Re: Desperate/Help

[Guest guest]

Nothing wrong with seeing a neurologist. A CT scan will confirm or deny sinus

issues as the cause. It will also give insight into migraines.

I do not like CT's beause of the XRays, either, but I am scheduled to have a no

contrast CT on June 2nd because of my headaches.

You need to keep a log of what he does, what he eats, what is happening. Does he

talk? What does he say right before, after, or when this is happening? Just my

guess, but his head is probably hurting. We are headed into summer, and maybe he

has a head cold. Does he have sinus drainage? (runny nose)

Too much TV and computer (or actually even very little) can cause a seizure.

Have you had him checked for seizures? You can adjust the brightness of the

computer screen and this may help.

More information as to what was happening before the episodes would help. My

guess is that he eventually ceased this behavior and he is not currently banging

his head? What stopped it? The motrin cannot last forever and really shouldn't.

(Which reminds me, Children's Motrin was recalled; if you are using the brand

name, I would check it before continuing. My son had a severe mast cell

reaction, 2 ER visits, a mast cell tumor/biopsy, and so forth from the dye free

motrin.)

>

> If anyone can comment or give advice, please do.

>

> I have been on this board for a few weeks now with the same senario. 17 year

old started flipping out and head banging for no reason. Nothing is preceding

it, unless the tv or the computer is somehow causing this.

>

> He has had an MRI and EEG. Doc has placed on Risperdal(1mg) which isn't

helping. He can't get past the Autism part. When he was younger, he had some SI

behaviors, mostly handbiting if he was frustrated and head banging if his

allergies were big.

>

> We were in a car accident 2 years ago. I had whiplash and still have

headaches. He complained with his neck and upper back for about 3 months. His

doctor said he didn't think there was anything to it, just some soreness. This

kid has had allergies since he was 5 and can't take the allegra they prescribed

for him. His Dad has allergy headaches so bad he can't stand it. We have a

family history of migraines.

>

> This is my theory. This kid is in pain; either from the IBS or some kind of

headache or both and can't tell us. The meds they gave him for allergies have a

panic attack component(doesn't take anymore) and IBS med has a psychosis side

effect(doesn't take anymore) so now he is left with the pain. There is no

anticedent here. He just stops whatever he is doing and starts mashing his nose

or the top of his head and within 30 sec is beating or banging his head. After 1

dose of children's motrin he calms down but not completely. After the 2nd dose

he is a different person.

>

> I don't know what to do. Don't know how to convince the doctor to look for

these issues. All he will do is look at the tests and lab results and say there

is nothing functionally wrong. The only person I can get a referral to is the

neurologist. Does he need to be checked out by a chiropractor or an allergist?

We would have to do that on our own. Since he is close to 18 no other

pediatrician will see him and when you mention non-verbal autism to an adult

doctor you would think this kid had leprosy.

>

[Guest guest]

Hi Drissa,

Comments interspersed.

S S

Desperate/Help

Posted by: " drissia wright " ritzywright@... ritzywright

Fri May 28, 2010 1:41 am (PDT)

If anyone can comment or give advice, please do.

I have been on this board for a few weeks now with the same senario. 17 year old

started flipping out and head banging for no reason. Nothing is preceding it,

unless the tv or the computer is somehow causing this.

He has had an MRI and EEG. Doc has placed on Risperdal(1mg) which isn't helping.

He can't get past the Autism part.

*Sounds like a different doctor is in order. Any recent dental work or

vaccines?

When he was younger, he had some SI behaviors, mostly handbiting if he was

frustrated and head banging if his allergies were big.

*Is it allergy season where you live? Any renovations/new odors at home, school

or other places he spends time? Is he around smokers?

We were in a car accident 2 years ago. I had whiplash and still have headaches.

He complained with his neck and upper back for about 3 months. His doctor said

he didn't think there was anything to it, just some soreness. This kid has had

allergies since he was 5 and can't take the allegra they prescribed for him. His

Dad has allergy headaches so bad he can't stand it. We have a family history of

migraines.

*Have you considered NAET www.naet.com ? Consider Cranial Sacral Therapy and/or

chiropractic.

This is my theory. This kid is in pain; either from the IBS or some kind of

headache or both and can't tell us. The meds they gave him for allergies have a

panic attack component(doesn't take anymore) and IBS med has a psychosis side

effect(doesn't take anymore) so now he is left with the pain. There is no

anticedent here. He just stops whatever he is doing and starts mashing his nose

or the top of his head and within 30 sec is beating or banging his head. After 1

dose of children's motrin he calms down but not completely. After the 2nd dose

he is a different person.

*Do these episodes occur at similar times each day? If there's a pattern to the

times, I would consider giving the Motrin 15 minutes to a half hour before the

episodes typically occur to see if that helps. Any relationship to transitions

from one activity to another? What's his diet like? At that age junk food

consumption tends to increase. Is he eating anything containing sugar

substitutes? Is he on a yeast protocol?

I don't know what to do. Don't know how to convince the doctor to look for these

issues. All he will do is look at the tests and lab results and say there is

nothing functionally wrong. The only person I can get a referral to is the

neurologist. Does he need to be checked out by a chiropractor or an allergist?

We would have to do that on our own. Since he is close to 18 no other

pediatrician will see him and when you mention non-verbal autism to an adult

doctor you would think this kid had leprosy.

*Does he have any method of communication? PECS, sign, a communication device?

[Guest guest]

No vaccines in a long time; no dental work either. He is due for a cleaning next

month, but has no fillings. No one smokes, but we do live between a large

vegetable farm, a dairy and a chicken farm. What is Naet. We do have

chiropractors close. His diet is awful; no artificial sweeteners, but drinks

lots of soda and eats KFC a couple of times a day. He has been doing this ever

since the nutritionist said " Let him have what he will eat to get the calories

in him " . He weighs 110 lbs @17. The episodes typically occur between 4 and 6 pm.

