Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 > i started treatment for hcv last week the meds really mess me up does > it get any better please wb For most of us it does get better. Make sure your medical team knows exactly what you're experiencing. It's different for all of us, so they need to know everything so they can help. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Yes it does for most ppl get better,, the first shot usually is the worst.. I hope things do for you too. Welcome to our forum, hope we can be of some help. Most of us know just how hard tx is, Jax --- <haydenx7@...> wrote: > > > i started treatment for hcv last week the meds > really mess me up does > > it get any better please wb > > For most of us it does get better. Make sure your > medical team knows > exactly what you're experiencing. It's different > for all of us, so > they need to know everything so they can help. > > Good luck. > > > Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 Yup it does get better. Got to look at it this way. Those Meds are your warriors. The interferon is your soldiers they are building up your immune system. The ribaviron is your Marines, they are armed with virus killers. What you can do to help the meds is make sure that you do all you can do to help them. Get all stress out of your life. And have a positive mental attitude. Even if you have to watch cartoons or old " I Love Lucy " reruns, you need to laugh. Watch your diet while on treatment. Make sure you get a protein enriched diet. I found a soy drink that I drink when I don't feel like eating. (Has a very pleasant smell and taste). When you are feeling better post shot, get out and get a little exercise. Even if it is walking to the mail box or down the street a ways. On the day after shot. I mostly veg out but then the next day after, I am up doing something. Watering the lawn,working in my flower garden. Yeah it takes me a while but I keep a thermos of ice cool water at hand and take some breaks. Remember to make sure to get enough water or fluid intake. The water helps with the side effects. And does wonders for you skin, the itching you some times get. I find that I have worse side effects when I forget to drink enough water. And you have us here to encourage you through this. Love Janet rnewb43 <rnewb43@...> wrote: i started treatment for hcv last week the meds really mess me up does it get any better please wb It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- Hepatitis C/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 i kow hou you fell i hve ra for years h thee is hope go back to your ra dr now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Welcome. You can not let this wear you down. As hard as it is, you need to keep your faith and not let it bring you down. You may want to let your wife at some point read some of our postings, it may help her understand your condition better. You need to keep a positive attitude. I know it is difficult. I have Ra. The Ra has caused some slight deformities me in many areas, especially my feet. I used to be very active. What i discovered was that you have to grieve your old life and accept this new one - something that is easier said than done. It took me 3 years to get to this point and i am not fully there. Good luck > > ok Im a 32yr. old male . alitle more them a year ago the docter told > me that I have RA , spondylolisthesis and degenerative dic disease. ((I > just went in with back pain . and after alot of tests here I am))) I > said to the docter HELL NO not me and walked out. well now its even > getting hard to walk. I dont have anyone to talk to about this ((me > wife just cant handle this. and I cant talk to her. its got to where I > dont leave the house, I dont want people to see me cuz I full alot. my > wife thinks Im still the strong men that I was. but I see my life > slipping away. I just dont know what to do anymore... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 I don't know a lot about spondylolisthesis, but I do know about RA and lupus. I was diagnosed last November. I was also told about a month ago that the inflammation in my body would have me in a wheelchair by my 27th birthday (next December). I also had and still do have a hard time talking to my husband about it. It's like no matter how hard they try to help and to listen, they still don't understand. I can't say I know how you feel, nobody really can. I can say I do know what it's like to feel like your life is slipping away. I have 2 boys and can't imagine being in a wheelchair and missing out on so much. I am having a hard time dealing with the fact that so much has to change and that I can't do near what I used to be able to do. I start short term disability soon and will have a little more time to learn how to deal with all this and to learn what my limits are. I have been with this group for about 2 months now, and the people here are great and the most supportive. I wish I could help more, but I am very new to all this. Feel free to vent and ask questions as often as you'd like, we all have. Best wishes to you, HollyGaranimal <garanimal_2000@...> wrote: ok Im a 32yr. old male . alitle more them a year ago the docter told me that I have RA , spondylolisthesis and degenerative dic disease.((I just went in with back pain . and after alot of tests here I am))) I said to the docter HELL NO not me and walked out. well now its even getting hard to walk. I dont have anyone to talk to about this ((me wife just cant handle this. and I cant talk to her. its got to where I dont leave the house, I dont want people to see me cuz I full alot. my wife thinks Im still the strong men that I was. but I see my life slipping away. I just dont know what to do anymore... Holly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 You need to be treated by a qualified rheumatologist and get onto some medications to slow down the permanent joint damage. Let us know what you are doing for your problems. Your wife might benefit from reading the Spoon Theory http://www.butyoudontlooksick.com/spoons.htm that gives insight into what a chronic illness is like. God bless. From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of Garanimal Sent: Sunday, March 26, 2006 11:46 PM Rheumatoid Arthritis Subject: hello Im new to this ok Im a 32yr. old male . alitle more them a year ago the docter told me that I have RA , spondylolisthesis and degenerative dic disease.