Re: &

[Guest guest]

Tyson's is convenient for me. We could eat at either the Nordstrom's

Cafe, PF Chang's, Legal Seafood, or Maggiano's.

Let me know when.

[Guest guest]

,so pleased to hear that 's injections went well and she is having such a positive outcome! How many joints did they inject at one time? How long are the benefits supposed to last? It is just so good to hear she is up and feeling good and able to enjoy doing activities! Please continue to keep us posted on how she is doing. You must be breathing a big sigh of relief for now!Take care, (, 17, poly)KAREN GALLACHER <quacksmum@...> wrote: Hi Shirley. All our kids are unique. My daughter is unlucky like your child and had a sudden onset of joint involvement. To begin with only her fingers were affected and she couldnt hold things, couldnt grip anything. She was diagnosed in February this year and a week later took a massive flare and landed in hospital. We watched the arthritis go up her body and the doctors sat with me shocked. We could see new joints flaring. was diagnosed with Enthesitis Related Arthritis in February and Psoriatic Arthritis 3 weeks ago. She has involvment with every joint in her body and all the tendons end points as well. We are on Paracetamol, Codiene, Methotrexate, and Piroxicam. Methotrexate is a mild form of chemotherapy that is used to treat Juvenille Arthritis usually with good results. It can cause nausea and an upset tummy for a day or so but the change i have seen in meant it was worth taking it. It is an immune suppressant as well which means that your child may be more prone to colds and flus etc. has only had mild throat infections and one ear infection. It is not unusual for multiple joint involvement to happen. Nor should you feel alone in this. Have you asked about steroid injections? the reason i say is that had her joint injections last week and has been bouncing around ever since. She was playing her tambourine last night and generally bouncing around like a jumping bean. Hasnt stumbled or fallen on the stairs and is running everywhere now instead of walking or hobbling. She will need joint replacements later on in her life but for now im just happy. We are also starting

Anti TNF meds (anti tumour necrosis factor) we all have these cells in our body and they are the cells attacking our kids. so this med will block it. The one is moving too is called Enbrel in the US or Etenacept here in the UK and ive been told it works best in conjunction with methotrexate. I have also chosen to eliminate hydrogentated fats from her diet and most fats to be honest and have placed her on more red meats, fish and pulses. has trouble retaining weight so i am going to see about some protien shakes for her. I hope i havent over whelmed you. The best advice i can give is to research, research, research. Ask the doctors allllllllllll the questions you have. Write them down if you have to and get him to go thru each one with you. and age 11. ERA and Psoriatic Arthritis (HLA B27 +) SW Scotland (near Glasgow) For ideas on reducing your carbon footprint visit For Good this month.

Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games.

[Guest guest]

They couldnt inject them all so instead decded to inject the worst

ones she had, which were her feet, ankles, hands and elbow oh and her

right jaw TMJ joint. we counted 18 pin pricks in all.

Have been told they willlast anywhere from 2 weeks to 8 months so im

looking for the 8 months We are unsure f she can have etenacept as

i have a severe latex allergy and its in the packaging. I told them i

am happy to take acceptable risks and i will wear gloves to help

protect myself. I feel the benefits far outwegh the risks....

I have drastically cut back on teh number of doctors who are involved

with her care and i feel great about it. the number of appointment

was over whelming to me. and wasnt normalising her arthritis. now i

cut them back she feels less self concious and is doing better.

cant keep up with her now. Its a fun time here

and age 11. ERA and Psoriatic Arthritis (HLA B27 +)

SW Scotland (near Glasgow)

> Hi Shirley.

>

> All our kids are unique.

>

> My daughter is unlucky like your child and had a sudden onset of

joint involvement. To begin with only her fingers were affected and

she couldnt hold things, couldnt grip anything. She was diagnosed in

February this year and a week later took a massive flare and landed

in hospital. We watched the arthritis go up her body and the doctors

sat with me shocked. We could see new joints flaring.

>

> was diagnosed with Enthesitis Related Arthritis in February

and Psoriatic Arthritis 3 weeks ago. She has involvment with every

joint in her body and all the tendons end points as well.

>

> We are on Paracetamol, Codiene, Methotrexate, and Piroxicam.

>

> Methotrexate is a mild form of chemotherapy that is used to treat

Juvenille Arthritis usually with good results.