Not on a yeast protocol. In fact, every thing I try for yeast sends him over the

top behaviorally and we can barely stand what's going on already. He can talk

when he chooses to ask for what he wants or to respond in one or two words. He

has a dynavox which he hates and doesn't understand. He use to use a picture

schedule and we are again in the process of sessions at teacch to do a new

schedule and communications system.

They feel that if he is in pain, his language goes right out the window.

From: Shepard Salzer <_Shepard@...>

Subject: [ ] Re: Desperate/Help

autism treatment

Date: Friday, May 28, 2010, 8:26 AM

 

Hi Drissa,

Comments interspersed.

S S

Desperate/Help

Posted by: " drissia wright " ritzywright@... ritzywright

Fri May 28, 2010 1:41 am (PDT)

If anyone can comment or give advice, please do.

I have been on this board for a few weeks now with the same senario. 17 year old

started flipping out and head banging for no reason. Nothing is preceding it,

unless the tv or the computer is somehow causing this.

He has had an MRI and EEG. Doc has placed on Risperdal(1mg) which isn't helping.

He can't get past the Autism part.

*Sounds like a different doctor is in order. Any recent dental work or vaccines?

When he was younger, he had some SI behaviors, mostly handbiting if he was

frustrated and head banging if his allergies were big.

*Is it allergy season where you live? Any renovations/new odors at home, school

or other places he spends time? Is he around smokers?

We were in a car accident 2 years ago. I had whiplash and still have headaches.

He complained with his neck and upper back for about 3 months. His doctor said

he didn't think there was anything to it, just some soreness. This kid has had

allergies since he was 5 and can't take the allegra they prescribed for him. His

Dad has allergy headaches so bad he can't stand it. We have a family history of

migraines.

*Have you considered NAET www.naet.com ? Consider Cranial Sacral Therapy and/or

chiropractic.

This is my theory. This kid is in pain; either from the IBS or some kind of

headache or both and can't tell us. The meds they gave him for allergies have a

panic attack component(doesn't take anymore) and IBS med has a psychosis side

effect(doesn't take anymore) so now he is left with the pain. There is no

anticedent here. He just stops whatever he is doing and starts mashing his nose

or the top of his head and within 30 sec is beating or banging his head. After 1

dose of children's motrin he calms down but not completely. After the 2nd dose

he is a different person.

*Do these episodes occur at similar times each day? If there's a pattern to the

times, I would consider giving the Motrin 15 minutes to a half hour before the

episodes typically occur to see if that helps. Any relationship to transitions

from one activity to another? What's his diet like? At that age junk food

consumption tends to increase. Is he eating anything containing sugar

substitutes? Is he on a yeast protocol?

I don't know what to do. Don't know how to convince the doctor to look for these

issues. All he will do is look at the tests and lab results and say there is

nothing functionally wrong. The only person I can get a referral to is the

neurologist. Does he need to be checked out by a chiropractor or an allergist?

We would have to do that on our own. Since he is close to 18 no other

pediatrician will see him and when you mention non-verbal autism to an adult

doctor you would think this kid had leprosy.

*Does he have any method of communication? PECS, sign, a communication device?

[Guest guest]

We do use the dye free motrin, except now are using an store brand since they

recalled the other. What caused all of those reactions? We buy dye free so there

will be no reactions. He has had an EEG to check for seizures and an MRI w/wo

contrast. They found nothing. No runny nose; just stuffiness. The behavior stops

when he runs down or we can get him calm enough to get in a swing.

From: agirlnamedsuess21 <agirlnamedsuess@...>

Subject: [ ] Re: Desperate/Help

Date: Friday, May 28, 2010, 8:20 AM

 

Nothing wrong with seeing a neurologist. A CT scan will confirm or deny sinus

issues as the cause. It will also give insight into migraines.

I do not like CT's beause of the XRays, either, but I am scheduled to have a no

contrast CT on June 2nd because of my headaches.

You need to keep a log of what he does, what he eats, what is happening. Does he

talk? What does he say right before, after, or when this is happening? Just my

guess, but his head is probably hurting. We are headed into summer, and maybe he

has a head cold. Does he have sinus drainage? (runny nose)

Too much TV and computer (or actually even very little) can cause a seizure.

Have you had him checked for seizures? You can adjust the brightness of the

computer screen and this may help.

More information as to what was happening before the episodes would help. My

guess is that he eventually ceased this behavior and he is not currently banging

his head? What stopped it? The motrin cannot last forever and really shouldn't.

(Which reminds me, Children's Motrin was recalled; if you are using the brand

name, I would check it before continuing. My son had a severe mast cell

reaction, 2 ER visits, a mast cell tumor/biopsy, and so forth from the dye free

motrin.)

>

> If anyone can comment or give advice, please do.

>

> I have been on this board for a few weeks now with the same senario. 17 year

old started flipping out and head banging for no reason. Nothing is preceding

it, unless the tv or the computer is somehow causing this.

>

> He has had an MRI and EEG. Doc has placed on Risperdal(1mg) which isn't

helping. He can't get past the Autism part. When he was younger, he had some SI

behaviors, mostly handbiting if he was frustrated and head banging if his

allergies were big.

>

> We were in a car accident 2 years ago. I had whiplash and still have

headaches. He complained with his neck and upper back for about 3 months. His

doctor said he didn't think there was anything to it, just some soreness. This

kid has had allergies since he was 5 and can't take the allegra they prescribed

for him. His Dad has allergy headaches so bad he can't stand it. We have a

family history of migraines.

