> craniosynostosis

> > > but

> > > just result of breech positioning. We did positioning for 2

> > months

> > > (although difficult due to baby in pavlik harnass--only slept

on

> > > back). Things are slowly improving but not yet normal. Went

> back

> > > yesterday for follow up. Luckily, Georgia's

> > > assymetry is probably very mild as most people are not aware

of

> it

> > > until we show them. naturally, though, I am concerned about

the

> > > possibility of it getting worse as she grows (told surgeon she

> > > doesn't need to be beauty queen but I don't want her to

> > look " funny "

> > > either.) He said our choices at this time are 1) do nothing,

or

> > 2)

> > > helmet therapy--our choice. We are choosing to pursue helmet

> > > therapy. Today we begin our journey. We have a casting

> > appointment

> > > today and the orthotist will seek pre-cert from insurance once

> she

> > > has measurements.

> > >

> > > Does anyone live in the Philadelphia, PA area? Anyone else

have

> > > experience with our type of scenario (I see from many of the

> > recent

> > > posts that many families deal with torticollis as their

> > accompanying

> > > issue.). I don't know what type/brand helmet our orthotist

> uses.

> > > Does it matter or is it that some people like chocolate and

some

> > > like vanilla??

> > >

> > > Any help as we start our journey is greatly appreciated. We

are

> a

> > > little upset because we finally got rid of one medical brace

> only

> > to

> > > trade it for another. On the other hand, we know that this is

> > just

> > > a small bump in the road and are thankful that our daughter is

> > > healthy.

> > >

> > > Thank you in advance,

> > > (mom to Georgia, born 1/27/05, breech with hip

dysplasia)

[Guest guest]

We started our seven year old daughter on Omega 3-6-9 Nordic Naturals (I

prick the edible capsule and squeeze the juice in her mouth) once a day. We

started Oct 1 and within 3 days saw a dramatic increase in attempts to try

new sounds and ease in making new words. Yes she seemed more animated and

lively and I am wondering if the fish oils helped relieve some of her self

conscienceness...It has ebbed off some now but she still is working on words

every day..Right now one she has chosen to conquer the word quiet...She

loves the Munschs CD with kids stories and we must listen each time

we are in the car. Many nites the little princess goes to sleep trying over

and over to say a word she is determinded to learn. I also want to thank

this site for helping work thru a situation with her need to lick items!!!!

I had a terrible time with it in El Salvador when we were awaiting the

adoption papers to become final....Well not realizing why it went away these

past two years till about 2.5 weeks ago. It started up again and I read the

message on this site about possible zinc shortage. I checked the Flintstone

vitamins with extra calcium I had just switched her to and found they

contained no zinc where as the Flintstone Complete had contained zinc. Now a

week after starting her back on the Flintstone Complete the licking has

virtually stopped. Chastizing and redirecting a child on this does not work

as they are not even aware they are doing this behavior. Sure am glad this

site is here!!!!!

's Mom

_____

From:

[mailto: ] On Behalf Of effiepapp

Sent: Wednesday, November 23, 2005 1:23 PM

Subject: [ ] New to this

My 2 and a half year old daughter has recently been diagnosed with

apraxia (she's non-verbal, only a and o sounds. She has been on EFA

supplements for 10 days now. I would like to know if most parents

actually do see results after giving their children these fish oils?

And if so, what is the time span? I'd appreciate any advice.

[Guest guest]

Is your son getting a helmet? This group is great for support. Welcome!

godsgirlmistieful2000 <bauffie@...> wrote:

My now 9 month old started out by always sleeping to one side we kept telling the doctor but she didn't think anything of it since we was developing normally. Finally I confronted her with it and she examined his neck this would have been when he was about 4 months old and found out one neck muscle hadn't developed right. He was breach until the day before they induced me and his head was up by my ribs the whole time pressing against them so I could see why his neck was off. We went to a physical therapist and started doing exercises to straighten out that side and it worked. His head was so much better but than it stopped getting better so we saw a pediatrician today and found out we have to go to a specialist in Des Moines to see what can be done to finish the leveling out as I call it. I'm just glad there is a support out

there. When I got out of the doctor's office I called the moms (my mom and my m-i-l) and they gave me such great support but they don't know what I'm going through. How could they understand but you all do so thank you for letting me ramble because it means alot to me. Merry Christmas everyone!

