Re: &

[Guest guest]

Just a quick note to second Rosemary's comments - I am one of her patients

also, and she is great. Most of my consultations with her are over the

phone - although not claimable on Medicare, very worthwhile!

Lara

rheumatic &

>

> A phone consultation with a Dr. Kerrie in Melbourne, ph. 0357752591

> would be of enormous benefit to this lass. Hope you get this having

trouble

> getting through. Cost is $25 for 15 minutes and worth every cent what do

> you have to lose. We do it from W.A. Dr. has just been over to see

> her patients here who couldn't make the distance to see her. I was one of

> them. Best of luck. Rosemary.

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

[Guest guest]

At 12:53 AM 10/18/2000 -0400, you wrote:

> The pain he said is unreal, but he doesn't

>have the back pain like he did when he had the stones last year. He would

>just like some answers. They gave him Darvocet 100 two every 4 hours, but

>he said that doesn't do anything for the pain.

Helen,

Pain, like kidney stone pain, laughs at Darvocet. I take Percocet and

sometimes Percodan. It " helps " with the pain, but does not eliminate

it. If the pain is a 9 (on a scale of one to ten), then they may lower it

to a 4 or 5. Still pretty bad, but not as bad. They can give him REAL pain

medicine in the hospital, but usually will not allow you to take any

home. No self administration with that level of medicine.

> They called it Infectious

>Epididymitis! Maybe can help us here! Please!!!

I don't know anything about that condition. Sorry. Hope he gets some

relief, soon.

E-Mail: mailto:tabco@...

Web Page: http://www.bee.net/tabco/

Net Pager: http://wwp.mirabilis.com/3106983

ICQ # 3106983

[Guest guest]

Ouchie, Helen!!

Sure hope he feels better soon, and that things settle down for you

*hugs*

Helen wrote:

> How is the girl's daddy doing??

> love,

> >

>

> He was at the hospital over 5 and 1/2 hours last night. he got home at

> 2:30 this morning. They done a IVP on him and checked his kidneys, as he

> has had a couple of kidney stones before. They found no stones but the

> tubes going out of his testicles are infected. He had and was still on an

> antibiotic for bronchitis, so don;t understand how he could have a

> different infection in him. The pain he said is unreal, but he doesn't

> have the back pain like he did when he had the stones last year. He would

> just like some answers. They gave him Darvocet 100 two every 4 hours, but

> he said that doesn't do anything for the pain. They called it Infectious

> Epididymitis! Maybe can help us here! Please!!! They changed his

> antibiotic to Doxycycline. Sent him home to be followed up by our family

> Dr. He see's him in the morning.

> Never a dull moment around here!!! Hope your feeling better some now

> that the initial shock is over for the testing. You take care of yourself

> and them little ones.

> Many Hugs

> Helen

>

>

> The Being Sick Community

>

> Visual problems with colors?

> Click the link below and select the modify link to your right. Then select the

**Send Plain Text Email** option. This will stop you receiving emails with

colored or enlarged fonts.

>

>

> Members Lounge:-

> Photo Album, memorial page, members profiles, birthdays, locations, medical

resources, counselling via email, and a whole bunch of free things.

> http://www.elderwyn.com/members

>

> Message Archives and Digest Attachment Pictures:-

> messages/

>

> Chat:-

> Scheduled Daily Chats at # on IRC DALnet.

> chat.html

>

> Sharing our resources:-

> Add a website URL you have found useful.

>

>

> Personal Complaints or problems:-

> Please contact a moderator should you require assistance with anything

technical or if you are upset by another. The email address for the moderators

is <-owneregroups>

>

> Subscription Details:-

> 1) Individual email - means that every email sent to the list you receive.

> 2) Daily Digest - sends you 25 messages in one single email for you to browse.

This is an excellent option if you receive alot of email.

> 3) Web only/No mail - means that you can pop into eGroups at your convenience

and receive no email.

> To modify your subscription settings please visit

mygroups

>

> To subscribe or unsubscribe

> subscribe/

>

> ~~~~~~~~~~~~~~~

>

> “Hold on to what is good, even if it's a handful of earth. Hold on to what you

believe, even if it's a tree that stands by itself. Hold on to what you must do

even, if it's a long way from here. Hold on to your life, even if it's easier to

let go. " - Pueblo Prayer

[Guest guest]

Hi Irma,

It's funny that you asked if can say her name -absolutely

not. Steph is pretty much non-verbal. She says Mama, Dada, baba, Nana (her

special worker is Lana) & a few other words. is upset that she can't

say . I often think if we had known she would have such a hard time

with speech, we would have picked an easier name to say. We had already

picked for a girl & for a boy before we knew she had

DS.