>

> This is my theory. This kid is in pain; either from the IBS or some kind of

headache or both and can't tell us. The meds they gave him for allergies have a

panic attack component(doesn't take anymore) and IBS med has a psychosis side

effect(doesn't take anymore) so now he is left with the pain. There is no

anticedent here. He just stops whatever he is doing and starts mashing his nose

or the top of his head and within 30 sec is beating or banging his head. After 1

dose of children's motrin he calms down but not completely. After the 2nd dose

he is a different person.

>

> I don't know what to do. Don't know how to convince the doctor to look for

these issues. All he will do is look at the tests and lab results and say there

is nothing functionally wrong. The only person I can get a referral to is the

neurologist. Does he need to be checked out by a chiropractor or an allergist?

We would have to do that on our own. Since he is close to 18 no other

pediatrician will see him and when you mention non-verbal autism to an adult

doctor you would think this kid had leprosy.

>

[Guest guest]

>

> If anyone can comment or give advice, please do.

>

> I have been on this board for a few weeks now with the same senario. 17 year

old started flipping out and head banging for no reason. Nothing is preceding

it, unless the tv or the computer is somehow causing this.

>

> He has had an MRI and EEG.

Drissia,

Were the exams done before or after the car accident? Dan Amen talks about kids

developing behaviour problems and ADD as a result of head injuries. He also says

that most mainstream doctors don't understand that head injuries can result in

behavioural changes, moodiness, aggression, pain or other issues as a result.

Amen prescribes meds based on his SPECT scans but he also recommends

neurofeedback, which helps some patients do without medication.

Maybe it's worth getting your son's head scanned again if it wasn't done before

the accident.

I hope you find someone who can help you understand what is going on in your

son.

Best wishes,

[Guest guest]

The scans were just done last month, after he started having the behaviors,

because it sounded to the doctors like partial temporal lobe seizures.

 

I believe he developed ptsd because his anxiety and fear increased dramatically.

He developed more ocd behaviors afterward, but I understand from what I was told

that scans can't pick up deep tissue bruising. I received a head injury that

took 8 staples and about a week to remember the accident.

From: Andree <mam78@...>

Subject: [ ] Re: Desperate/Help

Date: Friday, May 28, 2010, 12:27 PM

 

>

> If anyone can comment or give advice, please do.

>

> I have been on this board for a few weeks now with the same senario. 17 year

old started flipping out and head banging for no reason. Nothing is preceding

it, unless the tv or the computer is somehow causing this.

>

> He has had an MRI and EEG.

Drissia,

Were the exams done before or after the car accident? Dan Amen talks about kids

developing behaviour problems and ADD as a result of head injuries. He also says

that most mainstream doctors don't understand that head injuries can result in

behavioural changes, moodiness, aggression, pain or other issues as a result.

Amen prescribes meds based on his SPECT scans but he also recommends

neurofeedback, which helps some patients do without medication.

Maybe it's worth getting your son's head scanned again if it wasn't done before

the accident.

I hope you find someone who can help you understand what is going on in your

son.

Best wishes,

[Guest guest]

Try to change from KFC to something else. My NT daughter had always

headaches all day and night that would end with vomiting every time that she

ate KFC. I doubt that they use MSG in their tasty chicken.

Mimoza

On Fri, May 28, 2010 at 8:58 AM, drissia wright <ritzywright@...>wrote:

>

>

> No vaccines in a long time; no dental work either. He is due for a cleaning

> next month, but has no fillings. No one smokes, but we do live between a

> large vegetable farm, a dairy and a chicken farm. What is Naet. We do have

> chiropractors close. His diet is awful; no artificial sweeteners, but drinks

> lots of soda and eats KFC a couple of times a day. He has been doing this

> ever since the nutritionist said " Let him have what he will eat to get the

> calories in him " . He weighs 110 lbs @17. The episodes typically occur

> between 4 and 6 pm. Not on a yeast protocol. In fact, every thing I try for

> yeast sends him over the top behaviorally and we can barely stand what's

> going on already. He can talk when he chooses to ask for what he wants or to

> respond in one or two words. He has a dynavox which he hates and doesn't

> understand. He use to use a picture schedule and we are again in the process

> of sessions at teacch to do a new schedule and communications system.

> They feel that if he is in pain, his language goes right out the window.

>

>

>

> From: Shepard Salzer

<_Shepard@...<_Shepard%40excite.com>

> >

> Subject: [ ] Re: Desperate/Help

> autism treatment <autism treatment%40>

> Date: Friday, May 28, 2010, 8:26 AM

>

>

>

>

> Hi Drissa,

> Comments interspersed.

> S S

>

> Desperate/Help

> Posted by: " drissia wright "

ritzywright@...<ritzywright%40>ritzywright

> Fri May 28, 2010 1:41 am (PDT)

>

> If anyone can comment or give advice, please do.

>

> I have been on this board for a few weeks now with the same senario. 17

> year old started flipping out and head banging for no reason. Nothing is

> preceding it, unless the tv or the computer is somehow causing this.

>

> He has had an MRI and EEG. Doc has placed on Risperdal(1mg) which isn't

> helping. He can't get past the Autism part.

>

> *Sounds like a different doctor is in order. Any recent dental work or

> vaccines?

>

> When he was younger, he had some SI behaviors, mostly handbiting if he was

> frustrated and head banging if his allergies were big.

>

> *Is it allergy season where you live? Any renovations/new odors at home,

> school or other places he spends time? Is he around smokers?

>

> We were in a car accident 2 years ago. I had whiplash and still have

> headaches. He complained with his neck and upper back for about 3 months.