>

> It can cause nausea and an upset tummy for a day or so but the

change i have seen in meant it was worth taking it. It is an

immune suppressant as well which means that your child may be more

prone to colds and flus etc. has only had mild throat

infections and one ear infection.

>

> It is not unusual for multiple joint involvement to happen. Nor

should you feel alone in this.

>

> Have you asked about steroid injections? the reason i say is that

had her joint injections last week and has been bouncing around

ever since.

>

> She was playing her tambourine last night and generally bouncing

around like a jumping bean. Hasnt stumbled or fallen on the stairs

and is running everywhere now instead of walking or hobbling. She

will need joint replacements later on in her life but for now im just

happy.

>

> We are also starting Anti TNF meds (anti tumour necrosis factor)

we all have these cells in our body and they are the cells attacking

our kids. so this med will block it. The one is moving too is

called Enbrel in the US or Etenacept here in the UK and ive been told

it works best in conjunction with methotrexate.

>

> I have also chosen to eliminate hydrogentated fats from her diet

and most fats to be honest and have placed her on more red meats,

fish and pulses.

>

> has trouble retaining weight so i am going to see about

some protien shakes for her.

>

> I hope i havent over whelmed you. The best advice i can give is

to research, research, research. Ask the doctors allllllllllll the

questions you have. Write them down if you have to and get him to go

thru each one with you.

>

> and age 11. ERA and Psoriatic Arthritis (HLA B27 +)

> SW Scotland (near Glasgow)

>

>

> ---------------------------------

> For ideas on reducing your carbon footprint visit For Good

this month.

>

>

>

>

> ---------------------------------

> Moody friends. Drama queens. Your life? Nope! - their life, your

story.

> Play Sims Stories at Games.

>

[Guest guest]

Wow that sounds overwhelming. How was the pain with these injections? I have heard that these shots into the joints are painful. Was she put to sleep for this, or given anything to help?

Raquel and is undiagnosed

> > Hi Shirley.> > > > All our kids are unique. > > > > My daughter is unlucky like your child and had a sudden onset of > joint involvement. To begin with only her fingers were affected and > she couldnt hold things, couldnt grip anything. She was diagnosed in > February this year and a week later took a massive flare and landed > in hospital. We watched the arthritis go up her body and the doctors > sat with me shocked. We could see new joints flaring.> > > > was diagnosed with Enthesitis Related Arthritis in February > and Psoriatic Arthritis 3 weeks ago. She has involvment with every > joint in her body and all the tendons end points as well.> > > > We are on Paracetamol, Codiene, Methotrexate, and Piroxicam.> > > > Methotrexate is a mild form of chemotherapy that is used to treat > Juvenille Arthritis usually with good results. > > > > It can cause nausea and an upset tummy for a day or so but the > change i have seen in meant it was worth taking it. It is an > immune suppressant as well which means that your child may be more > prone to colds and flus etc. has only had mild throat > infections and one ear infection. > > > > It is not unusual for multiple joint involvement to happen. Nor > should you feel alone in this.> > > > Have you asked about steroid injections? the reason i say is that > had her joint injections last week and has been bouncing around > ever since.> > > > She was playing her tambourine last night and generally bouncing > around like a jumping bean. Hasnt stumbled or fallen on the stairs > and is running everywhere now instead of walking or hobbling. She > will need joint replacements later on in her life but for now im just > happy.> > > > We are also starting Anti TNF meds (anti tumour necrosis factor) > we all have these cells in our body and they are the cells attacking > our kids. so this med will block it. The one is moving too is > called Enbrel in the US or Etenacept here in the UK and ive been told > it works best in conjunction with methotrexate.> > > > I have also chosen to eliminate hydrogentated fats from her diet > and most fats to be honest and have placed her on more red meats, > fish and pulses. > > > > has trouble retaining weight so i am going to see about > some protien shakes for her. > > > > I hope i havent over whelmed you. The best advice i can give is > to research, research, research. Ask the doctors allllllllllll the > questions you have. Write them down if you have to and get him to go > thru each one with you.> > > > and age 11. ERA and Psoriatic Arthritis (HLA B27 +)> > SW Scotland (near Glasgow)> > > > > > ---------------------------------> > For ideas on reducing your carbon footprint visit For Good > this month. > > > > > > > > > > ---------------------------------> > Moody friends. Drama queens. Your life? Nope! - their life, your > story.> > Play Sims Stories at Games.> >>

[Guest guest]

,

I am so glad to hear that things are going well and that you are having fun with Kate. Having fun with our kids is so very important and I do not think many parents realize that they are supposed to have fun with their kids. They just go through day by day and live their lives. I think it becomes so much more important to those of us that watch our kids not able to have fun. 18 injected joints, wow I can not even imagine that. My prayers are still with you for the injections to last the 8 months and beyond.

