prevacid

[Guest guest]

Debbie wrote:

think the confusion may come from the fact that insurance companies don't like to keep you on the higher dose of Prevacid long-term b/c it is so expensive

You know I think this is my number one pet peeve. The insurance

companies are prescribing for us instead of the doctors. There should

be a law to prevent that.

My doctor ordered one medication for me that was injectable instead

of by mouth. The insurance company refused to pay. I paid for it

initially then appealed their decision and kept appealing until they

finally reimbursed me. In my last letter to them, I told them that I

didn't think they had anyone in their organization that knew what Achalasia was and they were apparently too lazy to look it up. They

are still paying for it so far. Who knows what's next? I guess we all

have a soap box, that's mine.

As you said Debbie I have a lot of time on my hands. Don't mess

with an old woman that's retired. LOL

Maggie

Alabama

[Guest guest]

, I'm on Prevacid, initially to heal a duodenal ulcer, and now to keep down the acid that comes through the opening from my botox injection.

I think the confusion may come from the fact that insurance companies don't like to keep you on the higher dose of Prevacid long-term b/c it is so expensive. My PCP gave me 30mg for 90 days to heal up my ulcer, and then put me on 15mg for "maintenance" to keep the ulcer from returning. When I saw a local GI doc to scope me to check on my ulcer again, she put me back on the 30mg permanently (as in not stepping it down after 90 days but keeping it at 30mg) even though my ulcer had healed.

I was still getting acid in my esophagus in the evenings when I was on the 15mg dose (fortunately my nerves are shot and I never had pain from the GERD/GORD -- but even if it doesn't hurt, it will still eat away your esophagus if you have acid there all the time), so she said I needed the higher dose to keep the acid levels down, and she said that the insurance WOULD pay for it if she "demanded" that I needed it for proper care. I just got my refill in the mail yesterday, so the insurance must've caved in! )

Hope that clears things up a bit!Debbi in Michigan

Prevacid

I 'm confused Can you take prevacid All the time or only for a few months There was something I took years ago that I could only take a few months It attacks the central nervous system I AM CONFUSED

Hop this isn't a silly question

[Guest guest]

Both and ph have reflux. ph never spit up a day in his life.

was the opposite- he was a spewing volcano! When was first born,

I thought he was crying because he was scoped immediately after birth-by the

end of the first month, I knew it was something else. We could never lay

him down. He slept in his baby swing for the longest time. We tried

propping the crib, but he always ended up at the bottom that wasn't propped

and crying..

GERD/reflux can show up in many ways. As ph got older, he became a

puker-without prevacid he feels like he is going to throw up. We've had

in the ER because his chest pains were so bad and they wanted to r/o

heart problems.

I also have reflux and think Prevacid works better than Nexium for me.

Going to bed at night with acid reflux/GERD is AWFUL--- it can keep you

awake ALL night.

I hope the prevacid works for her

Peace Be With You,

~Pattie~

Piedmont Triad, NC

Mom to , age 12 & healthy, , age 9, Shwachman-Diamond Syndrome

and ph, age 8, Shwachman-Diamond Syndrome

Our family website: www.shwachman.50megs.com

_____

From: [mailto: ] On Behalf Of

jmfritze

Sent: Sunday, March 12, 2006 11:54 AM

Subject: prevacid

Ana's doc started her on prevacid yesterday. He thinks the " night

pains " or whatever they are may be reflux, though she has never spit

up a day in her life. I'll feel terrible if he is right and I

waited six months to even mention it to him. oh well. Does anyone

know if prevacid works pretty well, or is there something you all

have had better experiences with?

Also, I asked this doc, her primary, if he had many patients with

PID and he said yes he has had a few with transient hypogam, though

he said " but Ana's is a little more complex than that it looks

like " . What the heck does that mean? I should have asked him but

it flew right past me until I walked out the door and thought about

it. I know he had just that day been talking to the consulting

immunologists at IDF about her and going over her blood work. I

swear there is something they are not telling me yet. Frustrating.

