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rhbailey@... wrote:

> From: rhbailey@...

>

> The March 22 Newsweek (p.65) has an article on SAM-e (pronounced " Sammy " ).

> It's a dietary supplement (S-adenosyl-methionine) that has been available

> in Europe for 20 years by prescription. Newsweek says the medical

> literature shows that it's a safe and effective treatment for depression

> and arthritis.

>

The Body uses the amino acid Methione to make the amino acid Glutathione which

we seem to be deficient in. May be something helpful here........

Marcia

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  • 2 weeks later...
Guest guest

At 05:39 PM 03/27/1999 +0100, you wrote:

>From: rhbailey@...

>

>My daughter, age 25, has not been able to leave the house since July, 1997.

>Lately she's been getting pretty discouraged, and I'm thinking about asking

>her if she would like to try SAM-e. Has anyone tried it? Had any side

>effects? Heard of anyone who has had side effects? My daughter has side

>effects from almost everything, so we have to be very careful. Sue

================

this is a product that we all have in our bodies, if that helps. the

problem of course is we don't know what level your daughter has, is

her level high or normal or low. if it is low, this might help...

my heartfelt sympathy, nancy mcfadden

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  • 7 months later...

Hi everyone!

I get very excited when someone mentions alternative meds. I'm a firm beleiver

that they DO work. We just need experts in this field to guide us, just as we

need conventional Dr.'s to guide us. I personally feel they can work hand in

hand.

Anyway, SAM-e is available here in Canada. The only website I could find was :

http://www.wfla.com/health/282.htm

I suggest you consult with a licensed naturopath, herbalist or a Dr.of

homeopathy. In Canada we have licensing boards for each of these professions and

one can find out where there is a licensed practitioner.

You're probably wondering why I'm such a firm beleiver in alternative meds.

Well, perhaps because I lived half of my life in Europe and there alternative

meds ar widely used and accepted. And I have seen what they can do. An example:

My father's cousin had lung-cancer and was told he had 3 to 6 months to live. He

was treated at a clinic in Denmark called Humlegaarden for 3 weeks. He also had

to follow up with alternative meds. and change his diet completely. The result

was that he is now tumor free!!!! I have also contacted this clinic and they

have told me they have very good results with autoimmune diseases. They have a

Website: www.humlegaarden.dk

There also is a clinic in Norway that I'm very excited about. My sister, who

lives there, have been in contact with them and they treat AIH. So I'm in NO

doubt what I'm going to do. Now it's important to mention that both these

clinics are staffed by both conventional Dr.s and spesialist and

alternative,licensed practitioners.

I had my first biopsy yesterday and am waiting anxiously for the results. As

soon as I have these I'm probably off to Norway for a while. I have family there

and can stay with them while I'm being treated.

I have both adress an website to the norwegian clinic. The website is in

Norwegian - but if anyone is interested I will translate it.

All the best - Margareta

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Dear Margareta,

I am so happy about the success the clinic had with your father! I emailed

the " humlegaarden " site, and they are sending me information. The Norway

site also sounds very good - if I write to them will they respond in

English? Maybe they'll send information too?!? Please keep me updated on

what you learn and do!

Thanks,

:)

>From: " Torun Madsen " <torun@...>

>Reply- onelist

>< onelist>

>Subject: [ ] Re: SAM-e

>Date: Tue, 2 Nov 1999 09:40:45 -0500

>

><< text2.html >>

><< text3.html >>

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  • 4 months later...
Guest guest

Has anyone tried SAM-e? If so did it help? What did it help?

There was just a piece on Fox cable news about SAM-e that said it was good

for arthritis, depression and new research shows it can stop liver damage.

I seem to remember that last year there was some buzz that SAM-e could help

alleviate CFS/FM symptoms.

Barb

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From: kb46@...

I seem to remember that last year there was some buzz that SAM-e could help

alleviate CFS/FM symptoms.

[Patti:] One of my doctors has very good response from many of his fibro

patients, but you have to be rich. He said most of his patients didn't get

relief until they were up to a dose of 8-16 pills/day. Most SAM-e sells for

1$/pill or more, so this regimin would cost ~$240 - $480 /month (my doc

has lots of rich patients, and I'm NOT one of them).

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  • 9 months later...

Connie,

You might want to try taking the amino acid L-Methionine and B vitamins

together. I was told that taking these together creates SAM-e in the body by

someone who is quite reliable, and it is much less expensive. ly I

tried it, and didn't feel any different, but have never taken SAM-e, and

didn]t stop my St s Wort which controls depression for me.