> His doctor said he didn't think there was anything to it, just some

> soreness. This kid has had allergies since he was 5 and can't take the

> allegra they prescribed for him. His Dad has allergy headaches so bad he

> can't stand it. We have a family history of migraines.

>

> *Have you considered NAET www.naet.com ? Consider Cranial Sacral Therapy

> and/or chiropractic.

>

> This is my theory. This kid is in pain; either from the IBS or some kind of

> headache or both and can't tell us. The meds they gave him for allergies

> have a panic attack component(doesn't take anymore) and IBS med has a

> psychosis side effect(doesn't take anymore) so now he is left with the pain.

> There is no anticedent here. He just stops whatever he is doing and starts

> mashing his nose or the top of his head and within 30 sec is beating or

> banging his head. After 1 dose of children's motrin he calms down but not

> completely. After the 2nd dose he is a different person.

>

> *Do these episodes occur at similar times each day? If there's a pattern to

> the times, I would consider giving the Motrin 15 minutes to a half hour

> before the episodes typically occur to see if that helps. Any relationship

> to transitions from one activity to another? What's his diet like? At that

> age junk food consumption tends to increase. Is he eating anything

> containing sugar substitutes? Is he on a yeast protocol?

>

> I don't know what to do. Don't know how to convince the doctor to look for

> these issues. All he will do is look at the tests and lab results and say

> there is nothing functionally wrong. The only person I can get a referral to

> is the neurologist. Does he need to be checked out by a chiropractor or an

> allergist? We would have to do that on our own. Since he is close to 18 no

> other pediatrician will see him and when you mention non-verbal autism to an

> adult doctor you would think this kid had leprosy.

>

> *Does he have any method of communication? PECS, sign, a communication

> device?

>

>

[Guest guest]

They do use a bunch of MSG in all of their dishes, even the mashed potatoes and

gravy, but we have tried every fried chicken recipe in the bunch. He won't them

from anywhere else but 's nuggets and doesn't like them. I have been trying

to change for years, with no luck.

> >

> > From: Shepard Salzer

<_Shepard@...<_Shepard%40excite.com>

> > >

> > Subject: [ ] Re: Desperate/Help

> > autism treatment

> <autism treatment%40>

> > Date: Friday, May 28, 2010, 8:26 AM

> >

> >

> >

> >

> > Hi Drissa,

> > Comments interspersed.

> > S S

> >

> > Desperate/Help

> > Posted by: " drissia wright "

ritzywright@...<ritzywright%40>ritzywright

> > Fri May 28, 2010 1:41 am (PDT)

> >

> > If anyone can comment or give advice, please do.

> >

> > I have been on this board for a few weeks now with the

> same senario. 17

> > year old started flipping out and head banging for no

> reason. Nothing is

> > preceding it, unless the tv or the computer is somehow

> causing this.

> >

> > He has had an MRI and EEG. Doc has placed on

> Risperdal(1mg) which isn't

> > helping. He can't get past the Autism part.

> >

> > *Sounds like a different doctor is in order. Any

> recent dental work or

> > vaccines?

> >

> > When he was younger, he had some SI behaviors, mostly

> handbiting if he was

> > frustrated and head banging if his allergies were

> big.

> >

> > *Is it allergy season where you live? Any

> renovations/new odors at home,

> > school or other places he spends time? Is he around

> smokers?

> >

> > We were in a car accident 2 years ago. I had whiplash

> and still have

> > headaches. He complained with his neck and upper back

> for about 3 months.

> > His doctor said he didn't think there was anything to

> it, just some

> > soreness. This kid has had allergies since he was 5

> and can't take the

> > allegra they prescribed for him. His Dad has allergy

> headaches so bad he

> > can't stand it. We have a family history of

> migraines.

> >

> > *Have you considered NAET www.naet.com ? Consider

> Cranial Sacral Therapy

> > and/or chiropractic.

> >

> > This is my theory. This kid is in pain; either from

> the IBS or some kind of

> > headache or both and can't tell us. The meds they gave

> him for allergies

> > have a panic attack component(doesn't take anymore)

> and IBS med has a

> > psychosis side effect(doesn't take anymore) so now he

> is left with the pain.

> > There is no anticedent here. He just stops whatever he

> is doing and starts

> > mashing his nose or the top of his head and within 30

> sec is beating or

> > banging his head. After 1 dose of children's motrin he

> calms down but not

> > completely. After the 2nd dose he is a different

> person.

> >

> > *Do these episodes occur at similar times each day? If

> there's a pattern to

> > the times, I would consider giving the Motrin 15

> minutes to a half hour

> > before the episodes typically occur to see if that

> helps. Any relationship

> > to transitions from one activity to another? What's

> his diet like? At that

> > age junk food consumption tends to increase. Is he

> eating anything

> > containing sugar substitutes? Is he on a yeast

> protocol?

> >

> > I don't know what to do. Don't know how to convince

> the doctor to look for

> > these issues. All he will do is look at the tests and

> lab results and say

> > there is nothing functionally wrong. The only person I

> can get a referral to

> > is the neurologist. Does he need to be checked out by

> a chiropractor or an

> > allergist? We would have to do that on our own. Since

> he is close to 18 no

> > other pediatrician will see him and when you mention

> non-verbal autism to an

> > adult doctor you would think this kid had leprosy.

> >

> > *Does he have any method of communication? PECS, sign,

> a communication

> > device?

> >

> >

[Guest guest]

Comments interspersed.

