Guest guest Posted June 22, 2002 Report Share Posted June 22, 2002 Hi Connie, Well, that is pretty bummer news (the cirrhosis), but I agree, not unexpected either with all you have had going on now for some time. Will this news affect your treatment decisions? As for the gallbladder, I would guess that it was very much the cause of the pain you have been having. Hopefully when all the fluid is out and you are healed you will feel MUCH better. I know people who were diagnosed with cirrhosis over 10 years ago and they have spent many years on treatment, often just low dose maintainance interferon, and they are doing great and feeling great too. The low dose interferon seems to keep things from getting worse, even though they don't clear the virus. I know this is depressing news, but hang in there. Hugs, Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2002 Report Share Posted June 23, 2002 I know different doctors say different things, but my doc said don't pinch the skin, just stab it lol. Course, I got lots of surface area to choose from Connie, I think you need to talk to your doc. Does he/she say your abdomen is ok? I know when the skin around my incisions get tight, and they still do now and then, that I have to go immediately on the antibiotics (keflex) or I'll end up having it drained. Let us know alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2002 Report Share Posted June 23, 2002 Connie....what does the doctor think? About your belly, I mean. If he hasn't given you a decent answer, is there somewhere else you could go to find out? I really think you need more medical attention than what you're getting, that's for sure. Hang in honey. Carol Constance Dickson wrote: > I have rash but is on my arms. Pain came visiting me > about 3 hrs ago, such a letdown. Hopefully it will > get less once the poison as Dr called it gets totally > out of my system. My belly is now so distended that I > can not pinch anywhere to give myself my shot. It is > hard as a rock too. I think it felt better when it > was draining. Soon as they took staples out and > butterflied them with surgical tape there is no where > to drain the belly button one stopped too. I don't > undrstand why it is so hard unless it is fluid build > up. > Huggs back at ya, Connie > --- Carol <csean@...> wrote: > > Hi Connie > > > > You've been through so much.....and now this. It's > > a good thing that > > you that gallbladder out when you did. I'm sure > > you'll feel much better > > now. If it was poisoning you....no wonder you felt > > so much pain. I > > hope there is no more pain for you. I know what you > > mean about the red > > palms....I've had that for years....way before I > > even heard of HCV.....I > > did more than my share of drinking. I'm hoping that > > is why I have > > cirrhosis....more from the booze than from the hepC. > > When I asked the > > GI doc how much time I had left....he said he > > couldn't tell me from one > > biopsy....he doesn't know how fast I'm > > digressing....which makes sense I > > guess. Connie, when the GI doc first examined me he > > was more interested > > in the rash on my upper chest than the red > > palms....do you have that? > > Anyway Connie....baby yourself....take it really > > easy ok? You are in my > > prayers. > > > > Hugggggggs > > Carol > > > > Constance Dickson wrote: > > > > > Well, I just got home from the Dr and he said it > > looks > > > good but a little infected but will be fine. Said > > the > > > Gall Bladder was seiously infected and was > > poisoning > > > me. I am wondering if that was reason I hurt bad > > > constantly. Also said that the Ascites might > > drain > > > with the other fluid. It is leaking out the > > incision > > > in Belly Button now. Last night I was looking at > > the > > > top one and pressed down on skin beside it and > > fluid > > > shot out like a ...well, can't think of word it > > arked, > > > like something with a lot of pressure behind it. > > and > > > not just once everytime I did it, even landed on > > my > > > foot. Filled 4 maxi pads, just doing that. What > > was > > > odd about that, was it only did it when standing, > > you > > > would think sitting would do it. He also said > > that he > > > did not need to do biopsy on the Liver it has > > > significant Cirrhosis (sp) visible with the little > > > camera thingy. My biopsy on 4/99 showed no > > > significant Cirrhosis. I am not surprised, I was > > > expecting it. My palms have been red for some > > time > > > now. I