Re: What activities are you folks able to do?

[Guest guest]

I think volunteering is important and always try to work it into my

life somehow. There are many volunteer jobs involving phone calling--

perhaps you would get satisfaction out of helping others in such a

way. (although with 6 kids you are already doing a lot of giving--

listening, supporting, etc.) Most communities have a volunteer center

that helps individuals link up with agencies that need them.

Sierra

>

> My name is Miriam and I have severe RA that just keeps getting

> worse. I am 40 years old and at times, I feel like my life is

> over. I sit home all day every day and alternate between laying in

> bed watching TV and sitting in the living room watching TV. I

> generally have Dr. appointments 2-3 days a week and go for aquatic

> therapy 3x a week. Other than this, I don't leave my house!

>

> My husband is also home full time and takes care of everything. He

> asked me to send a note to the list and ask what others do with

> their time. What activites do you guys do, for those with more

> severe RA whose joints are swollen and deteriorated, who have had

> surgeries, who has constant swelling despite medications, chronic

> pain etc.

>

> I have 6 children and I hate them seeing me like this.

Thanksfully,

> they aren't so young anymore that they can do a lot for themselves

> and they can do things to help me as well.

>

> There has to be more to life than this. What else can I try to

do?

> What do you guys do?

>

> My current meds, just so you have some idea!

>

> Abatacept/Orencia, Methotrexate (injectable), Lodine XL for

> inflamation, Neurontin, Topomax, Avinza (A morpphine based

> narcotic), Actiq (Oral Fentanyl sucker for breakthrough pain),

> Skelaxin, and I can't even think of what else right now. I do also

> take meds for the depression though.

>

> Please Help,

> Miriam

>

[Guest guest]

Miriam, I do not have it as bad as you right now. But when I first got diagnosed, I was lying in bed all the time from the pain. When I was "layed up" I worked puzzles, read books, played games on my laptop. Another very rewarding thing I did was volunteer to do phone solicitation for the local dog shelter. My goodness, I would think that your rheumy could change some of your meds to make you more mobile. You are more than welcome to talk about it some more w/ me if you need to, I am a good listener/reader. Good luck, and god bless in WVmpalevsky_bunnylover <mpalevsky@...> wrote: My name is Miriam and I have severe RA that just keeps getting worse. I am 40 years old and at times, I feel like my life is over. I sit home all day every day and alternate between laying in bed watching TV and sitting in the living room watching TV. I generally have Dr. appointments 2-3 days a week and go for aquatic therapy 3x a week. Other than this, I don't leave my house!My husband is also home full time and takes care of everything. He asked me to send a note to the list and ask what others do with their time. What activites do you guys do, for those with more severe RA whose joints are swollen and deteriorated, who have had surgeries, who has constant swelling despite medications, chronic pain etc.I have 6 children and I hate them seeing me like this. Thanksfully, they aren't so young anymore that they can do a lot for themselves

and they can do things to help me as well. There has to be more to life than this. What else can I try to do? What do you guys do?My current meds, just so you have some idea!Abatacept/Orencia, Methotrexate (injectable), Lodine XL for inflamation, Neurontin, Topomax, Avinza (A morpphine based narcotic), Actiq (Oral Fentanyl sucker for breakthrough pain), Skelaxin, and I can't even think of what else right now. I do also take meds for the depression though.Please Help,Miriam

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