S S

Re: Desperate/Help

Posted by: " drissia wright " ritzywright@... ritzywright

Fri May 28, 2010 5:59 am (PDT)

No vaccines in a long time; no dental work either. He is due for a cleaning next

month, but has no fillings. No one smokes, but we do live between a large

vegetable farm, a dairy and a chicken farm.

*Wonder what they're doing different at these farms. Are you on well water?

Have you had it tested?

What is Naet.

*Allergy elimination treatment using acupressure/acupuncture which can be done

with a proxy. www.naet.com

We do have chiropractors close. His diet is awful; no artificial sweeteners, but

drinks lots of soda and eats KFC a couple of times a day.

*Yikes! Have the sodas changed their " recipe " lately or is he drinking a

different kind/brand? Phosphorus in sodas can cause problems.

He has been doing this ever since the nutritionist said " Let him have what he

will eat to get the calories in him " . He weighs 110 lbs @17.

*Empty calories defeat the purpose.

The episodes typically occur between 4 and 6 pm.

*Before or after he eats? If before, has his blood sugar been checked? What

time does he eat lunch? What else is going on at that time? Is that when other

family members get home?

Not on a yeast protocol. In fact, every thing I try for yeast sends him over

the top behaviorally and we can barely stand what's going on already.

*Has he been on lots of antibiotics over his lifetime? Have you tried American

Health chewable probiotics? We get them at WFM.

He can talk when he chooses to ask for what he wants or to respond in one or two

words. He has a dynavox which he hates and doesn't understand.

If he doesn't understand it someone needs to simplify it. Using the Dynavox or

PECs I would ask about pain (particularly trying to determine if he has an

earache/infection, (headache), UTI, or tooth ache or ask a doctor to rule those

out. Those are often undiagnosed among nonverbal folks and often result in

aggression/SIB. Any chance wisdom teeth coming in?

He use to use a picture schedule and we are again in the process of sessions at

teacch to do a new schedule and communications system.

They feel that if he is in pain, his language goes right out the window.

*Makes sense.

[Guest guest]

Hi Drissia,

Sorry I misspelled your name earlier. Oops, I didn't realize they recalled the

dye-free. Interesting that swing helps, that may be a clue worth following up

on. Has swinging helped in the past as well or is that new? What about trying

a swinging break at 3:30 or 3:45 to see if you can head off whatever's going on.

S S

Re: Desperate/Help

Posted by: " drissia wright " ritzywright@... ritzywright

Fri May 28, 2010 6:14 am (PDT)

We do use the dye free motrin, except now are using an store brand since they

recalled the other. What caused all of those reactions? We buy dye free so there

will be no reactions. He has had an EEG to check for seizures and an MRI w/wo

contrast. They found nothing. No runny nose; just stuffiness. The behavior stops

when he runs down or we can get him calm enough to get in a swing.

[Guest guest]

Was it a sleep deprived EEG or scheduled to occur between 4 & 6 pm? Do the

behaviors appear to occur every day between 4-6? Windows open? Does he have

hypersensitive hearing or smell? What happens at the neighboring farms at that

time of day? That's often milking time, I wonder if he hears and is bothered by

the milking machines...or whatever feeds the chickens?

S S

Re: Desperate/Help

Posted by: " drissia wright " ritzywright@... ritzywright

Fri May 28, 2010 10:32 am (PDT)

The scans were just done last month, after he started having the behaviors,

because it sounded to the doctors like partial temporal lobe seizures.

[Guest guest]

Re: Desperate/Help

Posted by: " drissia wright " ritzywright@... ritzywright

Fri May 28, 2010 10:32 am (PDT)

What's being sprayed at the vegetable farm?

S S

[Guest guest]

I have no idea.

From: Shepard Salzer <_Shepard@...>

Subject: [ ] Re: Desperate/Help

autism treatment

Date: Friday, May 28, 2010, 5:41 PM

 

Re: Desperate/Help

Posted by: " drissia wright " ritzywright@... ritzywright

Fri May 28, 2010 10:32 am (PDT)

What's being sprayed at the vegetable farm?

S S

[Guest guest]

Never thought of any of that. No, the EEG was not sleep deprived, it took place

at one of his best times of the day 11am. It was done with a strobe light for a

couple of minutes. The windows in this house are never open. We live on a dirt

road. The dust would be too bad. We have a heat pump and central air and change

the filters once a month. We do have carpet on the floors. He has hypersensitive

everything. This week I had to go back to cutting the tags out of his clothes.

From: Shepard Salzer <_Shepard@...>

Subject: [ ] Re: Desperate/Help

autism treatment

Date: Friday, May 28, 2010, 5:40 PM

 

Was it a sleep deprived EEG or scheduled to occur between 4 & 6 pm? Do the

behaviors appear to occur every day between 4-6? Windows open? Does he have

hypersensitive hearing or smell? What happens at the neighboring farms at that

time of day? That's often milking time, I wonder if he hears and is bothered by

the milking machines...or whatever feeds the chickens?

S S

Re: Desperate/Help

Posted by: " drissia wright " ritzywright@... ritzywright

Fri May 28, 2010 10:32 am (PDT)

The scans were just done last month, after he started having the behaviors,

because it sounded to the doctors like partial temporal lobe seizures.

[Guest guest]

Good idea. I'll give it a try.

From: Shepard Salzer <_Shepard@...>

Subject: [ ] Re: Desperate/Help

autism treatment

Date: Friday, May 28, 2010, 5:35 PM

 

Hi Drissia,

Sorry I misspelled your name earlier. Oops, I didn't realize they recalled the

dye-free. Interesting that swing helps, that may be a clue worth following up

on. Has swinging helped in the past as well or is that new? What about trying a

swinging break at 3:30 or 3:45 to see if you can head off whatever's going on.