Take care,

[Guest guest]

> Hi Irma,

> It's funny that you asked if can say her name -

absolutely not. Steph is pretty much non-verbal. She says Mama,

Dada, baba, Nana (her special worker is Lana) & a few other words.

is upset that she can't say . I often think if we had

known she would have such a hard time with speech, we would have

picked an easier name to say. We had already picked for a

girl & for a boy before we knew she had DS.

>

> Take care,

>

,

I figured was hard to say . My husband named him

, he can say , but I don't want him confused .

could also say his brother's names Rick & Roland , all new this

year . I guess that is why I was wondering if everybody felt bad or

just had wondered about they say their names . Its just cute reading

their names , though . Who is baba ? Is that for ? How does

try calling ? Take care .

Irma, 13,DS/ASD

[Guest guest]

Hi Irma,

" Baba " is Steph's word for drink, which is from when she was a baby

& we said " baba " for bottle. Steph doesn't call anything. She

just goes over to her & touches her, usually in a way that upsets

- scratching or pulling or kicking. I thought we could

encourage Steph to say " ly,ly " (Lee-Lee) as in Emi- " ly " but then we

realized that Steph can't say " l's " - she says Nana for Lana. So we

thought we'd try NeeNee for Eminy. She really either isn't

interested or just can't do it. is actually very understanding

for a 7 yr. old. We say to Steph " say neenee " & when she just

grunts or doesn't respond, we just say, maybe next time. This is

National Down Syndrome Awareness Week here in Canada & wants to

give a little presentation to her class on what it means to have Down

Syndrome. Isn't that great? I hope her teacher lets her do it. I

want to be a fly on the wall for that one!

Love,

> > Hi Irma,

> > It's funny that you asked if can say her name -

> absolutely not. Steph is pretty much non-verbal. She says Mama,

> Dada, baba, Nana (her special worker is Lana) & a few other

words.

> is upset that she can't say . I often think if we had

> known she would have such a hard time with speech, we would have

> picked an easier name to say. We had already picked for

a

> girl & for a boy before we knew she had DS.

> >

> > Take care,

> >

>

> ,

> I figured was hard to say . My husband named him

> , he can say , but I don't want him confused .

> could also say his brother's names Rick & Roland , all new this

> year . I guess that is why I was wondering if everybody felt bad or

> just had wondered about they say their names . Its just cute

reading

> their names , though . Who is baba ? Is that for ? How does

> try calling ? Take care .

> Irma, 13,DS/ASD

[Guest guest]

> Hi Irma,

> " Baba " is Steph's word for drink, which is from when she was a

baby & we said " baba " for bottle. Steph doesn't call

anything. She just goes over to her & touches her, usually in a way

that upsets - scratching or pulling or kicking. I thought we

could encourage Steph to say " ly,ly " (Lee-Lee) as in Emi- " ly " but

then we realized that Steph can't say " l's " - she says Nana for

Lana. So we thought we'd try NeeNee for Eminy. She really either

isn't interested or just can't do it. is actually very

understanding for a 7 yr. old. We say to Steph " say neenee " & when

she just grunts or doesn't respond, we just say, maybe next time.

This is National Down Syndrome Awareness Week here in Canada &

wants to give a little presentation to her class on what it means to

have Down Syndrome. Isn't that great? I hope her teacher lets her

do it. I want to be a fly on the wall for that one!

>

> Love,

>

Hi ,

This would definitely be the best time to be a fly on the wall . This

is just so beautiful of what would like to do . I'm glad she is

proud of her sister and understanding . Do you think could be

recorded if allowed to do her presentation ? Nice trial on the

names , at least you tried . Luck that will surprise

everbody , especially his sissy . Please let me know how it

went with 's class presentation . Thanks for sharing about your

precious daughters . Take care.

Irma & " My 3 Sons " .( 13,DS/ASD.)

[Guest guest]

:

I wanted to welcome you also! Glad you found our group . We look

forward to getting to know you & more as you begin your plagio

journey :-).

Be sure you let us know how your appt goes with the specialist next

week.

Both of you new comers should know, that your children are both

plenty young enough to still get good correction IF you go with a

helmet or band. It's definitely not too late.