> Re: [ ] SAM-e

>

>

> Hi Sue,

> Thanks for the info.........I will check out that site......

> Its soooooooooooooo expensive....... Connie

> Leave no stone unturned.......

>

>

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Jo -

SAMe worked great for me at first, but after a few

months I had to discontinue it as I was getting lupus

symptoms (butterfly rash and ANA antibodies) - it is

one of the known flarers of lupus.

Jennie

--- jo morris <wyomin@...> wrote:

> My doctor suggested that I try SAM-e. I know a

> little about it, but want to research it further

> before I try it. Any suggestions?

>

> Also, I've been using carob more recently, and have

> been wondering what nutrients it has. Does anyone

> know about this?

>

> Thanks, jo

>

>

__________________________________________________

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I take SAM-e. You might read the book " Stop Depression Now " which is about

SAM-e. It has helped me, some, but I have to take a lot of it to see

benefits, and it can get rather expensive. But it's the only thing I've

found that helps with my depression without side effects. It hasn't totally

alleviated the joint pain that I have, but it does help.

lindaj@...

SAM-e

> My doctor suggested that I try SAM-e. I know a little about it, but want

to research it further before I try it. Any suggestions?

>

> Also, I've been using carob more recently, and have been wondering what

nutrients it has. Does anyone know about this?

>

> Thanks, jo

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

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Hi Sue -

No, I hadn't ever had symptoms of lupus before taking

this. I'm still not sure I have it, but my rhemy

thinks it's best to avoid those meds that are known to

flare it. This includes MSM, ginseng, and licorice.

Best, Jennie

--- rhbailey@... wrote:

> Dear Jennie,

>

> You wrote, " SAMe worked great for me at first, but

> after a few

> months I had to discontinue it as I was getting

> lupus

> symptoms (butterfly rash and ANA antibodies) - it

> is

> one of the known flarers of lupus. "

>

> Did you already have lupus before you started the

> SAM-e

>

> Sue B.

> upstate New York

>

>

>

>

__________________________________________________

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  • 3 months later...
Guest guest

> SAM-e had been the most effective substances yet in my

> effort to deal

> with living(?) with CFS/FMS. I just ordered another case

> yesterday. Been on

> it since Oct 1999. Three brands..... significantly

> different effects for me.

Very interesting...can you expand on this please?

tansy

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Guest guest

Hi:

Yes I am interested in knowing which brands and dosages seem to work

best, as well as where I might be able to get this a bit cheaper.

Pretty pricy. So if you have a good source.. I would appreciate

knowing this.

I started taking them, and I definately noticed a mood difference

within 2 days.

You can feel free to email me directly or post message.

playpup@...

Thanks

>

>

> > SAM-e had been the most effective substances yet in my

> > effort to deal

> > with living(?) with CFS/FMS. I just ordered another case

> > yesterday. Been on

> > it since Oct 1999. Three brands..... significantly

> > different effects for me.

>

> Very interesting...can you expand on this please?

> tansy

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Guest guest

Um, not me that took SAM-e, I was also requesting info....It was Foxhillers

(?) who mentioned the various kinds.

tansy

>

> Hi:

>

> Yes I am interested in knowing which brands and dosages seem to work

> best, as well as where I might be able to get this a bit cheaper.

> Pretty pricy. So if you have a good source.. I would appreciate

> knowing this.

>

> I started taking them, and I definately noticed a mood difference

> within 2 days.

>

> You can feel free to email me directly or post message.

>

> playpup@...

>

>

> Thanks

>

>

>

>

> >

> >

> > > SAM-e had been the most effective substances yet in my

> > > effort to deal

> > > with living(?) with CFS/FMS. I just ordered another case

> > > yesterday. Been on

> > > it since Oct 1999. Three brands..... significantly

> > > different effects for me.

> >

> > Very interesting...can you expand on this please?

> > tansy

>

>

> This list is intended for patients to share personal

> experiences with each other, not to give medical advice. If

> you are interested in any treatment discussed here, please

> consult your doctor.

>

>

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Guest guest

Hi...I've only been on one brand of Sam-e (Nature Made, because it's the

least expensive :) I was on it for several months and had improved

considerably. I was on tons of other stuff at the time, so I had no idea

what was causing the improvement. I ended up crashing HARD from overdoing

it, and went off of the sam-e shortly thereafter to try other stuff. Now, I

suspect that Sam-e could have been really helping, and am trying it again at

a low dose (to start)after learning of its effect on glutathione and liver

function, etc.

