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Guest guest
Posted

Guess I should bookmark that sight, this is all so new to me! Eileen,

Fraziers mommy :)

Guest guest
Posted

Eileen,

It's a great resource--and it was created by our very own Kendra!

, Conor's mom

  • 2 months later...
Guest guest
Posted

In a message dated 8/7/2001 7:20:39 PM Pacific Daylight Time,

liliwigg@... writes:

<< Thanks for joining the RRMs and volunteering to help with

awareness! I envision 20 years from now CMT will be as commonly known as

cancer...maybe I am optimistic, but with all our small steps, WHO

knows???? >>

IN 20 years no will even know about CMT because we will have a treatment or

cure sooner then we all think.

in SO , CA

  • 3 years later...
Posted

Woo Hoo! Yeah!!!!

That was fast!

mom to na

> ,

> Looks like our insurance approved cap for medical necessity! I

think

> it will be covered for 80%, thanks for your help w/ the letter!

>

> Milan's mom CranioCap 8/04

  • 9 months later...
Guest guest
Posted

Thanks ! I will try one drop of ProEFA tomorrow and start my journal.

I know you get told this all the time but you are a wonderful resource and I

am grateful you are here for us to turn to.

D

  • 8 months later...
Guest guest
Posted

You're right ! I have to have shoes that are seamless. I have tried the NewBalance but want to try something in a lighter weight.

Thanks..paula

Guest guest
Posted

if you want light weight, take a look at Crocs.....my daughter, the respiratory therapist, says that is all you see on the staff at her hospital....gentle hugs! Marciapaula delarosa <pdelarosa@...> wrote: You're right ! I have to have shoes that are seamless. I have tried the NewBalance but want to try something in a lighter weight. Thanks..paula

Use Photomail to share photos without annoying attachments.

Guest guest
Posted

Yep, you are absolutely right about that! The nurse at my doctor's office wears them (chuckles)

-------Original Message-------

From: Marcia Stoyle

Date: 03/06/06 12:55:31

Rheumatoid Arthritis

Subject: Re: Thanks !

if you want light weight, take a look at Crocs.....my daughter, the respiratory therapist, says that is all you see on the staff at her hospital....gentle hugs! Marciapaula delarosa <pdelarosa@...> wrote:

You're right ! I have to have shoes that are seamless. I have tried the NewBalance but want to try something in a lighter weight.

Thanks..paula

Use Photomail to share photos without annoying attachments.

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