have not told anyone besides you guys. I > > see > > > no point in it. > > > Take Care, Love, Connie > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2002 Report Share Posted June 23, 2002 Connie....what does the doctor think? About your belly, I mean. If he hasn't given you a decent answer, is there somewhere else you could go to find out? I really think you need more medical attention than what you're getting, that's for sure. Hang in honey. Carol Constance Dickson wrote: > I have rash but is on my arms. Pain came visiting me > about 3 hrs ago, such a letdown. Hopefully it will > get less once the poison as Dr called it gets totally > out of my system. My belly is now so distended that I > can not pinch anywhere to give myself my shot. It is > hard as a rock too. I think it felt better when it > was draining. Soon as they took staples out and > butterflied them with surgical tape there is no where > to drain the belly button one stopped too. I don't > undrstand why it is so hard unless it is fluid build > up. > Huggs back at ya, Connie > --- Carol <csean@...> wrote: > > Hi Connie > > > > You've been through so much.....and now this. It's > > a good thing that > > you that gallbladder out when you did. I'm sure > > you'll feel much better > > now. If it was poisoning you....no wonder you felt > > so much pain. I > > hope there is no more pain for you. I know what you > > mean about the red > > palms....I've had that for years....way before I > > even heard of HCV.....I > > did more than my share of drinking. I'm hoping that > > is why I have > > cirrhosis....more from the booze than from the hepC. > > When I asked the > > GI doc how much time I had left....he said he > > couldn't tell me from one > > biopsy....he doesn't know how fast I'm > > digressing....which makes sense I > > guess. Connie, when the GI doc first examined me he > > was more interested > > in the rash on my upper chest than the red > > palms....do you have that? > > Anyway Connie....baby yourself....take it really > > easy ok? You are in my > > prayers. > > > > Hugggggggs > > Carol > > > > Constance Dickson wrote: > > > > > Well, I just got home from the Dr and he said it > > looks > > > good but a little infected but will be fine. Said > > the > > > Gall Bladder was seiously infected and was > > poisoning > > > me. I am wondering if that was reason I hurt bad > > > constantly. Also said that the Ascites might > > drain > > > with the other fluid. It is leaking out the > > incision > > > in Belly Button now. Last night I was looking at > > the > > > top one and pressed down on skin beside it and > > fluid > > > shot out like a ...well, can't think of word it > > arked, > > > like something with a lot of pressure behind it. > > and > > > not just once everytime I did it, even landed on > > my > > > foot. Filled 4 maxi pads, just doing that. What > > was > > > odd about that, was it only did it when standing, > > you > > > would think sitting would do it. He also said > > that he > > > did not need to do biopsy on the Liver it has > > > significant Cirrhosis (sp) visible with the little > > > camera thingy. My biopsy on 4/99 showed no > > > significant Cirrhosis. I am not surprised, I was > > > expecting it. My palms have been red for some > > time > > > now. I have not told anyone besides you guys. I > > see > > > no point in it. > > > Take Care, Love, Connie > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2002 Report Share Posted June 23, 2002 Good Claudine, me and Tat will split the bill lol, and don't tell Dr. Alley the check is in the mail! ) alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2002 Report Share Posted June 23, 2002 Good Claudine, me and Tat will split the bill lol, and don't tell Dr. Alley the check is in the mail! ) alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2002 Report Share Posted June 23, 2002 It does sound like it needs to drain more. And, that fluid build up can cause pain. I'd call the doctor. C --- Constance Dickson <constance_clearwater_florida@...> wrote: > I have rash but is on my arms. Pain came visiting me > about 3 hrs ago, such a letdown. Hopefully it will > get less once the poison as Dr called it gets totally > out of my system. My belly is now so distended that I > can not pinch anywhere to give myself my shot. It is > hard as a rock too. I think it felt better when it > was draining. Soon as they took staples out and > butterflied them with surgical tape there is no where > to drain, the belly button one stopped too. I don't > undrstand why it is so hard unless it is fluid build > up. > Huggs back at ya, Connie > --- Carol <csean@...