Veri & Jaye 13 poly

Re: &

They couldnt inject them all so instead decded to inject the worst

ones she had, which were her feet, ankles, hands and elbow oh and her

right jaw TMJ joint. we counted 18 pin pricks in all.

Have been told they willlast anywhere from 2 weeks to 8 months so im

looking for the 8 months We are unsure f she can have etenacept as

i have a severe latex allergy and its in the packaging. I told them i

am happy to take acceptable risks and i will wear gloves to help

protect myself. I feel the benefits far outwegh the risks....

I have drastically cut back on teh number of doctors who are involved

with her care and i feel great about it. the number of appointment

was over whelming to me. and wasnt normalising her arthritis. now i

cut them back she feels less self concious and is doing better.

cant keep up with her now. Its a fun time here

and age 11. ERA and Psoriatic Arthritis (HLA B27 +)

SW Scotland (near Glasgow)

> Hi Shirley.

>

> All our kids are unique.

>

> My daughter is unlucky like your child and had a sudden onset of

joint involvement. To begin with only her fingers were affected and

she couldnt hold things, couldnt grip anything. She was diagnosed in

February this year and a week later took a massive flare and landed

in hospital. We watched the arthritis go up her body and the doctors

sat with me shocked. We could see new joints flaring.

>

> was diagnosed with Enthesitis Related Arthritis in February

and Psoriatic Arthritis 3 weeks ago. She has involvment with every

joint in her body and all the tendons end points as well.

>

> We are on Paracetamol, Codiene, Methotrexate, and Piroxicam.

>

> Methotrexate is a mild form of chemotherapy that is used to treat

Juvenille Arthritis usually with good results.

>

> It can cause nausea and an upset tummy for a day or so but the

change i have seen in meant it was worth taking it. It is an

immune suppressant as well which means that your child may be more

prone to colds and flus etc. has only had mild throat

infections and one ear infection.

>

> It is not unusual for multiple joint involvement to happen. Nor

should you feel alone in this.

>

> Have you asked about steroid injections? the reason i say is that

had her joint injections last week and has been bouncing around

ever since.

>

> She was playing her tambourine last night and generally bouncing

around like a jumping bean. Hasnt stumbled or fallen on the stairs

and is running everywhere now instead of walking or hobbling. She

will need joint replacements later on in her life but for now im just

happy.

>

> We are also starting Anti TNF meds (anti tumour necrosis factor)

we all have these cells in our body and they are the cells attacking

our kids. so this med will block it. The one is moving too is

called Enbrel in the US or Etenacept here in the UK and ive been told

it works best in conjunction with methotrexate.

>

> I have also chosen to eliminate hydrogentated fats from her diet

and most fats to be honest and have placed her on more red meats,

fish and pulses.

>

> has trouble retaining weight so i am going to see about

some protien shakes for her.

>

> I hope i havent over whelmed you. The best advice i can give is

to research, research, research. Ask the doctors allllllllllll the

questions you have. Write them down if you have to and get him to go

thru each one with you.

>

> and age 11. ERA and Psoriatic Arthritis (HLA B27 +)

> SW Scotland (near Glasgow)

>

>

> ---------------------------------

> For ideas on reducing your carbon footprint visit For Good

this month.

>

>

>

>

> ---------------------------------

> Moody friends. Drama queens. Your life? Nope! - their life, your

story.

> Play Sims Stories at Games.

>

Email and AIM finally together. You've gotta check out free AOL Mail!

[Guest guest]

Congrats! You will adore SLC. Please keep us posted. will do

fabulous!

