Re: New here and questions

[Guest guest]

vitamin c,b 4xs a day, zinc 4xs a day, e 1-2 xs a day,magnesium 4xs

a day,milk thistle 4xs a day, epsom salt baths help, grapefruit seed

extract 3drops 3xs a day to help w/ yeast while he is chelating,

probiotics at least once a day.

nne

Most any thing t

> Hi,

>

> I'm new here and have a few questions I hope you'all don't mind

> answering. We will be chelating my seven year old for the first

time

> in a few weeks. We will be doing it on our own as we belong to a

HMO

> and can't afford to see a Doctor that we'd have to pay out of

pocket

> for. Our HMO Doc has agreed to run any tests we might need and

monitor

> the chelation process but dosen't know much about it. Are there any

> tests we should run before beginning. I understand that after

starting

> every three months you should have liver and kidney function

tested,

> anything else?

> Are there any specific supplements we should be giving while

> chelating? My son currently takes SuperNuthera and TMG.

>

> Thnks so much!

>

> le

[Guest guest]

Hopefully the HMO sticks to their end of the bargain. If they do, you

have a good deal.

You might find my book Amalgam Illness:Diagnosis and Treatment helpful,

see www.noamalgam.com .

You will have to learn a lot, the HMO doctors will not do it for you.

Testing that is relevant and importantL

Doctor's Data hair element profile (no other lab, not the toxic

exposure profile), Plasma Cysteine and Plasma Sulfate from Great

Smokies (you probably will get to pay out of pocket for those, if so

pay in advance and they are WAY FAR CHEAPER), a CBC with differential

and ALL OF T3, T4, free T3, free T4, and TSH. When they say they

aren't all necessary tell them that in fact they ARE all necesssary and

must be done in this particular population (autistics) since some of

the assumptions made to need less than all of them aren't true. Also

say T7 or FTI is NOT an acceptable substitute for free T4. Point out

that if it is relatively normal they only have to do it once, and that

a lot of information beyond thyroid function is contained in all the

numbers they will get.

They will probably also want to do a large chem panel, like an SMAC 28,

and possibly a routine urinalysis. These are very seldom necessary but

the HMO will cover them and will be used to doing them so there is no

reason not to.

Routine testing is NOT necessary unless you use a dangerous and harmful

chelation protocol like the one in the DAN! materials. Correct

protocol: DMSA every 4 hours or more often, dose in mg not to exceed

kid's weight in pounds (start at half that). ALA every 3 hours or more

often (4 at night OK), same dose as DMSA. This promotes normal healthy

clearance of the heavy metals from the body and brain, as opposed to

the definitely unhealthy concentration of them INTO the brain that

giving the stuff every 8 hours causes.

If you go get the two books Change your Brain, Change your Life and

also Healing ADD by Dan Amen, and do the basal ganglia checklist from

the first and the ADD checklist from the second, the subpart scores are

extremely helpful in deciding what dietary interventions and

supplements will promote optimal neurologicla health. Amen mostly

talks aobut medications (he is an MD) but you can find supplement

suggestsion easily, e. g. by putting the results on this list.

Andy . . . . . . . .. . . .

> I'm new here and have a few questions I hope you'all don't mind

> answering. We will be chelating my seven year old for the first time

> in a few weeks. We will be doing it on our own as we belong to a HMO

> and can't afford to see a Doctor that we'd have to pay out of pocket

> for. Our HMO Doc has agreed to run any tests we might need and monitor

> the chelation process but dosen't know much about it. Are there any

> tests we should run before beginning. I understand that after starting

> every three months you should have liver and kidney function tested,

> anything else?

> Are there any specific supplements we should be giving while

> chelating? My son currently takes SuperNuthera and TMG.

>

> Thnks so much!

>

> le

[Guest guest]

Don’t worry about the length of the

post. Lots of people have RA and never have it show up in blood

work. The American

College of Rheumatology

has seven criteria for diagnosing RA and having any 4 of them qualifies for a

positive diagnosis.