S S

Re: Desperate/Help

Posted by: " drissia wright " ritzywright@... ritzywright

Fri May 28, 2010 6:14 am (PDT)

We do use the dye free motrin, except now are using an store brand since they

recalled the other. What caused all of those reactions? We buy dye free so there

will be no reactions. He has had an EEG to check for seizures and an MRI w/wo

contrast. They found nothing. No runny nose; just stuffiness. The behavior stops

when he runs down or we can get him calm enough to get in a swing.

[Guest guest]

We are on well water. It is hard water and has a taste like minerals, so we

drink bottled deerpark and used a Brita filter for the other water. The only

water he would come in contact with is in the tub and he stays in there as

little as possible.

 

He has always drunk Sundrop. We buy the canned Sundrops that are caffeine free

because the regular have the most caffeine and sugar of any on the market. They

don't sell bottled caffeine free. A couple of family members told us their

doctors said they couldn't drink Sundrop because they cause IBS and kidney

stones. They were doing better on Cokes, so we switched to Cokes a while back,

but he doesn't care for those. He was just requesting to go to the neighborhood

store and get Sundrop Icees made with regular Sundrop. Since he was just

drinking more of those we let him switch back to caffeine free Sundrop. I know

it sounds crazy, but he is drinking Sundrop again. They are addictive. What kind

of problems does phospherous cause? That would be cokes. Sundrop has yellow

dyes.

 

Blood sugar is low 76 2 hours after he eats. Everyone gets home at 4 pm. He ate

lunch at noon and has usually been out in the community for 2 hours.

 

He has taken a lot of antibiotics. Started his life with low blood sugar and

needed glucose. He was being breast fed in the hospital while I was on

intravenous antibiotics. Came home from the hospital with a yeast infection.

Funny thing was it wasn't from me. At 6 months had thrush. Most of his young

life he had recurring sinus and ear infections. We have had him on probiotics of

one kind or another for the last few years, but he seemed to have a problem with

these last ones we got from Kirkman. 3 mil. lactobaccillus.

 

My older son suggested that he may have impacted wisdom teeth, because he did at

that age. The dentist is going to take some xrays, but said there was no

indication; no swelling or anything. He does have 2 tiny cavities that will need

to be filled within a few months he said, but nothing to worry about now. I know

his allergies are bad.

 

I tried to answer your questions the best I knew. Thanks for your concern.

From: Shepard Salzer <_Shepard@...>

Subject: [ ] Re: Desperate/Help

autism treatment

Date: Friday, May 28, 2010, 5:27 PM

 

Comments interspersed.

S S

Re: Desperate/Help

Posted by: " drissia wright " ritzywright@... ritzywright

Fri May 28, 2010 5:59 am (PDT)

No vaccines in a long time; no dental work either. He is due for a cleaning next

month, but has no fillings. No one smokes, but we do live between a large

vegetable farm, a dairy and a chicken farm.

*Wonder what they're doing different at these farms. Are you on well water? Have

you had it tested?

What is Naet.

*Allergy elimination treatment using acupressure/acupuncture which can be done

with a proxy. www.naet.com

We do have chiropractors close. His diet is awful; no artificial sweeteners, but

drinks lots of soda and eats KFC a couple of times a day.

*Yikes! Have the sodas changed their " recipe " lately or is he drinking a

different kind/brand? Phosphorus in sodas can cause problems.

He has been doing this ever since the nutritionist said " Let him have what he

will eat to get the calories in him " . He weighs 110 lbs @17.

*Empty calories defeat the purpose.

The episodes typically occur between 4 and 6 pm.

*Before or after he eats? If before, has his blood sugar been checked? What time

does he eat lunch? What else is going on at that time? Is that when other family

members get home?

Not on a yeast protocol. In fact, every thing I try for yeast sends him over the

top behaviorally and we can barely stand what's going on already.

*Has he been on lots of antibiotics over his lifetime? Have you tried American

Health chewable probiotics? We get them at WFM.

He can talk when he chooses to ask for what he wants or to respond in one or two

words. He has a dynavox which he hates and doesn't understand.

If he doesn't understand it someone needs to simplify it. Using the Dynavox or

PECs I would ask about pain (particularly trying to determine if he has an

earache/infection, (headache), UTI, or tooth ache or ask a doctor to rule those

out. Those are often undiagnosed among nonverbal folks and often result in

aggression/SIB. Any chance wisdom teeth coming in?

He use to use a picture schedule and we are again in the process of sessions at

teacch to do a new schedule and communications system.

They feel that if he is in pain, his language goes right out the window.

*Makes sense.

[Guest guest]

Where do you live?

>

>

> From: Shepard Salzer <_Shepard@...>

> Subject: [ ] Re: Desperate/Help

> autism treatment

> Date: Friday, May 28, 2010, 5:27 PM

>

>

>  

>

>

>

> Comments interspersed.

> S S

>

> Re: Desperate/Help

> Posted by: " drissia wright " ritzywright@... ritzywright

> Fri May 28, 2010 5:59 am (PDT)

>

> No vaccines in a long time; no dental work either. He is due for a cleaning

next month, but has no fillings. No one smokes, but we do live between a large

vegetable farm, a dairy and a chicken farm.

>

> *Wonder what they're doing different at these farms. Are you on well water?

Have you had it tested?

>

> What is Naet.

>

> *Allergy elimination treatment using acupressure/acupuncture which can be done

with a proxy. www.naet.com

>

> We do have chiropractors close. His diet is awful; no artificial sweeteners,

but drinks lots of soda and eats KFC a couple of times a day.

>

> *Yikes! Have the sodas changed their " recipe " lately or is he drinking a

different kind/brand? Phosphorus in sodas can cause problems.