So then I sit there and look at her blood work and try to figure out

what they are talking about. Her supressor T-cells are low, does

that mean anything? And her overall T-cell numbers, but not the

helper or NK cells. Any thoughts. It's on my list for the next

visit.

Oh, ana is starting to feel a little better from the ear infection.

Her fever isn't going as high and she slept NEXT to me last night,

vs. on my face/chest. That was nice of her. Thanks for all of the

support and laughs. Why does it get me so down everytime she gets

sick, you think I'd expect it by now. But for about 24 hours I snap

at my husband and just want to cry. You guys cut that short this

time though, laughter is the best medicine. Thanks.

Ana 13 mo, IgG def, FTT, atopic disease, reflux??? and ????

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to:

/messages

[Guest guest]

My boys both take 15mg twice a day. We started off on 15mg once a day

and they were still having problems.

Peace Be With You,

~Pattie~

Piedmont Triad, NC

Mom to , age 12 & healthy, , age 9, Shwachman-Diamond Syndrome

and ph, age 8, Shwachman-Diamond Syndrome

Our family website: www.shwachman.50megs.com

_____

From: [mailto: ] On Behalf Of

lynne llerrom

Sent: Sunday, March 12, 2006 12:54 PM

ped

Subject: prevacid

Sis has been on prevacid. Right now the insurance is kicking it back saying

she is on too high a dose. Our doc is fighting it right now. What is the

dosage yall are on ?

Lynne (mom to Sis, reflux, pseudo tumor cerebri, asthma, Igg def,

subclasses)

Love, hugs and kisses

---------------------------------

Bring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

I think it is called Prevacid Solutab. has had 3 or 4 endoscopies, 2

pH probes and ph has had 2 endoscopies. stopped breathing

several years ago and one of the theories was that he choked when he

refluxed-but we'll never really know. He caught a nasty cold and stopped

breathing... they did a pH probe then to check things out. We've done the

pH probe in-hospital and one at home.

Peace Be With You,

~Pattie~

Piedmont Triad, NC

Mom to , age 12 & healthy, , age 9, Shwachman-Diamond Syndrome

and ph, age 8, Shwachman-Diamond Syndrome

Our family website: www.shwachman.50megs.com

_____

From: [mailto: ] On Behalf Of

osdbmom

Sent: Sunday, March 12, 2006 1:09 PM

Subject: prevacid

My boys took prevacid for a while before their surgery. Donovan never

spit up, but constantly cleared his throat. Brennan spit up all the

time. But, despite the difference in symptoms, they both had reflux.

We pulled the capsule apart and put it in applesauce. I guess there is

a liquid kind now. It didnt work for my boys but their reflux was WAY

beyond normal.

I am kind of on this kick now, so Ill just tell you. B/c the boys had

such awful reflux, we put Savannah on it right away when she was dx

with asthma and having stomach pains. WE assumed. We did not test her,

b/c it seemed to make sense. Doing a trial of a drug is one thing, but

if your dr wants her on it long term, I would personally ask for her

to have a ph probe or something to definitely prove she has reflux.

Right now I feel terrible that Savannah was on a reflux med for over a

yr for no reason......so does her dr. But it seemed like it made sense

at the time.

FYI, Donovan used to never sleep at all. He woke up all the time in

the night, andwould often be up for the day by 3am. I was so tired. We

tried everything to get him to sleep, near the end of that period of

time we even tried spanking him to make him sleep(yes, I feel awful),

shutting his door, everything. I ended up putting in movie after movie

until a decent wake up time, the kid just couldnt sleep. Finally once

the reflux was resolved, he sleeps like a rock.....too much so, he

wets the bed all the time!!LOL cant win for losing. But reflux can

definitely cause the symptoms you describe, so its sure worth looking

into.

Valarie

_____

[Guest guest]

My 6.5 yr old (48lbs) is on 30mg once daily.