((I just went in with back pain . and after alot of tests here I am))) I said to the docter HELL NO not me and walked out. well now its even getting hard to walk. I dont have anyone to talk to about this ((me wife just cant handle this. and I cant talk to her. its got to where I dont leave the house, I dont want people to see me cuz I full alot. my wife thinks Im still the strong men that I was. but I see my life slipping away. I just dont know what to do anymore... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Hello there , I'm one of the lucky members here with R/a , O/A and yes the DDD , I've had the DDD for maybe since 7 to 9 years cann't remember excatly but have 4 disc messed up in the cerical spine and 2 that I know of in the lumbar I have more pain in the thorax region now but haven't had it checked . But yes walking is diffulcut at times after a few min.s and impossable at times best advise I can give you from personal experince for me is use ice packs at nite ,, find you a real good nuroligest , and chiropractor , these three things with the meds the nerologest gives me keeps me going , and when I get my lumbar disc out of whack to i cann't walk my chropractor is the ONLY HELP ! about 3 visits and he can get it back in place and its good till i mess it up again . The R/A and O/A you'll have to see what others say about that I've not fould any releif there i hope this helps you some if there's anything you wanta talk about just email at my private email and i'll get back to you and theres another DDDgroup allso if you want to hunt it up like this R/A group . johnGaranimal <garanimal_2000@...> wrote: ok Im a 32yr. old male . alitle more them a year ago the docter told me that I have RA , spondylolisthesis and degenerative dic disease.((I just went in with back pain . and after alot of tests here I am))) I said to the docter HELL NO not me and walked out. well now its even getting hard to walk. I dont have anyone to talk to about this ((me wife just cant handle this. and I cant talk to her. its got to where I dont leave the house, I dont want people to see me cuz I full alot. my wife thinks Im still the strong men that I was. but I see my life slipping away. I just dont know what to do anymore... Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 hi, garananimal! all is not lost = you are still a worth-while guy....I have had RA and fibromyalgia for 12 years now, and just this month got a new dx. of spondy. & disc disease, just like you. I take enbrel shots and neurontin for the pain. eleavil helps me to fall asleep (I also have restless leg syndrome = kick like a Rockette)....anyways, I start PT today for my back and will be going to a Pain Clinic for new meds. = are you near a major city? most have a university with a hospital = ask for a referral to a Pain Clinic=they really understand. don't give up! and remember we are here for you....gentle hugs, Marcia Garanimal <garanimal_2000@...> wrote: ok Im a 32yr. old male . alitle more them a year ago the docter told me that I have RA , spondylolisthesis and degenerative dic disease.((I just went in with back pain . and after alot of tests here I am))) I said to the docter HELL NO not me and walked out. well now its even getting hard to walk. I dont have anyone to talk to about this ((me wife just cant handle this. and I cant talk to her. its got to where I dont leave the house, I dont want people to see me cuz I full alot. my wife thinks Im still the strong men that I was. but I see my life slipping away. I just dont know what to do anymore... Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Please don't let this get you down. I don't want this to put anymore stress on your relationship than there already is but I felt I needed to tell my story. I'm a 39 yr old female. I was diagnosed with RA 4 years ago. It came on fast and hard due to the stress level of my job as well as my personal life. Most of the jobs in my life have been what are considered part of the man's world. I've worked housing construction, warehousing, and even worked laying new pipelines for 5 years. When I was diagnosed, my fiance(same age as me) was very supportive and told me we would work through all this together. Well as time passed, I was dealing with the fact that my body wasn't going to allow me to have the physically active life that he and I had planned and took for granted that we would have. As time passed, somewhere along the line he decided that he wouldn't, or realized that he couldn't, be as strong as I needed him to be as the " healthy " partner in our relationship. Last May, 5 days after my birthday, he left me after our living together for 7 years. We hadn't given our wedding vows. He proposed to me before my diagnosis of RA and we had never set a date. Here it is almost a year later and through faith and belief I have come a long way. He didn't leave me because I was weak. He ran away because he is weak. Find a way to talk to your wife. > > ok Im a 32yr. old male . alitle more them a year ago the docter told > me that I have RA , spondylolisthesis and degenerative dic disease. ((I > just went in with back pain . and after alot of tests here I am))) I > said to the docter HELL NO not me and walked out. well now its even > getting hard to walk. I dont have anyone to talk to about this ((me > wife just cant handle this. and I cant talk to her. its got to where I > dont leave the house, I dont want people to see me cuz I full alot. my > wife thinks Im still the strong men that I was. but I see my life > slipping away. I just dont know what to do anymore... > Quote Link to comment Share on other sites More sharing options...
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