Welcome again!

Debbie Abby's mom DOCGrad

MI

>

> New to group

>

> Hi ,

>

> My son, is also 6 months old. Try not to beat yourself up

about wishing that you had taken action sooner. I am in the very

same situation as you! Our doctor kept telling us not to worry. She

never explained to us that there were other options (such as getting

the opinion of a specialist). Like you, I finally got fed up, and

took action on my own. I've heard from several people that it is

very common for doctors to act like plagio is no big deal. I know

exactly what you mean about precious time being wasted. If felt that

our doctor let us down, and I also felt like I let my son down by not

looking into this problem sooner. Just in the last few days though,

I have been trying to let go of some of those feelings and focus on

what I can do now. At least our sons our only 6 months old, some

people don't become aware of their options until their babies are

even older.

>

> Good luck dealing with your insurance company! My son is seeing

a specialist next week, but I've been procrastinating about calling

the insurance company. I'm not sure I'm ready to start that battle

yet.

>

> I'm new to this board, but so far the people here have been

great. Just knowing that as questions arise, I can post her, makes

me feel so much better. Many people here are much farther along in

this process than me ( many of their babies have graduated from

helmut therapy). They are a great resource. But, it is also nice to

have someone like you here who is like myself, and just beginning to

deal with all of this. Please keep in touch!

> Gladieux

>

>

>

[Guest guest]

:

Aren't I so nice? That was my 2nd welcome to you! Geez oh pete, I

really am losing my mind! Sorry that I didn't remember welcoming you

earlier - I'm working today (usually off on Monday's) and it's really

affecting my blonde mind - excuses, excuses hehehehe

Debbie Abby's mom DOCgrad

MI

> >

> > New to group

> >

> > Hi ,

> >

> > My son, is also 6 months old. Try not to beat yourself

up

> about wishing that you had taken action sooner. I am in the very

> same situation as you! Our doctor kept telling us not to worry.

She

> never explained to us that there were other options (such as

getting

> the opinion of a specialist). Like you, I finally got fed up, and

> took action on my own. I've heard from several people that it is

> very common for doctors to act like plagio is no big deal. I know

> exactly what you mean about precious time being wasted. If felt

that

> our doctor let us down, and I also felt like I let my son down by

not

> looking into this problem sooner. Just in the last few days

though,

> I have been trying to let go of some of those feelings and focus on

> what I can do now. At least our sons our only 6 months old, some

> people don't become aware of their options until their babies are

> even older.

> >

> > Good luck dealing with your insurance company! My son is

seeing

> a specialist next week, but I've been procrastinating about calling

> the insurance company. I'm not sure I'm ready to start that battle

> yet.

> >

> > I'm new to this board, but so far the people here have been

> great. Just knowing that as questions arise, I can post her,

makes

> me feel so much better. Many people here are much farther along in

> this process than me ( many of their babies have graduated from

> helmut therapy). They are a great resource. But, it is also nice

to

> have someone like you here who is like myself, and just beginning

to

> deal with all of this. Please keep in touch!

> > Gladieux

> >

> >

> >

[Guest guest]

New to group> > Hi ,> > My son, is also 6 months old. Try not to beat yourself up about wishing that you had taken action sooner. I am in the very same situation as you! Our doctor kept telling us not to worry. She never explained to us that there were other options (such as getting the opinion of a specialist). Like you, I finally got fed up, and took action on my own. I've heard from several people that it is very common for doctors to act like plagio is no big deal. I know exactly what you mean about precious time being wasted. If felt that our doctor let us down, and I also felt like I let my son down by not looking into this problem sooner. Just in the last few days though, I have been trying to let go of some of those feelings and focus on what I can do now. At least our sons our only 6 months old, some people don't become aware of their options until their babies are even older. > > Good luck dealing with your insurance company! My son is seeing a specialist next week, but I've been procrastinating about calling the insurance company. I'm not sure I'm ready to start that battle yet. > > I'm new to this board, but so far the people here have been great. Just knowing that as questions arise, I can post her, makes me feel so much better. Many people here are much farther along in this process than me ( many of their babies have graduated from helmut therapy). They are a great resource. But, it is also nice to have someone like you here who is like myself, and just beginning to deal with all of this. Please keep in touch!> Gladieux> > > For more plagio info

[Guest guest]