HRH

>

> So 's MRI was a success on Tuesday, we sent a copy overnight to

> SLC and received confirmation that we could move forward with our first

> casting of 6/29. I can't believe it's come up so quickly and I am

> feeling nervous, excited, hopeful, sad and grateful for the opportunity

> all at the same time. Reading some of the recent posts of first casting

> experiences has been extremely helpful with having realistic

> expectations, so thank you for sharing.

>

> is 14 mos today and I'm a little worried though because she woke

> up this morning with a low-grade fever and runny nose...I'm hoping all

> clears up before the big day. Aside from that I think we have

> everything we need. Our 4 1/2 year old son will be joining us on this

> trip, which may or may not be a good thing. On the one hand I'm hoping

> he'll be a positive distraction,,,he helps me keep it together as I try

> to continue to be strong and positive for his well being rather than the

> emotional wreck I feel I would be otherwise. On the otherhand, I may be

> even more drained by having to keep up with his needs along with

> 's. We shall see...

>

>

>

> Mommy to 14 mos 40* and Dean 4 1/2 yrs

>

>

[Guest guest]

I hope your bday present will be hugs on the beach from lil

!  Enjoy this time, it’s the best.

HRH

From: infantile scoliosis treatment

[mailto:infantile scoliosis treatment ] On Behalf Of Leary

Sent: Wednesday, August 04, 2010 6:40 PM

infantile scoliosis treatment

Subject: Re: UPDATE

Hi Leigh,

We were also at Boston Children's today for our one month

checkup. had her first cast on July 2nd. She is doing well so

far and the cast will come off Sept 1st for one week. We were excited

because it is right before Labor Day weekend and maybe we can sneak in a

beach day..=) Its also my birthday and I can't wait to snuggle her...The

next cast will go on September 10th.. sees Dr. K and he has been really

great. Today was a positive day!!!

mom to 17 months, 53 curve down to 20 with first cast

From: Leigh D

<leigh_d1971@...>

infantile scoliosis treatment

Sent: Wed, August 4, 2010 8:01:12 PM

Subject: Re: UPDATE - Boston Appt at Children's

with possible new Mehta MD

So, we had our appointment at Boston Children's Hospital

today and here's what I got out of that meeting:

The MD has been doing Mehta

casting for just under a year there now and has had roughly 10 people fitted

with the Mehta style. He studied out in Chicago under Dr. Sturm.

He did not have any pictures, diagrams or examples available but he

hand drew me what we would anticipate and also explained it as I've seen here

- the cast would have a mushroom style cutout in front and then a cutout in

rear. It probably would not go over the shoulder. He usually

places a brace shirt underneath the cast and the cast closest to the body is

made of plaster with an outer layer of fiberglass. He has been doing

cast rotations of 2 months in, 1 week out, 2-3 months in, 1 week out, etc.

and said to anticipate probably a year of this casting series. X-rays

would be done in cast to measure for correction. He does not have a 3D

frame but a risser frame that had been adjusted and modified to do the 3D

type correction.

So, we had a good visit in so far as the 2 curves have not

gotten worse and we have what appears to be an option other than a risser.

We are looking at an early September date for the procedure - under

general anesthesia for approximately an hour and advised to just plan on the

day at the hospital.

Hoping we're on the right track. It sounds promising

so crossing fingers...

Thanks all.

Leigh

Mom

to Noah, 3.5 years with 2 idiopathic scoliosis curves, 25 and 42 degrees. Fit

for first brace at 1 but setbacks after it wasn't resized and changed early

enough!

From: NIck Guthe <nickguthe (DOT) com>

Subject: Re: [infantile_scoliosi s] Boston Appt at Children's with possible

new Mehta MD

infantile scoliosis treatment @groups. com

Date: Tuesday, August 3, 2010, 8:37 PM

I lifted this from a post that sent a

while ago:

Risser casting and EDF (elongation,

derotation, flexion) casting.

Scoliosis is a 3-dimensional problem that should be corrected on all 3

planes. The EDF casting method has the ability to elongate the spine through

traction, derotate the spine/pelvis, and to improve lordosis and over all

body shape/alignment.

EDF differs from Risser casting. EDF casts are over the shoulder, with a

large mushroom opening on the front to allow for proper chest expansion. On

the back, there is a small cutout on the concavity of the curve, not going

past the midline. It was found that the spine became more aligned with this

cutout than without and that it helped correct rotation.