>

> He has been doing this ever since the nutritionist said " Let him have what he

will eat to get the calories in him " . He weighs 110 lbs @17.

>

> *Empty calories defeat the purpose.

>

> The episodes typically occur between 4 and 6 pm.

>

> *Before or after he eats? If before, has his blood sugar been checked? What

time does he eat lunch? What else is going on at that time? Is that when other

family members get home?

>

> Not on a yeast protocol. In fact, every thing I try for yeast sends him over

the top behaviorally and we can barely stand what's going on already.

>

> *Has he been on lots of antibiotics over his lifetime? Have you tried American

Health chewable probiotics? We get them at WFM.

>

> He can talk when he chooses to ask for what he wants or to respond in one or

two words. He has a dynavox which he hates and doesn't understand.

>

> If he doesn't understand it someone needs to simplify it. Using the Dynavox or

PECs I would ask about pain (particularly trying to determine if he has an

earache/infection, (headache), UTI, or tooth ache or ask a doctor to rule those

out. Those are often undiagnosed among nonverbal folks and often result in

aggression/SIB. Any chance wisdom teeth coming in?

>

> He use to use a picture schedule and we are again in the process of sessions

at teacch to do a new schedule and communications system.

> They feel that if he is in pain, his language goes right out the window.

>

> *Makes sense.

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

North Carolina

From: tlgatwork <terrigier.cfc@...>

Subject: [ ] Re: Desperate/Help

Date: Friday, May 28, 2010, 6:58 PM

 

Where do you live?

>

>

> From: Shepard Salzer <_Shepard@...>

> Subject: [ ] Re: Desperate/Help

> autism treatment

> Date: Friday, May 28, 2010, 5:27 PM

>

>

>  

>

>

>

> Comments interspersed.

> S S

>

> Re: Desperate/Help

> Posted by: " drissia wright " ritzywright@... ritzywright

> Fri May 28, 2010 5:59 am (PDT)

>

> No vaccines in a long time; no dental work either. He is due for a cleaning

next month, but has no fillings. No one smokes, but we do live between a large

vegetable farm, a dairy and a chicken farm.

>

> *Wonder what they're doing different at these farms. Are you on well water?

Have you had it tested?

>

> What is Naet.

>

> *Allergy elimination treatment using acupressure/acupuncture which can be done

with a proxy. www.naet.com

>

> We do have chiropractors close. His diet is awful; no artificial sweeteners,

but drinks lots of soda and eats KFC a couple of times a day.

>

> *Yikes! Have the sodas changed their " recipe " lately or is he drinking a

different kind/brand? Phosphorus in sodas can cause problems.

>

> He has been doing this ever since the nutritionist said " Let him have what he

will eat to get the calories in him " . He weighs 110 lbs @17.

>

> *Empty calories defeat the purpose.

>

> The episodes typically occur between 4 and 6 pm.

>

> *Before or after he eats? If before, has his blood sugar been checked? What

time does he eat lunch? What else is going on at that time? Is that when other

family members get home?

>

> Not on a yeast protocol. In fact, every thing I try for yeast sends him over

the top behaviorally and we can barely stand what's going on already.

>

> *Has he been on lots of antibiotics over his lifetime? Have you tried American

Health chewable probiotics? We get them at WFM.

>

> He can talk when he chooses to ask for what he wants or to respond in one or

two words. He has a dynavox which he hates and doesn't understand.

>

> If he doesn't understand it someone needs to simplify it. Using the Dynavox or

PECs I would ask about pain (particularly trying to determine if he has an

earache/infection, (headache), UTI, or tooth ache or ask a doctor to rule those

out. Those are often undiagnosed among nonverbal folks and often result in

aggression/SIB. Any chance wisdom teeth coming in?

>

> He use to use a picture schedule and we are again in the process of sessions

at teacch to do a new schedule and communications system.

> They feel that if he is in pain, his language goes right out the window.

>

> *Makes sense.

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

I am uncertain with how North Carolina works, in Los Angeles, we get funding and

asssitance from a non-profit agency which helps with getting respite care.

> >

> >

> > From: Shepard Salzer <_Shepard@>

> > Subject: [ ] Re: Desperate/Help

> > autism treatment

> > Date: Friday, May 28, 2010, 5:27 PM

> >

> >

> >  

> >

> >

> >

> > Comments interspersed.

> > S S

> >

> > Re: Desperate/Help

> > Posted by: " drissia wright " ritzywright@ ritzywright

> > Fri May 28, 2010 5:59 am (PDT)

> >

> > No vaccines in a long time; no dental work either. He is due for a cleaning

next month, but has no fillings. No one smokes, but we do live between a large

vegetable farm, a dairy and a chicken farm.

> >

> > *Wonder what they're doing different at these farms. Are you on well water?

Have you had it tested?

> >

> > What is Naet.

> >

> > *Allergy elimination treatment using acupressure/acupuncture which can be

done with a proxy. www.naet.com

> >

> > We do have chiropractors close. His diet is awful; no artificial sweeteners,

but drinks lots of soda and eats KFC a couple of times a day.

> >

> > *Yikes! Have the sodas changed their " recipe " lately or is he drinking a

different kind/brand? Phosphorus in sodas can cause problems.

> >

> > He has been doing this ever since the nutritionist said " Let him have what

he will eat to get the calories in him " . He weighs 110 lbs @17.

> >

> > *Empty calories defeat the purpose.

> >

> > The episodes typically occur between 4 and 6 pm.

> >

> > *Before or after he eats? If before, has his blood sugar been checked? What

time does he eat lunch? What else is going on at that time? Is that when other

family members get home?