[Guest guest]

Is your son getting a helmet? This group is great for support. Welcome!

godsgirlmistieful2000 <bauffie@...> wrote:

My now 9 month old started out by always sleeping to one side we kept telling the doctor but she didn't think anything of it since we was developing normally. Finally I confronted her with it and she examined his neck this would have been when he was about 4 months old and found out one neck muscle hadn't developed right. He was breach until the day before they induced me and his head was up by my ribs the whole time pressing against them so I could see why his neck was off. We went to a physical therapist and started doing exercises to straighten out that side and it worked. His head was so much better but than it stopped getting better so we saw a pediatrician today and found out we have to go to a specialist in Des Moines to see what can be done to finish the leveling out as I call it. I'm just glad there is a support out

there. When I got out of the doctor's office I called the moms (my mom and my m-i-l) and they gave me such great support but they don't know what I'm going through. How could they understand but you all do so thank you for letting me ramble because it means alot to me. Merry Christmas everyone!

[Guest guest]

Kathleen,Please don't beat yourself up over this. We have all been where you are now. How could you do anything when no one told you how to prevent this and even worse your trusted medical professionl tells you it will all be ok. You are doing what a good mommy does by researching and pushing forward to help your little girl. 4.5 months is a great age to have caught the plagio. You have many options including aggressive repo. We have many sucessful repo babies here and lots of repo help if needed. Even if you decide to band you can repo right up until the band to prevent it from getting worse and possibly lessen the severity and thus shortening time in a band. The x-rays are to help rule out craniosynostosis( a fusing of the sutures in the skull) and will help the nuero make his diagnosis. We have many members so if you post what area you are in and the name of the nuero, chances are that someone will be in your area. You might get someone who has used the same nuero and you will surely get members who will share who they used for banding in that area. Here is a link that can help you determine the babys' severity. Click here: severity assessment Sometimes it helps to get an idea of how the whole process works and you can look at my sons' website, My Banded Baby to read all about our journey. I have lots of info., progress pictures, and the whole process from diagnosis to completing banding treatment. Please feel free to email me with any questions. Welcome to our group, you are in a great place.

CAROLG

>> hi,> I am new to this group and very thankful to have found this site. My> daughter is 4.5 months old and we first noticed her flattening on the> right side at 2 months. Her pediatrician said that "all babies have> funny shaped heads" well, 2.5 months later its worse. I have been> terrified of SIDS and kept her on her back to sleep. We tried side> sleeping until I read a new article from the AMA saying that it was> just as dangerous as tummy sleeping for SIDS. We just went back to her> pediatrician for a second look at her head, and we got a referral to a> pediatric neurosurgeon for a consult. We see him next week. Had to get> x-rays taken of her skull before we go. We started aggressive> repositioning a week ago. I cannot get over the guilt. If only my> husband and I started aggressive repositioning at 2 months !! I> believed her dr. when she told me at 2 months my daughter's head would> eventually round out when she started holding her head up. I feel like> it is my fault she looks this way. From reading your site it seems> that she will most likely need a band, it doesn't seem that aggressive> repo helps most babies, although from the pictures I see that has> helped some. I feel like we have ruined our perfect beautiful little> baby girl. I feel so sad and guilty. Thank you for this site.> Kathleen.>

[Guest guest]

Kathleen,Please don't beat yourself up over this. We have all been where you are now. How could you do anything when no one told you how to prevent this and even worse your trusted medical professionl tells you it will all be ok. You are doing what a good mommy does by researching and pushing forward to help your little girl. 4.5 months is a great age to have caught the plagio. You have many options including aggressive repo. We have many sucessful repo babies here and lots of repo help if needed. Even if you decide to band you can repo right up until the band to prevent it from getting worse and possibly lessen the severity and thus shortening time in a band. The x-rays are to help rule out craniosynostosis( a fusing of the sutures in the skull) and will help the nuero make his diagnosis. We have many members so if you post what area you are in and the name of the nuero, chances are that someone will be in your area. You might get someone who has used the same nuero and you will surely get members who will share who they used for banding in that area. Here is a link that can help you determine the babys' severity. Click here: severity assessment Sometimes it helps to get an idea of how the whole process works and you can look at my sons' website, My Banded Baby to read all about our journey. I have lots of info., progress pictures, and the whole process from diagnosis to completing banding treatment. Please feel free to email me with any questions. Welcome to our group, you are in a great place.