Early treatment w/ EDF is generally over a period of 9-12 months depending on

age and child’s specific situation. When the child's Cobb angle is under 10

deg, they are removed from their series of EDF plaster casts and placed into

a removable brace.

Early treatment EDF does not alternate with bracing as Risser plaster casting

can. It is a solid block of casts to decrease the childs curvature(s) ,

gently, slowly & permanently.

The biggest difference is the aim of treatment- which is cure, opposed to

containment. Dr's Cotrel & Morel developed the EDF technique years ago in

France and found that using one of these techniques in isolation has it's own

drawbacks, yet using all three simultaneously potentializes the advantages of

each.(Elongation, Derotation, Flexion).

Hope that helps.

Heidi, Bexon's Mommy, (3 years old, in 7th cast from Salt

Lake City Shriners, currently down from 62 degrees to 19.7 in cast)

From: leigh_d1971

<leigh_d1971>

infantile scoliosis treatment @groups. com

Sent: Tue, August 3, 2010 3:36:46 PM

Subject: [infantile_scoliosi s] Boston Appt at Children's with

possible new Mehta MD

Hi everyone,

I've posted here a few times about my son Noah who has idiopathic scoliosis.

We were being treated a Boston hospital that only does Risser casting.

Because they indicated he may need that soon, after making several phone

calls we'd found a MD at Children's of Boston that reportedly only recently

started doing Mehta.

He is not officially on our list and I have some questions for him based upon

suggestions and group discussions, i.e. who trained him, does he have

pictures of his casts, is his frame the 3D, etc. Does anyone else have

questions they think would be helpful for the group to confirm that he is

officially doing Mehta and for me if we do in fact have to do our first cast?

Thanks a bunch everyone!

Leigh

Mom to Noah, 3.5 years with 2 idiopathic scoliosis curves, 25 and 42 degrees.

Fit for first brace at 1 but setbacks after it wasn't resized and changed

early enough!

[Guest guest]

Please try and give me a ring on your way to SLC, if you can. Will be

thinking of you guys next Monday.

All the best to you guys in 2012!

HRH

> Hi ,

> I just happen to look at these emails (rarely get a chance anymore) I'm

> sorry to hear that you are undergoing surgery. I'm sure you will do well.

> I may give you a ring on my way to SLC Jan. 9th (next cast date).

> Warmest wishes,

> , mom to age 5 (lost count of cast #)

>

>

>> >>>

>> >>> Just wanted to let you all know that I will be undergoing carpel

>> tunnel

>> >>> surgery next monday the 19th. The doc has requested that I try not

>> to

>> >>> use

>> >>> my dominant hand for awhile... I'll try and check in when possible

>> but

>> >>> posts will be very brief. Please don't hesitate to call me direct

>> and/or

>> >>> pass my number along to anyone. 303-507-2485.

>> >>> Wish me luck... Sort of nervous as I've never had surgery before.

>> Have a

>> >>> great week. I'll let you know how it went after the procedure. Looks

>> >>> like

>> >>> I won't be cooking Christmas dinner, ha!

>> >>> HRH

>> >>>

>> >>

>> >>

>> >>

>> >

>> >

>>

>

>

>

[Guest guest]

Thanks ! Glad to hear that your surgery went really well. Wow, only 15

minutes and relief, that's amazing.

I'm not sure about casting yet. We keep getting sick and having to delay the

cast. Very frustrating.

> >> >>>

> >> >>> Just wanted to let you all know that I will be undergoing carpel

> >> tunnel

> >> >>> surgery next monday the 19th. The doc has requested that I try not

> >> to

> >> >>> use

> >> >>> my dominant hand for awhile... I'll try and check in when possible

> >> but

> >> >>> posts will be very brief. Please don't hesitate to call me direct

> >> and/or

> >> >>> pass my number along to anyone. 303-507-2485.

> >> >>> Wish me luck... Sort of nervous as I've never had surgery before.

> >> Have a

> >> >>> great week. I'll let you know how it went after the procedure. Looks

> >> >>> like

> >> >>> I won't be cooking Christmas dinner, ha!

> >> >>> HRH

> >> >>>

> >> >>

> >> >>

> >> >>

> >> >

> >> >

> >>

> >

> >

> >

>

[Guest guest]

Hope you get there next week! Please keep me posted.