Mom to Grace 8 (THI, IgA def, Antigen proliferation defect, pneumococcal

antibody deficiency, mild asthma, chronic constipation)

Mom to Caelan 6 (IgG, IgM, IgA def, Antigen proliferation defect, pneumococcal

antibody def, asthma, Eosinophilic esophagitis, severe food allergy)

Mom to Ian 6/4/05 (GERD, otherwise incredibly healthy so far!)

[Guest guest]

" Ana's doc started her on prevacid yesterday. Does anyone know if

prevacid works pretty well, or is there something you all have had

better experiences with? "

Cole had horrible relux as an infant. I first noticed something was

different about him in the hospital. He seemed to " choke " on and

off. The doctors and nurses blew me off and told me he just needed

to clear everything out of his lungs from being in the womb for 9

months. Yeah, okay, whatever!!! This was not my first time with a

new baby and I'd never had my other boys have this trouble. Needless

to say, his first night home I think he would've choked and died had

he not been in a bassinet right next to me. I put him on his back

to sleep. I woke up with a " feeling " that something was wrong. I

checked him and he was blueish and was choking on spitup. YIKES!!!

I put a call in to the doc right away the next morning. She put him

on ZANTAC. It worked beautifully for him. Eventually, about 6

months later, we weaned him off of it. He did okay until recently.

We had to put him back on it now, he is 3 y.o. He weighs in at

36lbs. and he takes 2ml. 2x/day. It has helped him tremendously.

Don't beat yourself up for not bringing it up to the doctor sooner!

We all do the best we can with our kids. Unfortunately, kids are

not always " textbook " and they certainly didn't come with an Owners

Manual. :-) Good luck with the Prevacid.

-Rogena (Mom to 4 boys, including Cole -IgA & IgG Subclass Def,

GERD, possible Celiac)

[Guest guest]

I have personally found that prevacid helps with the reflux for sure. We

have not had any problems with it in the year we have been on it.

Cassie

jmfritze wrote:

> Ana's doc started her on prevacid yesterday. He thinks the " night

> pains " or whatever they are may be reflux, though she has never spit

> up a day in her life. I'll feel terrible if he is right and I

> waited six months to even mention it to him. oh well. Does anyone

> know if prevacid works pretty well, or is there something you all

> have had better experiences with?

>

> Also, I asked this doc, her primary, if he had many patients with

> PID and he said yes he has had a few with transient hypogam, though

> he said " but Ana's is a little more complex than that it looks

> like " . What the heck does that mean? I should have asked him but

> it flew right past me until I walked out the door and thought about

> it. I know he had just that day been talking to the consulting

> immunologists at IDF about her and going over her blood work. I

> swear there is something they are not telling me yet. Frustrating.

> So then I sit there and look at her blood work and try to figure out

> what they are talking about. Her supressor T-cells are low, does

> that mean anything? And her overall T-cell numbers, but not the

> helper or NK cells. Any thoughts. It's on my list for the next

> visit.

>

> Oh, ana is starting to feel a little better from the ear infection.

> Her fever isn't going as high and she slept NEXT to me last night,

> vs. on my face/chest. That was nice of her. Thanks for all of the

> support and laughs. Why does it get me so down everytime she gets

> sick, you think I'd expect it by now. But for about 24 hours I snap

> at my husband and just want to cry. You guys cut that short this

> time though, laughter is the best medicine. Thanks.

>

>

> Ana 13 mo, IgG def, FTT, atopic disease, reflux??? and ????

>

>

>

>

>

> This forum is open to parents and caregivers of children diagnosed

> with a Primary Immune Deficiency. Opinions or medical advice stated

> here are the sole responsibility of the poster and should not be taken

> as professional advice.

>

> To unsubscribe -unsubscribegroups (DOT)

> To search group archives go to:

> /messages

>

>

>

>

[Guest guest]

Our doctor is recommending my son try a trial of Prevacid, would it still be

safe to chelate with TDDMPS & ALA while taking this medication?