Just wondering what brands you were on and what the differences were. And

what brand are you buying by the case now? This supplement can be extremely

expensive if you're on a higher dose (I was on 4 pills a day during that

period when I was doing well). Nature Made is all I've tried, and is what

I'm still on (cheaper at wal-mart than the needs brand at needs!) but might

consider trying other brands if they could make a bigger difference. All

I've seen about what to look for is for stuff manufactured in Europe, as

they have stricter standards for SAM-e supplements than the US.

I don't really have problems with depression, but if it helped me the way I

suspect it did, maybe it was helping out my liver a bit, and thus aiding my

energy level/stamina etc. Hope so--this time I'm going to stick with it

longer to see...

> That Guru doc Dr. Hedaya had me try SAM-e and it didn't work

> for me either.>>

>> Hi - I would like to know how much SAM-e you were on and for what

period

of time and also what BRAND of SAM-e Dr. Hedaya recommended.

Can you send me info (title) on the book you mention please?

SAM-e had been the most effective substances yet in my effort to deal

with living(?) with CFS/FMS. I just ordered another case yesterday. Been on

it since Oct 1999. Three brands..... significantly different effects for

me.>>

_________________________________________________________________

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  • 2 years later...

Hello Murf,

If no response here you might try the prozactruth group and there are more

groups as well. I had a friend on the prozactruth group who was withdrawing from

benzos ( in France) and he got worse. I don't know what has happened to

him because I haven't heard from him in a long time. I'm worried to say the

least. Point is to be careful. Unfortunately you are now an experiment. Getting

well is like playing Russian Roulette. Education is the key!

Take care and good luck,

Connie in Dallas

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Hello Murf,

If no response here you might try the prozactruth group and there are more

groups as well. I had a friend on the prozactruth group who was withdrawing from

benzos ( in France) and he got worse. I don't know what has happened to

him because I haven't heard from him in a long time. I'm worried to say the

least. Point is to be careful. Unfortunately you are now an experiment. Getting

well is like playing Russian Roulette. Education is the key!

Take care and good luck,

Connie in Dallas

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Hello Murf,

If no response here you might try the prozactruth group and there are more

groups as well. I had a friend on the prozactruth group who was withdrawing from

benzos ( in France) and he got worse. I don't know what has happened to

him because I haven't heard from him in a long time. I'm worried to say the

least. Point is to be careful. Unfortunately you are now an experiment. Getting

well is like playing Russian Roulette. Education is the key!

Take care and good luck,

Connie in Dallas

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Hello Murf,

If no response here you might try the prozactruth group and there are more

groups as well. I had a friend on the prozactruth group who was withdrawing from

benzos ( in France) and he got worse. I don't know what has happened to

him because I haven't heard from him in a long time. I'm worried to say the

least. Point is to be careful. Unfortunately you are now an experiment. Getting

well is like playing Russian Roulette. Education is the key!

Take care and good luck,

Connie in Dallas

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  • 1 month later...

Sue,

Taking SAMe is another way to raise glutathione. It is a little

less direct than taking something that has cysteine, such as

undenatured whey protein, because it has to go through a series of

reactions before it is converted into cysteine, which is then used

to make glutathione.

SAMe does produce other beneficial effects, however, since it is the

main methylating agent in the body. It has been found to be helpful

for depression, for example, and is also used in Europe to treat

liver disorders, osteoarthritis and fibromyalgia. It has the

advantage over pharmaceutical antidepressants in that it does not

suppress libido.

I think it would be O.K. to take both SAMe and undenatured whey

protein, but if you take supplemental SAMe, it would be a good idea

to make sure you are also getting enough vitamins B6, B12 and folic

acid to make sure that your methylation cycle does not build up too

much homocysteine from the SAMe, because that is correlated with

higher rates of heart disease.

People who are bipolar should be cautious in taking SAME, because it

can bring on the manic state in these people.

Rich

> Hi ,

>

> You posted this:

>

> " ...There is also depletion of S-adenosyl-L-methionine (SAMe).

> Administration of synthetic SAMe results in a partial correction

of the SAMe

> depletion and a consequent restoration of glutathione levels... "

>

> If this is true, should everyone be taking SAM-e as well as

undenatured whey

> protein?

>

> Sue B.,

> upstate New York

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  • 2 years later...

Hi ,

What are those ?

Ellen

>From: " Dillon " <persimmontree@...>

>Reply-

>< >

>Subject: [ ] SAM-e

>Date: Fri, 02 Dec 2005 18:02:33 -0500

>

>I have 100 tablet of SAM-e if anyone would like them. I can mail them to

>you.

>

>Kathy in DC

>

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