1. Morning stiffness, lasting for at least an hour, present daily for

at least 6 weeks

2. Arthritis of 3 or more joints, lasting for at least 6 weeks

3. Arthritis of the hand joints, lasting for at least 6 weeks

4. Symmetric arthritis, lasting for at least 6 weeks

5. Rheumatoid nodules

6. Positive rheumatoid factor (blood test)

7. Joint changes on x-ray

If your doctor insists on having RA show

up in your blood before beginning treatment for it, find another doctor.

Methotrexate is the most commonly used drug and there are a lot of others Drugs

and interactions

http://www.arthritis.org/conditions/DrugGuide/index.asp

http://www.drugdigest.org/DD/Home

http://www.drugs.com/

http://www.mayoclinic.com/health/drug-information/DrugHerbIndex

My guess is that you need a second opinion

with a board-certified rheumatologist. God bless.

From: Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ] On Behalf Of aquaholicsgal

Sent: Monday, April 24, 2006 4:25

PM

Rheumatoid Arthritis

Subject:

New here and questions

Hi all about 1 1/2 years ago I finally cried to my dr. about how

much joint pain I was having I dont' think she actually believed me

but sent me to a rheumy who took tons of tests. The RA test came

back negative the other bloodwork was ok too. He said there was

something showing an auto immune problem possibly in my blood and he

was pretty sure it was the start of RA just not showing up yet.

Gave me celebrex nothing then vioxx this was around the time it was

all being recalled and

questioned. Then just daypro for when I was hurting. I went for

several appointments but didn't think that this was something I

wanted to do was take medicine the rest of my life. We really

didn't sit and talk about the disesse much itself he was just trying

me on somethings. So I went last April and didn't go back. I had

just come to the realization I will always hurt. Some times are

much worse than others. I've since learned about flare ups. I made

an apt. and go back next month. I called ahead and just got

bloodwork done 11 different tests so they'll be there when I go for

my apt. I've had terrible joint pain, fatigue (all the time

like

a mack truck ran over me) I have it especially in my hands, elbows,

knees, feet but feel tender and achy all over. I had carpel tunnel

test done because my fingers were bad but it came back ok, do have

wrists splints to wear at night. I guess my question is it normal

that it won't show up in the blood work right away? I've gained

weight because I just don't have the energy to work out although I

know its supposed to help. Did anyone else start out with no signs

in bloodwork? Thanks sorry its so long.

[Guest guest]

Yes, and still no positive bloodwork after 7 or more years, and even joint

damage. The good news, is once you get a diagnosis,(with or without positive RA

test), most of the time they say people without RA factor have a more mild form.

Although you don't feel like you have a mild form now, keep going back because

that is what will help establish your diagnosis and get you on medicines that

will give you back your life, if not all of the time, a good share of it.

I got relief for a long time on a kenolog shot every three months, plaquenil and

relefan. Although I need to step up in meds now, it bought me alot of time. Good

luck.

>

> From: " aquaholicsgal " <aquaholicsgal@...>

> Date: 2006/04/24 Mon PM 06:24:55 CDT

> Rheumatoid Arthritis

> Subject: New here and questions

>

>

Hi all about 1 1/2 years ago I finally cried to my dr. about how

much joint pain I was having I dont' think she actually believed me

but sent me to a rheumy who took tons of tests. The RA test came

back negative the other bloodwork was ok too. He said there was

something showing an auto immune problem possibly in my blood and he

was pretty sure it was the start of RA just not showing up yet.