HRH

> Thanks ! Glad to hear that your surgery went really well. Wow,

> only 15 minutes and relief, that's amazing.

>

> I'm not sure about casting yet. We keep getting sick and having to delay

> the cast. Very frustrating.

>

>

>> >> >>>

>> >> >>> Just wanted to let you all know that I will be undergoing carpel

>> >> tunnel

>> >> >>> surgery next monday the 19th. The doc has requested that I try

>> not

>> >> to

>> >> >>> use

>> >> >>> my dominant hand for awhile... I'll try and check in when

>> possible

>> >> but

>> >> >>> posts will be very brief. Please don't hesitate to call me direct

>> >> and/or

>> >> >>> pass my number along to anyone. 303-507-2485.

>> >> >>> Wish me luck... Sort of nervous as I've never had surgery before.

>> >> Have a

>> >> >>> great week. I'll let you know how it went after the procedure.

>> Looks

>> >> >>> like

>> >> >>> I won't be cooking Christmas dinner, ha!

>> >> >>> HRH

>> >> >>>

>> >> >>

>> >> >>

>> >> >>

>> >> >

>> >> >

>> >>

>> >

>> >

>> >

>>

>

>

>

[Guest guest]

Have a great cast day today. Heres to lower #'s and a quick recovery.

Please keep us posted when possible.

HRH

> Hi Eryn,

> I wanted to say " welcome. " I'm not on the support group a terrible

> lot (usually only around cast time--hence why I'm here today), but it

> was been a GREAT resource for me! I couldn't help but notice that

> Brayden is getting his first cast on Wednesday ... my son, ,

> is getting his third cast this Wednesday as well ... so I am

> suspicious it COULD be at the same place! We go to Shriners in

> Philly. If it is, let me know and perhaps we will see you in the

> lounge or PACU. Just a guess!!! BEST WISHES as you prepare for

> casting wherever that may be.

>

> To answer your question about bathing -- that was something that caused me

> a lot of anxiety, but has been NO BIG DEAL at all for . We bathe

> him every night on our bed ... just lay him on a beach towel, turn on

> cartoons, and use a soapy rag and a clear water rag. We just walk back

> and forth to the sink in our master bathroom to keep the water warm. He

> really enjoys this time to wind down before bed ... it's his (and our) new

> normal. Every other night we wash his hair in the kitchen sink. I went

> to Sally's Beauty Supply and got a children's hair stylists' cape. We put

> that one him, lay him on the kitchen counter, and wash with the sink

> nozzle. We have NEVER had a problem with his cast getting wet. A little

> tip on waterproofing the cast that has worked absolute WONDERS for us --

> duck tape! We get a fun new printed roll for each cast (we have colorful

> skulls for this time) ... and we reinforce his moleskin and cover most of

> the plaster with duck tape. It adds and extra layer of waterproofing for

> any stray water dribbles that may get on the cast. No biggie! And don't

> worry about odor ... is never stinky because of this cast.

>

> BEST WISHES on Wednesday ... you'll be in our thoughts ... and maybe (if

> at the same place) we can say hello. was 16 months when he got

> his first cast (almost 21 months now) ... and although the very first

> wake-up from surgery was rough, it gets better every time. He does

> EVERYTHING he did before casting except for water and sand. Brayden will

> do beautifully!

>

> Take care,

>

>

>

>>

>> I just wanted to say thank you for you all your suggestions on how to

>> bathe our son while he is in his cast. Brayden (15 months old) is

>> getting his first cast on Wednesday.

>>

>> My husband and I are grateful we have joined this support group. It is

>> reassuring to know we are not alone.

>>

>> Thank you,

>> Eryn

>> Mom to Brayden

>>

>

>

>

[Guest guest]

Thanks for asking. Dr. K. at Riley said he is very optimistic that we are making progress. 's cast is actually a little loose, especially on the side of his chest that was turning inward (if that makes any sense??) He was VERY sore in that area when he was first casted because it was so tight. The doctor feels that the cast is either helping with the rotation or he has lost weight. I have not seen any weight loss on the scales, so I am hopeful that it is helping. He is going in for his next cast on March 13th. This one will be for another 4-6 months. is tolerating it all very well. They will take the cast off and put the new one on in the OR so no break time. But I think it will actually be easier on that way. Thanks again for

asking!! From: "heather@..." <heather@...> infantile scoliosis treatment Sent: Wednesday, February 29, 2012 1:40 PM Subject: Re: &

How'd the check up go? Hope all went well.