New to group> > > > Hi ,> > > > My son, is also 6 months old. Try not to beat yourself up > about wishing that you had taken action sooner. I am in the very > same situation as you! Our doctor kept telling us not to worry. She > never explained to us that there were other options (such as getting > the opinion of a specialist). Like you, I finally got fed up, and > took action on my own. I've heard from several people that it is > very common for doctors to act like plagio is no big deal. I know > exactly what you mean about precious time being wasted. If felt that > our doctor let us down, and I also felt like I let my son down by not > looking into this problem sooner. Just in the last few days though, > I have been trying to let go of some of those feelings and focus on > what I can do now. At least our sons our only 6 months old, some > people don't become aware of their options until their babies are > even older. > > > > Good luck dealing with your insurance company! My son is seeing > a specialist next week, but I've been procrastinating about calling > the insurance company. I'm not sure I'm ready to start that battle > yet. > > > > I'm new to this board, but so far the people here have been > great. Just knowing that as questions arise, I can post her, makes > me feel so much better. Many people here are much farther along in > this process than me ( many of their babies have graduated from > helmut therapy). They are a great resource. But, it is also nice to > have someone like you here who is like myself, and just beginning to > deal with all of this. Please keep in touch!> > Gladieux> > > > > >For more plagio info

[Guest guest]

As soon as you get a chance, please post about your appointment! I am crossing my fingers for you guys.. I hope it all goes well.

Anne

New to group> > Hi ,> > My son, is also 6 months old. Try not to beat yourself up about wishing that you had taken action sooner. I am in the very same situation as you! Our doctor kept telling us not to worry. She never explained to us that there were other options (such as getting the opinion of a specialist). Like you, I finally got fed up, and took action on my own. I've heard from several people that it is very common for doctors to act like plagio is no big deal. I know exactly what you mean about precious time being wasted. If felt that our doctor let us down, and I also felt like I let my son down by not looking into this problem sooner. Just in the last few days though, I have been trying to let go of some of those feelings and focus on what I can do now. At least our sons our only 6 months old, some people don't become aware of their options until their babies are even older. > > Good luck dealing with your insurance company! My son is seeing a specialist next week, but I've been procrastinating about calling the insurance company. I'm not sure I'm ready to start that battle yet. > > I'm new to this board, but so far the people here have been great. Just knowing that as questions arise, I can post her, makes me feel so much better. Many people here are much farther along in this process than me ( many of their babies have graduated from helmut therapy). They are a great resource. But, it is also nice to have someone like you here who is like myself, and just beginning to deal with all of this. Please keep in touch!> Gladieux> > > For more plagio info

[Guest guest]

michelle,

Logan is absolutely adorable!! What a face! He is just too cute!

> Here are some pics of Logan. You can see that one eye looks bigger

than

> the other. He is just discovering his tongue, so cute! Good luck

at

> your Wednesday appt.

>

> - mom to Logan

> PA

[Guest guest]

Welcome to the group and . Wish the need wasn't there but you have come to the right place for love and understanding. I receive the groups post through digest form so I don't read every one. If you want to talk to me please email to my email address or Re: Genny. If you don't I'm afraid I might miss it.

My daughter, Jodi has AIH and she is 29 years old. We did a living donor transplant a year a go May 18. I read your in Ohio but where do you live? We are in Central Florida and had the transplant at the University of Miami. We were #19 that had been done there.

Jodi did not respond to the medications and had only been dx a little over a year when we had to do something fast. Please don't get upset because this is not the normal situation. The doctors do think she has had AIH for years. She was in and out of the hospital with infections but the last was a gram negative infection which is in the blood stream. We almost lost her that time so even though Miami had started testing me to be a donor because she was on the list things really picked up and we had a date before we knew it.

There are three sets of people in the group that have had to go the living donor way because there just aren't enough organs to go around. Our local newspaper are about to do the third story on us to get the word out about the need for donors.

My daughter is doing great and thank God I was a match.

If I can be of help in answering questions please email me. I will try my best to get back to you as soon as possible. I don't get on as much as I used to because I try to spend time with Jodi and my grandson Colton.

Take care and God bless.

Genny/Jodi's Mom

Living Donor Transplant 5-18-01

University Of Miami #19

[Guest guest]

,

Hey great news on !! Thanks for sharing and let us know when the bid

graduation day is!