Gave me celebrex nothing then vioxx this was around the time it was

all being recalled and

questioned. Then just daypro for when I was hurting. I went for

several appointments but didn't think that this was something I

wanted to do was take medicine the rest of my life. We really

didn't sit and talk about the disesse much itself he was just trying

me on somethings. So I went last April and didn't go back. I had

just come to the realization I will always hurt. Some times are

much worse than others. I've since learned about flare ups. I made

an apt. and go back next month. I called ahead and just got

bloodwork done 11 different tests so they'll be there when I go for

my apt. I've had terrible joint pain, fatigue (all the time like

a mack truck ran over me) I have it especially in my hands, elbows,

knees, feet but feel tender and achy all over. I had carpel tunnel

test done because my fingers were bad but it came back ok, do have

wrists splints to wear at night. I guess my question is it normal

that it won't show up in the blood work right away? I've gained

weight because I just don't have the energy to work out although I

know its supposed to help. Did anyone else start out with no signs

in bloodwork? Thanks sorry its so long.

[Guest guest]

umm sounds just like my story i fought with numerous drs from 1999 till 2004 trying to find what was happening evening letting one dr convince me to have bi carpel tunnel release boy you should of seen him backing up when I was questioning him of it not helping my shoulder and elbo pain it was like he never knew I had those pains and they where one of my cheif complaints and I made sure he knew what I was talking about . But I still haven't fould the meds that give me releife yet I have O/A & DDD allso though. I guess ice is about as good as it gets for me but bextra did the best before they took it from me.bnemshon <bnemshon@...> wrote: Hi! I just wanted to let you know that I also had negative bloodwork for a number of years. I was also tested for carpal tunnel

syndrome and had corrective knee surgery still without anyone recognizing what was happening. Finally got diagnosed and began receiving treatment. Treatments vary - some work for one but not another so your rheumy will help you find the right drug. Methotrexate and Naproxen works well for me now. I also understand your reluctance to accept the drug use for the rest of your life (I went through that also) but your opinion changes when your body demands relief. Drugs are far easier than the fatigue, pain and joint damage of untreated RA. The people on this list are very knowledgable and supportive and you'll find great relief reading the posts and knowing that others have gone through the same problems as you are experiencing. Good luck and God bless. Barb

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[Guest guest]

hi there I've been dxed for two years and the blood work is allways normal but been ill and think i've had it since 99 , as for the fatige my dr and i was just talking about it this week at my appt. he tells me enen with the R/A well controlled it is very common to have bad fatige anyway , he says that neros are working with differant wake up meds now trying to find something that will work on the fatige but now it's just part of the diease thats not very well known as to why it doesn't respond as well. Just what he was telling me as i was still complaining with upper body and extermity pain and a lot of fatige aquaholicsgal <aquaholicsgal@...> wrote: Hi all about 1 1/2 years ago I finally cried to my dr. about how much joint pain I was having I dont' think she

actually believed me but sent me to a rheumy who took tons of tests. The RA test came back negative the other bloodwork was ok too. He said there was something showing an auto immune problem possibly in my blood and he was pretty sure it was the start of RA just not showing up yet. Gave me celebrex nothing then vioxx this was around the time it was all being recalled and questioned. Then just daypro for when I was hurting. I went for several appointments but didn't think that this was something I wanted to do was take medicine the rest of my life. We really didn't sit and talk about the disesse much itself he was just trying me on somethings. So I went last April and didn't go back. I had just come to the realization I will always hurt. Some times are much worse than others. I've since learned about flare ups. I made an apt.

and go back next month. I called ahead and just got bloodwork done 11 different tests so they'll be there when I go for my apt. I've had terrible joint pain, fatigue (all the time like a mack truck ran over me) I have it especially in my hands, elbows, knees, feet but feel tender and achy all over. I had carpel tunnel test done because my fingers were bad but it came back ok, do have wrists splints to wear at night. I guess my question is it normal that it won't show up in the blood work right away? I've gained weight because I just don't have the energy to work out although I know its supposed to help. Did anyone else start out with no signs in bloodwork? Thanks sorry its so long.

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[Guest guest]

Thank you all for responding to my message. I feel much better after

reading your stories and more enpowered when I go to the Dr. in a few

weeks. I'll have more questions to ask. With nothing showing up in

the blood work I kept thinking no one will believe what kind of pain

I " m in. Thanks again and I " ll keep you all posted.