> >

> > Not on a yeast protocol. In fact, every thing I try for yeast sends him over

the top behaviorally and we can barely stand what's going on already.

> >

> > *Has he been on lots of antibiotics over his lifetime? Have you tried

American Health chewable probiotics? We get them at WFM.

> >

> > He can talk when he chooses to ask for what he wants or to respond in one or

two words. He has a dynavox which he hates and doesn't understand.

> >

> > If he doesn't understand it someone needs to simplify it. Using the Dynavox

or PECs I would ask about pain (particularly trying to determine if he has an

earache/infection, (headache), UTI, or tooth ache or ask a doctor to rule those

out. Those are often undiagnosed among nonverbal folks and often result in

aggression/SIB. Any chance wisdom teeth coming in?

> >

> > He use to use a picture schedule and we are again in the process of sessions

at teacch to do a new schedule and communications system.

> > They feel that if he is in pain, his language goes right out the window.

> >

> > *Makes sense.

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

>

> I have no idea.

Drissia,

I thought I'd pass on some info that I saw go by on a local forum, for whatever

it's worth.

There have been some posts lately from a few parents whose teenage kids, a few

of them 17, are going through similar behavioral periods as you describe for

your son. A few moms of boys replied that when this happened to their boys, part

of the reason was related to sexual tension or impulses that the boys didn't

understand or know how to handle.

I don't know if this could be the case for your son, but if you think it's

possible, let me know and I'll look up the info they shared of a website of a

publishing company that sells books and videos that explain sexuality to those

with disabilities and their caretakers.

HTH,

[Guest guest]

I'm sorry to hear about your tough situation...

> > > He has always drunk Sundrop. We buy the canned Sundrops that are caffeine

free because the regular have the most caffeine and sugar of any on the market.

They don't sell bottled caffeine free.

** The yellow dyes aren't good but acidic drinks in cans cause the aluminum to

leach into the drink. Aluminum is going to contribute to many problems. Can

you wean him off this - maybe make some lemon soda with soda water, lemon juice,

stevia, etc? Magnesium malate (the malic acid part of it) may help to mop up

some of the aluminum buildup.

> > > Blood sugar is low 76 2 hours after he eats. Everyone gets home at 4 pm.

He ate lunch at noon and has usually been out in the community for 2 hours.

** Chromium helps with blood sugar managment.

> > > We do have chiropractors close. His diet is awful; no artificial

sweeteners, but drinks lots of soda and eats KFC a couple of times a day.

** That chicken may have arsenic in it; lots of non-organic mass produced

chicken does. The bad oils have about a 50 day half-life in the body. Good

oils have around 18 day half-life. Those oils are what allow his

neurotransmitters and brain to work properly. See if you can replace the bad

oils with good oils or start to supplement. YES Oils are good. If his gut is

damaged due to candida or dysbiosis, it won't absorb those hard-to-digest

calories anyway. You may want to look into digestive enzymes like Trienza, or

at the GAPS diet; it's tough but helps heal gut. Avoiding gluten and dairy

also. I know, it's hard.

> > > He has been doing this ever since the nutritionist said " Let him have what

he will eat to get the calories in him " . He weighs 110 lbs @17.

> > >

> > > The episodes typically occur between 4 and 6 pm.

In a Chinese medicine perspective, that suggests kidney/adrenal problems.

> > >

> > > Not on a yeast protocol. In fact, every thing I try for yeast sends him

over the top behaviorally and we can barely stand what's going on already.

Are you chelating?

Jo

[Guest guest]

Not chelating. Hair test came back yesterday. Can't even imagine doing that

protocol with what's already going on. Trying to get him stable.

From: detoxhealing <detoxhealing@...>

Subject: [ ] Re: Desperate/Help

Date: Saturday, May 29, 2010, 11:33 PM

 

I'm sorry to hear about your tough situation...

> > > He has always drunk Sundrop. We buy the canned Sundrops that are caffeine

free because the regular have the most caffeine and sugar of any on the market.

They don't sell bottled caffeine free.

** The yellow dyes aren't good but acidic drinks in cans cause the aluminum to

leach into the drink. Aluminum is going to contribute to many problems. Can you

wean him off this - maybe make some lemon soda with soda water, lemon juice,

stevia, etc? Magnesium malate (the malic acid part of it) may help to mop up

some of the aluminum buildup.

> > > Blood sugar is low 76 2 hours after he eats. Everyone gets home at 4 pm.

He ate lunch at noon and has usually been out in the community for 2 hours.

** Chromium helps with blood sugar managment.

> > > We do have chiropractors close. His diet is awful; no artificial

sweeteners, but drinks lots of soda and eats KFC a couple of times a day.

** That chicken may have arsenic in it; lots of non-organic mass produced

chicken does. The bad oils have about a 50 day half-life in the body. Good oils

have around 18 day half-life. Those oils are what allow his neurotransmitters

and brain to work properly. See if you can replace the bad oils with good oils

or start to supplement. YES Oils are good. If his gut is damaged due to candida

or dysbiosis, it won't absorb those hard-to-digest calories anyway. You may want

to look into digestive enzymes like Trienza, or at the GAPS diet; it's tough but

helps heal gut. Avoiding gluten and dairy also. I know, it's hard.

> > > He has been doing this ever since the nutritionist said " Let him have what

he will eat to get the calories in him " . He weighs 110 lbs @17.

> > >

> > > The episodes typically occur between 4 and 6 pm.

In a Chinese medicine perspective, that suggests kidney/adrenal problems.

> > >

> > > Not on a yeast protocol. In fact, every thing I try for yeast sends him

over the top behaviorally and we can barely stand what's going on already.

Are you chelating?

Jo