> wrote: > > Hi Connie > > > > You've been through so much.....and now this. It's > > a good thing that > > you that gallbladder out when you did. I'm sure > > you'll feel much better > > now. If it was poisoning you....no wonder you felt > > so much pain. I > > hope there is no more pain for you. I know what you > > mean about the red > > palms....I've had that for years....way before I > > even heard of HCV.....I > > did more than my share of drinking. I'm hoping that > > is why I have > > cirrhosis....more from the booze than from the hepC. > > When I asked the > > GI doc how much time I had left....he said he > > couldn't tell me from one > > biopsy....he doesn't know how fast I'm > > digressing....which makes sense I > > guess. Connie, when the GI doc first examined me he > > was more interested > > in the rash on my upper chest than the red > > palms....do you have that? > > Anyway Connie....baby yourself....take it really > > easy ok? You are in my > > prayers. > > > > Hugggggggs > > Carol > > > > Constance Dickson wrote: > > > > > Well, I just got home from the Dr and he said it > > looks > > > good but a little infected but will be fine. Said > > the > > > Gall Bladder was seiously infected and was > > poisoning > > > me. I am wondering if that was reason I hurt bad > > > constantly. Also said that the Ascites might > > drain > > > with the other fluid. It is leaking out the > > incision > > > in Belly Button now. Last night I was looking at > > the > > > top one and pressed down on skin beside it and > > fluid > > > shot out like a ...well, can't think of word it > > arked, > > > like something with a lot of pressure behind it. > > and > > > not just once everytime I did it, even landed on > > my > > > foot. Filled 4 maxi pads, just doing that. What > > was > > > odd about that, was it only did it when standing, > > you > > > would think sitting would do it. He also said > > that he > > > did not need to do biopsy on the Liver it has > > > significant Cirrhosis (sp) visible with the little > > > camera thingy. My biopsy on 4/99 showed no > > > significant Cirrhosis. I am not surprised, I was > > > expecting it. My palms have been red for some > > time > > > now. I have not told anyone besides you guys. I > > see > > > no point in it. > > > Take Care, Love, Connie > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2002 Report Share Posted June 23, 2002 It does sound like it needs to drain more. And, that fluid build up can cause pain. I'd call the doctor. C --- Constance Dickson <constance_clearwater_florida@...> wrote: > I have rash but is on my arms. Pain came visiting me > about 3 hrs ago, such a letdown. Hopefully it will > get less once the poison as Dr called it gets totally > out of my system. My belly is now so distended that I > can not pinch anywhere to give myself my shot. It is > hard as a rock too. I think it felt better when it > was draining. Soon as they took staples out and > butterflied them with surgical tape there is no where > to drain, the belly button one stopped too. I don't > undrstand why it is so hard unless it is fluid build > up. > Huggs back at ya, Connie > --- Carol <csean@...> wrote: > > Hi Connie > > > > You've been through so much.....and now this. It's > > a good thing that > > you that gallbladder out when you did. I'm sure > > you'll feel much better > > now. If it was poisoning you....no wonder you felt > > so much pain. I > > hope there is no more pain for you. I know what you > > mean about the red > > palms....I've had that for years....way before I > > even heard of HCV.....I > > did more than my share of drinking. I'm hoping that > > is why I have > > cirrhosis....more from the booze than from the hepC. > > When I asked the > > GI doc how much time I had left....he said he > > couldn't tell me from one > > biopsy....he doesn't know how fast I'm > > digressing....which makes sense I > > guess. Connie, when the GI doc first examined me he > > was more interested > > in the rash on my upper chest than the red > > palms....do you have that? > > Anyway Connie....baby yourself....take it really > > easy ok? You are in my > > prayers. > > > > Hugggggggs > > Carol > > > > Constance Dickson wrote: > > > > > Well, I just got home from the Dr and he said it > > looks > > > good but a little infected but will be fine. Said > > the > > > Gall Bladder was seiously