HRH

> Hello-

> Just wanted to give you a few words of encouragement as you begin your a

> casting journey. My son was casted last October for the first

> time. He was 7 and turned 8 in November. He was 35 degrees and the doc

> got him to a 17 in cast. His pediatrician found his at his

> pre-kindergarten checkup. Â He has done better emotionallythan I could of

> EVER expected. I hope physically too!! We actually go in for a checkup

> tomorrow. He has been in the same cast since October and will be up for

> a new cast in the next month or so. The first week or two is tough. Soon

> he will learn how to move so that he can do everything that he wants to

> do. does everything he did before- minus swimming and long

> baths!! He rides bikes, jumps and flips on furniture, and drives a go

> kart. Your son will do great!!! Feel free to message me anytime!!

> Happy to share!!

>

>

> 's mom 8 years old

>

>

>

> ________________________________

> From: stenj82 <stenj82@...>

> infantile scoliosis treatment

> Sent: Tuesday, February 21, 2012 1:07 PM

> Subject: New here.....anyone have an older child

> going through casting?

>

>

> Â

> We are new to this board. Our son Aidan is 6.5 years old. He was

> diagnosed with scoliosis when he was only 2.5, but for the last 4 years we

> have been told by numerous doctors to "watch it and wait", and then we

> were told that we were just going to try and put off surgery as long as

> possible because there were no other options. His curve has progressively

> gotten worse. It is currently at 90 degrees with a lot of rotation

> (although I'm not sure the numbers). We recently moved from Omaha to Utah

> and we were referred to Shriners in Salt Lake. Aidan was set to get his

> first cast February 15th, but was sick so he is now set to get his cast

> March 23rd. We are nervous, but excited at the prospect of avoiding

> surgery, at least for a while. I was wondering if anyone has an older

> child that has done the casts. His doctors at Shriners are very

> optimistic for him because he is still very very flexible. We are really

> hoping this will work for him!!!

>

>

>

[Guest guest]

,Take it from a cast mom veteran lol going straight from one cast into the other is how ours was always done and i personally think it is easier that way. We did it for 14 months and his skin was always fine. They sponge bathe them in the OR between cast changes. I cant believe my son has been cast free and brace free since December of 2010! And hes doing great! You will make it thru this journey as i did and i bet with great success! mom to IsaiahSent from my Verizon Wireless 4G LTE DROID New here.....anyone have an older child

> going through casting?

>

>

> Â

> We are new to this board. Our son Aidan is 6.5 years old. He was

> diagnosed with scoliosis when he was only 2.5, but for the last 4 years we

> have been told by numerous doctors to "watch it and wait", and then we

> were told that we were just going to try and put off surgery as long as

> possible because there were no other options. His curve has progressively

> gotten worse. It is currently at 90 degrees with a lot of rotation

> (although I'm not sure the numbers). We recently moved from Omaha to Utah

> and we were referred to Shriners in Salt Lake. Aidan was set to get his

> first cast February 15th, but was sick so he is now set to get his cast

> March 23rd. We are nervous, but excited at the prospect of avoiding

> surgery, at least for a while. I was wondering if anyone has an older

> child that has done the casts. His doctors at Shriners are very

> optimistic for him because he is still very very flexible. We are really

> hoping this will work for him!!!

>

>

>

[Guest guest]

Thanks!! I look forward to the day when I can say we are cast and brace free. For now, just thankful that he is getting treatment and is tolerating it so well.Thanks for the encouragement, From: "missikay10@..." <missikay10@...> infantile scoliosis treatment Sent: Friday, March 2, 2012 6:38 PM Subject: Re:

&

,Take it from a cast mom veteran lol going straight from one cast into the other is how ours was always done and i personally think it is easier that way. We did it for 14 months and his skin was always fine. They sponge bathe them in the OR between cast changes. I cant believe my son has been cast free and brace free since December of 2010! And hes doing great! You will make it thru this journey as i did and i bet with great success! mom to IsaiahSent from my Verizon Wireless 4G LTE DROID New here.....anyone have an older child

> going through casting?