CAROLG

>> hi,> I am new to this group and very thankful to have found this site. My> daughter is 4.5 months old and we first noticed her flattening on the> right side at 2 months. Her pediatrician said that "all babies have> funny shaped heads" well, 2.5 months later its worse. I have been> terrified of SIDS and kept her on her back to sleep. We tried side> sleeping until I read a new article from the AMA saying that it was> just as dangerous as tummy sleeping for SIDS. We just went back to her> pediatrician for a second look at her head, and we got a referral to a> pediatric neurosurgeon for a consult. We see him next week. Had to get> x-rays taken of her skull before we go. We started aggressive> repositioning a week ago. I cannot get over the guilt. If only my> husband and I started aggressive repositioning at 2 months !! I> believed her dr. when she told me at 2 months my daughter's head would> eventually round out when she started holding her head up. I feel like> it is my fault she looks this way. From reading your site it seems> that she will most likely need a band, it doesn't seem that aggressive> repo helps most babies, although from the pictures I see that has> helped some. I feel like we have ruined our perfect beautiful little> baby girl. I feel so sad and guilty. Thank you for this site.> Kathleen.>

[Guest guest]

We noticed my son's head flattening at 6 weeks and our pediatrician

told us the same thing. We started aggressive repo and failed, but he

had torticollis, so we knew repo was unlikely to work. He wore 2 DOC

Bands and his head looks just perfect now. As Carol said, try not to

beat yourself up for this. Your daughter is very young and you have

plenty of options. Even if she ends up in a band or helmet, it

doesn't mean you ruined your baby's head. The important thing is that

you caught it early and you're doing something about it now. Your

little girl is very young and she should respond well to the

approriate treatment.

This group is wonderful and you'll get a lot of help and support from

all the moms.

Edina

Mom to Ethan - DOC Grad, tort resolved

> >

> > hi,

> > I am new to this group and very thankful to have found this site. My

> > daughter is 4.5 months old and we first noticed her flattening on the

> > right side at 2 months. Her pediatrician said that " all babies have

> > funny shaped heads " well, 2.5 months later its worse. I have been

> > terrified of SIDS and kept her on her back to sleep. We tried side

> > sleeping until I read a new article from the AMA saying that it was

> > just as dangerous as tummy sleeping for SIDS. We just went back to her

> > pediatrician for a second look at her head, and we got a referral to a

> > pediatric neurosurgeon for a consult. We see him next week. Had to get

> > x-rays taken of her skull before we go. We started aggressive

> > repositioning a week ago. I cannot get over the guilt. If only my

> > husband and I started aggressive repositioning at 2 months !! I

> > believed her dr. when she told me at 2 months my daughter's head would

> > eventually round out when she started holding her head up. I feel like

> > it is my fault she looks this way. From reading your site it seems

> > that she will most likely need a band, it doesn't seem that aggressive

> > repo helps most babies, although from the pictures I see that has

> > helped some. I feel like we have ruined our perfect beautiful little

> > baby girl. I feel so sad and guilty. Thank you for this site.

> > Kathleen.

> >

>

[Guest guest]

We noticed my son's head flattening at 6 weeks and our pediatrician

told us the same thing. We started aggressive repo and failed, but he

had torticollis, so we knew repo was unlikely to work. He wore 2 DOC

Bands and his head looks just perfect now. As Carol said, try not to

beat yourself up for this. Your daughter is very young and you have

plenty of options. Even if she ends up in a band or helmet, it

doesn't mean you ruined your baby's head. The important thing is that

you caught it early and you're doing something about it now. Your

little girl is very young and she should respond well to the

approriate treatment.

This group is wonderful and you'll get a lot of help and support from

all the moms.

Edina

Mom to Ethan - DOC Grad, tort resolved

> >

> > hi,

> > I am new to this group and very thankful to have found this site. My

> > daughter is 4.5 months old and we first noticed her flattening on the

> > right side at 2 months. Her pediatrician said that " all babies have

> > funny shaped heads " well, 2.5 months later its worse. I have been

> > terrified of SIDS and kept her on her back to sleep. We tried side

> > sleeping until I read a new article from the AMA saying that it was

> > just as dangerous as tummy sleeping for SIDS. We just went back to her

> > pediatrician for a second look at her head, and we got a referral to a

> > pediatric neurosurgeon for a consult. We see him next week. Had to get

> > x-rays taken of her skull before we go. We started aggressive

> > repositioning a week ago. I cannot get over the guilt. If only my

> > husband and I started aggressive repositioning at 2 months !! I

> > believed her dr. when she told me at 2 months my daughter's head would

> > eventually round out when she started holding her head up. I feel like

> > it is my fault she looks this way. From reading your site it seems

> > that she will most likely need a band, it doesn't seem that aggressive

> > repo helps most babies, although from the pictures I see that has

> > helped some. I feel like we have ruined our perfect beautiful little

> > baby girl. I feel so sad and guilty. Thank you for this site.

> > Kathleen.

> >

>