infected and was > > poisoning > > > me. I am wondering if that was reason I hurt bad > > > constantly. Also said that the Ascites might > > drain > > > with the other fluid. It is leaking out the > > incision > > > in Belly Button now. Last night I was looking at > > the > > > top one and pressed down on skin beside it and > > fluid > > > shot out like a ...well, can't think of word it > > arked, > > > like something with a lot of pressure behind it. > > and > > > not just once everytime I did it, even landed on > > my > > > foot. Filled 4 maxi pads, just doing that. What > > was > > > odd about that, was it only did it when standing, > > you > > > would think sitting would do it. He also said > > that he > > > did not need to do biopsy on the Liver it has > > > significant Cirrhosis (sp) visible with the little > > > camera thingy. My biopsy on 4/99 showed no > > > significant Cirrhosis. I am not surprised, I was > > > expecting it. My palms have been red for some > > time > > > now. I have not told anyone besides you guys. I > > see > > > no point in it. > > > Take Care, Love, Connie > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2002 Report Share Posted July 1, 2002 connie.........I know I am behind on mail...had a modem die...but I am so sorry to read your post about cirhosis. maybe you just need some time to take it all in before telling anyone else. when was your last biopsy? wish there was something to do or say..you'll be in my thoughts ALOT> mzgee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 I don't have it but I did see a group for fibromyalgia on . Staceyaquaholicsgal <aquaholicsgal@...> wrote: Hi all. I posted a couple of weeks ago. Telling you all about my symptons and the fact I was seeing a rheumy about a year ago and nothing showed up in my bloodwork but he thought it was ra. I didn't want to go down the prescription route and couldn't understand why nothing was showing up in the bloodwork when I knew I was in pain. So I stopped going for about a year and just lived (mind you not very well) with the pain. Well I went back today - 11 blood tests all came back fine. He is pretty sure I have fibromyalgia and osteoarthritis in my knees. He felt points all over my body and asked if I had pain and some I did some not. He asked me about my sleeping (lack of) feeling exhausted all the time and my achiness and joint pain or muscle pain all over. He's started me on celebrex and a low dosage anti depressant to take before bed to help with the sleeping. I was suprised at first and told him I"m not depressed. He stated its shown to help with fibromyalgia patients. So I'm actually looking forward to trying these out to see what type of relief I get. I go back in 6 weeks. I started off by being upset at first when he said the bloodwork was fine. Last year he thought it was the start of RA but he's now thinking differently. Do any of you have fibromyalgia and any suggestions with coping?Sorry so long.. How low will we go? Check out Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 I have Fibro and I have found Flexeril to help both with the burning muscle pain and with sleeping. The dry mouth I experienced with it was pretty awful, especially in the beginning but it did help. > > Hi all. I posted a couple of weeks ago. Telling you all about my > symptons and the fact I was seeing a rheumy about a year ago and > nothing showed up in my bloodwork but he thought it was ra. I > didn't want to go down the prescription route and couldn't > understand why nothing was showing up in the bloodwork when I knew I > was in pain. So I stopped going for about a year and just lived > (mind you not very well) with the pain. Well I went back today - 11 > blood tests all came back fine. He is pretty sure I have > fibromyalgia and osteoarthritis in my knees. He felt points all > over my body and asked if I had pain and some I did some not. He > asked me about my sleeping (lack of) feeling exhausted all the time > and my achiness and joint pain or muscle pain all over. He's > started me on celebrex and a low dosage anti depressant to take > before bed to help with the sleeping. I was suprised at first and > told him I " m not depressed. He stated its shown to help with > fibromyalgia patients. So I'm actually looking forward to trying > these out to see what type of relief I get. I go back in 6 weeks. > I started off by being upset at first when he said the bloodwork was > fine. Last year he thought it was the start of RA but he's now > thinking differently. Do any of you have fibromyalgia and any > suggestions with coping? > > Sorry so long.. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 I have both and I do test positive for ra - my initial count was 563 with a sed rate of 45. I was diagnosed in '03. I basically diagnosed myself after several months of research online as symtoms cropped up - tendanitis, bursitis, swelling, joint pain (mirroring joints), weakness, feeling joints were dislocating, trigger fingers. They all pointed to RA. So I asked my doc to test me - she was surprised but it came back positive. Many people have it for years without testing positive. It's just one of those things. And you might have to try different meds until the right one is found that works for you. Helen P NW ohio aquaholicsgal <aquaholicsgal@...> wrote: Hi all. I posted a couple of weeks ago. Telling you all about my symptons and the fact I was seeing a rheumy about a year ago and nothing showed up in my bloodwork but he thought it was ra. I didn't want to go down the prescription route and couldn't understand why nothing was showing up in the bloodwork when I knew I was in pain. So I stopped going for about a year and just lived (mind you not very well) with the pain. Well I went back today - 11 blood tests all came back fine. He is pretty sure I have fibromyalgia and osteoarthritis in my knees. He felt points all over my body and asked if I had pain and some I did some not. He asked me about my sleeping (lack of) feeling exhausted all the time and my achiness and joint pain or muscle pain all over. He's started me on celebrex and a low dosage anti depressant to take before bed to help with the sleeping. I was suprised at first and told him I"m not depressed. He stated its shown to help with fibromyalgia patients. So I'm actually looking forward to trying these out to see what type of relief I get. I go back in 6 weeks. I started off by being upset at first when he said the bloodwork was fine. Last year he thought it was the start of RA but he's now thinking differently. Do any of you have fibromyalgia and any suggestions with coping? Sorry so long.. Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 You can have RA but not ever test positive. If you have fibromyalgia then chronic fatigue goes along with that. Lack of oxygen in muscles cause them to guard or contract. Burning in shoulders, neck back, hips, are the usual places. If you have RA and the joints are inflammed, the muscles will guard certain areas to protect them. Rest, lots of it is essential. Multi vitamin, lots of water. Eat right. Hot bath or heating pad helps. You will be able to discern joint pain from muscle pain. Listen to your body. Your knee pain for OA feels differently from your back or shoulders. Get a full body xray of all your major joints.......hands feet back etc. Essential bone density scan to check for osteoporosis.can be a source of pain in hips and spine etc. . Dont let the Dr. guess about OA. Diagnostic tests are important. Hugs, DeborahOn 5/15/06, aquaholicsgal <aquaholicsgal@...> wrote: Hi all. I posted a couple of weeks ago. Telling you all about mysymptons and the fact I was seeing a rheumy about a year ago andnothing showed up in my bloodwork but he thought it was ra. Ididn't want to go down the prescription route and couldn't understand why nothing was showing up in the bloodwork when I knew Iwas in pain. So I stopped going for about a year and just lived(mind you not very well) with the pain. Well I went back today - 11blood tests all came back fine. He is pretty sure I have fibromyalgia and osteoarthritis in my knees. He felt points allover my body and asked if I had pain and some I did some not. Heasked me about my sleeping (lack of) feeling exhausted all the timeand my achiness and joint pain or muscle pain all over. He's started me on celebrex and a low dosage anti depressant to takebefore bed to help with the sleeping. I was suprised at first andtold him I " m not depressed. He stated its shown to help withfibromyalgia patients. So I'm actually looking forward to trying these out to see what type of relief I get. I go back in 6 weeks.I started off by being upset at first when he said the bloodwork wasfine. Last year he thought it was the start of RA but he's nowthinking differently. Do any of you have fibromyalgia and any suggestions with coping?Sorry so long.. Quote Link to comment Share on other sites More sharing options...
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