>

>

> Â

> We are new to this board. Our son Aidan is 6.5 years old. He was

> diagnosed with scoliosis when he was only 2.5, but for the last 4 years we

> have been told by numerous doctors to "watch it and wait", and then we

> were told that we were just going to try and put off surgery as long as

> possible because there were no other options. His curve has progressively

> gotten worse. It is currently at 90 degrees with a lot of rotation

> (although I'm not sure the numbers). We recently moved from Omaha to Utah

> and we were referred to Shriners in Salt Lake. Aidan was set to get his

> first cast February 15th, but was sick so he is now set to get his cast

> March 23rd. We are nervous, but excited at the prospect of avoiding

> surgery, at least for a while. I was wondering if anyone has an older

> child that has done the casts. His doctors at Shriners are very

> optimistic for him because he is still very very flexible. We are really

> hoping this will work for him!!!

>

>

>

[Guest guest]

Excellent. Its always easier when the doc is a believer in ET and is

optimistic. Way to grow ! Glad he is tolerating well..Please

continue to keep us posted after his next cast on the 13th

HRH

> Thanks for asking. Dr. K. at Riley said he is very optimistic that we are

> making progress.  's cast is actually a little loose, especially on

> the side of his chest that was turning inward (if that makes any

> sense??)  He was VERY sore in that area when he was first casted because

> it was so tight.  The doctor feels that the cast is either helping with

> the rotation or he has lost weight.  I have not seen any weight loss on

> the scales, so I am hopeful that it is helping.  He is going in for his

> next cast on March 13th.  This one will be for another 4-6 months.

> is tolerating it all very well. They will take the cast off and put the

> new one on in the OR so no break time.  But I think it will actually be

> easier on that way.  Thanks again for asking!!

>

>

>

>

>

> ________________________________

> From: " heather@... " <heather@...>

> infantile scoliosis treatment

> Sent: Wednesday, February 29, 2012 1:40 PM

> Subject: Re: &

>

>

>  

> How'd the check up go? Hope all went well.

> HRH

>

>> Hello-

>> Just wanted to give you a few words of encouragement as you begin your a

>> casting journey.  My son was casted last October for the first

>> time.  He was 7 and turned 8 in November.  He was 35 degrees and

>> the doc

>> got him to a 17 in cast. His pediatrician found his at his

>> pre-kindergarten checkup.   He has done better emotionallythan I

>> could of

>> EVER expected.  I hope physically too!! We actually go in for a

>> checkup

>> tomorrow.  He has been in the same cast since October and will be up

>> for

>> a new cast in the next month or so. The first week or two is tough. 

>> Soon

>> he will learn how to move so that he can do everything that he wants to

>> do.  does everything he did before- minus swimming and long

>> baths!!  He rides bikes, jumps and flips on furniture, and drives a

>> go

>> kart.  Your son will do great!!!  Feel free to message me

>> anytime!!

>> Happy to share!!

>>

>>

>> 's mom 8 years old

>>

>>

>>

>> ________________________________

>> From: stenj82 <stenj82@...>

>> infantile scoliosis treatment

>> Sent: Tuesday, February 21, 2012 1:07 PM

>> Subject: New here.....anyone have an older child

>> going through casting?

>>

>>

>>  

>> We are new to this board. Our son Aidan is 6.5 years old. He was

>> diagnosed with scoliosis when he was only 2.5, but for the last 4 years

>> we

>> have been told by numerous doctors to " watch it and wait " , and then we

>> were told that we were just going to try and put off surgery as long as

>> possible because there were no other options. His curve has

>> progressively

>> gotten worse. It is currently at 90 degrees with a lot of rotation

>> (although I'm not sure the numbers). We recently moved from Omaha to

>> Utah

>> and we were referred to Shriners in Salt Lake. Aidan was set to get his

>> first cast February 15th, but was sick so he is now set to get his cast

>> March 23rd. We are nervous, but excited at the prospect of avoiding

>> surgery, at least for a while. I was wondering if anyone has an older

>> child that has done the casts. His doctors at Shriners are very

>> optimistic for him because he is still very very flexible. We are

>> really

>> hoping this will work for him!!!

>>

>>

>>

>

>

>