' Mom

[Guest guest]

Debbie:

Thanks for asking about 's progress. He has been in his

STARband for 12 weeks and we have seen very good progress. We had

our last appt. with our orthotist last Friday, but will continue to

wear the band for a couple more weeks to see if we can get some

additional correction. We do not regret our decision to go with the

band, and are happy with the results.

, Mom to

[Guest guest]

That's great news !

Sounds like he's gotten wonderful & fast correction. So he'll be

graduating soon then huh? I'm so happy to hear your success. I'm

sure you'll never regret your decision!

Let us know when his graduation is official!

Debbie Abby' smom DOCGrad

MI

> Debbie:

> Thanks for asking about 's progress. He has been in his

> STARband for 12 weeks and we have seen very good progress. We had

> our last appt. with our orthotist last Friday, but will continue to

> wear the band for a couple more weeks to see if we can get some

> additional correction. We do not regret our decision to go with

the

> band, and are happy with the results.

> , Mom to

[Guest guest]

,

Glad to hear that has received such good improvement. Can't

wait to read that official graduation post!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Debbie:

> Thanks for asking about 's progress. He has been in his

> STARband for 12 weeks and we have seen very good progress. We had

> our last appt. with our orthotist last Friday, but will continue to

> wear the band for a couple more weeks to see if we can get some

> additional correction. We do not regret our decision to go with

the

> band, and are happy with the results.

> , Mom to

[Guest guest]

,

Well, its good news that will be treated in only a short 3 weeks from now- and with the tort- please know that this may be the underlying cause for the plagio and you really need to work on that neck! I will attach some exercises and a great hold for you also. You can check into www.torticolliskids for great support and advice from other tort moms. They are also a great bunch- I learned so much from them! Tort can cause facial asymmetry, upper scoliosis, so take this information and run with it, and you can help keep from developing any of those potential problems with pt. You can do it!!! If I can do it with being severe, you can certainly do it with (who I think is not so severe with tort, right?). Good luck to you and please keep us posted. You are probably experiencing lots of emotions right now, but just know that your great parents to be here learning all that you can, and we can all surely relate to those feelings, and will do just fine because his parents love him soooo much that they went the extra mile to figure all this out!! Good for you! If I can help you in anyway, please let me know!

' Mom

Tort Stretches/ Hold

Torticollis Info

[Guest guest]

> ,

> Let us know how the appt. went!

>

> ' mom

Well, saw the plastic surgeon today and was officially

diagnosed with deformational plagiocephaly, moderate to severe. Also

tort. He gave us a prescription for a helmet (I don't know what

kind, I asked if it was a STARband and he said no, so I assume it is

just a locally made one). He also recommended at home physical

therapy for the tort, and explained some exercises we could do. We

have an appointment next thursday to get scanned (no casting,

done by a computer, which I know is a STARscanner, so why would they

not be providing STARbands??). I guess I am happy that we don't have

to go through the casting, but I hope the scanner is accurate. Now I

need to get all of our insurance stuff together and hope that it is

covered! This is all happening so fast now. should be in

his helmet in 3 weeks. I feel fortunate that we did not have to argue

with anybody to get this all in motion. Two pediatricians at our

practice independently referred us to be evaluated. Now I just need

to mentally prepare myself for this whole thing, I am still getting

used to the idea of that cute, soft little head being in a helmet for

23 hours a day. I am happy to have all of your collective

experiences to share and make my mind a little more at ease, thank

you for that.

, mom to and

NY

[Guest guest]

:

I'm sorry to hear 's diagnosis, but am very happy to hear that

your surgeon wrote you the rx for the band w/o any trouble at all,

that is unfortunately rare around here!

That's interesting about the scanner being used. I would imagine it

is for the STARband becuz right now Orthomerica & Cranial Tech are

the only 2 places that I know of who are using a scanner vs casting,

even so, this is still pretty rare becuz not all clinics have the

equipment as of yet & they are still " perfecting " the technique, to

my knowledge! I can't imagine a locally made helmet using a

scanner vs casting.

We have had a few members who have used the scanner vs. casting &

they have all been VERY happy with it. So I wouldn't worry much

about the accuracy.

Make sure the orthotist who will be treaating is experienced

in treating plagio babies with the band/helmet. That is the key to

getting success!

Good luck with your ins. - let's hope they come thru without a fight.

It sounds like things are going very smooth so far, I'm sure that

will continue.

Thanks for the update....keep us posted.

Debbie Abby's mom DOCGrad

MI

-- In Plagiocephaly@y..., " kllyblngr " <tkbel@f...> wrote:

>

>

> Well, saw the plastic surgeon today and was officially

> diagnosed with deformational plagiocephaly, moderate to severe.

Also

> tort. He gave us a prescription for a helmet (I don't know what

> kind, I asked if it was a STARband and he said no, so I assume it

is

> just a locally made one). He also recommended at home physical

> therapy for the tort, and explained some exercises we could do. We

> have an appointment next thursday to get scanned (no

casting,

> done by a computer, which I know is a STARscanner, so why would

they

> not be providing STARbands??). I guess I am happy that we don't

have

> to go through the casting, but I hope the scanner is accurate. Now

I

> need to get all of our insurance stuff together and hope that it is

> covered! This is all happening so fast now. should be in

> his helmet in 3 weeks. I feel fortunate that we did not have to

argue

> with anybody to get this all in motion. Two pediatricians at our

> practice independently referred us to be evaluated. Now I just

need

> to mentally prepare myself for this whole thing, I am still getting

> used to the idea of that cute, soft little head being in a helmet

for

> 23 hours a day. I am happy to have all of your collective

> experiences to share and make my mind a little more at ease, thank

> you for that.

>

> , mom to and

> NY

[Guest guest]

Gail,

Funny you should ask. I just emailed a msg with pics We got a

band with a print on it cause dad didn't like the idea of a white

band (he was afraid we wouldn't be good at decorating it) haha. What

kind of paint can be used to paint over it if I do happen to get

creative?

She took to it pretty well. When we first got home she couldn't

settle down for a good nap. But now she's resting well. Hope you

like the pics

& (5 months, banded today!! 8/26/02)

> ,

> Did get her band today? How is she doing? Any plans to

decorate? Please post a picture when you can.

>

> Gail, Sam and Sara's mom, DOC grads

[Guest guest]

I did see your message, but the picture of with her daddy didn't come through for some reason. She is darling in her new band, and she doesn't seem bothered by it at all. Happy rounding.

Gail

Re: &

Gail,Funny you should ask. I just emailed a msg with pics We got a band with a print on it cause dad didn't like the idea of a white band (he was afraid we wouldn't be good at decorating it) haha. What kind of paint can be used to paint over it if I do happen to get creative?She took to it pretty well. When we first got home she couldn't settle down for a good nap. But now she's resting well. Hope you like the pics & (5 months, banded today!! 8/26/02)> ,> Did get her band today? How is she doing? Any plans to decorate? Please post a picture when you can.> > Gail, Sam and Sara's mom, DOC gradsFor more plagio info

[Guest guest]

Thanks for asking, Debbie. is doing really well in his

STARband. It has been about 3 1/2 weeks in it and we already see

substantial rounding of his flat spot. There are still some facial

asymmetries, and he still has a long way to go (he was moderate to

severe to begin with), but it is nice to see progress after only

being in the band a short time. He actually had a fever on Sunday

and had to be out of the band for a day and a half, and I must admit,

I thought he looked strange without it! It really doesn't take long

to get used to seeing it on his head.

Mom to and (STARband 9/14/02)

> > > I have a question...does tort always cause gross developmental

> > delays? B/c

> > > the cranial facial dr and Charlotte at CT both agree that

> > has or had

> > > tort and with the pictures Cranial Tech took before he got his

> > helmet..he did

> > > have a slight tilt...but he is doing everything on time or

> early.

> > He sat up

> > > on his own at around 6 months. He started crawling at about 7

> > months. He's

> > > now standing and walking while holding on to the furniture

which

> he

> > started

> > > at 8 months..and he's now 8 1/2 months. He can turn his head

> both

> > ways...he

> > > used to pull up his shoulder a little when looking to the

> left..but

> > i don't

> > > notice him doing that anymore and i don't notice a tilt..but

then

> i

> > didn't

> > > really notice it before either.

> > >

> > > Also, no one ever recommended PT for him....the cranial dr gave

> us

> > some

> > > exercises to do with each diaper change..but that's it. And i

> have

> > to admit

> > > i got very lazy doing those exercises....and i'm not sure if

his

> > tort is

> > > resolved or not. Does everyone with tort go to PT?

> > >

> > >

> > > Mom to

[Guest guest]

,

Sounds like is doing really well. It's GREAT that you are already seeing

improvement after just 3 1/2 weeks. Just imagine all the correction that is yet

to come! Thanks for the update.

Marci (Mom to )

Oklahoma